tag:blogger.com,1999:blog-72609962114338819792026-04-06T17:23:10.094-04:00Baa Baa BlogJohn 10:22-30BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.comBlogger746125tag:blogger.com,1999:blog-7260996211433881979.post-83954083779209390542013-03-24T10:02:00.002-04:002013-03-24T10:02:15.057-04:00Everything Is FineSorry for the lack of posts lately, but there really isn't much to post about. AG had a cardiology appointment and her heart function looks good so we don't go back to Dr R for three months! Amazing!
We are still quarantining due to the high number of cases of flu, stomach virus and RSV still floating around. That has been difficult, but we are hopeful that in the next few Anonymousnoreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-34937785629947236092013-02-04T12:18:00.000-05:002013-02-04T12:18:30.888-05:00Poop Watch Is Over!So about 36 hours after swallowing the pacificer it made an appearance..... so poop watch is now officially over! It was such a relief that nothing invasive had to be done with her :) I have to give all credit to my husband who - without complaint - took over the poop watch duty for me because I quite frankly couldn't bring myself to look through the poop. He is my hero and an Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-1161328884614772542013-01-31T20:33:00.003-05:002013-01-31T20:33:28.023-05:00Swallowed A Pacifier - Poop WatchSo today Anna Grace bit the end of her pacificer off and then swallowed it. No, I'm not joking. I called her doctor to let him know what happened and he said that we need to check her poop for the next 48 hours to see if she passes it. If not then, well.... it will have to be removed surgucally I suppose. But for now Brian and I are on the poop watch.
Please pray Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-16839306616958982752013-01-27T19:00:00.001-05:002013-01-27T19:00:18.589-05:00Temper TantrumsThere is so much I want to BLOG about but I have been struggling with finding the time to BLOG - so for that I apologize. I also have not been able to figure out how to post pictures or videos. Shortly after the first of the year blogger changed it's image upload feature and now I can't figure out how to do it - so I have lots of fun pictures to show you and no way to get them on my BLOG.&Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-63457703356126023272013-01-17T21:46:00.000-05:002013-01-17T21:46:02.243-05:005K on June 1stIf you've been following my blog for a while now then you remember last year that I helped organize the Palmetto Heatrs 5K fundraiser. Palmetto Hearts is a SC based charity that helps children and families of children who are born with congenital heart defects (like Anna Grace). It is charity that is near and dear to me. Last year through the efforts of the 5K we were able to Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-26357492540320810782013-01-09T21:19:00.002-05:002013-01-09T21:19:54.270-05:00Update & Sorry for the Lack of PostsHello friends! Let me apologize by saying that I'm so sorry for the lack of posts. Everything has been fine here, we have just been busy with Christmas and then we headed to Florida on a 10 day vacation to reconnect and relax together as a family. So now we are home and have started homeschooling back again and have settled back into a nice little routine.
We are still quarantining, Anonymousnoreply@blogger.com3tag:blogger.com,1999:blog-7260996211433881979.post-24374895125612860012012-12-22T20:23:00.000-05:002012-12-22T20:23:25.086-05:00Video of Our GirlHere's a short video of our little big girl. She is pretending to read her "Bible" and tell me about Jesus when he was a little baby. Pure sweetness!
Anonymousnoreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-28674377316460800002012-12-04T19:29:00.000-05:002012-12-04T19:29:09.856-05:00A Picture Says It AllI know you have been wondering how AG has been recooperating at home. Rather than tell you, I'd like to just show you. They say a pciture's worth a thousand words, so..... here are a few thousand! Enjoy!
Saturday & Sunday this weekend we decided to enjoy the beautiful warm Southern December we are having and get outdoors. It's what you do when you're in quarantineAnonymousnoreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-9481126483200149252012-12-04T09:51:00.000-05:002012-12-04T09:51:19.567-05:00The Innkeeper
Desiring God
Crossway
BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-23411580878058582302012-11-27T11:12:00.000-05:002012-11-27T11:12:01.299-05:00Cardiology AppointmentAnna Grace saw Dr R today for a cardiology check up. Her O2 sats are 88 and her blood pressure is good. The echo showed good heart function and everything looked "normal". We did give her adivan this morning before the appointment to help calm some of her anxiety since Dr R also had to pull some stiches today. She didn't enjoy having the stiches pulled and cried and was Anonymousnoreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-20591761389350321862012-11-25T18:58:00.003-05:002012-11-25T18:58:43.763-05:00Just Had to Share This
Saw this on You Tuibe and just had to share! Cracked me up and lets face it, a little humor is a good thing! If you're a parent of young children you will probably enjoy it as much as me!
Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-45836170457855718312012-11-25T18:01:00.000-05:002012-11-25T18:01:12.799-05:00ThanksgivingWe were able to be home for Thanksgiving! It was an unexpected and welcomed blessing! While my heart was joyful to be home with my family I also spent the day remembering the families we had met at the hospital who were still there having to spend Thanksgiving at MUSC. My heart aches for them and I pray that the Lord allows them to be home and settled before Christmas!
Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-39779613537219039722012-11-22T09:09:00.001-05:002012-11-22T09:09:10.320-05:00The Rest of the StorySory about the lack of blog posts recently. I know you all want to know how we ended up from having tachicardia to lots of drainage to home so quickly. As far as I'm concerned it is nothing short of the Divine hand of the Lord intervening!
So, as you already know Friday AG had one chest tube removed. The other two chest tubes were still draining. Friday night those two Anonymousnoreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-33508897303699161362012-11-19T15:23:00.001-05:002012-11-19T15:23:19.160-05:00We are homeIt has been a whirlwind 48 hours and there is so much to share, but for now we've got our hands pretty full with trying to get things settled back at home so the detailed post will have to come in a few days but for now.....
