tag:blogger.com,1999:blog-3986475588651890202Sat, 26 Nov 2011 22:40:40 +0000The Good The Bad and The Ugly - Personal Struggles and TriumphsThe Medical Textbook - Medical Translations and DefinitionsThe Microsope - ALS Research NewsThe Medicine Cabinet - ALS Patient/PALS CareThe Muses - Stories of InspirationThe Wallet - Fundraising for PALSOn the Horn - ALS chat forums and groupsOther worthy Advocacy effortsThe Potpourri - Mixed TopicsALS Geeks - Technology for PALSThe SoapBox - ALS Legislative IssuesThe Clubhouse - ALS OrganizationsIMAGINE.....the "what could be" for PALSnahttp://gulfportgalals.blogspot.com/noreply@blogger.com (A View from the Chair)Blogger70125tag:blogger.com,1999:blog-3986475588651890202.post-8141082025829432654Wed, 08 Apr 2009 19:46:00 +00002009-04-08T15:50:10.812-04:00They told us she has but a few weeks left.......I'm so sad I can barely stand it, but can't be selfish....she needs relief from this horrible condition and disease.......http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/hh8NWSCorMY/she-is-going-home-soon.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/hh8NWSCorMY" height="1" width="1"/>http://gulfportgalals.blogspot.com/2009/03/she-is-going-home-soon.htmltag:blogger.com,1999:blog-3986475588651890202.post-9170235545050981192Mon, 16 Mar 2009 06:52:00 +00002009-03-16T02:58:17.488-04:00http://www.thehospice.org/find_care/hospice_houses.aspxPhoto Galleryhttp://www.thehospice.org/about/photo_gallery/Good news.....my sister Ruth was transferred here last Thursday....best care anywhere in FL. and they have a lot of experience caring for someone with ALS.It's a double-edged sword, but she will finally get the kind of compassionate and professional care that she deserves.http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/x5WPw06g4uA/hospice-house-woodside.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/x5WPw06g4uA" height="1" width="1"/>http://gulfportgalals.blogspot.com/2009/03/hospice-house-woodside.htmltag:blogger.com,1999:blog-3986475588651890202.post-2044672595881172080Thu, 05 Mar 2009 15:00:00 +00002009-03-05T10:02:57.490-05:00The Good The Bad and The Ugly - Personal Struggles and TriumphsFromhttp://abclocal.go.com/wls/story?section=resources/lifestyle_community/community&id=5561092August 12, 2007 (WLS) -- Every day 15 people are diagnosed with the Lou Gerig's Disease. Three years ago, it struck singer-songwriter Eric Lowen, and he has vowed to fight back and raise awareness about the disability wherever he can.......http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/-hNYMZdiLTQ/singer-eric-lowen-on-living-with-als.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/-hNYMZdiLTQ" height="1" width="1"/>http://gulfportgalals.blogspot.com/2009/03/singer-eric-lowen-on-living-with-als.htmltag:blogger.com,1999:blog-3986475588651890202.post-4215060960717267045Tue, 03 Mar 2009 19:19:00 +00002009-03-03T14:20:16.975-05:00Nice video from Lown and Navaro -- http://www.whatkindofworlddoyouwant.com/videos/view/id/884613http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/JNBTH4OIquA/learning-to-fall.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/JNBTH4OIquA" height="1" width="1"/>http://gulfportgalals.blogspot.com/2009/03/learning-to-fall.htmltag:blogger.com,1999:blog-3986475588651890202.post-3712641361487726859Fri, 27 Feb 2009 19:05:00 +00002009-02-27T14:07:57.357-05:00Other worthy Advocacy effortshttp://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/fcjVrpwYaEw/rare-disease-day-2282009.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/fcjVrpwYaEw" height="1" width="1"/>http://gulfportgalals.blogspot.com/2009/02/rare-disease-day-2282009.htmltag:blogger.com,1999:blog-3986475588651890202.post-5431204244410664699Fri, 27 Feb 2009 08:34:00 +00002009-02-27T03:50:14.890-05:00The Medical Textbook - Medical Translations and Definitionsfrom http://www.alsa.org/patient/about.cfm?CFID=2742533&CFTOKEN=3b4d5c89eca1226b-B6DD8540-188B-2E62-80CAD06EC6F59A79Amyotrophic Lateral Sclerosis (ALS) is a motor neuron disease, first identified in 1869 by the noted French neurologist Jean-Martin Charcot. Although the cause of ALS is not completely understood, the 1990's have brought a wealth of new scientific understanding about the physiology http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/hYHPXXhbik0/understanding-als.