Invisible Disabilities AssociationEncourage | Educate | Connect | Invisible No More2012-05-15T21:03:38Zhttp://feeds.feedburner.com/InvisibleDisabilitiesAssociationWordPressAngela Piercehttp://www.fallingoffthemountain.com<![CDATA[My Mother’s Day Climb]]>http://www.invisibledisabilities.org/?p=92192012-05-14T18:35:23Z2012-05-14T17:59:24ZHappy Mother’s Day to all the moms out there. It is a very special day for everyone who has children and families. For those of us who do not have children, especially those who do not have children due to the fact that they have a disability, it can be a bittersweet day. I am grateful for my mom and happy for my friends and sisters who are moms. However, there is still a part of me that feels a void since I am not a mom and will not ever have my own child. It is not only on Mother’s Day that this difficulty exists, but on any day when someone who sees my wedding ring and asks me, “do you have children?” and I look at them and say “no.”
The decision I made to not have children is just one example of how the damage from my rock climbing accident in 1985 continues to be a daily challenge. To this day, if you met me for the first time, you’d never know that I had a series of lifetime disabilities. Other than several scars on my body, my disabilities are invisible. These challenges are compounded by many difficult decisions I have had to make due to my limitations. One of those decisions was the decision to not have children. I have wrestled with this decision since I was in college, just after my accident and still struggle with it 27 years later.
I know that there are many women who can not or choose to not have children, due to health problems and disabilities they live with. The challenge is to find something else that fulfills the desire to take care of other people that all women have. For the past 27 years, I’ve found different avenues to fulfill my desire to nurture and care for others. For example, I’ve been a volunteer at local colleges helping students transition into adulthood. I’ve also worked with young adults who had special needs. I also have regular communication with my godchild and her mom.
Even though I do not have my own children and never will, there are opportunities to get involved in other people’s lives and make a difference. It is not a substitute for my own kids, but it is very rewarding and takes the sting out of the wound. Besides, there are plenty of kids out there who need an adult to be more involved in their lives. For those out there with severe disabilities, invisible or not, nurturing a friend or family member can be just as rewarding. Just a simple phone call, email or sending a card, can make a big difference, not only to the person who receives the call or note, but to the one who sends it.
]]>0adminhttp://www.InvisibleDisabilities.org<![CDATA[Heart Attacks Triggered by a Broken Heart]]>http://www.invisibledisabilities.org/?p=91852012-05-06T20:05:18Z2012-04-30T21:30:47ZMost of us have heard that stress can cause heart problems. We have even heard the stories about a spouse who passes away, then the other follows close behind.
The mother in law of Invisible Disabilities Association’s Founder, Wayne Connell, has recently experienced increased heart trouble after her son Jim unexpectedly passed away last December. Carole has been battling Lung Cancer for the past year and found herself hospitalized shortly after her son’s death, due to severe chest pains, irregular heartbeat, shooting blood pressure and episodes of collapsing. They did not find artery damage, but her doctor said that her symptoms must be from a “broken heart.”
“It’s called stress cardiomyopathy, or ‘broken heart syndrome” (KENS5.com). A recent study discovered how a broken heart can trigger a heart attack.
New research presented this week at the Experimental Biology meeting in San Diego finds that during mental stress, blood flow through the heart increases in men, but doesn’t change in women. The findings suggest women’s hearts might not adjust properly to stress (KENS5.com).
This is not something to be taken lightly. Connie Pitts is a woman who lives with Fibromyalgia and Chemical Sensitivities, as well as the author of Get a Whiff of This, Connie shared with the Invisible Disabilities Association what happened to her mother shortly after her brother passed away.
My mother died of a heart attack three months after my brother took his own life. During that three months, her eyes lost their sparkle, and she lost over thirty pounds. I do believe it was the grief over her loss that caused her to have a fatal heart attack.
Dr. James Park, an interventional cardiologist at the Texas Health Dallas Hospital said, “What they theorize is the arteries spasm, causing damage to the heart,” he said. “Then, when I do an angiogram to look at the arteries, it looks like there’s no blockages there, but there’s damage to the heart.” (KENS5.com).
]]>0Angela Piercehttp://www.fallingoffthemountain.com<![CDATA[Angels on the Mountaintop]]>http://www.invisibledisabilities.org/?p=85882012-04-27T18:49:25Z2012-04-27T18:49:25ZThose of us who live in suffering do not realize the depth of understanding we can give to others. Whether it is on the internet, phone, or praying and sending good thoughts to others we know who live with invisible disabilities, we can make a difference. Sometimes our pain and sickness lead us to being lonely. Since we are already angels, we should try to remember that we are suffering for others who do not even know they need our help.
Here are two examples of how God has been able to use me to help someone that did not know they needed my help. One, a friend of mine was having a baby. I went to visit her in the afternoon and found out that nobody else would be there to support her during birth. I stayed with her, postponing my dialysis, which meant more pain for me; however, not only was I able to hold Hadley’s hand during her C section, I was the person who cut the umbilical cord. What an experience for me to be able to hold a new baby’s hand and to be able to celebrate a new life with a good friend of mine. I held the baby, placed her next to my Hadley’s cheek and with tears in both our eyes, we shared a quiet moment that neither of us will ever forget.
A second example was this past week. A good friend of mine from dialysis had been in the hospital for the past 3 days. She had a heart attack brought on by congestive heart failure. While I was visiting her in the hospital, the hospice nurse came in and asked my friend Molly if it was OK with her that I be allowed to stay in the room. Molly shook her head yes. Molly and I were very good friends. The nurse continued to ask Molly questions concerning her quality of life. At this point, Molly was in bad shape and was fighting for her life. The nurse asked Molly if she had spoken with her kidney doctor about the possibility of not continuing dialysis. Molly said no. This was difficult for me to hear, as Molly was making the decision to possibly not get dialysis treatment any longer. The nurse was basically telling Molly that even though her mind was strong, her body was weak and was giving up.
Most people could not go to a hospital to visit a friend or family member and listen to a nurse or doctor have a life and death conversation. Even though its difficult, its very important to be there for people like Molly, when they need us the most. Those of us with invisible disabilities can relate to people like Molly and can truly be an angel during some of the most exciting and difficult moments in people’s lives.
