bloodbornebodyodorandhalitosis.com update

Trimethylaminuria discussed on 'The Doctors' TV Show

2013-05-18T05:20:00.000-04:00

Trimethylaminuria (TMAU) was discussed on USA daytime TV program 'The Doctors' on May 16th. Here is the youtube video the program put up about it. Interesting to see one doctor also mention that often the complaint was not of rotten fish malodor, but of feces and other unpleasant malodors. The opening sequence also made mention of this. The Doctors discuss TMAU

Survey on Access to Care for Individuals with Genetic Conditions

2013-05-17T12:00:00.000-04:00

MEBO Research has received an email from the Program Manager of the National Genetics Education and Consumer Network (NGECN), Genetic Alliance. She is asking for volunteers who have been daignosed with having a genetic condition to fill out a survey by Thursday, June 6, 2013. Below is a copy of the email. Good afternoon, We are reaching out to you for your help in disseminating a survey to

What is, and Who is MEBO?

2013-05-16T11:40:00.001-04:00

Who is MEBO? There are a few sufferers who have told me that sufferers who just discovered our community don't know who MEBO is. MEBO is a sufferer founded 501(c)3 Public Charity registered in the US, England and Wales. the 10 Directors (5 in US and 5 in UK) offer their volunteer services, as do other sufferers and experts. There are a few experts in multiple countries who donate their time and

AGENDA FOR 4th ANNUAL MEBO CONFERENCE 2013

2013-05-15T16:14:00.002-04:00

AGENDA FOR 4th ANNUAL MEBO MEETUP AND CONFERENCE at Memphis May 17th through 19th 2013 The conference part of our meetup in Memphis will be held at the Memphis Embassy Suites Presidential Suite on Saturday, on May 18th following This year’s conference will include the presentations noted below, and a great deal of time will be employed to group discussion on the material presented this year as

Responses MEBO informal Survey

2013-05-14T17:09:00.001-04:00

First 30 Responses of MEBO Survey For Odegon Technologies "What type of odor condition do you suffer from?" "What part of your body emits odor?" Response “A. Bromhidrosis”: (2 of 30 responses “A Bromhidrosis”) Axilla (underarm) Intestinal Response both “A. Bromhidrosis and D. Hyperhidrosis”: (4 of 30 responses) Axilla (underarm) (deodorant doesn’t work) Feet and all over the body (

Military technology to tackle body odor

2013-05-10T01:10:00.001-04:00

David Gregory-Kumar, Science & Environment correspondent, BBC News filmed an interview of Steve Rawlings, Director of Odegon Technologies, Ltd, and it was aired on the local Midlands news on April 11, 2013. Steve recently emailed me a link to the YouTube copy of the BBC interview (embedded above), a link to the article, "Telford company invents patches to tacle body odour" on the BBC News

HYPERHIDROSIS : GENETIC STUDY

2013-05-08T18:51:00.000-04:00

A Genetic Study is being conducted by the Albert Einstein College of Medicine of Yeshiva University to find a way to control or cure the excessive sweating in affected individuals. This study is particularly interested in identifying families with multiple affected members, as well as isolated individuals may be accepted into the study. See the International Hyperhidrosis Society website for

Raising Awareness interview UK's Full House Magazine

2013-05-03T07:23:00.000-04:00

On April 4, 2013, a brave sufferer, Tracy, told her story to UK's Full House magazine. I know it is difficult to put oneself out in the public eye to talk about this condition. I would like to thank Tracy for her courage to bravely tell the world what this is all about in hopes that with knowledge, people will treat sufferers with greater understanding and sensitivity. We hope that with

Raising Awareness Video WTXL, Tallahassee

2013-05-01T21:13:00.000-04:00

Posted: Wednesday, May 1, 2013 6:15 pm | Updated: 7:07 pm, Wed May 1, 2013. Christina Reznack TALLAHASSEE, Fla. (WTXL)-- http://www.wtxl.com/news/living-with-fish-odor-syndrome/article_49c799f8-a960-11e2-b589-0019bb30f31a.html [Christina] Some sufferers describe their scent as fishy, a reason TMAU has earned the nickname "Fish Odor Syndrome." Others say they smell like garbage, rotten eggs

