Hydro hero

Kadyn's Name

2012-01-28T11:47:00.000-08:00

His Name is now on his wall :D

Painting Shelves

2012-01-27T20:28:00.000-08:00

So in my living pretty much everything is black. The walls are yellow, picture frames are black, the word Love is black.

But yet these white shelves hung on the wall, looked so....out of place. It was time for a change. So I went to Walmart, as expensive paint was not needed for shelves, and bought BLACK paint. So it isn't a big creative deal, but it is what made my living room more homely.

Before:

After :D

Although easy, it was a lot of work. All apart of making this house, our home!!!

2012-01-25T08:58:00.000-08:00

Sometimes no matter how many prayers we pray, or how many tears we shed, or how many hearts get broken. God says no, because God has a better way and answer.

Kadyn is back in the hospital. Although we are getting ready to go home today. Or at least that is the word. We are waiting on papers and I am waiting on my free meal :D

This time his hand had swelled up and became blue and red. It looks better today so we have no idea what had happened other than possibly a skin rash of some kind. So he is getting cream for it and will be sent home here soon I hope. He is in bed right now and eating his bottle.

2012-01-22T09:43:00.000-08:00

Whatever you are going through remember: God brings us into deep waters, not to drown us, but to cleanse us!

Kadyn has been working hard on sitting up and now today he has begun to try and sit without his hands supporting himself in front of him. Of course this has led to many falls, and many backwards falls. He does not cry, but gets a tad frustrated and he will get right back up and try again. I almost have to encourage him to take a small break.

I am going to try and get more pictures of him doing so. Right now he is taking a break and playing with his feet so my heart can be at ease for a little bit that he won't be hurting himself. I just hope all the falls do not mess with his shunt, or move it at all. *EEK*

Back to work

2012-01-22T08:03:00.000-08:00

Yup, this mama is going to be going back to work. I have an interview at Mcdonalds for a midnight shift. This way there is always either me or Harvey home with Kadyn. I think it will be good. I have always been on to make my own money, and be sorta independent. I will like that feeling once more. So I will also be able to help contribute towards bills here in the house. I will just feel a lot better I think.

Why Mcdonalds? I've worked there before and they are super flexible. If I need a day off due to Kadyn's appointments they will give it to me no questions asked. Also they will work with me on the hours I WANT to work. I actually liked working at Mcdonalds too. Really all you need is a pleasant welcoming voice and a smile and you go the job. So I am excited to be back working.

I will be home to take Kadyn to school and I will nap while he is in school, which is 6 hours. I am used to getting less sleep than that. Normally Kadyn naps after school also so I'll continue sleeping while Kadyn sleeps. Wake up make dinner, pack my lunch and be to work by 10. Harvey will just have to step up more when it comes to Kadyn's care. More so at night. I think this will be good.

Kadyn sitting up in action!

2012-01-21T11:30:00.000-08:00

Kadyn is getting pretty good at it. He is going to master this soon if he keeps trying, and trying is something he does.

Another Hospital stay

2012-01-20T21:49:00.000-08:00

Kadyn was admitted back into the hospital on Wednesday for Dehydration. His blood work this time actually confirmed his dehydration and we found out that he was very acidic. He is in what is called Keto acidosis. Which needs to be corrected as this can be pretty bad for ones body. They are correcting this by changing his formula ratio from 4:1 to 3:1. Which means I'll have to go back to measuring, weighing and mixing. It shouldn't be so bad. We were discharged though Friday afternoon :D

Other than that this hospital stay has been quite nice, we got to meet two Baseball players from the Tigers and we took pictures with them. One had a very handsome smile, and I'll never forget how goofy he was. What amazed me the most, is they SHOOK my hand, as in the reached out first to shake hands. They seemed like regular everyday people, just doing what they love to do the most, to care for their families. It was really nice of them to take the time out to see the children and their families there.

We also played BINGO. Kadyn won three times!!! How amazing. He won all three times. He won a Mr. Potato head, a Mickey Mouse draw pad and a Doctor's Kit. He won some really nice prizes. The guy called the "numbers" they were actually pictures of different things that pertain the the letters B I N G O, was super goofy. He would make the silliest jokes and he made it all the more interesting.

Thankfully being in the hospital has not stopped Kadyn from doing what he does best!

