Invisible Disabilities® Association

Pete Ohlin Inspiration Award

2026-06-07T12:46:58Z

PETE OHLIN

2024 “But You LOOK Good” Inspiration Award Recipient

Introduction

Anna Devere (Host): The next award goes to Pete Ohlin, who’s been selected to be the 2024 recipient of IDA’s But You Look Good Inspiration Award. Pete’s been chosen based upon his vulnerability and willingness to publicly share his inspiring story of living with the trauma and anxiety from the childhood loss of his sister to meningitis, which almost killed him in college as well.

Pete has used his passion and love for people, which helped him create incredible music that brings healing and peace for people living with PTSD, depression, ADD, ADHD, anxiety, and more. Let’s roll Pete’s video.

Pete Ohlin’s Acceptance Speech

Hi, my name is Pete Ohlin, and I want to say thank you to Invisible Disabilities, Wayne and Jess for this award. And I’m getting this award for the piano music that I’ve created that has helped people with all sorts of different things from anxiety to depression.

The Origins of the Music

And originally I started playing piano for my own peace. Then quickly it became, for other people in 2 Corinthians, it says that God comforts us so that we can comfort those who are in trouble. He comforts us in our trouble, so then we can help those in trouble.

I started playing piano in college for my own peace. And what I would do, I was at Colorado State University and I would walk to the piano rooms in the dead of night for my own peace, and I would play, and the piano rooms are really small, and so the strings of the pianos would reverberate off the walls and it really calmed me.

Impact and Collaborations

And that’s where I started. And then years later, I met, I had a friend who had struggled with PTSD. He was a Navy Seal, and he came to my house and didn’t know that I played all that much. And I started playing and he fell immediately at peace.

And so six months after that, he had a friend who was a lead singer of Little Texas back many years ago, and he recorded my first album called “Majestic Rain.” And we both agreed it was neat. We both agreed that a title track in the name of the album be called “Majestic Rain” is, which is God’s tears for his sons and daughters. And that’s how I got started in the recording. And I’ve recorded a lot ever since.

And then years after that album was out, I met another guy. He was an evangelist and a bestselling author in the Netherlands. And he came to a men’s retreat that I was playing for, and his wife had just passed and he decided that he was going to just sit there and listen and the depression just lifted off of him after months and months. And so he and I ended up going to the Netherlands and doing healing services all over the Netherlands. And that was another neat experience that I’ve had.

Advocacy and Family Challenges

But I wanna thank once again Wayne and Jess and Invisible Disabilities for what they’re doing. They’re doing practical things for people with all sorts of invisible disabilities in the state of Colorado. You can get the Invisible Disability logo on your driver’s license and they’re working on many other really practical ways of helping people. And I love that.

And in my own family, we’ve had autoimmune disorders, we’ve had anxiety, depression, we had a heart transplant in my son-in-law this year, severe asthma, COPD. There’s a lot of people that are struggling with things out there, so I thank Invisible Disabilities for what they’re doing. Thank you.

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Matt Iseman Inspiration Award

2026-06-07T12:48:15Z

MATT ISEMAN

2014 “But You LOOK Good” Inspiration Award Recipient

Introduction

Ed Green (Host): Matt Iseman is a man of many talents. He followed in his father’s footsteps through medical school, but then he decided actually being a comedian would be more fun. In addition to his comedy, he’s a recognized TV host with such shows as the American Ninja Warriors and Clean House. He acts in his spare time and is now adding producer to his resume for his first show called Saved By Design for the Style Network.

Dr. Matt Iseman has been selected to be the 2014 recipient of the Invisible Disabilities Association’s “But You Look Good” Inspirational Honors Award. Matt’s been chosen because, as someone who lives daily with rheumatoid arthritis, he inspires others in the midst of their challenges and triumphs. Matt combines his experience as a physician and his humor as a comedian to bring insight and laughter to others on their journeys of illness and pain.

Ladies and gentlemen, Matt Iseman.

Matt Iseman’s Acceptance Speech

Matt Iseman: Thanks. I got to say, what an honor to get this award from Ed Green, ladies and gentlemen. I grew up here in Denver, and I’m not going to lie—I imagined in my life winning a lot of awards. I never thought it would be one for living with rheumatoid arthritis.

But I will tell you, when I was diagnosed with RA, the last thing I thought is that I would ever win an award for looking good doing it. I know it’s hard to believe because I don’t think I look… I actually call this the “But You Look Damn Fine” Award, is what I call it.

But it was 12 years ago that I received the diagnosis of rheumatoid arthritis. I will tell you, when the doctor told me that diagnosis, my first thought was, “Thank God.” I know that that may not make sense to a lot of people in here, but I will tell you, it wasn’t that I was grateful to be told I had a chronic autoimmune disease for which there is no cure. I was relieved to know what was causing my body to fall apart.

Because in the year and a half leading up to that diagnosis, my body fell apart. It started with pain on my right index finger. I was 30 years old, living in Venice Beach in the best shape of my life, working at a Gold’s Gym where Arnold Schwarzenegger, Jean-Claude Van Damme, and The Rock work out. Weights were magical at that place, but yeah, acting classes stunk.

I had pain in this index finger, and over the next 18 months, it spread to other joints in my hands, in my feet, in my back, and neck. The pain and stiffness got so bad, there were days I had trouble getting out of bed. Fatigue started setting in. There were days I was sleeping 12 to 14 hours a day, which sounds awesome, but I always felt tired.

I went from being a lifelong athlete—I played baseball in college—to being unable to work out at all. Over 18 months, I gained 55 pounds. I fell apart. I got into the worst shape of my life. It was to the point where I was sleeping with a whiplash collar on my neck and I was shuffling around walking. I became an old man.

So when I was told I had rheumatoid arthritis and I started treatment, it was a godsend because I knew what I was facing. Once I started treatment, it was like I was given my life back.

That’s why, being up here, I feel like I really am just taking credit for other people’s work, and that’s my doctors: Dr. Richard Meehan of National Jewish and Dr. Lilian Szydlo of Cedars-Sinai LA. They’re the ones who diagnosed me, who started me on my treatment regimen. They’re the ones who really allowed me to look damn fine.

But it is one of the things… yeah, you can clap for me or for them. I’m going to assume it’s me!

But it is one of the reasons that I’m so thrilled to be here with the Invisible Disabilities Association. I’m very high-profile and open about my rheumatoid arthritis, and one of the reasons was when I was diagnosed, I didn’t know anyone with RA. It’s a disease primarily of women and older women. I didn’t know anyone who was out there.

For a lot of people who are newly diagnosed with many ailments, you always see the people who are struggling the most, and you don’t see the people—like many people in this room—who are getting through their lives daily, looking good doing it. That’s why I think it’s so important to be here, to raise awareness, and to let people know you’re not alone.

I say this about RA, but I’m sure we could say this about mostly any disease that we’re talking about tonight: you might have rheumatoid arthritis, but it doesn’t have you. That’s why it’s so important to live your life and look damn good doing it.

So I want to say thank you for this award. I’m going to go back to hosting American Ninja Warrior and looking damn good doing it.

Thank you.

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Persevering with Dementia – Sandy Halperin DDS

2026-04-08T23:40:18Z

Sandy Halperin DDS – Persevering with Dementia – A Journey from the Clinic to National Advocacy

In a moving episode of the InVisible InCourage Show, Wayne Connell, founder of the Invisible Disabilities Association (IDA), sat down with Sandy Halperin to discuss a life transformed by a series of profound, yet invisible, health challenges. Sandy’s story is a powerful testament to the resilience required when living with conditions the world cannot see.

From the Clinic to the Patient Chair

Sandy Halperin’s career began with a deep-seated inspiration for healing, influenced by his father’s work as a neighborhood pharmacy owner. He eventually pursued dentistry, specializing in prosthodontics, and went on to teach at the University of Texas and Harvard University.

However, his clinical career was impacted by the very tools of his trade. Sandy developed life-threatening breathing issues caused by dental aerosols—the particulate matter and bacteria released during drilling—which eventually forced him to leave clinical practice.

The Fog of Dementia

While working as a consultant for the Florida Department of Health, Sandy began noticing alarming cognitive gaps. He would review complex case files, only to have no memory of the details or names moments later when discussing them with attorneys. In 2010, this led to a diagnosis of early-stage dementia.

Sandy prefers the broader term “dementia” over specifically “Alzheimer’s,” noting that there are over 120 different types of the condition. For Sandy, dementia is just one part of a complex “comorbid” reality. He has been on a feeding tube for nearly seven years due to a surgery that damaged muscles and nerves in his neck, undergoes daily oral chemotherapy for a blood disorder, and manages significant lung and bronchial issues.

“But You LOOK Good”: The Invisible Struggle

One of the most frustrating aspects of Sandy’s journey is the disconnect between his outward appearance and his internal reality. He often hears the phrase, “But you look good,” from well-meaning acquaintances who are unaware that his chest feels “raw” or that he is struggling to breathe.

“It was like crashing in my brain. ‘But you look good, you know, Sandy, you haven’t looked so good. You look great.'”

Sandy found deep validation in the IDA’s cornerstone book, But You LOOK Good. He described the book and the association as a “counselor” or “therapist,” providing the emotional support and validation he needed to realize he was not alone in his struggle.

Advocacy and the CNN Connection

Sandy’s diagnosis didn’t mark the end of his productivity; instead, it sparked a new mission to share his story on a global scale. Driven by a desire to show that a diagnosis is not an immediate “death sentence,” Sandy spent months reaching out to major media outlets. His persistence eventually paid off through LinkedIn, where he successfully caught the attention of Dr. Sanjay Gupta’s senior producing team at CNN.

What began as a single outreach effort turned into a years-long collaboration. CNN featured Sandy in multiple segments, including a powerful documentary piece that followed him and his wife, Gail, as they navigated the daily realities of dementia. Sandy recalls the surreal moment when Dr. Gupta’s top producer called their home, a connection that allowed Sandy to demonstrate to millions that individuals with cognitive decline can still lead active, meaningful, and productive lives. By opening his home to the cameras, Sandy provided a rare, intimate look at the “new normal,” helping to strip away the stigma and fear often associated with the condition.

