CHRONICLES OF A BIONIC WOMAN

Free Neckloop From Clarity If Attending HLAA Convention

noreply@blogger.com (Abbie) — Fri, 12 Jun 2009 03:40:00 +0000

Why Did I Choose Advanced Bionics?

noreply@blogger.com (Abbie) — Mon, 01 Jun 2009 18:19:00 +0000

I decided to do a little spring cleaning to my inbox and I noticed that my sent folder was overflowing with emails answering why I picked Advanced Bionics for my cochlear implant. It seems that after a 100 or so emails, I have unknowingly created this wonderful base for this blog. :)

There are several reasons I chose AB. I wanted to be able to hear better in noise. I wanted to be able to use the phone like a normal person. I wanted to be able to listen to music with ear buds that otherwise proved completely useless to me when I had a hearing aid – the ear was already full enough :) I wanted to be able to transition through different sound environments without fiddling around with the program. I wanted rechargeable batteries because they are safer for the environment and economically friendlier. I wanted the support that was needed that goes along with learning how to hear with a cochlear implant and because of Hearing Journey, I got answers the second I post a question. I wanted to be able to access the latest MRI technology with minimal surgery. I wanted promises of future technology designed to emulate better hearing without further surgery. I wanted total reliability. I wanted the implant to withstand sweating when I work out since I was forever killing my hearing aids. I wanted to push the envelope of hearing. When it came down to it – AB was the only company that could give me that.

1. T-Mic Microphone

The T-Mic ear hook is only available with Advanced Bionics cochlear implant system. This is not to be confused with the T-Coil, an option that can be turned on by your audiologist on your Harmony Processor. It uses the natural shape of the ear to emulate natural hearing. It helps to provide clarity that is needed for speech and is absolutely fantastic in noise because you can rotate your ears to what you want to focus on like a normal hearing person. It comes in two sizes, standard for big ears like mine and pediatric size for itty bitty ears.

Being a long term hearing aid wearer, I was familiar how directional microphones (catches the sound in front of you) and omni-directional microphones (catches the background sound) works but this design intrigued me. With the T-Mic earhook, I can just put the telephone up to my ear without fiddling with anything and the background noise immediately fades away making the your voice or the person on the other end of the phone the dominant sound . When you or the person stops talking, the background noise will become noticeable. It is the same phenomena when I wear a Bluetooth headset and stick IPOD ear buds in my ear. These are things I never thought would be possible with a hearing aid.

2. Auto Sound

The phenomenon that I was just talking about is called Auto Sound which automatically adjusts for the environment that you are in. I shall spare you the technicalities of it all. It allows you to hear whispers to shouts without flipping a switch. You don't have to fiddle around with programs. This is a cut and paste from a bilateral AB user that lives with a bilateral Freedom user that explains how useful it is to have valuable Auto Sound is.

My resident (bilateral) Freedom user having to switch for the phones, having to switch for restaurants, having to switch back for normal conversations. When we listen to music, he switches and switches programs trying to find something that sounds ok. He gets frustrated with it. If he forgets to switch back, he can spend the morning not hearing well in normal situations, with his voice louder than necessary. That is my tip off that he forgot to switch back...so I will have him check and sure enough, he forgot to switch back from whatever program he was using, back to his "everyday" program.

I would be highly agitated if I had to keep flipping programs to go from my house, to my car, to work. With Auto Sound, I hardly ever have to switch.

3. Familiarity of Hearing Aid Style

Advanced Bionics has the options of three program slots and it mimicked the style of what I was used to with my HA. Right after you get activated, you tend to play a lot with different programs options that AB has to see what suits you best but now I settled down with just one program from everything: But just for sake of having options, I have a normal everyday program, a noise/telephone program that I hardly ever use unless I am in a noisy environment and music. I find it redundant to have more than three program options because like myself, most of the CI users after they learn how to hear with the CI, you might find yourself just sticking to one. If you go to a CI clinic that gives you two processors, a primary and a back up, you can utilize both of them to play around with different settings until your brain figures out which one it likes best.

4. Widest Window of Sound (IDR)

Since a normal person ear cannot process any sound louder than 120dB and it will hurt a hearing person to hear anything louder than 120dB which results them sticking their fingers in their ears to dampen the noise. AB has its own ceiling as well. It is called IDR which stands for Input Dynamic Range that can be adjusted up to 80dB. Other companies are at 45dB. It just means that ceiling on the CI or window of sound can process up to 80dB and then Auto Sound kicks in and automatically dampens the sound to make it comfortable for us to tolerate the loud noise.

If you can picture a window shut, which means very little sound is coming through because the window absorbs most of the sound. If you open the window a little bit, you will begin to hear some noise such as leaves blowing around, cars passing or a faint impression of someone hammering. I call this a low IDR. If you open the window up halfway, you are inviting even more noise. You might get the leaves blowing, cars passing and a more distinct impression of the person hammering but you might hear the birds singing as well. If you open it up all the way, you might as well be standing outside. I like to it call it adjustable noise control. :) With a wide IDR, I can go to a concert and hear the concert as it was meant to be heard. With a narrow IDR, it gets rid of unimportant noise or what I call "white noise" and brings a sense of perceptible clarity.

5. Rechargeable Batteries

I am extremely environmentally friendly. I recycle. I drive a hybrid which resembles a hardboiled egg but you just can't beat it the 55 mpg that I get. So, rechargeable batteries are an easy "green" option. Advanced Bionics has two sizes of rechargeable batteries, extended and slim. Extended is what I have which I get an average of 24 hours out of, you figure every two days I'm slipping a new one in. I got four batteries with my processor when I was activated and I lost one (blushing) but three batteries last me the whole week. It is not only environmentally friendly, it is economically friendly as well. There are no trips to the store to buy batteries which means more money in your pocket. You might want to buy a new set of batteries every 2-3 years but if you have a durable medical rider on your insurance policy, that means very little out of pocket. AB provides a little wallet that you can attach to your key ring to carry your batteries with you.

6. HiResolution Fidelity 120 Sound Processing Option

The latest software development is the HiRes speech strategy option with Fidelity 120 options. This is an option that can help you in noisy conditions, appreciate music and on the telephone. The only way I can describe it is if I compare it to a camera. A hearing aid is a Polaroid and HiRes with Fidelity 120, it is a 4MP Camera. I can hear in noise much more easily than I could ever hear with a hearing aid. Since it was designed with music in mind, it has been a joy to actually enjoy music especially now that I am bilateral.

It uses current steering technology to increase spectral resolution from as few as 12 to 22 spectral bands to as many as 120 spectral bands. Advanced Bionics is the only company that can achieve this type of current steering technology because it has a power source each electrode. Other companies that have only one power source for all of their electrodes claim that they can steer electrodes but they have no speech strategy devised for it which makes it totally useless, doesn't it?

7. Independently Controlled Currents or Electrodes

Since I have a technical background, I have always been interested in how components function and it played a large part of my research. All the components may look similar in programming, chip size and material but the old saying, never judge a book by its cover. The HiRes 90k implant has the 16 independent computer controlled current sources where other companies have one power source. It is like if you set up X number of speakers and plug them into one outlet, you will not get the same performance if you plug in each one of those speakers to its own power supply. With independently controlled current sources, the ability for tons of future software development since it can control each electrode.

8. Internal Chip Memory

The fact that the internal chip memory is only operating at 25% capacity means that there are tons of room for development.

9. Total Reliability of Internal and External Report

Advanced Bionics has been able to issue a total reliability report. For the implant, it is at 99.5 on June 2008 and for the Harmony processor, the return rate is less than 1%. I do want to point out that you want to be worried about the reliability of both the implant and the processor because if one stops functioning, you can't hear - point blank. The other companies do not offer a reliability report on their processors because it is absolutely deplorable. I always hearing about parts breaking down and being replaced. I absolutely hated it when I was left in the dark when my hearing aid broke down and believe me, I have done my fair share of killing them. I felt so disconnected from the world as I knew it. I have yet to have my processor replaced (knock on wood) but if I ever did, I would have it within 48 hours with the Processor Direct Program.

In 2004, Advanced Bionics was under another company called Boston Scientific when they had agreements with two Vendors to supply a part for the internal component. They noticed that the rate with Vendor B component was prone to moisture issues was 1% lower than the Vendor A component. AB issued a recall on their own accord recalling the devices due to the potential presence of moisture in the internal circuitry, which can cause the device to stop functioning. Not all of the Vendor B implants had this problem. Advanced Bionics has since resolved this issue by only using parts supplied by Vendor A. As a result, their total reliability has gone way up.

10. Processor Direct Program

Processor Direct Program minimizes the time waiting if you should ever need your sound processor replaced. Just call your audiologist and they will contact AB via our secure, automated website and upload your sound processor’s unique program file. AB technicians will load your program into a replacement sound processor and ship it directly to you. Because you receive a fully functional processor preloaded with your customized program, there’s no need to schedule a programming visit. That means more time for yourself and more money in your pocket.

Processor Direct is completely safe, so there’s no risk of hearing with the wrong program. AB’s secure website makes it impossible for your audiologist to upload the wrong program file, and for additional security, AB’s patented IntelliLink™ feature will not allow a processor loaded with the wrong program to work with your implant. You enjoy peace of mind knowing you have the correct programs—developed specifically for you. An office visit to program a replacement sound processor might not be covered by insurance companies, which mean you may have to pay the cost. With Processor Direct, no programming office visit is required and that means no unexpected costs.

11. Support

Advanced Bionics has the largest online community forum – Hearing Journey with over 4,500 users. It consists of CI candidates, recipients and parents of children recently diagnosed with hearing loss, parents of children that have cochlear implant and audiologists. It is a huge wealth of information as everyone rallies around for support, offers advice, shares tips and tricks about surgery or learning how to hear with a cochlear implant. There is a CI chat held every Thursday night from 8pm EST til the cows come home, that you can come and talk to other cochlear implant recipients, candidates, parents and audiologists. Just log in to Hearing Journey and click on the chat options and you are in!