I'll post Pictures of Us with the baseball players another day :D

Return of the Ear infection

2012-01-18T02:45:00.000-08:00

I was looking over my son's body as I do every night. I check for any kind of rash, bumps, bruises, record them and why he has them if I know ect. I'm crazy, kinda looney like that. I like to know any kind of change with him and record it. As I was looking in Kadyn's ear I notice some dark brownish/dry blood looking stuff, and I though ok, Kadyn likes to dig in his ears and I have not cut his nails in a little while, so maybe he cut his ears. On further investigation I noticed he had is inside his ear and it's smelt horrid. I knew what this ment. Ear infection. What worried me the most was the darkness of the discharge and the blood in it, so I called ENT that morning. I had explained that Kadyn's ear had a dark discharge and blood in it, and smelt bad, she said ahh probably an ear infection, I was like yes, does he have to be seen and she said we would like to see him. So she says how about Tuesday next week, and I thought no, he is not going to suffer that long. So I had just said, You want him to bleed and discharge plus suffer that long, so then she bumped it to Thursday, and I said No, he is either seen TODAY, possibly tomorrow (Tuesday or Wednesday) or I will just take him to the ER.

Thankfully as I was unpacking I found Kadyn's unopened bottle of antibiotic ear drops and I started those. His ear is already looking better so I think I am just going to keep him home, on those and Tylenol. His ear in just one day does not have the drainage anymore, so he responded very well to those. It just amazes me how long these doctors want the children to suffer when they have an ear infection. Don't they know I have a child with a shunt, and I have heard of when an infection in the body has lead into a shunt infection, so I don't mess around. He needed antibiotics right then and there, and thankfully I had them. So I think I will just make an appointment with his Pediatrician and get him checked out. I think once this ear infection is cleared Kadyn's balance when he sits up will get better.

He never stops amazing me. His progress has just been moving along so quickly that I feel like I don't have time to stop and savor every milestone that he is hitting. 2 mile stones within 3 weeks? Are you kidding me? I mean I waited 4 years for this!! 4 years to see my son do anything other than rolling. It amazes me what 3 weeks of school did and what Physical therapy outside of school could no do. It just goes to show, if we do things on Kadyn's terms, and give him a little help he will and CAN do these things.

I am a proud mama!!!

I've waited so long

2012-01-16T19:37:00.000-08:00

I waited nine months to see you're face. To know your fate,

then I waited three months to bring you home, to love you so

Then I was 3 years to get you free of your terrible seizures

Then I waited 6 months to get you into school

I waited 3 years and 1 week of school to see you hold your head up again

I waited 3 years and 2 weeks of school to see you try to crawl

I waited 3 years and 3 weeks of school to see you do this:

YES KADYN CAN SIT UP NOW! :D

What Kadyn does in School.

2012-01-12T12:19:00.000-08:00

Teacher Report for 30 day IEP

2012-01-11T13:33:00.000-08:00

This Report is being written in preparation for Kadyn's 30day/annual IEP. Kadyn is a pleasant 4 year old youngster. He is happy and smiles and is very content in the classroom. He was attending school half day in the morning from 11/18/11 through 12/23/2011. His parents would like him to attend full day of school beginning 1/9/2012. Kadyn has adapted well to the classroom and staff in a short period of time.

Perceptual/Finer Motor:
Kadyn responds to different light intensities but doesn't yet follow a moving object horizontally and vertically. He will grasp for objects and reached for dangling objects. He can finger his own hands in mid line, reach for a cube, and he will transfer a toy from right hand to left hand. Given a pegboard with large pegs , he was able to pull out 2 pegs. Kadyn did not use a pincer grasp to pick up small items. He does not yet poke with an isolated finger.

Cognition:
Kadyn will bring his hands to his mouth. He mouths objects, shakes a rattle and will look at the object he is holding. He did not track an object or attain a partially hidden object. Kadyn will uncover his face when a cloth is placed on it. He is able to rotate his bottle and independently drinks his formula from his bottle. He will look at an object that makes noise and smiles.

Language:
Kadyn vocalizes and says Mama and Dada. His mother reports he has other "true words" he says. She reported recently that he is trying to say "Santa". At this time, we have not yet heard them in the classroom. He vocalizes when talked to or sung to. He will localize a sound source, and orients to his spoken name. He will smile if staff calls him by name, or talks with him about his mama and daddy. He will occasionally person on a verbal cue. Kadyn will cry when hungry., unhappy or physically held/manipulated. Almost all of the time in the classroom he is happy and smiling.

Social/Emotional:
Kadyn enjoys being around people. He will roll to be near other children and is comfortable if they move to be close to him. He is beginning to enjoy to classroom routines. Kadyn does not like to be held and squirms and cries if Staff hole and rock him, or sit behind him to work on a task. This is possibly due to sensory issues and will be addressed with the occupational therapist. (His mother reports that he reacts in the same way at home.)

