Area Autism Search - Northeast Florida (First Coast)

Enrollment Opportunity for Autism Clinic Trials

2011-02-12T16:36:00.000-05:00

Below is a letter from Dr. George M. Joseph regarding recruitment for the ConnectMe
study. If interested, contact Dr. Joseph's office at 904-280-3552 for for more information, visit www.connectmeclinicaltrial.com.

Hello:

I am writing to you to make you aware of an exciting phase II national clinical research study for the treatment of core symptoms of autism in children—communication and socialization. George M. Joseph, MD, PA is one of 16 research centers throughout the US participating in this study, which is called ConnectMe.
As you well know, autism is clearly a disorder with tremendous unmet medical, educational, and other needs. Scientific advances continually provide researchers with new insights into the spectrum of autism disorders and that is why we at George M. Joseph, MD, PA are especially hopeful about the ConnectMe study. The protocol for this study was developed in close collaboration with the US Food and Drug Administration (FDA). The Interactive Autism Network (IAN), a nonprofit organization that facilitates communication between researchers and families with autistic children is also engaged with this study. The investigational medication being studied in ConnectMe contains the active ingredient memantine hydrochloride, in a formulation, dosage and administration schedule appropriate for (and unique to) pediatric patients. Memantine hydrochloride has been deemed safe for use in an adult patient population, and the pediatric formulation has been and continues to be closely monitored in pediatric patients with autism who are participating in this study. While this is the first double blind, placebo controlled study of memantine in autism, a publication of an individual physician’s clinical practice experience in children with autism showed improvements in language function and social behavior.* The ConnectMe study is designed to confirm or challenge those earlier findings. Regardless of the outcome, this study will be a landmark in the field of ASDs.

Families who have enrolled their children in clinical research are to be applauded for their commitment and support of these important scientific endeavors. As you can imagine, the families who have enrolled their children in ConnectMe are very hopeful and excited to participate and to learn of the results. Recruitment for this study will continue through the fall of 2011. I urge you to encourage families in the greater (city) area with children between the ages of six and twelve who have a diagnosis of autism to contact our center to see if they are eligible to enroll in ConnectMe. If you are uncertain about a child’s diagnosis, we are more than happy to determine the presence or not of autism at no cost to the child’s family. Please forward on the following phone number and web address to those families—[904-280-3552] and www.connectmeclinicaltrial.com or if these families give permission to be contacted by us, we would be more than happy to reach out to them.

Thank you for your interest and your commitment to helping families.

Sincerely,
George M. Joseph, MD
*Journal of Child Neurology, Vol. 22, No. 5, 574-579 (2007)DOI: 10.1177/0883073807302611

The First Cycling Event in Jacksonville Has Its First International Participant!

2011-01-15T09:51:00.002-05:00

Ride with Me for Autism has its first international cycling participant...from Sweden!

Registration is still only $25 with a $100 minimum pledge (You only need 10 people who can donate $10)!

Visit www.ridewithmeforautism.org for more information or call 904-274-0639.

The First Cycling Event of the Year!

2011-01-09T18:40:00.000-05:00

Time to Register for Ride with Me for Autism! The event is on March 26, 2011 and the early bird fee to register is $25 plus a minimum pledge of $100. If you know 10 people who will donate $10, you are set to ride! Kids age 17 and under is $10 registration.

Visit www.ridewithmeforautism.org for more information.
To register, go to http://www.active.com/triathlon/jacksonville-fl/ride-with-me-for-autism-2011
For donations or to open up your own fundraising page, go to http://www.active.com/donate/ridewithme2011

Autism Speaks Jacksonville Walk October 23, 2010

2010-10-06T22:07:00.000-04:00

Register for the Autism Speaks charity walk in Jacksonville, FL. Visit http://www.walknowforautismspeaks.org/faf/home/default.asp?ievent=347894 for more information!

Walk for a brighter future for not only families with Autism, individuals with Autism, but for you! Every Autistic life today WILL affect you tomorrow! Think about it!