Advanced Bionic has taken it one step further to provide one-on-one support. They have just launched a new site for cochlear recipients and candidates from across the country through its new "Connect to Mentor" Web site. The new site, part of the BEA (Bionic Ear Association) Mentor Program, that I and several other bloggers are a part of, allows cochlear implant candidates to contact volunteer "mentors" and communicate directly with hearing professionals. You see my smiling face on this site as well. :)

Candidates can use the Connect to Mentor website to search for mentors who include parents of implanted children, relatives of cochlear recipients and adult recipients. Each mentor has a profile complete with a personal photo and facts such as favorite sound, interests (i.e., cell phone user, traveler, musician), hometown, age they were implanted, severity of hearing loss and how they can help cochlear implant candidates. Then, candidates can choose to "start a conversation" with the mentor directly from their profile.

Binaural HINT Scores.

noreply@blogger.com (Abbie) — Thu, 14 May 2009 19:32:00 +0000

Hi!

The following blog is brought to you by:

Without it, there isn't anything getting done around this blog here. But through the miraculous powers of the coffee plant, I was able to devise this rather inspiring little chart of all my HINT (Hearing In Noise Test) scores.

Click here to make it bigger.

You will notice that my left ear before I was implanted was 0% across the board. This was an ear that has been unstimulated for over 15 years. I was pretty damn deaf in that ear. I can't argue with that. :)

The red column shows my progress with my left ear tested at one month post activation. I scored 44% in quiet. I was pretty elated to go from 0% to 44% in a matter of a month. I distinctly remember thinking that my brain was playing tricks on me because it was almost as though I had to learn to trust myself that I was hearing something correctly. As it would turn out, I was hearing it correctly half the time.

The lime green column is my left ear tested at five months post activation. It jumped up to 79% in quiet and 34% in quiet. I was practicing with an audiobook every single day for at least half hour to an hour. This was kind of at the point that my brain was sorting out speech in quiet and learning how to pick out what is important in noise. Baby steps!

The purple column is my left ear tested at one year. My score remained the same at 79% in quiet but my score in noise went up to an astonishing 73%. Since I scored so well with the first level of noise, my audiologist felt that I could handle the harder noise test and I scored 64%. I was downright impressed with my scores. Now, I was thinking that the benefit of a cochlear implant can really take up to a year especially on an ear that has been unstimulated for so long.

The dark blue column shows my left ear tested at one year and five months. I don't know whether I had a really good mapping at my one year appointment or my ear just blossomed but I scored 96% in quiet, 88% a little bit of noise and 84% with even more noise!

Now we are moving on to my right ear that has been stimulated all my life. the orange column shows my HINT scores when I was evaluated for a CI in May of 2007. I wish I could get my right ear tested before I had the surgery because I couldn't hear anything after I hit my head on the roller coaster. But in my total unprofessional opinion, when someone takes a loud speaker and talks to you about five feet away with a fully powered hearing aid in and you can't hear didly squat, I'm going to say my scores were next to nothing. Just saying.

The light blue column shows my right ear tested at one month post activation and it scored an AMAZING 85%! Now, it took over a year for my left ear to get up over 80%. Even with the first level of noise, I managed to hear 40%. That will get better as time goes on. Now I am totally giving credit to the substantiated claims that surgeons advice about implanting a better ear. They apparently know what they are talking about. :) It means that it is less stressful and the learning curve is much shorter. But you know me, I do nothing easy...

The mauve or dusty pink column shows them tested together. The results are nothing less them supremely impressive. I scored 97% in quiet, 85% a little bit of noise and 77% with more noise introduced.

I was so proud of the good job they did on the tests that I went right out and brought them a pair of earrings. :)

Northeast Cochlear Implant Convention 2009

noreply@blogger.com (Abbie) — Thu, 14 May 2009 13:25:00 +0000

I will be attending the Northeast Cochlear Implant Convention 2009 on July 10 - 12, 2009 at the Sturbridge Host Hotel & Conference Center in Sturbridge, MA where none other Josh Swiller who is not only pretty easy on the eyes but the author of “The Unheard: A Memoir of Deafness and Africa.”, will be the keynote speaker.

You can take a look at the 2007 convention pictures here. I have to say from looking at the pictures, this looks like it is going to be a fun group! Children, adults and workshops - oh my!

So what is this convention about, check out this snippet below.

Dear Families and Friends,

You are warmly invited to attend the Seventh Biennial Northeast Cochlear Implant Convention, to he held July 10-12, 2009 at the Sturbridge Host Hotel in Sturbridge, MA. On-line registration or registration forms will soon be available on this site. Call 1-800-582-3232 to reserve your room at the hotel, or on-line at www.sturbridgehosthotel.com.

Nearly twelve years have passed since our first convention in Sturbridge, in 1997. In some ways, the convention is like a school reunion. Lounging around the pool or at a party in a guest room, we catch up with our friends’ changing lives: new jobs, or maybe retirement; children progressing through elementary, middle and high school, and on to college. And incidentally, how are you or your child doing with the implant? How nice to hear that things are going well!

The theme of the ’09 convention is “We Hear the World.” It is a natural evolution from the previous convention themes of “Raising the Bar,” “Enhancing Communication,” and “Technology Rocks!” In “Raising the Bar” we considered the new higher standards for classroom acoustics, the rising performance levels of cochlear implants and assistive listening devices. The theme “Enhancing Communication” reflected the many new technologies and approaches for facilitating communication access by adults and children in a wide range of situations. “Technology Rocks!” addressed the many exciting technologies and approaches that can unlock communication potential and make possible more complete and satisfying human communication in school, at work, in social settings with friends, and at home..

“We Hear the World” celebrates the many examples of cochlear implant users participating fully and independently in the world around them. The keynote speaker at our upcoming convention, Josh Swiller, will offer some thoughtful and humorous insights about hearing the world and being a part of the world. Josh spent two years living in a rural village in Zambia. That experience is recounted in his book, “The Unheard: A Memoir of Deafness and Africa.” Josh has had a “ large variety of careers, including forest ranger in the California Redwoods, sheepskin slipper craftsman and salesman, Zen monk, raw food chef, journalist, and teacher. The title of Josh’s keynote address is “We Are the World.”

Hearing the world also implies that we listen with empathy and respond to needs that we learn about. Like everyone else, cochlear implant users experience passages in their lives. High school students leave home for college. College students enter the workforce. The generation born after WWII leaves the workforce for retirement, and many of those who received the earliest implants are now golden agers. New technologies and communication approaches can ease the transition to a more mature stage of life. At the convention we will explore these transitions to the next arena of life.

See you there!

Larry Orloff, Chairperson, President, MIC and Marilyn W. Neault, Ph.D., Co-Chairperson, Children’s Hospital Boston

So go ahead and download the registration forms here and I hope to see you there!

HLAA Convention - June 18-21st

noreply@blogger.com (Abbie) — Thu, 30 Apr 2009 22:11:00 +0000

Hearing Loss Association of America is holding its annual convention AND celebrating its 30th birthday in Nashville, Tennessee at the monolithic Gaylord Hotel on June 18th to the 21st. You can check out the convention registration package and rates here. Hurry though, the rooms at the hotel are at 98% capacity and registration ends on May 24th. So, break out your happy finger and click on this link for convention details.

The keynote speaker for this year is Vint Cerf, Ph.D., vice president and chief Internet evangelist for Google, and widely known as known as one of the “Fathers of the Internet." Anyone who had a hand in developing the Internet is alright in my book. He is hard of hearing and his wife is a recipient of a cochlear implant. I can't wait to hear Cerf's up!

I just so happen to have the workshop schedule here. If you take a gander, you see that Tina Childress and I will be giving a workshop called "Wireless Technology Made Simple", on Thursday, June 18th at 2:30. I'm so excited because I love bringing out the inner geek in people especially when it comes to helping them hear better with technology. :)

AND!

I am going to be representing Advanced Bionics on Bilateral Cochlear Implant panel that my buddy Wayne Roorda is hosting on Saturday, June 20th at 10:00. This panel will be made up of recipients of all brands. I encourage that if you have any questions or concerns regarding bilateral cochlear implantation and you are attending the convention, shoot an email to cipanel09@yahoo.com with your questions.

At the same time, my very best bilateral bionic belle, Jennifer and coincidentally Nashville's local HLAA Chapter President will be giving a presentation on Social Networking for Young Adults. She is just the person to give that presentation because she emanates social butterfly! On another note, please help Jennifer reach her goal for the Chattanooga Walk4Hearing on May 16th.

AND!

I will be volunteering at the Advanced Bionic booth just waiting for people to pick my geeky brain about cochlear implants and the Harmony processor.

AND!

I am HLAA's 2009 convention blogger!

I got some pretty big ears to fill here...

Your Hearing, Your Life - Free Seminar in Melville, NY

noreply@blogger.com (Abbie) — Thu, 30 Apr 2009 22:00:00 +0000

I'm attending this free Seminar on May 11th, 7-9pm at the Melville Marriott Hotel in Melville, NY on candidacy and advancing technology in the treatment of hearing loss. Sponsored by Advanced Bionics.

Featuring Speakers from North Shore Medical Group, Mount Sinai School of Medicine.

Eric Smouha, M.D., ASSOCIATE PROFESSOR Otolaryngology
Karen Siegel, Audiologist
Christie Haug, Clinical Specialist Advanced Bionics
Katie Peter, Regional BEA Manager, Advanced Bionics

Space is Limited! To register for this free event please contact:

Linda Luallen at lluallen@AdvancedBionics.com
866.844.HEAR (4327)
TTY 800.678.3575

If you are unable to attend our event and would like information
about cochlear implants, contact The Bionic Ear Association at
hear@AdvancedBionics.com or call 1.866.844.HEAR (4327).

May 11, 2009 • 7:00 p.m. – 9:00 p.m.
Melville Marriott Hotel
1350 Old Walt Whitman Road • Melville, NY 11747

First Bilateral Mapping...

noreply@blogger.com (Abbie) — Sun, 12 Apr 2009 14:23:00 +0000

This week has proven not be superfluous but surprisingly productive towards the end. The first couple of days, I would be sprawled out on my recliner, cupping my chin in my hand and staring into space wondering why in the HELL everything was plinking. People plinked. My dog plinked. She was plinking all over the house. I was ready to take her plinking fuzzy butt and have her deplinked. The leaves plinked. The wind plinked. My breathing plinked. Paper plinked. Staplers plinked. It was a plinkerific mess for the first couple of days.

As each new day dawned, the chipmunks have gone into hibernation and the robotic voice synthesizer has come out to play. The plinking began to lessen leading the way to the subtle phonetic nuances to enter the foreground. Of course, this wasn't entirely clear to me until I picked up the phone and heard a series of numbers correctly. First, I thought that I got them wrong but I listened with my old ear which proved me wrong. I was hearing nothing but plinking, and unknowingly I was understanding more than I thought. I took me several weeks to understand numbers with the old implant. The last time I could understand anything on my right ear on the telephone was February 22, 2007.

Naturally, my optimism levels rose. I decided to tests my brain out to see what else it was hiding from me. I had the LING sounds read to me, and I guessed all but one correctly - EEE. In the beginning I thought there was no way I could start auditory rehab with everything beeping, boinging and plinking but with my newfound discovery, I threw myself into it. My first "lesson" is Twilight by Stephanie Meyer. I downloaded the audiobook on my ipod and plugged myself in via the Direct Connect cord. I could tell that it was a woman narrating the book, but in real life I had difficulty discriminating between a male and a female. I was not expecting much - a phoneme or two, but much to my surprise I was sporadically picking up broken sentences. I was throughly confused when I closed my eyes to understand real live speech, I felt as though I wasn't picking up diddly squat. But, when I had myself plugged into the Ipod I was picking up strings of words. I've deduced that my brain is playing tricks on me.

This whole week I had the chance to adjust to HiRes - P. In the beginning, it offered me less plinking than HiRes - S. So, I stuck with P all week but on my way to my first mapping this morning, I put the ear buds from my Ipod into my ear to listen to Twilight and noticed that I was picking up a lot more road noise than I liked. I decided to cycle through the programs to see whether the other two could filter out the road noise. I was pleasantly surprised that when I used HiRes-S at how well it filtered the road noise. I was even more surprised at how well I was understanding - far superior to what HiRes-P was giving me. At the last moment, I decided on HiRes-S as my speech strategy.

As I was waiting in the waiting room, I sat a good 20 to 25 feet at a distance from this secretary who was brandishing a very shrilling piece of machinery - a stapler! I was dying listening to every time she felt the absolute need to fasten some papers together which happened to be every ten-seconds. Then my audiologist came and rescued me. First, she performed what is called a NRI test which measures the nerve response to electrical stimulation. I didn't have to do anything but sit there and look out the window watching clouds roll in. This gave us an indication of where the volume should be and it was right in the ballpark.

My main issue was the robotic voices and certain high pitched tones such as staplers, dishes, and squeaky doors, paper and numerous others were causing me to brace for the auditory attack. It doesn't hurt, but it just makes me acutely alert that they are there! So what my audiologist did was raised the volume and added some gains in the high and the lows frequencies. As I expected, we could not map out the robotic voices but we got them tamed. My brain will acclimate in the coming months. This took just a half hour, I was out the door and on my way home. Once I got home, I crashed...

Since it has been a few days, I can make an honest assessment of the mapping. My voice sounds like Darth Vader which is really testing my ability to have a conversation without laughing. I can tell the difference between a man and a woman's voice. I noticed that while I am reading along with the audiobook, the frequency that I am picking up sentences is increasing. Yesterday, I was driving with a friend in the passenger seat and I could understand him without reading his lips even when night descended. Since my first implant was on my left ear, there was always a degree of difficulty with hearing people in the passenger seat but that has become easier.

For me, this bilateral process is like waiting for a flower to bloom. I know the seed has been planted. I'm watering the seed by wearing it by itself as much as I can. I'm fertilizing it with auditory rehab. I'm providing the necessary light by venturing out into different environments. For I know that this cannot be rushed and all I can do is wait. I'm just thankful that I don't need a green thumb for this. :)

Bilateral Activation

noreply@blogger.com (Abbie) — Fri, 03 Apr 2009 17:26:00 +0000

My new ear was activated yesterday and the results were very promising. When my audiologist plugged me into the computer, I could have sworn I heard something – a surge of electricity but at that point my audiologist didn’t even touch the volume control. As my audiologist gradually turned up the volume, I watched her lips emit an artificially high-pitched voice. When the volume reached a tolerable level, I actually HEARD but I didn’t understand her talk where with my first ear; I wasn’t blessed hearing any type of vernacular. Naturally, my response was giddy since she talked like a chipmunk. :) It was difficult to keep a straight face while trying to effectively describe what I was hearing.

Once we fiddled around with the new ear, they decided to throw the old one back on to see whether I have a sense of balance auditory wise. I immediately had to turn the volume down on the old one. I could tell that I was hearing in stereo because the auditory input in each ear was dramatically different. My old ear was well, my old ear. My new ear was beeps, bongs, whistles. After a few minutes, my old ear decided to become the dominant ear. Once it did that, it somewhat canceled out some of the beeps, bongs and whistles.

No one took pity on the deaf girl because they started ripping paper, banging on the table and tapping their nails. The entire activation took less than an hour. My audiologist didn’t have to explain anything to me since I am a seasoned pro with the implant business. :) Since I went through this process already, I was very conservative volume wise. With my first ear, it was my initial instinct to amp up the volume because that is how you hear with a hearing aid. This time around, since I know what I know now, I know that you can’t rush it. Your brain will tell you what it wants, when it wants it. I was fitted with a Hi-Res Paired program with Fidelity 120, Hi-Res Sequential program with Fidelity 120 and a Hi-Res Paired noise program with Fidelity 120. I get to cycle through each one for several hours to see which one I prefer. My audiologist strongly suggested that I leave my old one off as much as possible to give my new ear some time to play catch up. Joy. :)

After activation, I walked out of the hospital with my slot firmly in position for Hi-Res Paired program with Fidelity 120 and unknowingly walked into the world according to Super Mario brothers. All sorts of beeps, buzzing, and bongs just pulsing away in my head. It sounds all futuristic but emanates the past of the arcade games from the 80’s.

Just driving home was a trip having the wonderfully iconic BOING of Super Mario powering up as I drove over every bump on the road. The only thing that really stood out is when I yawned a good healthy yawn – it sounded like a very horny orca performing their mating call. Feel free to YouTube that. I had noticed that I was unable to hear my blackberry chirp or croak when someone sent me a message. A few hours later, I could hear it. When I first got home, I couldn’t hear my dog’s toenails click clack against the floor. A few hours later, I could. I must have walked her up and down my 15 foot hallway about twenty times to hear it. I’m sure she thought I had gotten lost in my own house. :) I can tell when someone really has a good laugh. That is probably the only thing that I can pick out right now. BUT, I did pick up that there were some drums playing on the television.

I learned a little something about bilateral mappings – it wears you out. I mean my mappings for just one were a bit tiring but two – Oy! I’m not a napper by any means because I’ll sleep when I’m dead. But I buckled under pressure and took a twenty minute snooze.

This morning I decided to give Hi-Res Sequential program with Fidelity 120 a whirl – at work. I am sitting here with my hair down cleverly disguising two cochlear implants - the new one attached and the old one with the coil hanging just in case I need to use the telephone. it looks like a very ugly earring. Instead of listening to the world dictated by Super Mario Brothers, I am on the Galactic Republic listening to the auroral radio chatter of R2D2. When someone talks, it is as if R2D2 has a hyperactivity disorder – different beeps, bloops, and whistles randomly and furiously. And I am supposed to figure those out. :) I am listening to rain and it sounds like when Sonic the Hedgehog is collecting a whole mess of rings. When I walk down the hallway with my heels, I feel as I am walking with the weight of an elephant because it is very loud.

All in all, I am thrusting myself into the noisy world starting from scratch – hearing everything for the first time – again. I forgot how much I loved this process. :) Everything that I am hearing, coincides with a sound immediately. That pleases me. The toughest part about this for me is leaving my old ear off but I will remain diligent. My next mapping is next Friday on April 10th and that is when the real fun begins. For now, R2D2 and I are going to be buddies for the next week.

Recovery From Going Bilateral...

noreply@blogger.com (Abbie) — Thu, 26 Mar 2009 15:18:00 +0000

I have been awful about updating my blog but I'm a busy bilateral bee. I got my stitches taken out on Saint Patty’s Day at some gosh awful time of 7:45 in the morning. The doctor said everything looks great. As I mentioned in my other post that when I was in the recovery room, the doctor said something about a hole in my head but I was a little preoccupied with organizing a manhunt for my Blackberry to care about a little hole in my head. I was concerned about it later on.

As I was getting the stitches ripped out of my head, the subject of the hole happened to come up. The area where the surgeon wanted to create a bed to put my implant in was thin and in doing so small part of the Dura Mater which is the covering of the brain had a hole in it and some cerebrospinal fluid leaked out. The surgeon had to patch that up. It is a similar to when they implant a baby because their skull is thin and pliable. First, I was a little freaked out because I was envisioning this implant sitting right on top of my brain but it is actually sitting on mostly skull except for a small portion of Dura Mater. That makes me feel a little better. I had to ask if I had to take any extra caution in activities and he told me to use common sense - right.

After the question and answer session with my surgeon, I preceded right back home to take a much needed shower. I admit that with this surgery, I was not as strict with the doctor’s orders as I was the last time. Day three, I decided to throw caution to the wind and slather the incision up with Neosporin and hire a cheap shampoo girl (Mom) to wash my hair. Afterwards, I dried the incision thoroughly with Hydrogen Peroxide and applied a layer of Neosporin. I guess I should put a half hearted disclaimer here: If this influences you to blatantly disregard your doctor’s orders, I am or this blog in no way shape or form responsible for your actions.

Now with the legalities out of the way, I wanted to create a post specifically to compare and contrast my left ear which was my first implant and my right ear which is the newest addition to magnetville. I revisited my surgery posts for my left ear. A wave of nostalgia came over me but I'm over it already. :)

Here goes.

Recovery room:

LEFT: When I woke up in the recovery room, I was in a good amount of pain. I felt as if my head got ran over by a Mack truck. The nurses were quick to shoot my IV up with some pain relievers. God bless them. It took a little while to come around from the anesthesia. I was under for three and half hours because my doctor had some issues getting the last electrode in but finally got the bugger in.

RIGHT: This time, I woke up with very little pain. I was able to wake up quicker since my surgery was only two and half hours. I was up and around within a half hour. The surgeon had no problem getting all the electrodes and the only issue were the leaking brain juice.

Sleeping:

LEFT: I parked my big ol’ butt on a recliner for a week. There was no way, no how I could lie down. When I tried to lay flat in my bed, I experienced the sensation of a spinning vortex. So the recliner it was for me.

RIGHT: The first night, I slept on an incline but by morning, I was sleeping flat on my back on a pillow and have continued to do so.

Pain pills:

LEFT: I was given the generic form of Vicodin that I was instructed to take two every four hours as needed. Well, I needed the whole damn bottle because I felt as if I got into a car accident with the aches and pains. I was a pill popping freak with this surgery.

RIGHT: This time around, I got the good stuff - Percoset which did the trick beautifully. Strictly for pain management - one in the morning and one at night for five days then I switched over to Tylenol gelcaps. One bad side effect of Percoset is constipation so try to increase your daily intake of fiber while popping the perks. :) Words of wisdom.

Metallic Taste Disturbance:

LEFT: I didn't get this side effect the first time and anytime I read that someone suffered from it, my reaction was always the same - dude, that sucks.

RIGHT: What goes around, comes around and it rolled around on day four, I went to take a sip of coffee that I had slumberly prepared that morning and as it coated my taste buds, a distinct copper flavor was detected in the right hemisphere of my tongue. Much to my dismay, I went on a coffee hiatus. It took about a week and a half for that to go away and for that next week and half, I found out what the headless horseman felt like but I lost four pounds. :)

Day of Doom: Day Three

LEFT: When day three rolled around, I was feeling pretty crappy.

RIGHT: When day three rolled around, I was feeling so good that I went back to work on day four which I will now admit was a very stupid move because I was so drained just sitting there. I resumed my right to recovery at home on day five with all the Food Network I could watch.

Dizziness:

LEFT: The only time that I experienced dizziness was when I laid down and I tried very hard not to do that!

RIGHT: Nothing at all :)

Fullness:

LEFT: I remember getting the cotton ball feeling with this ear for about two weeks.

RIGHT: The only time I experience the sensation of fullness is when I bend over.

Jaw pain:

LEFT: My jaw was tender but I could eat a hamburger without cringing in pain.

RIGHT: This time around was ouch. the jaw tenderness was bumped up a couple of notches. I couldn't yawn without flinching. Since opening my jaw anymore than an inch caused me to wince in pain, food preparation was a fiasco. Everything had to be in extra small bites.

Swelling:

LEFT: It was the fattest ear that I have ever seen in my life.

RIGHT: If I had any swelling, I couldn't tell and neither could anyone else. By the third day, curiosity got the best of me because I wanted to see whether the magnet from my processor could find the implant. It had no problem attaching itself.

Numbness:

LEFT: The top of my ear felt as if it had been anesthetized for three months. It took about three months for me to get feeling back into my ear. I could not sleep on for three weeks. In fact, the day of my activation was the day I was able to sleep on it.

RIGHT: Considering that I am two and half weeks post surgery, it is still numb but I can sleep on it now!

Tinnitus:

LEFT: Before the surgery, I had a major case of tinnitus that sounded like a train going around my head. After the surgery, I woke up to complete quiet. It was so pleasant to have that turned off. :) I did experience short episodes of tinnitus but after activation, it was gone.

RIGHT: I had some minor tinnitus before the surgery. After the surgery, it was like a different album was playing. Now, I don't hear much of anything except on occasions. I expect it to be less than noticeable when I get turned on.

Nose blowing.

LEFT: I don't even want to recount the anguish I went through when I just attempted to blow my nose with this surgery. I was truly paralyzed in pain.

RIGHT: Considering the painful experience I had with the left ear, I didn't want to take any chances. I decided to follow doctors orders on this and wait the two weeks before I attempt to blow my nose. The result was snot and a slight ear pop. :)

Neck stiffness:

LEFT: My neck was a little stiff but not near as stiff as the right ear.

RIGHT: My neck was stiff for about two weeks until I could move my neck side to side with no problems.

Bruising:

LEFT: I looked like I got kicked in the side of the face by a mule. It wasn't pretty.

RIGHT: I think I had a slight discoloration on my temple. Other then that, I looked good.

Tiredness

LEFT: I was popping so many pills that knocked me out that I was having cat naps every two hours.

RIGHT: I was tired but not to the state of nap time. :)

Driving:

LEFT: I didn't dare to drive until the sixth day. I cherished the fact that I had a driver license.

RIGHT: I was driving by day three despite the stiffness I had in my neck.

In conclusion, my right ear surgery and recovery went much smoother then the first one. It was so drastically different. Here I am two and half weeks post surgery and I am back to work full time. I went back to the gym doing light work outs. My incision is healing quite nicely. It really has been a super simple recovery. My activation is a week from today - April 2nd at 2pm.

The only gripe I have about this surgery is finding out that I am not as thick headed as I thought I was.

Order the Charity Book "I Don't Believe My Ears" Today!

noreply@blogger.com (Abbie) — Wed, 25 Mar 2009 12:35:00 +0000

The charity book project, I Don’t Believe My Ears, is finally completed after several months of assembling it together. Val Blakely from Cochlear Kids and Rachel Chaikof from Cochlear Implant Online would very much like to thank all these contributors who submitted wonderful and humorous stories:

Me :) at Chronicles of a Bionic Woman
Amy Kwilinski at CochlearImplant.net and Auditory Verbal Parents
Ann Lovell
Beverly Spenser
Diane Beltrami
Jodi Cutler Del Dottore at An American Mom in Tuscany
Kara Hendrick
Kim Larsen at The ASL-Cochlear Implant Community
Kimberly Pendley at Can you hear me?
Leaf Leafler at Say What?
Leslie Hine at The Hine Family Est. 1996
Liz Hupp
Melissa Chaikof at Auditory Verbal Parents and Cochlear Implant Online
Melissa Krilosky at Our Journey to the Hearing World
Samantha Trueblood
Val Blakely at Cochlear Kids
Vicki

All proceeds will go to Deafness Research Foundation, a non-profit organization 501(c)(3) that works to fund research to help those living with hearing loss and balance disorders, and on programs to raise awareness of potential causes to protect those at risk.

Go order one today and help create a difference for today’s generation and the future generation of deaf people and have some good laughs!

Officially Bilateral!!!

noreply@blogger.com (Abbie) — Thu, 12 Mar 2009 17:08:00 +0000

Today is day four of my recovery from my second cochlear implant and you will never guess where I am - I’m sitting at my desk at work, sipping on a cup of copper flavored coffee skillfully prepared by the professional coffee artisan across the street. I’m visually picturing you – my loyal readers – jaws dropping right about now.

But I am not kidding you.

I have been totally unenthusiastic about going bilateral even though I have a swarm of bilateral buddies swearing up and down that two is better then one. I would just nod in agreement just to hush them up. When I had my first cochlear implant surgery, I felt a sense of urgency to get it done. It was either to remain deaf or given the possibility to hear and I chose the latter. I had a rocky recovery with my first cochlear implant surgery and I was hesitant going through the whole ordeal again though I know the benefits far outweigh a few days of feeling as if I got ran over by a train. With that in the back of my mind, I had no immediate desire to go freely jumping on the bilateral bandwagon. But then you read studies like these:

Bilateral cochlear implants: A case when 2 are definitely superior to 1

Adult Bilateral Study PDF

And ponder if it is really worth it? But then, what did I have to lose? So I finally got a surgery date of March 9th and insurance approval for going bilateral a week before going under the knife.

On Monday, I had to report to a different building then my first surgery. It was a happy building - lots of shiny stuff that caught my eye. The sage green aesthetic calmed the most neurotic of patients. I had to be there around 9:30 and I was a little late, of course, but they still took me in anyway. They slapped the identification bracelets on me and made me get undressed. They let me keep my skivvies on because last time they demanded them off which is a bit embarrassing. :)

Just like last time, I gave the nurse one chance to get the IV in. I start practicing my lamaze breathing and pop she got it in on the first try. She decided to put the IV in my arm as opposed to my hands which has some thin veins. I had a horrific experiences where a nurse tried six times to put an IV in my hand. I ended up passing out and was put on oxygen. Hence the reason I have a rule in place, one shot and that it is.

Then the gas man with this unbearable accent came strolling in my little curtained in area. I get nauseous with anesthesia so I asked him to put some extra anti-nausea stuff in with my cocktail. However, I had such a hard time understanding him. He was Indian with a heavy British accent that had no desire to move his lips to enunciate. He just gave up with me and carried on talking to my friend as if they were a bunch of little old ladies about smart phones. After he left, I bawled out of sheer frustration. My favorite bilateral bionic babe, Jennifer managed to get my tears down to a mild drip just in time for my surgeon came in. He recapped the procedure as he marked my ear lobe with a teeny tiny X.

Shave some hair. Slice the ear open. Drill a well. Drill a hole. Slip the implant in there. Boot it up. Stitch me up and ship me home.

Super simple stuff – really.

Just before noon, they got smart and sent a native English speaking member of the anesthesiologist team this time to wheel me back to the OR. They were so kind to let my implant come along for the ride. It was similar to playing bumper cars on the way there. The chairs that they use don’t exactly go around curves well. With some narrow hit and misses, I hopped up on the table.

Then the gas mask came out. The last time they used the mask, I actually tried to rip it out because I felt as if I were making a mistake getting the implant. Silly me. This time, I felt at peace and drifted off.

The surgeon got all 16 electrodes in and stitched up by 2:30. I was told that the area where he wanted to place the implant was a little thin and that there was a hole already there (scratching head) but he spackled it. I will find out more about that hole that was in my head when I see him on March 17th to have the stitches removed. I woke up in recovery around four o’clock and it was worlds apart how I woke up the first time. I felt dopey as all hell. With the first surgery, I felt like a mack truck ran over my head and a bit dizzy. With this surgery, I didn’t feel any pain, pressure, dizziness or taste of metal. I hardly noticed the traditional turban but I was able to wear the cochlear implant over it.

Within a half hour, I was up and using the lavatory all by myself. I was drinking water and questioning on the ETA of my applesauce. They decided to inject some pretty potent pain medication in my IV which made everything wrong seem right in the world. They kicked me out of the hospital around five o’clock.

When we got home, I walked into Walgreens and drop my prescription off. After that, I plopped on the couch and got the royal treatment for the rest of the night. I mean - homemade spaghetti and meatballs with warm apple pie! You can’t go wrong with that! With my first one, I had no problem eating but I did have a problem with sleeping. I slept in a recliner to keep my head elevated but with this ear, I slept flat on my back.

The next day, the sadistic piece of gauze that was wrapped around my head a few hundred times came off. I was pleasantly surprised. I think my tears worked on my surgeon because he did not shave off nearly as much hair as he did before. Notice my picture of my first ear incision compared to my second ear.

Another pleasant surprise was that I got the good happy pills this time and not the generic version of Vicodin. I got some pretty white round pills of Oxycodone. With my last surgery, I was popping the two Vicodin every for hours. I take maybe one every 8 hours.

Yesterday was the dreaded day three of the recovery process. It is usually the day that most people feel really crappy. With my first ear, I felt horrible from day three to five but I felt disgustingly good. I have virtually no swelling whereas the last time my ear needed liposuction. It was gross. I woke up and started cleaning. I went for a drive and did a little grocery shopping. Just out of curiosity last night, I decided to dangle my magnet and see if it would attach itself and sure enough, it attached. That oughta tell you how much swelling I have. This recovery process is just so hard on me... :)

And today, I woke up with a slight metallic disturbance amidst my taste buds. This is new but it is not uncommon. I didn't have this with my first implant. It is pretty annoying and I find that really sugary substances like grapefruit and apples - do not taste good. Other then that, I'm feeling peachy...

Activation is on April 2nd!

Bilateral Surgery Date...

noreply@blogger.com (Abbie) — Mon, 02 Mar 2009 04:00:00 +0000

I know it has been a while since I have brought good tidings to my blog. I have been poked, prodded and even had a sheep thrown at me as means to inquire into my whereabouts. The sheep did me in. But first, I like to take the time to thank the highly anticipated gazillion snowflakes that I will have to shovel and then risk life and limb to drive to work tomorrow for the time to sit and down and update this blog.

The breaking news that I have is that in a week on March 9th, I'm going bilateral. That's right folks, I am going under the drill again and getting my right ear implanted.

The countdown begins now.

Music Video Featuring Sign Language

noreply@blogger.com (Abbie) — Sun, 04 Jan 2009 16:32:00 +0000

Every morning before I begin to assemble myself, I read Perez Hilton as well as CNN news. I happened to notice that the Perez posted a video by an Aussie pop singer named Sia who uses Sign Language in her latest video, "Soon We'll Be Found". I fell in love with the song, the video, the psychedelic utopia of trippy colors and decided to caption it.

If you cannot view the video, click here.

Why did she choose to sign in her video?

"Sia decided to sign as well as sing the song, in honor of the language and those who use it to communicate. “I've always been obsessed with the beauty of sign language,” Sia explains. “To ignorant hearing me, the movement and expression appears as a dance -- a beautiful, emotive dance. But the real beauty is the communication hidden within these perfect shapes.”"

But I can't tell what the hell is being said after 3:30 seconds. I think it is vocalizations with her repeating "I know we're lost but soon we'll be found". So if anyone with better ears then mine, not an impossible feat might I add :) could take a listen to the video and figure it out for me, that would be absolutely superb :)

Update on the MRI Mix Up

noreply@blogger.com (Abbie) — Sat, 03 Jan 2009 02:34:00 +0000

Last year is now a form of the yesterday.

This year is now a form of tomorrow.

And with this new tomorrow, delivers answers that yesterday couldn’t provide.

Deep, right?

:)

Seriously, with the new year, comes new answers. The short version is that I do have Enlarged Vestibular Aqueduct Syndrome (EVAS) as confirmed by the CT Scan. If you have absolutely no idea what I am talking about, a nimble little summarization of my last post:

None of the medical quacks I have seen in the past have managed to figure out exactly WHY I am the way I am - deaf and the only one in the family too.

Fast forward to twenty-four years later, my cochlear implant surgeon discovers that I have an Enlarged Vestibular Aqueduct on the CT scan or MRI film. Uncertain which one he had used to diagnose EVAS but I was happier than a pig in poop that I had an answer. In my eyes or ears, depending on what orifice you want to use, it was the golden grail of my deafness. My surgeon kept the CT scan films because that is what he is going as a guide to implant my other ear and sends me home with the MRI films.

Seven hours later around eight o'clock at night, I was sitting in my favorite chair with my dog asleep at my heels dreaming of the freshly baked carob chip cookies and peanut butter barkcuits, I just happen to be nosing around in the envelope containing the MRI films and discovered that most of the films don’t belong to me.

In my appalled state, my findings immediately tainted the doctor’s diagnosis because I was unsure what films he used – the CT scans or the MRI films. My dog woke up at this point.

Before my eyes glazed over in premenstrual madness, I could see that the information on the MRI films gave me the name of the facility, the patients name, date of birth and the date the tests were done. Very convenient. The date matched the date that I had my tests done. So, the radiology facility that I had the tests done at had given me the wrong MRI films!.

I've been quite the busy little bionic bee trying to get to the bottom of this but because of the holidays, it has been a slow crawl. Note to you all, just in the case where you feel the desire to go snooping around around your medical files, do it during normal business hours. It will save you much grief. But with just a couple of emails, I could confirm that my surgeon used the CT scan films to determine that I have EVAS. Whew! To alleviate any doubt, I had them double check to verify that all my CT scans belong to me.

This brings me to shifting my focus on the facility where I had my CT scan and MRI done. I shall return the MRI films that do NOT belong to me but I just want the radiology facility to provide me with a copy of my MRI films which they are giving me a little issue. I’m in duel mode right now for that. I want them to reread my films because this mix up has created a little thundercloud of doubt about the authenticity of the MRI report.

In the grand scheme of whole medical screw up, it was most likely a very honest mistake that I ended up with someone elses MRI films. It happens and no one got hurt, thankfully. Logically, I would have liked SOMEONE to have caught this instead of me discovering it over a year and half later.

But back to the fact that I have an answer which is all I ever wanted. My mother always had it in the back of her mind that maybe it was the antibiotics she took when she was pregnant with me when she had pneumonia. Ototoxicity is a real issue, so it was plausible. My father always had it in the back of his mind that maybe the piece of meat I swiped off the counter that caused E. coli that could have caused it. I had a high fever with that, so that could have killed my hearing. I always wondered which one of my many childhood illnesses that I had could have caused it. I mean I was anemic, I had blood transfusions, I had my tonsils ripped out along with my adenoids. I was a sniveling mess of a child with a very lengthy hearing history.

It is a huge relief to know it was something that I was born with and it was inevitable that I would become profoundly deaf. It was all me and it was meant to be.

Finally, an Answer to Why I'm Deaf or a Total Medical Screw Up!?

noreply@blogger.com (Abbie) — Wed, 24 Dec 2008 04:21:00 +0000

I took a trip out to University of Pennsylvania Hospital today with my CT Scan and MRI results in tow to start the process to have my right ear implanted. My right ear was a candidate last year but I still have to go through the whole process again minus all the tests. I don't have to redo the CT Scan, MRI or the balance tests. I don't need to have any audiological testing done because it's not as though my ears have gotten better :) In fact, my right ear, the one I wear a hearing aid in has finally gone kaput. I might as well should put it to good use! I am still a candidate and I don't have a surgery date yet because there is an issue with my oh-so-wonderful-union-backed-health-insurance canceling the contract with the hospital and they want to assure they get approval so I am not stuck with a hundred twenty-thousand dollar bill. And quite frankly, I want assurance that I am not going to get stuck with a hundred twenty-thousand dollar bill too. But that is another blog entirely.

When I saw the doctor, he came in and sat on the chair. He leaned back and crossed his legs, interlocked his fingers and rested them gingerly on his lap while he gave me the best present that I could have asked for: the answer to the age-old question of why I am deaf since no one seems to know why I have a hearing loss since I am the only one on both sides of the family that is deaf.

"Abbie, you have what is called Enlarged Vestibular Aqueduct." He says.

"En-larged Ves-ti-bul-ar Aq-ue-duct." I repeated after him, syllable by syllable.

I presumed to steam roll him with questions. With the recent advancement of MRI technology, it has made it much easier to diagnosis this. A CT Scan can appear normal but with an MRI you can actually see the enlarged duct and sac. He explained to me that I was born with it. Most children that are born with this don't lose their hearing until three or four years old since this is when the Vestibular Aqueduct reaches its normal adult size. Figures, I would have something enlarged in my ears. My ass is enlarged. My chest is enlarged. So why not my something in my ears! The second I left, I was determined to become a self proclaimed expert via the way of the Blackberry of this Enlarged Vestibular Aqueduct Syndrome. And everything that I have read so far, fits perfectly. From the reason I feel as if I have fluid in my ears after I get my head jarred to the sudden deafness to the progressive hearing loss and how the one side worse than the other. It fits. This will be a separate blog too. I know, I know, what is the point of this blog you ask? Just hold on to your candy canes, I'm getting there.

My answer to my deafness has long be undetermined but I finally have an answer or so I thought.

Since I was stuck in traffic for a greater part of the day, I spent much of my time on my blackberry reading about this Enlarged Vestibular Aqueduct Syndrome. This shouldn't surprise you because when I get interested something, I research it to the death. But anyway, I finally got home from finishing up some Christmas shopping. I decided in all my professional incapacity to take a look at my MRI results. I never took a look at them before so I figured why the heck not!

I cracked open the huge Manila envelope and as I removed the MRI sheets as if they were made of glass. There was a ton of them! I carefully pick one up and hold one up to the light and started to admire each of the images on the film. I couldn't help but think they look like a very boring black and white Andy Warhol painting. They were arranged four across and five down: 20 images total on a single sheet of film. Like this:

I had no idea what I was looking at but I just so happened to take notice of a name at the upper right corner of each tile - a Wayne Something. Note: I changed the name to respect this person privacy.

First I thought it was the name of the person who performed the test or the name of the radiologists but I read further: Pat.: Wayne Something born in 1952.

Ok. That means patient.

I picked up another sheet of film. Wayne Something.

I picked up another one and sure enough, Wayne Something again!

And another one, Wayne Something.

I'm sensing a pattern here.

Yet another sheet, WAYNE SOMETHING

Picked up another sheet and saw a familiar name, MINE!

All in all, a total of four sheets belong to me.

All twenty other sheets belonged to Wayne Something born in 1952!

Ok. I thought maybe the hospital might have incidentally given me back someone else films but I checked out the date that Wayne Something born in 1952 had his MRI done. It matched the same date that I had mine done.

I’m attempting to think logically here because I am so frigging furious and I am pms'ing and all the dark chocolate in the world isn't calming me down. The answer that my entire family and I have all been waiting for was just handed to me on a silver platter and NOW, the possibility that the diagnosis was based on WaynE Something born in 1952 films and not my four friggen MRI films.

DO I LOOK LIKE A FIFTY YEAR OLD MAN TO ANY OF YOU?!

No, I didn't think so either. My so-called logical thinking has lead me to conclude that when I went to pick up my MRI films, they gave me Wayne's films and I never had a full set of MRI films to begin with.

What is really upsetting me is what if the doctor based his diagnosis of having Enlarged Vestibular Aqueduct Syndrome on HIS sheets and over looked the name?

That means I am back to square one without an answer to why I am deaf.

The hell I'm going back to square one without a fight. First thing tomorrow morning, I'm calling the MRI place, calmly, and tell them what happened and politely request (demand) that I get my full copy of my MRI results. I am sincerely hoping that they still have a copy of my MRI films because this is dating as back to early 2007. I will request the radiologist to measure the size of my vestibular aqueducts to see whether the doctor diagnosis is correct.

I practically screamed my friends ear off on the phone tonight reciting this entire SCREW UP to her and I decided it was time to give her a word in edgewise because I puffed out all the oxygen in my lungs. First thing she does, is her worst impression of Barry White singing,

"Happy Holidays!"

Stay tuned folks and have a great holiday! :)

MRIs and Cochlear Implants

noreply@blogger.com (Abbie) — Thu, 04 Dec 2008 02:57:00 +0000

Let's talk MRIs.

When I went to Chicago for the ALDA convention, I met several people that didn't want to get a cochlear implant because they need an MRI every six months. I will admit when I first started researching cochlear implants, MRIs was not a major concern of mine. I just read the I can have a MRI done if the magnet was removed. Fine. Great! That is all I needed to know but now I realize how much it means to others that suffer from other illnesses where they require MRIs.

Why would a person need to get one? MRIs provide better contrast in soft tissue, which helps to distinguish between normal and diseased tissue. MRIs do not show bones like a CAT scan or X-Ray. Brain tumors, strokes, multiple sclerosis and Neurofibromatosis, type 2 (NF2), are diagnosed by an MRI. Which means anything metal - paper clips, pens, keys, jewelry, scissors, underwire in your bra, belts, glasses and any other small objects can be pulled out of pockets and off the body or out of the body can become dangerous projectiles hurdling at the opening of the tube at incredibly high speeds.

Joy. Its a good thing that they make you remove anything metal.

Could you imagine if someone left a tongue piercing in and they turned the MRI machine on? Ouch.

Anyway, I did me a little research on MRIs. The magnet in an MRI system is rated using a unit of measure known as a Tesla and they are grouped into three fields.

Low-Field = Under .2 Tesla

Mid-Field = .2 to 0.6 Tesla

High-Field = 1.0 to 1.5 Tesla

What is the difference between low-field and high-field? The high-field setup has superior image quality AND has a higher rate of detecting tumor remnants. This abstract that I found supports that statement. The next generation of MRIs are circulating around at the strength of 3.0 Tesla.

Sounds like the higher the Tesla - the better the detection rate. I would imagine it would be like going from a two mega pixel camera to a ten mega pixel camera.

Now both Advanced Bionics, HiResolution Bionic Ear System's HiRes 90K implant and Cochlear Americas, Nucleus Freedom is MRI Safe up to 1.5 Tesla with the internal magnet removed.

I took a look at Med-El's website and discovered in bold letters, MRI Safe - Without Magnet Removal. Leaping lizards, no faking! They don't require the internal magnet to be removed. In fact, it is designed where the magnet can't be removed at all.

That cool!

But then I read the fine print:

In the US, PULSARCI100 and SONATATI100 are currently approved for use at a scanner strength of 0.2 Tesla.

Oh. That means recipients of a Med-El device can only use MRI's rated at low-field strength of 0.2 Tesla where they could be sacrificing image quality that could lead to a potential misdiagnoses.

What if one with a Med-EL device wants a high-field MRI that has a better image quality and higher rate of detection? Does that mean the entire implant has to be removed because they don't have a removable magnet?

Yikes.

This is a link to an article that talks about the latest MRI machines that are rated 3.0 Tesla which can demagnetize an implant. It also discusses how there is permanent damage to devices with non-removable magnets such as Med-El's PULSARCI100 and SONATATI100.

However, I'm privileged to know someone in my harem of cochlear implant users that had an MRI done and had the internal magnet removed and what he had to say really calmed my nerves if I ever had to get one.

First of all, it seems to be kind of a rare event. My surgeon has performed over 550 implant surgeries and has never had to do this procedure (taking the internal magnets out, then reinserting new magnets). In fact, of the 700+ Midwest Ear Institute patients, I believe I am the first to have an MRI. To get an MRI, the internal magnets need to be removed from the implant, then you get in the tube, then back to the OR to have new, sterile magnets and stitched up. The thought of having the internal magnets taken out probably bothers some people but it shouldn't - it was not a big deal at all. In fact, they asked if I wanted to be sedated and I said no - so they just did a local and it was fine. There is a little pain...but very little, and easily handled with OTC pain relievers. In fact, I haven't needed any today at all. I was going to write a great, detailed account of this but it is such a non-event that there is little to write. Kind of like getting some stitches in your head - that's it. The most irritating thing is being inside the MRI tube - at least you can't hear it though, because you are completely deaf while inside.

I wouldn't go get an MRI for fun, but if it is suggested that you need one, please do not hesitate to do it. An MRI is an incredible piece of technology and can be a difference maker in terms of diagnosing certain things.

And that is all he said folks!

ALDA Highlights - Karaoke Party

noreply@blogger.com (Abbie) — Fri, 21 Nov 2008 00:24:00 +0000

Time is just seeping into unknown crevices and leaving me with little or no time to do much of anything. Priorities are rearranged and some of them are put on the back burner like this blog. It has been a month to the day that marked the end of the ALDA Convention and I wanted to share some highlights that everyone wants to know about - the Karaoke Party.

But first, a little history on the Karaoke Party. Since most of us are deaf, we can't really follow along with the words of the music nor can we keep a tune. What they do is they put the words to the song on a big screen so everyone can read them and they pass out balloons to feel the music. The balloons are far more sensitive to vibrations and far more reliable then using a table or our feet to feel the beats. How did this traditional use of balloons start? It started when a member went over to the next banquet room where they were having a wedding and he kind of, sort of - borrowed some balloons. The bride even joined them when she saw how much fun they were having. That was a start of a great tradition. I strongly suggest that you check out LaRonda Zupp's vlog that gives you a better idea of how the whole balloon things works. Click here to watch it :) It has yours truly featured.

But let me give you a little background information. Since the Karaoke Party is supposed to be the main event that everyone looks forward to and the date just so happen to fall the day after Halloween. Some of us decided to dress up. Jennifer and I brainstormed for days, we even got her kids involved. One of her offspring thought it was be a rocking good idea if we were a giraffe - Jen would be front since and I would be the back end of the giraffe. It was a novel idea and I applaud them for their creative endeavors BUT I don't want to be the back end of anything. :) We nixed that idea. I came up with this idea to be Abby on NCIS. I was really stepping outside of my comfort zone because Abby is gothic with chains, black lipstick and the ultimate combat boots and this Abbie that is typing out this blog is all about classic ivory lace dressed in chiffon and strands of pearls but as you can see, I managed to pull it off.

Jennifer decided to be her natural peace loving self as everyone's favorite hippie complete with shoes that brought her to a final height of six foot, five inches. I had a crick in my neck by the end of the night. :) She is hunched over in this picture. You will see the full heightage further down.

We were not the only ones dressed up! From left to right - LaRonda Zupp from Ear of My Heart as the cutest little fairy, Ken Arcia brought Elvis back from the dead, Abbie as Abby and Jennifer as the tallest flower child in the history of mankind.

Surprisingly enough, I thought it would have taken me a couple of drinks to get me up on stage to sing but with a little coercing, I got up there completely sober. I was doing my best Milli Vanilli impression. I look rather convincing don't I?

This is my favorite picture. This is Thing 1 otherwise known as Maddy, the daughter to one of my very good friends, Tina Childress. I wanted to take this little girl home with me. I was just so impressed with her intelligence and her signing capability - far better mine. Plus, I was having a political discussion with the little McCain supporter as we were walking down a busy highway made it all the more fun.

This is Mr. Dave Litman and I spreading the good word of peace, love and rock and roll. :)

Tina Childress as the Dragon and her adorable munchkins, Maddy as Thing 1 and Mia as Thing 2, Jennifer the flower child and yours truly signing off.

This is the founder of ALDA, Bill Graham with the very lovely and lively Elvis. :)

It was good times, good times indeed. You can go here to check out more pictures from the ALDAcon and if you are interested you can join ALDA on Facebook. :)

Cogan's Syndrome

noreply@blogger.com (Abbie) — Sat, 08 Nov 2008 00:45:00 +0000

There are many reasons a person can lose their hearing. Some people lose it gradually and some loss is sudden. My inbox is littered with people that go from one extreme to the other - perfect hearing to sudden deafness. Many personal tales have words like Autoimmune Inner Ear Disease, Meniere's disease and Meningitis are duplicated several times over.

I've seen the symptoms sprinkled across my screen so much that they almost seem to run together.

hearinglossvertigotinnitusphotophobiavomitingdizzinessnauseamigraines

Well, I learned about a new one at ALDA. I was reading the CART screen captioning the voice of a woman that identified herself as a Coganite.

Coganite, Coganite, Coganite

What the hell is a Coganite? A Coganite is a person that has suffered from Cogan's Syndrome. It is a rare, extremely rare autoimmune disorder can cause deafness and blindness. I believe I overheard the woman say that there has only been about 150 cases in the United States. So yeah, I would say that rare alright.

The symptoms of Cogan's Syndrome are:

Rapid onset of hearing loss in one or both ears
Vertigo
Nausea
No balance or severe gait
Tinnitus
Nonsyphilitic Interstitial Keratitis (inflammation of the eye),
Sensitivity to light
Vasculitis (inflammation of the blood vessels)
Arteritis (inflammation of the walls of arteries)

It seems to occur in young people from the age 22-29 years old. It has been known to occur in some older people but it is more common with the younger crowd. No one knows what causes Cogan's Syndrome. The good news is that there is a treatment for Cogan's which is cortisone type medications such as everyone favorite mood changing steroid -- Prednisone. The bad news, if it is not diagnosed quickly, a person usually suffers from a complete hearing loss and partial vision loss.

The good news is that no one has to deal with this alone. You can contact the Cogan's Contact Network if you or a family member has been recently diagnosed and you want to connect with others that have been down this road.

For the rest of us, we can inform our doctors of this extremely rare condition to raise awareness because an affected person hearing and sight can be saved and it is only a matter of time that it can.

I. King Jordan at ALDA

noreply@blogger.com (Abbie) — Tue, 04 Nov 2008 17:22:00 +0000

Glancing through the ALDA program book, I came across a familiar name that was going to be giving a speech at a luncheon. I found myself wondering, "Who is I. King Jordan?" because I hadn't the faintest idea of what he has accomplished. With a little Googling here and there and chit chatting amongst others, I found out that he became the first deaf president of Gallaudeut University after a week long protest in 1988. I didn't know too much about him because I was only eight years old. I was more into running over my cabbage patch dolls and beating the old commodore 64's up. Plus, I wasn't into watching my non-captioned television.

Back in 1988, Gallaudet Board of Trustees Board of Trustees had three finalist for presidency position, two of them being deaf and I. King Jordan being one of the two. The Board of Trustees Board of Trustees announced that they picked a hearing person for presidency, a woman named Elisabeth Zinser. There was a member of the Board of Trustees name Jane Spilman that said something to the effect that, "Deaf people are unable to function in a hearing world." After years of oppression, the students, staff, alumni and faculty felt it was time for a deaf president. This started a week long protest called "Deaf President Now."

The first day, the campus marched from the University to the hotel where the Board of Trustees were holding they're meeting and demanded an explanation. This march continued to the White House then to Capital Hill and back to campus.

The second day, the protesters took steps to block access to the campus and the board members were presented with four demands that were promptly dismissed.

Zinser must resign and a deaf president selected.
Spilman must resign from the Board.
The percentage of deaf members on the Board of Trustees must be increased to at least 51%.
There must be no reprisals against any of the protesters.

The protesters marched back up to Capitol Hill and started to attract media attention.

The third day, campus was reopened but students boycotted classes. There was four members of the student body emerged as leaders of the protest. By now, the DPN Revolution was on every news channel and newspaper across the country.

The fourth day, Jordan, the four student leaders and Elizabeth Zinser had a meeting. The students encouraged Zinser to resign but she did not want to comply. There was a press conference held that day where I. King Jordan announced that he supported the Board of Trustees decision to pick Zinser as president.

The fifth day, Jordan retracted his support and Zinser resigned. The students protests and rallies intensified because only a half of one of the demands have been met.

The sixth day, nothing much happened apparently.

The seventh day all of their protesters demands were met.

I. King Jordan was named the first deaf president of Gallaudet University.
Spilman resigned from the board of trustees.
Phil Bravin, the only deaf member on the Board of Trustees was appointed Chair.
No reprisals to the students.
A task force was going to be created to ensure that there will be a 51% of the Board of Trustees will be deaf members.

Therefore, history was made. The students accomplished so much in so little time. It was time that someone that was one of them took over. Once I learned the history, I was really excited to listen to I. King Jordan give a speech while I was at the ALDA convention. He is late-deafened. He lost his hearing at 21 years old in a motorcycle accident. He talked about how technology has changed over the past twenty years. Back then, there was no closed captioning or no professional interpreter services. All we had available was basic email, pagers and TTY. Now we have options like interpreting, closed captioning, CART, PDA's and Blackberries, email attachment and text messaging, Captel, VRS (Video Relay Service) and VCO (Voice Carry Over). Times have truly changed.

He started talking about advocacy work since he is a full time advocate for the deaf and disabled. He left quite the lasting impression on me when he said that if you could reach to one person, help that person become a strong deaf individual. Being deaf can take a toll on a person especially when they have had perfect hearing at one point in their life. There is no reason why they have to face this alone.

He brought up the fact how cochlear implants are subject of sensitivity with the Deaf Culture. I know this first hand because a majority of the hateful discrimination that I get is from culturally Deaf people that feel that there is nothing wrong with them. I find nothing wrong with them either but they find an awful lot wrong with me because I chose to hear with a cochlear implant. He talked about how cochlear implants change the way communication happens because those of us with a cochlear implant listen and talk more then sign. He expressed that there should be a way to reconcile the different communication methods. This brings me to a profound quote that Jordan used to close his speech.

"Don't ever forget that a deaf person with an implant is a deaf person with an implant. You stay a deaf person but the technology helps you with your communication."

Jennifer, I. King Jordan and Myself.

TV in a Hotel Room with No CC?!

noreply@blogger.com (Abbie) — Fri, 31 Oct 2008 19:29:00 +0000

Ever go to a hotel room where they have a television with no closed captioning?

To make things even worse, the hotel has a special remote control with a menu that just gives you options to buy porn.

So you wander over to the front of the television and all it has is super simple buttons to change the volume and change the channels? All of us know that we need a MENU button to turn on the closed captioning.

So what is a deaf person to do? Just hold the two volume buttons together simultaneously and just like magic, instant access to the closed captioning menu!!!

It is kind of funny but at the Doubletree Hotel Magnificent Mile, they had to dispatch a couple of their finest engineers to a couple of the ALDA attendee's rooms to figure this out.

And for the record, I didn't need an engineer to figure that out :)

ALDA's President's Lunchon

noreply@blogger.com (Abbie) — Thu, 30 Oct 2008 18:32:00 +0000

My first night in Chicago involved the Magnificent Mile that is like the Fifth Avenue of New York City. We went to the Big Bowl where I had well, a big bowl of Chicken Pad Thai and for desert, a pretzel dipped in multi-grain mustard. We were adopted by the veterans of ALDA with no problems. I met the man who co-founded ALDA in 1987, BIll Graham. I was forewarned before I came here about ALDA because most of the people here cannot benefit from hearing aids or cochlear implants but what really surprised me was the amount of late deafened adults that signed. Logically, you would think that this is a group that has gone deaf later on in life for various reasons and has chose to learned sign to communicate. It's a blissful environment, one that I have been adapted into quite well. It is total communication access here. If one doesn't speak, they sign. Between Jennifer and I, we can get through a conversation. If we are completely lost, they are so patient because most of them remember what it was like to start off young and fresh at the signing game. If we are so lost, we grab someone else to interpret for us. If that doesn't work, the pads and pens are brought out. Its not like out in the busy hearing world where I get a huge exasperated sigh or infamous eye rolling from hearing people. Whatever works for you whether it would be a tap on the shoulder of rapidly shaking your hands in front of someone's face, you won't get any eye rolling here. Being here right now feels like a comfortable old shoe that you don't want to part with.

Right now, I am sitting here at the Presidents Luncheon in a packed ballroom, situated right under a glass chandlier with crisp white sheets adorning the table. My glass of water is half full while my tummy is full as can be. I am watching conversations being carried all across the room. I'm watching people communicate with their mouth full. I am staring at two huge CART screens while an interpreter translate the signing of Dr. Robert Davila who is the ninth president of Gallaudet University into voice. Not one person is left out of his speech. I am going to go see if I can get the CART transcript emailed to me.

Stay tuned!

Newcomers Orientation!

noreply@blogger.com (Abbie) — Thu, 30 Oct 2008 00:33:00 +0000

I have arrived in Chicago for the ALDA Convention. I am sitting next to LaRonda Zupp of Ear of my Heart and Jennifer Thorpe of Surround Sound.

Alex comes to visit!!!

noreply@blogger.com (Abbie) — Wed, 29 Oct 2008 18:54:00 +0000

A few weeks ago, I invited a fellow blogger Alex of Life of the Hard of Hearing to come walk with me for the Garden State Walk 4 Hearing. I first met Alex on Seek Geo's site in his chat room and we just clicked. Our upbringings were very similar except for the fact that he used Cued Speech to learn how to speak and I learned through speech therapy, five years of it. He just has a great online and offline personality.

So, he flew on Friday night and if any of you know me, you know I have a tendency of planning things right down to the wire. This was no exception. I had this in the bag, I was going to pick up him right out in front of baggage claim at 7:00ish and he wouldn't stand around and wait. So I thought, but was slated to arrive around seven something I believe but on my way there and still an hour from the airport, my blackberry croaks to let me know I have a message. It was he telling me that his flight landed an hour early. I thought he was pulling my leg but he landed an hour early. I felt horrible about him standing around waiting. At least he learned what a New Jersey minute is :)

So I picked him up, all 90 pounds of him and started shooting the bull. I noticed right off the bat that he really does have a European, almost British accent. He comes right out of the cornstalks from Illinois and there nothing southern about him. We headed back to my place and coerced him to get some dinner with me. I decided that we would be guinea pigs at this Japanese Steakhouse. We grabbed some food and talked until I almost passed out. That Friday morning, I was one of the lucky ones that had to get up at 2:00 AM to take mommy dearest to the train station. I was shipping her ass down to Virginia to stay with some family for the week. Aren't I nice? :) But more to the point, I was dog tired. I hooked Alex up to the WiFi and showed him to his sleep quarters while I retired to mine.

The next morning, Alex and I headed to the gas station to get gas before going to the Walk 4 Hearing. He was marvelled by the fact that my ass stayed in the car while we had gas attendants do the fueling. He learned first hand what it means to have a full service gas station state. :) Apparently, Illinois is not one of those. I think it is just so much safer and cleaner. I never want to fill my own gas up because you never know where anyones hands have been. :) We started talking about my experiences of going to self-serve gas station and lacking the ability to pump my own gas. Most of the were comical and involved some Eastern Indians wondering what this silly deaf American was doing just sitting in her car staring at the pump as if it were going to magically just insert itself into my car.

