<?xml version="1.0" encoding="UTF-8"?>
<!--Generated by Site-Server v@build.version@ (http://www.squarespace.com) on Mon, 06 Apr 2026 09:49:25 GMT
--><rss xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:wfw="http://wellformedweb.org/CommentAPI/" xmlns:itunes="http://www.itunes.com/dtds/podcast-1.0.dtd" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:media="http://www.rssboard.org/media-rss" version="2.0"><channel><title>Blog</title><link>https://www.qendo.org.au/blog/</link><lastBuildDate>Sun, 29 Mar 2026 23:22:52 +0000</lastBuildDate><language>en-AU</language><generator>Site-Server v@build.version@ (http://www.squarespace.com)</generator><description><![CDATA[]]></description><item><title>Explaining Endometriosis: A Gentle QENDO Guide for Real Conversations</title><dc:creator>Ash Webb</dc:creator><pubDate>Mon, 16 Mar 2026 23:57:30 +0000</pubDate><link>https://www.qendo.org.au/blog/explaining-endometriosis-a-gentle-qendo-guide-for-real-conversations</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:69b89894eac2e225e432f19b</guid><description><![CDATA[<p data-rte-preserve-empty="true"><em>Written with care, for the moments where words feel hard — and understanding matters most.&nbsp;</em></p><p data-rte-preserve-empty="true">Written by QENDO Mentor Program Team, Ash &amp; Dajana</p><p data-rte-preserve-empty="true"><strong>From QENDO&nbsp;</strong></p><p data-rte-preserve-empty="true">At QENDO, we know that living with endometriosis is not just about managing symptoms.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true">It’s about navigating conversations.</p><p data-rte-preserve-empty="true">Explaining yourself.&nbsp;</p><p data-rte-preserve-empty="true">Deciding how much to share.&nbsp;</p><p data-rte-preserve-empty="true">Protecting your energy while still wanting to be understood.&nbsp;</p><p data-rte-preserve-empty="true"><br>Endometriosis is often invisible — but its impact is not. And yet, many people living with it feel they must soften, justify, or minimise their experience just to make others comfortable.</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true">This guide exists to help change that.</p><p data-rte-preserve-empty="true">Not by pushing.&nbsp;</p><p data-rte-preserve-empty="true">Not by over-explaining.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true">But by offering language that feels <strong>safe, human, and honest</strong> — so conversations can move from confusion to compassion.&nbsp;</p><p data-rte-preserve-empty="true"><br></p><p data-rte-preserve-empty="true"><strong>One of the ways to Explain Endometriosis</strong><br>You don’t owe anyone a medical breakdown. You don’t need the perfect explanation. You’re allowed to keep it simple.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true">You might say:</p><p data-rte-preserve-empty="true">“Endometriosis is a chronic inflammatory condition. It causes ongoing pain, fatigue, and other symptoms that can change from day to day.”</p><p data-rte-preserve-empty="true">Or, if less detail feels better:</p><p data-rte-preserve-empty="true">“I live with a chronic condition called endometriosis. Some days I function well, and other days my body needs more care and rest.”</p><p data-rte-preserve-empty="true"><br>Both are true. Both are enough.&nbsp;</p><p data-rte-preserve-empty="true"><br></p><p data-rte-preserve-empty="true"><strong>Speaking About the Impact (Not Just the Diagnosis)</strong></p><p data-rte-preserve-empty="true">Sometimes people understand <em>impact </em>more than definitions.&nbsp;</p><p data-rte-preserve-empty="true">If it feels right, you might share what endometriosis looks like in real life:</p><ul data-rte-list="default"><li><p data-rte-preserve-empty="true">Pain can flare suddenly, even if you seemed okay earlier.</p></li><li><p data-rte-preserve-empty="true">Fatigue isn’t the same as being tired — rest doesn’t always resolve it.</p></li><li><p data-rte-preserve-empty="true">Stress, pressure or pushing through can make symptoms worse.&nbsp;</p></li></ul><p data-rte-preserve-empty="true">This isn’t oversharing. It’s offering context.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true"><strong>Having These Conversations in Different Spaces</strong></p><p data-rte-preserve-empty="true"><strong><em>With Family and Friends</em></strong></p><p data-rte-preserve-empty="true">Loved ones often want to help, but don’t always know how.&nbsp;</p><p data-rte-preserve-empty="true"><br>Gentle language can sound like:</p><p data-rte-preserve-empty="true">“I don’t always need advice. Sometimes I just need understanding and flexibility.”</p><p data-rte-preserve-empty="true">“If I cancel plans, it’s not about how much I care — it’s about managing my health.”</p><p data-rte-preserve-empty="true">Clear communication can protect connection.</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true"><strong><em>With Partners</em></strong></p><p data-rte-preserve-empty="true">Endometriosis can affect energy, intimacy, emotions and capacity — often unpredictably.&nbsp;</p><p data-rte-preserve-empty="true">You might say:</p><p data-rte-preserve-empty="true">“My symptoms aren’t consistent, but feeling believed makes a huge difference.”</p><p data-rte-preserve-empty="true">“Support looks like listening, patience, and adapting together.”</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true">Healthy relationships are built on understanding, not expectation.&nbsp;</p><p data-rte-preserve-empty="true"><br></p><p data-rte-preserve-empty="true"><strong><em>With Colleagues or Workplaces</em></strong></p><p data-rte-preserve-empty="true">You are not required to disclose everything to deserve respect.&nbsp;</p><p data-rte-preserve-empty="true">Professional, boundary-respecting options include:</p><p data-rte-preserve-empty="true">“I manage a chronic health condition that can flare unexpectedly. At times, I may need flexibility, while remaining committed to my work.”</p><p data-rte-preserve-empty="true">“Open communication around capacity helps me perform at my best.”</p><p data-rte-preserve-empty="true">Advocacy doesn’t have to be loud to be valid.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true"><strong><em>When Understanding Isn’t Met</em></strong></p><p data-rte-preserve-empty="true">Not everyone will respond with empathy — and that can be painful.</p><p data-rte-preserve-empty="true">It’s okay to protect yourself with language like:</p><p data-rte-preserve-empty="true">“I’m not looking to debate my experience,” “This condition is real, even when it’s not visible,” and “I’m choosing to prioritise my health today.”</p><p data-rte-preserve-empty="true">Boundaries are not walls. They are care.</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true"><strong>Resources That Can Help Carry the Conversation</strong></p><p data-rte-preserve-empty="true">Sometimes sharing a resource feels easier than finding the words.</p><p data-rte-preserve-empty="true">You might choose:</p><ul data-rte-list="default"><li><p data-rte-preserve-empty="true">QENDO</p></li><li><p data-rte-preserve-empty="true">Trusted GP or specialist information sheets</p></li><li><p data-rte-preserve-empty="true">Articles or podcasts that reflect lived experience.&nbsp;</p></li></ul><p data-rte-preserve-empty="true">You don’t have to educate alone.&nbsp;</p><p data-rte-preserve-empty="true"><br></p><p data-rte-preserve-empty="true"><strong>A Note to Those Living with Endometriosis</strong></p><p data-rte-preserve-empty="true">You are not weak for needing rest.&nbsp;</p><p data-rte-preserve-empty="true">You are not unreliable because your capacity changes.&nbsp;</p><p data-rte-preserve-empty="true">You are not a burden for advocating for yourself.&nbsp;</p><p data-rte-preserve-empty="true">You are navigating a chronic condition with strength — often quietly.&nbsp;</p><p data-rte-preserve-empty="true"><br></p><p data-rte-preserve-empty="true">And that deserves compassion.&nbsp;</p><p data-rte-preserve-empty="true"><br></p>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1773705489869-3U6KGE588T0FEQBJSL1O/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Explaining Endometriosis: A Gentle QENDO Guide for Real Conversations</media:title></media:content></item><item><title>Let’s Talk About Pads</title><dc:creator>Ash Webb</dc:creator><pubDate>Wed, 11 Mar 2026 08:15:32 +0000</pubDate><link>https://www.qendo.org.au/blog/lets-talk-about-pads</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:69b1246f3a5f744cbf416251</guid><description><![CDATA[<h3><strong>BLOG: Let’s Talk About Pads</strong></h3><p class=""><strong>In partnership with TSUNO</strong></p><p data-rte-preserve-empty="true" class=""></p><p class="">Periods. We all have them, but how often do we actually talk about them? Pads are one of the most common ways people manage their periods, yet, they’re also one of the least discussed. It’s time to break the stigma and start having honest, open conversations about how we manage our flows.</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>Do You Flood?</strong></h4><p class="">If you’ve ever felt like your period starts off light and then suddenly becomes a waterfall, you’re not alone. “Flooding” when your flow is so heavy that it soaks through a pad or tampon in an hour or less, can happen to anyone. It might be linked to hormonal changes, fibroids, endometriosis, or just your body’s unique rhythm. If it happens regularly, it’s worth chatting with your GP or gynaecologist.</p><p class="">There’s no such thing as one-size-fits-all when it comes to periods, your experience is valid, whatever it looks like.</p><p class=""><br></p><h4><strong>Do You Know What’s Normal?</strong></h4><p class="">We’re often told what’s “normal,” but in reality, menstrual flow can vary widely. Common discourse states the average person loses around 30–80ml of blood during their period, roughly two to six tablespoons. This amount can be misleading because it actually only represents the blood content of a period. Endometrial tissues, cervical mucus, and vaginal secretions also make up a period. So if you’re looking at a teaspoon and thinking, ‘I bleed waaaaay more than that!’, this might be the reason.</p><p class="">What matters most is what feels normal for you. How often you change your pad, how heavy your flow feels, and how it impacts your life.</p><p class="">If you’re soaking through pads every hour, passing large clots, or feeling dizzy or tired, it might be time to reach out for support. Heavy bleeding can be a sign of an underlying condition and you deserve care and answers.</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>What’s Your Favourite Brand?</strong></h4><p class="">When it comes to pads, we love TSUNO pads. Their pads are made from sustainable bamboo fibre, designed to be gentle on your body and the planet. Plus, 50% of their profits go towards empowering girls and women through education and menstrual health projects.</p><p class="">Finding the right brand is personal. Some love the softness of organic cotton, others prefer the slimness of ultra-thin styles. The key? Choose what makes you feel comfortable and confident, there’s no “best” brand, only the best one for you.</p><p class=""><br></p><h4><strong>How Many Times a Day Do You Change Them?</strong></h4><p class="">This can depend on your flow, the type of pad, and your comfort level. As a general guide, changing your pad every 4–6 hours is ideal to stay fresh and reduce the risk of irritation or infection.<br>If you’re someone with a heavier flow or longer days out, you might change more often, and that’s okay! The goal is comfort and care, not comparison.</p><p class=""><br></p><h4><strong>Overnight vs Regular Pads</strong></h4><p class="">Overnight pads are designed with extra length and absorbency to give you peace of mind while you sleep. If you’ve ever woken up to a leak (we’ve all been there), switching to an overnight pad might help.</p><p class="">Regular pads, on the other hand, are great for daytime, lighter, flexible, and discreet. Mixing and matching both types depending on your flow can make a big difference.</p><p class=""><br></p><h4><strong>Let’s Break the Stigma</strong></h4><p class="">Talking about periods and pads shouldn’t feel awkward. The more we normalise these conversations, the more we empower each other. Whether it’s sharing recommendations, not shaming when someone leaks, or simply asking, “Hey, what do you use,” it all helps to dismantle the shame that still lingers around menstruation.</p><p class=""><br></p><h4><strong>Do You Share Your Pad Choices with Your Friends?</strong></h4><p class="">It might sound funny, but it’s actually a great conversation starter. Just like we share skincare tips or snack recommendations, chatting about what works for your period can help others feel seen and supported.</p><p class="">So next time you’re catching up with your mates, why not ask?<br> “Hey, have you ever tried TSUNO pads?”</p><p class="">You might be surprised how quickly that simple question turns into a real, open, and stigma-busting conversation.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><p class=""><strong>QENDO x TSUNO</strong><br>Because talking about periods shouldn’t be taboo, it should be empowering.<br></p>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1773216947116-E1W4BUHEJWZSV25HEBNZ/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Let’s Talk About Pads</media:title></media:content></item><item><title>Endometriosis Heat Wave Awareness</title><dc:creator>Ash Webb</dc:creator><pubDate>Tue, 17 Feb 2026 05:29:50 +0000</pubDate><link>https://www.qendo.org.au/blog/endometriosis-heat-wave-awareness</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6993fc8a2363a45207e25c82</guid><description><![CDATA[<p data-rte-preserve-empty="true">This resource has been written with thanks to our Far North Queensland Coordinator and SES Volunteer, Lucy.</p><p data-rte-preserve-empty="true">While everyone is at risk of heat related illnesses, those who live with chronic illnesses like Endometriosis and/or chronic pain are at great risk. It’s important to understand the impacts that extreme heat can have on your health, and know the strategies that you can implement to overcome these risks.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true" class="sqsrte-large"><strong>General Strategies include&nbsp;</strong></p><ol data-rte-list="default"><li><p data-rte-preserve-empty="true">Learning about Heatwaves from The Bureau of Meteorology <a href="https://www.bom.gov.au/resources/learn-and-explore/heatwave-knowledge-centre"><u>https://www.bom.gov.au/resources/learn-and-explore/heatwave-knowledge-centre</u></a></p></li><li><p data-rte-preserve-empty="true">Register for Heat Wave Warnings using the <a href="https://www.bom.gov.au/bom-weather-app"><u>BOM Weather App</u></a></p></li><li><p data-rte-preserve-empty="true">Make a Heat Wave Health Plan with your GP. Some reference material is available here:&nbsp;</p><p data-rte-preserve-empty="true"><a href="https://heatvulnerabilityproject.org.au/wp-content/uploads/2025/09/Individual-Heat-Action-Planning.pdf"><u>https://heatvulnerabilityproject.org.au/wp-content/uploads/2025/09/Individual-Heat-Action-Planning.pdf</u></a></p><p data-rte-preserve-empty="true"><a href="https://www.sahealth.sa.gov.au/wps/wcm/connect/5d67515b-e98b-4ed8-8e38-e3f1929e6f83/Guidance+for+General+Practice.pdf"><u>https://www.sahealth.sa.gov.au/wps/wcm/connect/5d67515b-e98b-4ed8-8e38-e3f1929e6f83/Guidance+for+General+Practice.pdf</u></a></p><p data-rte-preserve-empty="true"></p></li></ol><p data-rte-preserve-empty="true" class="sqsrte-large"><strong>The Risks</strong></p><p data-rte-preserve-empty="true"><strong>Dehydration</strong></p><p data-rte-preserve-empty="true">Heat increases risk of dehydration, alongside the regular impacts of dehydration, those with Endometriosis can experience increased inflammation, bloating and cramping.&nbsp;</p><p data-rte-preserve-empty="true"><strong>Heat And Nervous System Hypersensitivity</strong></p><p data-rte-preserve-empty="true">Endometriosis and chronic pain are both known to elevate nervous system sensitivity, and the physical impacts of heat stress will likely exacerbate this leading to fatigue, increased pain, sleep disruption, and psychological distress.&nbsp;</p><p data-rte-preserve-empty="true"><strong>Heat Related Illness</strong></p><p data-rte-preserve-empty="true">Heat related illnesses include heat exhaustion, heat stroke, heat cramps and heat rash. While everyone can develop these illnesses, Endometriosis, as a chronic illness, means you are more vulnerable. Your body is already working to overcome inflammation, cramping, and other symptoms, so the pathway to heat related illness is shorter.&nbsp;</p><p data-rte-preserve-empty="true"><strong>Medication&nbsp;</strong></p><p data-rte-preserve-empty="true">It is important to understand the impact that heat can have on your medications. Additionally, the effectiveness or impact of medications can change depending on the environment you’re in.</p><p data-rte-preserve-empty="true"><strong>Diet</strong></p><p data-rte-preserve-empty="true">We often feel a reduced appetite during heatwaves, and some foods can require more energy to digest than others. Combining this with some of the inflammatory affects those with Endometriosis can experience from food, what you eat during heatwaves can really matter.&nbsp;</p><p data-rte-preserve-empty="true"></p><p data-rte-preserve-empty="true" class="sqsrte-large"><strong>The Strategies</strong></p><p data-rte-preserve-empty="true"><strong>Dehydration</strong></p><p data-rte-preserve-empty="true">Ensure that you have water available, and are drinking regularly. Consider adding electrolyte drinks if needed to maintain hydration. Generally thirst indicates that you are beginning to become dehydrated. Make sure you listen to your body. Regular consumption of smaller amounts of water is best.&nbsp;</p><p data-rte-preserve-empty="true"><strong>Heat And Nervous System Hypersensitivity andHeat Related Illness</strong></p><p data-rte-preserve-empty="true">Reduce your exposure to heat. Where possible, stay inside to avoid extreme heat, using cooling systems like fans or air conditioners to reduce your exposure to the problem. If you can’t avoid the exposure, than work to reduce its impact by;</p><ol data-rte-list="default"><li><p data-rte-preserve-empty="true">Participating in water based activities for exercise alternatives&nbsp;</p></li><li><p data-rte-preserve-empty="true">Wearing sun protection; hat, sunscreen, long sleeves, wet washer around the neck, sun umbrella&nbsp;</p></li><li><p data-rte-preserve-empty="true">Seek shade and or shelter where possible&nbsp;</p></li><li><p data-rte-preserve-empty="true">Stay hydrated</p></li></ol><p data-rte-preserve-empty="true"><strong>Medication&nbsp;</strong></p><p data-rte-preserve-empty="true">Check the storage temperatures of your medications and ensure you can keep them at appropriate temperatures, particularly if you have to travel. Ask your GP or other medical professional if there are any changes you should make to your medication regime in heatwaves.&nbsp;</p><p data-rte-preserve-empty="true"><strong>Diet</strong></p><p data-rte-preserve-empty="true">Mediterranean diets are generally accepted as a low inflammatory option. Additionally, consider adding foods that are high in electrolytes and avoid highlighting processed foods or substances like alcohol which increase risk of dehydration. Always consult your health professional about dietary changes.&nbsp;</p><p data-rte-preserve-empty="true" class="is-empty is-editor-empty"></p><p data-rte-preserve-empty="true">Reference used to make this resource</p><p data-rte-preserve-empty="true"><a href="https://www.health.vic.gov.au/environmental-health/extreme-heat-information-for-clinicians"><u>https://www.health.vic.gov.au/environmental-health/extreme-heat-information-for-clinicians</u></a></p><p data-rte-preserve-empty="true"><a href="https://www.betterhealth.vic.gov.au/health/healthyliving/heat-related-health-problems"><u>https://www.betterhealth.vic.gov.au/health/healthyliving/heat-related-health-problems</u></a></p><p data-rte-preserve-empty="true"><a href="https://physiotherapieuniverselle.com/en/blogue/heat-and-chronic-pain-why-do-your-symptoms-get-worse-in-summer"><u>https://physiotherapieuniverselle.com/en/blogue/heat-and-chronic-pain-why-do-your-symptoms-get-worse-in-summer</u></a></p><p data-rte-preserve-empty="true"><a href="https://southsidepainspecialists.com/6-tips-for-dealing-with-chronic-pain-during-hot-weather/"><u>https://southsidepainspecialists.com/6-tips-for-dealing-with-chronic-pain-during-hot-weather/</u></a></p><p data-rte-preserve-empty="true"><a href="https://www.bom.gov.au/resources/learn-and-explore/heatwave-knowledge-centre"><u>https://www.bom.gov.au/resources/learn-and-explore/heatwave-knowledge-centre</u></a></p><p data-rte-preserve-empty="true"><a href="https://metronorth.health.qld.gov.au/news/beat-the-heat"><u>https://metronorth.health.qld.gov.au/news/beat-the-heat</u></a></p><p data-rte-preserve-empty="true"><a href="https://www.heart.org/en/news/2024/06/26/as-summer-heat-cranks-up-our-appetites-may-cool-off"><u>https://www.heart.org/en/news/2024/06/26/as-summer-heat-cranks-up-our-appetites-may-cool-off</u></a></p><p data-rte-preserve-empty="true"></p>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1771306198784-6FG6MVBRZ0JO2IK35KIT/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Endometriosis Heat Wave Awareness</media:title></media:content></item><item><title> What’s New in Endometriosis Research? Your Top Questions Answered</title><dc:creator>Ash Webb</dc:creator><pubDate>Tue, 03 Feb 2026 08:53:52 +0000</pubDate><link>https://www.qendo.org.au/blog/-whats-new-in-endometriosis-research</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6981b722db855a30469ea26b</guid><description><![CDATA[<p class="sqsrte-large"><strong>🌿 What’s New in Endometriosis Research? Your Top Questions Answered</strong></p><p class="sqsrte-large">Endometriosis can be complex, confusing, and deeply frustrating — especially when the information available feels inconsistent or incomplete. Recently, we gathered your questions for a researcher specialising in endometriosis biology, pain pathways, and emerging therapies. Here’s what they had to say, distilled into an easy-to-read summary.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🔄 Does Endometriosis Really Come Back After Excision Surgery — Even With Hormonal Management?</strong></p><p class="sqsrte-large">Hormonal treatments like the <strong>Mirena IUD</strong> or continuous oral contraceptives work by <strong>suppressing estrogen</strong>, which slows the growth of endometriosis. But hormones <em>cannot</em> eliminate the disease entirely.</p><p class="sqsrte-large">Even skilled excision surgery is not 100% effective. <strong>Tiny portions of lesions can remain</strong>, and over time these can continue to develop — even while on hormonal suppression.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>📉 How Successful Is Surgery Followed by Hormonal Treatment?</strong></p><p class="sqsrte-large">Research shows recurrence rates ranging widely from <strong>6% to about 50% within five years</strong> after surgery.</p><p class="sqsrte-large">However, there's good news:<br> 👉 People who use <strong>hormone therapy after surgery have about 2.5 times lower risk</strong> of recurrence compared to those who don’t.</p><p class="sqsrte-large">While not perfect, the combination of excision and hormonal suppression is currently one of the most effective approaches for reducing recurrence risk.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🔬 How Does Journavx (Suzetrigine) Work for Endometriosis Pain?</strong></p><p class="sqsrte-large"><strong>Suzetrigine</strong>, branded as <em>Journavx</em>, is a new pain medication that targets specific pain pathways — without the addictive potential seen in opioid medications.</p><p class="sqsrte-large">Here’s how it works:</p><ul data-rte-list="default"><li><p class="sqsrte-large">It selectively blocks <strong>Nav1.8 channels</strong>, which sit on peripheral pain-sensing neurons.</p></li><li><p class="sqsrte-large">These channels help transmit pain signals from the body to the spinal cord.</p></li><li><p class="sqsrte-large">By inhibiting them, suzetrigine <strong>stops pain signals before they reach the central nervous system</strong>.</p></li></ul><p class="sqsrte-large">It doesn’t treat endometriosis lesions, but it may offer meaningful relief for endometriosis-related pain.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🧬 Why Is Hysterectomy Sometimes Used if Endometriosis Is a Whole-Body Disease?</strong></p><p class="sqsrte-large">Although endometriosis itself is not confined to the uterus, a hysterectomy may reduce symptoms because:</p><ul data-rte-list="default"><li><p class="sqsrte-large">Removing the uterus and ovaries significantly reduces <strong>estrogen and progesterone production</strong>.</p></li><li><p class="sqsrte-large">Endometriosis lesions are estrogen-dependent, so reducing hormones reduces symptoms and may slow further lesion growth.<br></p></li></ul><p class="sqsrte-large">How is this different from a <strong>GnRH agonist</strong> (medical menopause)?</p><ul data-rte-list="default"><li><p class="sqsrte-large">GnRH agonists temporarily suppress hormones.</p></li><li><p class="sqsrte-large">Once you stop them, hormones (and symptoms) often return.</p></li><li><p class="sqsrte-large">A hysterectomy, in contrast, is permanent.</p></li></ul><p class="sqsrte-large">Importantly: A hysterectomy does <strong>not</strong> cure endometriosis, but may help some people depending on their symptom sources.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🐁 How Do Researchers Create Endometriosis in Mouse Models?</strong></p><p class="sqsrte-large">Studying endometriosis requires accurate models. Here’s how researchers do it:</p><ol data-rte-list="default"><li><p class="sqsrte-large">They take small fragments of the uterine lining (from the same or a donor mouse).</p></li><li><p class="sqsrte-large">These fragments are placed inside the abdominal cavity of another mouse.</p></li><li><p class="sqsrte-large">The recipient mouse receives <strong>weekly estrogen injections</strong>.</p></li><li><p class="sqsrte-large">The fragments attach to various surfaces and form lesions — just as they do in humans.</p></li></ol><p class="sqsrte-large">This model helps researchers test therapies, understand pain pathways, and analyse how lesions grow.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🧬 Is There a Link Between the MTHFR C677T Gene Variant and Endometriosis?</strong></p><p class="sqsrte-large">Recent studies (2023 &amp; 2025) suggest a connection between the <strong>MTHFR C677T variant</strong> and increased risk of endometriosis.</p><p class="sqsrte-large">This gene affects folate metabolism, and impaired function can lead to:</p><ul data-rte-list="default"><li><p class="sqsrte-large">Increased inflammation</p></li><li><p class="sqsrte-large">Greater oxidative stress</p></li></ul><p class="sqsrte-large">Both are known contributors to endometriosis development.</p><p class="sqsrte-large">While promising, the researcher notes that their current models <strong>do not yet explore this gene variant</strong> — but that doesn’t mean the association isn’t relevant.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🎗️ If Endometriosis Lesions Grow Like Some Cancers, Why Isn’t Endo a Cancer?</strong></p><p class="sqsrte-large">Endometriosis and cancer share some biological processes — like <strong>angiogenesis</strong> (creating new blood vessels), inflammation and resistance to cell death and <strong>nerve growth</strong>.</p><p class="sqsrte-large">But key differences explain why endo is <em>not</em> considered a cancer:</p><ul data-rte-list="default"><li><p class="sqsrte-large">Cancer cells grow <strong>uncontrollably</strong> and invade distant tissues (metastasis).</p></li><li><p class="sqsrte-large">Endometriosis lesions do <strong>not</strong> metastasise.</p></li><li><p class="sqsrte-large">Endo is painful and life-altering, but not life-threatening in the way malignant cancers are</p></li></ul><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>💰 Is Endometriosis Research Finally Getting More Support?</strong></p><p class="sqsrte-large">Yes — but it’s still challenging.</p><p class="sqsrte-large">Researchers report:</p><ul data-rte-list="default"><li><p class="sqsrte-large">More dedicated grants and initiatives</p></li><li><p class="sqsrte-large">Increased public interest</p></li><li><p class="sqsrte-large">Growing recognition of endometriosis as a major health priority</p></li></ul><p class="sqsrte-large">However, competition remains intense, and funding for <strong>basic science</strong> — the foundation of all future treatments — is still extremely limited.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>🧪 When Will the New Therapeutic Antibody Be Helpful?</strong></p><p class="sqsrte-large">This emerging treatment has shown effectiveness on <strong>existing lesions</strong>, and early data suggests it may also slow <strong>new lesion formation</strong>.</p><p class="sqsrte-large">However:</p><ul data-rte-list="default"><li><p class="sqsrte-large">It is <em>not</em> designed as a preventative treatment.</p></li><li><p class="sqsrte-large">It is intended for people already diagnosed with endometriosis.</p></li></ul><p class="sqsrte-large">There’s still a journey ahead before this therapy becomes widely available.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><p class="sqsrte-large"><strong>🌟 What’s Most Exciting in Endometriosis Research Right Now?</strong></p><p class="sqsrte-large">According to the researcher:<br> <strong>The possibility of a non-hormonal treatment for endometriosis.</strong></p><p class="sqsrte-large">Hormonal options remain essential, but they come with side effects and limitations. A non-hormonal therapy could be transformative — especially for those who can’t or don’t want to use hormonal suppression.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>😣 What’s Most Frustrating for Endometriosis Researchers?</strong></p><p class="sqsrte-large">Their biggest barrier: <strong>funding for fundamental research</strong>.</p><p class="sqsrte-large">Basic research uncovers the mechanisms that allow new treatments to be developed — but it’s often the hardest type of work to get funded. Despite this, researchers remain committed and motivated by the impact their work can have.</p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p data-rte-preserve-empty="true" class="sqsrte-large"></p><p class="sqsrte-large"><strong>Final Thoughts</strong></p><p class="sqsrte-large">Endometriosis research is moving forward faster than ever — from understanding pain pathways to exploring new non-hormonal treatments. While challenges remain, the momentum is growing, and so is the hope for more effective and personalised care.</p>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1770108938647-ANUPV6513A3QKIWYUR9Z/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain"> What’s New in Endometriosis Research? Your Top Questions Answered</media:title></media:content></item><item><title>How Thrive As You Dietetics Came to Life</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 16 Dec 2025 23:12:30 +0000</pubDate><link>https://www.qendo.org.au/blog/how-thrive-as-you-dietetics-came-to-life</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6941e63c5342d53faafb7b60</guid><description><![CDATA[Alannah Woodrow, a dietitian and chronic illness survivor, shares her 
journey of how Thrive As You Dietetics was created. Initially expecting to 
work in clinical settings, her experiences with unsupportive healthcare and 
her own health challenges—including endometriosis, pelvic pain, 
neurodivergence, and connective tissue disorders—led her to realize the 
gaps in traditional healthcare. Frustrated by the lack of lived experience, 
trauma-informed, and neurodiversity-affirming care, she decided to build 
her own practice.

