Hippy Hipster Diary

Quickie Update

2012-01-26T08:19:00.000-08:00

Had the Scan at the A+E in Stafford and it showed NO dvt which to be very honest floored me with shock!! I was convinced as I know the pain isn't normal. But I reassured myself that at least I was seeing the Consultant the following Morning.

Cue Tuesday and I was all excited thinking this could be the day I was going to be told I could fully weight bear and get on with fully recovering. Had the X-Ray and all was well, Saw the consultant and mentioned the whole knee problem, and he checked it over, taking me very seriously. He said it could be plate irritation and to keep an eye out over it. Or that it is a separate problem that the hips and femur has overshadowed, and now that it is fixing, the knee is coming out of the shadows.

But he said I could pick up the phone anytime and they would see me that day or evening to stop me needing to seek out the GP or A+E's again. As at least they know what they are doing. Feeling relieved at that news, like a massive weight had been lifted, we settled down to discuss the Surgery and the X-Ray. Predictably the bone hasn't healed, or grown enough for Fully Weight Bearing so another 2 Months on Crutches, as the previous surgery has shown that I'm very slow at bone healing, possibly due to EDS Type 3 Hypermobility. Least I was prepared for this so it came as no surprise to me or my Hubby.

Well Least I feel more confident that I'm not going to just die, and that I have some support whenever I need it from the Hospital.

DVT awareness

2012-01-22T05:37:00.000-08:00

Yep it's happening again, or at least we think so, I certainly think so. The old familiar pains are back and I'm worried it's a clot again. Thursday night it reduced me too tears, it was so painful and I was too worried for words, so I took aspirin for peace of mind and put my Compression Tights on too.

Friday morning we went down to the GP's as soon as possible, as soon as it opened actually and he listened to what I had to say, He sent me for a Blood test to see if that was positive or negative and if positive I would need to go to get a scan. Off to the Hospital we headed out, this is a massive ordeal on crutches. The Hospital and GP both said I would get the results back in a few hours time.

Queue hardcore worrying waiting time, I rung the GP's to find out what would happen next. I was only given the most appalling service, I was told it would be Monday earliest for a result, as I was dreaming if I thought it would happen earlier and how dare I suggest it!! I told her what it was about and what the GP had said, and she said well we haven't been told anything and there's nothing I can do. Perhaps you should ring the Hospital yourself? WFT?? I cried and cried and i don't care admitting that, if anyone has had one or knows about DVT's it's like a timebomb waiting to go off, this clot could break off at anytime and kill me, thats right KILL me!

I rung the Hospital and they said that unfortunately it would be Monday morning for the results, I told her it just couldn't be as it's about a DVT and it was marked Urgent, the results had to be done today. Finally she said, well you will have to get your doctor to ring for the results as they could not give them to me directly. Nightmare, this means I have to ring that Receptionist again? How will I ever get through to the GP? Surely she wont be helpful as she wasn't half hour ago.

I plucked up the courage to ring, and calmed myself down enough too as well, I got ready to give this Receptionist hell if needed. But thankfully I got another Receptionist who said immediately well I will ring the hospital for you, get the results and let the GP know and once he has decided what needs doing then I will ring you back. How was this not offered before? Why couldn't the other Receptionist be lovely like this one. Finally I felt listened too. She rung back and said it had come back at 770 so it was a positive and I needed to get to A+E immediately to get a scan.

I get there in Half hour, it's 4.30pm Friday evening and I explain the GP has sent me because of my pains my history and the blood test results, and I need a scan straight away. I sit down and wait my turn, I get called in really fast, shocking, and it's just to check in more detail before the scan to be told there was NO WAY I was getting a scan on Friday Night, I would have to wait until Monday!!! They said the only thing they could do was give me some Clexzane injections to make the clot stable and go back on Monday. If I hadn't known that all they could do after a scan is put me on injections and then Warfarin then this could of freaked me out. But thankfully I did know, and although miffed and peeved I said ok. They tried to weigh me for the dose, but the scales wouldn't switch on, so I said to the Male Nurse I know how heavy I am, i said I'm 10st 13 or 153lbs and the Cheeky Bugger said wow thats heavier than me! WTF??? What gives him the right to say that? I do have issues that I'm overweight, I don't like my body, But quite frankly I'm terrified my clot is going to break off and KILL me, and I'm currently healing from broken pelvis and femurs, so losing weight while on crutches is NOT my top priority right now.

So from being humiliated and made to feel really small and a thorn in people's sides. I have finally got home with 2 injections to do myself and 1 they did at A+E. Knowing I have to go after the weekend. I put on my OWN compression tights from HappyHealthyLegs as no-one mentioned them, or offered any advice in any way shape or form! They didn't even give me a sharps box to put the used needles in!!

Shambles NHS and I'm Peeved to Hell

Physio and WK5

2012-01-12T08:29:00.000-08:00

Update for me, I have physio and the appointment went well, and i came away feeling good and confident, and hydro is being arranged (i didn't know that until then) all the exercises i was given he was happy with, except the small squats. he felt i shouldn't be doing them while part weight bearing, and possibly this is why i feel sick at times. So not doing them until i can fully weight bear. Went round town to get my watch strap adjusted and ended up walking for about 90mins. Super proud of myself as this is the most time i've ever stood up or walked ever since the surgery. I am 5 wks post op so you'd think it would be strong now, or building up stronger? But no, I slip again (third time out third slip!) I put the crutch on Hubby's foot and before realising it wasn't secure i'd committed to stepping and was stepping down with the right leg, (Operated leg) So of course all 11st of me went through it, once more i got the stabbing shooting pains, flying up the leg from the knee. I couldn't speak, or focus for a few mins. Then because i had a fair walk back to the car, we walked slowly back and the pain subsided. Thought nothing of it until later on, the knee felt twisted. I've had pains like that before so wasn't too fussed, and decided to elevate the leg and rest for the next day as i knew i'd need it bad.

Anyways the rest was needed as my shoulder has proper popped in and out of it's joint all night and day, the pain is unreal. I know this is purely from the crutches and walking, so hot water bottles and tens machine for that. Leg is much better after a full day of resting as i had a duvet day. But the knee is swollen and i have a vein bulging behind my knee on the right leg. I never had that on the left leg even though i had a massive dvt as well, the dvt was all up my leg and blocked behind my knee so i would of expected it there. But now i'm not sure if this is new and because i slipped? or because i walked so much? Or because of the blood blocking the vein? or simply it's always been there but i've not noticed because until now the knee hadn't hurt and wasn't been scrutinized. I've took measurements of my calves, and they measure the same, Took them at the top of the knee and they are different by 0.5" and at thigh they are a difference of 1.5" so think i will keep recording it and see if they change.