The Invisible No More Perseverance Award

In recognition of his unwavering commitment to the community, Sandy was honored with the Invisible No More Perseverance Award at the 2025 Evening with Invisible Disabilities and Awards. This prestigious honor is reserved for individuals who have faced overwhelming obstacles with extraordinary courage and have used their personal journey to light the way for others.

For Sandy, this award was more than just a personal milestone; it was a platform to further the mission of the IDA. Now serving as an IDA Ambassador, he speaks about “holding the baton” for the millions of others living with invisible conditions. He is passionate about bringing the association more visibility on the national stage, advocating for a future where invisible disabilities receive the same level of funding, research, and public empathy as more visible physical challenges.

Finding Courage in Connection

When asked what gives him the courage to face each day, Sandy’s answer is immediate: his family. Married to his wife Gail for 53 years, Sandy draws strength from his two daughters and five grandchildren.

His final message to his fellow ambassadors and the public is one of unity: he wants to spark a movement where individuals stop working in “silos” and start communicating together to bring invisible disabilities to the forefront of national awareness.

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Patrick Williams Purpose-Driven Leadership Transforming Passion into Healthy Spaces

2026-02-22T22:43:55Z

Patrick Williams – Purpose Driven Leadership Transforming Passion into Healthy Spaces

In a recent episode of the InVisible InCourage Show, host Wayne Connell, founder and CEO of the Invisible Disabilities Association (IDA), sat down with Patrick Williams, the President and CEO of the PRK Williams Companies. Their conversation centered on a powerful theme: how purpose-driven leadership, born from deep personal passion, can reshape industries and improve lives for those with invisible disabilities. Patrick’s journey is a masterclass in aligning one’s career with a mission that transcends profit, focusing instead on the holistic wellness of the community.

A Legacy of Empathy

Patrick’s passion was ignited long before he entered the business world. Growing up with a mother who lived with an invisible disability and worked as a special education professional, he was immersed in an environment of service from childhood. He recalls attending summer camps where the collective energy of people helping one another created an atmosphere of progress and positivity. This early exposure left him with a permanent “training background” in empathy, teaching him that when you see someone facing a challenge, the only right response is to step in and help. It was this ingrained value system that eventually pushed him to transition from a successful corporate career to a life defined by social impact.

The Tipping Point

The “tipping point” for Patrick occurred when his professional success began to conflict with his personal values and family life. As his corporate role expanded internationally, he found himself unable to participate in the community service projects he loved, like Habitat for Humanity and United Way. Furthermore, his children’s simple request for him to be present at their games acted as a catalyst for change. Patrick realized that to be the leader he wanted to be, he needed to create an entity that allowed his life and work to flow from a single, unified purpose. He firmly believes that when you lead with purpose, you wake up energized every morning, and your ability to take a vision to a higher level becomes much more effective.

Engineering a Family Mission

This passion-led approach transformed To The Rescue from a simple care provider into a comprehensive life-service model. When Patrick initially founded the organization, he didn’t do it alone; he brought in his siblings, engaging them in the mission to create a family-driven force for good. Patrick’s engineering background and his commitment to the disability community led him to realize that care is only effective if the environment supports it. This realization birthed the concept of “Healthy Spaces”—homes designed with proprietary air and water purification technology to protect those with invisible disabilities from environmental triggers. By addressing the root causes of health aggravation—such as mold, VOCs, and viruses—Patrick is leading a charge to “deinstitutionalize” individuals with high medical needs, allowing them to live integrated, normal lives within their communities.

Strength Through Partnership

The partnership between Patrick’s companies and the Invisible Disabilities Association is a testament to the power of collaborating with other purpose-driven leaders. Patrick describes IDA as a highly credible, high-energy organization that shares his dedication to making the world a better place. For Wayne Connell and the IDA, this partnership reinforces their 30-year mission of believing and validating the experiences of those with invisible disabilities. By joining forces, they leverage their collective passion to reach a larger scale than either could achieve alone, proving that leadership is most powerful when it is rooted in the common good.

The “Rocking Chair” Vision

Ultimately, Patrick’s leadership is guided by what he calls his “rocking chair” vision. He measures his success by a simple internal compass: when he is 90 years old, will he be able to say he contributed to the health and wellness of the world? This long-term, legacy-focused mindset gives him the “InCourage” to push through daily challenges. For Patrick, purpose-driven leadership isn’t about the title—it’s about the energy derived from seeing an individual move forward in a space that was built with their needs and dignity in mind.

A 360-Degree Ecosystem of Support

Through his diverse portfolio of organizations, Patrick ensures a 360-degree approach to wellness and support. This ecosystem includes To The Rescue, which provides essential life services, home care, and transportation; the PRK Williams Building Group, focused on construction with a conscience; Healthy Spaces, which implements life-changing air and water purification technologies; and Healthy Living Today, a platform dedicated to educating and inspiring others to take charge of their environments. Together, these entities work toward a single goal: creating a world where every individual has the opportunity to thrive in a healthy, accessible, and supportive home.

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I Am Invisible No More

2026-02-08T17:15:30Z

I Am Invisible No More: Together We are Changing the Way the World Sees Disabilities

In 1996, the Invisible Disabilities^® Association (IDA) began with a mission to validate the millions living in the shadows of “looking good” while feeling anything but. Today, we have reached a monumental milestone: IDA’s 30th Anniversary. For more than three decades, we have been the voice for the unheard and the face for the unseen. Now, as we navigate 2026, we move forward under a banner that is both a declaration of dignity and a promise for the future: “I Am Invisible No More“

A Cry of the Heart

“I Am Invisible No More” is a cry of the heart. It is a response to the quiet trauma of being disregarded, disbelieved, or shamed simply because a struggle isn’t visible to the naked eye. It is a refusal to be blamed for limitations or abandoned by a society that often lacks the patience for what it cannot see.

To anchor our 30th year, we are launching in 2026 the 25th Anniversary Edition of our landmark book, But You LOOK Good! This book has been the essential bridge between the hurting and the helping for more than a quarter-century. This new edition is a vital tool in our ongoing fight to ensure that belief is the default response to a person’s pain—not the exception.

One Human Race, One Shared Dignity

The core of “Invisible No More” is the fundamental truth that we are all part of the same human race. Disability and illness are not departures from the human experience; they are a part of life. Every person deserves to be understood and integrated into the fabric of society. We are advocating for a world where everyone is treated with equal respect, regardless of the challenges they carry internally. To be “Invisible No More” is to claim your seat at the table of humanity and stay there.

The Faces of Visibility

We are changing the narrative through the powerful voices of IDA Ambassadors who have decided that living with an invisible disability is no reason to be sidelined. Dr. Eric Fishon and Isabella Sementilli embody this reclamation of presence; Eric is “Invisible No More” because he transformed a private struggle with autoimmune conditions, narcolepsy, and chronic fatigue into a mission to ensure no one has to “prove” their disability through a crisis, while Isabella turned the isolation of a traumatic brain injury into a platform for advocacy, proving that hidden cognitive challenges do not diminish a person’s brilliance or right to be heard. Similarly, Sandy Halperin and Matthania Volmy have chosen radical transparency as their path to visibility; Sandy courageously documented his journey with early-onset Alzheimer’s to ensure the human person remains seen even when the disease is not, and Matthania shares her story to break the cycle of isolation, reminding us that we are only truly understood when we refuse to remain hidden.

Our recent award influencers further demonstrate that being seen is a catalyst for cultural change. Nicole Pedra stepped into the light after twenty years of silence about her MS, showing that being “Invisible No More” means reclaiming your identity and thriving in your career without shame. Alongside her, Connor DeWolfe is shifting how the world sees neurodiversity by using his massive platform to make ADHD and “neuro invisible” conditions relatable, celebrated, and impossible to ignore. These individuals are “Invisible No More” because they recognize that by sharing their truth, they create a world where disability and illness are met with belief rather than blame. Together, they prove that while our conditions may be invisible, our impact, our value, and our presence in the human race are not.

30 Years of IDA Impact

Since our founder, Wayne Connell, first began this work 30 years ago, IDA has remained anchored in our core pillars: Encouraging, Educating, Connecting, Listening, Believing, and Supporting. But the most important part of our story is YOU. When you share your journey and refuse to be sidelined, you help us rewrite the rules of perception. After 30 years of advocacy, our message remains clearer than ever: Your struggle is real, your life is valuable, and you belong.

Join the 2026 Celebration

The Launch: Be part of the 2026 launch of the 25th Anniversary Edition of But You LOOK Good!—honoring a resource that has helped bridge the gap for more than a quarter-century.
Join the Campaign: Share your journey on social media using #IAmInvisibleNoMore.
Stay Connected: Visit InvisibleDisabilities.org and follow our podcasts at IDA.FM and on YouTube at IDA.TV as we celebrate 30 years of the Invisible Disabilities Association.

I Am Invisible No More^®

Together, we are changing the way the world sees disabilities.

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Why Care Agencies Overlook Invisible Disabilities and How to Lead the Change

2026-02-08T16:44:48Z

Why Care Agencies Overlook Invisible Disabilities and How to Lead the Change

In a world that often relies on the mantra of “seeing is believing,” millions of people living with chronic pain, illness, and invisible disabilities are frequently left behind. Wayne Connell, the Founder and CEO of the Invisible Disabilities Association, recently joined the CareSmartz360 On Air podcast to discuss why home care agencies and society at large often miss the mark. He suggests that we need to transform our approach to care by moving away from clinical checklists and toward a deeper, more human understanding of the “unseen” challenges our clients face every day.

The biggest hurdle for those with invisible disabilities is the lack of a visible marker, such as a wheelchair or a cane. Wayne points out a startling reality: roughly 80% of people living with a disability don’t use any kind of assistive device on a regular basis. Because we don’t see a physical sign with our eyes, we often miss the struggle entirely. This leads to a dangerous “unbelievability” factor, where caregivers or even family members might doubt a person’s symptoms simply because they “look good” on the outside.

Understanding the distinction between having a disability and being “disabled” is also key to reducing stigma. A disability is simply a condition that may require an accommodation, yet many people with disabilities achieve incredible feats, like running triathlons. Being “disabled,” in a technical sense, means being unable to perform major life activities. When agencies treat a disability as just one part of a person’s identity—much like their hair color or where they grew up—it creates a safe space for clients to be honest about their needs without feeling “lesser” or judged.

