tag:blogger.com,1999:blog-58034356225523375352025-09-16T23:46:15.351-07:00Information and news on Hemophilia and the Bleeding Disorder CommunityUnknownnoreply@blogger.comBlogger25125tag:blogger.com,1999:blog-5803435622552337535.post-1828810142835109742012-09-17T22:29:00.001-07:002012-09-17T22:29:34.707-07:00

Pro Bono Bio Announces the Successful Development of Subcutaneous and Long-Acting Blood Factors VIIa,VIII and IX for the Treatment of Haemophilia: LONDON and MOSCOW, September 11, 2012 /PRNewswire/ – Original article can be found here. Subcutaneous blood factors expected to revolutionise the treatment paradigm of haemophiliac patients worldwide Pro Bono Bio Group plc (“PBB”), the

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-48285465096848213202012-05-17T12:43:00.001-07:002012-05-17T12:43:36.082-07:00

Avoid Pain from an Injection by Looking Away [Health]: If you've ever received an injection of any kind you might have heard the advice of the doctor to look away so it won't hurt. As it turns out, new research published in the journal Pain provides evidence that looking away actually does decrease the amount of pain you feel. More »

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-40892529113255542932012-02-08T16:29:00.000-08:002012-02-08T17:30:49.945-08:00

Hey everybody just wanted to shoot a quick update out. Our new address is http://www.hemophilia.tk/ but don't worry, the old address will still work just fine! Also, give the new address a few days to work completely. Stay tuned for more frequent updates. As always, check out The Daily Bleeder by HemoWeb for daily news from around the bleeding disorder community.

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-12541662280584756372011-09-17T14:05:00.000-07:002011-09-17T14:06:40.411-07:00

Today I am doing the Tour de Light Rail Pub Crawl befitting the Hemophilia Association of Arizona. While getting ready to go out and be social and be active, what is my first thought? To do my medicine. To Infuse. To do my factor. Whatever you want to call it, the chance of a bleed has to be the first thing on my mind when it comes to staying active. Even though it's not a

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-74908540026447966612011-09-14T17:14:00.000-07:002011-09-14T17:14:33.256-07:00

If you could make a huge difference in a few minutes, would you do it?? We are asking for your help! Just take a couple minutes and a few clicks to help us reach our goal and raise $15,000 to help make a huge difference for a child!! As part of the Arizona Hemophilia Walk, Bayer is sponsoring the 2011 Bayer Virtual Walk for Hemophilia in an effort to help raise money and

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-34639974741766201062011-08-11T03:08:00.000-07:002011-09-14T17:19:06.576-07:00

The New York City Hemophilia Chapter will hold its 2011 Gala on Saturday, November 5th, with cocktails at five o'clock and dinner at six. The event will be held at Bayard's in India House, located at One Hanover Square in New York City's fabled downtown district. The historic structure, which was built as a family residence nearly three centuries ago, previously served as the New York Cotton

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-26686353371482889292011-08-02T22:26:00.000-07:002011-08-02T22:28:23.551-07:00

Story via OutpatientSurgery A surgical tech's wrongful termination lawsuit accuses his former employer of firing him due to his hemophilia. The surgery center, however, counters that the firing was the result of the tech's dishonest use of medical time off. Robert Dietrich was an OR tech, anesthesia tech and orderly for the Susquehanna Valley Surgery Center in Harrisburg, Pa., for 6 years

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-48951234377141416792011-07-29T17:04:00.001-07:002011-07-29T17:14:48.405-07:00

Check out the new blog section on the right consisting of many blogs relating to Hemophilia and Von Willebrand disease  around the web. Want your blog added? Email us at HemoWebs@gmail.com or just comment right here. Also, don't forget to subscribe to our feed, our twitter, or our facebook. Lastly we've created a newpaper, The Daily Bleeder, where you can get daily updates from

Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5803435622552337535.post-70591247956595280932011-07-28T15:55:00.000-07:002011-07-28T15:55:03.909-07:00

Baxter BioScience has announced that it is voluntarily recalling one lot of Recombinate Antihemophilic Factor (Recombinant). Baxter states that this recall is being taken as a precautionary measure after a retrospective review of its manufacturing process revealed a breach in aseptic processing.  This lot did meet all in-process and final container specifications, which include sterility and

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-56764413093995362452011-07-23T22:46:00.000-07:002011-08-02T22:38:52.205-07:00

Susan Scroggins didn’t know which was worse: that both her children had been diagnosed with type 1 von Willebrand disease (VWD), or the dearth of support and information for families living with VWD in her area. It was December 2010, and she had just spent the past several weeks watching her 12-year-old son and 13-year-old daughter bleed uncontrollably after having their tonsils removed. When

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-33781839950459277682011-07-18T22:09:00.000-07:002011-07-29T17:48:41.842-07:00

Treatment for each hemophilia patient costs the government NT$2.56 million (S$109,312) annually on average, an official with the Bureau of National Health Insurance (BNHI) under the Department of Health (DOH) said yesterday. Treatment for such patients is most expensive because long-term use of coagulation factors is called for, Lin Are-ming, BNHI commissioner, said. The NT$2.56 million spent

Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-5803435622552337535.post-39016932252055397952011-07-18T21:58:00.000-07:002011-07-29T18:14:56.197-07:00

Save One Life founder Laurie Kelley is the mother of a child with the blood disorder hemophilia, and president of LA Kelley Communications, Inc., a company that creates and publishes educational materials for parents and patients. Kelley has been traveling to Africa since 1999 and was the first in the global hemophilia community to introduce hemophilia medicine in several African countries, and