We headed to Dunkin Donuts to get my java fix where we had some sunglasses missing in action and then we were OFF! I have a GPS and it was easy peasy as pie to find Mercer County State Park. I was there representing the Bionic Ear Association since I am a member. I introduced Alex to some friends. I met this gorgeous family that I was communicating with a woman whose step father has been recently implanted for the longest time. I shake hands with them and then a yellow jacket started buzzing around the vicinity. I bobbed and weaved and performed some mighty evasive maneuvers thinking I outsmarted the damn thing. Well, Alex saw the yellow jacket got a little fresh by making a bee dive (pun intended) into my shirt. He tried getting my attention but when I'm talking, I like to talk. It’s hard to shut me up sometimes. Well the yellow jacket shut me up because it STUNG me! Here I am, if you will picture this, stripping my jacket and moving my shirt in ways that I don't normally move my shirt especially in front of perfect strangers. They had concern in their eyes but all I could think of is how they must think I'm a lunatic. :) Now bugs give me the heebie jeebies but they actually touch me and inject venom in me, I turn into a hypochondriac! Alex is laughing hysterically, performing a pee-pee dance of sorts. I was asked whether I was allergic. I had no idea, I have never been stung before (surprisingly enough). I became acutely aware of the size of my esophagus and lung volume.

The Walk 4 Hearing started off with a speech, "I don't know if you could all hear me...", but I was too busy on my blackberry googling allergic reactions of yellow jacket stings. The good thing is that I had an EPI pen in the car because I'm allergic to mushrooms. I figured if I were allergic I could shoot myself in the leg and have Alex drive me to the hospital although he doesn't look like he is old enough to drive. He should never drive a mini-van because he would look as if he were borrowing moms car. :)

The walk began and it was beautiful. I decided to walk with my buddy Wayne Roorda. He has a CI on his right, Alex has bilateral Hearing Aids and I have a CI on my left. Alex was stuck in the middle for maximum acoustics :) and then we walked. It was beautiful, the scenery couldn't have been any better. The leaves are changing colors and it provided some sweet looking backdrops while we were peddling right passed walkers.

Along the way, I met up with a beautiful woman name Debbie who is from Jersey, who is a late deafened adult who has a CI. I have been communicating with her on and off her journey. Since she has had perfect hearing most of her life and started having problems about seven years ago with her hearing, it was a big adjustment on her end for learning how to hear with a CI, plus her audiologist didn't seem so gosh darn wonderful. She was an absolute delight to be around and I can't wait to meet her again. She sent me an email with a phrase that made me smile from ear to ear, "It was the first time in a long that I felt like I was a part of something." That is what I wanted to hear and I am glad that I was a part of it.

Alex and I had enough of rogue leaves hitting each other in the face, we decided to head back to my place to get bundled up for Six Flags or Great Adventure as us New Jerseseans call it. I have to say Alex, is one cheap guest. He does not eat. There is a reason for this, he is what you call a miracle baby. He was born with a stage three Omphalocele which is where the intestines, liver, and occasionally other organs remain outside of the abdomen in a sac because of a defect in the development of the muscles of the abdominal wall. Basically all the internal organs are spilled out. and was the first baby west of the Mississippi River to live from it. Read his entire story here. He lost his hearing resulting from antibiotics but hearing loss was a small price to pay for what he went through. He is a special person to me :) Because of that, his stomach is a size of a gulf ball and he doesn't eat much. He told me this before he flew here and I scoffed. I had every attention of fattening his bony butt up. Ha, joke was on me because I couldn't get him to eat. I'm all about food. I eat six meals a day religiously, I'm sure he thought I could stand to miss a meal or two. :)

We headed off to Great Adventure, only to discover that most of the rides were broken down but as the night wore on, more and more rides came back online. If you have a cochlear implant, you CAN go on rides but be smart and remove the external part. :) This ride we wanted to go on was Kinga Ka, this 428 foot high roller coaster that reaches a speed of 128mph. It goes straight up and over a hill and straight back down. Nuts right? At the time we took a look at it, it was a 150 minute wait. Neither one of us is crazy about waiting. So we pranced around the park picking other rides. Then a bunch of girls started making a fuss. Alex told me that there was a racoon in the park. Well, just as he said it, this raccoon dashed out of the bush and headed for the tree. I backed up into the fence practically, wielding my black berry and thrusting Alex in front of me. The racoon stared right at me and I put my meanest poker face which intimidated him because he backed up and went up the tree. However, I kept a close eye on him if he tried to go over the branch and do a flying leap at me. The line moved and I pushed Alex before the ball of his foot could arch upwards to make a step. The raccoon ran to and fro from the bush to the garbage can. Alex told me, "I have never seen a raccoon in an amusement park before." I'm looking down at my blackberry and I fixate my eyes on him and he suddenly realized whom he was with. I am sure that some people that read my blog must think I am full of it but if you ever met me, you will realize I don't have to make this stuff up! :) Alex suddenly realized this.

At the end of the night, just before the park closed, we made a mad dash for Kingda Ka that virtually had no line. However, the second we got on and buckled in, there a problem with the ride and it had to be shut down. Logically, I should have taken it as an omen but I don't listen to myself. But I was depending on Alex, a fellow deafo to tell me what the hell was happening since I had my CI off. The ride goes up to a 128mph which is thirty miles less then take off speed for an airplane, I didn't want to see my CI become airborne. :) I joked that I would find my car in the parking lot since we were going to be 428 feet in the air. I was sure I could find my Incredible Eco-Egg somewhere down there.

A half hour passes, the attendants buckles us in but since Alex had a fraidy cat face on, the guys were messing with him by telling him he didn't need the strap for the ride :) His heart skipped a beat. I'm used to that kind of demented humor :) Then we were off! We came down the ride and I found my care. I flung my arm right in front of Alex's face, narrowly missing his honker just to point my car out. He was trying to recover and sweet talk his bladder into holding his urine just a bit while longer. He had no other choice because when we came back in to get the hell off the ride, some idiots in the front were yelling, "ONE MORE TIME!" I couldn't hear this but I saw arms flailing and Alex relayed their demands to me. One time on this ride was good enough for me, I was NOT prepared to go a second time. I told Alex that they weren't getting a Christmas card from me.... Poor Alex, if he had blue eyes, they would have turned green because he really had to pee. Round two of the Kingda Ka was even better! :)

After Alex relieved his pint size bladder, we headed back to my place. I was dog tired. Alex stayed up and wrote two blogs and I promptly checked into the pillow factory. The lil tyke wears me out :) I was so sad to see him go. I had such a wonderful time with him and I am eagerly awaiting seeing him at the HLAA Convention in Nashville since he lives only 2 hours away! :)

En Route to ALDA!

noreply@blogger.com (Abbie) — Tue, 28 Oct 2008 13:17:00 +0000

Guess where I’m going tomorrow thanks to all of you!?

Chicago for the ALDA Convention! I have managed to raise $800 to date which is a phenomenal amount, far more then I anticipated. As the tide of luck would turn, I was fortunate enough to be able to obtain a scholarship that covers the cost of registration and hotel. Many people, both friends and strangers, have helped me make this possible and in turn have helped me become a better person. I want to thank all of the bloggers for the posts they have written and for being part of this. I want to thank the people that have written me some of the most motivational emails that I have ever received in my life. You inspire me to make myself a better person! Thank you for providing me with your support even with the financial crisis that the United States is going through. I never thought that I would get this much but thank you for caring about what people talk about online.

My luck just doesn’t stop there. My bionic belle, Jennifer was able to get a scholarship quite some time ago to attend the convention. Through some miscommunication, she was left without a roommate. Welp! Guess who is her new roomie?! Moi! It was just meant to be. Chicago will not be the same after this. I am looking forward to meeting so many new people, dressing up for a night out on the town for the banquet dinner and getting into my gothic girl costume for the Halloween slash karaoke party. I am willing to bet that there a surgeon costume because we need to read lips after all :) I am looking forward to meeting some beautiful ladies who I give the utmost respect to, Karen Putz from A Deaf Mom Shares Her World and Laronda Zupp from Ear of my Heart blog. So excited!!!

Now, I am going to trying something new at ALDA in preparation for my new role for the upcoming HLAA convention in Nashville on June 18^th to 21^st 2009. I have been asked to be the convention blogger (Yay!) and I have graciously accepted with open fingers! I am planning on providing real time updates including video snippets and pictures. So stay tuned and be patient as I try to figure out this roving reporter role! :)

Again, I want to thank everyone with sincere gratitude for making this possible!!!

Garden State Walk 4 Hearing

noreply@blogger.com (Abbie) — Sat, 18 Oct 2008 17:56:00 +0000

Greetings from Mercer County State Park! Alex and I are at the Garden State Walk for Hearing walking in this invigorating frigid fall weather for 5k.

Donning the quintessential scarf, our blood circulation is flowing, the hamstrings are burning and deafness is in the air. Over a hundred and twenty people showed up all ages and different sizes have trekked their way through the beautiful autumnal scenery. There was even some lil tykes running around sporting some of the tiniest hearing aids I have ever seen in my life. I wish I had those size but I can't complain, I got the Cadillac of hearing technology embedded in my head. :)

I had the chance to put a face with quite a few people that I have been talking to online. One particular person was Debbie who is a beautiful soul, inside and out. She is a late deafened adults who has only had a hearing loss for seven years. She received a cochlear implant about a year ago but she was having a tough time adjusting to hearing with a cochlear implant after having perfect hearing all her life. I shared with her my experience and frustration. I told her it would get better with time and it has improved significantly. She wrote me this lovely email that just made my day! She made mine by coming out and walking with me :)

I am so very happy that you will be able to attend ALDA. I am glad you asked for help, if we don’t ask we don’t get. We all have faith in you because of who you are. Abbie, I can’t begin to tell you what you have done for me, support wise. I was so discouraged and depressed, if not for you I would be a basket case this very minute. I was so out of the loop as far as understanding what was happening, did not have the faintest clue what questions to ask. Your knowledge and inspiration is part of what has kept me going. I will always be grateful for your assistance. You attending ALDA can only help increase your knowledge and inevitably help the rest of us on our Hearing Journey. My ears are crossed and can’t wait to see you on Saturday.

True to form, I know how to make a lasting impression on someone. I met Jill and her stepfather who has a cochlear implant who lives right down the street from me. I didn't get to talk to him because some pesky yellow jacket managed to sneak into my jacket and sting me! I immediately started stripping my clothes off in front of this family which was probably a little more then they bargained for. :) Alex was laughing his southern butt off and I was freaking out because I couldn't find the yellow jacket anywhere. I have never been stung before in my life and everyone first question was, "Are you allergic?" Well, I had no idea :) The hypochondriac in me decided to get on the blackberry and google allergic reactions and treatments for yellow jackets. Good thing is that I am not allergic. Bad news is that the damn thing smarts. Here is a picture of my battle wounds from the Walk 4 Hearing. :)

All in all, it was a great day supporting hearing loss!