Lupus disease

Lupus Hope

2011-12-15T04:17:00.001-08:00

Lupus Hope

Renegade Health and A Food That Could Destroy Your Thyroid

Posted: 14 Dec 2011 04:25 AM PST

My first German Shorthair Pointer OJ (may he rest in peace)

I have found this in my research as well...especially for celiacs, but it may pertain to all people that ingest wheat. Read and listen when you click the link below. Kevin Gianni interviews Dr. David Brownstein on thyroid health.

http://renegadehealth.com/blog/2011/12/13/this-food-could-destroy-your-thyroid/

Lupus Hope

2011-12-14T03:47:00.001-08:00

Lupus Hope

Mittens and Warm Socks - Keep those digits toasty

Posted: 13 Dec 2011 09:10 AM PST

Just a note to say I went to Walmart last night and my husband thought to look in the Hunting/Sporting area for warm socks. It turned out to be a great idea. We found some great choices.

When shopping for clothing items to keep you warm especially if you have Raynaud's or any other issue with low thyroid function or poor circulation, try the skiing area or the Sporting/ Hunting area. Those are the people who are in out in the harsh elements for extended periods and they have the best supplies for staying warm and toasty. Also don't forget some great boots like Ugg's or Minnetonka or another comfy , yet toasty warm fur lined boot. Don't forget to water proof if necessary or pick boots that are waterproof. It's been getting colder and colder here in NY....BRRRRR!

This is a link to the brand that was at Walmart.
http://rockygeorgiasocks.com/index.php?main_page=index&cPath=26

Mindless Eating and Getting Back on the Healthy Track

Posted: 13 Dec 2011 07:28 AM PST

Photo by my daughter Carly

Christmas is coming and I am getting busy with family fun and preparation...hope you are enjoying your Holiday season as well!

I may post a little less during this holiday...but I am still here! On to today's post...

I have had a little problem with "mindless" eating again...not really thinking what am I putting in my mouth and how will it affect my health and my body...I think many of you know about this phenomenon.

Not that I've been eating crazy or anything ( I never eat gluten, dairy, or eggs) but when I make homemade things for my family I try a few GF vegan corn muffins , a few GF vegan double chocolate chip cookies, a few GF vegan peanut butter chocolate covered pretzels...well it all adds up. The added sugar, salt, starches. If you are eating grocery store or even health food store brands the sugar, salt starches go up as well as the possibility of "natural flavors" (if they're so "natural" then why can't they name them?), the possibility of cross contamination, and possibility of other undesireable ingredients, etc.

I haven't been feeling as good as I used to and when I took stock/inventory...I realized I haven't been eating as many vegetables as I used to each day...time to ramp up.... I just started yesterday.

I made sure I had a large salad, cooked kale, cut celery and carrot sticks to munch. I also ate Hummus, guacamole, and frozen raspberries. One benefit to this type of eating is that this fills me up and leaves little room for the "junk food" (not so nutritious foods) also there is so much less sugar, salt (most of us get way too much) and other not so healthy ingredients if you are eating many raw veggies and fruits in your day. The last added health benefit is the amount of nutrients your body can take from those healthier foods and then the body can use those nutrients to repair anything in the body that it needs to.

I think it would be great to get a nutrition calculator computer program for Christmas. To everyone reading this...eat more veggies! Watch those holiday treats. Maybe try raw food pies and goodies they are the healthiest. Sweet Gratitude by Gratitude Cafe is my favorite "uncookbook" for delicious raw food desserts. You can check it out at your local library first if you like.

Here is a link to Gratitude Cafe's blog
http://cafegratitude.com/our-blog

Lupus in Flight

2011-12-13T05:12:00.001-08:00

Lupus in Flight

Wedding, KL Style

Posted: 12 Dec 2011 11:03 PM PST

I wake early every morning. A whirring fan greets me, and I am not quite sure I recognise the skin I am in. Christmas is approaching and I am a slice of buttered toast, hot and melting in the Kuala Lumpur sun, my hair a jolly mess of curls. This morning my elder brother awakes to his fifth day of wedded bliss, and blissful is the only way to describe his state. The wedding was perfect and intimate with white butterflies for witness at the blessing ceremony and myself as a witness at the signing. During dinner, I made a speech, and recited a poem I had written last year on the day Rizwan first sent us a picture of his beloved. One look at Angelina and I knew something of what he knew... This was the girl for him, for us.