I'm alittle worried that i keep slipping everytime i go outdoors, am i being careless, or not concentrating hard enough or perhaps the tablets are puddling my brain?

Besides all that, I am doing well, and fingers crossed on the 24th Jan i will get the go ahead for fully weightbearing. I don't hold out any hope to be honest as i would of thought it wouldn't hurt as much as it does if it was ready? Last time it took 6 months for the bone to heal, which is common for Hypermobile people, poor healing. But thinking positive to try and wish it, as i'm fed up of crutches already lol

4 Wks Post Op and Rehabbing

2012-01-02T16:41:00.000-08:00

I'm now 4 weeks post op and recovering well thankfully. I've had a few slips where I've put my operated leg down harder than I should, which admittedly killed and I nearly passed out in pain! But ultimately think it has made me stronger and it heal faster. The staples came out after 2 weeks and the wound is healing well and cleanly. The scar is around 10inches long and although it's not the the old scar being used (as we were hoping) although I can see why, as that one is wide and rough and tough. But I'm happy with it and even if it is used for the screw removal, if i sick and couldn't do it as planned. Thank goots fine.

Physio is damn hard work, and I'm trying to do some everyday even if I am sore. I have dropped from 8 Tramadol and 8 Paracetamol down to 4 Para's and 4 Tram and 2 Co-Codamol even though I have upped the activity which is brilliant news for me. This is better than pre op!

Christmas was hardwork, I had to wrap the presents and cook the dinner with help though of course as poor Hubby washe Wii for Wiiabilitation last time which was grdness for my perch seat in the kitchen, and My Mum and my eldest Daughter helping in the Kitchen with the Christmas Dinner. Christmas was fantastic and I'd do it again any day, it was the first time ever I've ever done Christmas Dinner for anyone else, My Parents came up and Daughter came home from Uni which pleased all the sisters.

Now I'm feeling mentally and physically stronger it's tempting to try the Wii, as I used ts, I'm going to give this hip the best I'veat, and perhaps try my stationary bike too. Bit scared of the bike but my Hubby will be there to help me get on and off. Like he does with the bath and the bath board (thank heavens I was given that!) Totally recommend the perch and bathboard to anyone having Hip surgeries as they help give you a sense of independence even when you don't really have any! Lol

New Year New Me, Well New zest for pain free living and activities, I'm going to give this hip the best I've got and do every bit of Physio and exercise I'm asked to do, to give myself the best chance ever. And of course lose some lbs as that can't help the pressure on them. All these surgeries have made me go up a couple of stones, which is a nightmare.

Happy New Year and Goddess Bless

Post Op and tales to tell

2011-12-10T14:29:00.000-08:00

It's 5th Dec and I had a short time to wait for surgery really, got there at 7am and went down at 12.30pm the IV took a while to put in and it was painful too, they used the wrong hand too (rightie) but the morphine pca was planned so i felt at ease. I went to sleep at 12.50pm and was at high dependency at 2.30pm but didn't really come round til 3.30pm and took to a PRIVATE ward (spoilt girl) at 4pm then i finally got to see Rich and prove to him i was ok. only got a private room because there was no other beds available lol Lucky me, so room to myself with a freeview tv as well. The first night was pretty rough and the morphine wasn't quite enough pain relief, and the following morning i was sick everywhere. I felt stupid and they had to change the bedding etc... but i had an Oxytocin (sp) and the pain subsided enough for me to try and get up and try crutches for the first time, and sit in a chair while they changed the bed. Managed a quick wash, dress myself in my own nightie. Felt more human and slept most of the away. Mum and Dad visited me in the afternoon and brought loads of food to me. (last time my food was always freezing cold, and too rich to eat) which is my saving grace.
Wednesday i woke up early and fresh after a good night sleep and being on top on pain levels too, so today they said i could go home if i could do the stairs which i did in a flash! the private room was lovely, the food was a million times better as was the care too (shame you don't get that throughout the hospital) anyways i was eager to get home and give up my room for someone that really needed it, as i have full support at home.

Been great at home ever since, slept loads mainly as the anaesthetic has took it out of me, but hubby understands and is easy going too. Knee kills as i have a dressing there too, perhaps where a camera went in or tool of some kind? and everytime i move it knocks which hurts like hell. But early days yet, tried one set of physio on Thursday but was so sore and stiff Friday that i've not done any today.

The Big Op Day

2011-12-03T16:05:00.000-08:00

Is nearly here! This is my last weekend so been wrapping up some loose ends and finalising bits and bobs off. We put the Christmas Tree up with the kids which is early for us, but I knew if I didn't now I wouldn't be able to join in later on in the month. And we had decided to pull Richard's birthday forward so we can all enjoy a Birthday tea and open presents while we are all together.

Then obviously a last bath, shave and wash hair so I'm clean and ready to go, and finalise my bags ready. I'm super nervous and worried about the pain levels, seen as it was days before they got a handle on it last time, and of course the dvt stresses me out once again.

Christmas presents are bought, but not wrapped I'm not that organised! It was hard enough to arrange 2 Birthdays and Theatre visits with Surgery as well as wrapping Hundreds of gifts lol. I'm shutting all my Jewellery shops in preparation for recovery and stress free relaxing lol Truth is a probably will miss them dearly and as soon as I'm out of hospital I'll be back online lol.

Happy Holidays and Next time we speak I will have a femur facing the correct way I hope!

THE BIG DAY....... GOT A DATE

2011-11-10T13:39:00.000-08:00

How posh am I having this, The Supporting Handmade However it's Made Christmas Showcase!

WooHoo that has happened all in a whirlwind of Holiday with the Kids and illness. The Former was amazing and just what the family needed all round. The later hit the family on said Holiday in Sept and in Nov and it's still here.... First Sam got it, sore throat, tickly cough, feeling run down. But it didn't last long and next up was Me, of course! I had standard sore throat and cough, not too bad, then Olivia got it, and it threw her sideways for a few days but nothing serious, my throat was clearing up and BAM I got it again only worse, this time I had a high fever, flu like and ached all over, hurt to raise my arms, my neck was killing and sore throat was so bad I couldn't eat, felt sick for a few days so stuck to drinking instead, then slowly moved onto soup. This went on for 2 weeks!! Then as quick as I get better my Hubby gets poorly and thats where we are right now, week 1 moving onto week 2. It has mutated each time it's hit another person, not entirely the same symptoms for each one of us. I guess it's attacked our own weaknesses. Just when you think your ill and rough, it mutates and gives you new symptoms, ear ache, headaches, foggy woolly heads. I ended up with Laryngitis so that explained the really bad sore throat and very furry tongue. Yuck!!