TMAU Test Results - 5th BATCH

2013-04-29T19:19:00.000-04:00

HOW TO ARRANGE FOR MY TMAU TEST Click here TMAU Test Requisition Form $150 plus roundtrip shipping No additional cost throughout the test process will be incurred after initial payment of test & round trip shipping RESULTS OF THE CLEVELAND CLINIC TMAU TEST BATCH#5 (April 25, 2013). Click on icon to see chart Please click on the the TMAU Test Results Chart icon (on the right) of the

New paper associating TMAO with heart disease/stroke

2013-04-29T00:05:00.000-04:00

Dr Stanley Hazen (of the Cleveland Clinic) et al have published a new paper (25th April) in the New England Medical Journal claiming to show that high trimethylamine-n-oxide levels are a good (and best) predictor of risk of atherosclerosis in humans (the study included over 4,000 subjects). The main findings in the paper are : 1) Results from a large clinical study including over 4000

MEBO Needs Your Financial Support

2013-04-24T13:14:00.001-04:00

If you are unable to attend the MEBO Annual Conference/Meetup in Memphis, or to donate time to help with any and all programs of the MEBO Mission, Please consider supporting MEBO RESEARCH through a donation. Precisely because of the strong volunteer services rendered by the MEBO Directors, many experts who have volunteered countless hours to teach and guide us, and others in our

Only 2 days to book room MEBO MEETUP

2013-04-24T01:40:00.000-04:00

CLICK HERE TO BOOK YOUR SUITE ONLINE: MEBO Annual Conference page of Embassy Suites Memphis http://embassysuites.hilton.com/en/es/groups/personalized/M/MEMPEES-MEB-20130517/index.jhtml?WT.mc_id=POG There are only three days left to book your room at the Embassy Suites Memphis for the 4th MEBO Annual Meetup, featuring a sneak preview of the film, "The Boy Who Smells Like Fish". This movie is

6 Sales acquired Sales Represention for the Film

2013-04-24T01:39:00.000-04:00

This would mean that the movie will be distributed, and many sufferers will be able to see it, and eventually hopefully purchase their own copy. Thanks to everyone who showed their support for this fine-quality Raising Awareness tool that has the potential of helping our international community in so many ways. María http://www.icontact-archive.com/BNFGR7UzOi3um48_rqZ4wcZ8mOTAaJHm?w=1 April

Link to TMAU Test Requisition Form is fixed

2013-04-23T01:40:00.000-04:00

Someone made me aware of the fact that the link to the TMAU Test Requisition Form was down, and now it is fixed. If you were trying to get information about the test and shipping cost by filling out the form, I apologize for any inconvenience and delay. Below is the link to get the TMAU Test and round trip shipping quote, Requisition Form, (without obligation to purchase the test). A EURORDIS

My interview with ABC Affiliate, WTXL.TV

2013-04-20T23:00:00.000-04:00

As part of MEBO Research's ongoing Raising Awareness Campaign, I was interviewed via Skype by Christina Reznack, Reporter at WTXL ABC27 in Tallahassee, Florida. The 2 minute story will air during their 6:00pm newscast on Wednesday, May 1st, and they will be running promotions for it on their social media and programming next week as well. Viewers in North Florida and South Georgia will be able

TMAU Testing at Mount Sinai Hospital, Toronto, Canada

2013-04-20T09:34:00.001-04:00

Dr. Chantal Morel University Health Network and Mount Sinai Hospital Fred A Litwin & Family Center for Clinical Genetics & Genomic Medicine 60 Murray St 3rd Floor Room 400 Box 34 Toronto, Ontario M5T 3L9 Phone (416)586-4800 ext 4220 Fax: (416) 619-5523 The lab in Mount Sinai Hospital in Toronto, Ontario, Canada is currently doing TMAU testing covered under the National Health Plan. Your

Watch the movie at the Memphis MEBO Annual Meetup !

