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	<title>Fighting for my Rights</title>
	
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	<lastBuildDate>Fri, 04 May 2012 02:04:25 +0000</lastBuildDate>
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		<title>Freedom Of Information Request Response</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/PXv1udpD7YQ/</link>
		<comments>http://www.danielsemail.com/2012/05/04/freedom-of-information-request-response/#comments</comments>
		<pubDate>Fri, 04 May 2012 02:04:25 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[DMD]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[electric wheelchair]]></category>
		<category><![CDATA[FOI]]></category>
		<category><![CDATA[Freedom of Information]]></category>
		<category><![CDATA[Gloucestershire]]></category>
		<category><![CDATA[Invacare]]></category>
		<category><![CDATA[NHS]]></category>
		<category><![CDATA[NHS Gloucestershire]]></category>
		<category><![CDATA[price of wheelchairs]]></category>
		<category><![CDATA[Wheelchair Services]]></category>
		<category><![CDATA[wheelchairs purchased 2011]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=161</guid>
		
			<content:encoded><![CDATA[I recently made a freedom of information request to NHS Gloucestershire regarding Wheelchair Services, I wanted to try and understand how well they were doing their job, below is the response I received. 
 Information received from NHS Gloucestershire Open Government License  From the above it seems only  . . . &#8594; Read More: Freedom Of Information Request Response<br/>
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		<item>
		<title>Post on Action Duchenne’s Campaigns Blog</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/BRgSFX5sdqw/</link>
		<comments>http://www.danielsemail.com/2012/03/20/post-on-action-duchennes-campaigns-blog/#comments</comments>
		<pubDate>Tue, 20 Mar 2012 02:46:15 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Action Duchenne]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[electric wheelchair]]></category>
		<category><![CDATA[NHS Gloucestershire]]></category>
		<category><![CDATA[rosi shepherd]]></category>
		<category><![CDATA[WCS]]></category>
		<category><![CDATA[Wheelchair Services]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=153</guid>
		
			<content:encoded><![CDATA[I was asked to write an update to my previous article regarding Wheelchair Services by Action Duchenne, you can find it on their Campaign Blog.<br/>
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		<item>
		<title>Updates – CHC, Wheelchair, DFG &amp; Change of Care Agency</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/auVw-aD9zw4/</link>
		<comments>http://www.danielsemail.com/2012/02/20/updates-chc-wheelchair-dfg-change-of-care-agency/#comments</comments>
		<pubDate>Mon, 20 Feb 2012 09:05:03 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[changing care agency]]></category>
		<category><![CDATA[CHC]]></category>
		<category><![CDATA[Continuing Healthcare]]></category>
		<category><![CDATA[CQC]]></category>
		<category><![CDATA[DMD]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[electric door]]></category>
		<category><![CDATA[electric wheelchair]]></category>
		<category><![CDATA[KeyStaff]]></category>
		<category><![CDATA[Mears]]></category>
		<category><![CDATA[NHS]]></category>
		<category><![CDATA[Nursing Alliance]]></category>
		<category><![CDATA[WCS]]></category>
		<category><![CDATA[Wheelchair Services]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=148</guid>
		
			<content:encoded><![CDATA[I decided I really should update my blog with what has been happening recently, I apologise for not updating it sooner, I have no excuse, I&#8217;m just lazy when it comes to these things. 
The biggest update is that I have finally changed care agencies, I have had issues with my agency for years  . . . &#8594; Read More: Updates &#8211; CHC, Wheelchair, DFG &#038; Change of Care Agency<br/>
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		<item>
		<title>Gloucestershire Personal Health Budget Pilot – Post 2</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/z4GMZ7p8zNo/</link>
		<comments>http://www.danielsemail.com/2011/08/22/gloucestershire-personal-health-budget-post-2/#comments</comments>
		<pubDate>Mon, 22 Aug 2011 10:48:47 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Continuing Healthcare]]></category>
		<category><![CDATA[DMD]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[Imperial College London]]></category>
		<category><![CDATA[London school of economics]]></category>
		<category><![CDATA[NHS]]></category>
		<category><![CDATA[NHS Gloucestershire]]></category>
		<category><![CDATA[Personal Health Budget]]></category>
		<category><![CDATA[PHB]]></category>
		<category><![CDATA[pilot]]></category>
		<category><![CDATA[University of Kent]]></category>
		<category><![CDATA[University of York]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=140</guid>
		