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/hYHPXXhbik0" height="1" width="1"/>http://gulfportgalals.blogspot.com/2009/02/understanding-als.htmltag:blogger.com,1999:blog-3986475588651890202.post-8630353752049384575Sat, 31 Jan 2009 16:40:00 +00002009-02-27T03:50:26.325-05:00The Good The Bad and The Ugly - Personal Struggles and TriumphsFrom Jenny Hoffhttp://www.spokesmanreview.com/blogs/video/archive.asp?postID=400Angels on EmpireOn a quiet street in the community of Millwood, an unlikely alliance has formed. I like to call them the Angels of Empire Street. Jeff and I moved into this neighborhood in September of 2006. I knew I would love it because we are bordered on all sides with great neighbors-people who have been http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/13YmxJ6R-Ro/jenny-hoffs-story-of-inspiration.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/13YmxJ6R-Ro" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/06/jenny-hoffs-story-of-inspiration.htmltag:blogger.com,1999:blog-3986475588651890202.post-119925780307594603Mon, 19 May 2008 12:36:00 +00002009-02-27T03:50:44.171-05:00The Wallet - Fundraising for PALSI sent emails to our local Bay News 9 and My Fox Tampa Bay here on the GulfCoast of FL (St. Pete/Clearwater/Tampa)This is what I sent to those two stations...It took me all of five minutes -others are welcome to copy the format..Pat HCan you do a segment on Ken Patterson Jr. ?If you hear Ken's story, you can't help but admire the intestinal fortitudethe manhas.....Pat Harbachuk, Gulfport, FL 737-http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/AkZmzU6JvK0/ken-pattersons-rolling-over-als-tour.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/AkZmzU6JvK0" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/05/ken-pattersons-rolling-over-als-tour.htmltag:blogger.com,1999:blog-3986475588651890202.post-5062785956116167180Mon, 19 May 2008 12:35:00 +00002009-02-27T03:52:15.138-05:00The Muses - Stories of InspirationThe Good The Bad and The Ugly - Personal Struggles and TriumphsFrom Mike's web site at http://quadbliss.com/thoughts.htm#The_Important_ThingsThoughts on Life Here I will chronicle my spiritual journey; the path that leads us to a deeper knowing of how we are all connected to each other and the Universe, co-creating the physical reality in which we find ourselves. I am a spiritual, not a religious person. My use of the terms spirit or soul carry no http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/GG3OL7VVKDM/mike-bougher-artist-with-als.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/GG3OL7VVKDM" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/05/mike-bougher-artist-with-als.htmltag:blogger.com,1999:blog-3986475588651890202.post-6321515540163495842Mon, 19 May 2008 12:12:00 +00002008-05-19T08:13:43.781-04:00This is very cool and I believe requires little explanation--every hit generates a donation to MDA/Augies Quest for ALS. Lowen and Navaro are great-they have been playing together since 1987, and Lowen was dx with ALS in 2004. This is a great song and the video and recording involves a lot of people with ALS or touched by ALS. I loved it, hope you do too. <!--[if gte vml 1]>http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/uVZuiweXnJ0/learning-to-fall.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/uVZuiweXnJ0" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/05/learning-to-fall.htmltag:blogger.com,1999:blog-3986475588651890202.post-509436254699063477Tue, 06 May 2008 08:48:00 +00002009-02-27T03:53:04.993-05:00The Muses - Stories of InspirationThe Good The Bad and The Ugly - Personal Struggles and Triumphsfor updates to Ken's Blog........http://rolloverals.blogspot.com/http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/Xi9uhHzmR7A/ken-patterson-is-rollin-and-rollin-and.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/Xi9uhHzmR7A" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/05/ken-patterson-is-rollin-and-rollin-and.htmltag:blogger.com,1999:blog-3986475588651890202.post-3013872334704968928Sun, 27 Apr 2008 08:55:00 +00002008-04-27T05:01:30.756-04:00http://www.alscounts.com/itdoesntaddup.htmlhttp://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/Yusu46ZDC00/alscounts-web-site.