But all this is by the by, we have to get better as I have a DATE, the first date I was given provisionally was 16th Jan 2012 which I admit I rejoiced at. It would be after Christmas so no third year on crutches, I would be able to Christmas shop at leisure, and with Rich and lose some all important pounds that my lardy ass has gained.

But as soon as I got excited about that, I was sent out a new letter and a new date, Disaster! 5th Dec 2011 this was awful, what a dilemma! Not only would I be on crutches yet again for Christmas, but I'd struggle to do the Christmas dinner and shopping, and more importantly I'd miss Husbands birthday (I'd be in Hospital on the day!) and my daughters birthday. HELP!!! I quickly rung up to see if I could change the dates, but no luck I would have to wait until.......... end of MARCH!!! WTF?? No way I love my family, but I can't do that. So I have excepted the date.

Why am I telling you all this, well to show you that you think one thing at first only to completely change when you really think about it. Firstly Christmas shopping can be done online and done in the 4 weeks I have left before surgery, as who wants to be in town in December with all those queues anyway? Secondly Hubbys birthday is the 9th Dec so we've planned a full day out in Liverpool the weekend before I go in, so bringing birthday forward, Daughters birthday I'll be home and we'll watch movies with pizza and popcorn, bliss! Thirdly who wants to go out in the wet,dark and cold days anyways far better to be stuck indoors recovering then, rather than the Spring when you want to go on days out, go camping, go for picnic's! So it makes me wonder how did I ever think there was a dilemma in the first place.

This way I'll recover when we don't go out much anyways, (except I'll miss NYE) and when I'm recovered enough I can think of Holidays as we'll have the weather for it. Better to be active then, than in the snow.

So now is the time to plan and get myself sorted, Got a Virtual CRAFTfest fair http://creative-connections.ning.com/photo/albums/mysticmoon-craftfest-album end of Nov and after that I'm shutting up my Jewellery shops to focus on the BIG DAY ahead, less stress that way. And I've got to get myself into Christmas shopping mode, and of course put my tree up earlier so I can join in lol

Happy Holidays and Happy Healing xx

Woop Woop, Walking on the Moon

2011-09-25T14:35:00.000-07:00

Literally I'm on cloud nine, it's weird I know, to be so happy about surgery and to be told you need it. But I was scared to death that they could of turned round and said we don't think it's the joint or femur itself, we think more phsyio or more exercising will cure it, and that I've not tried hard enough to correct it myself.

So to hear that NO amount of waiting or rehabbing is ever going to make it feel better was music to my ears. I feel validated once again, that it's not all in my head like GPs love to say, or your family may think? The steroid confirmed that it is a Bone/Joint issue and there are ways to correct it.

They are thinking of breaking the femur at the top near the ball part of the Hip Joint and twist it around so the Cam Impingement part will be removed so it no longer catches on the socket,a nd once again plated and screwed together. But this way it is far less than what ever was talked about earlier, and the recovery shouldn't be half as bad. So I'm looking forward to it, This steroid has shown me what life could be like pain free, and hinderance free.

I have lots of Jewellery to create to keep me nice and busy, especially for Christmas presents, I'm trying to do a Handcrafted Christmas once again, buying and swapping with crafty friends. It feels better this way, my friends and I gain from it in more ways than one, I can shop from home and it's so nice to know your helping out others, their confidence and esteem, and being greener for the planet as most things are upcycled, or recycled.

Looking at just before Christmas for the Surgery Date, So fully taking this opportunity of waiting to build up the strength and stamina in the Left hip, so it can become the new 'Good' Hip and be able to carry me, once the right hip is operated on. To shift some pounds in weight to certainly help out too, as it's super hard to control weight issues when your so immobile. I'm determined to not been on toe weight bearing for 6 months like last time, and certainly I want to recover as fast as possible this time round. It's time to move on with our lives, get all these hips and joints behind us and go forward with a spring in our step and a new lease on life.......

Just gotta do the surgery, and then the journey begins

Normal?

2011-08-14T08:31:00.000-07:00

Can I ever be classed as normal? Well if I ever could, then I think I'm pretty close too it now. The hips are behaving, even the Rightie and the shoulders are settling down a bit too. The mental madness and tears etc.. are fading now thankfully.

It's super tempting to exercise and do lots of things, but when I do try, I'm shown that I'm not as cured as I think I am but still 100% better than I was before if that makes any sense. I've been doing the O'Hara chair exercises 10 mins ever 2 days, I'd love to do it every day but I need to pace myself, as these ware me out and make me sore regardless of painkillers took. So instead of totally over doing it like I normally do, but pace and leave energies in reserve.

The Hypermobility has flared up in the shoulders, but I've read that the steroid can cause it too flare up and cause issues when patients are down and depressed too, so it explains it and gives me hope that it will settle down once the steroid eases out my system as well.

Well it's been 4 weeks post op now and time has admittedly flown by, with buying school uniform and planning the kids holiday. Oh and of course the riots too!

Found some amazing bloggers against the ATOS medical group, in a name and shame blog I've submitted by own atos story, and I've found help on twitter and forums. Get in touch with me if you want to know more, or need any help regarding the Atos medical assessments.

http://enchantednails@hotmail.com and I will endeavour to help in anyway I can.

AAAAaaaaRRrrrrrrGGGGggggHHHhhhhh!

2011-08-02T13:23:00.000-07:00

What hell this recovery is!, It's now officially 2 weeks since the mini op and the steroid (Kenalog) injection and I have been through the mill.

I have discovered I've got 8 of the 15 possible side effects, Lol Some ranging from Mental problems (low moods, manic behaviour and suicidal thoughts)

To stomach pains, Irregular periods,Headaches, Eye problems, Increased appetite, Feeling bloated, Exhaustion and Bone aches. So thankfully I now know it's not all in my head like I was beginning to think.

Sadly you have to just suffer them, but it does make me feel better to know there is a reason behind it all, and that they will ease off soon. It also explains why the shoulders have been really bad this last week.