(Written Sept 31, 2010; Read Dec 10, 2011)

Into the quiet confident hallowed stillness of your heart
You welcome the known and the unknown,
the first kiss, photographed moments of first bliss,
known and unknown.

Dates are made, plans are laid,
A whole life's stakes are re- arranged;
and the journey man
will be a learning man,
a leaning on each other,

Love was buried deeply
in the long forgotten river;
Love was waiting patiently
for the auction, for the bidders.

You, yes, and You,
Come -
Your moment has arrived;
The past is behind
and the future air can breathe,
Your someone has arrived.

And the myriad long staircases
wind up and up
to find
nothing
but
care and truth and fidelity.

Semoga Kekal Abadi! Happiness Forever!

Lupus Hope

2011-12-13T04:07:00.001-08:00

Lupus Hope

Pharma Drugs Don't Work? From David Wolfe's Longevity Conference

Posted: 12 Dec 2011 02:28 PM PST

http://www.thelongevitynowconference.com/dvd-fall2011.html#mini

Pharmaceutical Drugs Don't Work?

Click Here to Watch Now!

And in case you missed these other incredible clips...

New Posts from Getting Closer To Myself

2011-12-11T18:06:00.001-08:00

New Posts from Getting Closer To Myself

Patients For A Moment Is Here December 21st

Posted: 11 Dec 2011 06:27 AM PST

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Lupus Hope

2011-12-10T03:36:00.001-08:00

Lupus Hope

Books to Read on Healing (a Repost)

Posted: 09 Dec 2011 07:47 AM PST

Not sure if whatI'm saying could be true? Want to find out more? Read up! See the titles below...

You can request many of these books through your local library. Ask the librarian for the book/s you are interested in and if they don't have the book, many times they can do an interlibrary loan (get it from another library).

"The Lupus Recovery Diet" by Jill Harrington (title says it all)

"Pain Free in 6 weeks" by Sherry RogersMD (total toxic load on the body, ways to heal, holistic)

"The Gluten Connection" by Shari Leiberman (diseases that can be exacerbated by gluten)

"Gluten Toxicity..." by Shelly L. Stuart R.N., B.Sc.N. (how gluten can wreak havoc in the body)

"Living on Live Food" by Alissa Cohen (A raw food diet, tons of recipes and testimonies)

"The Great Life Diet" by Denny Waxman (A macrobiotic diet)

" The MS Recovery Diet" by Anne Sawyer (healing MS through diet)

"Living Well with Autoimmune Disease..." Mary J. Shomon (holistic)

"The Ageless Woman" by Serafina Corsello, MD (MD+alternative/holistic)

"Dr. Mercola's Total Health Program" by Dr Joseph Mercola (diet for your specific body type)

"Arthritis..." 2nd Edition by Ellen Kamhi PhD RN HNC and Eugene Zampieron ND MH(AHG)(Holistic and Alternative by the "Natural Nurse" and a Naturopathic Doctor)

"An Alternative Approach to Allergies" by Theron Randolph MD and Ralph W. Moss PhD

"Celiac Disease a Hidden Epidemic" Peter H.R. Green MD and Rory Jones

"Food That Helps Win the Battle Against Fibromyalgia" by Deirdre Rawlings N.D., Ph.D.

"Breakthrough, Eight Steps to Wellness.." by Suzanne Somers(interviews cutting edge doctors)

""The UltraMind Solution.." by Mark Hyman MD(healing your broken brain, through healing your body first)

" The Cure Heal Your Body, Save Your Life.." by Dr. Timothy Brantley

"52 Ways to a Healthy You" by Laura Lewis

"The Women's Guide to Thyroid Health" by Kathryn R. Simpson, MS (Holistic, root cures, thyroid disease)

"Why Do I Still Have Thyroid Symptoms? When My Lab Tests are Normal" by Datis Kharrazian, DHSc, DC, MS

"The Optimum Nutrition Bible" by Patrick Holford

Dr. Andrew Weil's Guide to Optimum Health" CD Set

"Health Wars" by Philip Day

"Cereal Killers..." by Dr. Ron Hoggan and Scott Adams (celiac disease treatments and other diseases that can affect a celiac patient- outrageous book!)

