Chronically Something

lilylovespaint: Day Twelve: Comic“Tremors” #Art #Drawing #humor...

positivethinkingforlosers — Sat, 18 May 2013 16:30:26 -0400

Day Twelve: Comic“Tremors”
#Art #Drawing #humor #MS

30 Day Drawing Challenge

Day One: Myself

Day Two: Favourite Animal

Day Three: Favourite Food

Day Four: Best Friend

Day Five: Favourite Character

Day Six: Favourite Word

Day Seven: Favourite Animated Character

Day Eight: Favourite TV Show

Day Nine: Favourite Candy

Day Ten: Turning Point

Day Eleven: Most Recent Accomplishment

Was gonna queue this for tomorrow but I have a body split...

positivethinkingforlosers — Sat, 18 May 2013 00:40:41 -0400

Was gonna queue this for tomorrow but I have a body split between full numb/tingle left leg and right arm while the rest twitches painfully. I’m really pissed I can’t take the one nighttime med that has actually helped me a reasonable amount due to the following ridiculousness:

I slept/writhed in post travel pain most of yesterday. I noticed before heading home that I only had one of my muscle relaxants left (the one that seems to help the most) and immediately called the pharmacy. So as soon as I could manage I forced myself upright and made my way the few blocks to the pharmacy. I didn’t anticipate any issues. I have 10 refills on the stuff so what can go wrong? Seems my insurance company found a way to screw that assumption.

While several of my meds were given to me in 3 month increments in the past, that stopped in the last month or two (and never included MS related meds). I don’t generally care either way as long as I get my medication. Now, however, it seems that those MS meds that were never part of the 3 mo 1 mo switch up, need to be given in 3 month supplies. Ok. Fine. Whatever. No biggie, right?

Wrong.

Seems that, despite the fact that I have 10 refills, more than enough for 3x 3mo fills, they will not fill them until the doctor sends a new prescription that indicates a 3 month refill. Really? is it that they think the pharmacists are bad at math? Really? What the fucking fuck!

So I went home with no meds. They faxed the doctor repeatedly. I called several times but couldn’t get ahold of anyone. Today the pharmacy is still without the new prescription and I’m still without meds. Since its the weekend this will continue till at least monday evening. ARGH.

I know the system doesn’t make sense but seriously? This is exceptionally ridiculous. I call shenanigans.

SHENANIGANS! EVERYONE GET YOUR BROOM!

I'm getting increasingly tired of the words "in mice" being appended to anything having to do with multiple sclerosis.

positivethinkingforlosers — Fri, 17 May 2013 12:00:00 -0400

petticoatruler:

Using mice (which don’t get MS the way humans do - the only thing they get is an induced autoimmune response, and without knowing the base cause(s) of MS that’s stupid) is like trying to figure out human anatomy based on a kid’s rubber baby doll.

Agreed! And I’m also getting tired of reading “was found to be XX% effective in comparison to a placebo” and never “was found to be XX% effective in comparison to the other commonly used CRAB drugs”. Small statistical differences between effectiveness in studies done against a placebo are pretty useless when making decisions about which treatment to choose.

It would be great to see some studies of effectiveness between all these meds along with side effect info so we can make decisions based on more than the fact that A was 2% more effective than nothing than B was! Guess the pharmaceutical companies wouldn’t be too interested in funding those sorts of studies.

fogblogging: If I had a dollar for every time someone told me to “just push through it” I’d...

positivethinkingforlosers — Thu, 16 May 2013 12:01:00 -0400

fogblogging:

If I had a dollar for every time someone told me to “just push through it” I’d probably have enough money to buy a giant cheese grater to push them through.

been in transit for 9 hours now and my muscles are twitching

positivethinkingforlosers — Wed, 15 May 2013 17:41:00 -0400

and I think it scares the flight attendant a lot.

this.. though its starting to seem like I should replace today...

positivethinkingforlosers — Wed, 15 May 2013 12:00:40 -0400

this.. though its starting to seem like I should replace today with this year and yesterday with last year.

sami-shortcake:

Only a fellow spoonie would get it… #chronicallyill #spoons #spoonie #crohns #colitis #RA #rheumatoidarthritis

this is honestly how I prefer to be comforted.

positivethinkingforlosers — Tue, 14 May 2013 12:00:49 -0400

this is honestly how I prefer to be comforted.

Dear Florida: (where I give my home state a stern talking to)

positivethinkingforlosers — Mon, 13 May 2013 12:00:55 -0400

We’ve never really gotten along despite spending the first 18 years of my life with you. While I love your citrus, the clear sky, and the turtles and tortoises you house, its just never been enough to win me over. I mean, you always had to make sure the snakes were in my front yard, the mosquitos liked my blood the most, and the roaches were not just big but could also fly. then you’re all too regular 95 degree and humid temperatures just seem ridiculously sucky, even when it was just because it made me uncomfortable and gave me really giant frizzy hair.