Had an amazing Birthday though regardless and I think the steroid is starting to work, Fingers crossed xx

Surgery Update

2011-07-28T01:13:00.000-07:00

Well it's been just over a week since the Mini OP and physically the recovery is going well, the Right hip is still niggly and aches like a toothache, I really hope it goes soon otherwise this does mean surgery wont work. And i have no idea what we can possibly do then, as a lifetime of this hip pain with no action plan scares me to death! Way more than facing a surgery and recovery period.

But man, No-one ever ever told me how this Kenalog steroid was going to affect me mentally and emotionally. I've been on a total rollercoaster since, i look fine and i guess everyone thinks i'm fine and treat me accordingly, so no help around the house (except Hubby, Or begrudingly awful stressful help from teen), still have to listen to bickering kids 24/7 now it's the holidays. So no-one gives you any leeway to be a liitle messed up inside, tearful and overwhelmed by it all. Which i will admit has hit me hard, I'm finding myself crying at ridiculous things, my temper is 0 to 60 in meer seconds and i know it's ALL me, so it must be the steroid. So i checked out the side affects and yep! They were listed, in fact so was Round Face (Lol sounds funny, until you read it can affect you months after the steroid injection! Eek!) So i've had to try and explain to kids that although i look fine, I'm actually not and too ignore me. They shouldn't fine the ignoring bit hard, they ignore me pretty well when i ask for housework help!

To top off our stress levels, we have recently failed our ESA medical held by ATOS once more (i knew i would, i failed before when i was days away from the whole Triple Pelvic and Femur surgeries lol As if you can look for a job while you can't even walk) So it's back to the stress of medical certs every 4 weeks from the Gp's and waiting for a tribunal date (probably 18months away) I've asked O'Hara to write a letter again if possible as he did last time and i'm sure we won our case by a landslide because of that letter.

Anyways guys, It's annoying not being able to work the hip and see if i can do physio until 13th Sept. Really hard to try to rest it, I want to be able to do physio and workout and work. Hate being at home more than anything!! But the Kenalog says i must not work the hip in case i can do more than i should do due to it's pain relief (if that ever kicks in).

Happy Healing guys Love you all xx

The Mini Op and coming home

2011-07-20T08:17:00.000-07:00

It went fantastically well, got to the Hospital by 7.30am Monday the 18th July My Mum's Birthday and my friends Kim's birthday. And by 12.30pm I had been down, given the injection of Marcaine into the joint, had my Arthogram, X-rays and Kenalog Steriod inside the joint and brought back to the ward. It was quick painless and I was treated fantastically by the staff. They were friendly and thorough and all you could ask for.

I had to stay for observations for at least 2 hours so it was around 3pm before we got to the car and ready to come home. Bit nervous as I normally have a day or two in Hospital to rest away from the Children and household chores, so not sure how this will pan out.

Got home and the journey was easy enough thankfully, and I had the first set of pain killers and I fell asleep straight away. In fact I slept all night, right the way through to 7.30am the next day!!

I was woke up with pain, a nagging toothache like pain in the pelvis. And on rising from bed I noticed how strangely stiff and cracking the Left hip was. The Right hip is sore too but thankfully the Marcaine is still in affect and will be for a few days. Once it wares off though I've been warned it can feel bad, and too be prepared by taking full doses of Painkillers every 4 hours rather than waiting for the pain to arrive and the deal with it. Got a bit more emotional and weak today, as I think the children think I'm better than I actually am and just bickering, arguing and generally being too loud and too much for me too cope with. I ended up crying my eyes out, mainly from sheer exhaustion and feeling pain. I just need to sleep and eat at the mo and not much more.

I slept perfectly again, I could get used to this, If only I didn't still feel worn out and like I've been hit by a train. I can feel the Groin pain more today and when I get up from seats, when the quad muscle contracts. So stocking up on doses and riding the waves as best as I can. I've had to do some chores, like washing and making drinks, breakfast and wrapping up parcels from things I've sold and after each small chore, I've felt like I've completed a marathon, the chest is all tight and I find it hard to breathe. And I'm still shaky when standing for too long. I know I have pushed it way too far today, so pulling back and I'm taking the rest of the day off.

Got to keep a diary about the pain, and whether the Kenalog kicks in, in around 2/3 weeks time and if so how long for etc.... As I have my post op appointment on the 13th Sept 2011 and hopefully we can find out the results and decide on the action plan. Fingers crossed the Kenalog will work and the femur ostestomy will go ahead come Christmas.

DVT's PE's and Blood Clots in General.

2011-07-15T16:36:00.000-07:00

Well I've now had my Pre-op and all is well, seems to be there are taking the past dvt seriously (thank goodess) after the BBC news peace I found, shame it wasn't screened or prevented as it should of been in the first place! Here is the link http://www.bbc.co.uk/news/health-14124441

I think you will find the results shocking, and depressing. We need to spread awareness of blood disorders more, especially when 25,000 deaths can be prevented. No one tells you that you will and can be forever changed after experiencing a blood clot. Most people know it can kill you, but most don't realise that some clots go symptomless (mine) for weeks and then kill you! In fact for obvious reasons the symptomless ones are the worse as it only takes one small knock to dislodge it. There isn't a day that goes by that I'm not grateful for being alive, and that it was discovered by chance at 6 weeks. By that time the clot had spread from my Pelvic cut, the join where the hip meets the pelvis down to the back of my ankle. It only started to swell ad get painful down near the ankle, prior to that the thigh was badly swollen anyway from the surgery, and it was painful behind my knee which was tendinitis which dvt's have the same symptoms as.

If I had been given the correct tablets and stockings at the hospital I know it wouldn't of got that bad. But in saying all that I understand that I'm young, likely to recover quicker (before we found out I've got EDS Type 3, that explains the slow healing now) and be mobile quicker, so resources would be better on an elderly patient and not me. But I didn't heal, Blood was thick and I got the dvt within the first night of hospital. After finding out that stockings alone can prevent a dvt 100%, this has driven it home that every patient should be getting them, even if in bed for one night, anything that makes them sit down for longer periods than normal and exercise or walk less needs these stockings. You can even find funky ones at www.happyhealthylegs.co.uk run by a funky young lady, which has suffered herself with dvt's and has to wear these compression stockings all day every day.

So campaign and campaign and more campaigning is the way forward. Get it trending on Twitter and hope some people are made more aware. DVT is NOT something you ever ever want to suffer with, as you will do exactly that, SUFFER if you LIVE!

Holiday Evissa Baby!!!!