"The Sinatra Solution" by Stephen T. Sinatra MD (reversing heart disease with diet and holistic medicine)

"Is Your Cardiologist Killing You" by Sherry Rogers MD (research into the protocols tat cardiologists employ and why holistic approaches are safer and work better)

"Your Child Doesn't Have to Die" by Leanne Sorteberg (Holistic medicine and nutrition healed her child's cancer)

"The Detox Strategy" by Brenda Watson CNC with Leonard Smith MD

" ChefMD's Big Book of Culinary Medicine..." by John LaPuma MD (healthy cooking and halting disease with foods)

A link to my recommended raw food "un-cookbooks" (you know what I mean! Raw Food!)
http://lupushopecookbook.blogspot.com/2009/08/great-raw-food-books.html

A link to some of my favorite Vegan and Macrobiotic Cookbooks
http://lupushope.blogspot.com/2010/05/some-favorites-vegan-and-macrobiotic.html

Lupus Hope

2011-12-09T03:43:00.001-08:00

Lupus Hope

Correct Way to Skin Brush from Green Smoothie Girl

Posted: 08 Dec 2011 07:48 AM PST

Brandy, the skin brushing instructor also tells how she had Lupus and is now free from it, both through blood tests antibody free and symptom free. Another testimony...also Robyn says Brandy is the fourth? person in a year that said to her that Lupus can be helped/reversed with a plant based diet.

Skin Brushing...click below to watch how to video from Green Smoothie Girl and Brandy.
http://www.greensmoothiegirl.com/blog/2011/12/05/how-to-skin-brush-oasis-part-12-of-13/

New Posts from Getting Closer To Myself

2011-12-08T18:21:00.001-08:00

New Posts from Getting Closer To Myself

Scrapbooking My Illness(es)

Posted: 08 Dec 2011 06:32 AM PST

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Lupus Hope

2011-12-08T03:41:00.001-08:00

Lupus Hope

Gluten and Parkinson's Disease

Posted: 07 Dec 2011 06:23 AM PST

Any disease that can be neurological in nature, Parkinson's, Multiple Sclerosis, Diabetes etc. can occur with or side by side with Celiac Disease. Celiac Disease itself can cause neurological problems! If you have these conditions or the doctors say you have any unexplained neurological symptoms or an "incureable" disease. Go and get your self checked for Celiac Disease. Please click below to read more on A Possible Link Between Gluten Sensitivity and Parkinson's Disease. Even if you test negative for Celiac Disease , try a Gluten Free diet anyway for 3-6 months and see if it helps.

http://www.ehow.com/facts_5671732_gluten-sensitivity-parkinson_s-disease.html

CHRONICLYsILLy

2011-12-06T23:43:00.001-08:00

CHRONICLYsILLy

Benlysta- Infusion #3

Posted: 06 Dec 2011 06:52 AM PST

Benlsyta infusion #3

Yesterday marked my third infusion of Benlysta, the last of the loading doses (3 in the first month), and now I will receive them every month, which seems much more doable! I must say you get used to them rather quickly, aside from the day after hang-over effect that consists of a headache and some aches and pains and the usual fatigue (which could just be the Lupus too... hard to decipher...) the infusions thus far are going well. I am not sure I am feeling much of a difference yet, but the doctor and infusion nurse (whose a doll), say to give it time and gradually, hopefully, there is a gradual improvement. They monitor these slight changes with the pre-infusion paperwork that consists of a questionnaire, that goes through all of your extremities and joints asking how you are feeling, how the pain is in each, and how you believe your condition(s) are affecting your everyday ability to function/quality of life. By doing so they may notice slight improvements that you may not right away. Like many therapies and drugs used for Lupus, it is a waiting game, generally speaking, and could take a few months before seeing improvements, however some may find relief sooner, as each and every one of us will respond slightly to massively different (As with any medication), to each their own.

After an hour and half (approx.) the infusion was complete, I was drowsy from being up early and the pre-infusion Benadryl, and was ready to call it quits for the day, but had some running around to do with my pops, so we powered through and then to the cardiologist's office as it was the day of docs yesterday, and I was so happy when it came to an end and I was in my bed relaxing for the evening!