To truly lead the change, Wayne introduces a heart-centered framework for the coming years: Listen, Believe, and Support. Leading with a listening ear means going beyond the intake forms to hear a person’s actual story. This flows naturally into believing them, even when their symptoms seem confusing or illogical to an outsider. Whether it is a severe sensitivity to a perfume or an exhausting four-hour morning routine, the client is the only true expert on their own experience. As Wayne puts it, in the world of invisible illness, listening must become the new believing.

Finally, providing support should be a collaborative process driven by choice rather than assumptions. Instead of following a rigid manual for a specific diagnosis, caregivers can lead the way by offering simple, thoughtful options. This might mean asking if a client prefers to be dropped off at the door to save their energy, or if they’d like to take the stairs to avoid a crowded elevator. By focusing on the person’s unique story rather than a clinical code, agencies can provide care that doesn’t just manage a condition, but truly values the individual.

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Embracing Your Voice – Stuttering as an Invisible Disability

2026-02-07T23:51:42Z

Embracing Your Voice: Stuttering as an Invisible Disability and the Path to Becoming a Limitless Leader

In a recent episode of the InVisible InCourage SHOW podcast, host and IDA Executive Director, Jess Stainbrook welcomed a remarkable guest whose life story reframes how we view communication and leadership. Dr. Saundra Russell-Smith, author of Limitless Leader: Leading Beyond Your Disability, shared her journey living with a stutter—an invisible disability that often remains hidden until the moment one speaks. Her message is a powerful reminder that our value is not defined by how “perfectly” we show up in the world, but by the purpose we carry within us.

The Unseen Reality of Stuttering

For many, stuttering is misunderstood as a symptom of nervousness or a lack of intelligence. However, stuttering is a complex communication disorder characterized by repetitions, prolongations, and blocks. For Dr. Russell-Smith, the realization that she stuttered didn’t occur until second grade; she grew up in a household where “talking fast” was simply the norm, modeled by her grandmother. This highlights the “invisible” nature of the disability—it is an intrinsic part of a person’s identity that society often mislabels or encourages individuals to hide.

The neurophysiology of stuttering is equally complex. While it can be a source of significant anxiety—particularly in high-stakes environments like job interviews—it is also linked to unique cognitive strengths. Dr. Russell-Smith notes that people who stutter often develop high levels of intelligence and creativity because they are constantly navigating a “mental thesaurus,” substituting words on the fly to maintain flow.

Triumphs on the National Stage: Jesse Findling

The recent journey of Jesse Findling on American Idol serves as a modern testament to these themes. Much like Dr. Russell-Smith, Findling faced the daunting task of “auditioning” while managing a stutter. His story resonates with a fascinating neurological phenomenon: many individuals who struggle with speech in conversation find complete fluency through music. By stepping onto a national stage and allowing his talent to outshine his struggle, Findling demonstrated that a disability does not have to be a barrier to a “forward trajectory” of success.

Leadership and Radical Acceptance

Dr. Russell-Smith’s career is a masterclass in leading beyond perceived limitations. Despite stuttering through her entire educational and professional life, she earned four college degrees, including a doctorate in educational leadership. For a long time, she viewed these accolades as a way to “validate” her intelligence to a world that might judge her speech. However, her true “superpower” emerged when she stopped apologizing for her stutter and began naming it for what it is.

Through her work with the National Stuttering Association and her research on student engagement, she has proven that being a leader is about how you show up for others, not how fluently you speak. By owning her stutter, she gives others “permission to be perfectly imperfect”. As she concludes, quoting actress Tina Lifford: “When you know yourself, you are empowered. When you accept yourself, you are invincible”.

For those navigating their own invisible disabilities, Dr. Russell-Smith and organizations like the Invisible Disabilities Association offer a clear message: you are here for a purpose, and your voice—exactly as it is—is meant to be heard.

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30 Years of Making the Invisible No More: The IDA Story

2026-03-14T12:11:47Z

30 Years of Making the Invisible No More: The IDA Story

Today, January 1, 2026, marks a monumental milestone for the disability community. It has been exactly 30 years since a spark of empathy and a desperate need for validation evolved into the Invisible Disabilities^® Association (IDA). What began as a personal effort to help one family understand a loved one has transformed into a global movement that has changed millions of lives.

The story of IDA is rooted in a husband’s devotion and a wife’s courage. In the mid-90s, Sherri Connell was navigating the debilitating effects of Multiple Sclerosis and late-stage Lyme disease. Because she did not “look sick” to the outside observer, she faced constant skepticism. To bridge this gap, Sherri began writing pamphlets for her friends and family members to explain the reality of her daily life. She coined the term “invisible disability” to describe this battle, and then created the concept of “IDA”—The Invisible Disabilities Advocate^® in 1996.

Seeing the power of her words, Wayne Connell realized that Sherri’s voice shouldn’t just be for their inner circle; it was a message the entire world needed to hear. Driven by the desire to take Sherri’s words to the world, Wayne incorporated IDA as the Invisible Disabilities Association, a 501(c)(3) non-profit in 2004.

The organization was a digital pioneer long before the world was connected by modern social media. IDA launched their first website in 1997—a full year before Google went online—serving as a global lighthouse for those seeking answers in the early days of the web. To further the mission of empathy, Wayne and Sherri co-authored the seminal book, But You LOOK Good!, which has since seen over 35,000 copies in print worldwide, helping families everywhere understand the gap between appearance and reality.

To meet the diverse needs of the community, the organization developed IDEAS—Invisible Disabilities Education, Awareness, and Support. This initiative provides tailored resources and expert insights through specialized programs such as Brain IDEAS, which focuses on cognitive health, and Love IDEAS, which explores navigating relationships while living with illness. From the mental health benefits of Healthy Humor IDEAS to the practical wellness strategies of Healthy Living IDEAS, these programs ensure that support reaches every facet of an individual’s life, providing a holistic approach to living with an invisible disability.

Recognizing that storytelling is the most powerful tool for change, the association has expanded its reach through dedicated media platforms. IDA.FM (the Invisible Disabilities Network) offers a deep library of podcasts, while IDA.TV (Invisible Disabilities Television) provides high-quality video content that brings the invisible struggle into the spotlight. By utilizing these platforms, IDA ensures that authentic stories, expert advice, and educational content are accessible 24/7. This commitment to media is about more than just broadcasting; it is about controlling the narrative and ensuring the message of the community is never muted or ignored.

The reach of this message is further amplified by the IDA Ambassadors, a passionate group of advocates who represent the organization across the globe. This vital network began in 2015 and became a voice for advocacy through personal storytelling. Today, by sharing their own lived experiences, these ambassadors put a face and a voice to invisible disabilities, breaking down stigmas and ensuring that no one has to navigate their journey alone.

Since the first annual Evening with Invisible Disabilities^® in 2008, IDA has had the honor of presenting 159 awards to champions who help amplify the mission. These honors have recognized global influencers like John O’Leary and Bob Woodruff, and visionary business leaders like Dave Liniger and Brian J. Esposito, alongside household names such as Marlo Thomas, Wayne Brady, and Amy Van Dyken-Rouen. These voices ensure that the message of being “Invisible No More” reaches every corner of society.

Perhaps the organization’s most visual legacy is the IDA “i” Logo, which is becoming the internationally recognized symbol for invisible disabilities. The “i” symbol is intentionally inclusive, encompassing all disabilities while also bringing vital visibility to the invisible ones. This symbol has moved from the screen to the real world to provide tangible security for the community. Starting in Alaska in 2017, and expanding to Colorado and Utah, IDA successfully advocated for the symbol to be placed on state-issued Driver’s Licenses and IDs. This revolution continued with the launch of the National Disability ID Card and the recent Invisible Disabilities^® Medical ID Card; both cards boldly display the “i” symbol for easy disability recognition, providing peace of mind during emergencies and travel.

The last decade has seen a rapid acceleration of the organization’s reach. Invisible Disabilities^® Week, launched in 2014, now turns the world blue every October. In 2018, the association added significant strength to its leadership when Jess Stainbrook joined as Executive Director. An 8-time Emmy Award-winning movie producer with 32 nominations, Jess brought a fresh vision and media expertise that allowed IDA to tell its story through high-impact storytelling on a global scale. The community has also found new ways to connect physically through the Invisible Disabilities^® Walk & Roll events, which debuted in 2023. Beyond building solidarity, the Walk & Roll has become a major fundraiser, fueling the vital programs and advocacy efforts that support the community year-round.

As we stand here in 2026, the mission remains as clear as it was thirty years ago. IDA continues to move forward built upon six core pillars: Encouraging, Educating, Connecting, Listening, Believing, and Supporting. By educating the world about the invisible battle, IDA has spent 30 years ensuring that every person is seen, heard, and supported. And they all become Invisible No More^®!

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Navigating Social Security Benefits – A Guide for Individuals with Invisible Disabilities

2025-10-19T15:18:27Z

Navigating Social Security Benefits: A Guide for Individuals with Invisible Disabilities

The world of disability benefits can be complex, especially for individuals managing invisible disabilities. These are conditions that aren’t immediately apparent but significantly impact a person’s daily life and ability to work, such as chronic fatigue, fibromyalgia, lupus, multiple sclerosis, chronic pain, and long COVID.

Allsup, a national leader in disability benefits with over 40 years of experience, helps people navigate the processes for Social Security Disability Insurance (SSDI), the Social Security Administration’s Ticket to Work program, and VA Disability Appeals. Drawing on insights from Allsup experts, here is a guide to understanding and successfully managing your disability claim journey.

Social Security Disability Insurance (SSDI) and Invisible Disabilities

Applying for SSDI with an invisible disability presents unique challenges, primarily because the Social Security Administration (SSA) requires objective evidence of a severe, medically determinable impairment.

Unique Challenges in Applying for SSDI:

Lack of Visible Evidence: Unlike a back condition that shows up on an MRI, invisible disabilities like chronic headaches may not have objective evidence on standard medical imaging.
The Five-Step Process: The SSA uses a five-step sequential evaluation process, and step two—having a severe medically determinable impairment—can be difficult to satisfy without visible, objective evidence.