2011-07-04T13:55:00.000-07:00

The Holiday was totally amazeballs and just what the doctor ordered, In fact they should prescribe sunny holidays for those recovering!!! I feel like a new woman...... well not quite but it certainly lifted my spirits and cheered me up again. It was beautifully hot and warmed the old bones up, and we spent lots of lazy days on the beach or in the hotels garden. We pottered around the town a little a night for our late tea's and to visit the beach near the hotel for the best sunset views on the whole island. It was sheer heaven, and physically,mentally and spiritually i needed it. For 9 days we could forget chores,bills,medicals,doctors and hospitals and be pampered and catered for.

Although it's all there when you get back, you feel renewed so it takes the sting out. The hip played up every day but i took a full days dose of Tramadol and Co-codamol to help cope with the situation. And a sheer bloody mindedness really helped too.

Well the next appointment is the 18th July and i thought it was just for a Cortisone Injection and MRA but i have found out they are knocking me out for the entire time, so they can examine the hip and joint without the hinderance of me moaning and the pain. In one way i feel blessed that Mr O wants to examine the hip properly rather than open me up and see, and he is taking the problem seriously (something i have struggled with, with other doctors and physiotherapists) But the otherhand i'm terrified of going to sleep once again, fear the pain the examination will bring and the decisions to be made afterwards. I guess i will know more and i should have a better idea of what is going on. So catch you guys in a few weeks time when it's all done and i'll have something to tell you lol...........

Ehlers-Danlos Syndrome Results are in............................

2011-06-08T01:53:00.000-07:00

I went to the Hospital yesterday for my test results over Hypermobility, and sadly it came back that it's positive for Type 3 Ehlers-Danlos Syndrome. This could explain why i took longer to heal, the bone to calcify and heal and why i constantly get joint pain?

Here's an explanation of it, The Dr said yesterday that Dyplasia Sufferers have Dyplasia generally because they have Ehlers-Danlos Syndrone, it misshapes the bones and causes shallow sockets.

Rheumatoid Arthritis Slideshow Pictures

Joint-Friendly Exercises Slideshow Pictures

Managing Osteoarthritis Pain: Coping with Arthritis

Medical Author: William C. Shiel Jr., MD, FACP, FACR

Medical Editor: Melissa Conrad Stöppler, MD

What is Ehlers-Danlos syndrome?

What are the types of Ehlers-Danlos syndromes?

How is Ehlers-Danlos diagnosed?

How are Ehlers-Danlos syndromes treated?

Ehlers-Danlos At A Glance

Patient Discussions: Ehlers-Danlos Syndrome

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What is Ehlers-Danlos syndrome?

Ehlers-Danlos syndromes are a group of disorders which share common features including easy bruising, joint hypermobility (loose joints), skin that stretches easily (skin hyperelasticity or laxity), and weakness of tissues.

The Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin and loose joints is often a result of abnormal genes that produce abnormal proteins that confer an inherited frailty of collagen (the normal protein "glue" of our tissues).

In 2001, researchers discovered a new form of Ehlers-Danlos syndrome that is caused by an inherited abnormality in a protein other than collagen that also normally plays a role in binding together the cells of our tissues (including the skin, tendons, muscle, and blood vessels). Abnormalities in this protein, called tenascin, also lead to a form of Ehlers-Danlos syndrome. Researchers suspect that tenascin could play a role in regulating the normal distribution of collagen in the connective tissues of the body.

What are the types of Ehlers-Danlos syndromes?

Classical type

(formerly types I & II)

Marked joint hypermobility, skin hyperextensibility (laxity), and fragility are characteristic of the classic type of Ehlers-Danlos syndrome. The smooth, velvety skin is fragile and tears or bruises easily with minor trauma. Joint dislocations and scoliosis are common. Joint instability can lead to sprains and strains. This classical type is inherited as an autosomal dominant genetic trait (directly passed on from one parent to child).

Hypermobility type

(formerly type III)

Joint hypermobility is the major manifestation of this form of Ehlers-Danlos syndrome. Any joint can be affected, and dislocations are frequent. This type is also inherited as an autosomal dominant genetic trait.

Vascular type

(formerly type IV, the arterial form)

In this form of Ehlers-Danlos syndrome, spontaneous rupture of arteries and bowel is a serious manifestation that can lead to death. Clubfoot can be present at birth. Skin laxity is of varying degrees. Veins can be very visible through the skin. It is primarily inherited as an autosomal dominant (directly passed on from one parent to child) genetic trait, but recessive (not seen in family members or only in one generation of members of the same family, meaning that an individual must inherit two copies of the mutation, one from each parent) trait inheritance has been described.

Kyphoscoliosis type

(formerly type VI)

Fragile globe of the eyes, significant skin and joint laxity, and severe curvature of the spine (scoliosis) are typical features. Its inheritance pattern is autosomal recessive.

Arthrochalsia type

(formerly type VIIB, arthrochalasis multiplex congenita)

Patients are short in height and severely affected by joint laxity and dislocations. Skin involvement is variable. Both utosomal dominant and recessive inheritance is possible. A skin biopsy can be used to diagnose this disorder.

Dermatosparaxis type

(formerly type VIIC)

Patients have severely fragile skin that is soft and doughy with sagging and folding. This rare form of Ehlers-Danlos syndrome can be diagnosed with a skin biopsy.

Tenascin-X deficient type

Joint hypermobility, hyperelastic skin, and fragile tissue are seen. Patients with this type lack the multiple shrinking (atrophied) scars in the skin that are often seen in classic Ehlers-Danlos. It is inherited as an autosomal recessive genetic trait.

Other rare variant types have been reported in single families.

The Journey goes on.........