If Kadyn is seated in a chair or his stroller, he enjoys the social interactions best. Kadyn does not demonstrate separation anxiety, and works well with all staff. He laughs and smiles during playtime activities and appears to enjoy soft music. He smiles at a mirror image and pat a cake games. He is able to leave the contact of a familiar person and does not cry when moved from the classroom to the hallway or other rooms. He appears to enjoy moving around in his stroller in the school hallways. Kadyn is able to entertain himself and play alone with his favorite toys.

Self Care:

Kadyn is dependent on an adult to meet all of his self care needs. He is on a liquid ketogenic diet and drinks the formula from a bottle independently. He received nothing by mouth at school. Therefore. feeding skills are not evaluated at this time. Kadyn is not toilet trained and wears diapers. He will passively cooperate with dressing skills and diapering activities. Kadyn cannot yet indicate when he is soiled and does not fuss to be changed.

Gross Motor:
Please refer to OT/PT evaluations and reports. In the classroom, Kadyn prefers to lay down. He does not sit up independently at the present time. He will roll from side to side. This week he has begun to independently get up into a 4 point position. He will tolerate being prone over a wedge or boppy pillow for a short period of time. In supported sitting for the brief amount of time he will tolerate it, Kadyn will manipulate and play with musical toys. His head remains erect when in a sitting position, although he does no like to be held for a long period of time, he is beginning to tolerate it for 30-40 seconds before fussing.

Based on my informal assessment and classroom observations, I would recommend the following goals be included in Kadyn's IEP for the 2012 school year:

1. Kadyn will explore objects/toys in his environment with prompts.
2.Kadyn will show interest in and attend to group learning activities with prompts.
3. Kadyn will attend to and show interest in a play activity with prompts, facilitated by an adult.
4. Kadyn will tolerate being held/touched for up to one minute during work/playtime activities.
5. Kadyn will explore sensory experience by touching items of different textures, temperatures and compositions.

:D SOUNDS AWESOME TO ME TEACHER!!!

Catching up, for real this time

2012-01-11T07:57:00.000-08:00

Christmas Eve at Harvey's Grandmas!

First Christmas in Our Home!!! :D

Kadyns New Trick! :D

Kadyn's New Big Boy Bed

This is going in his book titled "When I get married mommy will show this to my wife"

Everything is great. Kadyn has remained happy and healthy. I have yet to get Kadyn's MRI results, but I see it as, if they saw something of importance, they would tell me. I will get the report in Feb when I go for a follow up. Also the 3lbs Kadyn had lost during his stay at the hospital, he has regained and then some. I have lost 5lbs since moving (YAY) Our house is really coming together. Soon I will take pictures of it all finished and done. I have three shelves that I want to paint. My kitchen is finally in order though, no more tools are anything scattered across the counter. Bathroom is almost done. Kadyn's room I want to buy him a Peg Board, so he can hang his coat and Backpack on it. I want to find that soon, but no big hurry. Our bed needs to come up off the floor, not to mention our room is a mess because everything is piled in there.

Kadyn is in school now. I have been taking him since we moved, and I think I like it better. I may just keep taking him back and forth instead of using the bus. I'll see how Harvey feels about that too. It's a nice 20 minute drive to his school, but it's fun to hear his excitement all the way there.

Sitting here

2012-01-05T08:08:00.000-08:00

So here I sit entertaining a 1 year old with dogs behind a baby gate. It's actually been entertaining her for about 10 minutes now. I never thought that would happen. Her attempts to free them is so very funny for me. I just cleaned the living room as we are getting our furniture today. Not to mention today is judgement day for Harvey's job. Yesterday he was told he was being removed from the site he was working at (he is a Security Guard) but she did not inform him to bring in his uniform or anything, so we are hoping he is just being moved to another site, although the only down fall with this is risk of getting a pay cut, but it's better than no job right? I try to distract my mind from negative thoughts seeing as we are new house owners but I can't help it. I'm scared for my family.

The one year old has now found the clothes shoot and is throwing toys down it. Yet I feel this is ok because all the toys will be in a pile in a basket downstairs....less to clean up and she is entertained. Behaving not crying or screaming. It's close to nap time, but I'll let her stay up longer, napping around the time the furniture arrives seems more ideal.

Kadyn is in his big boy bed. He loves it. He lays in it playing in it with no fear of falling out from this mama. Although Kadyn is not in the best of moods today, he seems calmer in his bed. So after getting him dressed for the day, I put him back. I think he wants to go to school, but this can not happen until Monday.

Perhaps a better update on things with pictures tomorrow. I have yet to upload but I plan on taking pictures of the house when Furniture is here. Right now I need to invision where the furniture is going to go.