			<content:encoded><![CDATA[I had a visit last week from the NHS regarding the PHB pilot, it was really just a baseline assessment, they will come back again in six months to see if anything has changed, hopefully this means I will be getting my budget soon. 
The man from the NHS filled out a pretty standard  . . . &#8594; Read More: Gloucestershire Personal Health Budget Pilot &#8211; Post 2<br/>
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		<item>
		<title>DFG Door Widening – Day 1</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/bcfm0qIm-6M/</link>
		<comments>http://www.danielsemail.com/2011/08/16/dfg-door-widening-day-1/#comments</comments>
		<pubDate>Tue, 16 Aug 2011 07:24:47 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[builders]]></category>
		<category><![CDATA[Care and Repair]]></category>
		<category><![CDATA[council]]></category>
		<category><![CDATA[D]]></category>
		<category><![CDATA[day 1]]></category>
		<category><![CDATA[DFG]]></category>
		<category><![CDATA[Disabled Facilities Grant]]></category>
		<category><![CDATA[DMD]]></category>
		<category><![CDATA[door widening]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[fire safety]]></category>
		<category><![CDATA[Gloucestershire]]></category>
		<category><![CDATA[Groves building services]]></category>
		<category><![CDATA[Mears]]></category>
		<category><![CDATA[Occupational Therapist]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=135</guid>
		
			<content:encoded><![CDATA[I have been waiting since last year for my bedroom door to be widened, my nurse had suggested we contact the fire safety officer as she was concerned I could not get out of my room quickly in an emergency, I spend most of in my time in bed which is too wide  . . . &#8594; Read More: DFG Door Widening &#8211; Day 1<br/>
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		<item>
		<title>Occupational Therapy – Hygiene</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/a-NGlyy4HDY/</link>
		<comments>http://www.danielsemail.com/2011/08/06/occupational-therapy-hygiene/#comments</comments>
		<pubDate>Sat, 06 Aug 2011 11:51:54 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[case closed]]></category>
		<category><![CDATA[CHC]]></category>
		<category><![CDATA[DMD]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[Gloucestershire]]></category>
		<category><![CDATA[hygiene]]></category>
		<category><![CDATA[Occupational Therapy]]></category>
		<category><![CDATA[shower chair]]></category>
		<category><![CDATA[shower trolley]]></category>
		<category><![CDATA[Social Services]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=129</guid>
		
			<content:encoded><![CDATA[At the beginning of the year my nurse and I discussed hygiene, I&#8217;m currently stuck in bed so only get a bed bath, we decided to talk to my OT Mrs.K.  She was very helpful and we discussed options, we came up with a viable option, a shower trolley which was padded and  . . . &#8594; Read More: Occupational Therapy &#8211; Hygiene<br/>
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		<item>
		<title>Wheelchair Services – Request for me to sign agreement on communication</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/X5PgnJDWom8/</link>
		<comments>http://www.danielsemail.com/2011/07/17/wheelchair-services-request-for-me-to-sign-agreement-on-communication/#comments</comments>
		<pubDate>Sun, 17 Jul 2011 09:58:58 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[email policy]]></category>
		<category><![CDATA[Gloucestershire]]></category>
		<category><![CDATA[law]]></category>
		<category><![CDATA[letter from NHS]]></category>
		<category><![CDATA[meeting]]></category>
		<category><![CDATA[NHS]]></category>
		<category><![CDATA[NHS Gloucestershire]]></category>
		<category><![CDATA[Occupational Therapist]]></category>
		<category><![CDATA[WCS]]></category>
		<category><![CDATA[Wheelchair Services]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=119</guid>
		