2011-05-14T12:26:00.001-07:00

Well here is a cheeky update as i haven't been online much lately. Still exercising religiously and at the same time i'm getting stronger i'm also getting weaker, and i've noticed other parts wearing not too well. Such as my Left Knee, hurts with bending, any light impact and biking too. So i'll be interested in what O'Hara has too say about that, and what he can say about the Right Hip too. Still hurts like hell doing steps, hills,stairs, walking on that side with no let up or improvement. Whereas the Left Hip hurts after a prolonged time of doing such activities but quickly recovers and it's a different sort of pain/ache all together. It actually feels like a healing ache. Although i have no idea how you girls work all day on them, even now i'm done in after some physio and light housework and have to rest the entire leg with plenty of tram and co-codamol with me. Never managed to ditch the painkillers once! The pain on the Left Side is always at the top of the thigh so i do question whether it's where i had the DVT or where the extra 2 inches came from with the Femur OST? I still can't lie down on my sides fully as the scars are still swollen areas, like extra thighs, Not flab as you might suspect but quite hard and feels like scar tissue.
I can honestly say i thought i would of been further on by now, But thats not being negative or anything just a real honest answer. I was hoping to be back at work, as i'm a freelance nail tech by trade and i have already considered this is not the trade i can do anymore due to wanting to protect the hips as much as possible. So i have considered the Tanning salons as i did Fake tanning at salons before, and i've considered perhaps going into beauty counters etc... Is it the mental aspect that holds me back? A new thought as i have just recently got back onto a bike, a real outdoor bike, not just my stationary bike at home where i'm totally safe. Now i love mountain biking and the thrill of the speed and uneven terrain, But just getting onto a bike was a HUGE mental block for me, after 2 years of not being on one, i found it immensely hard to lift my operated leg off the floor and trust in myself not too fall. It was like learning to ride all over again, shaky, scared to death, the fear is so strong i wouldn't of believed it if i hadn't felt it for myself. Now i wonder how much i have such a mental block with the leg, i chose my surgery, i looked forward too it loads, planned and prepared for it and in no way it i ever imagined this surgery would affect me mentally like it has done. So that is a consideration for newbie's that are planning surgery, just to warn you that it can happen, and how to get over it and not be afraid of feeling emotional over your surgery. I found baby steps help and confronting the issue head on, with logic and common sense helped me. But most importantly TALK to people and share your feelings.

So i'm off on Holiday in a months time, and i'm really really looking forward too it. I will be resting and recovering in the sun what could be better. And i hope that i have a new action plan for the Right Hip by then and this holiday will be needed before the whole surgery recovery cycle begins again.

I'm hopeless at asking questions when i see O'Hara, Are there any questions you would ask him if you were me? And how would you phrase them as i'm hopeless at that as well lol? Any help gratefully received guys and thank you for always being there for me xx

Working Out and Physio

2011-04-23T13:24:00.000-07:00

Well it's been a while since i last updated this blog, as i've been focusing solely on getting healthy, losing weight and getting rid of damn hip pain! And do i have any good news? Well so so really i have lost 10lbs which is lovely and certainly helpful for the hips. But pushing to go further and harder the hips soon push me right back just as hard and fast. The left seems to be magickally stronger and able to cope with a lot more than i could of ever dreamed of. Although if i go too fast it does shout alittle, but ice or heat and some rest soon knocks it back into shape. Whereas the right is still my biggest hindrance, just walking or doing steps on the wii (you know it's not high or hard to do) it flares up in a few mins, with aburning hot pain that not much will shift except alot of time to rest.

This puts me in a catch twenty two as my mind is mentally ready to keep going, as is my drive to lose more weight and tone up. But physically i'm still a broken doll, and is so frustrating to still be so hindered with hips after all this time. But staying positive i now can walk straight as those physio exercises O'Hara gave me have worked fantastically for this, sadly haven't cured the right as hoped. But i now have an appointment to see him again (after lots of begging and pleading via email and phone calls lol Bet he hates me now) For the end of May. I can't wait to hopefully get an answer and a solution as the right has now hurt officially for 6 years and i'm tired of it. Twice i've been told two separate surgeries would work to cure me from this pain and twice it's failed. Granted the extra pain from the left has gone, and this leaves me forever hopeful O'Hara can cure me from this right pain as he has never tackled this side only the left, and we know he has done magick with that side. It will be so good to get this sort of result on the right.

Workout wise i've been doing a 30 min step programme on the wii every other day or so, the yoga and muscle combo for 15 mins on days i don't do steps on the wii. I have done the O'Hara chair exercises every day 5mins x3 times a day. And various crunches and free weights for the upper body. Sometimes i try the stationary bike for 15mins at a time (but this bit me very hard on the ass today, super painful at the pelvic scar and top of thigh, Not sure if that's old dvt pain or actual hip femur pain?) And i use the elliptical trainer for 5mins x 3times in a day for cardio but only once or twice a week.

Cutting down on sugary sweets and drinks but not so i don't enjoy life, which honestly is hindering the full weight loss as i'm sure if i didn't have any treats i would lose more. But i don't want to be anal about it all.

Right guys i need more painkillers and a hot water bottle so i will check out for now. Hope your all healing well, and recovering from various surgeries, this hip journey is long and bumpy and i'm grateful i have you guys to help me through. xx

Still Hurts

2011-03-02T03:13:00.000-08:00

I have given these exercises a month now and although the left has gained so much stamina and strength the mobility is still hindering me from the right side only. I have returned to normal daily activities (ie, polishing, hoovering and normal ligh household chores) and walking as much as possible without a stick and as straight as i can (which is hard to do, and takes a lot of mental focus and easily exhausts me. And it keeps pulling me back into the depths of pain and despair, surely after a month this should of decreased somewhat and given me some ray of hope?

I have emailed numerous times with no luck, although i have tried again for the last time last night, as i'm at the end of my tether. I've decided to seek advice from my GP if and as and when i get to see her (as she is very very popular and hard to see!) And possibly get a new referral and even think about seeing someone else. The prospect of not seeing anyone for advice in the future even if that visit was 9 months away, that would give me some glimmer of hope and encouragement, as it is i just feel abandoned and discarded like trash.

Back onto more Tramadol which is not what i wanted, all along i've been tryig to reduce the amount i take, as they are not healthy. But as i increase my activities to a normal level, the pain flares up so hot and so painful that i have no choice. The pain is enough to drive anyone insane and lose interest in general life. So much of life is passing me by and i can't control this.

Last Hospital visit at Birmingham

2011-01-26T03:54:00.000-08:00

I actaully saw O'Hara yesterday and i never had an x-ray just had him see me and discharge me as his patient. Not sure how i feel about that to be very honest. I should be excited and pleased as my Hubby certainly is. But i know how much pain i'm in with the right side (he has gone back to saying it's severely overworked and over used and has given me the chair exercises again too, to only use the left leg while rising up from a chair and slowly sitting down.) Really hurts this exercise does and your so worn out any other exercise has to be forgotten about as does housework for a fair while too! I'm to do 10 mins a day doing this, 5 in the morning and 5 in the evening, and not work out he other leg at all. No mention of the rotation, it was almost like he hadn't wrote the email or had any knowledge of it? He simply wanted to hear how successful the left hip is and sign me off. Feel a little cheated if i'm seriously honest, and now Hubby is convinced there is nothing wrong with the right hip apart from being overworked like O'Hara says. So now i'm being told to go off and concentrate on that hip for 6 months, to build it up after decades of non useage. He did say it will hurt like hell and will tire me out, so he made sure he spoke to Richard when he said, it's time to forget the kids and running around after them and doing the housework, but rather use my time and energy to do this exercise instead and he will have to help out along with kids, lol That was good, so now i can say 'well he told you, you have to make tea!'