]]>5Kris Hartyhttp://www.ShortChick.com<![CDATA[The Only Disability is YOUR Bad Attitude!]]>http://www.invisibledisabilities.org/?p=89652012-04-16T18:47:55Z2012-04-16T18:47:55ZKick off your shoes and stay awhile.
It sometimes feels like there are few places where people with visible conditions are welcome – and accepted as they are.
Medical settings are often the most welcoming and comfortable places known to those of us with visible conditions. The larger, outside world has way too many issues with the likes of us.
Case in point: a mere one hour time span in the life of…. namely, yours truly.
It happened a couple weeks ago. I was minding my own business, going about my day in the usual way. Nothing out of the ordinary: a professional organization’s meeting, getting in and out of my car and running an errand. Doesn’t seem like it would be all that memorable.
But it was – and not in a warm, fuzzy kind of way.
No, the unfuzziness started early in the morning. Toward the end of a monthly mastermind meeting for speakers and authors that I co-founded, a gentleman who I’ve known for years uttered a showstopper.
He’s known for espousing the power of attraction. All well and good, until he stepped over a line – clearly marked with warning flares.
He was going off in his usual manner, instructing us in the finer points of thinking our way to success. Never mind the heavy lifting of running a business. It would take care of itself if we but thought the right thoughts.
At which point, he turned to me. “This applies to health, too.”
He continued, addressing the larger group again. “I have so many friends with arthritis who whine and complain about how bad it is and how much it hurts. Well, of course it does! That’s what they’re thinking about all the time!”
Apparently not yet sensing – or thinking about – the sudden deep freeze emanating from my pores right next to his, he looked at me and further explained, “You probably didn’t realize the connection.”
The deep freeze deepened. “Ohhhhhhhhh, you’ve told me numerous times.”
Momentary taken-aback pause. “I have?”
“Hmmmmmmmmmmmmmmmm.”
Perhaps it was the engulfing silence from me or from my fellow attendees. Perhaps it was the ice cold steel clad stare from my eyes to his, the stare coined the Harty Glare from my long-time friend Lynne. Perhaps a combination. No matter. It shut him down. Perhaps ‘thinking’ it so, does work.
Nonetheless, the best comeback came to me later in my car. What’s with the perpetually delayed response time?? What I should have said is, “How many seven year old kids think about getting rheumatoid arthritis – and then do?? Huh, huh?? Answer me that one, ‘O Think and It Will Be So, Boy.’”
But before I had a chance to think that delayed thought, another something happened as I was getting into my car following our hastily-ended meeting.
Just as I was plopping my irritated self into my car outside the restaurant, a woman walked up to me while my door was still open. “Hey. Lady.”
She looked harmless enough, yet I’m always a little cautious.
Calmly, she proceeded, as though this was the most natural thing she says every day to strangers: “Hey, I just wanted to tell you that when I saw you walk past me inside the restaurant, I could see that you have the mark of the beast on your forehead.”
I was soooo not in the mood to put up with yet another lunatic. My pronounced limp often seems to give strangers an assumed license to comment on any aspect of my physicalness. But this was a whole new direction.
I reached for my door, eye-roll in full swing. She kept up the luna-babble. “You probably picked it up at (insert name of nearest big box store). A lot of people get it there.”
“Nooo, I don’t shop there.”
“Ohh! Then, you must have gotten it at (insert name of large regional grocery store chain). People sometimes get it there, too.”
“I don’t shop there, either.”
“OH, well. Umm, I really feel that God is going to heal and lengthen your legs this afternoon!”
“He already did.”
“Ohhh, well, that’s great.” Door is almost slammed shut…. “Have a blessed day!” Seriously? I’m trying, but dealing with the likes of you cuts into the feel of any blessedness.
No longer in the mood to deal with the world at large, all I wanted to do was go home, alone. But my cat wouldn’t appreciate me not stopping to refill his food supply.
So I drove to the nearest (insert name of big box pet store here). As I walked in, another customer preceded me by five paces. The store’s door greeter, beaming, chirpily welcomed her. The greeter turned her head, saw me, and any lingering smile vanished in an instant. Her mouth clamped shut. I was awarded the ‘up and down’ stare. I stared back. This was not the time to mess with me.
I kept staring. She finally stopped staring. In a stilted voice, she eked out, “Can I help you?”
Not unless you can fix your own problem, honey – whatever it is.
Getting home never felt so good. The only other safe place is a medical setting. Maybe all other establishments need to start posting these signs in addition to no smoking signs: “Thank you for not staring.”
Next stop, the nearest sign company. I think I’ll buy a few thousand shares of stock.
]]>1adminhttp://www.InvisibleDisabilities.org<![CDATA[Teresa Giudice Wins 60K in Honor of Child with Kidney Disease]]>http://www.invisibledisabilities.org/?p=91662012-05-14T20:44:13Z2012-04-12T19:00:35Z
Teresa is there to raise money for her charity, The NephCure Foundation (NFC), which researches the cause, improved treatment and cure for the potentially debilitating kidney disease Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome.
“Teresa first encountered The NephCure at a charity event when she met a young boy who was suffering from an incurable kidney disease. As a mother herself, Teresa was emotionally affected by this boy’s story and was shocked to learn that the cause of many kidney diseases is still unknown” (Celebrity Apprentice).
The Invisible Disabilities Association (IDA) has had direct experience with two amazing men battling FSGS, Ed Hearn and Jason Graham.
Ed is a NY Mets World Series Champion, Author, Speaker and NCF Ambassador. Ed was the Keynote Speaker for the 2010 IDA Honor Awards Banquet. He was also the recipient of the 2010 IDA Perseverance Award. Ed’s message was extremely inspirational, as Ed has had three kidney transplants and several bouts with cancer. Read more about Ed and watch his incredible keynote, “Keep Swingin” right here on IDA.
Jason was the recipient of the 2010 IDA Inspiration Award. Jason battled kidney disease that led to a kidney transplant that failed. He was in need of another, when his health quickly diminished. Jason put up an amazing fight for many years. Tragically, he lost his life in 2011, when he also developed a rare cancerous brain tumor. Read more about Jason and watch his very touching award acceptance speech right here on IDA.
On the April episode of Celebrity Apprentice, Teresa became the Project Manager. The task was for the two teams to create a a 60 second commercial for Entertainment.com. She won $20,000 from Celebrity Apprentice and $30,000 from Entertainment.com.