Lupus in Flight

2011-12-06T05:21:00.001-08:00

Lupus in Flight

p.s.

Posted: 05 Dec 2011 10:45 PM PST

Many hours of flight later, I found myself in King Rafi's bedroom. He wasn't wildly happy about being relegated to another bedroom but in the morning, all was forgiven.

Look who's here Raf!!! It's Granny and Grampa Tayabali!!!!

p.s. did I forget to mention?? We're in Singapore!!!!!!!

Expect words like HOT and SUN and HAPPY followed by lots of exclamation marks :) And more special surprises awaiting upon each morrow....

Lupus Hope

2011-12-06T03:19:00.001-08:00

Lupus Hope

Blanket over head but still see...???

Posted: 05 Dec 2011 11:08 AM PST

This is one of the strangest phenomena that had happened to make me aware that I had health "issues".

Figured I would mention it as maybe others have encountered the "feeling" but didn't know what it was.

The feeling I am talking about is when I would eat foods especially with gluten, dairy and eggs or even worse combos of all three ingredients, I would feel such a profound drop in my energy that it felt like someone put a heavy blanket over my head but I could still see...it felt as if someone was pulling the energy right out of me through my feet.

Some foods that would do this (many times I thought it was the sugar...but now when I eat sugar occasionally in Gluten Free, Egg Free, Dairy Free goodies I don't get this feeling) donuts, french toast, bread, bagels and cream cheese, cake, cookies etc.

One day I started out my day with 2 Dunkin Donuts (about 7 years ago) and felt as if someone had walloped me. Felt like just going back to bed ASAP....I told my husband NEVER let me have donuts for breakfast again! That was before I new I had food allergies/intolerances...but I felt that profound energy drop for me at that time. It wasn't always like that I had eaten foods like that all my life previously and I guess after a while my body screamed " I can't take it anymore!"

New Posts from Getting Closer To Myself

2011-12-04T18:13:00.001-08:00

New Posts from Getting Closer To Myself

The Art Of Self-Injection

Posted: 04 Dec 2011 06:19 AM PST

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Lupus Hope

2011-12-03T03:12:00.001-08:00

Lupus Hope

Non- Toxic Toothpaste and dental health

Posted: 02 Dec 2011 06:16 AM PST

Commercials don't always tell the whole story...Click below to see an older Colgate commercial. Are the bacteria and "biofilm" all bad bacteria that we are killing with the toothpaste? As usual I wonder if it's overkill...in every bacterial system in our body intestines, skin, mouth, etc. there are good bacteria and bad bacteria. We don't want to kill everything! We just want a balance of more good bacteria over the bad...

http://www.bing.com/videos/search?q=colgate+toothpaste+commercial+2011&view=detail&mid=D1CE52306373A343BEA7D1CE52306373A343BEA7&first=0&FORM=LKVR3

Been wondering if brushing your teeth with conventional toothpaste is a good thing. Is killing your "biofilm" completely (or almost completely) a good idea?? Or does it contain healthy bacteria as well....

Weston Price studied dental health of long living and healthiest civilizations that had no modern diseases he reported that even though their teeth were dirty... underneath it all, their teeth were extremely healthy....was it the foods they were eating? the exercise their teeth got from foods they were eating?Did they have some other practice like chewing on anti bacterial sticks** from bushes/trees?
http://soilandhealth.org/02/0203CAT/020305ppnf/price.html
http://www.amazon.com/Nutrition-Physical-Degeneration-Weston-Andrew/dp/0879838167
http://www.curetoothdecay.com/Dentistry/weston_price_dentist.htm

**Since before recorded history, a variety of oral hygiene measures have been used for teeth cleaning. This has been verified by various excavations done all over the world, in which chew sticks, tree twigs, bird feathers, animal bones and porcupine quills were recovered. Many people used different forms of teeth cleaning tools. Indian medicine (Ayurveda) has used the neem tree (a.k.a. daatun) and its products to create teeth cleaning twigs and similar products for millennia. A person chews one end of the neem twig until it somewhat resembles the bristles of a toothbrush, and then uses it to brush the teeth. In the Muslim world, the miswak, or siwak, made from a twig or root with antiseptic properties has been widely used since the Islamic Golden Age. Rubbing baking soda or chalk against the teeth was also common.
Tooth soap
http://store.renegadehealth.com/Liquid-Tooth-Soap-Peppermint-PLUS-Tooth-Brightener-p163.html

Fluoride
http://www.mbschachter.com/dangers_of_fluoride_and_fluorida.htm

Mercury fillings
A small drop can close a lake but they continue to put mercury in children's/people's vaccines and in people's teeth (what are people thinking???)