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-60346384583581212512011-07-18T21:55:00.000-07:002011-07-18T21:57:56.517-07:00

A local mom is determined to raise $2,000 by the end of the summer to help find a cure for her son’s rare disease. Jennifer Ruklic’s three-year-old son Carter has hemophilia; an inherited disorder in which one of the proteins needed to form blood clots is missing or reduced. Hemophilia is passed down from mothers to sons in the X chromosome. Ruklic is determined to raise the money for the

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-1961391132875670272011-07-18T21:50:00.000-07:002011-07-18T21:50:05.451-07:00

CSL Behring has donated more than 1 million international units (IU) of von Willebrand factor (VWF)/Factor VIII (FVIII) replacement medication to patients through the World Federation of Hemophilia (WFH). The donation supports WFH's progress in improving the diagnosis and treatment of bleeding disorders in developing countries through its Global Alliance for Progress (GAP) program. It is part of

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-86811121691674885832011-07-18T21:47:00.000-07:002011-07-18T21:48:22.284-07:00

Ed Vailes lost his legs, but not his life, to hemophilia. At 71, he's among the oldest people in the United States living with the chronic, inherited disease. People with hemophilia lack an enzyme that helps blood clot, meaning any injury can become a life-threatening emergency. While playing a pickup game of football in 1954, he hit the dirt. An artery in his hip ruptured and refused to heal.

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-71429106159983906272011-07-18T17:40:00.000-07:002011-07-18T17:40:00.068-07:00

August 5-7, 2011 Building a Strong Community "Empowerment" Join us for our 6th Annual Statewide Meeting for an informative and fun-filled weekend for the whole family. This is your opportunity to reconnect with old friends and make new ones, share with others, and learn how to better manage your bleeding disorder. Here is just a glimpse of what is in store for you at this year’s meeting:

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-87717340400594176452011-07-16T02:39:00.000-07:002011-07-16T02:42:51.260-07:00

Get our new iPhone app for the latest HemoWeb updates on the go. Works on iPad too! Go get the Bloapp at the app store and snap our QR code to the right to get all set up. That's it! Best of all it's free! Someone with an iPhone or iPad try this out and let us know how it works in the comments. Thanks and stay tuned for more about hemophilia as we grow.

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-35592862026042833722011-07-14T00:44:00.000-07:002011-07-16T02:38:45.635-07:00

We took some time and made a fresh new design for the blog and cleaned up the look of the Facebook page too, as it was really needing it. Let us know what you think and Like Us on Facebook! Till next time my fellow bleeders!

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-33842330672334022582011-06-29T18:22:00.000-07:002011-07-16T02:38:59.900-07:00

Cut-and-paste therapy fixes mouse hemophilia:"Scientists have developed a gene-repair kit that treats the blood-clotting disorder haemophilia in mice. The technique replaces genes in targeted organs without removing cells from the body, simultaneously correcting multiple mutations. It broadens the range of diseases that can be treated with gene therapy."

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-67458304987153608242011-06-29T18:18:00.000-07:002011-07-16T02:39:10.933-07:00

DNA-Snipping Enzymes Cure Hemophilia in Mice | 80beats | Discover Magazine: "Hemophilia is perhaps best known as a disease of nineteenth-century royalty (specifically, of the oft-intermarried Hapsburgs), but it has evaded our efforts at a cure for thousands of years. And its effects are gruesome: mutations in the gene for a crucial clotting factor mean that victims can rapidly bleed to death

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-91569353198341999012011-06-23T17:48:00.000-07:002011-07-16T02:39:28.089-07:00

Neil Simister A razor nick in the shower? A fall on a slippery floor? The average person simply calls it bad karma, but for people with hemophilia such episodes can cause prolonged blood loss. Hemophilia is an inherited bleeding disorder in which a particular protein required for blood to clot is missing or is present at an insufficient level. Currently there is no long-acting hemophilia

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-11039524814089194902011-06-01T17:02:00.000-07:002011-06-01T23:41:53.155-07:00

This intrigues me although I have almost no idea what they are talking about. "Therapeutic areas included ZFN-based approaches to infectious diseases such as HIV/AIDS and monogenic diseases such as hemophilia, ADA-SCID, retinal neurodegeneration and epidermolysis bullosa. Positive preclinical data were also presented from studies of Sangamo's ZFP TF activator of the vascular endothelial growth

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-87490004305750581632011-06-01T16:57:00.000-07:002011-06-01T23:39:36.198-07:00

Image from NHSusa KING OF PRUSSIA, Pa., May 31, 2011 /PRNewswire/ -- CSL Behring announced today that it has been granted Orphan Drug Designations (ODD) by the European Commission for the development of its recombinant fusion protein linking coagulation factor VIIa with albumin (rVIIa-FP), a novel therapy to treat hemophilia A and hemophilia B patients with inhibitors. The designations would

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-72994571137581786072011-06-01T16:37:00.000-07:002011-06-01T23:20:12.523-07:00

Local PBS broadcasts of BAD BLOOD are listed by state below. PBS WORLD broadcasts may be on a different channel than your regular PBS station. Please search your service providers’ listings for “BAD BLOOD” to determine local carrier broadcast dates and times. If (WORLD) is listed next to your station visit PBS World to determine the channel in your area. If you don’t see your local station listed

Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-5803435622552337535.post-59559235348852621112011-05-23T17:07:00.000-07:002011-06-01T23:41:23.639-07:00

Unknownnoreply@blogger.com0