UPDATE 5/6/12 – Clay Aiken makes it into the Final Three of Celebrity Apprentice. Clay and project manager, Lisa Lampanelliwon the last task. On the other team, with Arsenio Hall and Aubrey O’Day, Teresa Giudicewas their project manager and was sent home. The four remaining contestants were immediately sent into one on one interviews with former Celebrity Apprentice contestants Country Singer John Rich (Season 4 Winner) and Actress Marlee Matlin (Season 4 Runner Up). When the final four returned to the boardroom, Lisa Lampanelli was fired.
Teresa talks about her charity, The NephCure Foundation
A clip from the task that Teresa took on as Project Manager
]]>1adminhttp://www.InvisibleDisabilities.org<![CDATA[IDA President Wayne Connell Visits Social Security Expert Allsup]]>http://www.invisibledisabilities.org/?p=91122012-04-12T17:11:07Z2012-04-12T00:17:46ZA few weeks ago, IDA President, Wayne Connell had the opportunity to spend the day with the great people of Allsup including Tai Venuti, Manager of Strategic Alliances who played host and tour guide for the day.
Headquartered in Belleville, IL, Allsup Inc. is the nation’s premier provider of Social Security and Medicare disability claim services. Whether providing service directly to the consumer or working with employers, insurers, group health plans, or workers’ compensation benefit programs, their expertise and systems have resulted in a 98 percent award rate and maximum recoveries from both Social Security and Medicare. Allsup has helped more than 170,000 people since 1984 to receive their Social Security Disability Insurance benefits. In addition, Allsup provides Medicare plan selection and disability life planning services.
Tai Venuti, Manager of Strategic Alliances
Wayne started his visit with a group of Allsup employees and management. He shared with them his seminar, Invisible No More!sm, Seven Realities of the Invisible Becoming Visible. Following a lengthy question & answer session about invisible disabilities and how to learn the language of invisible disabilities, Wayne visited the various departments throughout Allsup. He learned of the tremendous work the Allsup team members are performing in helping those seeking social security disability as well as helping them navigate Medicare, Medicaid, health insurance and financial principles.
Executive Vice President and Chief Operating Officer, Ron Buerges
]]>0adminhttp://www.InvisibleDisabilities.org<![CDATA[Clay Aiken in Celebrity Apprentice Finals for Kids with Disabilities]]>http://www.invisibledisabilities.org/?p=89862012-05-14T20:49:13Z2012-03-30T20:55:58Z
Screenshot from Celebrity Apprentice Interview
UPDATE – Clay Aiken makes it into the Finals of Celebrity Apprentice. See below for details!
The National Inclusion Project is an organization that I helped start about eight years ago. I used to see kids with disabilities get kicked out of programs or not be allowed to go to a summer camp that I was working at because they had Autism or a little boy or girl had Cerebral Palsy and they didn’t have the ability to work with them at the summer camp. In our social settings. We do segregate. We don’t include individuals with disabilities in workplaces oftentimes and almost always, unfortunately, in extra-curricular programs. So we work with university to help create a curriculum that teaches people how to include kids with disabilities and without disabilities in service learning projects. So, inclusive groups of kids, teenagers, will work together to do stuff in their community. We are sort of a service organization that serves other non-profits in a way (Video: Clay Aiken’s Charity).
For his first task as Project Manager ,the show that aired on March 25th, the teams were asked to throw a party for Crystal Light’s new “mocktail” beverages. For the men’s team, Unanimous, Clay volunteered to be Project Manager. For the women’s team, Forte, Aubrey O’Day was the Project Manager.
Clay and his team chose to highlight the Peach Bellini flavor and use the tagline, “Life’s a Peach.” Their party had a beach-theme, complete with sand, island music and tikki-bars. Special guests, Kathie Lee Gifford and Hoda Kotb showed up to the party and when the Crystal Light Executives arrived, Clay sang, “Under the Boardwalk.”
Although the contest seemed to be close, Team Unanimous was chosen as the winners. As their reward, Clay’s charity was to be given $20,000 from the show. As an added bonus, Crystal Light also contributed $30,000, making Clay’s contribution to his charity, $50,000.
UPDATE 5/13/12 – Clay Aiken makes it into the Finals of Celebrity Apprentice.Aubrey O’Day is fired, leaving Clay Aiken and Arsenio Hall to battle it out in the finals. Clay and Arsenio are giving their tasks to raise money for their charities by planning, producing and starring in a fundraising event. They were given the opportunity to choose from a group of former Celebrity Apprentice contestants.
UPDATE 5/6/12 – Clay Aiken makes it into the Final Three of Celebrity Apprentice. Clay and project manager, Lisa Lampanelliwon the last task. On the other team, with Arsenio Hall and Aubrey O’Day, Teresa Giudicewas their project manager and was sent home. The four remaining contestants were immediately sent into one on one interviews with former Celebrity Apprentice contestants Country Singer John Rich (Season 4 Winner) and Actress Marlee Matlin (Season 4 Runner Up). When the final four returned to the boardroom, Lisa Lampanelli was fired.
]]>7adminhttp://www.InvisibleDisabilities.org<![CDATA[Mistakes with Reporting SSDI Can Be Costly at Tax Time]]>http://www.invisibledisabilities.org/?p=87742012-03-29T20:57:16Z2012-03-27T18:00:58ZMistakes with Reporting Social Security Disability Income Can Be Costly at Tax Time, Allsup Finds
Lump-sum SSDI awards for new beneficiaries require special attention; Allsup outlines other cost-saving tax tip
Belleville, Ill. – February 17, 2012 – More than 1 million people with severe disabilities became beneficiaries under the Social Security Disability Insurance (SSDI) program last year. But many of them are likely to improperly report their SSDI payments on their income tax returns, according to Allsup, a nationwide provider of Social Security Disability Insurance representation and Medicare plan selection services.
“It can take months and sometimes years to receive Social Security disability benefits. So, many people receive a one-time, lump-sum amount that includes back payments,” said Paul Gada, a tax attorney and personal financial planning director for the Allsup Disability Life Planning Center. “One of the most frequent questions we receive from claimants at this time of year is whether SSDI benefits are taxable and how to report lump-sum payments on their tax return.”