Thrive As You Dietetics is a space designed for humans living with chronic 
pain and invisible illnesses, emphasising authenticity, compassion, and a 
whole-body, individualised approach. Alannah aims to provide care that 
fosters trust, autonomy, and joy, supporting clients to reconnect with 
their bodies, food, and themselves. The practice prioritises understanding, 
safety, and strength-based support for those often dismissed or 
misunderstood by mainstream healthcare systems. Ultimately, it’s about 
creating a community where clients can feel seen, heard, and empowered in 
their health journeys.]]></description><content:encoded><![CDATA[<figure data-test="image-block-v2-outer-wrapper" class="
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                <p class="">Written by Alannah Woodrow (APD)</p>
              

              
                <p class=""><strong>The Unexpected Path That Led Me Here</strong></p><p class="">If you’d told me at the start of studying to become a dietitian that:</p><p class="">1) I’d build my own private practice and, </p><p class="">2) that I’d build this space for humans with pelvic pain, endometriosis, neurodivergence, and connective tissue disorders, </p><p class="">I would NEVER have believed you and probably screamed a little. </p><p class="">For a moment, in late undergrad, I thought about opening my own multidisciplinary team private practice. But then I quickly forgot about that as I went into my master's. I thought I would be a clinical or food service dietitian in hospitals. However, then I had an awful first clinical placement that did not at all sell me on becoming a clinical dietitian in metro hospitals. And it really made me contemplate not even finishing my master’s and not becoming a dietitian. If that wasn’t enough, I then soon got significantly gaslighted in the post-op consult by the gynaecologist who did my diagnostic laparoscopy for endometriosis. </p><p class="">And honestly? Both experiences made me a shell of a human and shook me to my core for a long time.</p><p class="">But being diagnosed with Endometriosis was only the beginning. A list of new labels followed as treatment options after treatment options failed to improve my pain and symptoms. Including persistent pelvic pain, hypermobility spectrum disorder, IBS, functional dyspepsia, and postural orthostatic tachycardia syndrome (POTS). Like many of you, I had to learn the hard way that answers aren’t quick, care isn’t always accessible and feeling dismissed cuts deeper than the pain itself.</p><p class="">I'm getting real, raw and vulnerable with you, sharing my story because I know my health story would look <em>very</em> different today if I weren't also a health professional. I’ve been through an insurmountable number of tough times since 2022. But I knew how to speak medical jargon, and this shaped my communication with my specialists and how I advocated for myself.</p>
              

              

            
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                <p class=""><strong>When the System Fell Short, I Built My Own Path</strong></p>
              

              
                <p class="">I noticed early on, both as a dietitian and as a patient, that I kept having many of the same experiences. And as I went to support groups, read Facebook posts and attended events held by organisations in my communities, I kept hearing that I wasn’t the only one. In fact, traditional healthcare has been missing some massive pieces to the puzzle:</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Lived experience.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Curiosity.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Space.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Safety.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Trauma-informed care.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Neurodiversity-affirming care.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Permission for health professionals to be human.</p><p class="">When I sat in appointments, I could always tell when lived experience <em>wasn’t</em> in the room, and healthcare professionals didn't know when my trauma was in the room. I could feel the gap. The assumptions. The lack of nuance in putting modern pain science into practice with pelvic pain patients, that it isn’t just physical, it’s emotional, relational, hormonal, and neurological. It comes with fatigue, sensory overload, flare unpredictability, mental load, and so much more. </p><p class=""><br>And then the penny dropped with two realisations: </p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; As a chronically ill dietitian, I’ve struggled to find work that gave me everything my health and body needed. The flexibility, the support, the understanding and not too mentally or physically taxing.</p><p class="">·&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Finding a dietitian who truly <em>gets</em> endometriosis, pelvic pain, neurodivergence, connective tissue disorders &amp; co? Practically impossible.</p>
              

              

            
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                <p class="">So, as the saying goes, if you want something done right, sometimes you’ve got to do it yourself. And so, Thrive As You Dietetics was born out of a lot of big emotions, not a business plan. The powerful kind of emotions, the “this system needs to change, and I’m ready to be part of that change” kind.</p>
              