Also...for cyclists...registration is open for Jessica Green Foundation's Ride with Me For Autism 2011 coming March 26, 2011. Visit http://www.active.com/triathlon/jacksonville-fl/ride-with-me-for-autism-2011 to register yourself or form a team!

Autism Event Is Seeking Dynamic Individuals for Planning Committee

2010-09-12T18:17:00.000-04:00

If you are looking for a cause to share your time and talents, consider joining the planning committee for a bicycling charity event in March 2011. We need leaders and subcommittee members for the following positions:

Marketing & Social Networking Team
Media/Public Relations
Fundraising & Sponsorship Team
Team Development Coordinator
Logistics Coordinator
Exhibitor/Vendor Coordinator and
Subcommittee members

Our next planning meeting will be September 18, 2010 at 10:00 am at the Southeast Branch Library, Room B, 10599 Deerwood Park Blvd, Jacksonville, FL 32256-0507

Please contact Maggie at 904-274-0639 or email cycling4autism@gmail.com for more information.

Generation Rescue is accepting applications for our next grant round!

2010-09-03T20:42:00.000-04:00

Do you or someone you know have a child with autism and want to start biomedical treatment but are unable to afford it?

It's not too late to be part of round 4 starting on SEPTEMBER 15, 2010. Send in your application by SEPTEMBER 13, 2010 to participate.

Generation Rescue is proud to offer a grant program for treatments that may not otherwise be covered privately or by other third-party funding sources such as school districts, county programs, insurance, and/or other grant making entities.

And the great news...we are now accepting applications year-round for future rounds of Rescue Family grants!!

Generations Rescue's Rescue Family grants are designed to provide support to individuals and families affected by Autism Spectrum Disorders.

Each grant recipient will receive:
- Two doctor visits with a specially-trained physician who treats autism - a D.O. or M.D.
- Vitamins, minerals and supplements for 90 days
- A Generation Rescue Rescue Mentor
- Dietary intervention training

This grant is only applicable for families who have not done biomedical treatment, with the exception of the GF/CF Diet.

Please review the questions provided below. If you can answer YES to any of the following questions, you are NOT eligible to apply.

- Has your child seen a DAN! doctor before?
- Has your child received private lab testing from Great Plains, Doctors Data, or Metametrix?
- Has your child been on anti-fungal or anti-viral therapy?
- Does your family make over the median income for your zip code?
- Does your child currently take any supplements other than fish oil?

If you or someone you know is interested in applying for the grant, please visit our WEBSITE and fill out all 6 pages of the application.

Sincerely,
The Team at GR

CARD Community Meetings Announcement (Duval)

2010-08-07T16:43:00.000-04:00

CARD Community Meetings in Duval County
Time: 6:00 PM

09/02/10

Atlantic Coast High

9735 R.G. Skinner Pkwy

Jax, FL 32256

09/16/10

Westview Elementary

5270 Connie Jean Rd.

Jax, FL 32210

09/23/10

Highlands Elementary

1000 DePaul Drive

Jax, FL 32218

Purpose: To meet with parents and family members about the needs of the local autism community. Information obtained at this meeting will help our organization provide better services and support to individuals with autism spectrum disorders and their families.

For more information contact Mae.Barker@jax.ufl.edu

Anthony R. Rhodes, M.S.

Educational Multimedia Specialist

Univ. of Florida at Jacksonville

Center for Autism and Related Disabilities

(CARD)

Phone: (904) 633-0760
http://www.hscj.ufl.edu/pediatrics/autism/

Autism Oasis for Kids

2010-07-26T21:03:00.000-04:00

Dear autism community and friends,

I am a parent of a child with autism in Alachua county, Florida. Through
searching to help my own son I have come to realize the importance of
including parents in any treatment approach for autism and PDD. The
parent-child relationship offers the most powerful teaching opportunities
for social and communication learning. For this reason my husband and I
created Autism Oasis for Kids - a parent run school for children with
autism. We aim to provide a relationship-based approach for children and
high-quality, research-based parent training.
See www.autismoasisforkids.org .

Access to this type of parent training is very limited in Florida. To
address this we are hosting a parent-training workshop in September in High
Springs, the details of which are below. The workshop is open to all parents
and professionals working with children who need help with social and
communication skills, but spaces are limited to 80 seats. Let me know in
advance, if you would need on-site and inexpensive accommodations and meals.