Up to 50 percent of Social Security disability benefits are taxable each year. The actual amount is determined by adding one-half of the taxpayer’s SSDI benefits to all of his or her other income sources. For 2011, a federal income tax return must be filed if gross income is at least $19,000 for couples filing jointly and $9,550 for individuals.
“The average monthly SSDI benefit for 2011 was $1,072.96 or $12,875.54 for the year. As a result, many people relying on SSDI will not owe taxes,” Gada said. “A problem can occur, however, if they mistakenly report all of a lump-sum payment received in 2011 as 2011 income, in which case they could end up paying too much in taxes.”
According to Gada, it’s essential that both individuals and their tax preparers understand how to report SSDI lump-sum payments. “The IRS allows taxes on SSDI lump-sum payments to be spread over previous tax years using the current-year tax return,” Gada explained. “This means recipients do not have to go through the time or expense of filing amended returns, or pay higher taxes on their current year’s income.”
People who received a lump-sum SSDI payment in 2011 will see this amount included in Box 3 of the Form SSA-1099 they receive from the Social Security Administration (SSA). Worksheets provided in IRS Publication 915 and discussed in Allsup’s free online guide, Managing Your Taxes, can be used to determine the taxable portion of a retroactive SSDI payment. However, Gada cautions it can be extremely difficult to do this by hand and recommends seeking help from a knowledgeable tax professional or, at the very least, investing in tax preparation software that covers this.
Other Money-Saving Tax Tips and Free Tax Filing Help
About 8.6 million disabled workers received income through the Social Security Disability Insurance program in 2011, including new beneficiaries.
Below, Allsup highlights additional tips that may help people with disabilities and their caregivers save on their taxes. More information is provided in Allsup’s Managing Your Taxes guide on Allsup.com, including links to free tax filing assistance resources.
Tax Credits
Earned Income Tax Credit (EITC). This is a refundable tax credit of up to $5,751. When it’s applied, it could result in a refund. To be eligible, a taxpayer or a spouse needs to have been employed for part of 2011, earned below $13,660 to $49,078 (depending upon filing status and the number of children claimed) and had investment income of $3,500 or less. “Many people with disabilities don’t file a tax return because their income is so low,” Gada said. “But you could lose out on thousands of dollars from the EITC if you don’t file a tax return.”
Credit for people with disabilities. Taxpayers are eligible for this credit of up to $7,500, if they receive taxable disability income from a former employer’s accident, health or pension plan and meet income requirements. For 2011, adjusted gross income (AGI) must be under $17,500 for single filers, under $20,000 for joint filers with one spouse eligible for the credit, or under $25,000 for joint filers with both spouses eligible.
Dependent care credit. Taxpayers who pay someone to care for a dependent or spouse with physical or mental impairments may be able to take a credit of up to 35 percent of day care costs while they are working or looking for work.
Tax Deductions
Increased standard tax deduction. People who are blind or visually impaired may be able to take a higher standard tax deduction.
Medical deductions. Taxpayers who itemize can deduct medical costs if those costs exceed 7.5 percent of their AGI. Deductible expenses include medical and dental costs, travel expenses for treatment, long-term care and medical insurance premiums, and costs for certain equipment for people with disabilities. Taxpayers with a chronic illness, or with a spouse or child with a chronic illness, may be able to deduct costs for attending conferences related to that illness.
Deduct the costs of seeking SSDI benefits. Taxpayers who hired a representative such as Allsup to help them get SSDI benefits and who itemize can deduct the representation fee paid from the taxable part of their benefits.
###
ABOUT ALLSUP
Allsup is a nationwide provider of Social Security disability, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs nearly 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis. For more information and a Free Consultation visit Allsup.com. Be sure to mention you heard about them from IDA.
The information provided is not intended as a substitute for legal or other professional services. Legal or other expert assistance should be sought before making any decision that may affect your situation.
Above Allsup Press Release published with permission.
]]>3Angela Piercehttp://www.fallingoffthemountain.com<![CDATA[Climbing the Mountain of Weakness]]>http://www.invisibledisabilities.org/?p=82452012-03-20T20:20:10Z2012-03-20T20:10:09Z“When you are weak, you are strong.” What does this really mean? For those of us who have invisible disabilities, this is a haunting statement, yet it is one of the most liberating and powerful principles available to us. We want so desperately to look someone in the eye and say, “I’m doing great. How are you?” The reality is that when we are hurting, we are not doing great and we find it difficult, if not impossible, to look at someone in the eye and say, “I’m not doing well at all. Can you help me?” When we find someone who will listen to us and understand how we are struggling, it is a huge boost of strength.
What do I mean by weak? Simply this: The fear of admitting that you are having a very hard time or struggling to the point of not seeing a way out. For example, in the last 2 months I’ve come to the conclusion that I do not feel safe to drive my car due to how I’m doing physically. Telling someone that I can’t take myself where I want to go is very difficult, as it means I have to depend on others. On the one hand, this is a weakness, because I’m afraid to admit to someone else that I need help. On the other hand, it is a source of strength because when I ask for someone else’s help, I’m letting them into my world; when I see that they accept me after knowing this about me, it is a great relief and source of strength. It takes a lot of courage for me to let someone else know my weaknesses. Regardless of their reaction, the courage that I put forth to do this, strengthens me.
Unfortunately, in our culture today, admitting that we are weak, unable, not smart, feeble, or anything other than strong and powerful is frowned upon. Going one step further, it is my belief that we not only frown upon this, but we push people aside who are anything other than positive, strong, full of answers and fully capable of overcoming difficulties. This is true not only for us who live with disabilities, but this attitude exists in our schools, neighborhoods, companies and families.
What does all this mean for you? Admitting that you are weak is OK. Choose an area of your life that you’re having a hard time with. Make a decision to tell someone you trust about this. You will surprise yourself with how this is very liberating and how it will strengthen you.
]]>0adminhttp://www.InvisibleDisabilities.org<![CDATA[Alert Dogs Put Their Sniffers to Work to Save Lives]]>http://www.invisibledisabilities.org/?p=87792012-03-02T20:18:58Z2012-03-02T19:47:54Z
Photo Copyright Diabetic Alert Dogs
We all know that a dog’s sense of smell is more keen than a human’s. In fact, according to Dan Warren, a Virginia dog breeder, humans have about 5 million nose receptors, but dogs have about 250 million!