              
                <p class=""><strong>Your Neurospicy, Croissant-Loving, Pelvic Pain Dietitian</strong></p><p class="">So, this is who I am, and why I care so damn much. I’m Alannah, a woman of many things: a dietitian, a chronically ill girlie, a croissant enthusiast, and someone who always has a bevvy in hand! I’m also the Founder of <a href="https://www.thriveasyou.com/"><span>Thrive As You Dietetics</span></a>.</p><p class="">I help humans who live with pain, are a bit neurospicy, and endure dynamic, chronic, invisible illnesses. Using a whole-body approach, we’ll find real nutrition solutions that feel right for you, that free you from your gut dramas, replenish you and reclaim your love story with food. </p><p class="">Using neurodiversity-affirming and trauma-informed care, I’ll teach you the science behind how nutrition influences pain, inflammation, fatigue, the gut and where sensory sensitivities fit into this. I’ll support your nutrition to be as dynamic as you are—today, tomorrow, and every flare-up in between. You’ll gain nutrition solutions that work with your reality and support your symptoms—helping you show up socially with confidence and less fear of food. You’ll learn how food can help regulate your nervous system, make you feel safer in your body, and give you lasting nourishment.</p><p class=""><strong>&nbsp;</strong></p><p data-rte-preserve-empty="true" class=""></p>
              

              

            
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  <p class=""><strong>The Why: I wanted to create the space I always needed</strong></p><p class="">Thrive As You Dietetics came to life because I wanted a space where my kind of humans could be authentically themselves and could exhale for the first time in years.</p><p class="">A space where:</p><ul data-rte-list="default"><li><p class="">You don't have to mask</p></li><li><p class="">You don't have to justify your pain or symptoms</p></li><li><p class="">You're not told to "just do low FODMAP"</p></li><li><p class="">Your nervous system is part of the plan</p></li><li><p class="">Food becomes supportive, not stressful</p></li><li><p class="">You could explore your symptoms curiously</p></li><li><p class="">Your care is strengths-based, not symptom-blaming</p></li><li><p class="">You get to rebuild trust with your body — gently, slowly, compassionately</p></li></ul><p class="">&nbsp;</p><p class="">I wanted to build a practice where clients feel seen before they feel “treated.”</p><p class="">Where the goal isn’t just fewer flares…but more freedom. More autonomy in your care, more connection to yourself, and a positive reframe to what we often feel like “what’s wrong with me”.</p><p class="">Because the answer is nothing, absolutely nothing. We just live in a system not built for humans like us.</p><p class="">&nbsp;</p><p class=""><strong>Where </strong><a href="https://www.thriveasyou.com/"><span><strong>Thrive As You Dietetics</strong></span></a><strong> is now</strong></p><p class="">Today, TAY’D is a practice built intentionally for humans who are exhausted of feeling dismissed, ignored and unheard. </p><p class="">It’s for the people who:</p><ul data-rte-list="default"><li><p class="">have pelvic pain, endo, adeno, POTS, hEDS/HSD, gut issues, chronic fatigue, or all of the above</p></li><li><p class="">are neurodivergent and exhausted by systems that weren’t designed for their brains</p></li><li><p class="">want nutrition care that works with their daily life</p></li><li><p class="">crave clarity, compassion, and a plan that finally makes sense</p></li><li><p class="">want a clinician who sees the whole human, not just the symptoms<br></p></li></ul><p class="">This practice exists because you deserve care that’s: authentic, helps you feel like you belong in this world, is cheeky because laughing helps complete your stress cycle and helps bring some joy back into your life.<br></p><p class="">Wherever you are in your journey, I’m glad you’re here. And I hope this space helps you reconnect with food, movement, your body…and yourself.</p><p class="">&nbsp;<br>With warmth,</p><p class="">Alannah</p><p class="">Thrive As You Dietetics</p>]]></content:encoded><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1767587614652-VFUA3S9B19MLF119OBZM/ThriveAsYouFinalImages_V2-7.jpg?format=1500w" medium="image" isDefault="true" width="1024" height="1536"><media:title type="plain">How Thrive As You Dietetics Came to Life</media:title></media:content></item><item><title>Living With Endometriosis: My Pelvic Pain Story</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 16 Dec 2025 23:03:05 +0000</pubDate><link>https://www.qendo.org.au/blog/living-with-endometriosis-my-pelvic-pain-story</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6941e430f695c33511f8c566</guid><description><![CDATA[Alannah Woodrow shares her personal journey living with endometriosis, 
highlighting her early symptoms of debilitating period pain, fatigue, and 
invisible suffering that was often dismissed or misunderstood. Despite 
managing her symptoms for years, she only received a proper diagnosis in 
2022 after confiding in friends, which led her to seek medical attention. 
Multiple gynecologists offered varying levels of support, with some 
dismissing her concerns and others validating her symptoms. Ultimately, she 
underwent a diagnostic laparoscopy in late 2023, which confirmed the 
presence of endometriosis. Alannah emphasises the isolation many women feel 
with this condition and shares her motivation for telling her story—to 
raise awareness and foster understanding, especially for those navigating 
similar struggles. She also hints at her future plans to create a 
supportive space for people living with pelvic pain and related conditions 
through her work in dietetics.]]></description><content:encoded><![CDATA[<figure data-test="image-block-v2-outer-wrapper" class="
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                <p class=""><em>Written by Alannah Woodrow</em></p>
              

              
                <p class="">For as long as I can remember, my body has sent me signals that were easy to overlook. The pain I experienced during my periods would shape my life in ways few could see.</p><p class="">&nbsp;</p><p class=""><strong>When Period Pain Became Debilitating</strong></p><p class="">I got my first period at the end of 2013. I remember the symptoms, their severity, and exactly what I was doing when they began; a family camping trip during one of Queensland’s first 40°C days. In 2014, my flow became heavier and more painful, with intense cramps and marked the start of lower back pain, funky poos and nausea being involved in my periods. Initially, I tried to manage the discomfort with heat packs and over-the-counter pain relief, but slowly, it wasn’t enough.</p><p class="">Between 2015 and 2017, the pain worsened, lasting 3–4 days each month. Alongside the pain came extreme fatigue, low energy, brain fog, the pain waking me up as I tried to sleep, difficulty concentrating at school and a heaviness/sluggish feeling from the amount of blood loss. Standard pain relief like Panadol and Nurofen barely made a difference, so I had to rely on stronger over-the-counter medication for a break from the excruciating pain. When I ran out of this stronger medication, my symptoms reached an all-time peak, 10/10, and I could barely make it through the day. Especially with ‘simple’ daily tasks, like standing long enough to prepare breakfast, showering, even sitting at a desk at school, all became almost unbearable at the start to the middle of every period, every month. The severity of my symptoms also affected my ability to concentrate at school. I remember resting my head on my desk to try to get a moment’s relief during classes.</p>
              

              

            
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                <p class=""><strong>Living With Invisible Symptoms</strong></p>
              

              
                <p class="">The most challenging part was that these symptoms were largely invisible to those around me. Society repeatedly told young women that period pain was “normal,” something to be endured as part of growing up and being a woman. Everything to do with periods was taboo and not commonly talked about with comfort or compassion. I believed I had to push through silently, attending school and maintaining daily routines despite how much my quality of life was affected.<br><br><strong>Finding Answers: The Diagnosis</strong></p><p class="">It wasn't until August/September 2022 that things finally started to make sense. After a university tutorial, a few friends and I were walking back to our cars, talking about contraceptives and periods. As they shared, I felt safe enough to describe what mine were really like. Their shock was immediate — and one friend gently said, "Yeah, babes… that's not normal. Get checked." A moment I will never forget.</p><p class="">For the first time, I felt seen and validated. Maybe I wasn't exaggerating. Maybe it wasn't all in my head. Maybe I'd just been living with a level of pain most people never experience.</p><p class="">I booked in with my GP, who took my concerns seriously. Blood work, screening questions and a pelvic ultrasound later… Endometriosis was now likely. Because I was starting my Master of Dietetics in early 2023, I got three referrals to private gynaecologists from my GP — and yes, I intended to use all three. If you’d get three quotes to paint your house, why not for surgery?</p><p class="">To prepare, I wrote a single set of questions to ask each gynaecologist so I could clearly compare their responses and choose who I felt safest with in the operating room.</p><p class="">By then, I'd already read countless Endometriosis Facebook posts, asked for others' experiences with these doctors, and gathered advice from women in my life. So naturally, I was terrified of what surgery might reveal.</p>
              

              