Catch up

2012-01-04T01:34:00.000-08:00

I think tomorrow, or perhaps later on today sometime, I will take the time to upload millions of pictures and make a catch up post with Christmas and what not. Seems, I haven't really been taking care of this blog like I should have.

Been filling out job applications since sadly, we think Harvey is about to lose his job. We find out today. Prayers and good thoughts are being asked since we just purchased a house. Thankfully our first house payment is not due until Feb and Harvey has a stash put away for something like this. Just wish it didn't happen so early.

Everything happens for a reason.

Happy New Year

2011-12-31T23:19:00.000-08:00

Happy New years from my family to yours. I hope God Blesses each and everyone of you this year! May this year be filled with healthy happy days and may you learn to live each day, as if it's your last!!!

Love you all and I Thank you from the bottom of my heart, for the support you have shown us through our journey. Here's to another year of life for Kadyn!!! I love him sooo much!!!

MRI

2011-12-30T21:50:00.000-08:00

I know I have yet to do a Christmas post, but I will get to it. With everything going on, it really has been placed on the back burner.

Yesterday (since it's 1am) was Kadyn's MRI. We had to be there at 2 so Kadyn had to stop eating at 830 and clear liquids only until 12. He actually ended up eating once with no clear fluids. It's funny because He ate so well and so much the day before that I think his belly was just full. I ended up leaving a little earlier than normal since we moved and access to the freeway is not as easy as it was in my old house. I got there a half hour early and decided to just go in, in hopes maybe someone missed their appointment and they would be able to take us. I have had it happen before. This time didn't and we actually got in there a little late. This was the first MRI I had experienced with Kadyn but yet it was his 2nd (3rd if you count to fetal MRI I got while pregnant with him) They were able to access his port, which was nice. They did look for a vein first but felt safer just using his port. Once the accessed his port, we went over the procedures of what would happen. The medications they would give him and then how long it would take. Watching Kadyn fall asleep rather then anesthesia was much easier and not as shocking. He fell asleep like he normally would for bedtime, as with anesthesia it's looks like he goes from being all playful to lifeless. Never will I walk Kadyn back for surgery again, he really never needs me to anyways. It took about an hour for everything to be done and he didn't need anymore medication then the first dosage.

Waking up was a rather difficult task, although in order for us to go home they had to see him open his eyes, and drink something. Which after 2 hours of waiting, I was mean and plugged his nose so he would wake up. Thankfully this woke up him enough to drink a bottle and we were sent home. Come to find out, Kadyn no longer has a programmable shunt. I didn't know that Dr. Ham used a different valve with his last shunt placement so i had NOTHING to worry about.

Kadyn fell asleep on the way home and slept for a very long time. He is awake now but he is hanging out with his Daddy who slept most of the day since he worked all night. I will be heading to dreamland soon as I am exhausted.

Hopefully I'll get answers to Kadyn's MRI next week sometime.

Seizures, seem more like the biggest problem them Hydrocephalus

2011-12-29T23:08:00.000-08:00

Kadyn's seizures, although well controlled under Ketogenic diet are no match even with a low grade fever. It seems when his temp goes up his body just can not handle it. It is safe for me to say that Kadyn's seizures scare me more than his Hydrocephalus and shunt does. I honestly would prefer his shunt over seizures. Perhaps this statement comes as a shock to most. As a parent I want my son to be to have the quick, feel better fix, and honestly when his shunt malfunctions he gets that. Although soreness after surgery yes, but headache free and it's all fixed. Seizures take days to heal from. Kind of like a bad chest cold or flu. Seizures are so hard on his brain and take so much from him. It's like watching the life being shook from his body. Let me recap Wednesdays events.

Harvey and I were enjoying after Christmas shopping. Oh, the excitement i got knowing that all these pretty 75% off lights were going to be on my house next Christmas. The chuckle inside me thinking, you know how many paid full price for these, and here I was, practically stealing them! I even got my nephew a birthday gift from the Christmas gift sets! (Insert evil laugh) I love after Christmas shopping. Kadyn of course went with us. He was good the whole time, drinking his bottle, kicking his stroller, stopping to say HII or DADA once in awhile. We leave and drive home and Kadyn is full of noise and just loud. Making me laugh when his Daddy jokingly tells him to stop yelling that we can hear to think. (Whatever that means though lol) So we get home, and Harvey carries Kadyn inside and sets him on the living room floor and goes and grabs our treasures. Kadyn was talking and then all the sudden I hear snoring (clue number 1) I think nothing of it, other than he was just out and he might of just decided he was tired and fell asleep. So Harvey takes his coat off and puts him in his bed, hands him his bottle and we go downstairs and be sure our lights work. Took me maybe 10 minutes and then something was pulling on my heart. I look at Harvey and he goes whats the matter and I just say, something is wrong with Kadyn. Now that I think of it, it was odd that he just passed out like that...so I run upstairs into his bedroom and there I see him, trying to eat but his little arm seizing. I knew it. I yelled down stairs for Harvey and he came up. I laid Kadyn on the living room floor. His seizure had not taken over his whole body so I did what any parent would do. I prayed. I prayed the seizure would not take over his body. I prayed the illness out of him. I prayed my heart out. As I kept asking for the time. 1 minute.....felt like 10 minutes. I waited. As the seizure took over his body. I saw my sons life just being shook right out of him. Asked for the time again, 2 minutes into the seizure, then I think, Only God knows how long he has really been seizing. 3 Minutes, rubbing his back then thinking, oh goodness where is my phone!!! 4 minutes. Get up and start packing his bag, by now the seizure has gotten stronger and has progressed through his whole body. I can't wait any longer. 911 is called. I am calm in explaining what is going on. We just moved, this 911 dispatcher does not know me. He says you are awful calm for your 4 year old to be seizing, and I just say well sir if you have children, my sons seizures are like their scrapped knees, they happen a lot. Now please send me an ambulance. Waiting for the ambulance seems to take forever. I am pacing the floor while Harvey is tending to Kadyn, unsure if my heart if gonna burst while I see the color fade from Kadyn's face. Lips are blue, I blow air at his face, to try and give him a bit more oxygen. The blue fades a bit and I hear the emt in the house. I get up and tell them he needs oxygen and he needs it now. (by the point I have gotten Kadyn in just a tshirt) I grab a blanket throw it over him as emt carry him to the truck. They tell me they need to establish a line to give him Valium. I let them know he can have 2ml but they look it up anyways. Oxygen is established and now to stop the seizure. By now we are 15 minutes into the seizure. Im sitting in the back of an ambulance, watching my new neighbors peak out their doors. (Welcome to the neighborhood?) They look up the dosage to double check, and of course I knew I was right. They get an iv established (surprisingly the first try) and they give him the medication. He slows down but he does not stop. I inform them that he never just stops, that his seizures stop like a train. Slowly but surely they will stop. The Emt decide to give him another 2mls of Valium, even when i asked them not to. Then Kadyn feel in a deep sleep, his o2 stat dropped into the 80's and off to the nearest hospital which is by where I used to live (15 minutes). By then Kadyn's O2 levels were stating at around 92 to 87. Debates on intubating him were thrown around, I asked if we could just try nasal canula first. Thankfully that got his o2 to stay at 94. Then off the Childrens. Another ambulance ride, and still Priority one. Get there and straight to trauma bay. Where his heart rate was in the 200's and o2 dropped again. Thankfully they were able calm him down and get him stable. Asleep he stayed for hours. A deep deep sleep. His pupils were no bigger then a pin head and his snores could be heard through out the er. We were finally put in a regular er room when he could stat 97 on room air. Which only took about an hour.

Thankfully this was all due to a low grade fever, possibly still suffering from last weeks illness. It was possibly too soon to take him out, and it was rough on him. We stay over night at childrens since he had such a rough time with the amount of Valium they gave him. We were sent home early in the morning with instructions to follow up with Neurosurgery in 6 weeks. In which I will not be as Kadyn is getting an MRI later today and I will be following up on Monday with them. Good enough for me!

Pretty much most of Kadyn's seizures are this eventful. It takes a lot of him, but he recovers so quickly. That night when he woke up you could hardly tell besides the paralyzed left arm and leg that he had a seizure. He was moving his right side, smiling and talking and saying hi. He did regain movement on the left side. The paralysis is normal after a seizure of such magnitude.

I can not wait to get this MRI done and over with and hopefully everything goes smoothly!

Home bound

2011-12-29T07:01:00.000-08:00

We will be setting for home again. I am exhausted and so is Kadyn. Although thankfully the Valium didn't compromise his breathing at all. Neurosurgery said they would hold off on anything unless he has another bad episode, then they would do a shunt series with contrast. (Dye injection) to make sure both catheters are working and that the slight increase of fluid is just from growing. Apparently as a child grows their ventricles can grow too, although with a child who already has enlarged ventricles this sounds a bit odd, but I will go by how Kadyn is acting, and his good mood, talking and kicking around is all the proof I need that his shunt is working, perhaps I don't believe it is working like it should be, with maybe some malfunction happening but not a total malfunction I will let the shunt run it's course and hopefully maybe it will straighten out and work right once again. It's hard to say when Kadyn has two catheters in his head. One could be working which will make the Shunt Valve still refill when pressed with a finger. Kadyn's ventricles have never shown any kind of enlargement during a ct scan. Which is odd. Hopefully Friday's Mri will show a lot of interesting things.

