Amberwood's Official Blog

Long Distance Dedication: Care Tips for Alzheimer's

Jeff Walls — Thu, 24 Oct 2013 16:51:00 GMT

For many adults with aging parents, the realization that mom and/or dad is going to need extra care can be difficult.
It not only forces you to face their mortality, but yours as well. To make
things tougher, family dynamics begin to change when children become the
caregivers to their parents. Denial can be found on both sides. Most adult
children don’t want to believe that dad is declining physically and needs
assistance doing simple tasks or that mom’s memory loss is the symptom of
something more serious, such as Alzheimer’s disease. These feelings of denial
are usually even stronger for the aging parent. Not only are they struggling
with the difficulties of aging bodies and minds, but they are reluctant to give
up their role as parent and caregiver. This scenario becomes even more
difficult when the two parties live far apart. Caring for a loved one
long-distance is going to require special planning and organizing. Of course,
this type of care is only successful if the loved one is still fairly
independent. At the beginning stages of Alzheimer’s, people can still perform
daily tasks and activities. As a caregiver, you will need to monitor the
situation during each visit to determine if more care is needed, in-home or in
an Alzheimer’s care community. The Alzheimer’s Association provides a helpful
guideline for long-distance caregivers to follow.

When you visit your loved one, observe the
following:

Is there food in the refrigerator? Is it
spoiled? Is the person eating regular meals?
What is the condition of the inside and outside
of the home? Has it changed?
Are the bills paid? Are there piles of unopened
mail?
Do friends and relatives visit regularly?
What is the person’s personal appearance? Is the
person bathing and grooming?
Is the person still able to drive safely?
In addition to these simple observations, the
Alzheimer’s Association also encourages the caregiver to spend the time
together as effectively as possible. They suggest:
Make appointments with your loved one’s
physician, lawyer and financial adviser during your visit to participate in any
decision-making.
Meet with neighbors, friends and other relatives
to hear how they think the person is doing. Ask if there have been any
behavioral changes, health problems or safety issues.
Take time to reconnect with your loved one by
talking, listening to music, going for a walk or participating in activities
you enjoy together.

By following these suggestions, you will be able
to better care for and monitor your loved one’s health, even from
long-distance. It can be easy to ignore signs and symptoms when you visit. No
one wants “to spoil” a visit by discussing and dwelling on these issues.
However, by taking these initial steps, the caregiver will have a better grasp
of the situation and will be better prepared to make tougher decisions when the
time comes.

In the next post we will discuss the decision to bring Alzheimer's care in to your home.

Please share any experiences you have with long distance care of a loved one. What challenges did you face? How did you deal with these challenges?

Alzheimer's and the 5 Senses

Jeff Walls — Thu, 03 Oct 2013 19:28:00 GMT

According to the Family Caregiver Alliance, it is estimated that 8.9 million Americans care for someone with Alzheimer’s disease(or other form of dementia) in a home setting. If you are one of these caregivers, you realize, or soon will, that the level and type of care needed by a person with Alzheimer’s disease (AD) is ever changing. You will experience “good days” and “bad days” and, as the disease progresses, new symptoms may appear and/or old ones worsen. Being flexible and patient with a person with AD is a must. As the caregiver, it is important that you keep in mind that the disease affects the brain DIRECTLY and the body INDIRECTLY. A person who suffers from AD may be physically healthy otherwise, but due to the deterioration of certain parts of the brain, the body doesn't respond as it should. The U.S. Department of Health and Human Services; National Institutes of Health & National Institute on Aging, have compiled some guidelines and safety tips in regards to the degeneration of the five senses and how it will affect the person with AD: SIGHT-As was mentioned earlier, there may be nothing wrong with the eyes of an AD patient, however the brains ability to interpret the images may be decreased. This can cause confusion, disorientation and the inability to recognize familiar people or places. A few tips to manage this decline would be to: Create color contrast between floors and walls to create visual “depth”. Mark the edges of steps with brightly colored strips of tape to identify height changes. Place brightly colored signs or simple pictures on doors for easier identification. (i.e. bathroom, bedroom, etc.) Be aware of small pets that may lie in walkways. SMELL-It is very common for smell to be the first sense affected by AD. In most cases, it is noticed before the diagnosis of Alzheimer’s has been made. Though, a loss in smell does not indicate that one has AD, it is advised that one consult a physician for an Alzheimer’s screening. It is important to: Install smoke detectors and check them frequently. Keep refrigerators clear of spoiled food. TASTE-If you've ever noticed that when you nose is stopped up due to a cold or infection, your sense of taste is greatly decreased. The loss of smell plus the added decrease in taste bud sensitivity, can really affect the way a person with AD tastes things. There is also the danger of confusion, leading them to place hazardous items in their mouths. Some simple recommendations would be to: Keep all condiments hidden and locked away if you notice the AD patient using excess amounts. Lock up toiletries and cleaning supplies. Learn the Heimlich maneuver. HEARING-As in the case of the eyes, a person could test as having perfect hearing, but not be able to process sounds. This can lead to agitation, confusion or over stimulation. You should: Avoid excessive noise in the home. (i.e. Having the stereo and television on at the same time) Be aware of noise outside the home. Avoid large gatherings of people in the home. TOUCH-As with all of the others senses, sensitivity in touch decreases. Depending on how severe the loss is, a person with AD may not be able to recognize being cold or hot or even being in pain. Many of the steps recommended are similar to childproofing your house. Things to consider: Set water heaters at 120 degrees Fahrenheit. Color code water faucet handles. (i.e. Red for hot and blue for cold) Place warning signs on the oven and other appliances that get hot. Cover corners of furniture with padding. As a caregiver, you will have the best knowledge as to what the care recipient needs. It is important that you find a balance of being watchful and yet, still allowing them to be as independent as they can be, without sacrificing safety. If you have questions or need support as a home caregiver, call Amberwood Care Centre at 815-964-2200 and ask about our Caregiver Connections program. If you are a caregiver, what are some of the tips you can offer our readers? Please leave comments or share your experiences.

Alzheimer's Care | From Home to Long-Term

Jeff Walls — Tue, 22 Jan 2013 19:44:00 GMT

As indicated previously, we will be discussing the decision and transition from home-care to long-term care, for a loved a one with Alzheimer’s disease/dementia. For those families that opted to provide personal care, there will most-likely come a time when you and your family are no longer able to provide the level of health care and security your loved one needs. The decision to move a family member into a health care facility is a tough one. Unfortunately, many people wait too long to make the decision, resulting in an elopement, accident or worse. Planning for the move in advance will ease the stress for you, your family and most importantly, your loved one. As mentioned above, relatives wait until an “incident” occurs before seeking a care community. By this time, they are often desperate to find a place and make a quick, unguided choice. This can be avoided by researching Alzheimer’s care communities in your area. You will need to create a list of your loved one’s special needs. If they have other serious health issues, they may require “skilled care” in addition to “long-term care”. The Alzheimer’s Association suggests that you and your family take these crucial steps first:

Learn about what care options are available Determine which will best be able to meet the needs of the individual with Alzheimer’s
Anticipate the costs of care ad find resources to help pay for them In today’s world, most research begins on the internet
Locate your options and visit the facility with questions and concerns