But, did you know that dogs can detect very subtle fluctuations in blood sugar levels? Warren’s company, Diabetic Alert Dogs by Warren Retrievers trains dogs to alert their owner when their blood sugar is dropping, but is still within normal range. Warren is also the Founder, President and CEO of Guardian Angel Service Dogs, the non-profit arm that provides awareness and funding for families to receive a diabetic alert dog.
“They also train dogs to help others with ‘invisible disabilities,’ Warren says, ‘including post-traumatic stress disorder and autism” (salisburypost.com).
Dogs can also be trained to alert their owners of seizures, anxiety, blood pressure and more by barking, pawing and/or licking. Some dogs even know how to dial 9-1-1.
]]>1adminhttp://www.InvisibleDisabilities.org<![CDATA[‘American Idol’ Contestant, Heejun Han Loves Working with Special Needs Children]]>http://www.invisibledisabilities.org/?p=88462012-03-30T22:36:55Z2012-02-28T23:11:42Z
Screenshot from Audition Video Copyright 'American Idol'
SEE LATEST Updates and Videos Below!
Season 11 ‘American Idol’ contestant, 22 year old Heejun Han is originally from Korea and now lives in Flushing, New York. Heejun said:
I was inspired to do this audition, because I work at a non-profit organization for kids with special needs. I wanted to prove to them that if you really, really want something and you really really believe in it, you can be someone” (Heejun’s Interview After His First Audition).
Later in the competition, Heejun admitted:
I had a bad depression, but the kids and the organization just pulled me out from there, so I just had to give something back to them. Without those kids I wouldn’t even have motivation to come out here and do all this kind of stuff. I’m not only doing this for myself. I could say that 100%, this is for the kids and it just makes me so happy” (Sing for Your Life – Heejun Han).
Heejun auditioned for ‘American Idol’ in Pittsburgh. Before his auditions, Heejun said about the other contestants, “I thought I was a little good, but they’re just crazy good” (Audition in Pittsburgh). Heejun sang, “How am I Supposed to Live Without You” by Michael Bolton.
He seemed a bit nervous, but delivered a very smooth and heartfelt song and the judges were absolutely impressed! Steven said, “Heejun, man, you sing great” Jennifer agreed, “You have a beautiful voice! I love you!” and Randy added, “On a serious note. I am really impressed and shocked!” Steven chimed in again with, “Ya, I think you’re really great. I think you could be an ‘American Idol.” Heejun was taken back by the comments and said, “Wow! Nobody told me that kind of stuff!” (Heejun’s Audition in Pittsburgh).
Heejun has a very dry and sarcastic sense of humor, talking about everything from the other contestants being so talented to how “pretty” and good looking they are. He said in Hollywood:
I got here and everyone’s SO tall, SO pretty. Even the guys are so pretty, I don’t know why. I don’t know what they eat, but they’re so good looking!
At one point, Ryan Seacrest asked him what he was sweating in the competition. Heejun answered, “Mostly water.”
Heejun seemed to sail right through Hollywood week, except for his personality clashes with country singer, Richie Law. Although the group seemed to be challenged, their performance got them all onto the next round. Again, Heejun’s dry sense of humor came out as he talked about the “cowboy” in his group. Nonetheless, he did apologize to Richie and his parents for his behavior on camera.
Heejun made it in the Top 24. During his interview he talked about how excited his mom was when he told her the news! Then Heejun added:
The greatest thing that I am worrying about is a “stereo-type” that they’re going to have towards me; like an Asian stereo-type. But I hope I can break that. And if they can just see me as a singer, not as a type of person. Don’t watch the music, but listen to the music. You know?”
Heejun, we think every person has something unique and special about them. There is only one you; embrace all you have been given and all you are!
UPDATE 3/29/12 – Sad to report that Heejun was sent home tonight. He was in the Bottom 3 with Hollie Cavanagh and Skylar Laine. We are sad to see you, go Heejun! Congratulations for making it to the Top 9, for staying true to yourself and for encouraging those around you to reach out to others!
Heejun said during his Curtain Call Interview:
The reason I started out this competition was to prove that if you truly believe in yourself you can become someone regardless of who you are. And if you do something for others, the outcome is something beyond imagination. I hope I impacted at least one person. So, go out there and help other people, because they’re not far away, they are right next to you in your neighborhood. Alright guys! Stay crazy, stay humble, stay cool, stay relaxed, stay who you are … cuz this is just the beginning. Let’s do this together again!
UPDATE 3/28/12 – After Heejun had been given lots of flack about his not “taking the competition seriously,” he came back full force. Heejun won’t stop being entertaining self, but the judges and mentors encouraged him to get serious and show what he can do. So, Heejun did just that with this very appropriate song and message, “A Song for You” by Donny Hathaway during the Top 9 performance show. The judges loved it.
UPDATE 3/22/12 – Heejun was in the Bottom 3 this week for the first time. Joining him was DeAndre Brackenstick and Erika Van Pelt. Although Erika belted out an amazing vocal and the judges loved it, she was sent home.
UPDATE 3/21/12 – The Top 10 perform. Heejun broke way out of his ballad streak and took over the stage. It was Billy Joel night and Heejun sang, “My Life.” The judges thought it was entertaining and fun, but didn’t show off his voice as they know he can sing.
UPDATE 3/15/12 – Although during the performance night, Randy pegged Heejun for being at risk for going home, Heejun was not even in the Bottom 3. Instead, Heejun made it into the coveted Top 10, allowing him to go on the American Idol tour.
UPDATE 3/14/12 – Heejun sang, “Right Here Waiting” by Richard Marx at the Top 11 show.
This show turned out to be the Top 11, because Jermaine Jones was removed from the competition for not having been forthright about his past history with four outstanding warrants from the police. According to the Huffington Post, three were for giving the police a false name (once when they responded to a fight, once from when he was riding in a car that was pulled over and another time when he was driving with a suspended license). The other was for not showing up for a court date.
UPDATE 3/8/12 – Out of the Top 13 (7 guys and 6 gals), Heejun was not in the bottom 6 (3 guys, 3 gals). He whisked right through again!
