Life On The List

Good news

2013-03-03T12:01:00.001-08:00

Hey y'all,Happy Sunday !

After talking with the Dr. It looks like Nick will be going ho e either tomorrow or Tuesday. We are beyond happy as two weeks in a hospital room is pretty overwhelming. We are ready o get home and see our fur baby,enjoy our nice comfy bed and big roomy shower. Nick has had a few complications while being in the hole (hospital) And all your prayers have been so appreciated.

Nick has been having extreme nausea and headaches due to all of the antibiotics he is on. They have also cause his blood sugar to spike so he has had to get insulin shots which he hates. When nick first got inherent they noticed his port would not get blood return. They wanted to go in and take a look at it and if need be do a small surgery to fix it. However Nick was not interested in the slightest in having that done since the Dr told him they would go in through his groin.with all that being said every time they have had to draw his blood they have had to stick him rather then normally just taking it for his port.

Other then all that craziness he has put on about 5 pounds and we hope he keeps gaining!

Day 7 of 14

2013-02-27T17:38:00.003-08:00

Nick and I have been stuck in the hole (hospital) for 7 days now. Last Wednesday Nick got admitted because his oxygen dropped super low and his heart rate was really high. So Nick has been here at Shands in Gainesville getting lots of rest. Nicks Dr. came in earlier this week encouraging Nick to get up and walk around so he does not become weaker from laying in the bed. For the past couple days we have gotten up and walked around the floor. Then today Nick was able to walk all the way down stairs, It was so nice to get out of the room with him. Walking down stairs still came with lots of breaks a long the way to rest and check to make sure his oxygen was staying up.

It was so nice to get out and get some fresh air and see Nick smiling and joking around again.Nick made the good choice as always and got fresh fruit and A banana and I decided for A sweet coffee drink ( it was worth every calorie!!! )

We sat out there for A while and then decided to head back up stairs to the room. I have to say how much we love technology!! Since we have been up her in the hole we have been able to see our family via skype and face time. The other day my sweet Mom Mom ( Grandmother) who lives in California got A ipad. I have been trying to convince her to jump on the skype band wagon for the longest time so we could see her sweet face. I am happy to say she FINALLY was able to face time us tonight, it is SO nice, I miss her so much.We also got to face time with our fur baby Jag tonight...

Unfortunately he was not smart enough to look at the screen but he did recognize our voices. I miss him so much I really am trying to think of a plan to sneak him in here hehe! Hope everyone is having A great night...Who is super stoked about the season premiere of Duck Dynasty tonight? Quack Quack

Meet The Browns

2013-02-27T15:15:00.000-08:00

Hey yall

Welcome to our blog,We are Amanda & Nick!!

Here is A little bit about us.

Nick and I have been together for 9 years and just celebrated our 5 year wedding anniversary this past November.

Two years ago Nick and I bought our little home in Jacksonville Fl.

We have one little fur baby named Jag who is pretty spoiled.

Nick and I are so blessed to have lots of people who are constantly praying for us and Nicks journey. Sometimes it is really hard to stay connected with everyone, So what better way then to have A blog.

Most of you know Nicks story very well but for those who do not here is A little bit about Nick.

Nick is 27 years old and was born in Jacksonville Florida. He was diagnosed at 2 months with Cystic Fibrosis. His parents always kept him very active in sports when he was young which is why we believe he has done so well. Nick did not have his first hospital admission until he was 15, Which is rare since CF for the most part has been known as A childhood disease. Nick loves anything to do with sports but is A HUGE Jaguar and Gator fan.He is A family man who loves nothing more then to spend time with his family who have been A HUGE support system for Nick. In July Nick got listed for A double lung transplant at Shands in Gainesville. Nicks lung function is currently anywhere from 14-16 percent which has been related to feeling like your breathing through A coffee straw...All the time. Nick is SO optimistic and rarely complains even on his bad days. This blog is about our life while waiting on the list for new lungs.