Take a tour of each facility and talk to residents if possible, as well as staff members. If they host a support group for Alzheimer’s/dementia, attend a meeting. More than likely, there will be people in the group who have a loved one living at that facility. Talk to them and get their opinions/views on the quality of life within. Finding a community that provides the care and the security that is necessary is obviously important, but it is also important to find a place that provides a high quality of life. Personalized care, stimulating activities and socialization are key elements in caring for those living with Alzheimer’s/dementia. Walking into a place that is lively and friendly will also ease your mind. All too often, people choose a place that seems “clean and safe”, but the mood within is sullen and sterile. Family and friends may find this atmosphere sad and depressing and visit less. It is impossible to underestimate the importance of visits. It not only benefits the loved one, but it helps the staff better care for them as well. The more they know about your loved one, the more personalized the care can be. This creates a safe and secure feeling for the resident. Once you have made a decision and your loved one has moved into a community, the Alzheimer’s Association suggests following these steps:

Work with the managing nurse and/or physician
Agree on a time when you can call to get updates on the individual’s condition and progress
Call family, friends and/or other visitors and ask for their observations
When you visit, meet with the staff members who have primary responsibility for your loved one’s care

From the initial diagnosis to the long-term care community, caring for someone with Alzheimer’s can be a challenging ordeal. With the support of family, friends, physicians, communities and local/federal organizations, this experience can be made easier and less stressful for everyone involved. Sharing experiences is another way to support others in a similar situation: Are you caring for a loved one with Alzheimer’s? How did you choose the right care community for your loved one? What resources did you use in choosing a community? We look forward to your comments.

Alzheimer's at Home

Jeff Walls — Tue, 08 Jan 2013 20:01:00 GMT

In a previous blog, “Dementia Checklist for the Holidays”, we discussed the symptoms to look for and steps to take if one suspected an older relative or friend of showing signs of dementia/Alzheimer. We pointed out that family gatherings are a good opportunity to check on the health and wellbeing of other relatives. Concerns can be discussed, as well as plans of action. If, after a diagnosis has shown that indeed, the loved one has developed Alzheimer’s disease, then they, along with a spouse and/or other family members should decide on a care plan.

For most people, their first instinct is to provide care for their loved one themselves especially if they are a parent or a spouse. Though these intentions, based on love and loyalty, are admirable and understandable, the overall wellbeing of the Alzheimer patient must be the first priority. Others may feel that they/the family cannot afford professional care. Regardless of the reasons, it is important to realize that taking care of an aging parent or relative can be quite daunting on its own but the addition of Alzheimer’s creates an endless amount of concerns. The Alzheimer’s Association has compiled a list of some of the more serious considerations that one must make before moving a loved with Alzheimer’s/dementia into their home:

Does he/she want to move? If they are married, what about their spouse?
Is your home adapted to support the person?
Will someone be at home to care for the person?
How does the entire family feel about the move?
How will this move affect your job, family and finances?
What respite services are available in your community to assist you?

Once the decision has been made, establishing a routine will help to make the transition smoother, not only for the Alzheimer sufferer, but for you/your family as well. One must also keep in mind, that any move will quite possibly create anxiety and confusion for the person with Alzheimer’s. Unfamiliar spaces and a break in their routine are common causes of agitation for those with Alzheimer’s. It is important that you talk to the person’s physician or current care giver to discuss the best approach for a move or even if a move into your home is viable.

Another important fact to remember is that Alzheimer’s is a progressive disease, but every case is different and therefor advances at different rates. Some people may maintain a certain level of functioning for years, while others may see a sharp decline over a matter of months. You, as the primary care giver, will have the first insights into any changes. If the disease continues to worsen, there may come a time when caring for your loved one at home is no longer safe for them or maybe even you. The physical and emotional tolls that caregiving takes are just one issue, but it can come to a point where you just aren’t able to provide the level of care needed and will have to seek professional help. In our next installment, we will cover the transition from home care to long-term care.

Are you considering caring for a loved one with Alzheimer’s/dementia? Do you have questions and/or concerns? Does the family all agree on the same care plan? We encourage everyone to leave comments and suggestions. As a community resource, Amberwood Care Centre provides support for family caregivers with monthly Support Group meetings and Caregvier Connection program. Please call 815-964-2200 or email us at info@amberwoodcarecentre.com for more information and/or to schedule a tour.

Gifts for Those with Alzheimer's and Their Caregivers

Jeff Walls — Mon, 17 Dec 2012 17:54:00 GMT

It is the middle of December and a vast majority of us are still trying to find the perfect gifts for those on our holiday shopping list. We all have those people in our lives whom are "hard to buy for," for whatever reason. Older adults can be more challenging in general for the simple fact they they already have everything they want and claim to not need anything. For those with Alzheimer's, it can seem more difficult and even confusing as to what to get them. However, in reality, the best gift options are practical items that can be easily and relatively, inexpensively purchased.

When considering gifts for loved ones with Alzheimer's, their current state should be kept in mind. Those in the early stages of the disease may benefit and enjoy certain items, while those in the later stage may find them confusing or irritating. This can be especially true of family photos. Once the person has reached the stage where they no longer recognize family members, seeing their photos in their house may confuse them and create frustration. For those in the early stages, the same photos could be helpful reminders and trigger fond memories. If you not around the person with Alzheimer's often, you may want to discuss the details with their caregiver(s) to get an idea of where they are in their disease. Once that is determined, there are several solid gift options to choose from:

Early Stages |
Memory Enhancement Items - Post-it notes, bulletin boards, labeled baskets and drawers, photo albums with names clearly printed and calendars with important dates already filled out can help those with only short term memory issues.
Gadgets for Daily Activities - Large print clocks that also display day and date, automatic medication dispensers, smart phones that hold photos and important information of family, friends and doctors can make daily life easier and less stressful.
Entertainment - Plan social outings or events with close friends and relatives, purchase DVDs and CDs of their favorite movies/music and organize craft projects based on old/new interests.

Middle to Late Stages |
Sensory Stimulants - Scented lotions, soft blankets, stuffed animals and sound machines can stimulate the senses and even help retrieve pleasant memories.
Clothes - Comfortable and washable, easy to put on/remove clothing such as sweat suits, pajamas, Velcro secured shoes, robes and wide band socks are wonderful options.
Music - Research shows that even in late stages, music has a positive influence on those with Alzheimer's.

These are a just a few tried and true gift options for someone living with Alzheimer's and chances are, they are being cared for by one of the over 26 million personal caregivers in this country. This role usually falls on a spouse, sibling or grown child of the person with Alzheimer's. Depending on the level care they provide and out of pocket costs they cover, they may have little or no time/money for themselves. Though practical gifts also apply here, there is lots of room to be creative as well.

Caregivers |
Your Time - Truly cost effective for both parties, offering your time to help clean the house, tend to the lawn, shop for and even providing care for the individual with Alzheimer's is a sincere and meaningful gift.
Gift Certificates/Cards - These days, it is possible to buy gift cards for almost any product, store or service. Anything from a spa treatment to delivered groceries will surely be appreciated by most caregivers.
Entertainment - Books, magazines, CDs and DVDs will surely be welcomed as brief reprieves during a busy day.

If your budget allows or you are looking for a nice group gift, some of the latest high tech gadgets can be very useful for a caregiver. A smartphone could make their daily lives easier by helping to organize and store important information for both themselves as well as the person they are caring for. Tablets, like the iPad are also great gifts for caregivers. They are light weight, easy to carry and can store all of the books, music, movies, games, etc. that the caregiver would like to have handy during a break. There are also countless applications for seniors and those with dementia/Alzheimer's that the caregiver can incorporate into the daily activities. Another creative gift is is a digital video recorder or DVR, such as Tivo. Most cable company's provide the actual recorders for free and simply charge a monthly fee. Paying a year's subscription could be a special surprise for a caregiver that is constantly missing their favorite shows.

