ac420ec's blog

update

ac420ec — Fri, 07 Aug 2009 04:34:02 -0700

Update 9/2008

ac420ec — Tue, 23 Sep 2008 08:04:03 -0700

hi Everyone!

Jan.2008 update

ac420ec — Fri, 04 Jan 2008 06:43:39 -0800

Its been awhile since I updated. I occasionally get emails or comments on here from other parents dealing w/ frontal lobe epilepsy and its nice to know that some of our experiences help others. Hannah is still having brief seizures nightly. She is now on 300mg Topamax and 800 mg Carbitrol. It was pretty rough for about 3 months after starting the topamax. We had brought her off of a high dose of keppra and since you have to move so slowly raising the topamax she just wasn't covered seziure wise. Han began having weird episodes during the day that involved not understanding language

Sept.2007-considering not medicating

ac420ec — Tue, 04 Sep 2007 09:16:35 -0700

Its been a good summer for us here,lots of swimming and sun. Hannah is still not under control on meds. The past few weeks we have been weaning keppra and adding topamax. No improvement yet, but fingers are crossed. This is her...

April 2007-would love to hear from people who have had frontal lobe surgery!

ac420ec — Fri, 27 Apr 2007 06:29:04 -0700

Its been awhile since I updated. Han's still having nightly seziures, but things are going pretty well. She saw her epi and his opinion was to treat her aggressively w/ meds for the next 3-6 months and then he would like to do a...

Update

ac420ec — Thu, 25 Jan 2007 09:49:35 -0800

Its been awhile since I posted and I thought I would update re: Hans Keppra experience. Its been a few months now and she is at the max of both Keppra and Trileptal. We see improvement at every increase which then returns to regular...

On to Keppra...

ac420ec — Fri, 20 Oct 2006 06:13:04 -0700

It took a few weeks but we were able to wean Han off the Lamictal and after 10 days off it her seizures returned to her previous frequency (about one an hour while sleeping). Whew! Our neuro has now added Keppra to her trileptal...

update

ac420ec — Tue, 19 Sep 2006 05:21:17 -0700

Well, the lamictal didnt work out so well for Han. Five weeks in we realized her seizures had gotten more frequent with each dosage increase. She was having long seizures (10 min.) every night and lots of smaller ones. We called...

August 2006

ac420ec — Wed, 16 Aug 2006 06:53:46 -0700

We are still on our journey for control over these nocturnal seizures. She is at the highest dose of trileptal so her nuero is adding Lamictal this week which has a very slow increase period. It will be 6 weeks before she is at her...

Update summer 2006

ac420ec — Mon, 10 Jul 2006 08:44:45 -0700

Well, we are now a few months in since my last post. Han is doing fairly well, but there have been issues with medication side effects. Her trileptal dose which started at 150 mg 2x a day is now at 600mg. in the a.m. and 900 mg....