2013-04-17T00:41:00.000-04:00

CLICK HERE TO BOOK YOUR SUITE ONLINE: MEBO Annual Conference page of Embassy Suites Memphis http://embassysuites.hilton.com/en/es/groups/personalized/M/MEMPEES-MEB-20130517/index.jhtml?WT.mc_id=POG Join me to share this experience together! What greater way to watch this than in the company of other sufferers! The movie, The Boy Who Smells Like Fish, will be shown on Saturday night, May

Review: Dimethylsulfidemia: the significance of dimethyl sulfide in extra-oral, blood borne halitosis

2013-04-15T01:42:00.001-04:00

The abstract of a review paper compiled by MEBO Research, Dimethylsulfidemia: the significance of dimethyl sulfide in extra-oral, blood borne halitosis, was published in the British Dental Journal on April 12, 2013, noting MEBO Research, Inc., as one of the sources. As mentioned in the abstract, this review is of previously available scientific knowledge gathered by professional scientists,

Cheryl Fields is back with us!

2013-04-14T18:01:00.002-04:00

Today, our MEBO Community Outreach Director, Cheryl Fields (Dr. Stillstanding), wrote a comment on one of MEBO’s Post, “MEBO Research is now a registered USA Public Charity,” in which she tells us the following: Hello everyone. This is Cheryl Fields, I am living in Wisconsin now. I am working lots of hours and I am not available as much online or via the telephone. I just got back online

Intra-Oral halitosis & Endoscopic HD

2013-04-13T18:57:00.002-04:00

Polyp Removal, Endoscopic Sinus Surgery, Balloon Dilatation of Frontal Sinus B. Todd Schaeffer, MD, FACS Lake Success, NY North Shore University Hospital Uploaded on Dec 13, 2009 NOTICE: This video is not for the squeamish at heart. Viewer discretion is advised. This YouTube video is of a surgical procedure of the sinuses to remove sinus polyps, drain the sinuses, relieve obstructed blocked

Update on “The Boy Who Smells Like Fish” movie

2013-04-11T11:31:00.000-04:00

I am most excited to have received an email from Analeine Cal y Mayor, the Director of The Boy Who Smells Like Fish, who tells me that the film is going to go the the Cannes Festival in May! How’s that for raising awareness around the world through such a great media! Another very good news is that they have found an international sales agent, and after the Cannes Festival, they will be able

Test for TMAU1, TMAU2 and a pro-cardiac disease metabolite

2013-04-09T22:01:00.001-04:00

A Cleveland Clinic research led by our very own Dr. Stanley L. Hazen, M.D., Ph.D. , Vice Chair, Translational Research, Lerner Research Institute; Section Head, Preventive Cardiology & Rehabilitation; Director, Center for Cardiovascular Diagnostics & Prevention, have discovered a link between heart disease, carnitine and trimethylamine-N-oxide (TMAO). Carnitine --> gut microbes --> TMA -->

PROTEST: Suspended from school 24 times - body odor

2013-04-04T20:34:00.001-04:00

RAISE AWARENESS IN SCHOOLS FOR CHILDREN WITH MALODOR CONDITIONS PLEASE BE A PART OF THIS EMAIL RAISING AWARENESS CAMPAIGN You can email from anywhere in the world. Message from Karen, MEBO Research Public Relations Director, UK Hi all, Maybe some of you may already have heard about this tragic story of a child of 8 who has been suspended from school because of her odour condition. http://

8 year old Tennessee girl repeatedly sent home from school for body odor

2013-04-04T14:44:00.001-04:00

This is a news story which has hit headlines recently. A 8 year old girl is continually sent home from school due to having an offensive body odor. The mother says she bathes daily. Of course it is not possible to guess what the cause is, though metabolic malodors is one possibility that springs to mind, such as trimethylaminuria. News articles on the story : WJHL.com : School official