Hopefully, these tips will be of some help for those of you shopping for someone with Alzheimer's and possibly their caregiver. Please share any creative and unique ideas that you have tried or heard of. If you don't know anyone with Alzheimer's personally but would like to participate in charitable program, Amberwood Care Centre has organized a "Giving Tree" event in where anyone can purchase a gift for one of our residents, including those with dementia/Alzheimer's. For more details, check out "The Giving Tree" article on the front page of our website or call 815-964-2200.

Happy Holidays!!

The Unexpected Costs of Caregiving

Jeff Walls — Tue, 11 Dec 2012 14:50:00 GMT

The rising cost of health care in this country has been a growing concern for decades. With Americans living longer, the need for long-term care is also growing. Most people, however, look at long-term care as a last resort, due to expense and/or emotional reasoning. Therefore, when the time does come that a loved one needs care, family members usually take on the role themselves instead of seeking professional services.

In a 2011 report from Indiana University, they stated that nearly 10 million Americans were caring for older parents; this unpaid care is valued at an estimated $375 billion per year. At first glance, it would seem that these personal providers would be saving money for their loved ones and themselves. However, MetLife studies estimate that the total loss of wages, pensions and social security benefits of workers who provide full time care is $3 trillion or an average of $304,000 per caregiver over a lifetime. This doesn't even take into account the various other costs; financially, emotionally and physically.

The physical and emotional toll of caring for a loved one is seldom considered when a family member takes on the role. Countless studies and polls show that many caregivers do not have the time or energy to take care of themselves. To make it worse, most have lost insurance benefits because they gave up their jobs to care for their loved one. Caregivers find themselves being forced to use up savings accounts and retirement funds to cover these costs. A lack of funds can prevent caregivers from seeking health care themselves, leaving them unable to care for their loved one let alone themselves, leaving two people in need. Thus, the cycle continues.

There are many factors to consider before taking on the role of personal caregiver. If you have access to a financial planner, it would be wise to seek their advice in crunching the numbers to determine if it truly will save money for you/the family. If you are considering the role strictly on an emotional level, talk with other caregivers to get a realistic viewpoint and experience. Though the heart might be in the right place, you may not be able to provide what's best for them and/or yourself in the long run.

Do you care for a loved one? What were the factors that lead you take on this role? Were you prepared for this financially? What about physically and emotionally? Do you have the support of family and friends? Please share your experiences here. Others may find helpful information in your stories.

Exercise and Alzheimer's - tips for caregivers

Jeff Walls — Tue, 04 Dec 2012 16:36:00 GMT

The benefits of exercise, for all ages, are common knowledge. Though it may get harder to exercise as we grow older, it is still an important part of staying healthy, both physically and mentally. The wonderful thing about exercise is that it comes in an endless number of forms, making it accessible to everyone. The hard part is actually dedicating the time to do it regularly. In our younger years, when we are usually at our strongest and exercise is easier, we are too busy to find the time. When we are older and our lives have slowed down, our bodies are weaker and mobility may be an issue. Regardless, the importance of regular exercise remains the same throughout our lives. Exercise, along with diet, is probably the easiest preventative measures we can take against illnesses ranging from heart disease and diabetes to depression and even dementia.

As more and more research is being done on dementia/Alzheimer's, more correlations are being discovered that link diet and exercise to not only the initial developmental risk of Alzheimer's but also the rate at which it progresses once it has set in. Due to the fact that most people with Alzheimer's are considerably older, exercise may be more of a challenge. Add to that the complications and symptoms of Alzheimer's/dementia and it may seem impossible. As any caregiver can tell you, the simple activities of life, such as dressing, bathing and eating, can be an all-day struggle. The addition of a regular exercise routine will doubtfully be at the top of their list of priorities. However, the benefits will surely outweigh the difficulties. The National Institute on Aging offers several tips for assisting those with dementia/Alzheimer’s:

Be realistic about how much activity can be done at one time. Several 10-minute "mini-workouts" may be best.
Help get the activity started or join in to make the activity more fun.
Find time in the morning for exercise.
Break exercises into simple, easy-to-follow steps.
Choose comfortable clothes that are suitable for the weather and appropriate shoes that fit well.
Make sure both you and your loved one drink plenty of water when exercising.

Experts are quick to point at that one of the easiest ways to get someone to exercise is to do it with them. Of course, this helps the caregiver stay healthy as well. Too often caregivers’ health suffers due to negligence of their own needs. They are so busy caring for others, they don’t take the time to care for themselves. The Institute also provides several suggestions for activities/exercises to do together:

Take a walk together.
Do simple tasks around the house, such as sweeping and raking.
Work in the garden.
Play music and dance.
Exercise with videos made for older people.
Throw a soft rubber exercise ball back and forth.
Lift weights or household items such as soup cans.
Use resistance bands, which you can buy in sporting goods stores. Be sure to follow the instructions.

Obviously, as a caregiver you will have more personal knowledge of the abilities of the individual. If you have questions regarding the safety and risk of some exercises or activities, consult a physician.

Though creating and maintaining a regular exercise routine may seem daunting at first, in the long run, the benefits for both you and the person you are caring for will be far worth it. A healthier ward will be easier to care for and you in turn will be stronger and more capable.

Are you a personal caregiver? Do you promote regular exercise? Did you notice a change in the person with Alzheimer’s? Yourself? Do you have any tips or suggestions for our readers? What works best for you? We would love to hear your comments.

Carbohydrates and Alzheimer's

Jeff Walls — Wed, 28 Nov 2012 15:56:00 GMT

As more and more research is being done in the fight against Alzheimer's disease, more and more 'links" are being discovered. Though a cure has yet to be found, scientists are putting the pieces together as to what may be the cause. The term "brain health" has been utilized within the the Alzheimer's/dementia care communities for several years now, as researches have determined that diet and mental stimulus play a definite role in the cognitive health of an individual. Foods high in antioxidants and omega-3 fatty acids have been associated with good brain health for a while and now. Recently, researchers have linked a diet high in carbohydrates as a possible cause to developing Alzhiemer's disease.

Carbohydrates are an essential part of a healthy diet, however, like most things, are best in moderation. For decades now, carbohydrates have been associated with losing/gaining weight. Fad diets that drastically reduce and in some cases, eliminate, carbs from one's life continue to be popular. Of course, experts agree that cutting out all carbs can be harmful to one's overall health. Finding that balance is important to maximizing and maintaining a healthy lifestyle. For those who have started this practice while younger, they may not realize that not only are they maintaining a healthy weight, but could also be preventing the development of Alzheimer's later in life.

The actual link between carbohydrates and Alzheimer's comes from the overabundance of glucose in a high carb diet. "A high-carbohydrate intake could be bad for you because carbohydrates impac your glucose and insulin metabolism." says Rosebud Roberts, a professor in the department of epidemiology at the Mayo Clinic in Rochester, Minnesota. "Sugar fuels the brain, so moderate intake is good. However, high levels of sugar may actually prevent the brain from using the sugar - similar to what we see with type 2 diabetes."
Roberts went on to say that high glucose levels could affect the brains blood vessels and even play a role in the development of beta amyloid plaques which are toxic to brain health and found in people with Alzheimer's. Though no one knows what causes Alzheimer's, it is widely suspected that the build up of beta amyloid is the leading cause.

The damage caused by Alzheimer's is irreversible. Along with the fact that it remains to be incurable, our best option is to try and prevent developing the disease altogether. Maintaining a well balanced diet, along with physical exercise and mental stimulation will not only benefit you for the moment, but set the groundwork for a healthier future later in life. Making that decision to grab an apple instead of a donut may help you waistline today and your brain health 20 years from now.

