bloodbornebodyodorandhalitosis.com update

MEBO's Raising Awareness Video Campaign: Living and Working with TMAU

2012-02-14T21:16:00.006-05:00

In the spirit of the Rare Disease Day event to be celebrated on 29 February 2912, the readers of MEBO's blog donated $200 in a brief period of 12 hours for MEBO's Community Outreach Director, Cheryl Fields, to create a video to raise awareness about the psychological, social and economic effects of trimethylaminuria (TMAU) on the lives of its sufferers. Even before it was finished uploading on

Message from Karen James about Rare Disease Day

2012-02-12T15:08:00.006-05:00

Karen James; leading Raising Awareness systemic odor campaigner and MEBO Research Public Relations Director in the UK, is once again tying in an awareness campaign with the World Rare Diseases Day on 29th Feb2012.Below is her message about the campaign. Karen appeared on popular UK mid-morning TV show 'This Morning' last year to raise awarenessEmail newsletter from Karen JamesWednesday 29th

Rare Disease Day USA February 29, 2012

2012-02-10T03:00:00.004-05:00

A few MEBO Board members have received an email from the National Organization for Rare Disorders (NORD) informing us of the events that are to be held on Rare Disease Day, February 29, 2012. This is the message they extend to our community:Have You Made Your Plans for Rare Disease Day 2012 Yet?On February 29th, Rare Disease Day Partners across the U.S. and around the world will be hosting

A Legal Perspective on employment protections for body odor

2012-02-09T09:00:00.014-05:00

A fellow sufferer with IBS related body odor, who wishes to remain anonymous and who is also a lawyer, was inspired to write a 12-page brief treatise as an adjunct to Cheryl Field's April 2011 MEBO Presentation on Social Security and Employment Discrimination. We are most grateful for this thorough and very informative pro-bono work written from the heart for fellow sufferers.Our most profound

UK TMAU testing via Sheffield now available direct through MEBO Research

2012-02-07T22:14:00.002-05:00

previous Sheffield TMAU resultsA MEBO Research Testing ServiceUK TMAU urine testProvided by Sheffield Children's Hospital via Biolab£155 for UK residents£160 for nearby countriesUK TMAU urine test order formTMAU instruction sheet added by Biolab (included in test-kit)MEBO Research (MEBO) is happy to announce that with the co-operation of Nigel Manning, Principal Clinical Scientist, Principal

MEETUP REQUESTS

2012-02-06T21:45:00.013-05:00

DO YOU WANT TO ORGANIZE A MEETUP OF 2 OR MORE PEOPLE IN YOUR TOWN?CLICK ON "Post Comment" below in this post. Interview with Arun Nagrath Thames Festival 2009 "WE ARE PROUD AND PROACTIVE!" There have been a number of sufferers who write to MEBO asking if we can help them find people in their area that would be interested in meeting up. For this reason, I have created this page in our blog.

Charity that helps 'disabled' find home-based work

2012-02-06T09:26:00.002-05:00

NTI homeworking Charity for disabled NTI is a charity that seems set up to find home-based work for Americans with disabilities, which is very much a concept MEBO is interested in. The charity seems to focus on teleworking jobs, perhaps since it was founded in 1995 (slightly before the internet for most people) and has had a lot of success in arranging a network based around teleworking. At

Fundraising project II for $210 : Cheryl's trip to Montgomery to present our case

2012-02-04T17:02:00.030-05:00

THANKS TO EVERYONE WHO DONATED FOR CHERYL'S $200 VIDEO!We collected this amount in only 12 hours! We're such a great group!Thank you all so very much for your support for the upcoming video.The video should be up by 15 February 2012.We have not started shooting for the video yet.Thank you all again so very much for your contributions, donations, letters of support, Prayers, and just for being

Fundraising project : Cheryl making a video for $200

2012-02-03T19:10:00.017-05:00

Cheryl Fields, Ph.D. (ABD) MEBO Community Outreach Director. Book uplifting seminars for free.Click here for details and scroll down Home/Voicemail (785)-286-7005 email: cheryl.fields@meboresearch.org Cheryl's list of FAQ'sOur community outreach director and long-time friend to the community, Cheryl Fields, usename: Dr. StillStanding, is especially looking to raise awareness about

systemic body odor blog

2012-02-01T21:43:00.001-05:00

systemic body odor blog I have been helping Maria with MEBO and this blog from the start. To fully express my views on my own theories on 'fecal body odor' and other systemic body odors, I have begun my own blog with Maria's encouragement. This is so I can express my views more, without the need for evidence. I do not foresee me updating it much, only to be putting my thoughts on the subject

supplements on Amazon USA

2012-02-01T16:03:00.001-05:00

MEBO Research understands that at the present time our community very much like to try supplements. MEBO Research do not have any comment to make on supplements, but we are aware of the various types people are likely to buy. And so, if you usually buy through Amazon USA, perhaps you can consider buying through our links which will result in MEBO getting about 5-6% of the purchase price at no

THE POWER OF PARTICIPATION IN SURVEY STUDIES

2012-01-31T04:00:00.016-05:00

THE POWER OF SUFFERER PARTICIPATIONIN SURVEY STUDIESOn January 11, 2011, the American Psychiatric Association revised and updated the DSM-5 Development category of Olfactory Reference Syndrome, as noted on their website. This online page was copyrighted in 2012 with these latest revisions. The most significant highlights of these changes are the following declarations:The preoccupations are not