            
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  <p class=""><strong>Gynae 1</strong> didn't believe me. At my first appointment (Nov '22), they told me to "come back if the pain gets worse or changes by April." It did — and when I returned after my first clinical placement in May '23, the disconnect was even clearer. Mid-conversation, they even stood up to adjust a pillow on the couch behind me. That was my last appointment with them.</p><p class=""><strong>Gynae 2</strong> was different. They answered my questions confidently, explained Endometriosis, and genuinely validated my symptoms. They didn’t trust my first ultrasound, so I had a specialised pelvic ultrasound done. Nothing urgent appeared, but the sonographer noted one ovary wasn’t moving freely and at the end said "good luck because there's something there". I walked out feeling numb. What started as wanting to “rule out Endo” was becoming a likely diagnosis.</p><p class=""><strong>Gynae 3</strong> was also a fertility specialist, important to me because I knew I wanted kids and that 30–50% of people with Endo experience fertility challenges. Almost immediately, they asked if I'd had a specialist ultrasound. When I confirmed I had, they seemed taken aback and asked, "So what were you expecting from me today?” The ego in the room was hard to ignore, as was their displeasure that I sought other opinions than theirs. The appointment shifted into fertility discussions, low AMH results, and the possibility of egg freezing at age 21. </p><p class="">By this point, I’d experienced more gaslighting than genuine care. With my surgery date approaching and horror stories filling my Facebook feed, I was anxious, burnt out, and questioning myself. What if they found nothing? Thankfully, I was in therapy at the time, which helped me decide, book and prepare my diagnostic laparoscopy in late November 2023. In the weeks leading up, I even started dreaming about the surgery and the results.</p><p class="">The moment I woke from anaesthetic, I lifted my head, pulled off the oxygen mask and panicked, “Did they find endo?” The nurse replied, “Yes, they removed tissue they believe is Endometriosis.” Relief washed over me instantly.</p><p class="">But the final shock came later: when the nurse confirmed all pathology samples were positive for Endometriosis. Even after thinking about Endometriosis constantly, hearing the official diagnosis still stunned me.</p><p class=""><strong>Why Share My Story?</strong></p><p class="">Endometriosis is isolating enough on its own. I navigated it solo—no parent advocating for me, no “laparoscopy fixed everything” moment, nothing that fit the usual narrative. And honestly, I’ve often struggled to see myself in our community’s stories for those exact reasons.</p><p class="">But here’s the thing: I'm sharing my story because I know my health would look <em>very</em> different today if I weren't also a health professional. Stay tuned for my next guest blog post about how I became the founder of <a href="https://www.thriveasyou.com/"><span>Thrive As You Dietetics</span></a>, leading the creation of a space in dietetics for humans living with pelvic pain, endometriosis, neurodivergence, and connective tissues disorders. </p>]]></content:encoded><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1767587831171-REA9MPYYPXQISQ3PN2UR/IMG_7696+edited.jpg?format=1500w" medium="image" isDefault="true" width="1500" height="2000"><media:title type="plain">Living With Endometriosis: My Pelvic Pain Story</media:title></media:content></item><item><title>Living well after hysterectomy (with ovaries retained) – An informational guide</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 16 Dec 2025 22:51:53 +0000</pubDate><link>https://www.qendo.org.au/blog/living-well-after-hysterectomy-with-ovaries-retained</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6941e1eef695c33511f8230f</guid><description><![CDATA[Living well after hysterectomy with ovaries retained involves understanding 
that while the removal of the uterus stops menstruation, the ovaries 
continue hormone production, which can sustain residual endometriosis or 
pain. Persistent symptoms such as pelvic pain, hormonal fluctuations, or 
discomfort may arise from remaining lesions, nerve or tissue involvement, 
or hormonal activity. Emotional and physical adjustments are common, 
including feelings of loss, changes in sensation, and ongoing recovery 
challenges. Supporting oneself through gentle movement, pain management, 
hormonal review, and trauma-informed self-care strategies is crucial, along 
with fostering emotional resilience through education, peer support, and 
self-compassion. Regular follow-up with healthcare professionals about 
hormone levels, pelvic health, and potential risks like adhesions or 
residual endometriosis ensures ongoing management. Ultimately, healing 
encompasses holistic physical, emotional, and lifestyle approaches, 
emphasising that individuals are more than their uterus and can shape their 
well-being and recovery journey with support and self-advocacy.]]></description><content:encoded><![CDATA[<p class=""><strong>Prepared by QENDO Endometriosis &amp; Pelvic Pain Support Australia</strong></p><h4><strong><br>1. What happened and what’s still happening</strong></h4><p class="">When a hysterectomy is performed (removal of the uterus, sometimes the cervix) for endometriosis/adenomyosis, but the ovaries are kept, it means:</p><ul data-rte-list="default"><li><p class="">There is no longer menstruation, and the uterus is removed, but your ovaries (which produce hormones including oestrogen &amp; progesterone) continue to function. <a href="https://www.endometriosis-uk.org/sites/default/files/2022-10/Having%20a%20Hysterectomy_2022_0.pdf?utm_source=chatgpt.com"><span>Endometriosis UK+2East Sussex Healthcare NHS Trust+2</span></a></p></li><li><p class="">Because endometriosis often involves tissue <strong>outside</strong> the uterus (on ovaries, fallopian tubes, pelvic lining, bowel, bladder) the removal of the uterus alone does <strong>not</strong> guarantee full symptom relief. <a href="https://endometriosis.org/treatments/hysterectomy/?utm_source=chatgpt.com"><span>Endometriosis+1</span></a></p></li><li><p class="">Retaining your ovaries means your body still has hormonal cycling (or functioning ovaries) which can continue to drive remaining endometriosis lesions or pain mechanisms. For example, one leaflet states keeping ovaries may lead to “ovarian retention syndrome” (pelvic pain/adhesions) in ~5% of women after hysterectomy. <a href="https://www.esht.nhs.uk/wp-content/uploads/2018/09/0048.pdf?utm_source=chatgpt.com"><span>East Sussex Healthcare NHS Trust</span></a></p></li><li><p class="">Trauma-informed lens: You may still carry the lived experience of chronic pain, prior surgeries, fertility and identity impacts. The body may be saying “we’ve been through a lot” and change is ongoing.</p></li></ul><h4><strong><br>2. Why you may still have symptoms</strong></h4><p class="">Here are several reasons you might continue to experience pain, fatigue, hormonal fluctuations or other symptoms:</p><ul data-rte-list="default"><li><p class="">Some endometriosis lesions may remain either because they were not fully excised at the time of surgery, or because they are in locations that are hard to remove (e.g., bowel, bladder, nerves). <a href="https://endometriosis.net/clinical/hysterectomy-when?utm_source=chatgpt.com"><span>Endometriosis.net+1</span></a></p></li><li><p class="">Hormones produced by your ovaries (oestrogen, progesterone) can stimulate residual endometriosis or pain mechanisms.</p></li><li><p class="">You may have developed <strong>central sensitisation</strong> or changes in pelvic-floor / nervous system function due to long-standing pain, which means pain persists even when the original source is reduced. <a href="https://endometriosis.net/clinical/hysterectomy-when?utm_source=chatgpt.com"><span>Endometriosis.net</span></a></p></li><li><p class="">Even though the uterus is removed, other structures (e.g., ligaments, ovaries, pelvic nerves, scar tissue/adhesions) may still contribute to symptoms such as pelvic pain, sexual discomfort, bladder or bowel sensitivity.</p></li><li><p class="">Your body may also still be adjusting hormonally and emotionally to the surgical, physical and identity changes of hysterectomy + pelvic-pain history.</p></li></ul><h4><strong><br>3. What to expect physically &amp; emotionally</strong></h4><p class=""><strong>Physically</strong> you might experience:</p><ul data-rte-list="default"><li><p class="">Changes in periods: no more bleeding from the uterus, but you may still have ovarian-hormone swings.</p></li><li><p class="">Pain: perhaps less severe, or in different locations, but you may still feel pelvic, back, bladder, bowel or sexual pain.</p></li><li><p class="">Hormonal symptoms: If ovaries retained, menopause is not immediate, but you may reach earlier menopause; if ovaries have reduced blood supply post-surgery this may accelerate. <a href="https://www.esht.nhs.uk/wp-content/uploads/2018/09/0048.pdf?utm_source=chatgpt.com"><span>East Sussex Healthcare NHS Trust+1</span></a></p></li><li><p class="">Sexual and bladder/ bowel changes: Some women experience vaginal dryness, changes in sensation, changes in bladder or bowel function after hysterectomy. <a href="https://www.endometriosis-uk.org/sites/default/files/2022-10/Having%20a%20Hysterectomy_2022_0.pdf?utm_source=chatgpt.com"><span>Endometriosis UK</span></a></p></li><li><p class="">Recovery: Even after surgery “successfully done” it can take <strong>months</strong> (or longer) before you feel like “you” again. <a href="https://www.theendometriosisfoundation.org/hysterectomy?utm_source=chatgpt.com"><span>The Endo Foundation</span></a></p></li></ul><p class=""><strong>Emotionally / psychologically</strong>:</p><ul data-rte-list="default"><li><p class="">Loss/grief: removal of uterus can trigger feelings of loss (fertility, identity, body integrity).</p></li><li><p class="">Relief mixed with uncertainty: you may be relieved that a major step was taken, yet still anxious because symptoms persist or change.</p></li><li><p class="">Trauma-aware: if you’ve had long-term pain, multiple surgeries, fertility challenges or stress, the body and mind may still be processing this. It’s valid to feel vulnerable, angry, sad, relieved—and everything in between.</p></li><li><p class="">Self-identity: adjusting to no longer having a uterus (despite ovaries retained) may impact how you view your body, femininity, sexuality or sense of self.</p></li><li><p class="">Empowerment: this is an opportunity to partner with your body, listen to it, and become an advocate for your health and wellbeing.</p></li></ul><h4><strong><br>4. Supporting yourself – body &amp; mind</strong></h4><p class="">Here are practical, trauma-informed strategies to support healing and resilience:<br><strong>A. Body-focussed</strong></p><ul data-rte-list="default"><li><p class="">Gentle movement: gentle pelvic floor and core rehabilitation, walking, stretching, yoga or pilates guided by a pelvic-health physiotherapist (especially if pelvic floor or scar tissue changes are present).</p></li><li><p class="">Pain management: ensure you have a pain-plan that may include medications (as prescribed), heat/ice, manual therapy, pelvic-floor physio, trigger-point release, gentle exercise.</p></li><li><p class="">Hormonal review: if you’re still having symptoms (e.g., mood swings, hormonal swings, early menopause changes) talk with your GP/gynecologist about keeping ovaries, hormonal status, bone health, and whether hormone replacement therapy (HRT) is relevant. (Note: keeping ovaries means HRT may not be needed immediately, but hormone health still matters.)</p></li><li><p class="">Nutrition &amp; sleep: focus on anti-inflammatory diet patterns, good sleep hygiene, stress-management (mindfulness, breathing, gentle relaxing activities).</p></li><li><p class="">Scar/adhesion care: if you had significant surgery, working with a physiotherapist, osteopath or massage therapist experienced in post-operative pelvic surgery can help with adhesions, myofascial restrictions.</p></li><li><p class="">Ongoing monitoring: bone health (especially if hormone production changes), cardiovascular health, and sexual health (lubrication, comfort, vaginal health) should be reviewed with your clinician.</p></li><li><p class="">Self-advocacy: keep a symptoms + trigger journal (pain location, bowel/bladder, mood, cycle/hormone change if any). Bring this to your GP/gynea for discussion.</p></li></ul><p class=""><strong>B. Mind-focused (trauma-informed)</strong></p><ul data-rte-list="default"><li><p class="">Safe space: allow yourself space to feel whatever is coming up (loss, relief, anxiety, confusion).</p></li><li><p class="">Educate yourself: knowledge is power. Understanding what’s still happening in your body helps you co-navigate with your clinicians.</p></li><li><p class="">Peer and professional support: connecting with other people who’ve been through similar experiences (peer support groups, online forums, live groups) can lessen isolation. Also consider trauma-informed counselling, especially if surgery and chronic pain have been part of your life for a long time.</p></li><li><p class="">Body-listening: your body “remembers” the pain, surgeries, and your nervous system may still be on high alert. Gentle practices that calm the nervous system (breathwork, meditation, gentle yoga, grounding) are helpful.</p></li><li><p class="">Celebrate wins: acknowledge the courage it took, the decision you made, and all the small steps toward healing each day.</p></li><li><p class="">Future-facing: you may now focus on “what next” rather than only “what was”. What do you want your relationship with your body to look like now? What does wellbeing look like for <em>you</em>?</p></li></ul><h4><strong><br>5. Follow-up care and key questions to ask</strong></h4><ul data-rte-list="default"><li><p class="">“Should I continue seeing a gynae/endometriosis specialist even though my uterus is removed, and ovaries retained?”</p></li><li><p class="">“Do I still need pelvic‐floor physio, or specific post-hysterectomy rehab?”</p></li><li><p class="">“What are my current ovarian hormone levels? Has my ovarian function changed after the surgery?”</p></li><li><p class="">“Do I need bone density monitoring (DEXA) because my ovaries are retained but may be functioning differently?”</p></li><li><p class="">“What HRT (or hormone monitoring) is right for me, given my endometriosis history and retained ovaries?”</p></li><li><p class="">“What are my possible risks now (e.g., adhesions, residual endometriosis, central sensitisation) and how will we monitor them?”</p></li><li><p class="">“What pain/pelvic floor specialists, allied health supports (physio, dietitian, psychologist) do you recommend?”</p></li><li><p class="">“What symptoms or warning signs should I look out for and raise with my clinician?”</p></li><li><p class="">“Are there peer-support groups, services for people with endometriosis after hysterectomy that I can access?”</p></li></ul><h4><strong><br>7. Important takeaway messages</strong></h4><ul data-rte-list="default"><li><p class="">Keeping your ovaries means your body continues to have hormone production: that’s a strength (avoiding surgical menopause) but also means the processes that drove your symptoms may still be active.</p></li><li><p class="">A hysterectomy is <strong>not</strong> a guaranteed end of symptoms – but it can be a meaningful component of your journey.</p></li><li><p class="">Healing is not just surgical: it’s holistic (body + mind + nervous system + lifestyle + self-compassion).</p></li><li><p class="">You are <strong>not alone</strong>: persistent pain or symptoms after hysterectomy are more common than you might expect; reaching out for specialist input, pelvic-health physio, trauma-informed counselling and peer support helps.</p></li><li><p class="">Your body is still “you”: you are more than your uterus. You are the person who chooses how to live, heal, advocate and support your body now.</p></li></ul>]]></content:encoded><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1d473ce8-e99f-44fe-a10a-d59220c68397/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Living well after hysterectomy (with ovaries retained) – An informational guide</media:title></media:content></item><item><title>Endometriosis and Neuropathic Pain: How Pain Rewires Our Nervous System by Alice S</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 16 Dec 2025 04:25:12 +0000</pubDate><link>https://www.qendo.org.au/blog/endometriosis-and-neuropathic-pain</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6940dea56020a81e21d60c88</guid><description><![CDATA[This blog will explore the connection between endometriosis and neuropathic 
pain, examining how chronic pain can lead to changes and rewiring in the 
nervous system.]]></description><content:encoded><![CDATA[<p class=""><strong>Disclaimer:</strong> <em>This article is based on my personal experience living with endometriosis and chronic pain. It is intended for awareness and education only and should not replace medical advice. Please consult a qualified health professional for individual guidance.</em></p><p data-rte-preserve-empty="true" class=""></p><p class=""><em>What happens when your body heals but your nervous system doesn’t — and why many of us keep hurting despite treatment.</em></p><p class="">When I finally received my endometriosis diagnosis — seventeen years after my first symptoms — I felt both relief and hope. After so many years of being dismissed and misunderstood, I believed surgery would be the solution. Remove the endo, remove the uterus, take out the problematic ovary, excise the lesions — surely each time would get me closer to a life without pain.</p><p class="">No more periods, I thought, might mean no more period pain. No more endometrial tissue meant no more inflammation. That was the plan. But no one told me about nerve pain.</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>Our nerves remember what our bodies forgot</strong></h4><p class="">I’m now 41, post-hysterectomy, with one ovary gone and most of my endometriosis removed. Yet I still wake up some mornings with that familiar stabbing, aching, electric pain that shoots through my pelvis, back, and abdomen. Other days, I end the night with a deep throbbing ache after simply standing too long.</p><p class="">My latest scans show no major cysts or new lesions, and yet, the pain remains. I’ve spent countless appointments asking myself and my doctors the same questions:</p><ul data-rte-list="default"><li><p class="">Why am I still in pain when there’s “nothing there”?</p></li><li><p class="">Why do I still need strong pain medication?</p></li><li><p class="">Why do I still end up in hospital when it becomes unbearable?</p></li></ul><p class="">It wasn’t until recently that I learned about <strong>neuropathic pain</strong> — pain that originates from the nerves themselves rather than ongoing tissue damage. For years, my healthcare team understandably focused on what they could see and remove. And I’m grateful — without those surgeries, I wouldn’t have been able to work, function, or have children. Each procedure brought improvement. But it also seems my nervous system was quietly rewiring itself, learning to expect pain as my body’s new normal.</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>What is neuropathic pain?</strong></h4><p class="">According to Pain Australia, neuropathic pain arises from damage or injury to the nerves.</p><p class="">By contrast, <strong>nociceptive pain</strong> is the body’s response to actual or threatened tissue damage — inflammation, injury, or surgery. It’s often sharp, throbbing, or cramping, and directly linked to the physical problem.</p><p class=""><strong>Neuropathic pain</strong>, though, comes from within the nervous system itself. The nerves, spinal cord, or brain continue sending pain signals even after the injury or tissue damage has healed. It can feel like burning, stabbing, or tingling, and is sometimes accompanied by numbness or pins and needles.</p><p class="">The key difference? Nociceptive pain says, <em>“something is wrong.”</em> Neuropathic pain says, <em>“something was wrong — and I remember.”</em></p><p class="">This type of pain can exist on its own or overlap with other chronic pain conditions such as fibromyalgia, pelvic pain, or complex regional pain syndrome.</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>The research that changed how I understood my pain</strong></h4><p class="">A major Oxford University study found that <strong>40% of people with endometriosis experience neuropathic pain</strong>, and another <strong>35% experience mixed neuropathic and nociceptive pain</strong>. In other words, many of us aren’t just dealing with inflammation — our nervous systems themselves have been altered by the disease and by repeated surgical interventions.</p><p class="">The study also revealed that people who’ve had multiple surgeries are more likely to experience this nerve-related pain. Each excision, while often necessary, can contribute to nerve damage and sensitisation. It’s a cruel irony — the very treatments that help us can also leave behind a nervous system that never quite resets.<br></p><h4><strong>When lesions grow nerves of their own</strong></h4><p class="">One of the most shocking things I learned is that endometriotic lesions can actually become <strong>innervated</strong> — they grow their own nerve supply. Surgeons cutting them away are often navigating webs of hypersensitive, inflamed nerves that may have been irritated for decades.</p><p class="">Some lesions even wrap around existing nerves, causing sharp, electric pain that feels like being stabbed. Even once removed, those nerves can continue to misfire. My body, it seems, learned pain as a language — one that my brain still speaks fluently.</p><p class="">This process, often called <strong>centralised pain</strong>, happens when the brain and spinal cord amplify or even create pain signals without ongoing tissue damage. Years of endometriosis symptoms can train the nervous system to stay in high alert, interpreting even normal sensations as threats.</p><h4><strong><br>Why this matters</strong></h4><p class="">Understanding neuropathic pain finally made sense of what I was living through. It explains so many of the questions that haunted me for years:</p><ul data-rte-list="default"><li><p class="">Why does pain persist even after “successful” surgery?</p></li><li><p class="">Why doesn’t it always match what shows up on scans?</p></li><li><p class="">Why do traditional painkillers often fail?</p></li><li><p class="">Why do we feel pain far beyond the pelvis — in our legs, backs, or abdomens?</p></li><li><p class="">Why are so many of us dismissed when nothing visible explains it?</p></li></ul><p class="">It’s not in our heads. It’s in our nervous systems.<br></p><h4><strong>What needs to change</strong></h4><p class="">Recognising neuropathic pain as part of endometriosis should reshape how this disease is treated. For too long, care has focused only on the reproductive system — stopping periods, removing lesions, supporting fertility — while the neurological consequences go largely ignored.</p><p class="">We need:</p><ul data-rte-list="default"><li><p class="">Recognition that endometriosis is not just a gynaecological disease but a <strong>whole-body, condition</strong>.</p></li><li><p class="">Pain management approaches tailored for <strong>nerve pain</strong>, not just inflammation.</p></li><li><p class="">Access to <strong>specialists</strong> within multidisciplinary care teams.</p></li><li><p class="">Treatment plans that address <strong>nerve sensitisation and central pain processing</strong>.</p></li><li><p class="">Compassion and validation for patients whose pain persists long after surgery.<br></p></li></ul><h4><strong>Living with a rewired nervous system</strong></h4><p class="">I don’t regret my surgeries. They gave me back function, freedom, and the chance to live more fully. But I’ve come to accept that surgery isn’t a cure — it’s just one step in an ongoing process.</p><p class="">For me, life after endometriosis surgery means learning to live with a nervous system that has been permanently changed. It means understanding that pain doesn’t always mean new disease — sometimes it’s an echo from the past.</p><p class="">Our pain has rewired us. And acknowledging that helps us reclaim power. It allows us to advocate for better treatments and, perhaps most importantly, to release the self-blame that so often comes with chronic illness.</p><p class="">We’re not weak.<br>We’re not dramatic.<br>We’re not imagining it.<br>We’re living with one of the most complex, misunderstood conditions medicine is only beginning to grasp.<br></p><p class=""><strong>Support:<br></strong> If you need help or want to learn more, support is available through <strong>QENDO</strong>, or your local health practitioner.</p><p class=""><strong><br>References:</strong></p><ul data-rte-list="default"><li><p class=""><a href="https://www.frontiersin.org/journals/pain-research/articles/10.3389/fpain.2021.743812/full"><span>Oxford University Study on Neuropathic Pain in Endometriosis</span></a></p></li><li><p class=""><a href="https://www.painaustralia.org.au/about-pain/forms-of-pain/neuropathic-nerve-pain-2021"><span>Pain Australia: Neuropathic Nerve Pain</span></a></p></li></ul><p data-rte-preserve-empty="true" class=""></p>]]></content:encoded><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1d473ce8-e99f-44fe-a10a-d59220c68397/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Endometriosis and Neuropathic Pain: How Pain Rewires Our Nervous System by Alice S</media:title></media:content></item><item><title>Fertility and Endometriosis: Community Q&amp;A</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Wed, 10 Dec 2025 05:49:34 +0000</pubDate><link>https://www.qendo.org.au/blog/fertility-and-endometriosis</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6938ba63a3bfdb28464aab0d</guid><description><![CDATA[<p class="">We’ve received many calls and messages from our community seeking clear, simple answers about fertility, IVF, and endometriosis, topics that can often feel overwhelming and confusing. To help cut through the noise, we’ve put together this Community Q&amp;A filled with practical, easy-to-understand information. Whether you’re just beginning to explore your fertility options or are already on your IVF journey, we hope this guide helps you feel informed, supported, and a little less alone.</p><p class="">This resource has been collated by Ash, our Community &amp; Organisational Support Officer, fellow endo warrior, and IVF veteran, who understands firsthand how important it is to have accessible and compassionate information at every step of the journey.</p><p class=""><em>Disclaimer: The information below is provided for general education and awareness only. It is not intended as medical advice. Every individual’s situation is unique, and we encourage you to seek guidance from your fertility specialist or healthcare professional regarding your personal circumstances.<br></em></p><h4><strong>Does excision surgery for stage 4 endometriosis improve fertility outcomes?</strong></h4><p class="">Excision surgery for advanced (stage 4) endometriosis can sometimes improve the likelihood of natural conception, particularly if the fallopian tubes remain open and no other fertility factors are present. Outcomes are also influenced by age, ovarian reserve, and overall health. Some individuals may attempt natural conception after surgery before considering assisted reproductive options such as IVF. It is best to discuss timing and next steps with your fertility specialist.<br></p><h4><strong>What is the difference between egg and embryo freezing, and which is more effective?</strong></h4><p class="">Both egg and embryo freezing are established methods of fertility preservation. The most suitable approach depends on age, ovarian reserve, relationship status, and whether donor sperm is being used.</p><ul data-rte-list="default"><li><p class=""><strong>Egg freezing</strong> preserves flexibility for future use.</p></li><li><p class=""><strong>Embryo freezing</strong> may provide more certainty about outcomes, as fertilisation and early development are confirmed in advance.</p></li></ul><p class="">For embryo transfers, both natural and medicated (hormone replacement) protocols are used. In individuals with conditions such as PCOS or endometriosis, the choice of protocol is individualised to optimise success.</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>How does a low AMH level affect IVF planning?</strong></h4><p class="">A lower AMH (anti-Müllerian hormone) level, such as 1.6 pmol/L, suggests a smaller number of eggs may be collected per cycle. Some specialists recommend creating embryos sooner in this situation, as this may improve the likelihood of successful use in future. Importantly, many people with low AMH still achieve pregnancy with IVF. The optimal pathway will depend on personal goals, partner fertility, and clinical advice.<br></p><h4><strong>What effect does adenomyosis have on implantation?</strong></h4><p class="">Moderate-to-severe adenomyosis may reduce implantation rates in some cases. Pre-treatment strategies prior to IVF or frozen embryo transfer (FET) may help improve outcomes, though this is highly individualised. Fertility specialists will tailor treatment to each person’s clinical profile.<br></p><h4><strong>Why might embryo numbers be low in IVF, even with male factor infertility?</strong></h4><p class="">Even when sperm and eggs are of good quality, not all fertilised eggs develop into viable embryos. For example, if 10 eggs are collected and 8 fertilise, only a proportion may progress to transferable or freezable embryos. This reflects natural biological variation. Egg quality, sperm quality, and laboratory conditions all contribute. Your specialist can review stimulation or laboratory strategies to support the best possible outcomes.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>Can IVF make endometriosis or adenomyosis worse?</strong></h2><p class="">There is no strong evidence that IVF accelerates the progression of endometriosis or adenomyosis. Symptoms may fluctuate during treatment cycles due to hormone exposure, but IVF is routinely and successfully used by people with these conditions. Risks and benefits should always be reviewed with your healthcare team.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>Is it necessary to pursue egg or embryo freezing immediately after excision surgery?</strong></h2><p class="">Fertility preservation can be undertaken either soon after excision surgery or following recovery, with generally similar outcomes. Timing should be guided by both the surgeon and fertility specialist to ensure the best balance between recovery and reproductive goals.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>Should embryos be tested before transfer?</strong></h2><p class="">Preimplantation genetic testing for aneuploidy (PGT-A) is an option, but it is not recommended for everyone. While the test provides genetic information, it does not always predict the true potential of an embryo, and in some cases may reduce the chance of using viable embryos. Whether to proceed with testing should be carefully considered with your fertility specialist, based on age, medical history, and personal priorities.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>Is an AMH of 6 considered low?</strong></h2><p class="">Yes, an AMH level of 6 pmol/L is typically considered in the lower range. This indicates fewer eggs may be retrieved during stimulation, but many individuals with low AMH still achieve pregnancy. AMH is only one measure of fertility potential and must be interpreted alongside age, cycle history, and ultrasound findings.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>What are the chances of pregnancy with PCOS, adenomyosis, and stage 4 endometriosis?</strong></h2><p class="">Although these conditions add complexity, many individuals do achieve pregnancy. PCOS often comes with a higher egg reserve, which may be advantageous in IVF. Endometriosis and adenomyosis may require additional planning, but with tailored treatment strategies, pregnancy remains possible.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>Is there an increased risk of OHSS in people with PCOS and high AMH?</strong></h2><p class="">Yes, people with PCOS and higher AMH levels may be at increased risk of ovarian hyperstimulation syndrome (OHSS). However, modern IVF protocols have significantly reduced this risk through careful dose adjustments, alternative trigger medications, and close monitoring.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h2><strong>Is down-regulation recommended for frozen embryo transfer in adenomyosis?</strong></h2><p class="">Down-regulation protocols are sometimes used to improve implantation rates in people with adenomyosis. However, this is not universally required, and other approaches may also be suitable. Treatment protocols should be tailored to the individual’s history and clinical presentation.</p><p data-rte-preserve-empty="true" class=""></p><p data-rte-preserve-empty="true" class=""></p><h3><strong>Key Takeaway</strong></h3><p class="">Endometriosis, PCOS, and adenomyosis can all influence fertility, but with personalised care, many individuals achieve successful pregnancies. Every pathway is unique, seeking advice from a fertility specialist is essential to making informed choices about treatment and timing.</p><p class=""><br></p>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1d473ce8-e99f-44fe-a10a-d59220c68397/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Fertility and Endometriosis: Community Q&amp;A</media:title></media:content></item><item><title>A Personal Story: Diana</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 09 Dec 2025 23:18:24 +0000</pubDate><link>https://www.qendo.org.au/blog/a-personal-story-diana</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6938ad56e62a5d773e0e6e91</guid><description><![CDATA[Hi I’m Diana and I'm from Melbourne. I live with Endometriosis, one kidney, 
and uterus didelphys (a rare condition where I have two uteruses a 
unicornuate in my case). My first period arrived when I was just 11 years 
old, and it changed the course of my life every cycle. ]]></description><content:encoded><![CDATA[<p class="">Hi I’m Diana and I'm from Melbourne. I live with Endometriosis, one kidney, and uterus didelphys (a rare condition where I have two uteruses a unicornuate in my case). My first period arrived when I was just 11 years old, and it changed the course of my life every cycle.&nbsp;</p><p class="">Growing up in a Muslim community, conversations about periods—especially painful ones—was extremely difficult. Whenever I tried to explain what I was going through, I heard things like:“It’s normal,” “Bleeding a lot is how a period is meant to be,” “Just take Panadol or Nurofen and you’ll be fine.”</p><p class="">But with one kidney, I couldn’t safely take NSAIDs long term, despite being on stronger medications and the pain was far from normal. Period pain that stops you from living your life is not normal. Every cycle, for 1–3 days, I missed out on: School, University classes, Nursing placements, Events and social activities.<br>I spent those days vomiting, curled up with a heat pack, bleeding through my clothes, dizzy, exhausted, and unable to do the basic things I loved.</p><p class=""><br>For years, I convinced myself this must be what periods are: heavy bleeding, vomiting for the first three days, headaches, diarrhoea, and no appetite. I started tracking and journalling my symptoms on and off menstruation for years. Not to forget ovulation pain of menstruation.menstruation<br></p><p class="">My first hospital admission was terrifying. I had: Severe pelvic pain, Continuous vomiting, shivers and sweating, fever and dizziness, Constipation and extremely fatigued. Doctors suspected appendicitis, but it wasn’t.</p><p class="">Heat packs, tea, pons-tan, and super/extra pads became my best friends. When I had pain even without a period, I knew something was still not right so I went back to my doctor. Which eventually led to an answer after a lengthy visit, she referred me to a gynaecologist in the hospital who then addressed the word ENDOMETRIOSIS and LAPAROSCOPY, I was shocked that I needed to be under for something I was thinking it could be ‘just a period’.</p><p class="">October 2018, at the Royal Women’s Hospital, I had a laparoscopy to remove Endometriosis and an endometrioma cyst off my ovary. Thankfully, the surgery went well.</p><p class="">After surgery, I was told I needed to be on contraceptive pills to slow the return of endometriosis, but my body didn’t tolerate them. I&nbsp; eventually stopped them, then saw a private gynaecologist and started Visanne, which I took for a short period of time before meeting my now husband. For a while, I began pelvic physio and using a TENS machine, changed my diet and things improved, but symptoms slowly returned.</p><p class="">Later scans showed I have uterus didelphys—two uteruses and one cervix. Something radiologists usually read about in textbooks and whenever I got scanned they would comment on how they rarely see this and how unique it is.</p><p class="">After having my son (who's nearly 2 via emergency C-section, the pain became unbearable. Postpartum, whilst on my period, I struggled breastfeeding because of the pain I endured. With the support of my husband and close family, I got through the post partum menstruation, but deep down I knew something was wrong.</p><p class="">2025, I had a hysteroscopy and D&amp;C, but it failed because it was presumed one uterine horn was non-communicating and filled with blood. I was referred to the Royal Women’s Hospital again for another laparoscopy. By Easter, my pain became unbearable—sharp and stabbing. I admitted myself to ED. An MRI showed 2 endometriomas had returned to my ovary, and one looked suspicious for cancer. I was devastated.</p><p class="">Professor Catarina Ang, Dr Guy, and Dr Cassi changed my life. They booked me for surgery to remove my left rudimentary horn and left tube. When I woke up, I learned that both ovaries were clear and they also excised more endometriosis.&nbsp;</p><p class="">I am incredibly grateful for the care I received and proud of myself for seeking help when I knew something was wrong. Now I’m not just saying this because I am a nurse but I am a lady who lives with endometriosis. To every girl and woman who is struggling with menstrual pain/ pelvic pain; Your pain is real. Your voice deserves to be heard, Keep advocating for yourself.</p><p class="">Period pain that destroys your quality of life is not “just a period.”</p><p class="">I hope for a future where:</p><p class="">&nbsp;Endometriosis has a cure,</p><p class="">&nbsp;Period pain is taken seriously, and</p><p class="">&nbsp;No one is told to “just deal with it.”</p><p class=""><br>If you are going through this:&nbsp;You are not alone, and you are much stronger than you know.</p>