Keys to a Successful Claim (from Allsup Principal Advocate TJ Geist):

Establish a Longitudinal Record: See your doctor (an MD, DO, or nurse practitioner) on a regular basis. This creates a long-term record of your condition.
Keep Detailed Personal Logs: Document your symptoms and their severity (a headache log is a good example).
Focus on Function: SSDI approval is about your ability to function and how your disability affects your daily life and ability to work, not just the diagnosis itself. When describing daily activities, detail how your condition impacts them: “It used to take me five minutes to wash the dishes, now it takes me two hours because I have to take breaks”.
Gather Third-Party Statements: Statements from spouses or others living with you can provide crucial testimony on how your disability impacts your day-to-day living.
Talk to Your Doctor: Communicate openly with your doctor about your symptoms, your functional limitations, and your need to file for disability.

SSDI vs. SSI: A Quick Distinction

Both programs share the same medical criteria for determining disability:

SSDI (Social Security Disability Insurance): Funded by FICA taxes. You must be “insured,” typically by working five out of the last ten years.
SSI (Supplemental Security Income): A needs-based program with a means test, income, and resource limits. It’s for individuals with little to no work history or resources.

Returning to Work with the Ticket to Work Program

For SSDI recipients who wish to test their ability to work, the Ticket to Work program is a free, voluntary Social Security Administration initiative designed to help individuals return to work and eventually achieve financial independence.

Ticket to Work program Program Phases and Work Incentives (from Allsup Employment Services Director Diane Winiarski):

The program offers powerful work incentives and protections, including three key phases:

Trial Work Phase: Allows an individual to attempt to return to work for nine months, which do not have to be consecutive and can be spread out over a 60-month (five-year) period.
Extended Period of Eligibility (EPE): Provides Medicare benefits for 93 months. If earnings drop below substantial gainful activity, the benefit is reinstated (it is paused, not terminated).
Expedited Reinstatement (EXR): Allows a person who stopped working for the same or a related condition to have their benefits reinstated without filing a new disability claim.

Overcoming the Stigma:

Individuals with invisible disabilities often face stigma, reluctance to disclose, and fear of being viewed as less capable. Allsup Employment Services assists with self-advocacy skills, accommodations, and navigating disclosure with employers. Common accommodations include flexible scheduling, task reminders, a quiet workplace, or written instructions to support cognitive conditions. The goal is to frame accommodations around productivity, benefitting both the employee and the employer.

VA Appeals for Veterans with Invisible Disabilities

For veterans, disability compensation from the VA is about the relationship to service, meaning you do not have to have been medically discharged to be eligible.

Three Main Requirements (from Allsup’s Veterans Appeals Director Brett Buchanan):

A current disability today.
Evidence that something happened to them in service.
Evidence that the two are medically related.

Invisible Challenges in VA Appeals:

Invisible Service Events: Evidence that a disabling event occurred during active duty is often “invisible”—buried in non-standard documentation or misdiagnosed early on. Event-based disabilities, like mental health or those related to chemical exposure, may not be individually documented in medical or personnel files.
Rating Severity: Once service connection is established, the percentage rating is supposed to reflect the severity of the condition today. Invisible disabilities make capturing functional limitations difficult to measure, which impacts the rating.

Advice for Veterans:

Educate yourself about your disease or condition. As the expert on your own experience, you can help connect the dots between early symptoms documented in service records (even if misdiagnosed at the time) and your current condition.

The Courage to File

The process of seeking disability benefits can be frustrating and lengthy, often taking three to five years for an SSDI approval. It takes courage to navigate this path, and Allsup is committed to helping those with invisible disabilities get the benefits they deserve and move forward with confidence.

Need Help?

SSDI & Invisible Disabilities: ssdi.myida.org
Ticket to Work: Allsupemploymentservices.com
VA Appeals: Allsupveteransappeals.com

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How to Make Humor a Habit from Experts on Healthy Humor IDEAS!

2025-10-04T16:37:46Z

How to Make Humor a Habit from Experts on Healthy Humor IDEAS!

The Invisible Disabilities^® Association recently hosted its debut Healthy Humor IDEAS show, and it’s a must-read for anyone who feels overwhelmed by life. IDEAS stands for Invisible Disabilities^® Education Awareness and Support, and the panel brought together four incredible experts from the Association for Applied and Therapeutic Humor (AATH). Their collective wisdom is powerful: You don’t need to be naturally funny; you just need a strategy to use laughter as a powerful, intentional tool for resilience and well-being.

Forget waiting for a chance to laugh; here is the life-changing wisdom shared by these pioneers, starting with the core concepts and an actionable, 4-step plan for your own life.

Choosing Your Laugh

Humor is often seen as accidental, but the experts agree it should be a conscious strategy. They define the mission clearly: we want Healthy Humor, which is any witty moment or joke that results in a positive benefit for your mind, body, or spirit. This humor connects and includes, unlike Unhealthy Humor, which is used as a weapon to put people down.

The true goal is Humor by Choice. When you intentionally and consistently choose humor, you amplify the benefits in your life, turning a chance laugh into a reliable coping skill. This means being proactive about seeking joy, not passive about waiting for it to happen.

Create Humor Habits

You don’t have to be the funniest person in the room—you just have to be the smartest about using the humor that’s already there. The panelists offered four practical steps to seamlessly integrate healthy humor into your daily routine:

First, you need to Look for Humor (Be a Humor Appreciator). Stop stressing about being clever. Your primary job is to simply look for the funny that’s already happening around you. Your brain will actually start to rewire itself (thanks to Hebb’s law) to spot the humorous details more often if you consistently seek them out. The goal is to see funny, not be funny.

Second, create a record by choosing to Keep a Humor Journal. Write down those silly moments, funny comments, or perfect jokes that land well. This “humor log” ensures those great bits of levity aren’t lost. This collected humor not only gives you material to cheer yourself up later but also provides a powerful, positive record of your life.

Third, use the physiological benefits and Use Humor for Tension Release. Here’s the key science: You cannot be anxious and laugh at the same time. Use humor before going into a stressful situation to lower your blood pressure. A quick joke or a moment of shared absurdity can literally alter a serious moment, allowing you to deal with the challenge with a calmer mind.

Finally, the experts advise you to Train People to Get Rid of “Energy Suckers”. You must strongly advise surrounding yourself with positive people and actively distancing yourself from those who drain your mood. Finding the humorous underside to any frustrating situation is essential self-care, because choosing lightness over constant negativity is choosing health.

The Purveyors of Healthy Humor

The credibility and power behind this advice comes from the four incredible women who pioneered these concepts in their fields:

Karyn Buxman, the original neurohumorist, built her career on the science of laughter, proving through her Master’s thesis that humor is a vital neurological tool. Sue Stevenson, an executive coach and founder of Lifted Fog, applies these principles to help individuals “push through” chronic stress and illness, sharing how she connected with her mother in the later stages of Alzheimer’s through shared laughter when words failed.

Roberta Gold, the current AATH President and founder of “Laughter For The Health Of It,” learned firsthand that humor is the great equalizer when coping with her father’s hereditary disease, using shared laughter to ease the burden of illness. Finally, Joyce Saltman, a seasoned special education teacher, innovated by using humor to break down classroom barriers, making learning accessible and comfortable for decades of students.

Their combined message is clear: humor is not frivolous; it is a profound strategy for building resilience, strengthening relationships, and living a healthier, more joyful life. By following their Healthy Humor IDEAS, you gain an active, daily tool for a better quality of life.

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Time is Our Most Precious Commodity – Brian J Esposito

2025-09-16T03:55:12Z

Time is Our Most Precious Commodity: Brian J Esposito

Brian Esposito, CEO of Esposito Intellectual Enterprises, is a prominent figure in the worlds of entrepreneurship and technology. His journey, however, is not just one of business success, but also a deeply personal one shaped by his upbringing, health challenges, and a steadfast commitment to helping others. Brian’s story is a testament to the idea that time is our most precious commodity and that genuine human connection and empathy are the keys to a meaningful life.

An Entrepreneurial Spirit from the Start

Growing up in the Asbury Park area of New Jersey, Brian was raised in an entrepreneurial household. His father, who owned a nail care manufacturing company, instilled a strong work ethic in him from a young age. Brian recalls going to work with his dad as early as eight years old, helping to pack nail treatment bottles and understanding the concepts of business, commerce, and supply and demand. This early exposure to the business world set him on an entrepreneurial journey, leading him to start his own small ventures, like mowing lawns and shoveling driveways, to earn money. His older siblings, who were 10 to 13 years older, were often amazed at how he always had money.

This natural inclination toward business is a common thread among entrepreneurs. Brian’s motto, “time is our most precious commodity,“ has been the foundation of his private holding company since the late 1990s and early 2000s. He developed this philosophy at a young age after losing his grandfather, which made him keenly aware of the fleeting nature of life.

A Collision with Invisible Disabilities

Brian’s personal connection to invisible disabilities began when he first met the founder and CEO of the Invisible Disabilities Association, Wayne Connell, and they became fast friends. Brian was moved by the founder’s story, which was inspired by his wife’s debilitating illness, and felt a “call to action” to help others. This feeling was amplified by his own family’s struggles. His father had been diagnosed with PLS (Primary Lateral Sclerosis), a slower form of ALS, and Brian saw firsthand the anxiety and fear that come with a diagnosis for which there is no cure. His father’s journey, which included both good and bad days, deeply affected the family.

During this time, Brian researched conditions that mimic ALS, like Lyme disease, which he believes is a global epidemic. He learned that Lyme disease often gets misdiagnosed because there is no incentive for the healthcare system to treat it, and the bacteria can live in the body indefinitely, slowing down the neurological system. This experience opened his eyes to the challenges people face when dealing with illnesses that are not physically visible.

During COVID-19, Brian realized that many people were living with invisible disabilities due to the fear, anxiety, and stress brought on by economic instability, political unrest and of course, a global pandemic. He felt that organizations like the Invisible Disabilities Association were more necessary than ever to provide tools and resources to help people navigate these challenges.

A Business Model of Empathy

Brian’s business philosophy is not just about profit, but also about empathy and integrity. He believes in protecting one’s time by surrounding themselves with people who bring no “chaos, toxicity, noise, or negativity”. This applies to his business dealings as well, where he says no more than yes when he doesn’t align with a person’s ethics, integrity, morals, and values. He has a specific metric for how he uses his time, comparing the 86,400 seconds in a day to having $86,400 in the bank. If someone “robs” only 10 seconds from you, you shouldn’t spend the rest of your day worrying about them.