Do you practice a "brain healthy" diet? Lifestyle? Are you responsible for planning and preparing meals for others? How do you handle someone in your care who wants/craves a lot of carbs? We would love to hear your stories. Please share your experiences with us here, so that others may learn from them.

Stressed? Don't Sweat It!

Jeff Walls — Thu, 15 Nov 2012 15:54:00 GMT

Stress! Young and old, we all feel it and for the most part, stress has negative connotations. We all know the dangers that chronic stress can cause, both physically and mentally; sleepless nights, ulcers, depression, heart attacks.... All of these issues, and many more, can be linked to persistent levels of angst and worry. Studies are also showing that the hormone, cortisol, which is released into the body during times of stress, can have damaging affects on the memory part of the brain if there is too much. The amount is, in large part, due to how the individual responds to stress in general. A negative response can lead to the over release of cortisol, while a positive response will halt the release, maintaining a healthy and manageable level of hormones. When maintained at healthy levels, the brain will actually develop more gray matter and stimulate cognitive growth.
The initial response to most stressful situations actually starts out as a positive experience for the body and mind. Scientists have shown that making a conscious effort to remain positive emotionally, will physically control the amount of hormones released, making the overall experience healthy. They compare these moments to that of exercising; just as the right amounts of exercise strengthens the body, the right amount of stress can strengthen the mind. However, just as too much exercise can damage the body, too much stress can hurt the brain. As is the case with most things, everything is good in moderation.
For most people, learning how to moderate their feelings during stressful situations can be tough. It is hard to stay positive when your instincts and your logic are telling you otherwise. Focusing on the little everyday worries is a good place to start. A good example would a parent running late dropping their kids off at school Traffic is making it impossible to be on time. Realize you can't change that and perhaps use the time to engage the children in conversation about school or family matters. This is a much healthier response for both mind and body than honking your horn or cursing a situation you have no control over. You have allowed your body to benefit from the initial release of hormones that help exercise the mind yet were able to reign it in before an "overdose" of cortisol was released in to your system. For some people, this control will be easier than it is for others. People who practice meditation, for example, probably have already learned to control their responses to some degree. This may come in the form of breathing exercises or quietly repeating a mantra that calms them or inspires them. Regardless, the effects are the same...a positive response to a negative situation.

How do you handle stress? Do you feel that stress and the way you react to it has affected your body? Brain? If so how? Do you notice how stress affects those around you? We look forward to hearing your comments.

Dementia Checklist at the Holidays

Jeff Walls — Mon, 05 Nov 2012 17:17:00 GMT

November is here and with it, the beginning of the holiday season. This means that families across the country are making plans to visit relatives and loved ones. For those with older family members, these holiday trips provide a good opportunity to make a checklist of their of the physical and mental health. Of course, the holidays are a time of joyous celebration and most people don't want to ruin the occasion by dwelling on such serious matters, However, with busy schedules and perhaps long distances, getting together in person may only be limited to holiday visits. Let's face it, no one wants to think of their parents as getting older or their beloved grandparents declining in health. It can be very easy to slide into denial, especially during the holiday season. Some illnesses and ailments are much more obvious, to those afflicted and to even those around them, while others, such as Alzheimer's/dementia may not be.
For decades, the majority of the symptoms associated with Alzheimer's were relegated to general terms such as "old age" and "senile". They were an accepted fact of aging and not much, if anything, was done about them. In today's' world, the seriousness of this disease is well known and more people are aware. However, early signs of dementia can be difficult to detect, even to doctors. The sheer multitude of symptoms, some subtle can appear to be the result of other illnesses or aging, as was once believed. Spotting these symptoms early can be very beneficial for everyone. As with most diseases, early detection is paramount when diagnosing and treating. Though currently there is no cure for Alzheimer's, the progression can be slowed considerably if proper treatment can be administered.
Knowing what to look for will make it easier to determine if there are any issues. No one wants to spend their entire visit dissecting every move and decision a parent or grandparents makes. As a family member yourself, you probably already know them very well; their habits, their moods, their likes, etc.....Simply being attuned to any differences will allow you to enjoy your time. If an action or occurrence does happen to trigger suspicion, then communicate with a trusted family member to see if they notice a change. Sometimes those that spend a lot of time together may not see what is right in front of them. Like a close friend gaining weight, you may not notice the change because it is gradual, but a friend you all haven't seen in awhile notices immediately. It may take someone who is not part of the daily life of the individual to be able to detect any problems. Regardless, everyone should be aware of the most common signs and be open to move forward if any are detected. Doctors and experts use a basic list of 10 signs to help determine if someone has developed Alzheimer's or other form of dementia. You and your family should use these as a guideline when assesing a loved one's condition:

Alzheimer’s Association 10 Warning Signs of Alzheimer’s

1. Memory loss that disrupts daily life. One of the most common signs of Alzheimer's is memory loss, especially forgetting recently learned information. Others include forgetting important dates or events; asking for the same information over and over; relying on memory aides (e.g., reminder notes or electronic devices) or family members for things they used to handle on one’s own.

2. Challenges in planning or solving problems. Some people may experience changes in their ability to develop and follow a plan or work with numbers. They may have trouble following a familiar recipe or keeping track of monthly bills. They may have difficulty concentrating and take much longer to do things than they did before.

3. Difficulty completing familiar tasks at home, at work or at leisure. People with Alzheimer's often find it hard to complete daily tasks. Sometimes, people may have trouble driving to a familiar location, managing a budget at work or remembering the rules of a favorite game.

4. Confusion with time or place: People with Alzheimer's can lose track of dates, seasons and the passage of time. They may have trouble understanding something if it is not happening immediately. Sometimes they may forget where they are or how they got there.

5. Trouble understanding visual images and spatial relationships. For some people, having vision problems is a sign of Alzheimer's. They may have difficulty reading, judging distance and determining color or contrast. In terms of perception, they may pass a mirror and think someone else is in the room. They may not realize they are the person in the mirror.

6. New problems with words in speaking or writing. People with Alzheimer's may have trouble following or joining a conversation. They may stop in the middle of a conversation and have no idea how to continue or they may repeat themselves. They may struggle with vocabulary, have problems finding the right word or call things by the wrong name (e.g., calling a "watch" a "hand-clock").

7. Misplacing things and losing the ability to retrace steps. A person with Alzheimer's disease may put things in unusual places. They may lose things and be unable to go back over their steps to find them again. Sometimes, they may accuse others of stealing. This may occur more frequently over time.

8. Decreased or poor judgment. People with Alzheimer's may experience changes in judgment or decision-making. For example, they may use poor judgment when dealing with money, giving large amounts to telemarketers. They may pay less attention to grooming or keeping themselves clean.

9. Withdrawal from work or social activities. A person with Alzheimer's may start to remove themselves from hobbies, social activities, work projects or sports. They may have trouble keeping up with a favorite sports team or remembering how to complete a favorite hobby. They may also avoid being social because of the changes they have experienced.

10. Changes in mood and personality. The mood and personalities of people with Alzheimer's can change. They can become confused, suspicious, depressed, fearful or anxious. They may be easily upset at home, at work, with friends or in places where they are out of their comfort zone.

Making the most of the holidays can mean more than just celebrating and catching up with relatives. Using the time to insure the health and well being of loved ones can be a great benefit to the entire family. As November is Alzheimer's Awareness Month, we will be looking at various topics that relate to the disease.

Do you suspect that someone you know may have dementia/Alzheimer's? What are the signs? Have you discussed your concerns with the individual? Others? We would love to hear your experiences in this matter.