  















































  

    
  
    

      

      
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        </figure>]]></content:encoded><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1765322333433-78EZ76OUPP0PV9FH65CQ/me.jpg?format=1500w" medium="image" isDefault="true" width="1242" height="2208"><media:title type="plain">A Personal Story: Diana</media:title></media:content></item><item><title>Medically Induced Menopause: What You Need to Know</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 09 Dec 2025 22:50:58 +0000</pubDate><link>https://www.qendo.org.au/blog/medically-induced-menopause-what-you-need-to-know</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6938a753f948bb2bd26061bb</guid><description><![CDATA[Menopause is a natural stage in life, but sometimes it’s medically induced, 
meaning it’s triggered not by age, but by medical treatments. For many 
people with endometriosis or other gynecological conditions, medically 
induced menopause (MIM) can be a part of managing symptoms or disease 
progression. Understanding what this means, what questions to ask your 
healthcare team, and your options can help you navigate this complex 
transition.Menopause is a natural stage in life, but sometimes it’s 
medically induced, meaning it’s triggered not by age, but by medical 
treatments. For many people with endometriosis or other gynecological 
conditions, medically induced menopause (MIM) can be a part of managing 
symptoms or disease progression. Understanding what this means, what 
questions to ask your healthcare team, and your options can help you 
navigate this complex transition.]]></description><content:encoded><![CDATA[<p class=""><strong>By QENDO Operations, Ash</strong></p><p class="">Menopause is a natural stage in life, but sometimes it’s medically induced, meaning it’s triggered not by age, but by medical treatments. For many people with endometriosis or other gynecological conditions, medically induced menopause (MIM) can be a part of managing symptoms or disease progression. Understanding what this means, what questions to ask your healthcare team, and your options can help you navigate this complex transition.</p><h4><strong><br>What is Medically Induced Menopause?</strong></h4><p class="">Medically induced menopause occurs when your ovaries stop producing hormones due to medical interventions. Common causes include:</p><ul data-rte-list="default"><li><p class=""><strong>Surgery:</strong> Removal of ovaries (oophorectomy) or a hysterectomy with ovaries removed.</p></li><li><p class=""><strong>Hormonal treatments:</strong> Medications like GnRH agonists or antagonists used to suppress ovarian function.</p></li><li><p class=""><strong>Cancer treatments:</strong> Chemotherapy or radiation targeting the pelvic area.</p></li></ul><p class="">Unlike natural menopause, MIM can happen suddenly, which means symptoms, hot flushes, night sweats, mood changes, low libido, vaginal dryness, and bone density loss, may appear abruptly and can be more severe.<br></p><h4><strong>What to Ask Your GP or Gynaecologist</strong></h4><p class="">If you’re considering treatments that may induce menopause, it’s important to have an open conversation with your healthcare provider. Some key questions include:</p><ol data-rte-list="default"><li><p class=""><strong>Why is this treatment being recommended for me?</strong></p></li><ul data-rte-list="default"><li><p class="">Understand the benefits versus the risks.</p></li></ul><li><p class=""><strong>What are the short-term and long-term side effects?</strong></p></li><ul data-rte-list="default"><li><p class="">Ask specifically about bone health, cardiovascular health, and mental health.</p></li></ul><li><p class=""><strong>What are my options for symptom management?</strong></p></li><ul data-rte-list="default"><li><p class="">Discuss medications, lifestyle changes, and complementary therapies.</p></li></ul><li><p class=""><strong>Could I delay or avoid medically induced menopause?</strong></p></li><ul data-rte-list="default"><li><p class="">Explore less aggressive treatment options if appropriate.</p></li></ul><li><p class=""><strong>How will this impact my fertility?</strong></p></li><ul data-rte-list="default"><li><p class="">For those planning pregnancy, this is a crucial conversation.</p></li></ul></ol><h4><strong><br>What If I Don’t Want to Go Into Medically Induced Menopause?</strong></h4><p class="">You always have options and choices. If MIM is being suggested:</p><ul data-rte-list="default"><li><p class=""><strong>Discuss alternatives:</strong> Ask if less aggressive hormonal treatments, surgery-sparing procedures, or conservative management could work.</p></li><li><p class=""><strong>Lifestyle strategies:</strong> Diet, exercise, pelvic floor physiotherapy, and stress management can reduce symptoms and disease progression for some people.</p></li><li><p class=""><strong>Second opinion:</strong> Consulting another gynaecologist or endocrinologist can help you feel confident in your choices.</p></li></ul><p class="">Remember, medically induced menopause is not always inevitable, and there are ways to manage symptoms and protect your overall health if it does occur. The most important thing is to be informed, ask questions, and advocate for your body and your choices.<br></p><p class=""><strong>At QENDO, we’re here to help you navigate these conversations with your healthcare team.</strong></p>]]></content:encoded><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1d473ce8-e99f-44fe-a10a-d59220c68397/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">Medically Induced Menopause: What You Need to Know</media:title></media:content></item><item><title>When Menopause is medically induced by endometriosis treatment.</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Tue, 09 Dec 2025 22:45:52 +0000</pubDate><link>https://www.qendo.org.au/blog/when-menopause-is-medically-induced-by-endometriosis-treatment</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6938a5d9f948bb2bd26009a7</guid><description><![CDATA[Medically induced menopause is a powerful tool for managing endometriosis, 
often providing much-needed relief when other treatments fall short. 
However, it's not just about rapid symptom control, it requires thoughtful 
management of menopause symptoms, consideration of long-term health, and 
emotional support. Monitoring, personalised hormonal strategies, shared 
decision-making, and supportive communities are key to navigating this 
transition with resilience and confidence.]]></description><content:encoded><![CDATA[<p class=""><strong>What It Means &amp; Why It Happens<br></strong>Medically induced menopause occurs when menopause is triggered not by age, but through medical intervention, such as surgery or hormonal treatments used to manage endometriosis.<br><br>In severe endometriosis, treatments like GnRH agonists (e.g., Lupron, Zoladex), GnRH antagonists (e.g., elagolix/Orilissa), or oophorectomy directly suppress ovarian estrogen production, effectively putting the body into a menopausal state (Endometriosis Network Canada, Wellness, Readers Digest, Oxford Academic, Banner Health).</p><h4><strong><br>Why It's Used for Endometriosis</strong></h4><p class="">Endometriosis lesions rely heavily on estrogen. Inducing a hypo-estrogenic state can shrink lesions, reduce inflammation, relieve pelvic pain, curtail heavy bleeding. and in many cases, delay more invasive surgeries (Oxford Academic, Wellness, Readers Digest, menopause.org.au).<br></p><h4><strong>What to Expect: The Side Effects of Sudden Menopause</strong></h4><p class="">Just like natural menopause, induced menopause can cause:</p><ul data-rte-list="default"><li><p class="">Hot flushes</p></li><li><p class="">Mood swings, irritability, sleep disturbances</p></li><li><p class="">Vaginal dryness</p></li><li><p class="">Low libido</p></li><li><p class="">Bone density loss</p></li></ul><p class="">Because hormone levels drop abruptly—skipping perimenopause—symptoms can hit harder and require attention (Oxford Academic, ScienceDirect, Verywell Health, menopause.org.au).<br></p><h4><strong>Managing Side Effects: Add-Back Therapy &amp; MHT</strong></h4><p class=""><strong>Add-Back Therapy:</strong> Low-dose estrogen and/or progestogen can be added back to help counter hot flushes and protect bone health, while still controlling endometriosis (Wellness, Readers Digest, Oxford Academic).</p><p class=""><strong>Menopause Hormonal Therapy (MHT):</strong> Particularly in younger individuals experiencing induced menopause, MHT can be essential to safeguard against osteoporosis, cardiovascular disease, and distressing menopausal symptoms, provided there are no contraindications (menopausecare.co.uk, Verywell Health, MDPI).</p><p class="">There are some concerns: potential reactivation of residual lesions or rare malignant transformation of endometriotic tissue with estrogen exposure—so MHT must be carefully tailored and closely monitored (Oxford Academic, Verywell Health).</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>Important Considerations &amp; Long-Term Health</strong></h4><p class=""><strong>Early / Surgical Menopause Risks<br></strong> Research from the University of Queensland indicates that women with endometriosis are seven times more likely to undergo surgical menopause, which typically occurs about 19 months earlier, and their natural menopause may arrive 5 months sooner than average. They’re also at higher risk of premature menopause before 40 (The Guardian, Courier Mail).</p><p class=""><strong>Long-Term Health Follow-Up<br></strong> Early menopause increases the risk of chronic conditions like osteoporosis and cardiovascular issues. Regular check-ups, bone density scans, and preventive health strategies are essential (The Guardian, Courier Mail).</p><p class=""><strong>Shared Decision-Making<br></strong> Clinical guidelines emphasise patient involvement in deciding treatment paths. The balance between managing endometriosis and long-term health (e.g., bone and heart health) must guide choices (MDPI, The Guardian).</p><p data-rte-preserve-empty="true" class=""></p><h4><strong>Endometriosis Beyond Menopause</strong></h4><p class="">Though symptoms often improve after menopause, endometriosis can persist or even develop after menopause. MHT may risk recurrence, and there’s a rare cancer risk in postmenopausal endometriosis. Treatment plans must be cautious and personalised (Verywell Health, MDPI, ScienceDirect).<br></p><h4><strong>Your Support &amp; What You Can Do Now</strong></h4><p class="">If you're navigating endometriosis and considering (or already facing) medically induced menopause:</p><p class=""><strong>Reach Out:</strong> You're not alone, support is available.<br><strong>Connect with Specialists:</strong> Talk openly with your gynecologist, endocrinologist, or menopause specialist about add-back therapy or MHT tailored to your needs.<br><strong>Prioritise Your Health:</strong> Request bone density scans, heart-health monitoring, and preventative care plans.<br><strong>Seek Emotional &amp; Peer Support:</strong> Engage with endometriosis support groups and menopause networks, online or locally—they offer solidarity and great insight.<br><strong>Empower Your Choices:</strong> Ask questions (like “Will this be temporary or permanent?” or “What can we do to protect my bones?”) (Jean Hailes) and stay involved in your health decisions.</p><p data-rte-preserve-empty="true" class=""></p><p class=""><strong>In Summary</strong></p><p class="">Medically induced menopause is a powerful tool for managing endometriosis, often providing much-needed relief when other treatments fall short. However, it's not just about rapid symptom control, it requires thoughtful management of menopause symptoms, consideration of long-term health, and emotional support. Monitoring, personalised hormonal strategies, shared decision-making, and supportive communities are key to navigating this transition with resilience and confidence.</p><p class=""><br></p>]]></content:encoded><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1d473ce8-e99f-44fe-a10a-d59220c68397/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">When Menopause is medically induced by endometriosis treatment.</media:title></media:content></item><item><title>QENDO welcomes legislation to bring in affordable medicine</title><dc:creator>Ash Webb</dc:creator><pubDate>Mon, 28 Jul 2025 01:04:12 +0000</pubDate><link>https://www.qendo.org.au/blog/qendo-welcomes-legislation-to-bring-in-affordable-medicine</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:6886cc108da0de036de64faf</guid><description><![CDATA[<p class=""><strong>MEDIA RELEASE</strong></p><p class=""><strong>Monday 28 July 2025</strong> </p><p class=""><br></p><p class="">This week the Albanese government will be introducing legislation that will see medicine become more affordable from 1 Jan 2026.&nbsp;</p><p class=""><br>The cost of PBS prescriptions for 20 million non-concession card holidays will be reduced making it more affordable for those with chronic conditions endometriosis, adenomyosis, PCOS and persistent pelvic pain.</p><p data-rte-preserve-empty="true" class=""></p><p class="">“This is a vital step toward better health outcomes. Many in our community face barriers to treatment every day – easing the cost of medicine is one meaningful way to help them feel seen, supported, and empowered." Jess Taylor, QENDO CEO</p><p data-rte-preserve-empty="true" class=""></p><p class="">Professor Trent Twomey, National President of the Pharmacy Guild of Australia, lauded the Government’s positive action for patients.</p><p class=""><br>“The Government has made affordable medicine a top priority – bringing in the legislation in its first sitting days” he said. “This is great news for 20 million Australians without a concession card who will save a combined $689 million in the next four years.”</p><p data-rte-preserve-empty="true" class=""></p><p class="">“Community pharmacists see the effects of the cost-of-living crisis on patients, with many struggling to afford their medicine. Skipping medication leads to poorer health outcomes – and making medicine more affordable will help us to create healthier communities.”</p><p class=""><br>The co-payment for PBS prescriptions will be reduced to a maximum of $25 from 1 January 2026, down from $31.60. It follows calls from a coalition of more than 20 health and community organisations urging the Government to act to make medicine affordable including the Pharmacy Guild of Australia and Patients Australia, Asthma Australia, Family Planning Alliance Australia, QENDO and others.</p><p class=""><br></p><p class=""><strong>ENDS</strong></p><p class=""><strong>Pharmacy Guild of Australia Media contact: </strong>Hazel Gidley, 0429 827 830, hazel.gidley@guild.org.au<br></p>