UPDATE 3/7/12 – Heejun sang, “All In Love is Fair” by Stevie Wonder for the Top 13 Performance night. Jennifer said, “I love you! I loved you from the first time you sang for me and I still love you now. ” Steven said, “Heejun! Fantastic! I love your voice, man. Somethin’ about it’s real special. Keep it up.” Randy added, “Dude! It wasn’t perfect, but it was REALLY good!”
UPDATE 3/1/12 – Heejun made it into the Top 10 by America’s votes! Joining him are Colton Dixon, Elise Testone, Hollie Cavanagh, Jermaine Jones, Jessica Sanchez, Joshua Ledet, Phillip Phillips, Shannon Magrane and Skylar Laine. Then the judges let six more kids “sing for their lives.” The judges each picked one more contestant to join the Top 10, to make a Top 13: Jeremy Rosado, Erika Van Pelt and Deandre Brackensick.
UPDATE 2/28/12 – Heejun sang, “I’m Loving Angels Instead” by Jessica Simpson. Heejun did a great job! The judges agreed, but commented that the song didn’t show off all of his capabilities. As promised, an additional male vocalist was added to the round. Formerly disqualified, Jermaine Jones was asked to return for another chance. On Wednesday, the Top 12 girls will have a chance to sing. On Thursday, the Top 25 (previously the Top 24) will be narrowed down to the Top 12. Ten will be chosen by America’s votes and two by the judges.
UPDATE 2/23/12 – Heejun sails into the Top 24 with his rendition of “New York State of Mind” by Billy Joel.
Also going into the Semi-Finals are Aaron Marcellus, Adam Brock, Baylie Brown, Brielle Von Hugel, Chase Likens, Chelsea Sorrell, Colton Dixon, Creighton Fraker, Deandre Brackensick, Eben Franckewitz, Elise Teston, Erika Van Pelt, Haley Johnsen, Hallie Day, Hollie Cavanagh, Jen Hirsh, Jeremy Rosado, Jessica Sanchez, Joshua Ledet, Phillip Phillips, Reed Grimm, Shannon Magrane, Skylar Laine. On Tuesday February 28th, they will be announcing a Surprise Save, as they add another boy into the Semi-Finals who was previously sent home.
UPDATE 2/16/12 – Heejun moved on to the next rounds as the contestants went from 70 to 42.
UPDATE 2/15/12 – Heejun survived Hollywood week and moved on to Las Vegas!
UPDATE 2/15/12 – Heejun made it through group rounds! 97 other contestants joined him, including Jennifer Malsh, Cari Quoyeser, Reed Grimm, Nick Boddingtom, Creighton Fraker, Aaron Marcellus, Jen Hirsh, Shannon Magrane, Joshua Ledet, Brielle Von Hugel, Amber Holcomb, Mathenee Treco, Ariel Sprague, Eben Franckewitz, David Leathers, Jr., Jeremy Rosado, Gabi Carrubba, Johnny Keyser, Heejun Han, Jairon Jackson, Richie Law, Phillip Phillips, Colton Dixon, Adam Brock, Skylar Laine and many more.
VIDEOS:
Heejun’s Farewell Message
Heejun sings, “A Song for You” by Donny Hathaway during the Top 9 performance show
Heejun in the Top 10 Singing, “My Life” by Billy Joel.
Heejun in the Top 11 Singing, “Right Here Waiting” by Richard Marx.
Heejun Han in 60 Seconds
Heejun Singing “All In Love is Fair” by Stevie Wonder During the Top 13 Performance Show
Top 13 Group Singing “As” by Stevie Wonder.
Recap of Top 13 Performance Night
Heejun’s Interview After Making it Into the Top 13
Heejun sings, “Angels” by Jessica Simpson in the Top 24
Recap of Top 12 Guys, Plus the Surprise Addition of Jermaine.
Heejun Han Interview After Being Selected for the Top 24.
Heejun’s Interview and Solo in Las Vegas, Before the Top 24 was Announced. Heejun sang, “New York State of Mind” by Billy Joel.
]]>1adminhttp://www.InvisibleDisabilities.org<![CDATA[George Clooney Battles Pain, Insomnia and Bouts of Loneliness]]>http://www.invisibledisabilities.org/?p=88192012-04-03T22:03:35Z2012-02-23T23:45:06Z
George Clooney Actors Guild Awards - dreamstime.com
Most of us can only imagine what it would be like to be famous; to have no worries about money, the best medical care, pampering at the spa, lots of vacations, lots of friends and a beautiful home with a cook and a housekeeper. So, what could a star possibly have to complain about?
Turns out, as successful as George Clooney is, he is still human. A few days ago, The Hollywood Reporter published that Clooney revealed he is battling pain, insomnia and bouts of loneliness.
LifelineLIVE wrote, “The suave star, 50, shares — in an in-depth profile — that, for all his fame and fortune, he’s got his fears and troubles, including battling Bell’s palsy at age 14 and still coping with pain from a back accident on 2005′s Syriana.”
According to HollyscoopTV,“The actor has spoken before about the pain he suffered in 2005 from a leak in his spinal cord that was so intense he contemplated suicide.”
When talking about his insomnia, Clooney said:
‘Turning off the television causes me to think, and once I start that vision roaring, I have a very tough time getting to sleep.’ With the flickering screen, ‘I’m able to numb out.’ Even then, ‘Without question, I wake every night five times’ (The Hollywood Reporter).
One thing we noticed about some of the comments made about Clooney by reporters and readers, they often asked why he did not just use Tylenol PM or alternative treatments such as acupuncture. Therefore, it appears even celebrities, who have access to all kinds of doctors and treatments, still have people assuming they have not tried anything or done anything about their condition. Most likely Clooney has tried these things and more. Nevertheless, as many with chronic conditions quickly discover, some things work for some people, but not for others.
George Clooney Reveals His Secret Pain from HollyscoopTV
Photo of George Clooney. LOS ANGELES – JAN 29: George Clooney arrives at the 18th Annual Screen Actors Guild Awards at Shrine Auditorium on January 29, 2012 in Los Angeles, CA. Copyright dreamstime.com.
]]>4adminhttp://www.InvisibleDisabilities.org<![CDATA[Doctor’s Perspective Changes When She Gets Cancer]]>http://www.invisibledisabilities.org/?p=87702012-02-23T21:13:18Z2012-02-23T21:13:18ZAs a Molecular Geneticist and Oncologist, Jennifer Kelly, MD was quite familiar with Cancer patients and treatments.