His commitment to integrity was tested in 2016 when a drunk driver hit him head-on. The accident financially devastated him, leaving him millions in debt. He learned that he was the “glue” that held his companies together, and without him, they collapsed. He chose not to file for bankruptcy and instead worked with his creditors to pay off his personal debts, a process that took seven to eight years. This experience, while difficult, made him grateful for the opportunity to rebuild his life and career on a stronger foundation. It taught him the importance of being a man of his word.

Innovating for a Better World

Brian is a self-proclaimed innovator, living by the motto “adapt or die”. He has over 115 companies in his private holdings, spanning more than 25 different industries. He attributes his success to understanding the need in the market and being able to evolve and adapt, a lesson he learned from the failures of once-great companies like Blockbuster, Kmart, and Enron. He has been heavily involved in tokenization, crypto, and blockchain for over 13 years, not as a speculator, but as someone who sees it as the future of financial transactions and community building. He took over a public company, Diamond Lake (DLMI), with a focus on integrating these new technologies into its business model.

For Brian, supporting the Invisible Disabilities Association is about more than just business. It’s about helping people who are dealing with the added burden of a physical or invisible disability. He is passionate about bridging the gap between those who have everything and are unhappy and those who have a disability but find joy in life. He believes that our brains are powerful and that with the right tools, resources, and support, people can not only get through their day but potentially heal themselves.

Brian’s journey is an inspiration, demonstrating that through perseverance, integrity, and a focus on helping others, one can overcome adversity and build a life of purpose and impact. Brian currently volunteers as IDA’s Director of Development.

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One Tough Cookie – The Story of Isabella Sementilli

2025-09-17T01:20:48Z

One Tough Cookie: The Story of Isabella Sementilli

Isabella Sementilli‘s life was changed in an instant in the fifth grade when a bully yanked her chair out from under her. The fall left her with a concussion, a fractured tailbone, and neck and back injuries. This incident marked the beginning of what she describes as a “never-ending nightmare”. It took over 30 doctors to finally diagnose her with New Daily Persistent Headache (NDPH) and Occipital Neuralgia (ON), which didn’t show up on any scans or X-rays.

The physical injuries and debilitating pain were only part of the challenge. Isabella had to contend with the invisible nature of her disabilities. People assumed she was fine because she looked fine, not understanding the constant pain, the sensitivity to light and noise, or the struggles she faced without a visible cast or crutch. This led to more bullying and a feeling of being misunderstood. She recalls people being more concerned about a kid with a cast or crutch, while her pain went unseen.

Rather than letting the bully “break her crown,” Isabella chose to turn her negative experience into a positive one. Inspired by her Italian immigrant grandfather, she started baking “ginettes,” small Italian cookies, and selling them. She named them “Iznettes^®,” and decided to donate the money to anti-bullying and brain injury awareness organizations. This endeavor is what led her to find the IDA.

Isabella also wrote and published a book titled The Short Story of One Tough Cookie. She hopes that by sharing her story, she can show others that from a negative experience, a positive can emerge, and prevent others from enduring similar pain. Her mission is to spread her message and help others overcome and rise above bullying.

With her business, Bella Cervella, which means “beautiful brain” in Italian, Isabella sells her book, along with Never Crumble!^® apparel and bracelets. She credits her family and her strong faith in God for getting her through her darkest days. She realized that God closed the door on her dream of being a Radio City Music Hall Rockette and opened a new one as an advocate for brain injury awareness and the anti-bullying community.

Isabella is honored to be an ambassador for IDA because it provides a platform to spread awareness about invisible disabilities. She feels it’s important for people to know that even if someone “looks fine,” they may be in pain inside. As a community, she believes invisible disabilities survivors need their voices to be heard.

Isabella’s mantra is “Never crumble”. She has learned to take each day as it comes, and by being her own “tough cookie,” she hopes to inspire others to be strong, stay positive, and never crumble, no matter what they are going through.

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Tommy Spaulding on It’s Not Just Who You Know

2025-09-23T13:51:37Z

Tommy Spaulding on It’s Not Just Who You Know

As a part of the Love IDEAS Summit hosted by IDA, author and speaker, Tommy Spaulding shares his insights on the importance of building authentic, genuine relationships. Tommy, a two-time New York Times bestselling author, believes that true success and happiness come not from grades, GPAs, or fancy degrees, but from how you love and serve people.

Tommy’s own journey is a testament to this philosophy. Growing up, he faced the invisible disability of dyslexia. He really struggled academically in high school and graduated towards the bottom of his class with a 2.0 GPA. He watched his friends go on to prestigious universities, but there wasn’t a school that wanted to accept him because of his disability, low GPA, and low SAT score. His guidance counselor even suggested he attend a trade school, believing college wasn’t for him. However, a month before graduation, he was introduced to Up with People, an international leadership and musical organization that changed his life. He joined the organization and spent nine years traveling to 84 countries, living with over a thousand host families. This experience taught him that what truly matters is how you love and serve people, not your academic achievements.

The 37 Rejection Letters and the Bartender

Despite his global travels and eventually becoming the CEO of Up with People at age 35, Tommy still harbored a childhood dream of going to law school. He was always ashamed of his invisible disabilities, including his dyslexia, learning disability, ADHD, and OCD, and never shared his story because he did not want people to think he wasn’t smart. After graduating from East Carolina University with a 2.0 GPA, having struggled with his invisible disabilities all the way through, he applied to the 37 “easiest” law schools in North America and was rejected by every single one. Feeling depressed, he took a trip to Bali, Indonesia, where a chance encounter on a dive boat introduced him to a woman from Atlanta who was involved with Rotary International. She told him about the Rotary International Ambassadorial Scholarship, a prestigious award that offered an automatic acceptance to any business school for the winner.

Tommy spent a week filling out the application, which required a 4.0 GPA. On the application, he put a 4.0 with an asterisk, explaining in small handwriting that his high school and college GPAs combined to a 4.0. A few weeks later, he was one of the 10 final candidates chosen from 800 applicants. During his interview, the Rotary committee expressed their disapproval of his “two plus two is four” humor regarding his GPA. But Tommy stood his ground, stating that he should be judged on his ability to love and serve people, not his grades. The final vote was a dead tie between Tommy and a Harvard graduate. The tie was broken when the committee chairman asked the bartender, who had been listening all day, who he thought should win. The bartender, whom Tommy had spent over three hours genuinely getting to know, chose him, making Tommy the deciding vote and the winner of the $50,000 scholarship.

The Five Floors of Relationships

Tommy’s experience with the bartender taught him a powerful lesson: relationships matter, and building genuine, authentic relationships matters even more. He emphasizes that people often “qualify who we want to be nice to” and spend their time building relationships with people who can help them or have influence. However, he learned that you never know who will bless you, and the bartender, a person most would overlook, was the one who changed the course of his life.

This is the core message of his book, where he outlines the “Five Floors of Relationships”. Every relationship, whether personal or professional, falls into one of these categories:

Floor 1: Transactional Relationships – These are the brief, polite exchanges we have with people like baristas or mail carriers, where “How are you?” is not a genuine question.
Floor 2: NSW Relationships – NSW stands for News, Sports, Weather. This is small talk, which can be useful when first meeting someone, but many people, including leaders, never move past this level with their employees or clients.
Floor 3: Vulnerability – This is where you begin to share your story and open up. Vulnerability is contagious and creates a safe space for others to be vulnerable as well.
Floor 4: Listening to Serve – At this level, you are no longer trying to “win” someone’s business, but rather to listen to their story and learn how you can help them. Tommy contrasts this with “networking,” which he calls a selfish act focused on what others can do for you, and instead advocates for “net-giving,” which is about helping others.
Floor 5: Servant Relationships – This is the highest level, where you are truly a servant leader and live by the philosophy, “It’s not about you”. At this level, you want nothing from the other person; you simply want to love and serve them.

The Leadership Philosophy of the Heart

Tommy argues that there are two types of leaders in the world: servant leaders, who serve others before themselves, and self-serving leaders, who serve themselves first. He believes that approximately 90% of the world falls into the self-serving category, while only about 10% are what he calls “heart-led leaders”. These heart-led leaders build authentic, genuine relationships and live a life of serving others.

To assess your own relationships, Tommy suggests a simple exercise: write down the names of the 10 most important people in your professional or personal life and ask yourself what level of relationship you have with each of them, from Floor 1 to Floor 5. He challenges organizations to prioritize a “Return on Relationships” (ROR) over a “Return on Investment” (ROI), as building a culture of authentic relationships will ultimately increase ROI.

Tommy ends by posing a profound question: “What is your leadership philosophy?”. He believes that a servant-leadership philosophy, focused on taking relationships to the third, fourth, and fifth levels and serving others, will lead to a more prosperous business and a more incredible life.

Check out Tommy Spaulding’s Books

It’s Not Just Who You Know: Transform Your Life (and Your Organization) by Turning Colleagues and Contacts into Lasting, Genuine Relationships: A book that shows you how to turn transactional relationships into meaningful, authentic connections.
The Heart-Led Leader: How Living and Leading from the Heart Will Change Your Organization and Your Life: This book explores the idea that servant leaders, or “heart-led leaders,” can make a profound impact on their organizations and their own lives by prioritizing the well-being and growth of others.
The Gift of Influence: Creating Life-Changing and Lasting Impact in Your Everyday Interactions: This book provides an empowering guide on how to be mindful and effective in using the influence we all have to create a positive and lasting impact on those around us.

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A Conversation with John O’Leary: Embracing Scars and Finding Awe

2025-09-16T03:59:03Z

A Conversation with John O’Leary: Embracing Scars and Finding Awe

John O’Leary, a man whose life story is as inspiring as it is challenging, shared his journey and insights on the InVisible InCourage SHOW. From surviving a devastating house fire to becoming a motivational speaker and author, John’s perspective on life, family, and invisible disabilities is a powerful reminder of the human spirit’s resilience.

A Story of Survival and Scars

At age nine, John O’Leary suffered burns on 100% of his body, with 87% being third-degree, after a massive explosion in his garage. The accident, which happened on a Saturday morning in 1987, was the result of him trying to pour gasoline on a piece of burning paper, mimicking older boys he had seen in his neighborhood. Doctors told his parents there was “absolutely utterly no chance of surviving”.