  







  

  



  
    
      

        

        

        
          
            
              
                
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                  <img class="thumb-image" elementtiming="system-gallery-block-grid" data-image="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1753664598188-8D5L58PDHA1M6SRSBBEO/522146029_4056298654636276_2118836432411198043_n.jpg" data-image-dimensions="1232x1943" data-image-focal-point="0.5818212365591398,0.6054421768707483" alt="522146029_4056298654636276_2118836432411198043_n.jpg" data-load="false" data-image-id="6886cc557b0afa431eef84c5" data-type="image" src="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1753664598188-8D5L58PDHA1M6SRSBBEO/522146029_4056298654636276_2118836432411198043_n.jpg?format=1000w" /><br>
                </a>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1753664673870-NBK5MAT2IIN4DDJSU7SA/QENDO+Logomark+Circle_RGB+%282%29.png?format=1500w" medium="image" isDefault="true" width="780" height="764"><media:title type="plain">QENDO welcomes legislation to bring in affordable medicine</media:title></media:content></item><item><title>Mind Over Endo Pain: My Journey from Suffering to Healing by Kayla</title><dc:creator>Ash Webb</dc:creator><pubDate>Fri, 25 Jul 2025 23:19:29 +0000</pubDate><link>https://www.qendo.org.au/blog/mind-over-endo-pain-my-journey-from-suffering-to-healing-by-kayla</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:68840feabe087b6a2e2b9027</guid><description><![CDATA[<p class="">I was sixteen years' old when I first experienced the pain that would largely define my life. What was so strange about it (beyond how truly awful it was) is how quickly I normalised it and pushed it down, despite the grave impacts it was having (and would continue to have) on my physical and mental health.</p><p class="">This was due in large part to doctors (many with the best of intentions) that would say my pain was <em>normal</em>. This led me to gaslight myself even further, thinking I was just overly sensitive to pain levels that surely <em>everyone </em>endures with their period. (Spoiler alert: I was <em>wrong.</em> So very very wrong.)&nbsp;</p><p class="">However, as the illness progressed into early adulthood, it fought even harder for my attention - manifesting in debilitating, chronic fatigue (on top of the pain), which led to numerous tests (including a brain fMRI and sleep test), only to find <em>nothing</em> (oh, except for a depression diagnosis - which, <em>of course </em>I was depressed. I had <em>ENDOMETRIOSIS</em> and <em>no one</em> knew!).&nbsp;</p><p class="">I have no doubt that many of us who suffer can relate to how deeply harrowing this was - not just the pain, fatigue, and anxiety, but also the complete lack of answers.</p><p class="">It wasn’t until I moved to Australia from Canada that I finally met a doctor who not only validated that my pain <em>wasn’t</em> normal, but also mentioned the word ‘endometriosis’ to me. While she offered all of the support possible to manage it without aggressive interventions, we ultimately decided three years later that I needed to undergo the surgery.&nbsp;</p><p class="">This moment did not come easily - I had literally reached the end of my tether with the daily, agonising pain. So much so, that my desperation to get rid of it finally outweighed my immense fear of the surgery.&nbsp;</p><p class=""><br></p><p class=""><strong>The Long And Winding Road To Relief</strong></p><p class="">My job had also become very stressful, leading to an increase in my pain, which led to subsequent increases in my anxiety and stress. It was a truly awful, vicious cycle that so many of those with endo find themselves in. I’d even fashioned a plastic bag next to my bed so I could dry heave/vomit in the middle of the night or early morning because the pain was so intense.</p><p class="">Literally in a brain-fogged cloud of darkness, it was around this time that I discovered one of the most helpful tools on my journey: the QENDO mentorship program.&nbsp;</p><p class="">I was beyond terrified about the surgery (and my general lack of understanding with what it would entail), but having such a wonderfully kind and compassionate mentor to help hold my hand through such a daunting journey meant <em>everything</em> to me. She would become one of the most helpful people in my life during easily one of the hardest times I’ve been through. (To say that I will forever be indebted to her and that program is a massive understatement.)</p><p class="">However, even after navigating the rocky road to find a qualified excision specialist, I was still quite scared about the surgery. A big factor was being reminded by my incredibly kind and compassionate surgeon that even though the surgery will get rid of the endometriosis tissue, it may not in fact, get rid of the <em>pain</em>.&nbsp;</p><p class="">And sadly, he was very very right.</p><p class="">Maybe it was the unbridled hope that I had for relief, but I was certain that the surgery would act as a ‘fix-all’ to what I had been suffering. I sadly discovered, however, that my journey was far from over.&nbsp;</p><p class="">Since the pain had become chronic prior to my surgery, my brain had rewired itself in response to the excruciating pain levels - leaving the pain alarm switch <em>on</em>. My brain was still practicing pain, even in the absence of the endometriosis tissue. This is a very common biopsychosocial response to a body that has been through so much pain trauma (in medical terms, this is known as central sensitisation). Quite simply, my brain had changed.</p><p class="">Six months after my surgery, I was at my absolute lowest - and the dark thoughts that would accompany this would prove to be the most terrifying part of the whole journey to date.</p><p class="">I was doing all of the right things: seeing a qualified dietician to do the low-FODMAP diet; acupuncture; seeing a pelvic floor physiotherapist; talking to my QENDO mentor for support; and even trauma therapy. These all helped tremendously, but I still wasn’t putting a dent in the pain (it also didn’t help that I had nerve damage as well). The next stop for me would either be nerve blocks, another surgery, or chemical menopause.&nbsp;</p><p class="">And while I also had a dedicated, daily meditation practice, I still hadn’t discovered the importance of specific, pain-focused meditation and mindfulness techniques to finally rewire the neuroplastic catastrophe that was my pain brain.</p><p data-rte-preserve-empty="true" class=""></p><p class=""><strong>The Light At The End Of The Tunnel</strong></p><p class="">It was the unwavering support of my amazing medical team, in particular my physiotherapist and psychologist, that helped me understand pain science and the innate abilities I had within to manage my pain and stress triggers.&nbsp;</p><p class="">With this awareness, I was very slowly able to embody effective techniques that could still create safety in my body, even in the face of these threats and extreme pain. I now had the power to trick my brain and influence how it processes pain (even if it was a slow-go at first).&nbsp;</p><p class="">Through the kindness of my physiotherapist, I was able to use clinical, pain-specific meditations for free, which ended up being the lifeline I didn’t even know I needed. However, I noticed a major gap in these science-based tools for those suffering with the unique trauma of an illness that’s as debilitating as endometriosis.&nbsp;</p><p class="">This seemed like a disservice to those suffering, especially considering the unique emotional and physical trauma we’ve endured just by living with the condition. Meditation at its core is meant to be liberation from suffering - and very few people know suffering better than someone with endometriosis.&nbsp;</p><p class="">As a way to stay on top of my practice and help myself heal, I started recording my own pain-focused endometriosis meditations as a hobby, hoping to better embed the tools into my day to day. However, after posting them on Spotify and Insight Timer, I quickly discovered how desperate other people were for this type of intervention.&nbsp;</p><p class="">Creating Mind Over Endo Pain (formerly Mind the Pain) became one of my proudest achievements - helping people suffering around the world to understand the pain science in a simple way, while discovering the magic of mindfulness and meditation for managing their endometriosis pain (especially for those who don’t normally enjoy meditating).&nbsp;</p><p class="">My work as a behavioural research scientist helped me to tailor-make these meditations to ensure they were both helpful and enjoyable - ensuring they would be easy to use and integrate into daily life. Mindfulness can be a massive effort when you’re in so much pain, so I wanted to design meditations that made the practice safe, compassionate, and, even (dare I say) <em>fun.</em>&nbsp;</p><p class="">If you’re reading this, you have very likely experienced a similar (if not worse) journey to this point. Any scepticism you may have about the effectiveness of mindfulness and meditation for something as unrelenting as endometriosis is completely natural, and fully warranted. I was definitely the same way.&nbsp;</p><p class="">But, it’s truly remarkable how effective meditation is for chronic pain relief. Science has proven this time and time again - even for something as heinous and perverse as endometriosis pain.&nbsp;</p><p class="">If you’re at a point in your journey where you’ve tried nearly everything and you’re <em>still</em> not getting relief, don’t give up hope. While meditation is meant to complement (not replace) your other treatments, I have no doubt you’ll almost immediately notice the significant impacts it has on both your pain and mental health. I promise.</p><p data-rte-preserve-empty="true" class=""></p><p class=""><strong>How Mindfulness Can Change Your Endo Pain</strong></p><p class="">Not sure where to begin? That’s totally okay - as a starting point, I’ve outlined some of the key evidence-based mindfulness tools (along with some of the science) to help you easily incorporate it into your day to day.&nbsp;</p><p class=""><strong><em>Deep Breathing</em></strong></p><p class="">Endometriosis pain almost always causes nervous system dysfunction - keeping us hyper alter and hyper vigilant to pain, leading to us to stay in our fight or flight response.&nbsp;</p><p class="">As mentioned, the chronic nature of the pain leads to central sensitisation, causing our body to always be alert to pain and its consequences. This creates pain anxiety and pain catastrophising, often making us feel helpless and hopeless.&nbsp;</p><p class="">The good news? We can trick the brain into thinking we’re safe and allow it to reduce its pain signals, making us feel <em>some</em> control with something so truly debilitating.&nbsp;</p><p class="">Deep belly breathing turns on the safety switch in the brain and body by activating our vagus nerve - the longest nerve in the body that helps regulate our breathing and heart rate (amongst many other things).&nbsp;</p><p class="">Just by breathing deeply, we trigger the vagus nerve to take us out of our sympathetic nervous system (fight or flight, and freeze) and regulate us into our parasympathetic nervous system (rest and digest). Turns out the brain and body are super impressionable, we just need to know the tools to use.&nbsp;</p><p class="">When a flare-up hits (or even if you’re comfortable), do three to five deep, intentional breaths using the Physiological Sigh Technique:&nbsp;</p><ul data-rte-list="default"><li><p class="">Begin by breathing deeply into the belly through your nose (inflating the belly as your breath in);</p></li><li><p class="">Then do an extra quick inhale through the nose;&nbsp;</p></li><li><p class="">And then let out a long sigh (ensuring the exhale is longer than the inhale).&nbsp;</p></li><li><p class="">Be sure to breathe deeply into any pain sensations and watch as the breath wraps around them, loosening the tension.&nbsp;</p></li><li><p class="">Stay with your breath and repeat at least five times.</p></li></ul><p class=""><br><strong><em>Non-judgmental Awareness</em></strong></p><p class="">At the heart of meditation is the act of non-judgmental awareness, which stops us from resisting and fearing the pain - allowing us to see it as neither good or bad.</p><p class="">&nbsp;This can be extremely hard to cultivate some days (especially when living with chronic, debilitating pain, like endo). However, there are methods to make it easier.&nbsp;</p><p class="">There are two ways to go about this: the first is to tune <em>out </em>of the sensations and witness places of safety within the body where there isn’t pain, or where there’s less pain (such as your feet, hands, top of head, etc). Breathe deeply while tuning into these parts and allow your brain to notice what safety feels like.</p><p class="">The other way to exercise non-judgmental awareness is to tune <em>into</em> the pain with kindness and without judgement or resistance (which can be extremely hard to do, so be gentle with yourself).&nbsp;</p><p class="">To do this, begin to witness the sensations (while breathing deeply) and ask yourself questions like:&nbsp;</p><ul data-rte-list="default"><li><p class="">Where is the sensation?&nbsp;</p></li><li><p class="">Is it moving, or still?&nbsp;</p></li><li><p class="">Is there a colour to it?&nbsp;</p></li><li><p class="">Is there a shape to it?&nbsp;</p></li><li><p class="">Is it deep, or near the surface?&nbsp;</p></li></ul><p class="">Try also picturing it as a letter or animal - anything to neutralise how the brain views it.&nbsp;</p><p class="">Be curious and compassionate to yourself - it isn’t easy, but with time, you’ll feel more in control over the sensations and how you witness and react to them (even the most painful ones).&nbsp;</p><p class="">It can be helpful to note that tuning out of the pain is usually seen as the easiest way to gently tune into the body, before fully tuning into the pain.&nbsp;</p><p class=""><br></p><p class=""><strong><em>Self-compassion &amp; Validation</em></strong></p><p class="">Self-compassion isn’t just ‘woo woo’ junk science, it’s research-backed and incredibly effective for pain relief.&nbsp;</p><p class="">Recognising the immense unfairness of living with this illness, on top of everything else life is throwing at you is scientifically shown to help reduce the stress and discomfort of endometriosis.&nbsp;</p><p class="">This is due in large part to the psychological impacts of the illness, including post-traumatic stress, anxiety, and depression, which can gravely impact how we’re managing the physical symptoms. Emotional health is always implicated in physical health - and in pain.&nbsp;</p><p class="">While managing the psychological impacts of the illness can be incredibly daunting at times, by exercising self-compassion, we allow ourselves to be seen, heard and validated - even if just by ourselves.&nbsp;</p><p class="">In moments of extreme pain, simply turn towards yourself, give yourself a hug and rub your arms up and down. This somatic mind/body technique helps release built-up tension and emotional stress that’s caught within the body.&nbsp;</p><p class="">Compassionate attention and validation also activate the mammalian care system, releasing neurochemicals into the body, like oxytocin and endorphins - the body’s natural pain killers. This is crucial for those with endometriosis, as these practices can drastically reduce pain perception. Even something as simple as a doctor acknowledging your pain can provide almost instant relief. And just doing it for yourself can have the same impacts.</p><p class="">Take it a step further by engaging in ‘crying sessions’. When we’re in pain, we can often suppress our emotions in an effort to not be a burden. You are not a burden and never were - and you deserve to have that emotional release. Make time for yourself to privately cry and grieve about what this illness has done. Witness, support and validate yourself. It’s not just healing - it’s lifesaving.&nbsp;</p><p class=""><br></p><p class=""><strong><em>Visualisation</em></strong></p><p class="">Perhaps one of the most powerful tools for rewiring how our brain processes pain is visualisation. Pain processing occurs through a vast network of brain areas, including parts of the brain responsible for visualisation.&nbsp;</p><p class="">Therefore, when we engage in active pain-management imagery (like a bright white light; colours; or even a peaceful scene), our brain can’t properly process the pain - thereby allowing us to modulate how it’s felt and experienced.</p><p class="">What’s even better about it is that visualisation creates competitive plasticity in the brain, hindering chronic pain neurons from firing together. Instead, these neurones become repurposed for visualisation, allowing them to be used for other means, instead of pain.&nbsp;</p><p class="">Over time, our chronic pain brain that developed as result of endometriosis begins to rewire back to normal. This reduces the likelihood that non-tissue triggers (like stress, a bad day, fight with a friend) will be an instigator for aggressive pain, since our brain is no longer wired for it as a default response.</p><p class=""><br></p><p class=""><strong>A Way Forward</strong></p><p class="">The above mentioned mindfulness and meditation techniques are just the beginning.&nbsp;</p><p class="">Every person with endometriosis can benefit from these types of tools, making them incredibly crucial to help us reclaim some joy, calm and peace amongst the chaos of the illness - while also rewiring how our brain interprets and processes the excruciating pain.&nbsp;</p><p class="">Even if you’ve had a successful surgery (or other interventions) and haven’t found relief, don’t lose hope. Mindfulness and meditation are almost always the last stop on the train for people who have exhausted all other bio-medical interventions. The sad thing is, it’s usually the <em>key</em> for most people to finally find sustainable relief.&nbsp;</p><p class="">It’s by no means an overnight change, but with time, patience, kindness and consistency, you can start living your best life now matter what endometriosis throws at you. I promise. It’s science.&nbsp;</p><p class="">Want to see how mindfulness and meditation can change your life? Check out <strong>Mind Over Endo Pain Endometriosis Meditations</strong> in the app store, on Insight Timer, or wherever you get your podcasts. You can also follow me on instagram <strong>@mind.over.endo.pain</strong> for more tools and tips; or visit <a href="http://www.mindoverendopain.com"><span>www.mindoverendopain.com</span></a><strong> </strong>for additional resources.&nbsp;</p><p class="">You’ve got this, warrior.</p><p class=""><br></p><p class=""><em>*Disclaimer: While mindfulness and meditation can be incredibly effective tools for pain relief and overall wellbeing, they are not a substitute for medical advice. Always listen to your body, and if you notice any changes or have concerns about your symptoms, please consult your doctor or healthcare provider.</em></p><p class=""><em>Additionally, if you suffer with psychosis or severe clinical depression, please consult your health care provider for assistance when undertaking meditation.</em></p>