In recent years, however, I feel as though my opinion of you has gone beyond a lack of fondness to pretty serious disdain. I come back to my home state with my new life parter MS and you just can’t help but taunt an already miserable life partnership causing me to swell out of shoes, socks, and clothes in general. You rile up the knees, hips, back, toes and hands, causing them to revolt through pulsating pain on top of that duller ache. You do all of this while making sure all my muscles either contract completely or act as though they are at a latin dance club (twitching 24 7).

Now you’re recruiting my eye sight into the ring and I have to say… not cool florida. not cool at all. I know MS is a stubborn jerkface but can’t you be the bigger state (you are one of the biggest anyway) and ease into your ridiculously hot and humid weather? Was that too much to ask? hmmph. I’d say I expected more from you Florida but that would be a lie.

I hope you think about what you’ve done.

your former resident,

NFN

(and yes, MS is getting a talking to as well but you just focus on you.

Dealing with insurance is never easy! Especially with "special" drugs. Goodness. :/

positivethinkingforlosers — Sun, 12 May 2013 12:00:54 -0400

thechronicfight: thespoonfairy: just no. I can’t relate to a...

positivethinkingforlosers — Sat, 11 May 2013 12:00:50 -0400

thechronicfight:

thespoonfairy:

just no.

I can’t relate to a post more than this.

Photo

positivethinkingforlosers — Fri, 10 May 2013 12:00:35 -0400

the truth

positivethinkingforlosers — Thu, 09 May 2013 12:00:43 -0400

If only this were included in the “understanding disability needs and accommodations” seminar I pretend all airline employees are required to take.

flaresof-fibro:

What Dr’s think our tender areas are:

What it is really like living in pain:

this. also? ow. yesterday’s mistake.

positivethinkingforlosers — Wed, 08 May 2013 12:00:48 -0400

this. also? ow.

yesterday’s mistake.

worldaccordingtolupus: www.facebook.com/worldaccordingtolupus

positivethinkingforlosers — Tue, 07 May 2013 12:00:59 -0400

worldaccordingtolupus:

www.facebook.com/worldaccordingtolupus

Photo

positivethinkingforlosers — Mon, 06 May 2013 12:00:50 -0400

fibromyalgia-fairy: flamepwincess: So I just bought this book...

positivethinkingforlosers — Sun, 05 May 2013 12:00:52 -0400

fibromyalgia-fairy:

flamepwincess:

So I just bought this book on Amazon. My therapist suggested it to me. I think it’ll make me feel less alone in the chronic illness patient world that so many of us women face with ignorant doctors. I’ll review it once I’m finished!

let me know how it is! I suggest this book called chocolate and vicodin, it was such a good read.

thoughts or something like it: hollysleeps: alittleanonymityplease: The only people who understand...

positivethinkingforlosers — Sat, 04 May 2013 12:00:49 -0400

thoughts or something like it: hollysleeps: alittleanonymityplease: The only people who understand...:

hollysleeps:

alittleanonymityplease:

The only people who understand how hard it is to be young, and chronically ill, are YOUNG AND CHRONICALLY ILL. Older middle-aged people who become ill, have experienced life. They have experienced their prime. They have had the opportunity to…

I have a severe lack of knowledge about EDS and someone I care...

positivethinkingforlosers — Fri, 03 May 2013 12:00:45 -0400

I have a severe lack of knowledge about EDS and someone I care about has it. Spreading awareness and educating myself! Pass it on.

bendycute:

WHAT IS EHLERS-DANLOS SYNDROME? :

Ehlers-Danlos Syndrome (EDS) comes in six major types, each with varying symptoms. Generally, those with EDS have very hypermobile joints, which can partially and fully dislocate very easily. This is caused by a defect in our collagen and can be unbearably painful.

The defect in the collagen also causes a multitude of other problems in our bodies, after all, collagen is necessary for our skin, joints, muscles, ligaments, blood vessels and even our organs.

It is a lifelong condition that affects children through adults, and there is no cure at this point in time.

WHY DOES IT NEED AWARENESS? :

There is a SEVERE lack of knowledge and understanding, not just from family and friends, but from medical professionals too. A lot of us do not receive the proper tests and treatment we need. Not only can this be damaging to the mental health of the patient, but it can also put the lives of those who have not been diagnosed in serious danger.

PLEASE RE-BLOG FOR TO SPREAD AWARENESS AND SUPPORT ALL OF THE AMAZINGLY STRONG PEOPLE WHO HAVE TO LIVE WITH THIS CONDITION EVERY DAY.

I think I’m too poor and un famous for this to happen.....

positivethinkingforlosers — Thu, 02 May 2013 12:00:52 -0400

I think I’m too poor and un famous for this to happen.. but still..

me on vicodin

positivethinkingforlosers — Wed, 01 May 2013 12:01:00 -0400

Or me almost every day. heh.

fibromyalgiaproblems: