Fighting for my Rights

Updates – CHC, Wheelchair, DFG & Change of Care Agency

Daniel — Mon, 20 Feb 2012 09:05:03 +0000

I decided I really should update my blog with what has been happening recently, I apologise for not updating it sooner, I have no excuse, I’m just lazy when it comes to these things. The biggest update is that I have finally changed care agencies, I have had issues with my agency for years . . . → Read More: Updates – CHC, Wheelchair, DFG & Change of Care Agency

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Gloucestershire Personal Health Budget Pilot – Post 2

Daniel — Mon, 22 Aug 2011 10:48:47 +0000

I had a visit last week from the NHS regarding the PHB pilot, it was really just a baseline assessment, they will come back again in six months to see if anything has changed, hopefully this means I will be getting my budget soon. The man from the NHS filled out a pretty standard . . . → Read More: Gloucestershire Personal Health Budget Pilot – Post 2

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DFG Door Widening – Day 1

Daniel — Tue, 16 Aug 2011 07:24:47 +0000

I have been waiting since last year for my bedroom door to be widened, my nurse had suggested we contact the fire safety officer as she was concerned I could not get out of my room quickly in an emergency, I spend most of in my time in bed which is too wide . . . → Read More: DFG Door Widening – Day 1

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Occupational Therapy – Hygiene

Daniel — Sat, 06 Aug 2011 11:51:54 +0000

At the beginning of the year my nurse and I discussed hygiene, I’m currently stuck in bed so only get a bed bath, we decided to talk to my OT Mrs.K. She was very helpful and we discussed options, we came up with a viable option, a shower trolley which was padded and . . . → Read More: Occupational Therapy – Hygiene

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Wheelchair Services – Request for me to sign agreement on communication

Daniel — Sun, 17 Jul 2011 09:58:58 +0000

I received this letter in June regarding my email correspondence with Wheelchair Services and Social Services, lets be clear I did not excessively email or phone them, probably 3 or 4 phone calls and 33 emails (a lot of which were confirming I had received an email) in about 105 days. As I was . . . → Read More: Wheelchair Services – Request for me to sign agreement on communication

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Gloucestershire Personal Health Budget Pilot – Post 1

Daniel — Wed, 13 Jul 2011 11:43:03 +0000

There is currently a move to push Personal Health Budgets by the government to give patients/service users more control see this NHS page. The University of Kent, University of York, Imperial College, London and the London school of economics have joined up for a Government funded research project to assess how well PHB’s work for . . . → Read More: Gloucestershire Personal Health Budget Pilot – Post 1

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Wheelchair Services – email reply regarding speed etc.

Daniel — Fri, 27 May 2011 09:16:54 +0000

As I mentioned, I had sent Ms.Bush an email with a few questions about the power chair they want me to have, as usual the reply (when I finally got it) wasn’t particularly helpful. My first question was about speed, I think that a 6 mp/h chair is safer than a 4 mp/h one . . . → Read More: Wheelchair Services – email reply regarding speed etc.

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Wheelchair Services – Official Complaint Sent

Daniel — Mon, 23 May 2011 09:46:05 +0000

This blog may be a bit quiet while I go through the complaints process with PALS, I will continue to update my general postings regarding Wheelchair Services but will not comment on the complaints process while it is ongoing.

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Wheelchair Services – Another meeting

Daniel — Sat, 21 May 2011 05:42:43 +0000

I had another meeting with wheelchair services on Thursday, this time I invited my neuromuscular advisor along too, mainly so she could see how meetings like this work and how wheelchair services assess someone. They brought in an Invacare TDX SP for me to sit in so they could take measurements and work out . . . → Read More: Wheelchair Services – Another meeting

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Wheelchair Services – No adaptations to private chairs

Daniel — Sat, 14 May 2011 12:16:25 +0000

I have made a few enquiries regarding Wheelchair Services adapting private chairs, all have hit a brick wall, the last person I asked was the secretary to the chief executive of NHS Gloucestershire, I can’t go much higher although I will try, below is the letter of reply regarding this - Not . . . → Read More: Wheelchair Services – No adaptations to private chairs

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