But something is feeling rather flat about it all, any normal person would be over the moon at no more surgery and recovery and all that jazz, but inside i'm doubting him and what he is saying. Which i know sounds like i don't trust him, and i feel guilty for that. I suppose the least i can do is the whole 6 months of doing exactly what he says and then if, i still have this mobility, limp and pain issue then i guess i can redress the problem again?? What would you guys do? Should i email him again asking about the femur that is rotated and why he didn't mention it yesterday?

AAAaaaaaarrrrrrrgggggggghhhhhhh why can't i just be happy with what he says? Verdict on those exercises, as i did my 10 mins yesterday is they REALLY REALLY HURT and wore me out good and proper, i slept for hours afterwards, and this morning i honestly can't imagine doing them ever again, as i'm super stiff and super sore. But i will do them, Perhaps you guys could try them out too if you have one side weaker than the other, they are intended to get rid of the GIMP LIMP once and for all.

Debbie xx

ESA TRIBUNAL

2011-01-18T14:54:00.000-08:00

Yay!!! I WON my case, i had the most wonderful Welfare Officer with me, and the guys that were reviewing my case were independent and one has an Orthopaedic background this helped me greatly and i'm ever so grateful. This was a victory i needed as i felt all along that my integrity had been called into question and i needed the validity and someone to finally believe me. No-one in their right mind would have surgery like i've just had if they could walk without pain, it's just not sensible to even suggest this. In fact it's insulting and emotionally exhausting. I had support from family and friends and i was strong inside, but i fear even this toppled me off my game, drained me of hope and focus and i found the whole process stressful and upsetting when i should of been concentrating on recovering from major surgery. Now i have to think of those that can't do this for themselves, or they don't have the support network i had. I had to find out about welfare officers this information wasn't offered, and while at my tribunal i was the only one that had this kind of support there. That alone is disgusting, especially when many that are failed are mentally impaired in some way and can't represent themselves. The Government are now trying to cut this valuable service and if they are successful, this would be a travesty. I wonder how long the rest of the country would turn a blind eye to this system, once there is no help? Could you imagine having dementia and trying to go through this process, it's like a mind field. Or being in a nervous disposition and having to speak out for yourself? This system is a sham and needs to be stopped full stop, and while it's still on going the Welfare Officers need to be saved for everyone that needs them.

Pls write to your MP's, Parliament, Social Security, GP's and Consultants too, make them aware of how it is failing the country's most vulnerable, how it affects you, how it makes you feel. I certainly am, i have to stand up and be counted for all those that can't do it for themselves!!

Did you know people dying from Cancer are going through this and not surviving this process to the end, to see their cases overturned like they should. My case alone took over 1year to be heard. When you should be focusing on trying to get better, they are making your life as difficult as possible. Is this how you want your loved ones treated, should they dare ever get ill or disabled and have to leave work? They spend more than 5 million trying to catch the so called scammers that claim for benefits they don't actually qualify for! How much do the scammers cost the country?i hear you ask, Well it's only 2 million i hear, so is this a reasonable way to spend the taxpayers money? It's costing more trying to catch them, than if they all just got away with it.

The day was emotionally exhausting like i said, and i will take a few days now to process the whole ordeal and get over it, and decide how i can act and campaign for those that need fighting for. I hope some of you feel as strongly as i do, and write a letter to you local MP xx

Hips really annoy me!

2011-01-15T14:26:00.000-08:00

Why do we need them? When do they have to be so painful and hinder me so much? The exercising has been going great and i'm finally starting to enjoy it, but the right side is playing up so much with any activity at ALL. The left is enjoying the challenge, and i'm enjoying building it up and gaining more stamina and strength. All of that will be needed badly if i do go ahead and have the right side corrected as i'm planning too. Perhaps once the left is strong and stable again the pain will go or ease up on the right side as it wouldn't be carrying me so much then? I also need to lose 2 stone minimum, god knows how much extra pressure that is causing for the right hip, They say for every 1lb you carry 7lbs of extra pressure on the hips, so my poor hips are feeling an extra 196 pounds? No wonder they are crying out loud too me. I'd cry too if i could feel it like they do, Oh wait i do feel it like them Lol.

My shoulder also plays up and although i'm seeing a physiotherapist for it, i'm worried about it. No-one seems to be able to tell me why it hurts to breathe sometimes, or why it's playing up as well? I use worry as i know a few hip sufferers end up with joint problems in their shoulders as well. It started off in one shoulder but now the other one is going too. It's a nightmare, i really feel like my body is giving up on me and i have no control over it.

I have been doing some Yoga to help ease the pains and stiffness i'm feeling all over, but i still struggle with it. I love the feeling it gives me afterwards but it takes a lot to get going and motivate myself to do it each day.

Happy Healing everyone xx

Hippy Update

2010-12-01T14:44:00.001-08:00

Well when i say update i actually don't really have one, Sorry guys but the snow has scuppered my plans. I was meant to go on the 30th Nov to the hospital and have my post op consultation. But the snow was bad and the 80 mile round trip would not of been fun, and i couldn't guarantee i'd be home in time for the little one, should we be held up on the Motorway. I chose to cancel event though i knew it meant it would be months until i get to see him. Mainly because i'm off crutches now, i know i'm healing so the appointment wasn't ever going to reveal anything or any major decision to be made from it either. So with 5 accidents already before we were due to set off on that Motorway it seemed silly to risk it. Needless to say i do have to wait months, until the 25th Jan to be exact. Oh well.

On the recovery front, i can honestly say nowt has happened. In fact i feel worse than ever, weaker than ever and progress seems very very slow if at all. I have tried to do some of the exercises i did after the first surgery on the left hip, and i can't do them at all. The strength has gone, the stamina has gone and it's all too much. Which is weird if i think about it, as technically the bone is stronger than ever, no plates or screws to hinder me. But i can't do anything like i did just months before the screw removal. I have no idea, and if anyone would like to enlighten me i'd love to hear the theories. So far i can only presume that actually the plates were stronger than i ever thought and were my asset not my hindrance!