  















































  

    

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      </figure>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1753485611094-E6FL4MMZIGO6ICGA2OJ1/0318+%282%29.png?format=1500w" medium="image" isDefault="true" width="1500" height="1000"><media:title type="plain">Mind Over Endo Pain: My Journey from Suffering to Healing by Kayla</media:title></media:content></item><item><title>Speak to a psychologist via Telehealth at no cost via Rural Health Connect</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Wed, 18 Jun 2025 00:02:33 +0000</pubDate><link>https://www.qendo.org.au/blog/ruralhealthconnect</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:685201e6c880f0680eb74616</guid><description><![CDATA[<p class=""><strong><em>In Partnership with Rural Health Connect</em></strong></p><p class="">Rural Health Connect is a telehealth platform and social enterprise that links people across regional, rural and remote Australia with psychologist over video or phone sessions. With more than 400 psychologists registered covering a broad range of interest areas, backgrounds and therapy types, you can choose the psychologist that is right for you. Sessions are bulk billed or low cost for anyone that needs it. We exist to improve access to mental health services in rural Australia and to link people to the right practitioner for them. There is no waiting period to seek this support.</p><p data-rte-preserve-empty="true" class=""></p><p class="">To access these services at bulk billed rates or with the rebate, you need a Mental Health Treatment Plan (MHTP) from a GP. You can show your GP this flyer to give them the information they need <a href="https://ruralhealthconnect.com.au/assets/RHC-client-flyer-V06.pdf"><span>https://ruralhealthconnect.com.au/assets/RHC-client-flyer-V06.pdf</span></a> or if you are unable to see a GP you can book in with one of our bulk billed telehealth GPs (for MHTPs only) <a href="https://ruralhealthconnect.com.au/general-practitioner/"><span>https://ruralhealthconnect.com.au/general-practitioner/</span></a>&nbsp;</p><p class="">Please visit <a href="https://ruralhealthconnect.com.au/"><span>https://ruralhealthconnect.com.au/</span></a> for more information.</p><p data-rte-preserve-empty="true" class=""></p><p class=""><strong>Support for Families Impacted by Pregnancy or Infant Loss</strong></p><p class="">Mothers, partners and families impacted by pregnancy loss or the loss of a baby can now also access bulk billed telehealth psychology sessions via Rural Health Connect. Covering early-stage miscarriage, stillbirth, late-term losses, termination or neonatal death. The program, supported by the Australian Government, is open to anyone affected by perinatal loss. There is no time limit on accessing support, ensuring that individuals can seek help whenever they need it. Our psychologists have completed specialised training in perinatal loss and cultural awareness. Please show this flyer to your GP <a href="https://ruralhealthconnect.com.au/assets/RHC-Perinatal-Loss-Information-V03.pdf"><span>https://ruralhealthconnect.com.au/assets/RHC-Perinatal-Loss-Information-V03.pdf</span></a> to access the program or if needed you can book in with one of our GPs.</p><p class="">To learn more please visit <a href="https://ruralhealthconnect.com.au/perinatal-loss/"><span>https://ruralhealthconnect.com.au/perinatal-loss/</span></a></p><p class="">&nbsp;If you or a family member is struggling, you are not alone. Affordable or free of charge support is available, whenever you are ready.</p><p data-rte-preserve-empty="true" class=""></p>


  







  

  



  
    
      

        

        

        
          
            
              
