tag:blogger.com,1999:blog-7653992523037998002024-11-01T02:24:42.193-05:00Early onset Alzheimer's awareness, experience, and support. Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.comBlogger19125tag:blogger.com,1999:blog-765399252303799800.post-86980507087819937522013-07-05T20:46:00.003-05:002013-07-05T20:48:12.859-05:00

We survived out first DIAN study. I was so nervous about going and doing the tests.  Not really knowing what to expect, going somewhere new, and doing something out of the ordinary really got my nerves in a bind. But it went smoothly and we are all recuperated now.  It was an intense few days with Psychometric tests, MRI, Lumbar puncture, PET scans, and finally a clinical assessment.&

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com2tag:blogger.com,1999:blog-765399252303799800.post-75796306202589768602013-06-19T23:17:00.000-05:002013-06-19T23:24:46.143-05:00

I know.  I know.   I keep saying I’m going to find the time to post.  I am a very busy girl. ;) Here is a quick update… So my sister and I didn't go to Pittsburgh like we had planned.  Many circumstances came up and it was just not going to work.  Instead, we will be going to St. Louis and take part in the DIAN study there.  We are leaving this Sunday and

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com1tag:blogger.com,1999:blog-765399252303799800.post-45027626678352451522013-02-25T21:08:00.000-06:002013-02-25T21:08:06.206-06:00

In my last post I said the dates were set for my sister and I to go to Pittsburgh to participate in the DIAN study.  We won't be going to Pittsburgh in April.  Things just don't go as easily around here as I would like. LOL So, as of right now, we are planning on participating in the study at the University of Washington, in St. Louis MO instead of Pittsburgh.  It is the exact

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0tag:blogger.com,1999:blog-765399252303799800.post-37505625874479338212013-01-27T22:18:00.000-06:002013-01-27T22:18:26.964-06:00

The dates are set!  My sister and I along with my mom and husband will be in Pittsburgh the first of April. We will be doing the DIAN study.  I have posted about DIAN in an earlier post last year sometime.  We are a little nervous about the whole thing, but also happy we get to do our part in the research for EOAD. I can't wait to post about that when we get back. While we are

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com1tag:blogger.com,1999:blog-765399252303799800.post-3914892637564421862013-01-12T19:37:00.001-06:002013-01-12T19:37:17.046-06:00

I can't believe it has been over a year since I have posted.  There were multiple reasons I was unable to post, but once they got fixed there were the excuses.  I have followed some of my fellow bloggers in their awareness for Alzheimer's, but have been very busy with life itself and haven't been able to keep up as much as I would like. Over the past year two of my cousins and my aunt

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com2tag:blogger.com,1999:blog-765399252303799800.post-53604422096323657872011-12-12T14:40:00.000-06:002011-12-12T14:40:42.462-06:00

Holidays are always hard when you have lost a loved one.  I remember the first Thanksgiving and Christmas we had without my dad.  He was in the nursing home and we celebrated at my house with my sister and her family. I think we had it there that year because of how weird it would have been to have it at my parent's house without my dad.  We went and visited him in the nursing home

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com5tag:blogger.com,1999:blog-765399252303799800.post-68205099526591391682011-11-23T19:20:00.000-06:002011-11-23T19:20:39.874-06:00

I wrote my story and how I dealt with my dad having Early Onset Alzheimer's, I have posted different links, and what I have thought was good information.  I have gotten involved with groups and have been trying to get a website built.  I've been asked what is next, and to keep posting.  I just have been blank about what to write.  I've also been doing a lot of reading and

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com6tag:blogger.com,1999:blog-765399252303799800.post-87469809706113645482011-10-23T21:52:00.000-05:002011-11-04T21:54:19.107-05:00

Wow, I haven't posted anything in almost a month!   I have been so busy lately.  Of course, my kids keep me going every direction all day everyday, but I do try to find the time to work on creating my website and getting more info gathered up to get it going.   A couple of weeks ago our computer crashed (again) and I lost all my bookmarks. 

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com1tag:blogger.com,1999:blog-765399252303799800.post-53435040910030894582011-09-26T12:14:00.000-05:002011-09-26T12:14:20.047-05:00

This next piece really hit home for me.  My parents had a lot of friends and there were more that stayed around after my dad's diagnosis came out in the open, then didn't stay, but there were those ones that just never came back around.  Some would still come by to ask my dad to help them with their car or borrow a tool, but when they started seeing changes in him they ran for the hills

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0tag:blogger.com,1999:blog-765399252303799800.post-46585746018493535542011-09-26T11:02:00.000-05:002011-09-26T11:02:36.898-05:00