Quick update. We got home last night about 8:00 pm. AG is starting to act like her old self again. She slept in her bed and I slept on the floor in her Anonymousnoreply@blogger.com0tag:blogger.com,1999:blog-7260996211433881979.post-78098496420700609632012-11-16T12:06:00.000-05:002012-11-16T12:06:17.937-05:00Chest Tube Being RemovedAnna Grace's doctor told us yesterday that from what he was seeing her chest tubes weren't going to be coming out any time soon. However though the night one of the chest tubes stopped draining. At one point the nurse sent a doctor in to look at it to see if she saw any blockages. She said she didn't see any, but that she would make sure they stripped the chest tubes in the Anonymousnoreply@blogger.com3tag:blogger.com,1999:blog-7260996211433881979.post-87229063988793268802012-11-15T21:59:00.000-05:002012-11-15T21:59:02.809-05:00On 8DToday Anna Grace was transfered out of PCICU to 8D. She now has her own room with a door which affords a lot more privacy. There is also a lot of freedom here to put her in a wagon and head to the playroom. She was able to go to the playroom 3 times today which is great for her. Just the kids, toys and change of scenery seem to help her.
She still has 3 chest tubes BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-64764767946881728422012-11-14T16:38:00.001-05:002012-11-14T16:38:26.073-05:00I have a momentI have a moment to make a blog post because Anna Grace is finally sleeping. It is the first time she has slept since surgery that it hasn't been forced sleep due to morphine and versed. For the last two days Anna Grace has experienced tachycardia which means her heart rate is super high. It wasn't just episodes of high heart rate it just got to 190 and stayed there. The BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com3tag:blogger.com,1999:blog-7260996211433881979.post-88340034721550540412012-11-14T04:35:00.000-05:002012-11-14T04:35:45.555-05:00Being PressedWhere to begin?
They stopped the IV sedation Monday morning and this caused Anna' anxiety to sky rocket throughout Monday. Her heart rate started trending at 180 to 195. They decided to put her back on it Monday night and try to slowly ween her off. Apparently sometimes children have a hard time coming off this sedation medicine cold turkey we are told.
BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-72234354887700169102012-11-12T14:54:00.002-05:002012-11-12T14:54:24.445-05:003 Days Post-OpBlog Update for Monday
Yesterday evening was a tough night for us and the PCICU. We had two babies lose their battle with heart defects. A stark reminder these babies are very sick and that we live in a very broken world caused by our sin. Sometimes the Lord's providence is deep, dark and very painful. But, we take heart in knowing God is good and His purposes, although sometimes very hard to BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com2tag:blogger.com,1999:blog-7260996211433881979.post-48578416424933754642012-11-11T14:47:00.001-05:002012-11-11T14:50:08.201-05:00SundayAnna Grace has made some progress today and had a setback as well. The night went fairly well. She only got agitated once last night and was calmed with versed. She did take a couple of sips of water for me during the night. She spiked a temp last night so Tylenol was given and brought it down. Brian arrived back at the hospital about 5:00 am and then I left for a BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com4tag:blogger.com,1999:blog-7260996211433881979.post-58097484061112678622012-11-11T01:06:00.000-05:002012-11-11T01:06:16.481-05:00SummaryToday's goal was to get Anna Grace awake enough to eat some ice chips, drink some water and possibly eat some applesauce. She wasn't able to meet those goals today because she was just so upset whenever she would wake up.
We are hopeful that Sunday will bring greater strides in that area. Since she was so agitated today Brian and I are tag teaming an all nighter with her tonight so BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-63133914845017064842012-11-10T12:19:00.002-05:002012-11-10T12:19:42.816-05:00SaturdayBlog Update Post Surgery
One of the toughest things a parent could ever have to do is leave their small child in the hospital by themselves. Unfortunately for parents with children in the PCICU this is often necessary. There are no beds for guests to sleep in and they often have to lock down the unit for emergencies.
This was our lot last night. We were forced to make the BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-13777282391126008612012-11-09T21:24:00.000-05:002012-11-09T21:24:21.551-05:00First Hurdle Accomplished, Many More To Come
Surgery was finished around 3:30pm today. There were no big surprises during the
procedure (called The Fontan).
Everything they needed to get done during the surgery they were able to
get accomplished. The only issue was
when they had to bring Anna back onto the heart and lung by-pass machine at the
end of the surgery. The surgeon (Dr.
Bradley) saw something he thoughtBrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com2tag:blogger.com,1999:blog-7260996211433881979.post-13674402751125313722012-11-09T14:55:00.005-05:002012-11-09T14:58:22.926-05:00Anna' Mid Day Update
We apologize for the lack of updates. It’s been a long tough day. Anna is currently still in surgery, but we
are hopeful she will be finished within the hour. For quicker updates please see @bentleybrian
twitter account, Tina’s facebook page or my facebook page. Here is a brief summary of what has
transpired today.
It took almost 2 full hours to get through scar tissueBrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com1tag:blogger.com,1999:blog-7260996211433881979.post-35024530774795329972012-11-09T09:01:00.000-05:002012-11-09T09:50:29.619-05:00A Long Day That Has Just Began
We were able to get back to the townhome from the hospital
last night around 5:30. Miss. Lauren and
Zach were still off exploring the Charleston Fort and beach area. We settled in and tried to catch up on
messages from family and friends. It was
nice being out of the hospital for the day but the weight of having to be back
at 5:30am this morning was still looming over us. BrianB.http://www.blogger.com/profile/11185445520456054879noreply@blogger.com0