Recap of my last two weeks.

2011-12-28T20:45:00.000-08:00

These past two weeks have been rough for both Kadyn and I. Kadyn was sick all last week, from Monday until Thursday Kadyn was admitted for severe dehydration with no known reason as to why he stopped eating/drinking for so long. Also Christmas, which I love this year was not spent the way I would like to. Between two strong minded families who HAVE to have Christmas on Christmas Eve and some who won't bend the times or even try and work with us so we can spend Christmas Eve with our families as a family makes it hard. Kadyn spent his time with his daddy with his family. I was going to stay a while there but there were too many people and the tension and stress from others was not really my cup of tea especially after the week I just had. So I went to my moms for a less stressful time, plus not as many people/children. It was nice. Christmas morning, once again I was still exhausted from being in the hospital and Harvey and Kadyn went to his moms after we had opened Kadyn's gifts. One top of moving everything out of my room in one day really just tired me out. Not to mention a lot of change for me.

Now today we are back in the hospital. Kadyn had a terrible breakthrough seizure and I even had to call 911. It's been awhile since I have felt the need to call. They gave him Valium and off to the nearest hospital we went. Then from there straight to CHM. The admitted us due to the fact that the Valium took over Kadyn's little body. Shunt Survey looks the same as last week, blood work came out clean. Not wanting to see Neurology because we already have a VMR scheduled for March and a MRI on Friday. OH yay coming back here on Friday. (Boo) Hopefully we won't be admitted for that. We are set to go home tomorrow since he is awake and playing and talkative now. Babbling away and saying the words he knows, touching his feet and trying to chew on the bars of the crib.

Perhaps next week, with the New Year, it will being me more peace. I've been struggling with many things. Try to figure things out, and question many things. I'll get it. I go through this funk every winter. Can't wait for SPRING :D

Falling Asleep my Handsome Prince

2011-12-21T22:54:00.000-08:00

Watching him fall asleep is so amazing. His eyes opening while shutting slowly then opening again. Afraid to miss something, yet too tired to stay awake. Soon you'll be off to sleep and dreaming about a better day tomorrow, for tomorrow is a big day for us. We get to go home, and by home I mean to our NEW home. Yup tomorrow is moving day for us. While daddy takes the inspector around to show all his hard work, we will be signing paper work to get out of here. I will be taking loads of toys/blankets that we have gotten from all the wonderful staff here to the car, while we await IV team to take your IV out.

WOW!

I didn't notice it was 2am! We will be headed home today actually. Moving day is today! We will get to wake up Christmas morning and open the gifts that Santa made you. We will open them in OUR home. I went out yesterday and bought our first tree. It may not be the best tree, but what it stands for is all that matters.

Charlie Brown anyone?

It just needs a little love.

Which is exactly what our home needed, and what Kadyn needs. A little love, and time and his body will heal. How severely he was dehydrated, many things in his little body could of shut down. Thank God they didn't Kadyn was going down fast and the TWO iv's saved his life. That fluid going into your veins, saved his life. I will forever be thankful for telling myself, "Who cares if he is acting happy, the child has not peed!!" I'm going to call this Kadyn's Christmas visit. This way, my handsome prince is home for the holidays.

Although home will be wherever he is, whether he is here in the hospital or at our home, where ever Kadyn goes, I shall follow and call that home, because home is where the love is, and the love is here with Kadyn.

Christmas would of waited for Kadyn to come home. Christmas might wait until Kadyn is better. I may not take him out to families this year. Perhaps they all shall understand that Kadyn's health comes before anything. Christmas can always happen another day, as I can take back when Kadyn isn't feeling good. It is going to happen no matter what.

His eyes are closed and he is fast asleep. Vitals in 2 hours and home by 12pm, I hope.

Goodnight World :D

Quick update

2011-12-21T14:09:00.000-08:00

My freinds, family. Update not so good. Although Kadyn is hydrated now, he is not eating. He may take 3-4 ounces here and there but no where near the amount he should be. He at 3 ounces at 8am this morning, 2 ounces at about noon and is just now eating a little bit again. He seems out of it, weak and tired. Perhaps it's the virus that has run rapid through his poor little fragile body. I am unsure of this. The doctors want to send him home tomorrow and I am debating if I should take him and see if he eats better, I mean I know how to get right back here, easily, or if I should try and wait until he is eating a little bit better. My biggest fear is him becoming dehydrated again. He was so bad by the time I got him here. It was horrid.