My children were to young to remember my dad, but my nieces were older and have memories of him.  Their J-Pa.  This piece of a story reminded me of him with them and I know he would have said in his own words the same thing.  His speech was one of the very first things to go, way before he even got farther along in the stages. So he couldn't tell us what he was feeling, so I think

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0tag:blogger.com,1999:blog-765399252303799800.post-61429564097033626552011-09-25T19:48:00.000-05:002011-09-25T19:48:07.617-05:00

I wanted to share this. Today I was outside, enjoying the cool breeze that Oklahoma seldom has.  I love this time of year so much.  I thought of something, and came in to do it, but I was approach by one of my daughter's telling me something that she was doing with her friends outside as our dog is having some kind of anxiety attack, I call it,  because she wants to be outside with

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com2tag:blogger.com,1999:blog-765399252303799800.post-67272181144433205912011-09-20T22:26:00.000-05:002011-09-20T22:26:16.136-05:00

September is World Alzheimer's Month (WAM). Join us in the fight against Alzheimer's by honoring the heroes that fight against the disease every day — and become a hero by helping to raise awareness.  September 21st is Alzheimer's Action Day.  Wear purple to raise awareness.  My children are wearing their purple shirts to school that they wore to the Walk to End Alzheimer's.&nbsp

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0tag:blogger.com,1999:blog-765399252303799800.post-28569634608799806152011-09-13T16:21:00.000-05:002011-09-13T16:21:59.704-05:00

This is Norm's videos and links to his books.  I am planning on putting some of his amazing work on here.  Please come back for more. http://youtu.be/UoIcrbApVjA Here is his wife's story.  You go girl!! http://youtu.be/0FDOlrCEezo Here are his books.  I have read the first one "Me and my Alzheimer's".  I would recommend these to anyone, even those that are not

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com3tag:blogger.com,1999:blog-765399252303799800.post-74411549881071804542011-09-10T18:37:00.000-05:002011-09-10T18:37:22.249-05:00

   Any type of Alzheimer's is gut wrenching and means the person diagnosed is going to die.  No matter if you are 70 or 40 when diagnosed.   The gene my family carries does effect individuals at a lot earlier age and has a specific name, but it doesn't mean I feel like ours is any worse than those that are diagnosed at a later age.  I sometimes think people

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com1tag:blogger.com,1999:blog-765399252303799800.post-73709696162620625172011-09-04T19:39:00.000-05:002011-09-04T20:58:08.591-05:00

These are some facts I found on Familial Early On-set Alzheimer's.  The presenilin 2 gene is what the DeMoe's carry.   Alzheimer's is the opposite of cancer. Cancer is runaway cell growth. Alzheimer's is runaway cell death. —SANDRA STEINGRABER, Origins of Dementia, Part 2 Alzheimer's disease is classified in two ways: by heritability and by age of onset. Familial AD (FAD) follows a

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0tag:blogger.com,1999:blog-765399252303799800.post-61217454514684808352011-09-01T23:02:00.000-05:002011-09-01T23:02:44.238-05:00

Here is our team from the 2011 Walk to End Alzheimer's in Tulsa, Oklahoma.  There are a few more that aren't in the picture.  It was so much fun, and there were so many people that came to walk and show their support.  I am so happy to have been apart of this great fundraiser.  I am already looking forward to next year, and hopefully get more members to walk with us.  I

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0tag:blogger.com,1999:blog-765399252303799800.post-48771120212131697992011-08-21T17:07:00.000-05:002011-08-21T17:07:33.412-05:00

I haven't posted anything new in a while.  I've been blank as to what to write now.  I still have a story because I am still living my life.  I just don't know where to pick up.  I've become frustrated because I have been posting things about the Walk to end Alzheimer's on my facebook page, and other things about my family.  I just don't think people are getting it. 

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com2tag:blogger.com,1999:blog-765399252303799800.post-57565733498138315372011-08-09T15:30:00.000-05:002011-08-11T11:48:20.654-05:00

This is the study I will be doing, that our family has been apart of for some time.  I do not have a date set, but I have heard from the University and they have received my paperwork.  DIAN - A study opportunity for families with inherited early-onset AD The Dominantly Inherited Alzheimer's Network (DIAN) study has been established by the National Institute on Aging of the National

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com4tag:blogger.com,1999:blog-765399252303799800.post-70468981786299666792011-08-08T15:06:00.000-05:002011-08-08T15:06:14.874-05:00

Please click my link to view my page for the walk.  I am very excited to be doing this, it has been a very long time since I have participated in the Alzheimer's walk.  Of course your donation would be greatly appreciated, because this is to raise money for the Alzheimer's Association.  Our team will be walking in Tulsa, OK on August 27th.  The website has all the details.&

Sherylhttp://www.blogger.com/profile/01282616782594770648noreply@blogger.com0