Had some weird dodgy shoulder pains, which admittedly has stopped a lot of exercises as i simply couldn't handle the pain to even try anything. Now the snow has come, i'm feeling a little trapped to say the least. i was hoping to go Christmas shopping, but i daren't try it out, as i'm not steady enough on my leg to counter any slipping in the slightest, or jarring. I hope i can do a lot of it online and get it delivered to help me out. The snow is lovely to look at and i'm glad it's here for the kids to play in. But i would love a few days without it so i can get some jobs done lol

Pain, Pain, Pain and more PAIN!!!!

2010-11-17T13:43:00.000-08:00

I really can't take anymore, it's driving me nuts and to frustration. The hip of the left is fine, in fact it's wonderful better than ever, it's painfree and moving well and getting stronger everyday. So why the complaining i hear you ask? The bloody right side holds no regard for me and in fact hates me, why else would it play hell with my brain and stress me out? It complains as soon as i dare to do more than sitting down and watching Jezza on tv, which i can assure you is all the time, as i don't to just sit down for the rest of my life! I have goals and dreams of actually living and taking part in sports again, so this pain is crushing my dreams. I dearly would love to at least strap on a snowboard this year, or season if i can't manage this last 6 weeks of the year. But the dream is to board for at least 10 mins, something i haven't been able to do for at least 5 years!

The pain is a burning pain and it wants to give way, i'm telling you mainly in case anyone can identify the pain. It hurts and nags like a toothache dull pain on the outside of the hip. But the left has developed a groin pain, heard that this is common after my surgery, so not too worried but i will be asking when i see my Consultant at the end of the month.

If that isn't enough to deal with, and dreading moving off the sofa as it hurts so much! I have this awful pain my my shoulder, the left one. It feels like an air bubble and weirdly numb too. And my stomach ulcer has been playing up, i have been taking my tablets faithfully and i though perhaps since i hadn't felt anything for ages, perhaps it had gone? Got better? So today i missed it, and ate tea which was fish with peri peri and BAMN it hits me, the pain is vile and the shoulder kicks up a notch too, are they related? Should i seek a doctors opinion? Wait it out.

I have been withdrawing from Tramadol so it could also be that, so i'm confused for sure. But i know it's frustrating me and depressing me xx

Now it's 3 weeks post op

2010-10-31T16:34:00.000-07:00

Somehow i got ahead of myself, and though last week it was three weeks post op. Well now i know the truth it all makes sense as too why i still felt so weak and behind others.

So what a difference a week makes, I've gone from using One Crutch around the house, and truly thinking it would be like that for a few weeks more at least, then a walking stick. To totally using nothing around the house or indeed short quick trips outside too. And exercising as and when i can, i can't do as much as before surgery yet, but the wii has been dusted off again, and it's nice to be moving around once more.

The pain is severe in the tail bone, especially in the morning and when i'm stationary for too long, makes me think it's an arthritis thing as it can be warmed up and allow me to move more freely. But the groin pain i now get on the op side is only when i exercise, so i hope i just need strength to help overcome that one.

Still getting dvt pains, but from the old one. As the vein is still blocked up and it's hard for the blood to actually flow, the pain is in the thigh and the calf. It's like a dull ache that throbs, so have to rest up my leg quiet often and of course still wear my lovely compression stockings.

I need to actually ring up the Physio Lady and make an appointment, as i'm not totally sure on what to do best to build my quads and glutes up. I'm currently doing some old exercises she gave me, such as clams, leg raises, pelvic floors, stationary biking and the free steps on the wii. I want to do more, but i know how easy it is to do more and instantly regret it lol.

I have cut down on the medication from Dihydrocodeine to Co-codamol but with physio and me returning to normal duties on the Horizon, i may need them back again. but for now with the gentle slow approach i'm ok . I really hope it stays as i haven't been on this low amount for the last 5 years!! So it's looking positive for me for now. The pain i hate the most, is definitely the Right Hand side. The tail bone and groin pain i see as surgery pains that haven't settled down as of yet, but the Right side feels like damage and it's haunting me!

Hope to be more positive as time goes on, as it's my New Years resolution ( Pagan's have their New Year at Samhain/Hallowe'en) as positivity may help me recover better, worth a shot.

Happy Hippy Healing to you all xx )0( xx

Week Three Post Op!!

2010-10-21T14:55:00.000-07:00

Well i think i've slept my way here, had a few issues with my scar and the steri strips. We thought i had pulled and ripped open part of my pelvic scar so had to go to the Doctors to make sure the wound wasn't infected and if open could it be closed again, neatly and heal nice and neat like the top area.

Turns out to be ok, there is no infection and the skin was overlapping where there was dried blood and it had dried all lumpy and bumpy and made it look open and torn. Thank god this wasn't the case and i can rest easy now. The wound itself has been so sore and achy with the dressings coming off and being poked, and even sitting upright has been hurting it. So this last week i've been taking it easy, lying down where possible and taking the strain off the wound site. This has made a huge difference this week, it's been painfree mainly and the wound looks better in itself.

I've tried to walk without one crutch in the house for the last week and a half with loads of success, i'm happy with the one, tried to do two steps without anything but sadly the left hand side does not want to hold me up without a HUGE limp, almost jump back onto the right side. So i think i will focus on getting stronger with the one crutch for now. Not done much physio this last week but thats about to change now that i feel much better. I went on the wii board today and did 10 mins free steps, it felt alright and ok except the right (yawn! this one again!) hip, and left knee. God knows what the knee was playing at, the hip i expected but not the knee! But as soon as i stopped the pain was relieved in the knee, but not the hip, so i know the hip pain is the same old same old. Damn these hips!

Had my back to work interview over the phone as i said i'm not really in a position to go into the job centre as of yet, but made a new appointment in a few weeks time, as she has let me do it over the phone for the last year. So i owe her some back for being so supportive and understanding. She is going to help me reconsider what work i could possibly go back into, as Beauty therapy was heavy on my hips, from constantly sitting in one position for hours, or holding a standing position for ages too. I would seize up and the arthritis would kill me off. So i need a job that will allow me to sit and stand or walk around as needed, with flexibility for hospital appointments and physio. But how your ever meant to find just any job in this current climate is anyone's guess, let alone one with loads of conditions too! I'm going to take it photos of my x-rays as i'd heard her getting loads of grief for letting me did to on the phone, so it will help to have a copy of the photos in my case file for her bosses.

Happy Hippy healing guys and dolls xx