Alzheimer's: Your Story

Jeff Walls — Wed, 26 Sep 2012 15:51:00 GMT

Taking a cue from the Alzheimer's Association campaign for this year's International Alzheimer's month/A
lzheimer's Action Day, we want to encourage everyone who has been touched by this disease to share their stories. Experience is one of the most valuable means of learning for us all. Trial and error is one of the most basic fundamentals and an instinct we all possess. Through years of these trials we gain the knowledge to know right from wrong, what works and doesn't work, etc.... However, through commu

nication, we can also learn from others experiences. This is especially true for those dealing with Alzheimer's. As we mentioned in the previous blog, there is definitely a stigma attached to Alzheimer's disease. This can cause a significant breakdown in communication between those with the disease, their families and even care providers. Utilizing others stories can help keep t
his from happening.

By no means is this a new idea. There are support groups for every affliction and problem one could think, such as Alcoholics Anonymous. People find strength in knowing they aren't alone in what they are goi

ng through. Unfortunately, the nature of Alzheimer's and dementia in general, can create different sets of problems as the disease progresses. Though fatal, people can live many years after being diagnosed with Alzheimer's. A time will com
e when the person diagnosed or the caregiver may think they have "figured out" how to handle the disease, only to have the symptoms and behaviors change drastically over night. It is this constant changing that creates a lot of the physical and emotional damage for those dealing with Alzheimer's.

Reading through various encounters, attending support groups and even speaking with experienced caregivers, can make this difficult journey a little easier for everyone involved. Knowing what to expect in the future is just as important as knowing how to deal with the present.

We always end our blogs with requests from our readers to s

hare their stories with us, regardless of the topic. In this case, we are encouraging those with Alzheimer's experiences to share them in general. Other websites, such as The Alzheimer's Assoc
iation have special sections where you can share your story and anonymously if that is preferred. Just sharing yourexperiences with friends, neighbors, church groups, etc...can lead to your message helping someone else down the line. We all know that feeling of relief when we find out we aren't alone during a struggle. So please, in honor of those who have already been there, to those who will go through it in the future, share your story.

Fight the Stigma of Alzheimer's and Go Purple!

Jeff Walls — Thu, 13 Sep 2012 15:18:00 GMT

International Alzheimer's Month is in full swing and Alzheimer's Action Day, (Sept. 21st) is quickly approaching. The Alzheimer's Association's is promoting their "Go Purple" campaign to bring awareness to this disease. For a lot of diseases/causes, creating awareness is imply getting the cause in the public eye. For the Alzheimer's Association, one of the most important goals of raising awareness is to help fight the stigma attached to Alzheimer's and dementia in general. Other than Cancer and AIDS, few diseases have such profound stigma associated with it. For decades, Cancer was considered a bad word, to be whispered in quiet conversations. Though not a contagious disease, friends and even family members would shy away from those with cancer, mainly out of fear of not knowing what to say and in some cases, not wanting to face the physical changes that many cancer patients go through. In the case of AIDS, it was quite simply the terrifying fear of contracting a disease that many believed could be transmitted through something as benign as a handshake or a hug. When the AIDS epidemic first took hold, many AIDS patients had problems finding caregivers. Granted, those with Alzheimer's don't go through the extreme physical changes and they can't transmit their dementia to others, they have very definite stigma that they encounter from people.
Alzheimer's was misunderstood by the majority of the public for many, many years. Even as early as a generation ago, people assumed that the symptoms of dementia and Alzheimer's were a common and expected part of aging. Terms like "senile" were used to describe a forgetful grandfather or an older aunt who had fits of anger and confusion. Even though the details of Alzheimer's are now widely known, there are still people who fall to prey to myths and fears. One of the most common and saddest of these is the thought that "They don;t even remember me, so there is no point in visiting them." Isolation is one of the biggest concerns for those living with Alzheimer's. Once a diagnosis has been given, it is all too common for some people to pull back and even ostracize that person from their lives. Some fear unexpected outbursts while other can't handle the emotional toll of watching a loved one decline, physically and/or mentally. The Alzheimer's Association, along with all other groups devoted to fighting Alzheimer's, are constantly working at changing people's perception as well the way they interact with people with the disease. It is important to remember that regardless of what the person in question has forgotten or can't recall, they will always recognize the meaning of a smile and a hug. Many of those with dementia decline much more rapidly than they might due to lack of physical and emotional contact with other people. It is similar to a new born that never gets held. People, by nature, crave and need human contact to maintain a healthy life. Though their physical brain may be under attack, human instinct will respond to a kind and gentle tone of voice, a genuine smile and big hug.
As the 21st nears, think about what you can do to bring awareness to this disease. Though you may not have ever had contact with someone with Alzheimer's, chances are good that you will in the future. It is one of the fastest growing diseases due to the ever increasing age of the general population. Hopefully, enough awareness and money can be raised to decrease the rate and number of diagnosis in the future. We ask everyone to take a few minutes to learn more about the disease and do there part to help raise awareness. As mentioned before, the Alzheimer's Association is running their "Go Purple" campaign. As part of this campaign, they are asking everyone to change their Facebook profile photo to the purple END ALZ logo for the 21st of September.
The logo is scaled to fit the profile space and only has to be saved to your computer so that you can upload it to your profile. As part of the Alzheimer's care community, we are joining the Alzheimer's Association in this cause and you to join us in going purple!

Do you or someone you have Alzheimer's or another form of dementia? How have the family and friends reacted? Sharing your experiences is an excellent to raise awareness, educate and fight the stigma associated with Alzheimer's disease. Please share your stories with us here.

World Alzheimer's Month

Jeff Walls — Wed, 05 Sep 2012 20:38:00 GMT

September is right around the corner and with that, World Alzheimer's Month. As the American generation of older citizens continues to grow, so do the cases of Alzheimer's disease. Efforts have been underway to meet this epidemic head on, with increased research efforts and backing from every level of government. Groups such as the Alzheimer's Association and the Alzheimer's Foundation lead the way in raising money and awareness for this fatal and costly disease. Perhaps taking cues from such groups as the Susan B. Cohen Foundation and the Live Strong organization, high profile Alzheimer's groups are cultivating a variety of events throughout the month and utilizing social media to spread their message further and faster.
Arguably, the Alzheimer's Association (AA) is the best known group in this cause. Their annual "Walk to End Alzheimer's" is the most widely known fundraising event for this disease. Throughout September, thousands of American communities, both large and small, host a walk. Various groups, organizations, companies, etc....raise money through their own fundraising events and then donate the money to the AA. As part of their campaign to inspire the public to get involved, the AA has created a section on their website honoring individuals and groups that have dedicated themselves in the fight against Alzheimer's. Through unique fundraiser's, to the tireless pursuits of promoting awareness, these "Heroes" of Alzheimer's are an inspiration for everyone who has been touched by this disease in any way.
If you've been following this blog, you realize that the majority of the topics deal with Alzheimer's and Alzheimer's care issues. Therefore we would like to highlight those individuals and groups who help make a difference through their efforts. We ask that you share stories of your efforts or the efforts of others in this fight.

Check out "Meet Heroes" at the Alzheimer's Association page .
www.alz.org/wam/wam.asp#boxOne

Diabetes & Alzheimer's

Jeff Walls — Thu, 23 Aug 2012 13:16:00 GMT

It’s been estimated that around 25% of older adults in the United States have diabetes. Being such a widespread disease, the complications of diabetes, visual impairment, kidney disease, foot problems, etc…are well known. Recent studies, however, are showing that diabetes is also linked to cognitive impairments and even Alzheimer’s disease.

