en-us Fri, 10 Feb 2012 11:24:28GMT forum@oxle.com 60 http://forum.cleft.ie/ cleft.ie Discussion Forums http://forum.cleft.ie/ http://forum.cleft.ie/cleftie.gif 100 88 CleftieDiscussionForumshttp://feedburner.google.com George@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=352 Events & Activities - Feedback & Ideas Thu, 09 Feb 2012 08:56:50GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=352
To celebrate, we are having a special concert featuring;.

The Garda Band,.

with Special Guest, James Nelson of the Celtic Tenors..

Venue: St. Marys Catholic Church, Maynooth, Co. Kildare.
Thursday 16th February 2012 at 8:00pm (Doors open 7:30pm).
Please ensure you arrive in plenty of time to be seated..

Tickets: 15 each..

Contact us at e-mail info@cleft.ie, or telephone 087 1319803..

Tickets also on sale locally in Maynooth Bookshop, 68 Main Street, Maynooth. Many thanks to Ursula Byrne and the team..

]]> Sarahtulla@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=351&REPLY_ID=801 General Discussion Wed, 25 Jan 2012 13:27:30GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=351 Quote:
Hi there. I had this operation and your in and out in 1 day.]]> gcouvall@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=350 General Discussion Sun, 04 Dec 2011 03:52:51GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=350 Couvall and I'm one of Dr. Kenneth E.
Salyer's (http://www.worldcf.org)
patients. Here are my Personal Story
links:

http://www.worldcf.org/our-kids/georgette-couvall/
http://www.worldcf.org/family-care/support-groups
(Craniofacial anomalies)

How is everyone doing? I hope you all
are doing well.

Anyway, my Craniofacial/Cleft Surgeon
(Dr. Kenneth E. Salyer) is the Founder
& Chairman of the World Craniofacial
Foundation (http://www.worldcf.org)
in Dallas, Texas U.S.A.

The World Craniofacial Foundation
(http://www.worldcf.org) is in the
process of trying to help three and
a half year old Grace from Zambia
who was born with a Craniofacial
deformity. Here is her story:

http://www.youtube.com/watch?v=prfRjt_uKtg&feature=youtu.be

I just thought I'd share this with
you all.

I wish you all a Merry Christmas
and a Happy New Year!

Sincerely,

Georgette Couvall

WORLD CRANIOFACIAL FOUNDATION ON FACEBOOK:
http://www.facebook.com/worldcf/
]]> edbyrne@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=349 Announcements Thu, 24 Nov 2011 23:38:00GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=349
To celebrate, we are having a special concert featuring;

The Garda Band,

with Special Guest, James Nelson of the Celtic Tenors.

Venue: St. Marys Catholic Church, Maynooth, Co. Kildare.
Thursday 16th February 2012 at 8:00pm (Doors open 7:30pm).
Please ensure you arrive in plenty of time to be seated.

Tickets: 15 each.
Contact us at e-mail info@cleft.ie or telephone 087 1319803 for tickets.]]> Vicky@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=348&REPLY_ID=799 General Discussion Fri, 18 Nov 2011 20:39:07GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=348 Quote:
Thanks for your response, its just good to hear we're not alone. I think his tantrums seem quite extreme, people have been shocked. And its just so horrible when you're out on your own. But it may be pretty normal toddler behaviour, made worse of course with the speech frustration. We definitely get the sense that he is frustrated and he gets really annoyed if you misinterpret what he's saying. I feel so bad for him but equyally it can be very hard to handle.]]> Vicky@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=345&REPLY_ID=797 General Discussion Fri, 18 Nov 2011 12:37:00GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=345 Quote:
We used the MAM bottles - there's a link to the UK site where you can buy them and they deliver over here.
They're fantastic, look like a normal bottle and not as fiddly as the habermann. We carried on using them after my son's palate repair.
Best of luck
x]]> George@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=347 Events & Activities - Feedback & Ideas Tue, 25 Oct 2011 09:07:17GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=347
Doors open from 7:30pm. Admission is free, all are welcome..

Topic: A to Z of Cleft Surgery.
We are delighted to have two eminent speakers from the Dublin Cleft Centre for this event:..

Mr David Orr, Consultant Plastic Surgeon, Our Ladies Hosptial Crumlin and Saint Jamess Hospital.
Mr Gerry Kearns, Consultant Oral and Maxillofacial surgeon, Our Ladies Hospital Crumlin and Saint Jamess Hospital..

With special guests Ms. Anne McGillivary and Ms. Laura Duggan, Cleft Co-Ordinators for Temple Street and Crumlin respectively.

]]> George@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=343&REPLY_ID=796 Further Treatment Tue, 25 Oct 2011 09:03:59GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=343 Quote:
Hi Bobby,

The topic of this years Information Evening & AGM is Surgery A to Z. Suggest you come along to find out what's available etc.

Rgds
George]]> ritaellen@oxle.com http://forum.cleft.ie/topic.asp?TOPIC_ID=346 Feeding Thu, 20 Oct 2011 14:53:44GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=346
I have a habermann bottle that has never been used.
I can post to anyone who needs it.
I opened the plastic wrapping to clean it, but
thankfully our little one was happy enough with
an Avent bottle so we never had to use it.

Regards,
Rita]]> aisha16@oxle.com http://forum.cleft.ie/topic.asp?whichpage=-1&TOPIC_ID=225&REPLY_ID=795 Feeding Wed, 28 Sep 2011 01:42:32GMT http://forum.cleft.ie/topic.asp?TOPIC_ID=225 Quote:
hi, i had a beautiful baby girl in june wit cleft palate, its been a long summer but we finally getting there. This is my first time to come on this site. I had to post and say we have found another bottle by vital baby nurture range. The bottle is made of silicone and am using a standard nuk teeth on it. It comes wit an advent style teeth. It is a wide neck bottle which i love and it so easy to use. We were first given the mam bottle in hospital but i did not like it plus dd was losing too much milk wit it. Has ANY1 TRIED THERE]]>