The fire changed his world, but what followed was a testament to love and courage. John spent five months in the hospital and endured years of surgery. His fingers were amputated as a result of the fire, leaving him with visible scars that he struggled to embrace for many years.

John credits his survival and ability to thrive to the unwavering support of his family, particularly his parents. His mother, who walked into his hospital room to find him with clothes on his body but no skin, showed incredible strength. She took his hand and told him, “You take the hand of God, you walk the journey with him, and you fight like you have never, ever fought before. John, you own this”. This bold question and challenge from his mother was a turning point in his life.

Another pivotal moment came when his father entered the emergency room. Fearing his father’s anger because he had caused the fire and the burning down of their family home, John was astonished when his dad pulled back the curtain, looked at him, and said he was proud to be his father. His father’s words of love and forgiveness were a turning point in his recovery.

The Invisible Scars

While John’s physical scars are visible, he believes the “far tougher thing to get through are the invisible scars”. He recognizes that the fire didn’t just impact him; it had a profound effect on his entire family. His siblings lost their home and went five months without their parents, who were constantly at the hospital. He realized that the fire happened to his family, not just to him.

He also acknowledges the struggles of his parents. His father, a man he looked up to, has battled Parkinson’s disease for more than three decades. His mother, the caregiver, also lives with her own invisible disabilities. John’s experiences have given him a deep appreciation for the challenges faced by those with invisible disabilities, many of whom feel isolated, alone, and even disbelieved.

From “On Fire” to “In Awe”

John’s story and life lessons are chronicled in his books, On Fire and In Awe.

In On Fire, he shares seven choices to ignite a radically inspired life, with the most important being to “own your life”. This principle, rooted in his mother’s challenge to him to fight for his life, is about taking accountability and choosing to live vibrantly despite challenges.

His second book, In Awe, was born from his observation of the difference between how adults and children approach life. He noticed that while many adults are simply “enduring” life, children approach it with curiosity, wonder, and a desire to make the world better. The book is an exploration of how adults can return to this childlike sense of awe and see problems as opportunities.

A beautiful example of this is John’s story about learning to play the piano after his accident. Even though he had no fingers, his mother insisted he continue lessons. She had a piano teacher come to their home, and with a pencil strapped to his hand, he began playing again. He plays the piano almost every day, believing that “perfection is the enemy of progress”. The music, he says, not only heals but also inspires others to see what is possible.

A Message of Hope and Connection

John believes that no one is “big enough, bold enough, tough enough to get through life all by ourselves” and that it “certainly takes others” to move through adversity. His mission is to inspire people to thrive because “God demands it, my family deserves it, and the world is starved for it”.

He encourages everyone, especially those with invisible disabilities, to remember that they are not alone and that their best days are still ahead of them. “You are worthy. You are loved. You are enough,” he affirms.

NOTE: John O’Leary‘s inspirational story is coming to the big screen! The film Soul on Fire, based on his best-selling book On Fire, is set for a nationwide theatrical release on October 10, 2025. The movie, which was filmed in O’Leary’s hometown of St. Louis, is directed by Sean McNamara, known for his work on films such as Soul Surfer and The Miracle Season. The film stars William H. Macy, John Corbett, Joel Courtney, and Stephanie Szostak.

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Justin Monger of Medsure Systems on What is Medicine Management

2025-09-16T22:33:06Z

Justin Monger of MedSure Systems on What is Medicine Management?

Justin Monger, founder of MedSure Systems, who spent over three decades in national defense engineering, business development, and executive management at Hughes Aircraft and Raytheon, transitioned into healthcare due to a deeply personal experience. He witnessed his older sister’s lifelong struggles with addiction and mental health issues, which ultimately led to her early demise. This personal connection fueled his desire to address medication non-adherence, a problem he realized didn’t require a complex “iPhone invention” to significantly impact.

What is Medicine Management?

Medicine management, as explained by Monger, involves multiple aspects. It begins with ensuring all medications have been “adjudicated and reconciled” to prevent drug interactions. Crucially, it also focuses on ensuring patients take “the right med at the right time each day,” which is essential for chronic care management.

The Alarming Impact of Medication Non-Adherence

The scope of medication non-adherence in the U.S. is staggering. Approximately 70% of individuals aged 65 and over manage two or more chronic diseases, often requiring complex medication regimens. However, about 50% of the time, people in this country either don’t take the correct medications at the right time or don’t take them at all.

The financial toll of this issue is massive, estimated at around $345 billion annually in avoidable hospitalization and recovery costs. Beyond the monetary impact, medication non-adherence contributes to 120,000 to 150,000 premature and unnecessary deaths each year. Furthermore, hospitals and doctors face fines of $25 to $35 billion annually when patients are readmitted within 30 days, with medication management being a significant contributing factor.

An Innovative Approach

Traditional solutions, like the common Sunday-through-Saturday pill organizers, have proven ineffective in solving this widespread problem. MedSure Systems tackles this challenge with a unique combination of “digital intervention” (e.g., beeps, texts, timers) and “relational care” or human intervention. This dual approach has led to remarkable results, with MedSure achieving “well over 95% med adherence across the board”.

A key aspect of MedSure’s service is addressing the two primary reasons people miss medications: forgetting or running out of refills. MedSure Systems networks pharmacies, doctors, patients, and caregivers to track refills and ensure patients never run out of their necessary medications. They even facilitate doctor visits if required before a refill can be issued.

The “Home Pharmacy Rule” and Strip Packs

To enhance safety and adherence, Justin strongly advocates for the “home pharmacy rule,” encouraging patients to have all their prescriptions processed through a single pharmacy. This allows the pharmacist to identify potential drug interactions and organize the entire medication regimen.

Additionally, MedSure’s partner pharmacies provide medications in “strip packs” or pouches, with each pouch containing all the pills needed for a specific time of day. These strip packs are shipped directly to the patient’s home monthly, eliminating the need for pharmacy visits. This also includes the ability to ship controlled substances in these strip packs, a rare capability among pharmacies. Supplements and vitamins can also be included in these personalized pouches.

Impact on Caregivers and Physicians

MedSure’s service has been a “godsend” for caregivers, particularly unpaid caregivers who often face immense stress. Through the MedSure app, caregivers can monitor whether their loved ones have taken their medications, alleviating a significant burden.

Physicians also benefit from MedSure’s technology. They have direct access to a portal where they can view a patient’s compliance record in “near real time”. This information is invaluable during patient check-ups, helping doctors determine if medication adherence is a factor in a patient’s health status.

A Mission-Driven Company

For Justin Monger, MedSure Systems is more than just a business; it’s a “mission-driven company”. The profound impact on individuals and families, like the testimonial from Waikina Robinson about her 86-year-old father, reinforces his commitment. Robinson highlighted how the pre-filled packaging and direct delivery eliminated her struggles with organizing her father’s pills and ensuring he took them.

Monger emphasizes the importance of personalization, recognizing that not all patients require the same level of intervention. MedSure customizes its program to each individual’s comfort and effectiveness, a crucial differentiator from purely electronic solutions.

Lessons Learned and Future Outlook

Monger’s key advice for aspiring innovators in healthcare is to consider all stakeholders: the pharmacy, doctor, patient, and caregiver. By understanding their pain points and involving them in the solution’s development, the most effective product can be created.

The Centers for Medicare and Medicaid Services (CMS) has recognized the severity of medication non-adherence and, about three years ago, began reimbursing for medicine management services, modeling it after remote patient monitoring. This is a critical step, as over 10,000 people turn 65 daily, and 70% of them will have a complex medication regimen, signaling a growing wave of healthcare costs.

MedSure Systems continues its work to reach the millions of people who struggle with medication management. Justin Monger attributes his courage and ability to persevere through the challenges of starting a company to the unwavering support of his family and his faith.

MedSure Systems received IDA’s Innovation Award in 2023 for their dedication to leveraging technology to make a profound difference in the lives of individuals with invisible disabilities, ensuring they feel supported and not abandoned.

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Emily Cram Living with a Rare Disease ERBIN

2025-09-16T22:28:55Z

Emily Cram’s Journey of Courage and Advocacy Living with ERBIN

In a world where many illnesses and disabilities are invisible, Emily Cram stands as a beacon of strength and advocacy. As the only woman in the United States diagnosed with ERBIN, a rare connective tissue disorder, Emily’s journey is one of profound challenges, unwavering resilience, and a powerful commitment to changing perceptions about invisible disabilities.

Unraveling the Mystery of ERBIN

Emily’s story with ERBIN began in early childhood, though its daily impact didn’t become apparent until she was around 12 years old. ERBIN, pronounced “Urban”, was officially named in 2017, a moment Emily had the unique opportunity to witness alongside the professionals who named it. This genetic condition runs in her family, with her father, brother, and herself all diagnosed with three aneurysms on their ascending aorta. Tragically, she believes her grandfather and uncle also suffered from the condition, passing away at young ages.

The journey to diagnosis and management has been a long and arduous one. Emily credits her “wonder woman” mother for tirelessly fighting to get them into the National Institutes of Health (NIH), where they now contribute to vital research on health and immunity in connective tissue. The NIH has been instrumental in helping them “stay healthy and alive, to be frank.”

The Invisible Burden: Challenges of a Rare Disease

Living with an invisible disability presents a unique set of challenges. For Emily, daily joint dislocations became a painful reality at age 12. “I would wake up and my shoulder would be outta place or I couldn’t walk to class,” she recounts, describing how friends would often wheel her between classes. The physical pain was compounded by the emotional toll of disbelief. “Nobody believed me because I looked like I was healthy, but I was in so much pain,” she shares. Even health professionals initially struggled to understand, with some suggesting her pain was “in my head,” leading to feelings of invalidation and guilt.

Emily’s experience highlights a common struggle for those with invisible disabilities: the constant need to justify their pain and limitations. She found solace and strength in running and yoga, activities many professionals advised against. Yet, by building muscles around her joints, she could maintain her body’s stability. “It looks like I run because I’m normal, but really I run to feel normal,” she explains, underscoring the deep commitment required to navigate her day-to-day life.

The impact extends to relationships as well. Simple illnesses like the flu can mean three months out of her life due to an inefficient immune system, leading to canceled plans and feelings of unreliability. The “fear of missing out” (FOMO) has been a constant companion, particularly after missing 89 days of school in seventh grade. “It feels like I am almost indebted to my sickness based off of what it has pulled me from,” she admits.