He will have bursts of energy and then he will just lay there tossing his head back and forth like he just "isn't there". I miss my little fireball. The Kadyn who would randomly yell, or say words LOUD so he can hear himself. Or How about when Kadyn yells super loud and then laughs. I miss that. It's hard to imagine him so quiet all the sudden, but he is. It seems so....eerie.

But I am thankful that whatever is running his body down, I am sure will take it's course and he will be better again.

There is not anything that can stop my little Kadyn. He is superman. No I am serious, he is. :D

Dear Kadyn

2011-12-20T18:47:00.000-08:00

Now that the facet is turned on, does it really have to be constantly running? Ok Ok I get it, we sang, prayed and asked for urine, but now it seems non stop. Mommy is kinda tired of changing diapers. Can we hold off for a little bit, you know maybe a full hour before I have to change a diaper that is suppose to last 12, or so the package says.

Hospital

2011-12-20T10:19:00.000-08:00

Kadyn is back admitted to the hospital due to severe dehydration. He was so dehydrated that his skin on his face was peeling his lips were dry and he looks horrid. He went down fast. What I though was just the flu/virus that I could over come with giving him poweraid/water and hope the little bit he was in taking was enough to get him through this whole ordeal, was worse than I ever imagined. When they cathed him to try and get a urine sample for cultures he was dry. He gave no pee at all, not even a drop. Once he had a bolus of fluids they cathed him again and he gave 3 maybe 4ccs of urine and that was it. He didn't even pee when they pulled the tube out. They did blood work also and we are waiting those results. Since getting fluids he looks better but still has yet to pee. He still is not eating well, but this also could be from being pumped full of fluids. His color is still a little off but his skin is not dried out anymore and he looks better. He is acting a tad bit better but not much.

Just praying for my lil guy to get better. Anyone is more than welcome to come.

Love, the greatest of all

2011-12-16T04:39:00.000-08:00

I am just in the mood for a story telling kind of post. My biggest dream is too publish a book one day and since having Kadyn I have wanted to publish a book about being a young teen mom pregnant with a child with many medical issues to come. As far as I have been able to write, i remember that I just love writing, especially when you get that pen that writes oh so good for you and you just want to keep writing with it. I have begun writing my book and I decided to do a background on Harvey and Me back when we first met. I figure we will be a big part of this book and that people may want to know, how we met, when and everything else. I didn't go into too much detail on my paper but I think I will here. I never really introduced myself as anything more than Kadyn's mommy. I guess to me once I became his Mommy, that is all that every really mattered. So I figured I would take the time to kind of introduce Kadyns Mommy and Daddy. I hope ya'll enjoy!

Well let's start with me:

Hi, I am Sara

I have grown up in Michigan my whole life. Detroit area you can say. I grew up with a close small family, with 2 sisters and 1 brother, my mom and dad, and my grandma on my moms side. I was always very close to my sisters. I am the youngest. I am 25 now. I was born on Halloween night and I pretty much think I have one of the best birthdays EVER! I mean I got candy and presents. I thought my mom was lying to me for the longest time when she would tell me it was my birthday. I never really enjoyed being center of attention. Of all things I do not like when people stare at me or anything.

I like to consider my personality to be strong. I am set on my ways allowing little flexibility unless there can be a compromise. I am especially set in my ways of raising Kadyn. I have certain ways of doing things and I guess you can say I sometimes will tell Harvey NO do it this way. Which really, I Know, Should not be happening. Believe me when I say, I am trying to correct that. It's hard.

In school I was slightly below average student. I did just enough to get by, although that landed me in night school three times. Math and I did not get along at all. I tried hard but two teachers just didn't see my struggle with algebra. I finally was able to get into a basic math class in order to graduate on time. But my grades were mostly B's and C's and maybe some D's.

I've grown up in the same house I am living in now. I currently still live with my parents, for now!

It was the middle of the school year just about when I met Harvey. I was 13 years old about to turn 14 in a couple days. Harvey was also 13 years old, but a grade behind me. I met him at his house while hanging out with a mutual friend. Of course Harvey was acting so silly and crazy might I say. Lets just say he was stacking household items in order to flip off them. He also put a football helmet on and was running head first into boards. Oddly the fact that it made me laugh made me like him. It's rather sad. haha

Harvey and I remained close through out high school. We were in ROTC together and ate lunch together. He would talk about his fling of the week, when I really didn't "date" a whole lot in school. I was a tom boy, dressed in baggy jeans and tshirts. Or rather pajama pants with hoodies most the time. One day I finally got the guts to tell him, You know if you weren't dating her I would date you in a heart beat. He got a huge smile and kissed my cheek. But it wasn't until a year later that he finally asked me out! It was homecoming game night when I saw him, it actually had been awhile since I had talked to him. I saw him at the game looking for a friend who was about to get into a fight and Harvey didn't want it to happen. I had to go though, well I was tired of freezing my butt off you can say!

