tag:blogger.com,1999:blog-2230163047463742233Fri, 25 Oct 2024 12:35:44 +0000down syndromeJohns Hopkinsinfantile spasmsENTbrothershearing issuestubesASDbottlesfeedingphysical therapyRaising three boys, the youngest of which has Down Syndrome -- most imagine the challenges, but fewer know the rewardshttp://lostreshijos.blogspot.com/noreply@blogger.com (Catherine)Blogger5125tag:blogger.com,1999:blog-2230163047463742233.post-1730511385595156212Fri, 12 Feb 2010 11:46:00 +00002010-02-12T06:46:02.352-05:00down syndromeinfantile spasmsJohns HopkinsIt has been another crazy couple of weeks in our house.  Two weeks ago, I thought (and still suspect) that August was having infantile spasms again, but I could not get a good enough video to show the neurologist because they were so subtle.  I was very upset when I started seeing them, but relieved after talking with his neurologist at Hopkins who said that the irregular brain wave http://lostreshijos.blogspot.com/2010/02/were-back.htmlnoreply@blogger.com (Catherine)0tag:blogger.com,1999:blog-2230163047463742233.post-6836573863556832834Tue, 19 Jan 2010 20:24:00 +00002010-01-19T15:24:24.038-05:00bottlesdown syndromefeedinghearing issuestubesAugust got his tubes put in this morning and he has already shown a noticeable difference.  I cannot imagine what it must have been like for him - probably like when someone is talking to you and you're underwater in a pool.  He is smiling more and laughing....it has been a fantastic day.  And what a easy procedure!  We got to the hospital at 5:45 am and we were home by 9 am http://lostreshijos.blogspot.com/2010/01/he-can-hear-clearly-now-fluids-gone.htmlnoreply@blogger.com (Catherine)0tag:blogger.com,1999:blog-2230163047463742233.post-3859771951276399769Wed, 13 Jan 2010 19:46:00 +00002010-01-13T14:46:05.014-05:00down syndromeENTphysical therapytubes Toys brought to him by Everett... And he was more interested in Everett than the toys... What a hunky chunk... Well August went to the ENT today and they decided to put tubes in so we'll be going to the hospital for that next Tuesday.  I am a little nervous about the general anthesthia, but it is not his first time so I'm sure he'll be fine.  I just feel bad for his poor throat.&http://lostreshijos.blogspot.com/2010/01/back-in-saddle-or-bumbo.htmlnoreply@blogger.com (Catherine)3tag:blogger.com,1999:blog-2230163047463742233.post-86089103197839109Tue, 12 Jan 2010 18:11:00 +00002010-01-12T13:11:58.471-05:00brothersdown syndromeENThearing issuesinfantile spasmsJohns HopkinsWe took August to Johns Hopkins yesterday for his follow-up EEG to check his brainwave pattern.  I am happy to report that he no longer shows the hypsarrhythmia pattern and is being weened slowly off of his prednisilone!  His neurologist said this is the absolute best case scenario and the chances of the spasms reoccuring are slim. Howie and I are on cloud nine.  The last http://lostreshijos.blogspot.com/2010/01/normal-brainwave-more-normal-sleep.htmlnoreply@blogger.com (Catherine)1tag:blogger.com,1999:blog-2230163047463742233.post-1233370310360535455Wed, 06 Jan 2010 20:44:00 +00002010-01-06T16:37:09.723-05:00ASDbrothersdown syndromeinfantile spasmsJohns Hopkins I am starting this blog in hopes that other new mothers of children with Down Syndrome will have one more perspective. I am new to everything involved in the realm of Down Syndrome and I have found that some of the most worthwhile information is the experiences and accounts of other families so here goes... Our family is made up of myself, my husband, Howie and our sons, Everett, Finnleyand http://lostreshijos.blogspot.com/2010/01/our-family-crash-course.htmlnoreply@blogger.com (Catherine)2