People with Celiac Disease or otherwise impaired digestion can not absorb nutrients properly and dental enamel problems/ more cavities can ensue.

Toothpaste terrible toxic chemicals (don't swallow) Watch out for SLS Sodium Lauryl/Laureth Sulfate
Also flouride is toxic, then there are the colors/sweeteners etc.

Nadine Artemis/ Longevity/ David Wolfe Their tooth health products

http://www.livinglibations.com/body-care/tooth-care Nadine Artemis at Living Libations

http://www.thebestdayever.com/news/podcast/podcast-81-dental-strategies-with-david-wolfe/ David Wolfe on protecting your mouth's biofilm (like I said there are good and bad bacteria everywhere...I personally don't think we should just kill off everything...otherwise it is like taking antibiotics and killing ALL the bacteria then you need to build up the good bacteria in your intestines with probiotics or the bad bacteria will come back with a vengeance....)

Xrays for cavities - Don't get too many xrays, radiation CAUSES cancer (makes sense that they use radiation to kill cancer too???? (much sarcasm))
http://www.care2.com/greenliving/non-toxic-toothpaste.html Another article from Care2 on Non Toxic Toothpaste

Lupus Hope

2011-12-02T03:09:00.001-08:00

Lupus Hope

Green Decorating and Wrapping Ideas from Whole Living

Posted: 01 Dec 2011 06:43 AM PST

These ideas are great for a homey and healthy holiday. The more you use natural (plant material/plants/rocks/stone/wood/glass/natural organic fabrics) items in your home, instead of plastic and synthetic the better it is for your health as well as your family's health!

On the second link, gift wrap recycling, watch the type of paper, try to get natural paper with natural dyes/inks. Some companies do exist that create these!
http://naturalelementspaper.com/

Green Decorating and Wrapping Ideas
http://www.wholeliving.com/photogallery/green-decorating-and-wrapping-ideas#slide_1

Gift Wrap Recycling Ideas
http://www.wholeliving.com/photogallery/gift-wrap-recycling#slide_1

Debra Freeman Highberger

2011-12-01T19:36:00.001-08:00

Debra Freeman Highberger

YEAR END REFLECTIONS

Posted: 01 Dec 2011 04:55 PM PST

During the entire month of November, I heard people expressing how much they were thankful for. Every day they posted what that day's worth was. They described the usual: family, friends, and in some instances health or fractions of good health which is often the case for a lupus patient. I read each one of these acclamations and wondered, "Is everyone really internalizing these thoughts? Are they mere lists that one feels obligated to write?" Certainly it is a wonderful gesture, but what is the weight of its worth. This got me to thinking about accomplishing grateful endeavors. How can you be grateful for your life if you have no task in which to prove it? Or even better, what process have you gone through to try and accomplish a purpose?

Over the years, I have learned that words are often just words. I have also come to realize that to internalize a thought process means so much more. It is the difference between the "I wills" versus the "I haves". Sometimes we do not reach our destined goals, yet the road that has led us there, if traveled diligently, has brought us to other destinations. It has landed us on the shores of our souls.

People often ask me how I am able to accomplish so much, and yet fight four autoimmune diseases. My first response has always been, because I am afraid. The thought of slowing down and stopping my world in its tracks scares me more than anything. In my mind, when that day comes, that's when they should dig the hole. I respect the wolf. I take my meds and listen to my body. Yet at the same time, ignore what the wolf believes I can no longer do. With this stubbornness I am much better off. Being a visual person, I always see myself as looking over my shoulder, and when the wolf is not looking at me, I run like hell to my next destination. Once I get there I laugh at him. This too, I see visually as me holding my belly and pointing. Being able to visualize yourself as an individual who can accomplish many things is half the battle. Denial?...maybe. Stupidity?...sometimes. Rewarding?...always.