                
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                  <img class="thumb-image" elementtiming="system-gallery-block-grid" data-image="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1750215264783-C5B9F3IF78KKA5NOZNZB/RHC.jpg" data-image-dimensions="1100x865" data-image-focal-point="0.5,0.5" alt="RHC.jpg" data-load="false" data-image-id="68522a60427ad3583ea4a3d8" data-type="image" src="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1750215264783-C5B9F3IF78KKA5NOZNZB/RHC.jpg?format=1000w" /><br>
                </a>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1750205090820-AR1OGTHQ1T8HEDG1C9YA/Perinatal+Grief+and+Loss+Photo.png?format=1500w" medium="image" isDefault="true" width="1500" height="978"><media:title type="plain">Speak to a psychologist via Telehealth at no cost via Rural Health Connect</media:title></media:content></item><item><title>Raising Awareness and Driving Change – One Conversation at a Time</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Thu, 12 Jun 2025 02:17:29 +0000</pubDate><link>https://www.qendo.org.au/blog/raising-awareness-and-driving-change-one-conversation-at-a-time</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:684a389929e7691134d924f4</guid><description><![CDATA[<p class="">Workplaces have an extraordinary opportunity to be agents of change when it comes to endometriosis and chronic pelvic pain. By increasing awareness, they not only improve understanding but also help dismantle stigma, influence policy, foster empathy, and build supportive cultures.</p><h3><strong>Why Awareness Matters</strong></h3><p class="">Endometriosis affects 1 in 7 people assigned female at birth, many of whom suffer in silence. With delays in diagnosis averaging 6 to 8 years, workplaces can play a vital role in recognising signs and reducing isolation.</p><p class="">When awareness is low, people may:</p><ul data-rte-list="default"><li><p class="">Mask their pain or symptoms out of fear of being disbelieved</p></li><li><p class="">Avoid asking for flexible work arrangements or adjustments</p></li><li><p class="">Experience burnout, presenteeism, or eventually leave the workforce</p></li></ul><p class="">But when awareness is high, people are more likely to:</p><ul data-rte-list="default"><li><p class="">Access the support and resources they need</p></li><li><p class="">Share their needs confidently with managers and colleagues</p></li><li><p class="">Thrive in their roles, knowing their health is not a barrier to belonging</p></li></ul><h3><strong>How to Raise Awareness in Your Workplace</strong></h3><p class="">Raising awareness doesn’t require massive budgets or top-down campaigns. Sometimes the most impactful actions start with grassroots conversations or small cultural shifts.</p><p class="">Here are proven ways to begin:</p><p class=""><strong>Host an Endo-Friendly Morning Tea</strong> Invite your team to a QENDO workplace awareness session. These events combine education, lived experience storytelling, and Q&amp;A time.</p><p class=""><strong>Share Resources</strong> Use posters, the "Know the Signs" desk card, and stories in your internal newsletter to start meaningful conversations.</p><p class=""><strong>Nominate a Workplace Ally</strong> Identify someone in your branch who can be a point of contact for support, training, and resource-sharing. Allies can also be trained by QENDO.</p><p class=""><strong>Promote the ManageEndo Online Program</strong> Encourage staff to explore QENDO’s ManageEndo platform—covering 30+ topics with expert content designed to educate, empower, and guide self-management.</p><p class=""><strong>Integrate Awareness into Calendar Events</strong> Leverage key dates such as International Women’s Day, Endometriosis Awareness Month (March), or Mental Health Week to highlight endometriosis as part of broader workplace wellbeing.</p><h3><strong>Sustaining Change Beyond a Single Event</strong></h3><p class="">Awareness should be embedded in everyday workplace culture—not limited to a once-a-year campaign. Here’s how to make it stick:</p><p class=""><strong>Review Policies Annually</strong> Apply a reproductive health lens to leave, flexibility, and adjustment policies. Ask: Are our policies inclusive? Do they mention conditions like endometriosis?</p><p class=""><strong>Measure and Report Participation</strong> Track attendance at training sessions, pulse surveys on staff inclusion, and feedback from staff with chronic conditions.</p><p class=""><strong>Encourage Feedback and Storytelling</strong> Invite lived experience perspectives into strategy conversations. Anonymous submissions, case studies, or video stories can be powerful and safe.</p><h3><strong>Final Call to Action</strong></h3><p class="">If you know 7 women, you know someone with endometriosis.</p><p class="">Ask yourself:</p><ul data-rte-list="default"><li><p class="">Would they feel safe to disclose?</p></li><li><p class="">Would their manager recognise the signs?</p></li><li><p class="">Would the team respond with empathy and action?</p></li></ul><p class="">You don’t need to be a doctor or HR expert to make a difference. You just need to be willing to listen, learn, and lead.</p><p class="">📍 Visit <a href="https://www.qendo.org.au/resources"><span>www.qendo.org.au/resources</span></a> for free downloadable tools.&nbsp;</p><p class="">📍 Refer to QENDO’s Nurse Navigator and Helpline for personalised guidance.&nbsp;</p><p class="">📍 Use the Fair Work Ombudsman site to stay informed on workplace rights.</p><p class="">Let’s make every workplace an endo-informed workplace—one action, one ally, one conversation at a time.</p><p data-rte-preserve-empty="true" class=""></p>]]></description><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/ee3fc932-e712-456d-a55c-07652e1ba5a1/Print_250524_QENDO_WCE2025_145.jpg?format=1500w" medium="image" isDefault="true" width="1500" height="1000"><media:title type="plain">Raising Awareness and Driving Change – One Conversation at a Time</media:title></media:content></item><item><title>Working Flexibly with Endo – Rethinking What Productivity Looks Like</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Thu, 12 Jun 2025 02:14:41 +0000</pubDate><link>https://www.qendo.org.au/blog/working-flexibly-with-endo-rethinking-what-productivity-looks-like</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:684a37f935aa8f31d0903958</guid><description><![CDATA[<p class=""><strong>QENDO Blog: Working Flexibly with Endo – Rethinking What Productivity Looks Like</strong></p><p class="">Flexibility is often spoken about as a perk. But for people managing endometriosis, it’s far more than that it’s a health necessity. When workplaces allow for flexible arrangements, they not only support an individual’s ability to work, they protect their dignity, autonomy, and overall wellbeing.</p><h3><strong>Why Flexibility Matters</strong></h3><p class="">Endometriosis isn’t a 9-to-5 condition. It flares without notice, varies in intensity, and often brings fatigue, nausea, or the need for recovery after treatment. Traditional, rigid work hours and environments simply don’t accommodate this reality.</p><p class="">Flexibility makes it possible for staff to stay employed, engaged, and well without having to “push through” or hide what they’re experiencing.</p><h3><strong>Types of Flexibility That Make a Difference</strong></h3><ul data-rte-list="default"><li><p class=""><strong>Remote Work</strong>: Allows employees to manage symptoms at home, reduce travel time, and rest between meetings. Particularly helpful during flare-ups, recovery periods, or after procedures.</p></li><li><p class=""><strong>Adjusted Start/Finish Times</strong>: Morning symptoms such as nausea, cramping, or fatigue can be intense. A 10 a.m. start might make the difference between attending and taking leave.</p></li><li><p class=""><strong>Split Shifts or Part Days</strong>: Staff may work better with breaks between tasks or prefer working evenings if mornings are difficult.</p></li><li><p class=""><strong>Task Swapping</strong>: On high-pain days, shifting from externally-facing meetings to admin, research, or asynchronous work can help maintain contribution without additional strain.</p></li></ul><h3><strong>Building Flexible Arrangements: How to Start</strong></h3><p class="">Creating flexible plans doesn’t need to be complex. But it does need to be intentional.</p><p class=""><strong>Start Early</strong>: Don’t wait until a crisis. Talk about flexibility as soon as symptoms or patterns arise.</p><p class=""><strong>Use Your Workplace’s Policy</strong>: This outlines formal entitlements and processes for requesting flexibility.</p><p class=""><strong>Keep it Under Review</strong>: Endometriosis symptoms can change. What works now may not work in three months. Schedule regular check-ins to adjust.</p><p class=""><strong>Document Agreements</strong>: Use QENDO’s <em>Workplace Adjustment Reporting Tool</em> to keep track of agreed changes and make it easier to revisit them later.</p><h3><strong>What Managers Can Do</strong></h3><p class="">Flexibility requires leadership that understands this isn’t about lowering standards it’s about meeting people where they are so they can continue to perform.</p><p class=""><strong>Say Yes Where You Can</strong> Often, flexible arrangements are easier than they seem. If a request is reasonable and doesn’t disrupt core outcomes, support it.</p><p class=""><strong>Offer Alternatives</strong> If a request isn’t feasible, suggest an adjusted version that still meets the employee’s health needs and your team’s goals.</p><p class=""><strong>Normalise, Don’t Stigmatise</strong> Make it clear that flexibility is part of your leadership toolkit not an exception or “special treatment.”</p><p class=""><strong>Don’t Play Favourites</strong> Flexibility should be applied equitably, not just for high performers. Everyone deserves a safe work environment.</p><h3><strong>The Bigger Picture</strong></h3><p class="">Flexible work arrangements don’t just help the person with endo. They:</p><ul data-rte-list="default"><li><p class="">Reduce burnout across the team</p></li><li><p class="">Encourage open communication about health</p></li><li><p class="">Improve staff retention</p></li><li><p class="">Build more resilient, responsive workplace cultures</p></li></ul><p class="">When employees can do their best work on their best terms, everyone wins.</p><h3><strong>QENDO Can Help</strong></h3><ul data-rte-list="default"><li><p class=""><strong>ManageEndo Online Program</strong> – Over 30 evidence-based modules for managing symptoms</p></li><li><p class=""><strong>QENDO Nurse Navigator</strong> – Personalised support for adjusting work around symptoms</p></li><li><p class=""><strong>Workplace Training Sessions</strong> – Tailored sessions for managers, teams, and leadership</p></li><li><p class=""><strong>Resources &amp; Templates</strong> – Reporting tools, adjustment checklists, and conversation guides</p></li></ul><p class="">📣 <strong>Final Reminder:</strong> If you know 7 women+, you know someone with endometriosis. Would you recognise the signs? Would you offer flexibility without hesitation?</p><p class="">Let’s build workplaces that say yes—early, often, and without stigma.</p><p class="">👉 Learn more at <a href="https://www.qendo.org.au/workplace"><span>www.qendo.org.au/work</span></a></p>]]></description><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/b28ba98a-aef4-4913-9602-0d65055fad8a/qendo_064%2B%25281%2529.jpg?format=1500w" medium="image" isDefault="true" width="1500" height="1000"><media:title type="plain">Working Flexibly with Endo – Rethinking What Productivity Looks Like</media:title></media:content></item><item><title>Conversations with Supervisors – A Guide for Employees and Managers</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Thu, 12 Jun 2025 01:55:22 +0000</pubDate><link>https://www.qendo.org.au/blog/conversations-with-supervisors-a-guide-for-employees-and-managers</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:684a334f5a15685a99afab9f</guid><description><![CDATA[<p class="">Talking to a supervisor about endometriosis can be one of the most challenging but powerful steps toward feeling supported in the workplace. Whether you're newly diagnosed or navigating ongoing symptoms, it’s common to feel nervous, vulnerable, or unsure of how to start the conversation.</p><p class="">But you’re not alone. And with the right tools and preparation, these conversations can build understanding, reduce stigma, and open doors to reasonable adjustments that allow you to thrive.</p><h3><strong>Why This Conversation Matters</strong></h3><p class="">Endometriosis can be invisible but relentless. Flare-ups, fatigue, or the side effects of treatment can all affect your focus, energy, and even your confidence. Yet without open conversations, managers may not realise what you’re going through or how they can help.</p><p class="">Opening up isn’t about oversharing it’s about co-creating a work environment where you can be productive without pushing through pain or hiding your reality.</p><h3><strong>When to Have the Conversation</strong></h3><p class="">Timing matters, but don’t wait for a crisis. Good moments to initiate include:</p><ul data-rte-list="default"><li><p class="">When symptoms begin to affect your energy, focus, or attendance</p></li><li><p class="">When you’re considering adjustments (e.g., flexible hours, WFH, break options)</p></li><li><p class="">During return-to-work planning after surgery, hospitalisation, or leave</p></li><li><p class="">As part of broader check-ins on wellbeing, performance, or goal setting</p></li></ul><h3><strong>Preparing for the Conversation</strong></h3><p class="">Preparation can help you feel more grounded and reduce anxiety. Here’s how:</p><p class=""><strong>Clarify Your Needs</strong> Think about what would help you stay well and productive. This might be flexible start times, space for a heat pack, camera-off meeting days, or time off for appointments.</p><p class=""><strong>Decide What to Share</strong> You are not required to disclose a diagnosis. You can focus on symptoms or needs (e.g., “I manage a chronic condition that sometimes affects my energy.”)</p><p class=""><strong>Use Tools Like QENDO’s Conversation Support Sheet</strong> This offers sample scripts and phrases for both employees and managers. Practise or write your key points down.</p><p class=""><strong>Bring a Support Person If Needed</strong> You can ask a trusted colleague, HR representative, or even your union to be present for the conversation. Their role is to listen and support, not to speak on your behalf.</p><p class=""><strong>Example Opener</strong>: “I’ve been managing a chronic condition that sometimes impacts my energy and focus. I’d like to talk about a few ways we might be able to work around this together.”</p><h3><strong>What Managers Can Do Well</strong></h3><p class="">Managers don’t need to be medical experts but how they show up in this moment can define the workplace culture.</p><p class=""><strong>Manager Do’s</strong></p><ul data-rte-list="default"><li><p class="">Allow adequate time and ensure privacy for the conversation</p></li><li><p class="">Respond with curiosity: “How can we best support you?”</p></li><li><p class="">Document key points and next steps with the employee’s consent</p></li><li><p class="">Check back in after any adjustment or agreed change</p></li><li><p class="">Offer information about internal HR processes, QENDO resources, or available leave options</p></li></ul><p class=""><strong>Manager Don’ts</strong></p><ul data-rte-list="default"><li><p class="">Dismiss symptoms or compare them to “normal period pain”</p></li><li><p class="">Pressure the employee to share more than they’re comfortable with</p></li><li><p class="">Delay action without follow-up or support</p></li><li><p class="">Require unnecessary medical documentation</p></li><li><p class="">Avoid the conversation because it feels uncomfortable</p></li></ul><h3><strong>Tips for Ongoing Conversations</strong></h3><p class="">Support is not a one-time chat. Make space to revisit the conversation as needs change:</p><ul data-rte-list="default"><li><p class="">“How are things feeling with the new arrangement?”</p></li><li><p class="">“Are your current adjustments still working for you?”</p></li><li><p class="">“Would it be helpful to review anything with HR or QENDO?”</p></li></ul><p class="">These check-ins show care and accountability.</p><h3><strong>Why This Helps Everyone</strong></h3><p class="">When people feel safe to speak about their health, everyone benefits. Team morale improves, absenteeism drops, and trust grows. And for the person managing endometriosis it can mean the difference between surviving work and thriving in it.</p><h3><strong>QENDO Resources for Support</strong></h3><ul data-rte-list="default"><li><p class=""><strong>Conversation Support Sheet</strong> – Sample scripts and tips</p></li><li><p class=""><strong>QENDO Nurse Navigator</strong> – For 1:1 non-clinical support and adjustment planning</p></li><li><p class=""><strong>Workplace Rights Guide</strong> – <a href="https://www.qendo.org.au/resources"><span>www.qendo.org.au/resources</span></a></p></li><li><p class=""><strong>Support Services</strong> – Confidential helpline and peer mentoring</p></li></ul><p class=""><strong>Final Tip:</strong> If you’re a manager, ask this simple question: “What does support look like for you right now?”</p><p class="">If you’re an employee, remember this: You don’t have to prove your pain to deserve support. Start where you are. Bring what you can. QENDO is here to help you every step of the way.</p><p class="">👉 Learn more at www.qendo.org.au/work</p>]]></description><media:content type="image/png" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/5775b994-4e80-4c2f-a909-3509b77dcfb8/Screenshot+2025-06-10+at+8.23.26+pm.png?format=1500w" medium="image" isDefault="true" width="1500" height="1066"><media:title type="plain">Conversations with Supervisors – A Guide for Employees and Managers</media:title></media:content></item><item><title>Receiving Support from Managers and Teams – Why It Matters More Than You Think</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Thu, 12 Jun 2025 01:39:47 +0000</pubDate><link>https://www.qendo.org.au/blog/receiving-support-from-managers-and-teams-why-it-matters-more-than-you-think</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:684a2fb6c60ec1169530349c</guid><description><![CDATA[<p class="">For the 1 in 7 people assigned female at birth in Australia living with endometriosis, work can be a double-edged sword. On one side, employment provides financial security, purpose, and connection. On the other, it can be a place where symptoms are hidden, pain is minimised, and support is hard to come by. But it doesn’t have to be that way.</p><p class="">When leaders and teams understand how to show up for people managing chronic, invisible conditions like endometriosis, the impact can be life-changing. It’s not about grand gestures it’s about creating psychological safety, listening deeply, and making small but consistent changes that add up.</p><h3><strong>Endo in the Workplace: A Daily Reality</strong></h3><p class="">Endometriosis isn’t just “bad period pain.” It’s a whole-body condition that can cause chronic pelvic pain, fatigue, nausea, bowel and bladder problems, and mental health impacts. These symptoms can flare unpredictably, making traditional work models difficult to manage.</p><p class="">Imagine having a high-stakes meeting on the same day you wake up with stabbing pain or trying to contribute to a team workshop while battling brain fog. That’s the daily tension many workers with endo navigate. And because the condition is often misunderstood or unseen, they may do so in silence.</p><h3><strong>Managers: The Front Line of Support</strong></h3><p class="">Whether you’re managing a team of two or two hundred, your response to an employee’s disclosure of endo or their need for adjustments sets the tone. You don’t need to be an expert. But you do need to be present, open, and informed.</p><p class="">Here’s what good support looks like:</p><ul data-rte-list="default"><li><p class=""><strong>Proactive check-ins</strong> that ask about capacity and wellbeing not just tasks.</p></li><li><p class=""><strong>Flexible arrangements</strong> that respond to individual needs: working from home, modified hours, or reduced workloads during flares.</p></li><li><p class=""><strong>No judgement</strong> when an employee needs to step back, reschedule, or use leave.</p></li><li><p class=""><strong>Routine normalisation</strong> of workplace adjustments—don’t wait for someone to advocate alone.</p></li></ul><p class="">As Kim Scott puts it in <em>Radical Candor</em>, effective leaders “care personally and challenge directly.” That means making space for your team to be human while still aiming for excellence. Ask, “What does a great week at work look like for you right now?” It’s a small question that invites real conversation.</p><h3><strong>Peers and Teams: You Play a Role Too</strong></h3><p class="">Support doesn’t just come from managers. Colleagues can be powerful allies.</p><p class="">Here’s how:</p><ul data-rte-list="default"><li><p class="">Don’t make assumptions or jokes about “period pain.” Endometriosis is serious, not trivial.</p></li><li><p class="">Step in with practical help share meeting notes, offer flexibility, ask what’s needed.</p></li><li><p class="">Avoid comparing symptoms (“I get painful periods too”) each experience is different.</p></li><li><p class="">Speak up when you hear dismissive comments culture is shaped by what we tolerate.</p></li></ul><p class="">Creating a psychologically safe team doesn’t mean everyone shares everything. It means everyone knows they can share something, and that they’ll be heard, believed, and supported.</p><h3><strong>What Support Can Unlock</strong></h3><p class="">When people with endometriosis feel safe at work, they’re more likely to stay, grow, and thrive. They take less unplanned leave, contribute more fully, and bring rich lived experience to the team.</p><p class="">In contrast, lack of support leads to presenteeism, disengagement, burnout, and resignation. That’s not just a personal loss it’s an organisational one.</p><h3><strong>Tools and Resources to Help You Act</strong></h3><ul data-rte-list="default"><li><p class=""><strong>QENDO’s Workplace Guide</strong> – <a href="https://www.qendo.org.au/resources"><span>www.qendo.org.au/resources</span></a></p></li><li><p class=""><strong>QENDO Nurse Navigator Service</strong> – Free non-clinical support for people managing endo and pelvic pain</p></li><li><p class=""><strong>Conversation Support Sheet</strong> – Sample scripts and tips for workplace discussions</p></li><li><p class=""><strong>Fair Work Resources</strong> – Learn your obligations and employee rights: <a href="https://www.fairwork.gov.au/"><span>www.fairwork.gov.au</span></a></p></li></ul><h3><strong>Let’s Build Better Workplaces Together</strong></h3><p class="">Endometriosis is common. And yet, stigma, silence, and system gaps remain.</p><p class="">If you’ve read this and thought, “I don’t know if anyone on my team has endo”—chances are, they do. They just haven’t felt safe enough to say so.</p><p class="">Support starts with listening. It grows with action. And it flourishes in workplaces that prioritise care, flexibility, and inclusion not just policies.</p><p class="">Let QENDO support your team. Book a workplace education session, download our free tools, or reach out to talk about how we can help you make your organisation truly endo-friendly.</p><p class="">👉 Learn more at <a href="https://www.qendo.org.au/workplaces" target="_blank"><span><strong>www.qendo.org.au/workplaces</strong></span></a></p><p data-rte-preserve-empty="true" class=""></p>]]></description><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/05c6933d-c858-4df5-9671-31aa1a8416b6/qendo_079+%283%29.jpg?format=1500w" medium="image" isDefault="true" width="1500" height="1072"><media:title type="plain">Receiving Support from Managers and Teams – Why It Matters More Than You Think</media:title></media:content></item><item><title>No Clock-Out Time for Endometriosis: QENDO's Campaign to Support Australians 24/7</title><dc:creator>QENDO QENDO</dc:creator><pubDate>Thu, 29 May 2025 00:19:58 +0000</pubDate><link>https://www.qendo.org.au/blog/ambassadorannouncement</link><guid isPermaLink="false">5d4d4ff6d36bb3000114e21b:5d4eaf53ff3c4000016a525c:68379790d27cc37bff787ee6</guid><description><![CDATA[<h2><strong>Endometriosis doesn't clock off at 5pm. Neither does QENDO. Donate before June 30 to support Australians suffering with endometriosis, 24/7.</strong></h2><p class="">When Sarah Mitchell's endometriosis pain struck during an important client meeting, she had two choices: power through in agony or excuse herself and risk losing a promotion opportunity. Again.</p><p class="">Sarah isn't alone. One in three Australians with endometriosis have been passed over for a promotion due to their condition. One in six have lost their jobs entirely, and half report that workplace inflexibility significantly impacts their ability to manage their health while maintaining their career.</p><p class="">This is why QENDO, Australia's national organisation supporting those affected by endometriosis and related conditions, is launching their ENDO-Financial Year campaign today. Running until June 30, the campaign aims to fund critical support services while introducing workplaces to their game-changing EndoAware Workplace Programs.</p><p class="">"When pain doesn't respect office hours, support shouldn't either," says Jess Taylor, QENDO’s CEO. "At QENDO, we're committed to being there whenever Australians need us - at 3pm or 3am."</p><p data-rte-preserve-empty="true" class=""></p><p class="">The campaign also marks the announcement of QENDO's newest ambassador, beloved Australian comedian and writer Tanya Hennessy.</p><p class=""><strong>"Endo is like that uninvited guest who shows up early, eats all your snacks, and then refuses to leave. It's exhausting, unpredictable, and often invisible to everyone else. Partnering with QENDO feels like having someone who gets it, who shows up with a hot water bottle, a listening ear, and says, 'You're not alone in this.' Let's rally together and support those living with endo - because no one should have to navigate this journey solo." — Tanya Hennessy, QENDO Ambassador</strong></p><p data-rte-preserve-empty="true" class=""></p><p class="">For Australians like Sarah, QENDO's services are lifelines. The QENDO Helpline connects sufferers with dedicated nurses who understand endometriosis. Community meetups provide safe spaces to share experiences, the QENDO app offers resources for tracking symptoms and finding support.</p><p class="">But perhaps most revolutionary are the EndoAware Workplace Programs, designed to transform Australian workplaces into environments where employees with endometriosis can thrive professionally while managing their health.</p><p data-rte-preserve-empty="true" class=""></p><p class="">Every donation to QENDO's campaign makes a tangible difference:</p><ul data-rte-list="default"><li><p class="">$50 connects an Australian suffering from endometriosis with a QENDO representative for guidance through pain management, diagnosis, or general support</p></li><li><p class="">$150 keeps the QENDO Helpline running for one week</p></li><li><p class="">$300 funds a year of in-person meetups for a QENDO community location</p></li><li><p class="">$2,500-$7,000 brings an EndoAware Workplace Program to an Australian business</p></li></ul><p class="">The campaign is particularly focused on engaging Australian businesses before the end of the financial year, highlighting the tax benefits of supporting a cause that directly impacts their workforce.</p><p class="">"When you consider that endometriosis affects one in nine* Australians with a uterus, businesses aren't just making a charitable donation—they're investing in their own team's wellbeing," adds Jess Taylor. "Our EndoAware programs create workplaces where employees don't have to choose between health and career advancement."</p><h2><strong>How You Can Help</strong></h2><p class=""><strong>For Business Owners:</strong> Sign up for our Workplace Program and transform your workplace into one that supports and retains talented employees affected by endometriosis.</p><p class=""><strong>For Employees:</strong> Share QENDO's campaign with your employer or HR department, encouraging them to consider an EndoAware Workplace Program for your team.</p><p class=""><strong>For Everyone:</strong> Make a tax-deductible donation before June 30 at <a href="https://www.qendo.org.au/donate" target="_blank">www.qendo.org.au/donate.</a> Every contribution, no matter the size, helps QENDO continue providing 24/7 support to Australians affected by endometriosis.</p><p class=""><strong>Download the App:</strong> The QENDO app is free to download and provides resources, symptom tracking, and community support.</p><p class=""><strong>About QENDO:</strong> Established in 1988, QENDO advocates for those affected by endometriosis, adenomyosis, PCOS, infertility, and pelvic pain across Australia and New Zealand. Through lobbying, support services, and education, QENDO helps individuals understand and take control of their health.</p>


  







  

  



  
    
      

        

        

        
          
            
              
                
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  <p class=""><br></p><p class=""><br><br></p>]]></description><media:content type="image/jpeg" url="https://images.squarespace-cdn.com/content/v1/5d4d4ff6d36bb3000114e21b/1748473915537-UB4FL36LYLGIYXYQ12WM/Print_250524_QENDO_WCE2025_008.jpg?format=1500w" medium="image" isDefault="true" width="1500" height="2249"><media:title type="plain">No Clock-Out Time for Endometriosis: QENDO's Campaign to Support Australians 24/7</media:title></media:content></item></channel></rss>