Finding Identity and Advocacy

Despite the immense difficulties, Emily has embarked on a powerful journey of self-discovery and advocacy. She grappled with where ERBIN fit into her identity, learning that it’s “part of your identity,” but not her entire identity. This understanding has fostered a strong sense of self-awareness and the importance of setting boundaries.

Now a sophomore at The Ohio State University, majoring in public affairs and sociology, Emily is driven by a desire to make a difference. Her path was inspired by a Miss America contestant, leading her to pursue a future in government and the nonprofit sector, eventually aiming for law school.

Her involvement as an ambassador for the Invisible Disabilities Association (IDA) has been transformative. It provides invaluable networking opportunities and, crucially, connects her with individuals nationwide who share similar experiences. Coming from a rural small town in Ohio, this connection is vital. “To not only bring my story publicly to my community, but also for myself and for my own healing, to connect to people around the United States, and truly know that I’m not alone,” she emphasizes, highlighting the power of shared stories.

A Platform for Change: Miss America and Beyond

Emily’s participation in the Miss America pageant has given her a significant platform to amplify her voice. Beyond the traditional notions of a beauty pageant, she sees it as an opportunity for talent, public speaking, and personal growth. Initially, her philanthropy focused on trauma-informed care, recognizing chronic illness as an adverse childhood experience. This led her to create a mentorship program pairing young women with role models, focusing on the healing power of relationships. This passion has seamlessly evolved into her role as an IDA ambassador, allowing her to advocate for her specific story and the broader mission of invisible disabilities awareness.

Planted, Not Buried: A Message of Courage

When asked about the one thing that gives her courage to make it through each day, Emily shares a profound message: “I remember a long time ago I was going through such a hard time in my life, and my joint dislocations were getting worse and worse. And I remember just feeling absolutely buried. And one of my best friends said to me that I wasn’t buried and I was planted, and I wasn’t going to suffocate in where I was, but I was actually gonna grow because of it. And I remember that every day from then on.”

Emily Cram’s story is a testament to the human spirit’s capacity for resilience in the face of adversity. Her courage, her advocacy, and her unwavering belief in the power of storytelling are not only changing her own life but also inspiring countless others to find their voice and embrace their own unique journeys with invisible disabilities.

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2025 Invisible Disabilities Walk & Roll – See the Invisible

2025-04-06T20:56:03Z

Imagine a world where the challenges faced by those living with invisible disabilities are not only acknowledged but actively supported. What if we actually See the Invisible? This May, the Invisible Disabilities^® Association (IDA) invites you to be a part of making that vision a reality through the annual 2025 Invisible Disabilities^® Walk & Roll. This empowering event offers a unique opportunity for individuals, families, friends, business, schools and supporters worldwide to come together, raise awareness, and show solidarity with the millions who live daily with conditions that are not readily apparent.

Unlike traditional walks or races, the Invisible Disabilities Walk & Roll is designed for maximum flexibility and inclusivity. You can participate at your own pace, in your own way, and at a time and location that suits you best throughout the entire month of May 2025. Whether you choose to walk around your neighborhood, roll through a local park, participate in a virtual activity, or even dedicate a single day to raising awareness, your involvement makes a difference.

The core mission of the IDA is to encourage, educate, and connect people and organizations touched by illness, pain, and injury. Invisible disabilities, which can include chronic pain, fatigue, mental health conditions, neurological disorders, and many others, often go unseen and misunderstood. This can lead to feelings of isolation, invalidation, and a lack of support. The Walk & Roll serves as a powerful platform to break down these barriers, foster understanding, and build a supportive community.

Getting involved is easy! Just head over to WalkandRoll.org! You can register as an individual or, even better, create or join a team. Rallying together with friends, family, or colleagues amplifies your impact and creates a shared sense of purpose. The dedicated RallyUp platform makes registration seamless and provides tools for team fundraising and communication.

Looking at the team pages, the spirit of community and support is truly inspiring. While specific team details evolve as more people register, you might find teams formed in honor of loved ones living with specific conditions, groups of friends walking in solidarity, or even organizations dedicated to supporting the invisible disabilities community. Imagine joining a team like “Hidden Heroes”, “Team Invisible” or “Rare Patient Voice” and connecting with others who understand similar challenges and working together towards a common goal.

The Walk and Roll is more than just a fundraising event; it’s a movement. It’s a chance to:

Raise Awareness: By participating and sharing your involvement, you help educate others about the prevalence and impact of invisible disabilities.
Show Support: Your participation sends a powerful message of solidarity to those living with these conditions, letting them know they are not alone.
Build Community: Connecting with other participants, whether online or in person, fosters a sense of belonging and understanding.
Support IDA: Funds raised through the Walk & Roll directly support IDA’s vital programs and resources, which provide education, support, and advocacy for individuals and families affected by invisible disabilities.
Sponsor Champion: Various sponsorship levels are also available for the Walk & Roll, ranging from Event Champion to IDA Champion. Each level provides unique benefits, including recognition, promotional opportunities, and the chance to make a significant impact on the lives of individuals with invisible disabilities.

So, how will you choose to See the Invisible this May? Will you dedicate a weekend to walking in your local park or on your favorite trail? Will you organize a virtual fundraising event with your friends? Will you simply share information about the Walk & Roll on your social media? No matter how you choose to participate, your contribution will help make a tangible difference in the lives of those living with invisible disabilities.

Visit WalkandRoll.org to learn more about the event and find resources to help you get started. Register today and become a vital part of the 2025 Invisible Disabilities Walk & Roll. If you’re not able to attend, please consider a generous donation instead. Together, we can See the Invisible!

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Neuro Invisible – Tim Goldstein and Wayne Connell

2025-09-16T22:24:42Z

What is the Neuro Invisible?

For many, the concept of disability conjures images of visible impairments. But what about the disabilities we can’t see? The Invisible Disabilities Association (IDA) is dedicated to raising awareness of these often-overlooked conditions, including those that impact the brain. In a recent episode of IDA’s “Brain IDEAS” program, hosted by IDA Founder Wayne Connell, expert Tim Goldstein shares his personal journey and shed light on the world of the “Neuro Invisible.”

A Personal Journey of Discovery

Tim’s story is a testament to the fact that neurodiversity can remain hidden for much of a person’s life. Diagnosed with autism at age 54, Tim spent decades navigating the world without understanding why he felt different. “Truthfully,” he admits, “I chalked it up to the world was stupid, and I wasn’t.” This perspective, while perhaps not the most charitable, was his way of making sense of his experiences before he understood the underlying reasons for his differences.

Following his diagnosis, Tim immersed himself in learning about autism, which became a “special interest”—a common characteristic among autistic individuals where they develop intense focus on a particular subject. This led him to the Autism at Work Conference, an event that connected him with leaders in the field and propelled him into a career of advocating for neurodiversity in the workplace.

Tim’s career trajectory, marked by both successes and setbacks, is a common experience for many autistic individuals. Their focused interests often lead to excellence in their work, but challenges in social interaction and communication can create difficulties in navigating workplace dynamics. As Tim explains, “Having those special interests means that you tend to really focus in on what you’re doing, which means you tend to excel at what you do. But then those social and communication things, and not really understanding the whole, you know, social interaction and pecking order in such a, particularly in larger companies, and you get in trouble and you get fired.”

Understanding the Terminology: A Shifting Landscape

The language surrounding neurodiversity is constantly evolving. Terms like “neurodivergent,” “neurodistinct,” and “neurodiversity” are often used, but their meanings can be nuanced.

Neurodiversity: This term encompasses the natural variation in human brains and minds. It acknowledges that differences in how people think, process information, and perceive the world are normal and should be respected. It includes everyone.
Neurotypical: This term generally refers to individuals whose neurological development and functioning are considered within the statistical “norm.” However, the definition of “norm” can vary across cultures and contexts.
Neurodivergent/Neurodistinct: These terms refer to individuals whose neurological functioning diverges from what is considered typical. While “neurodivergent” emphasizes divergence, “neurodistinct” emphasizes the unique and valuable qualities of these differences.

Tim prefers the term “neurodistinct,” explaining, “We’re not weird, we’re not wrong, we’re not divergent, which sounds to me like a negative thing. We’re just distinct.” He highlights the importance of individual preference when choosing terminology. What matters most is understanding that these terms refer to individuals whose cognitive conditions may be considered disabilities under legal frameworks like the Americans with Disabilities Act (ADA).

The Neuro Invisible: More Than Just Autism

While autism played a pivotal role in the emergence of the neurodiversity movement, the “Neuro Invisible” encompasses a much broader range of conditions. These include:

ADHD (Attention-Deficit/Hyperactivity Disorder): Characterized by difficulties with attention, hyperactivity, and impulsivity.
Dyslexia: A learning disability that affects reading and language processing.
Dyspraxia: A developmental coordination disorder that affects motor skills and coordination.
Dyscalculia: A learning disability that affects mathematical abilities.

These conditions, often invisible to the outside observer, can significantly impact an individual’s life.

The Benefits of Diagnosis

Seeking a diagnosis for a Neuro Invisible condition can be transformative. For Tim, his autism diagnosis provided a framework for understanding his life experiences. Instead of attributing his challenges to the “stupidity of the world,” he gained self-awareness and a foundation for developing strategies to navigate social and professional situations.

Similarly, Tim’s wife, diagnosed with ADHD later in life, finally understood the reasons behind her own life path and challenges. A diagnosis can empower individuals to access appropriate support, whether it be medication, therapy, or simply a deeper understanding of their own unique way of thinking.

Disability vs. Disabled: A Crucial Distinction

It’s important to distinguish between “disability” and “disabled.” A disability refers to a condition that impacts some function of a person’s life. This could be anything from needing glasses to having ADHD. “Disabled,” on the other hand, implies a limitation in one’s ability to participate fully in society. As Tim explains, needing glasses is a disability, but with corrective lenses, a person is not necessarily disabled. IDA emphasizes that disabilities are a technical term, not a judgment of a person’s worth or capabilities.

Conclusion

The Neuro Invisible encompasses a diverse range of conditions that shape how individuals experience the world. By raising awareness, promoting understanding, and fostering acceptance, we can create a more inclusive society where everyone, regardless of their neurological differences, can thrive. The work of IDA and the insights shared by individuals like Tim Goldstein are essential steps in helping the Neuro Invisible become Invisible No More^® and “changing the way the world sees disabilities”.