This is not a new way of thinking for me. Having Rheumatoid Arthritis since I was a child, I had learned early on that life isn't always easy. I have always been a project person. It is through these projects I learned the art of distraction. When I was 8 years old I saved bird feathers for two years in hopes of one day making wings to fly. My mother was appalled when she found them in my closet stuffed in a box. I had my first "business" when I was in high school. I reproduced album covers on canvas with oil paint for a local "head shop." By the time I was 21 and living overseas on an army base I painted tasteful nudes for GI's. At the age of 25 I owned a photography restoration lab. This was before computers, when everything was done on the negative by hand. At the age of 33 I opened an art school. It is where my heart is today, eighteen years later. So when the wolf knocked at my door, I wasn't about to bow down to him. It isn't in my nature.

Seven years ago, before the wolf, I set out to give my daughter a graduation gift for her high school achievements. I could have given her the usual, a car or jewelry. But I was so proud of her; I wanted to give her my heart. On Thanksgiving weekend 2004, I started writing my memoir. She had not known the stories of my past. We did not have family to gather around a holiday table to relate them. In this way she was deprived. I wanted to give her the gift of my history and therefore hers as well. I finished the project with a 500 page chronicle of my life. I have led a very interesting life. I have traveled and lived abroad for several years. Alone in the world at a very young age I had experienced an epic existence of struggles and accomplishments, with often hilarious paths along the way. The point I was making for her is that you never grow up…one just keeps on growing, and it is the journey that counts more. It is ok to be fearful, stupid and make mistakes along the way, because life is an adventure and this is how you learn. After I completed this project, I felt it had done its job and set it aside. With the encouragement of some friends who had read it, this year I turned it into a novel. I added some characters and made it a complete story; soon it will be published. The process it took to complete this task was the most rewarding in my life thus far. The feeling it gave me, healed me. It was such a wonderful experience it drove me to want to tell everyone if you believe you can do something then you can, but arriving is not the goal. It was not the finished book that was my reward, but the journey on which it took me.

So I ask you? What can you do today that you didn't think you could because of illness or adversity? It doesn't have to be a great feat. Small accomplishments are equally rewarding. With ever little stride that is taken you will find larger steps to be easily obtained. Sometimes a daunting endeavor is actually a series of smaller obstacles that are effortlessly hurtled. With my book, I chose to just write one chapter at a time. Every completed chapter gave me strength. Although I felt the prize would be its completion, it in fact was its process that gave me the most reward. As in C.P. Cavafy's poem, Ithaca, which recounts a journey through many adventures that finally leads to the arrival in the harbor of Ithaca, the poet indicates that one must not rush ashore to claim your prize to find your treasure. The treasure is your journey and it is yours already. The best part of this type of thinking is the reward of self that one receives. Your life will seem to have the worth of your grateful yearnings. It drives you to want more. For me, the collected feathers that were never fashioned into wings; actually were. They began my flight that brought me here on this voyage today.

http://ninaalvarez.net/2007/05/03/poem-of-the-day-49/

New Posts from Getting Closer To Myself

2011-12-01T18:10:00.001-08:00

New Posts from Getting Closer To Myself

Why I Write (A Chronic Illness Blog)?

Posted: 01 Dec 2011 06:03 AM PST

For the next edition of PFAM, Sharon asks us, as chronic illness bloggers, to reflect on why we write/blog. I think this is a great question. Writing is in my blood. It's what I do. I've been writing since as far back as I can remember. I was born to write. I've always kept journals, but in the past, most of the writing about myself has been a private venture. I think it's a big step to

Lupus Hope

2011-11-30T04:24:00.001-08:00

Lupus Hope

Lupus, Gluten and Hypo Allergenic Diet Research (A Repost)

Posted: 29 Nov 2011 05:40 AM PST

11/29/2011 Another link that I found today on the subject, check the end of the articles medical references too if you want to read further and delve deeper!

http://www.livestrong.com/article/441827-lupus-and-gluten-intolerance/

http://www.livestrong.com/article/284635-gluten-free-diet-for-lupus/?utm_source=popslideshow&utm_medium=a1

Want a book to read to learn more (I found it at my local library)....has the story of how Dr. Wright "cured" 100 cases of Lupus completely with diet change (from reading the book a long while ago I believe it was a diet free from gluten, dairy and beef--not sure if there were more foods eliminated I will request the book to take a look again)...worth a look! Knowledge is power!
http://www.amazon.com/Trace-Your-Genes-Health-Overcome/dp/1890612235/ref=sr_1_1?ie=UTF8&qid=1322573136&sr=8-1

The rest of this is from an older blog post (an oldie but a goodie) Please read!