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/Yusu46ZDC00" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/04/alscounts-web-site.htmltag:blogger.com,1999:blog-3986475588651890202.post-1296234182145396265Sat, 26 Apr 2008 23:36:00 +00002008-04-27T04:46:27.855-04:00What are the historical common considerations among PALS SINCE 1869 and to prehistoric times? Anyone see a connection besides me?..........Informal survey of ALS and Environmental Exposure (see http://www.quibblo.com/quiz/13-fcSS/ALS-and-Environmenatal-Exposure?skip_to_results=1)• ALS, FTD and Parkinson’s related Dementia (see http://www.alsa.org/research/article.cfm?id=825)• Aspartate, aspartamehttp://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/kaVGSyCWcAM/deadly-common-thread-again.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/kaVGSyCWcAM" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/04/deadly-common-thread-again.htmltag:blogger.com,1999:blog-3986475588651890202.post-56096259394895593Sun, 13 Apr 2008 13:04:00 +00002008-04-22T06:04:45.926-04:00The SoapBox - ALS Legislative IssuesFrom http://www.tulsaworld.com/news/article.aspx?articleID=20080412_1_A13_hShew08807SICK OF ITSherry Owens: She says trying to discuss the bill is “like talking to a brick wall.”By JIM MYERS World Washington Bureau4/12/2008She wants to know why Sen. Tom Coburn is blocking a bill to create a national patient registry.WASHINGTON -- Sherry Owens clearly is frustrated.The Sulphur businesswoman, wife http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/EEmxHR4cbpo/als-patient-fighting-back-sherry-owens.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/EEmxHR4cbpo" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/04/als-patient-fighting-back-sherry-owens.htmltag:blogger.com,1999:blog-3986475588651890202.post-1993370074470669423Tue, 08 Apr 2008 13:58:00 +00002008-04-22T04:12:52.708-04:00The SoapBox - ALS Legislative Issues The ALS Association Florida Chapter To Honor The ALS Association Florida Chapter Reeves BMW and Tampa Bay Illustrated invite you to an exclusiveLaunch Celebration of the new BMW 1 Series Tuesday, April 8, 20086:30-8:30pm Sneak Preview of the new 2008 BMW X6Cocktails, hors d’oeuvres, and entertainmentinformal modeling by SAKS FIFTH AVENUE http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/7l17jOACwfw/wtf.htmlnoreply@blogger.com (A View from the Chair)2<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/7l17jOACwfw" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/04/wtf.htmltag:blogger.com,1999:blog-3986475588651890202.post-1621352843911955551Fri, 04 Apr 2008 07:31:00 +00002008-04-22T04:02:12.782-04:00The SoapBox - ALS Legislative Issues4/1/08 Posted athttp://www.congress.org/congressorg/webreturn/?url=http://www.newsok.comto be submitted to the Oklahoman and NewsOK.com..........Reference: http://gulfportgalals.blogspot.com/2008/04/all-for-what.htmlThere are some constituents across the USwho are calling for the revocation of the MedicalLicense of Senator / Dr. Tom Coburn because ofhis apparent lack of regard for the primary http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/kOZNJ6t6OQ4/effort-to-revoke-senator-coburns.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/kOZNJ6t6OQ4" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/04/effort-to-revoke-senator-coburns.htmltag:blogger.com,1999:blog-3986475588651890202.post-8769438236980214936Tue, 01 Apr 2008 09:05:00 +00002008-11-18T19:57:06.072-05:00The SoapBox - ALS Legislative IssuesSunday evening, my sister Ruth was admitted to the hospice wing at our local hospital to stabilize her meds and move into their hospice house to live out her final days. She signed a DNR and will not get the peg tube that can keep her alive. I guess she is tired of fighting this, and I don't blame her.I have failed her........I couldn't save her, I couldn't fix "it", I couldn't get what she http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/_wEmpCcw9Gk/all-for-what.