Still, she was surprised to find herself responding in some of the same ways that her patients have. Most of all, she realized that she was no longer the doctor, but the patient.
Dr. Kelly wrote:
While I am still battling cancer and have not yet returned to work nor am I leading a normal life, my illness has changed me profoundly as a physician. No amount of doctoring can prepare you for being a patient. During the past year, I have endured multiple treatment methods, metastasis, and most recently the discovery of a brain tumor that threatens my eyesight. The past year has been full of the most vulnerable moments in my life.
If anything, it’s that recognition of vulnerability as well as expertise that makes me a better doctor today (medpageTODAY’s KevingMD.com).
]]>1Kris Hartyhttp://www.ShortChick.com<![CDATA[Nurse-Patient Relationships Endure]]>http://www.invisibledisabilities.org/?p=80162012-02-20T19:55:16Z2012-02-20T19:54:34ZWhen attending a patient’s funeral, they blended in among the other mourners.
Nothing made them stand out, as they would in their normal work environment.
But this was not that. The graveside service was simple yet honorable. Snippets of conversation floating on the breeze caught my ear.
It was those snippets that amazed me.
I knew nurses were dedicated to their patients, but this was all new territory, at least for me. They seemed completely at ease, as though this was part of what they do everyday.
It made me wonder if it was routine to them.
Do nurses follow their patients beyond bedside duty? Do they feel a responsibility, a caring, a compassion not only for the patient, but the patient’s family?
Once their caregiving is no longer needed, do they still feel a connection to their patients?
Do they go so far as to attend a funeral of a deceased patient who had been in their care?
How utterly and phenomenally lovely and loving is that?
It’s compassion I don’t fully understand, from my limited viewpoint as a patient. It’s one I admire more than I can say.
I would want that for me, one day – a loooong way into the future, preferably.
I listened a bit more intently.
“I’m sorry, I don’t recognize you. Are you a friend of someone in the family?”
“We’re here because we were among the nurses in the hospital who treated him.”
“Oh! I didn’t recognize you. I’m so sorry.”
“That’s ok. You probably weren’t expecting to see us here. It’s the whole ‘out of context’ thing when trying to recognize faces.”
“It’s so kind of you to be here. Thank you so much for taking the time. Our dad received such great care at the end and you helped make a really difficult time a little easier.”
Their conversation created a lump in my throat. Wistful memories flashed in my mind.
As with any funeral, each one takes me back to two specific earlier funerals: my mom’s and my dad’s. While I don’t recall health care givers in attendance, I wouldn’t have been surprised if some had been there, especially among those at my mom’s funeral.
As a college student, I was too wrapped up in my own grief to give much attention to anyone not immediately recognizable. But I do recall the seemingly extra measures of kindness shown my mom by her nurses in her last days, while hospitalized.
The memory of the nurses’ gentle care of my mom impresses me still, a quarter century later.
If they weren’t at her funeral, I know it wouldn’t have been for lack of caring. They seemed the type who would have been there or who would have wanted to be there, if circumstances allowed.
I’m glad they were there for my friend’s dad’s service.
I like to think it’ll be a comfort for him and his family years later. It’s hard to remember details of those days later on; our memories can only store so much in the form of details or grief. I know it had to be comforting at the time.
Those nurses took their patient relationship to the next level. It inspired not only those in the relationship, but the rest of us who had the comfort of witnessing it, if only from a distance and after the light of it faded.
]]>0adminhttp://www.InvisibleDisabilities.org<![CDATA[Invisible No More: Suzanne Stewart]]>http://www.invisibledisabilities.org/?p=87162012-02-16T22:57:42Z2012-02-16T22:15:14ZThrough the project, Invisible No More! the Invisible Disabilities Association is bringing awareness, compassion and belief to millions living with debilitating conditions, shining a light on the “invisible” and making these valuable, incredible people Invisible No More!
This video features the story of Suzanne Stewart, who lives with RSD / CRPS, Traumatic Brain Injury and other complications after a car accident. Suzanne used to be an Interpreter for the Deaf. She is a Chemo-Angel and makes awareness jewelry when she is able. She has written a book that has not yet been published, “Butterfly Tears: A Journey from Darkness Into Life” and keeps a blog, You ‘N Me and a Cuppa Tea.
]]>3adminhttp://www.InvisibleDisabilities.org<![CDATA[Social Security Disability Denial Rates]]>http://www.invisibledisabilities.org/?p=78642012-02-23T05:16:01Z2012-02-10T20:22:03ZThe following excerpts and statistics were provided by Allsup. For more information and to receive a FREE consultation visit Click Here.
There are four levels in the Social Security Administration’s (SSA) review and award system for disability. There is an additional level that takes you out of the SSA system to Federal Court, although only a small percentage of applicants will pass through all five levels.
Level One – Application. About 65 percent of initial applications are denied.
Complete the initial Social Security disability application and in most instances, a detailed Activities of Daily Living Questionnaire. There is an extensive amount of paperwork to complete at this initial level. According to the SSA, it is necessary for a doctor to verify information in the application with pertinent medical information and confirm that the disabling condition will last 12 months or longer. Being vague about your work history and exaggerating the impact of your disability will contribute to your claim being denied.
The Disability Determination Services (DDS) in your home state makes the initial disability determination. They secure medical evidence and arrange for one or more consultative exams if there is not enough evidence to make a decision. DDS employees gather and evaluate all the information to arrive at a disability determination. The wait period at level One may take as little as three months, but the average is four to six months. Only about 35 percent of initial applications are approved.
There are more than 100 rare diseases and cancers that may qualify someone for a quicker SSDI decision through the Social Security Administration’s Compassionate Allowances program.
Level Two – Reconsideration. 87 percent of first appeals are denied.
Level Three – Hearing. Approx 62 percent of second appeals are awarded to applicant.
Level Four -Appeals Court. Only 2 percent of third appeals result in a favorable decision for the applicant.
Level Five – Federal Court. Approximately 70 percent of these are denied with a small amount receiving a decision in FDC that resulted in an award. The remainder of those are remanded (sent back) to the hearing level for an additional hearing.
Allsup is a nationwide provider of Social Security disability, Medicare and Medicare Secondary Payer compliance services for individuals, employers and insurance carriers. Founded in 1984, Allsup employs nearly 800 professionals who deliver specialized services supporting people with disabilities and seniors so they may lead lives that are as financially secure and as healthy as possible. The company is based in Belleville, Ill., near St. Louis.