One of these studies was done by a team at Beth Israel Deaconess Medical Center (BIDMIC), led by Vera Novak, MD, PhD. Novak is the Director of Syncope and Falls in the Elderly Program in the Division of Gerontology at BIDMIC and Associate Professor of Medicine at Harvard Medical School. The group reported that “…in older patients with diabetes, two adhesion molecules – sVCAM and sICAM – cause inflammation in the brain, triggering a series of events that affect blood vessels and, eventually, cause brain tissue to atrophy. Importantly, they found that the gray matter in the brain’s frontal and temporal regions --responsible for such critical functions as decision-making, language, verbal memory and complex tasks – is the area most affected by these events.” Novak went on to say, ““In our previous work, we had found that patients with diabetes had significantly more brain atrophy than did a control group,” explains Novak, Director of the Syncope and Falls in the Elderly (SAFE) Program in the Division of Gerontology at BIDMC and Associate Professor of Medicine at Harvard Medical School. “In fact, at the age of 65, the average person’s brain shrinks about one percent a year, but in a diabetic patient, brain volume can be lowered by as much as 15 percent.”

Though the group made no direct correlations between cognitive decline and developing Alzheimer’s disease, other research studies have focused on links between the two. In addition to the physical damage caused through inflammation and thusly, interrupted blood flow, there appears to also be a common gene that diabetes and Alzheimer’s share. Perhaps by researching these links more thoroughly, a better understanding of what causes Alzheimer’s could finally be realized and from there, hopefully a cure.

Do you have diabetes or know someone who does? Have you noticed a cognitive decline in those with the disease? Were you aware that diabetes could have this affect on an individual? We would love to hear your thoughts on the subject. Please share your comments and stories with us.

Various Therapies for People with Alzheimer's

Jeff Walls — Thu, 09 Aug 2012 14:36:00 GMT

When it comes to caring for those living with Alzheimer's, or other forms of dementia, it is important to realize that the present is as important as the past. It can be easy to get caught up in trying to retrieve memories that may or may not be retrievable and forgo living for the moment. Whether you are a professional staff member in a care giving community or a personal caregiver taking care of a loved one at home, there are various activities, or “therapies”, that can improve the quality of life for someone with Alzheimer’s.

One of the most common and most frustrating symptoms of Alzheimer’s is the loss of verbal communication skills. It could be in the form of forgetting words, confusing the meanings of words or losing the language altogether. This can be a very difficult struggle for someone who knows what they want to say, but not know how to say it anymore. This can lead to frustration for both the caregiver as well as the person being cared for. The frustration can easily turn to depression, anger and surrender. However, by initiating certain, creative activities, the caregiver can provide a platform for the person with Alzheimer's to communicate from. Some of the most effective and popular of these are art, music, drama and horticultural therapies.

Though different in nature, all of these therapies allow for creative expression. For those people with Alzheimer's, finding an outlet can greatly minimize the stress they feel due to lack of verbal abilities.

Art: Art therapy is probably the most common, due to it's ease and simplicity. There is no "right" or "wrong" art. The process is just as, if not more so, important than the finished product. The act of creating and expression can give those individuals who have problem speaking a voice.

Music: Music, whether it be playing an instrument or singing along to the radio, is another therapy that any care giver can provide. Music, much like smells, are strong triggers of memory and help promote communication and socialization.

Drama: Drama therapy requires a little more technique, but can be useful in promoting imagination, creativity and even memory recall. Something simple as a scarf can be used as an improvisational prop to tell stories or act out scenes. Drama therapy is most commonly used in a group setting.

Horticultural: Horticultural therapy is another, relatively simple activity that can promote memory recall, but also serves as a self-esteem building tool. Caring for a plant and seeing it grow gives a sense of accomplishment. Depression is quite common among people with Alzheimer's, who feel like they have nothing left to contribute.

These are just a few of the therapies that can benefit the life of someone with Alzheimer's. There are so many more, including pet, aroma and laughter therapies, that all serve similar purposes. Developing new interests, making new friends and socializing have been shown to slow the progession of Alzheimer's in many people. As wonderful as it is to help someone recall a fond memory, it is important to live in the now and continue to move forward in life.

Caregiver Tips for Planning and Serving Meals

Jeff Walls — Mon, 30 Jul 2012 16:39:00 GMT

Gathering around the table and sharing meals with loved ones is truly a special tradition found in most cultures. From a simple, single family dinner on a weeknight to a huge holiday feast with several generations on hand, these experiences stimulate all of the senses and quickly become ingrained in our memories. For most, these memories bring feelings of security, comfort and happiness. For caregivers, however, finding the time and energy to maintain these dining rituals can be difficult.

As a caregiver, it can be very tempting to rely on premade snacks, processed foods and even fast food restaurants to provide easy, quick meals. Obviously, these foods provide minimal nutrients and vitamins and are usually high in sodium, fat and calories. It is important for the caregiver to maintain healthy diets for both themselves and the person in need. The emotional and physical tolls that caregivers go through can be exhausting. A poor diet will only compound these problems which can negatively impact your overall ability to provide care. The same poor diet can affect the person in care just as negatively. In most cases the elder person is limited in mobility and daily exercise can be difficult if not impossible. Eating properly will make you both healthier and therefore stronger, making daily care easier. Finding that balance of quick and easy meals, as well as healthy ones can be tricky, but with a few simple guidelines, it can easily become part of the daily routine.

1. Control expense. The majority of caregivers work with a limited budget. Buy in bulk if possible and look for season fruits and vegetables. Not only will they taste better, but they will be cheaper. Frozen fruits and vegetables are also a good deal, with many containing almost the same levels of nutrients and vitamins as their fresh versions.

2. Focus on fiber. Make large quantities of grains, such as brown rice or quinoa, and add it to several different dishes throughout the week, such as salads, soups and stir fries. Add raw oatmeal to muffin mixes and pancakes.

3. Find their comfort foods. Being able to provide comforting dishes can reduce stress and even help trigger memories for those with dementia/Alzheimer’s. This could be as simple as a cup of hot tea or a grilled cheese sandwich.

4. Fun finger foods. Sometimes, the person in care may have difficulty using utensils, be it due to severe arthritis or even dementia/Alzhiemer’s. Providing an entire meal of healthy finger foods can be simple, quick and fun and even reminiscent of a party. It also provides for another sense to be used, that of touch.

5. Be creative. Don’t get caught in a rut. Experiment with items, such as using wraps instead of bread to make sandwiches or serving breakfast dishes, such as omelets for dinner. Though routine can be a good thing, providing some surprises is a way to keep meal times fun and exciting.

6. Helping hand. Don't be afraid to ask others for help. Family members, friends and neighbors may be willing to assist in planning and making meals. If possible, have them join you during the meals. This will make the meal more social and give it that feeling of a special occasion. Also, look into local groups or organizations that may provide meals, such luncheons at your family church or local senior center.

Being able to utilize the feelings that are associated with meal times will make dining a much more enjoyable experience for both the caregiver and the person in care. Taking the time to enjoy the moment will not only help to trigger memories, but will create news one as well.

Are you a caregiver? Do you have any helpful or unique tips for planning and serving meals? We encourage everyone to share their experiences here in the hopes that others can benefit from them.

Behind the Wheel with Alzheimer's

Jeff Walls — Fri, 22 Jun 2012 20:36:00 GMT

It is well known that America has had a long love affair with the car. Since Henry Ford made it possible for the average American to own a car, this country grabbed the wheel and never looked back. Despite ever increasing gas prices, Americans refuse to forsake the auto. Necessity is by far the strongest reason, getting people to work, kids to school, etc....but driving also represents a lot more than that, freedom.