			<content:encoded><![CDATA[I received this letter in June regarding my email correspondence with Wheelchair Services and Social Services, lets be clear I did not excessively email or phone them, probably 3 or 4 phone calls and 33 emails (a lot of which were confirming I had received an email) in about 105 days. 
As I was  . . . &#8594; Read More: Wheelchair Services &#8211; Request for me to sign agreement on communication<br/>
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		<item>
		<title>Gloucestershire Personal Health Budget Pilot – Post 1</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/3EzILDdv_U0/</link>
		<comments>http://www.danielsemail.com/2011/07/13/gloucestershire-personal-health-budget-pilot-post-1/#comments</comments>
		<pubDate>Wed, 13 Jul 2011 11:43:03 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[CHC]]></category>
		<category><![CDATA[Continuing Healthcare]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[Gloucestershire]]></category>
		<category><![CDATA[Imperial College London]]></category>
		<category><![CDATA[London school of economics]]></category>
		<category><![CDATA[NHS]]></category>
		<category><![CDATA[NHS Gloucestershire]]></category>
		<category><![CDATA[Personal Health Budget]]></category>
		<category><![CDATA[PHB]]></category>
		<category><![CDATA[PHBE]]></category>
		<category><![CDATA[pilot]]></category>
		<category><![CDATA[research]]></category>
		<category><![CDATA[University of Kent]]></category>
		<category><![CDATA[University of York]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=115</guid>
		
			<content:encoded><![CDATA[There is currently a move to push Personal Health Budgets by the government to give patients/service users more control see this NHS page. 
The University of Kent, University of York, Imperial College, London and the London school of economics have joined up for a Government funded research project to assess how well PHB&#8217;s work for  . . . &#8594; Read More: Gloucestershire Personal Health Budget Pilot &#8211; Post 1<br/>
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		<item>
		<title>Wheelchair Services – email reply regarding speed etc.</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/wf5mF-5NQxM/</link>
		<comments>http://www.danielsemail.com/2011/05/27/wheelchair-services-email-reply-regarding-speed-etc/#comments</comments>
		<pubDate>Fri, 27 May 2011 09:16:54 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[electric wheelchair]]></category>
		<category><![CDATA[Invacare]]></category>
		<category><![CDATA[NHS]]></category>
		<category><![CDATA[NHS Gloucestershire]]></category>
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		<category><![CDATA[Wheelchair Services]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=109</guid>
		
			<content:encoded><![CDATA[As I mentioned, I had sent Ms.Bush an email with a few questions about the power chair they want me to have, as usual the reply (when I finally got it) wasn&#8217;t particularly helpful. 
My first question was about speed, I think that a 6 mp/h chair is safer than a 4 mp/h one  . . . &#8594; Read More: Wheelchair Services &#8211; email reply regarding speed etc.<br/>
<br/>
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		<item>
		<title>Wheelchair Services – Official Complaint Sent</title>
		<link>http://feedproxy.google.com/~r/FightingForMyRights/~3/L5yYofv-VAU/</link>
		<comments>http://www.danielsemail.com/2011/05/23/wheelchair-services-official-complaint-sent/#comments</comments>
		<pubDate>Mon, 23 May 2011 09:46:05 +0000</pubDate>
		<dc:creator>Daniel</dc:creator>
				<category><![CDATA[Uncategorized]]></category>
		<category><![CDATA[complaint]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[electric wheelchair]]></category>
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		<category><![CDATA[Wheelchair Services]]></category>

		<guid isPermaLink="false">http://www.danielsemail.com/?p=107</guid>
		
			<content:encoded><![CDATA[This blog may be a bit quiet while I go through the complaints process with PALS, I will continue to update my general postings regarding Wheelchair Services but will not comment on the complaints process while it is ongoing.<br/>
<br/>
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