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See the Invisible

2025-10-26T13:03:05Z

Hard to believe it is 2025 already. We founded the Invisible Disabilities Association over 29 years ago and so many things have changed since then. I think of 9-11 and the impact felt around the world. Since 1996 we’ve had wars and pandemics and devastating hurricanes and apocalyptic fires and so many other dramatic impacts on our lives, it’s no wonder as a society we struggle with anxiety and depression and PTSD.

We live in a world literally moving at the speed of light. We have more information at our fingertips than in all of human history combined. We have endured being “voted off the island”, rated on a scale of 1 to 5 stars and have been “Liked” and “Disliked” on an almost minute by minute, hour by hour basis. Are we good enough to measure up and strong enough to endure? And we have looked at disabilities and illness as something that makes a person worth less than someone else. We all try to avoid disabilities yet anyone of us could be impacted by illness and pain, at any time. Over 20% of the world’s population has disabilities and according to the CDC, 27% of adults have disabilities and 57% have chronic illnesses.

Yet here we are in 2025 and it’s time to make a change. At IDA, our theme for 2025 is See the Invisible. How do we do that? Who are the invisible? The Invisible is everyone who has been disregarded, abandoned, disbelieved, misunderstood, accused, and misjudged because they live with an invisible disability, which for the millions living with a disability, illness, pain, addiction or phobia, is not readily apparent. If we can’t see it, we usually don’t believe it.

How do we See the Invisible since in most cases they truly are invisible? First we need to open our ears and “Listen”. Listening requires the action of developing a relationship with your loved one or friend or neighbor. Showing them they are worth your time. You value them. You want to learn about what they are living with, all of the tragedy and sometimes triumphs. Learn about the uniqueness of their illness or disability and often more than one.

Listening requires time. We are all busy! And the busyness in our lives will never slow down. As I like to say, “Let’s not let Busy be a four letter word”. The best way to listen is in person if possible, or via an online video call or via a phone call. People need to know you care by seeing your face or hearing your voice. Of course, some people with invisible disabilities are hard of hearing or visually impaired and you will need to ask them what works best. The keys to listening are giving them your undivided attention and validating their story. Our book “But You LOOK Good” will provide some great ideas on “what to say” and “what not to say” as some things that might come across differently than you intended. You will definitely learn new things, hopefully develop a better understanding and maybe even have your life changed.

To “Listen” is the first step to See the Invisible. The second step is to “Believe”. We believe by understanding that people’s journeys are real and valid. Invisible disabilities, illness and pain are not imaginary or fake. It’s not up to the onlooker to decide the validity of what the “Invisible” are living with.

Sometimes things may not make sense to us. How could someone get sick from perfume or cologne or laundry detergent? The government wouldn’t allow that right? Oh wait, cigarettes and bug spray are available for sale. Or I saw you out in public walking, the pain must not be as bad as you said. We have no idea if their trip was to the doctor or for some other reason and it is up to the person living with the invisible disability or pain as to their abilities or not. We must believe them when they say they can perform certain things at certain times and maybe not be able to do other things when they look like they can.

Judging someone comes into play quickly when we think we know all about them by a 5 sec glance. We might even try to play an armchair Doctor and think we know about their illness or disability or the extent of it by what we see or don’t see. Let’s See the Invisible by believing them, period.

Thirdly, we See the Invisible by taking the action to “Support” them. And what does supporting them mean? Support is an action word which means to hold up or give assistance to. After listening and believing, which are both initiated by us, supporting requires a question to your friend or loved one and their input back. Do you need support? If so, how may I support you? It is not for us to determine if the “Invisible” need help or what specific help they need.

The acts of listening and believing hopefully will create a good relationship which allows for the opportunity to support. Take the action and ask if they need help and if they do, how. The person living with illness, pain and disability knows best what would support them. Sometimes it’s simple and sometimes it’s more involved. Either way, it is worth the effort it takes as we are all valuable and part of the human race. And if you made it this far in your ability to See the Invisible, your loved one or friend or neighbor or co-worker will hopefully feel like they “do” matter and maybe even feel less “Invisible” and accepting of your support.

As a society, we can do this! We can See the Invisible! We are all in this together. Let’s envision a world where people living with illness, pain and disability will be Invisible No More! Join IDA in 2025 and See the Invisible, by “Listening, Believing and Supporting”. ~ Wayne Connell, IDA Founder

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Bicycles, Anxiety and Hope

2025-01-26T17:06:17Z

I’m still struggling and experiencing panic attacks!

Today , at work, I was hit with a wave of anxiety that I couldn’t shake. My mind kept drifting back to the morning conversation with my son. He seemed down, and when I asked him why, he shared his frustration with me.

My son had recently broken his foot in an accident while we were riding our electric bikes to the grocery store. We had done this trip before, and he was always so creative, using a makeshift cart to help carry things. This time, though, things took a terrible turn.

We were stopped at a light, waiting to cross a major street. The light turned green, and I told my son to go, but he hesitated because the walk signal hadn’t changed yet. I insisted, and a car next to us honked, making me even more impatient. My son trusted me and proceeded, only to be hit by the car that turned into him. His foot was run over, causing a bad break and severe road rash.

At that moment, everything felt like it was happening in slow motion. My son cried out, “Dad, I broke my foot!” I took off his sock and tried to convince myself—and him—that it wasn’t broken. The driver of the car panicked and started blaming me, but I knew it was my fault for insisting he go.

As we headed to the ER, I was in denial, more worried about the medical expenses than my son’s well being, which I now regret deeply. My wife, understandably distraught, insisted we get him examined. Throughout this ordeal, I tried to deflect blame, but I knew I had to be honest with my wife and my son. He trusted me, and I let him down.

The days following the accident have been tough. Both my son and I are healing, but the anxiety and guilt I feel are overwhelming. He has forgiven me, but I haven’t forgiven myself. This incident has triggered my own struggles with anxiety and panic attacks.

On our way to school this morning, my son was feeling down because he couldn’t play with his friends on the playground. He just wanted the cast off. I apologized, saying, “I am so sorry I caused this,” and he replied, “It’s okay, Dad. Just next time, can you please listen to me when I tell you the sign says not to go?” I promised him I would. He hugged me and gave me a kiss on the cheek, holding me a little longer, trying to console me.

This isn’t a feel-good story about overcoming adversity. It’s about facing it and sharing my experience in hopes of overcoming it. Perhaps someone reading this can find solace in knowing it’s okay to share your feelings. My son and I are both on a journey to heal, and I hope that by being honest about our struggles, we can make a positive difference. ~ Josh Hultman

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Invisible Disabilities® Association

Pete Ohlin Inspiration Award

PETE OHLIN

2024 “But You LOOK Good” Inspiration Award Recipient

Introduction

Pete Ohlin’s Acceptance Speech

The Origins of the Music

Impact and Collaborations

Advocacy and Family Challenges

Matt Iseman Inspiration Award

MATT ISEMAN

2014 “But You LOOK Good” Inspiration Award Recipient

Introduction

Matt Iseman’s Acceptance Speech

Persevering with Dementia – Sandy Halperin DDS

Sandy Halperin DDS – Persevering with Dementia – A Journey from the Clinic to National Advocacy

From the Clinic to the Patient Chair

The Fog of Dementia

“But You LOOK Good”: The Invisible Struggle

Advocacy and the CNN Connection

The Invisible No More Perseverance Award

Finding Courage in Connection

Patrick Williams Purpose-Driven Leadership Transforming Passion into Healthy Spaces

Patrick Williams – Purpose Driven Leadership Transforming Passion into Healthy Spaces

A Legacy of Empathy

The Tipping Point

Engineering a Family Mission

Strength Through Partnership

The “Rocking Chair” Vision

A 360-Degree Ecosystem of Support

I Am Invisible No More

I Am Invisible No More: Together We are Changing the Way the World Sees Disabilities

A Cry of the Heart

One Human Race, One Shared Dignity

The Faces of Visibility

30 Years of IDA Impact

Join the 2026 Celebration

I Am Invisible No More®

Together, we are changing the way the world sees disabilities.

Why Care Agencies Overlook Invisible Disabilities and How to Lead the Change

Why Care Agencies Overlook Invisible Disabilities and How to Lead the Change

Embracing Your Voice – Stuttering as an Invisible Disability

Embracing Your Voice: Stuttering as an Invisible Disability and the Path to Becoming a Limitless Leader

The Unseen Reality of Stuttering

Triumphs on the National Stage: Jesse Findling

Leadership and Radical Acceptance

30 Years of Making the Invisible No More: The IDA Story

30 Years of Making the Invisible No More: The IDA Story

Navigating Social Security Benefits – A Guide for Individuals with Invisible Disabilities

Navigating Social Security Benefits: A Guide for Individuals with Invisible Disabilities

Social Security Disability Insurance (SSDI) and Invisible Disabilities

Returning to Work with the Ticket to Work Program

VA Appeals for Veterans with Invisible Disabilities

The Courage to File

How to Make Humor a Habit from Experts on Healthy Humor IDEAS!

How to Make Humor a Habit from Experts on Healthy Humor IDEAS!

Choosing Your Laugh

Create Humor Habits

The Purveyors of Healthy Humor

Time is Our Most Precious Commodity – Brian J Esposito

Time is Our Most Precious Commodity: Brian J Esposito

An Entrepreneurial Spirit from the Start

A Collision with Invisible Disabilities

A Business Model of Empathy

Innovating for a Better World

One Tough Cookie – The Story of Isabella Sementilli

One Tough Cookie: The Story of Isabella Sementilli

Tommy Spaulding on It’s Not Just Who You Know

Tommy Spaulding on It’s Not Just Who You Know

The 37 Rejection Letters and the Bartender

The Five Floors of Relationships

The Leadership Philosophy of the Heart

Check out Tommy Spaulding’s Books

A Conversation with John O’Leary: Embracing Scars and Finding Awe

A Conversation with John O’Leary: Embracing Scars and Finding Awe

A Story of Survival and Scars

The Invisible Scars

From “On Fire” to “In Awe”

A Message of Hope and Connection

Justin Monger of Medsure Systems on What is Medicine Management

I Am Invisible No More^®