Minor Ailments and Alzheimer's

Jeff Walls — Thu, 14 Jun 2012 17:48:00 GMT

As more and more research is being done on the causes of Alzheimer's, as well as treatments, more and more information is becoming available on practical ways of reducing one's risks of developing the disease. Though the exact causes are still not known, general aging is probably still the leading cause of Alzheimer's development.

Feed Your Brain

Jeff Walls — Wed, 06 Jun 2012 18:39:00 GMT

Summer is here and one of the best parts of this season is all of the fresh produce that is easily available. At an early age, we are all taught that fruits and vegetables are good for us and will make us big and strong. However, as adults, our bodies still need the nutrients and vitamins that fresh produce possess.

Alzheimer's Support Groups

Jeff Walls — Wed, 30 May 2012 17:23:00 GMT

It is estimated that 65 million people are family caregivers. A family caregiver is someone who provides care and/or assistance to family member on a day to day basis. In many cases, it is 24 hours a day. Alzheimer's and other forms of dementia are one of the leading causes.

The fact that the symptoms of Alzheimer's are so varied and that each person diagnosed behaves differently can make it harder to detect. Family members are usually the first to notice changes in memory or behavior of a loved one. The person themselves may be in denial that they are forgetting or confused by the changes. Early stage Alzheimer's is often times minor in the effects it has the individual, For this reason, they tend to remain in their homes. Spouses, siblings and children are often the first caregivers in this situation, Only minimal monitoring or assistance may be needed and there is no cause to seek outside help. However, as the disease advances, so do the responsibilities of the caregiver. More and more attention must be paid to the individual and the surroundings must adapt to these changes.

This ever changing disease will undoubtedly create stress and anxiety for you and your family. This is normal and unavoidable. Feelings of guilt, resentment, sadness, anger,....are a natural response to the situation. Unless you are already a trained nurse or other medical personnel, you may find it hard to navigate the many stages of the disease. It could be very beneficial for you and your family to seek out a family support group in your area to help you deal with feelings and emotions, Most groups will allow you to only listen in, if that is what you are comfortable with. Hearing that others are going through/have gone through what you are experiencing can be helpful. You will also learn what to expect as the disease progresses, giving you time to prepare and have a plan in place.

Though the rate of the disease is different in everyone, it is, unfortunately, incurable and fatal. Obviously, other illnesses or issues may affect the individual's overall health and lifespan, but for those caring for a loved one with Alzheimer's, the final stages are something that everyone must prepare for. Having access to a support group will make this all easier and less stressful.

Caring for and loving our family is a natural instinct. For the most part, we all want what is best for our loved ones and will do whatever it takes to make that happen. Feeling overwhelmed can lead to guilt and frustrations, causing a whole new set of problems to cope with. If you are contemplating or have already decided to take on the role of a caregiver, research the support groups in your area as soon as possible. Having that support at the beginning will only make your journey and your family's, that much easier.

Are you a family caregiver? Do you belong to a support group? Please leave your comments and share your stories here, with us. Just as in a support group, your experiences may help others in a similar situation.

Children and Alzheimer's

Jeff Walls — Fri, 18 May 2012 17:56:00 GMT

The diagnosis of Alzheimer’s is one that will undoubtedly affect the whole family. This includes children. Because Alzheimer’s doesn’t necessarily have visual symptoms, young children can be easily confused when it comes to understanding the disease. Add to that, the fact that a person with Alzheimer’s may act completely different from one day to the next can also be confusing and even frightening to a child. The first time a grandparent forget a grandchild’s name or doesn’t recognize them can/will be traumatic. Informing the child ahead of time will help alleviate the pressure of that and other “awkward” moments.

Obviously, the age of the child will be a big factor in how and how much information you give them. Explaining that the disease affects the memory is straightforward and can usually be understood by even young children. It is also important to let the child know that Alzheimer’s disease isn’t contagious and that the person does not have “germs”. Older children and teenagers will be able to better understand the disease as well as the situations that may occur because of it. It will be hard for everyone, regardless of age, during some point of the disease’s progression. Reminding the child that “Grandpa still loves you” may be necessary to ease a child’s fears and concerns as behaviors and memory begin to change. It may become tempting to shield children from contact altogether as the disease progresses, but this should be avoided unless the person with Alzheimer’s becomes agitated around the child. For the most part, studies show that the presence of children usually has a calming effect on those with dementia. Even if the person no longer recognizes the child, they are drawn to them and their activities. It is common that even though the person has forgotten recent memories, they still have those from the past. This means they remember not only raising their own children, but memories of their own childhood. Depending on how advanced the disease is, engaging the children and the person with Alzheimer’s in an activity together can be fun and fulfilling for both:

Sorting through keepsakes (Such as a family photo or jewelry box)

Simple recipes (Such as slice and bake cookies or making sandwiches together)

Small household tasks (Such as sweeping or organizing a shelf)

Most children love the idea of “helping” out and feel that they are contributing as a family member and the person with Alzheimer’s can enjoy both past memories and the company of a child. It is important to keep in mind, that at some point, perhaps even early on, it would be unsafe to leave the person with Alzheimer’s alone with a child. This is not to say that harm would come to either, but the unexpected turns in cognitive awareness may cause issues. A change in behavior could scare a child, who may not know how to react or recover. It can be difficult for full grown adults to understand and cope with some of the behaviors associated with Alzheimer’s and impossible for someone younger.

As a family, communicating with and supporting one another can make a huge difference in the dynamics of caring for a loved one with Alzheimer’s. Even if you are not directly caring for the individual on a daily basis, being aware of changes and behaviors will make visits and decisions much easier for you and everyone else. And don’t forget to include the children…they are usually smarter than the credit given them.

National Nurses Week

Jeff Walls — Wed, 09 May 2012 21:09:00 GMT

“Nurses: Advocating, Leading, Caring” is the theme to this year’s National Nurses Week. This annual, week-long observation was created to honor the nation’s registered nurses. The week always begins n May 6th, which is marked as RN Recognition Day and ends on May 12th, Florence Nightingale’s birth date. Nightingale is the founder of nursing as a modern profession and considered by many to be a national hero for her relentless pursuit to provide the best and most compassionate care possible to all of her patients.

Not unlike Nightingale, many of today’s nurses work long, hard hours in settings that are less than ideal. The American Nurses Association estimates that there are about 3.1 million registered nurses in this country, with the majority of them being employed by hospitals and long-term care facilities. Nurses comprise the nation’s largest health care profession and are working alongside doctors and researchers to advance the quality of care available. Some of you may have already noticed the trend in hospitals that are being designed so that nurses are closer than ever to patients and thus have faster response time to calls. These new designs were developed with the aid of experienced nurses and nursing educators. Both the Affordable Care Act and the Institute of Medicine’s Future of Nursing report say that nurses are at the center of health-care transformation in the United States. Another interesting fact is that the annual Gallup poll shows that nurses have been rated as the most trusted profession for 12 of the last 13 years.

Nurses, in general, spend far more time with patients than doctors do or are able to. Is it is for this reason that their experience and judgments play such a large part in healthcare. Though not licensed doctors, many registered nurses are able to diagnose illnesses and administer medications. They also have better access to patients and therefore can answer questions and tend to the patients needs faster. This in turn builds that strong bond between patient and nurse and that ever important feeling of trust.

It is for all of these reasons and many, many more that we celebrate nurses and the nursing profession. I encourage you to take the time to honor the nurses you know, be it personally or professionally; something as simple as a hand written note or a “thank you” can mean a great deal to them and let them know that they are doing a wonderful job.