A few days later Harvey called me. He looked my parents number up in the phone book (stalker?) and called me. We started dating Nov 18th 2002. We have had out ups and downs and in and outs. I blame us being young and dumb then, but it has obviously worked out for us!

Home coming 2003

Valentines dance 2003

Harvey:

I do know a lot about Harvey's background but I will only share minor details as Harvey is more private person as I really don't care what people know about me. I am pretty sure I have told my most embarrassing stories to people without a care.

Harvey grew up in Michigan his whole life, right outside of Detroit of course. He has 3 younger brother. Him being the oldest. Funny how he is the oldest of 4 and I am the youngest of 4. In high school he worked at a corner store to make few dollars. Harvey was very adventurous and outgoing. The more dangerous the better. He did anything to feel the adrenaline rush. Oh like Sledding off a rooftop into a pile of snow. Oh not the mention the weights set on the front of the sled so it goes faster.

Harvey lived with his grandma most of his high school years. He was an A and B student and kind of helped me get in the right direction with my grades. (Basically no more D's haha)

Since Harvey and I met we have been best friends. Even when we have had break ups we still talked and remained friendly. It's odd that we would never have ill feelings about those things.

Here comes Kadyn:

It was 5 years into our relationship. I was 19 years old when I found out I was pregnant. Scary. I was 20 when I had him. I never thought life could change so much. They say having children changes everything, but having a special needs child changes a lot more. It changes who you are, they way you see things. It changes your out look on life and the biggest change is, he brought me closer to God. Prayers on top of Prayers asking for a healing hand. Asking for the right answers for this child. Not knowing what the future brings for him is the scariest of all. Not knowing if I was going to be bringing a child home, or planning a funeral. It's the worst feeling, having to plan out your babies birth and also possibly plain out his funeral. Thankfully the funeral part never happened. My baby boy is still here and growing strong. Everyday he never seizes to amaze me. With his words, actions, and smile everything is bitter sweet and I hold it all in. Every moment more cherished than the ones i would of spent with a non special needs child. Not knowing when God will call Kadyn home makes me cherish every moment. 1000's of pictures, im sorry, 10s of thousands of pictures all on a hard drive, never to miss a moment. Everything I cherish. I actually finally just let go of Kadyn's old baby clothes. I gave them to someone who needed them. It hurt me to let them go but, I really didn't need them.

I really think through having Kadyn, it has strengthen my relationship with Harvey while making me a better person. Sometimes this life can be stressful, and sometimes I just feel it's not fair to Kadyn, but when I see him smile and I hear his laugh and hear him say Da Da or MAAA, It all seems fair that I chose to give him life then sit here and wonder....what if. Kadyn belongs here, God has a special plan for him. He brought Kadyn to me for a reason.

I honestly could not ask for a better life! :D

A post about a lot

2011-12-14T21:46:00.000-08:00

So my slide show was an epic fail. That just means you have to wait until I get the pictures and I scan them. I get them the 21st or the 22nd I can't remember.

Lets see where to start.

How about Our home. I posted pictures on FB, but I want to show everyone on my blog around my home. We don't have any furniture as we are not allowed to move anything in until final inspection. We had some plugs/electrical we had to fix, gas line and valves. Just silly little things. The inspector will be back on Dec 22nd, and we should be moved in after Christmas sometime. I am hoping we can start moving on the 23rd and try to get all moved in, in one day. This weekend I am gong to primer and paint Kadyns room, well just the bottom wall.

Anyways, Here is a tour :D

Our kitchen

dining area

foyer

living area

office

our room

bathroom

Kadyns room

going downstairs

basement

bar area

bathroom

laundry room

furnace room

I love this house. I will update with more pictures once we get everything in. Kadyns red paint will be green to match his bedding he is getting for xmas :D How exciting!

Kadyn's School

Kadyn came home with all these things. I can truly say I am super proud. I never thought I'd have anything with Kadyn's handprints and now I do!! I want to know how they did it. How amazing. I shed a few tears :D

My house cleaner

I was explaining to her that she can't be swinging mop sticks everywhere.

Oh she is cute :D

This would be the little munchkin I babysit. SHe has taught me a lot.... and here is one example...

Never leave Spaghetti O's on the tray when you go get your son off the bus