Please make this information available to anyone who could benefit from this
rare opportunity in Florida.

Thank you so much!

Marie Trempe
info@autismoasisforkids.org
1-888-535-6191

Request for Input from the Autism Community in Jacksonville

2010-07-25T22:12:00.000-04:00

If there is anything you would like to see posted or promoted on my blog, please feel free to contact me at basorem@gmail.com. The best information comes from the community.

Topics such as Summer vacation, Back to school, Coping in tough situations, or anything involving Autism. Young people and adults with Autism, your input is the most valuable of all!

There is also an Area Autism Search groups in Google

I have already put in some topics but you can add your own! Thank you in advance!

Ride with Me for Autism 2011 Charity Cycling Event-March 26, 2011

2010-07-13T09:37:00.000-04:00

Title
Ride With Me For Autism 2011

Date
March 26, 2011 (Rain or Shine)

Time
7:00 am – 5:30 pm

Location
Westside: Camp Milton, Jacksonville-Baldwin Rail Trail 1175 Halsema Rd. North Jacksonville, FL 32221

Cost
Ticketed

Description
Rider’s Information.

Come and enjoy this 4th Annual Charity Touring Cycling Event to benefit those who struggle with Autism in Florida. Routes from advanced to beginner: 62-mi/100k, 29-mi, 10-mi, and a fun ride for the family! You can begin organizing a corporate, school, club or a cycling club team!

A nutritious breakfast and lunch will be served*, awards for top team and individual fundraisers and largest team, silent auction, information booths and live entertainment! SAG Services and Mechanical Assistance will be provided.

Saturday, March 26, 2011 opens at 7:00 AM local time

Event Schedule:

Breakfast 7:00 am – 9:30 am

62-mi/100k Ride 7:00 a.m Registration (8:00 departure)

29-mile Ride 7:30 am Registration (8:30 departure)

Opening Ceremony 7:45 am

10-mile Ride 8:00 am Registration (9:00 departure)

Family Fun Ride 8:30 am Registration (9:30 departure)

Silent Auction 10:00 am – 4:00 pm

Luncheon & Awards 12:30 – 5:00 pm

Camp Milton, Jacksonville-Baldwin Rail Trail
1175 Halsema Rd. North
Jacksonville, FL 32221

•Adults**: $25 plus $100 min pledge to ride. ($30.00 registration on morning of the ride)
•Children**: $10 ($15.00 registration on morning of the ride)

Registration Closing Date on Active.com is Thursday, March 24, 2011 @ 11:59 PM.

For more information, contact Jeanie at (904) 274-0639 or visit www.ridewithmeforautism.org

* A $10 DONATION FOR LUNCH FOR SPECTATORS/NON-PARTICIPANTS

**OFFICIAL T-SHIRT IS GUARANTEED IF MAIL-IN REGISTRATION APPLICATION & MINIMUM $125 REGISTRATION FEE & MINIMUM PLEDGE IS RECEIVED BY OUR OFFICE BY MARCH 18, 2011.

Ride with Me for Autism 2011 is presented by the Jessica Green Foundation, a non-profit organization giving hope to families and individuals with Autism.

Website
www.ridewithmeforautism.org

Categories
Specialty Events Charity Events

Keywords
Ride with me for autism 2011 bicycle ride, autism, Camp Milton

Looking To Serve On an Event Planning Committee?

2010-06-13T19:29:00.001-04:00

Join us on June 26th at 10:00 at the Southeast Branch Public Library. Contact Lou Cabrera at 786-205-5498 if you are interested in serving on the planning committee for Ride with Me for Autism 2011. Seeking all types of talent. A great event for a great cause!

Autism Father Support Group Free BBQ Lunch, June 12, 2010 (11:00 am - 1:00 pm), AJ's On Park Street‏

2010-05-17T18:52:00.001-04:00

Hello to all:

Please come and join the Autism Father Support Group for a free BBQ Lunch sponsored by AJ’s On Park Street and Jessica Green Foundation. Please distribute the attached announcement and share.