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/_wEmpCcw9Gk" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/04/all-for-what.htmltag:blogger.com,1999:blog-3986475588651890202.post-4686120934712783257Fri, 28 Mar 2008 08:18:00 +00002008-04-22T04:02:40.776-04:00The Microsope - ALS Research NewsFrom http://www.als.ca/_news/4327.aspxThe protein discovered to be a potential common link in ALS and frontotemporal dementia is thought to interact with the genetic message instructing how to assemble components within motor neurons, an aspect of the disease process that could provide therapeutic targetshttp://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/o27iiSRYMMk/proteins-role-emerging-in-als-and.htmlnoreply@blogger.com (A View from the Chair)1<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/o27iiSRYMMk" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/03/proteins-role-emerging-in-als-and.htmltag:blogger.com,1999:blog-3986475588651890202.post-4547928282022041782Fri, 28 Mar 2008 07:51:00 +00002008-04-22T04:02:40.777-04:00The Microsope - ALS Research NewsLithium delays progression of amyotrophic lateral sclerosis http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/XA4ySsNTlEI/italian-lithium-study-full-text.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/XA4ySsNTlEI" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/03/italian-lithium-study-full-text.htmltag:blogger.com,1999:blog-3986475588651890202.post-7739124722886606912Thu, 27 Mar 2008 08:50:00 +00002008-04-22T04:05:50.640-04:00The SoapBox - ALS Legislative Issues I wish ALSA FL would send my sister the lift she needs to get out of bed, get in her wheelchair, sit on the dang pot, instead of telling me there is "no money in their budget for it", while getting all of us to advocate for their funding by playing on the heartstrings of family members to donate. Ride, walk, etc. so they can do the same thing to some other PALS and their family who needs http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/U6Nv7airwFU/is-this-asking-for-too-much.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/U6Nv7airwFU" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/03/is-this-asking-for-too-much.htmltag:blogger.com,1999:blog-3986475588651890202.post-5469259931954822689Wed, 26 Mar 2008 10:21:00 +00002008-04-22T04:03:02.391-04:00The Microsope - ALS Research NewsFrom http://en.wikipedia.org/wiki/Ricinhttp://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/eP-EHx2PcuE/what-is-ricin.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/eP-EHx2PcuE" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/03/what-is-ricin.htmltag:blogger.com,1999:blog-3986475588651890202.post-1897997232646227320Wed, 26 Mar 2008 10:11:00 +00002008-03-26T06:15:20.128-04:00The Microsope - ALS Research NewsFrom http://tpals.org/ricin1.htm I've had amyotrophic lateral sclerosis (ALS) going on 15 years now, I'm 37 years old. In researching the environment to which I was exposed to as a child, I've discovered an environmental toxin that I propose is the pathogen that is the cause of ALS. When I was a young boy of about ten, there was an empty field behind my house that I http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/4lEX3rSVQwg/castor-beans-ricins-link-to-lou-gerhigs.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/4lEX3rSVQwg" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/03/castor-beans-ricins-link-to-lou-gerhigs.htmltag:blogger.com,1999:blog-3986475588651890202.post-1337682100115639882Wed, 26 Mar 2008 09:46:00 +00002008-03-26T05:51:19.795-04:00The Medical Textbook - Medical Translations and DefinitionsFrom http://en.wikipedia.org/wiki/OrganophosphateOrganophosphate pesticidesIn health, agriculture, and government, the word "organophosphates" refers to a group of insecticides or nerve agents acting on the enzyme acetylcholinesterase (the pesticide group Carbamates also act on this enzyme, but through a different mechanism). The term is used often to describe virtually any organic phosphorus(V)-http://feedproxy.google.com/~r/GulfportgalsAlsCloset/~3/H9Oog-MAc7k/organophosphates-defined.htmlnoreply@blogger.com (A View from the Chair)0<img src="http://feeds.feedburner.com/~r/GulfportgalsAlsCloset/~4/H9Oog-MAc7k" height="1" width="1"/>http://gulfportgalals.blogspot.com/2008/03/organophosphates-defined.html