Have you required the care of a nurse? What did they do for you? Your family? Are you a nurse yourself? What lead you to be a nurse? Do you find that patients are appreciative the care they receive?

Handling Possible Behaviors of Alzheimer's

Jeff Walls — Tue, 01 May 2012 19:53:00 GMT

If you find yourself the caregiver of someone with Alzheimer's, there will come a time when dealing with different behaviors will become necessary. As the disease advances, it is common for the person to have difficulty communicating. This can lead to new and sometimes even aggressive behaviors and reactions. As a caregiver it is important to always remember that these behaviors are in response to an emotional feeling that the person is having and not a personal attack or confrontation. People with Alzheimer's can easily become frustrated when they can no longer communicate verbally. Their actions may come across as hostile or angry, but a good caregiver will pay attention to these actions to determine the cause.

When an outburst occurs, notice what was taking place right before it happened. Notice the body language of the person and try to identify. Though dementia in all forms can alter the person's sense of reality, it is still real to them none-the-less and must be treated as such. Determining the cause and eliminating it, will usually ease the person's anxiety and alleviate the stress. Helpguide.org provides a list of common causes of problem behavior:

Inability to communicate

Difficulty with tasks

Unfamiliar surroundings

Loud noise, frantic environment

Physical discomfort

If the person you are caring for is a loved one, you might have an easier time recognizing body language and subtle behaviors. These may change of course, due to the progression of the disease and new reactions emerge. Patience is of the utmost importance when caring for a person with Alzheimer's. You may spend months working out a routine that fits their needs and lowers their anxieties only to have them completely change their behaviors completely. The caregiver will have to adapt to these changes. What worked previously may not ever work again.

Being aware of the possible behavioral issues that may arise, will help caregivers prepare for the future. Seeking the advice of others who have already gone through similar stages is an excellent way of combating these trials. Most communities will have a caregiver support group that offers helpful tips, lends emotional support and provides resources for care and assistance. Check with Alzheimer’s care facilities in your area or your local chapter of the Alzheimer's Association for information.

Are you a caretaker? What kind of behavior problems have you encountered? How did you deal them? Did you seek outside advice? From who? We encourage everyone to share their stories here. Your experiences could be invaluable to other caregivers.

Financial Planning for Caregivers

Jeff Walls — Mon, 23 Apr 2012 19:58:00 GMT

According to the National Family Caregivers Association (NFCA), 80% of 1,400 family caregivers surveyed stated that they were concerned about meeting monthly financial needs. According to NFCA President and CEO, Suzanne Mirtz, “Care giving families have higher out-of-pocket healthcare and related costs than non-care giving families. This is especially true for caregivers who provide so much care that they are heavily burdened. Family caregivers often don’t know what they need to do regarding their own financial matters, and even less so when helping their care recipient.” In situations where constant care is necessary, the actual caregiver has little or no opportunity to earn an income, making the financial situation even harder. NFCA, along with Allsup, a national Social Security disability representation company, have created seminars, webinars and tool kits to help the family caregiver make better financial decisions. NFCA has built the information around the most commonly asked questions they receive:

How can I manage our day-to-day finances so that I have some control?

How can I plan so that money is available when I may need care?

What can I do to protect myself from being overwhelmed or drowned by large or unexpected costs?

Are there public or private programs that can help?

Seeking the advice of professionals early on is the first step to financial control. The stress and anxieties that can befall a caregiver will only be compounded if money becomes an issue as well. We recommend that if you are a family caregiver or know that you someday will be caring for a loved one, plan ahead. Check out these websites for helpful information and links to resources for family and person caregivers:

Financialplanningwebinar.Allsup.com (The August 24th, 2011 webinar on Financial Planning for caregivers)

Toolkit.Allsup.com (The tool kit with information and links to resources for caregivers)

www.thefamilycaregiver.org (The website for the National Family Caregivers Association)

Have you found yourself in financial hardships due to caring for a family member? Do you have any tips or suggestions for other caregivers? What sites/organizations have you used? Were they helpful?

Alzheimer's and the 5 Senses

Jeff Walls — Wed, 11 Apr 2012 05:00:00 GMT

According to the Alzheimer's Association 2011 Facts & Figures, it is estimated that 15 million Americans are caring for someone with Alzheimer's disease (or other form of dementia) in a home setting. If you are one of these caregivers, you realize, or soon will, that the level and type of care needed by a person with Alzheimer's disease (AD) is ever changing. You will experience "good days" and "bad days" and, as the disease progresses, new symptoms may appear and/or old ones worsen. Being flexible and patient with a person with AD is a must.

As the caregiver, it is important that you keep in mind that the disease affects the brain DIRECTLY and the body INDIRECTLY. A person who suffers from AD may be physically healthy otherwise, but due to the deterioration of certain parts of the brain, the body doesn't respond as it should. The U.S. Department of Health and Human Services; National Institutes of Health & National Institute on Aging, have compiled some guidelines and safety tips in regards to the degeneration of the five senses and how it will affect the person with AD:

SIGHT-As was mentioned earlier, there may be nothing wrong with the eyes of an AD patient; however the brains ability to interpret the images may be decreased. This can cause confusion, disorientation and the inability to recognize familiar people or places. A few tips to manage this decline would be to:

Create color contrast between floors and walls to create visual "depth".

Mark the edges of steps with brightly colored strips of tape to identify height changes.

Place brightly colored signs or simple pictures on doors for easier identification. (i.e. bathroom, bedroom, etc.)

Be aware of small pets that may lie in walkways.

SMELL-It is very common for smell to be the first sense affected by AD. In most cases, it is noticed before the diagnosis of Alzheimer's has been made. Though, a loss in smell does not indicate that one has AD, it is advised that one consult a physician for an Alzheimer's screening.

It is important to:

Install smoke detectors and check them frequently.

Keep refrigerators clear of spoiled food.

TASTE-If you've ever noticed that when you nose is stopped up due to a cold or infection, your sense of taste is greatly decreased. The loss of smell plus the added decrease in taste bud sensitivity, can really affect the way a person with AD tastes things. There is also the danger of confusion, leading them to place hazardous items in their mouths. Some simple recommendations would be to:

Keep all condiments hidden and locked away if you notice the AD patient using excess amounts.

Lock up toiletries and cleaning supplies.

Learn the Heimlich maneuver.

HEARING - As in the case of the eyes, a person could test as having perfect hearing, but not be able to process sounds. This can lead to agitation, confusion or over stimulation. You should:

Avoid excessive noise in the home. (i.e. Having the stereo and television on at the same time)

Be aware of noise outside the home.

Avoid large gatherings of people in the home.

TOUCH-As with all of the others senses, sensitivity in touch decreases. Depending on how severe the loss is, a person with AD may not be able to recognize being cold or hot or even being in pain. Many of the steps recommended are similar to childproofing your house. Things to consider:

Set water heaters at 120 degrees Fahrenheit.

Color code water faucet handles. (i.e. Red for hot and blue for cold)

Place warning signs on the oven and other appliances that get hot.

Cover corners of furniture with padding.

As a caregiver, you will have the best knowledge as to what the care recipient needs. It is important that you find a balance of being watchful and yet, still allowing them to be as independent as they can be, without sacrificing safety. If you have questions or would like more information on making the home safer for someone with AD, call The Alzheimer's Disease Education and Referral Center at 1-800-438-4380 or visit www.nia.nih.gov/Alzheimers

If you are a caregiver, what are some of the tips you can offer our readers? Have you noticed a change in sensory perceptions in someone you care for? Yourself? Please share your experiences and leave comments below. Your information may be helpful to others looking for assistance and guidance.