Homeworking job-leads website : ratracerebellion.com

2012-01-30T10:08:00.002-05:00

MEBO Research is aware there is an interest in home-based working and other forms of income. While our community awaits therapies or cures for odor conditions, some would prefer to work at home to avoid stressful situations. One site recommended to us by a community member is the website ratracerebellion.com , which has many ideas and leads as how to work from home. Ideally MEBO would like to

What I love about our new Skunkhungs Skype Group

2012-01-29T12:01:00.007-05:00

I was reading most of the chat today in our Skype Group, and I just couldn't help but feel excited about the fact that the rhetoric is so diverse! It is so intellectually stimulating! It also makes me realize that MEBO has been very focused on systemic, metabolic, and genetic causes of body odor, and so much more needs to be explored. Even though we barely scratched the surface of environmental

Cheryl fields now available to contact via skype

2012-01-28T14:41:00.000-05:00

Cheryl Fields, Ph.D. (ABD)MEBO Community Outreach Director.Book uplifting seminars for free.Click here for details and scroll downHome/Voicemail (785)-286-7005email: cheryl.fields@meboresearch.orgCheryl's list of FAQ'sskype username : Cheryl FieldsFor many years, Cheryl Fields has been a friend to all the community and has kindly allowed anyone to contact her by phone at anytime if they wish to

Halitology : A review paper

2012-01-28T02:57:00.001-05:00

click to read halitology abstract A paper has recently been published which seems to be an overview of halitosis, terming the subject 'halitology'. Professor Greenman has a long interest in halitosis, and is associated with ISBOR. Professor Scully is an esteemed dental surgeon. Prof. Greenman is very likely aware of the work of Drs Wevers and Tangerman regarding dimethylsulfide being an '

Fifth International Rare Disease Day by EURORDIS

2012-01-27T17:00:00.002-05:00

A WORD FROM CHERYL FIELDS, MEBO U.S. Community Outreach Directorto our international communityFebruary 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging

Hypermethionemia plasma test : You can have blood sample taken at Biolab London for no extra cost

2012-01-26T19:00:00.006-05:00

click to go to application form Link to methionine test application form Hypermethionemia blood test : You can have sample taken at Biolab London at no extra cost With the co-operation of Nigel Manning at Sheffield Children's Hospital and the Biolab Medical Unit, we have started offering a plasma methionine test for £60 (plus shipping) Hypermethionemia Raised methionine plasma levels, known

CNN iReport: Please support Cheryl's CNN iReport vetting

2012-01-25T23:51:00.012-05:00

http://ireport.cnn.com/docs/DOC-736258LET US BE HEARD!Let's give Cheryl the opportunity to tell our story on CNN iReport by us telling CNN that we support the vetting of her show. Please show support for Cheryl's iReport: Rare Diseases Day (World Coverage) by going to www.ireport.cnn.com/explore.jspa, scroll to the bottom of Cheryl's story, and Click on "This belongs on CNN". Please ask family

MEBO Research introduces new plasma methionine testing program in the UK

2012-01-23T23:59:00.001-05:00

MEBO Research introducesNew Plasma Methionine Test Program in UKMEBO Research is commencing plasma methionine testing in London with Clinical Biochemist, Nigel Manning, the only TMAU tester in the UK at Sheffield Children’s Hospital, and through Biolab Medical Unit.* MEBO UK's Scientific Director, Dr. Colin Harvey-Woodworth, BDS, is overseeing this testing program and conducting a study of the

Cheryl Fields representing us: Southern Poverty Law Center, and CNN press release

2012-01-22T10:33:00.011-05:00

MEBO US's Community Outreach Director, Dr. Cheryl Fields (aka, Dr. StillSanding) is spearheading a couple of great projects for 2012 to raise awareness that we hope will be far-reaching in the US and internationally. She will be visiting the headquarters of Southern Poverty Law Center (SPLC) in Montgomery, Alabama, representing our community as our Community Outreach Director, where she will be

Poll : body odor or halitosis : Can you tolerate flagyl well ?

2012-01-22T10:04:00.001-05:00

Body odor/halitosis : Can you tolerate flagyl/metronidazole well ?There is some anecdotal evidence that some in our group do not tolerate flagyl/metronidazole very well (or other certain drugs). There could be a number of reasons for this, none of which are provable in this context. Some possible reasons are : Some issue to do with the group of cell enzymes known in pharmacology as 'drug

The Shreveport Louisiana meetup : March 23-24

2012-01-20T13:03:00.010-05:00

Shreveport meetup : Are you going ? View Larger Map Shreveport Louisiana Meetup Best Western Chateau Suite Hotel23-24 March 2012 (overnight stay planned) A Meet and Greet at 8.30pm Friday in the lobby under the chandelier The big Saturday meetup : Village Square Buffet at the Horseshoe Casino at 2 pm Contact Kim for details See this forum link

Trimethylaminuria testing in Cardiff, Wales

2012-01-20T08:52:00.003-05:00

Trimethylaminuria (TMAU) is currently the only current recognised 'systemic' odor condition, but testing for it through the public health system can be difficult due to lack of awareness. Medium-term, the way 'specialist treatment' will develop in the public health system will probably be via Adult Metabolic Units (or similar name), with the person being referred to see a Metabolic Consultant (

Amazon revenue for MEBO Fund is now over $14

2012-01-19T11:46:00.007-05:00

If you buy things from Amazon USA, don't forget that going through our Amazon banners will mean MEBO get about 5% of the purchase price at no extra cost to yourself. So far MEBO have managed to raise over $14 at no cost to the purchasers, from the sale of $300 worth of goods. It's a great win/win way to raise money. Feel free to buy your usual Amazon purchases via the links. For instance, if you