Thank you,

Lou Cabrera
Chairman of the Board
Jessica Green Foundation, Inc.

When: June 12, 2010

Time: 11:00 am – 1:00 pm

Where AJ’s On Park Street, 630 Park St.Jax, FL 32204

RSVP by June 4th: Lou Cabrera, 786-205-5498

Asher's Journal

2010-04-22T19:11:00.000-04:00

What is Asher's Journal? It is a web-based record keeping application that allows parents, teachers, therapists, doctors and other caregivers the opportunity to connect and collaborate for the common goal of the patients health. The mash-up of home data collection, therapy session notes, treatment summaries and biomedical observations provides a new and unique approach to best treating the patient. As a parent of a child with Autism, you know the pounds of papers you have in your file from IEP's, to therapist visits from the moment of diagnosis and all throughout their life.

Asher Clark is a young boy recently diagnosed with Autism. His parents, Tim and Nicole developed a system to help them keep up with all of Asher's paperwork and to be able to share with all those involved in his care. They moved on to develop a website for other parents to be able to do the same thing.

A big part of Asher's progress this year is due to ashersjournal.com. The Clarks are just one special needs family reaching out to others. There is a 30-day free trial then a monthly fee. Take a look and see if Asher's Journal can help your family.

Saturday, April 17th The Special Olympics/HUGS Presents the 2010 Introductory Golf Clinic at TPC Sawgrass

2010-03-30T18:25:00.000-04:00

TPC Sawgrass will be hosting a fun and instructional golf clinic in partnership with Help Us Golf, Inc. (HUGS) and the Special Olympics of Area 5. This clinic is open to all who are interested in participating. Act fast because registration ends on April 12th.

For more information or to sign up, contact the County Coordinator for Duval County Special Olympics Donica Hayes at Donicahayes.soflduval@gmail.com or Jarrad Kogos at kogosfamily@aol.com. Link to the Special Olympics website is: Area 5 Special Olympics Duval County and Help Us Golf, Inc. HUGS.

CARD Weekly Update March 30,2010

2010-03-30T17:43:00.000-04:00

See "Agency News"

Maggie's Brochure - Home

2010-03-27T15:07:00.001-04:00

Maggie's Brochure - Home

My Avon website. I will be happy to fund raise for any Autism cause. Contact my Avon email at avonbasorejax@yahoo.com or visit my website and go to the contact me page and select "fundraiser".

CARD Weekly Update - March 24, 2010

2010-03-24T17:32:00.000-04:00

See update in the Agency News

Native Sun Introduces Gluten Free Bakery

2010-03-19T20:49:00.000-04:00

Native Sun Logo
MARCH SAVINGS

MARCH 2010

NEW! GLUTEN-FREE BAKERY

We have a large segment of customers who shop at Native Sun because they must follow a special diet for their health and cannot find the products they need at a conventional grocery store. We have always given special diets special attention from the variety of products we stock to our unique color coded shelf tagging system that easily identifies gluten-free, casein-free, no peanut added and low sodium products. That is why we are so excited to announce the official opening of the Native Sun Gluten-Free Bakery!

While we have been using no-gluten added recipes in the Native Sun Bakery since April 2009, we now have trained staff, a dedicated area and quality control procedures in place to run a completely contained gluten-free bakery. In addition, bakery items are also periodically tested to assure product safety.

This effort was led by our Food Education Coordinator Ginny Nehring, whose son Brad is on a gluten-free diet for the treatment of Celiac Disease. Ginny has also authored a gluten-free cookbook called Brad’s Basics and offers free store tours for customers new to shopping for gluten-free, casein-free and other special diet needs.

Look for the items below in-store now & new recipes coming soon!

GF Oatmeal Creme Pies
GF Chocolate Chip Cake
GF Chocolate Brownies
GF Apple Cake
GF Carrot Cake
GF Pound Cake
GF Muffins And More

Individual items are sold by the Juice Bar and Deli at both locations. Large quantity orders or full cakes for birthdays, weddings or other special occasions are available by pre-order.