For more information and to receive a FREE consultation visit Allsup.com.
ARTICLE RESOURCE
Allsup, Inc. About SSDI. SSDI Process. Updated 9/8/2011
Free consultation with Allsup for those who are not receiving benefits and do not have representation.
]]>3adminhttp://www.InvisibleDisabilities.org<![CDATA[IDA Ambassador, Juliet Madsen, Featured on 9NEWS in Denver]]>http://www.invisibledisabilities.org/?p=87002012-02-10T22:10:24Z2012-02-10T19:47:48Z
2011 IDA Awards Sokophoto.com
Juliet Madsen is a retired United States Army veteran of two wars. She is a wife, mother and survivor of stroke and traumatic brain injury. As therapy, Juliet started making quilts and founded Stroke of Luck Quilting.
Juliet doesn’t just use the ordinary fabrics and designs you might normally see, but uses actual materials from such things as uniforms, tents and hats.
Her quilts have been displayed in some incredible places such as the White House, the Library of Congress, the Pentagon, various governor offices, state capitols, airports, galleries, and in public and private collections around the world.
Juliet is a recipient of the 2011 Volunteer Honorable Mention Award. Later, she became an IDA Ambassador, as she continues to spread awareness about invisible wounds of war and living with invisible disabilities and challenges. Read more here.
2011 IDA Award Photo courtesy of Steve Sokolic of SokoPhoto.com
2011 Invisible No More quilt by Juliet Madsen. Photo with IDA Founder and President, Wayne Connell.
]]>1adminhttp://www.InvisibleDisabilities.org<![CDATA[Invisible No More: Sarah Friedner]]>http://www.invisibledisabilities.org/?p=86862012-02-08T20:58:29Z2012-02-07T04:20:47ZThrough the project, Invisible No More! the Invisible Disabilities Association is bringing awareness, compassion and belief to millions living with debilitating conditions, shining a light on the “invisible” and making these valuable, incredible people Invisible No More!
This video features the story of Sarah Friedner, who lives with POTS, NCS, Endometriosis and Mastocytosis. Sarah is a mom of two young children and she reaches out to others living with POTS and chronic illness through her YouTube Channel, A Mom’s Journey with POTS.
]]>1Angela Piercehttp://www.fallingoffthemountain.com<![CDATA[Facing the Mountain of Insecurity]]>http://www.invisibledisabilities.org/?p=79102012-02-04T08:14:04Z2012-02-04T08:14:04ZI have been involved with the Invisible Disabilities Association for a few months and have found it to be very helpful in many ways. I’ve met several people who share some of the same struggles I do. I have also really enjoyed telling my story through the blog and hope it has inspired others.
A while back I was asked to consider telling my story on video. My first reaction was “Oh my gosh, I can’t do this.” The reason I struggled with doing a video was because I had been having a difficult few months physically to the point where I was not able to get my hair done for six months. What I realized is that my real struggle is that I don’t want anyone to see my real sickness. I thought that having my hair done would somehow cover up my invisible disabilities and would make me feel more secure.
I realized that it is very important for me to look as “normal” or “healthy” as I can before others see me (outside of my doctors, who see me at my worst – LOL!). I find myself fighting in many ways to look and feel healthy, but I know that I’m not. Therefore, anything I can do to change my outside appearance becomes more important. While this may sound vain, to people like me who can’t hide their disability when they are not feeling well, a good appearance has much more meaning than I’d like to admit. It is a form of security that helps me feel better about myself.
To conclude, what I’ve learned (the hard way) is that living with an invisible disability means that some days I’m going to look and feel like crap. Period. However, that is OK. Some days my struggle is going to be so hard that I could not hide it or make it look better no matter how hard I try. I found that I’m better off putting that energy into something that I can do to try and best manage the pain for that day and not worry about how I look because I know that it won’t make any difference.
]]>2adminhttp://www.InvisibleDisabilities.org<![CDATA[Why Is the King of Romance Boycotting Valentine’s Day 2012?]]>http://www.invisibledisabilities.org/?p=87222012-02-13T22:18:49Z2012-02-01T20:46:26ZWhy is Greg Godek, Author of the Bestselling book, 1001 Ways to Be Romantic Boycotting Valentine’s Day 2012? And what could this possibly have to do with the Invisible Disabilities Association?
You may remember Greg when he was on Oprah, Phil Donahue and talked about on Jay Leno! He has been busy with many new books and projects, including speaking for groups and businesses!
This year, he is Boycotting Valentines Day! Why you ask? Well, check out some of his Tweets! Keep reading and you will see what this has to do with IDA!
Greg with Wife, Karyn
The author of “1001 Ways to be Romantic” supports “Boycott Valentine’s Day 2012” to help put the focus on spreading your love wider!
Love & romance shouldn’t be focused on Valentine’s Day. They’re about EVERY day of the year. Don’t limit your love to ONE day!
A great way to celebrate “Boycott Valentine’s Day 2012”: Spend half of your budget on your lover, and donate half to a charity.
“Boycott V-Day 2012” gives you a way to spread your love by donating to a deserving charity: Invisible Disabilities Association!
Invisible Disabilities helps people with non-visible conditions: Chemical sensitivities, chronic pain, cancer, etc.
Instead of 12 roses for V-Day, give just ONE (with a great note attached) & donate the rest of your budget to the Invisible Disabilities Association!
I’ll bet you know someone who lives with an invisible disability. Help them by donating half your V-Day budget.
Okay, okay. You want ROMANCE? Hop on over to 1001WaysToBeRomantic.com; there’s more tips than you could accomplish in 3 years
Let’s get back to saving the world. Do something special for your lover, then see Invisible Disabilities & donate!
Happy Mother’s Day to all the moms out there. It is a very special day for everyone who has children and families. For those of us who do not have children, especially those who do not have children due to the fact that they have a disability, it can be a bittersweet day. I am grateful for my mom and happy for my friends and sisters who are moms. However, there is still a part of me that feels a void since I am not a mom and will not ever have my own child. It is not only on Mother’s Day that this difficulty exists, but on any day when someone who sees my wedding ring and asks me, “do you have children?” and I look at them and say “no.”
