en-us Mon, 14 Apr 2014 23:56:20GMT forum@oxle.com 60 http://forum.cleft.ie/ cleft.ie Discussion Forums http://forum.cleft.ie/ http://forum.cleft.ie/cleftie.gif 100 88 Kaz@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=385 General Discussion Wed, 19 Feb 2014 22:55:05GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=385 gcouvall@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=384 Treatment Thu, 06 Feb 2014 03:33:51GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=384 (Dr. Kenneth E. Salyer) is the
Founder & Chairman of the
World Craniofacial Foundation
(http://www.worldcf.org) in
Dallas, Texas U.S.A.

The World Craniofacial Foundation
is working with several Craniofacial
Centers outside the U.S.A. and sending
their patients who are born in countries
outside the U.S.A. to these centers.
Here is the link that lists these centers:

https://www.worldcf.org/about-our-work/find-a-craniofacial-center

Also, here is the Financial Assistance
information:

https://www.worldcf.org/about-our-work/apply-for-financial-aid/

Last but not least, here is the Contact
information:

https://www.worldcf.org/contact-us/

]]> gcouvall@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=383 General Discussion Thu, 06 Feb 2014 03:24:11GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=383 Surgeon (Dr. Kenneth E.
Salyer) is the Founder
& Chairman of the World
Craniofacial Foundation
(http://www.worldcf.org)
in Dallas, Texas U.S.A.

Dr. Salyer is featured in
a documentary entitled,
"Beautiful Faces" which is
now available. Here is the
information:

http://www.kennethesalyermd.com/#!film/c4vn

Also, Dr. Salyer's book entitled,
"A Life that Matters: Transforming
Faces, Renewing Lives" is now
available. Here is the information:

http://www.hachettebookgroup.com/titles/kenneth-salyer-md/a-life-that-matters/9781455515127 (Trade Paperback)

http://www.hachettebookgroup.com/titles/kenneth-salyer-md/a-life-that-matters/9781455515134 (Electronic Book)

http://www.kennethesalyermd.com/#!thebook/c1mhs



]]> edbyrne@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=378 Announcements Tue, 21 Aug 2012 17:17:06GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=378
Forum Administrator]]> Angie@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=375&REPLY_ID=821 Feeding Mon, 30 Jul 2012 22:27:59GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=375 Quote:
Hi Fuzzybear

Oops, I think we are talking about two different discs! The disc I am talking about is a hard (normally bright yellowy/orange) disc. There are no holes in it. I think you are talking about is the smaller white, flexible membrane, that sits on a disc with 4 holes? The membrane must be covered with the solid disc to ensure no leakage and keeping the formula sterile. I've been googling trying to get pics for you to explain better - this might help:- http://www.justkiddingonline.co.uk/3x-medela-breastmilk-bottles-small.ir. If you can't follow what I'm on about, give the association a shout or maybe someone else online might explain better!! Sorry about the misunderstanding. Best of luck]]> melissa@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=371&REPLY_ID=818 Treatment Wed, 13 Jun 2012 20:27:44GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=371 Quote:
There's a great speech and language therapist in Crumlin that helped us out with our son and his feeding/swallowing difficulties. My son had so many difficulties ranging from continuously puking up his bottles to then choking on liquids and then there was the gagging. Just when you think one thing is sorted with them another problem pops up. The speech and language therapist will be able to help you and get the issues resolved. It will take time but hopefully you'll get it sorted.]]> George@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=374 Events & Activities - Feedback & Ideas Sun, 10 Jun 2012 21:05:08GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=374 Frances@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=370&REPLY_ID=813 Treatment Sat, 02 Jun 2012 22:08:23GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=370 Quote:
Eddie-thank you so much. My son is having op in 2 weeks -only discovered yesterday that lower jaw surgery may be involved. Looks as if it is not poss to push out upper jaw sufficient so in order to align teeth bottom jaw to be recessed. Concerned that lower jaw will be recessed approx 4mm (is this so minimal that we are worrying for no reason)-this might entail chin surgery in twelve mths to rectify. Obviously would like to avoid this. are you saying that if my son only wants to get upper jaw surgery done (and lower jaw surgery is warranted) that would be wrong decision to make. That it would be crazy just to give go ahead for upper jaw surgery and accept whatever improvement that will be and to leave lower jaw alone.( Going to see surgeon again next week - don't know what options we have if any. Is there a liasion person we should contact. op will be in St James.]]> clair007@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=368&REPLY_ID=811 General Discussion Fri, 01 Jun 2012 21:00:46GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=368 Quote:
Hi,
I applied and got Dom allowance in 2008 when it was still being done by the HSE I've heard it's a bit stricter now the welfare have taken over I kno two of my friends with severely autistic children have lost theirs from what I can gather if part of ur child's care requires ongoing hospitalisation ur safe so I'm very surprised it was taken from you as your child potentially has the rest of their life receiving treatment between plastic, dental, orthodontic, speech, eyesight and hearing so I'm shocked it was stopped I would definitely be appealing this and if needed obtaining more paperwork stating the above list of problems facing these children, also have u applied to the revenue for incapacitated child allowance it's worth about 3700. Per year and they back date it to child's date of birth we received 6000. Of a refund just thought I'd mention it not many people kno about it.best of luck anyway and keep fighting for it.]]> melissa@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=365&REPLY_ID=810 General Discussion Wed, 30 May 2012 23:30:58GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=365 Quote:
I don't see why not? If you're in Dublin then you'd have a choice between Crumlin hospital and Temple street, not sure about the rest of the country or the options you'd have there. Why not ring Georgina Wade and ask maybe she could help you out with information on that? Look for the contact information on this website for her or email info@cleft.ie and ask, I think that's the email.]]>