We hope our new Gluten-Free Bakery will allow children & adults with Celiac Disease and other GF special diets to enjoy cakes, desserts, muffins and other scrumptious goodies that they would otherwise have to pass on or make from scratch. We also want to assure our non gluten-free dieters that these treats are as delicious as any “regular” recipe. The proof is in the pound cake!

ALL-NATURAL DELICATESSEN AT BAYMEADOWS

We are also excited to now offer all-natural meat and cheese from Thumann's and Andrew & Everret in a new Delicatessen section of our Baymeadows Deli. Products are available by the pound or sliced for fresh deli sandwiches.

Thumann's all-natural meats contains NO antibiotics, growth hormones, nitrates, nitrites, fillers, artificial flavors, colors, preservatives, or MSG. Their meat comes from livestock that are raised in stress free conditions and their products are low in salt, trans-fat free and safe for individuals with dairy and gluten allergies. In fact, Thumann's is the first deli company to be certified gluten-free!

Andrew & Everett cheeses are all-natural and made with rBGH-BST Hormone Free Pasteurized Milk. [rBGH is a harmful, synthetic, genetically-engineered version of a cow’s natural growth hormone that is injected into cows to increase milk production.]

CHEESE SELECTION

Pepper Jack
American
Baby Swiss
Muenster
Provolone
Mild Cheddar
Mozzarella

MEAT SELECTION

Black Forest Brand Ham - certified by the AHA
Black Angus Top Round Roast Beef
Black Angus Cooked Corned Beef
Black Angus Pastrami Round
Oven Roasted Gourmet Turkey Breast - certified by AHA
Oven Roasted and Hickory Smoked Turkey Breast

MORE NATIVE NEWS . . .

New! Local, Farm Fresh Milk & Cheese from Live Oak, FL

Expanding HVP Recall for Possible Salmonella

March GreenApples Charity: MDA

Open Auditions for Green TV Show Hostess 3/20

Protect Your Right to Organic Dairy!!!

THANK YOU!

Owner Aaron Gottlieb & the Native Sun Staff

Native Sun Natural Foods Market, 11030 Baymeadows Road, Jacksonville, FL 32256 904-260-2791

CARD Weekly Update - March 16, 2010

2010-03-16T19:12:00.002-04:00

See "Agency News"

Ben's Place

2010-03-15T20:24:00.002-04:00

I discovered Ben's Place when passing by and I wondered what kind of place it was. Turns out that a friend of mine's son goes there to socialize. For developmentally disabled adults, Ben's Place is new and on the Westside (on San Juan Avenue just off of Blanding Blvd.)

I will stop in there one day and check it out, but, I encourage you to visit the website: http://www.bensplacecof.org/index.htm

Volunteer Florida Announces New Funding Opportunity (See Agency News)

2010-03-14T11:34:00.000-04:00

Jacksonville School for Autism 6th Annual Charity Golf Tournament

2010-03-14T11:08:00.000-04:00

Jacksonville School for Autism will be holding their 6th Annual Charity Golf Tournament on
Monday, April 19, 2010 at The Palencia Club which is located at 600 Palencia
Club Dr., St. Augustine, FL 32095. This is to help secure JSA's operating budget for the 2010-2011 school year.

Registration starts at 7:30am
Tournament begins at 9:00am

Scramble Tournament - Player Fee is $200

ABC News OnCall+ Autism Center Home Page - ABC News

2010-03-10T21:04:00.001-05:00

A great resource from ABC News! http://abcnews.go.com/Health/Autism/

Agency News

2010-03-09T19:25:00.001-05:00

Starting today, all posts from CARD and Florida Developmental Disabilities Council (FDDC)can be found under "Agency News" tab. I receive emails from CARD weekly and several emails daily from FDDC.

I will put more interesting tidbits and annoucements of new content in the assorted pages.

If you have any suggestions on how I can better format my blog, I welcome your input!

Area Autism Discussion Board - Now Open!

2010-03-07T17:10:00.000-05:00

Now open, my new discussion board. Feel free to start a discussion that pertains to the Autism community in the Jacksonville, Florida area.

Area Autism Search (First Coast) Discussion

Visit this group