Someone had posted a website link on my blog a while back and I was just re-reading it the other day. The rest of this post is from someone else. Below is this person's opinion and research. Read on below. I am doing more research on Dr. Reading and Dr. Wright for myself.

A little bit more on Lupus...

There are actually many cause and many approach towards treatment of Lupus depending on how you look at it. If the treatment is to prevent hair loss caused by lupus, treatment with prednisone might stop hair loss. There is a story of an Australian doctor who successfully treated lupus based on gluten allergies which was to avoid all grains except corn and rice. Here is some information:

Dr Reading, an Australian doctor who cured a hundred Lupus [SLE] patients by [among other things] taking them off all grains except RICE and CORN. Dr Wright discussed the connection between a Lancet article recently reporting a link between the genetic marker HLA-B8 and 17 diseases with what he had learned from Dr Reading. All but one of the 17 diseases [Celiac Disease] arethought to be autoimmune diseases. Dr Wright deduced that if dietary restriction of gluten cured the one gene-linked disease known to have an external cause that perhaps all of the gene-linked diseases had an external cause and that it might just be gluten sensitivity!

I would bet on it!!

Here is the list of the diseases linked to the gene that might respond to restriction of gluten containing foods. My advice is that ANY patient with one of the following diagnoses be taken off ALL grain and ALL dairy products until their involvement is ruled out.

Addison's Disease

Autoimmune hemolytic anemia

Celiac disease

Childhood asthma

Chronic autoimmune hepatitis

Dermatitis herpetiformis

Grave's disease

Insulin dependent (type 1) Diabetes mellitus

Lupus erythematosis

Myesthenia gravis

Pernicious anemia [100% also suffer total lack of

stomach acid]

Polymyalgia rheumatica

Scleroderma

Sjogren's syndrome

Thyrotoxicosis

Ulcerative colitis

Vitiligo

Dr Wright recommends the tTG test for gluten/gliadin sensitivity, a measure of tissue transglutaminase and supposedly the most sensitive test now available. Information from a website is included below for your convenience.

Other tests are the endomysial antibody test [EMA] for short lived antibodies and the antigliadin antibody [AGA] test for the longer lived IgA and IgG antibodies.

Be sure the patient has consumed gluten containing foods right up until test day or the tests might show negative even in gluten sensitive people.

Again there is a story of someone who was "cured" of lupus taking a common medicine available in most pharmacy stores, Calorad.

Some people are allergic to certain drugs and environmental toxins. So stopping certain medications, or drugs might help. Common drugs that induced lupus are procainamide (Pronestyl) hydralazine (Apresoline) quinidine (Quinaglute). Also, its been known that taking nasal vaccines causes lupus to be much worse. Discontinuation of vaccines might also be helpful.

Personally, I suspect that many authorities know what causes lupus and its cures, but they are keeping it mum and for a good reason. There has been many stories I hear of people taking vaccinations such as polio and hepatitis A for example then suddenly wham, lupus! I hear that taking high dose steroids for example cured lupus. Hormone therapy such as prednisone were also helpful.

Let me conclude about treatment with Lupus to make it simple: The main cause of lupus is nucleic acid deficiency. Supplementation with RNA/DNA, liquid protein supplements (e.g. calorad) and Sulfur rich foods and sulfur supplements (MSM, Brewer's Yeast, Selenium) and cofactors for DNA synthesis such as vitamin B complex should help along with TMG (Trimethyglycine).

Finally avoidance of gluten containing foods such as white flour and wheat, sugar, overcooked meats, drug medications, and vaccine should eliminate most of the lupus conditions. Short term treatments such as steroids and prednisone might be helpful. Detoxification is necessary in first stages such as liver detoxification, and reduction heavy metal toxicity by using EDTA for example are the basics. Elimination of environmental toxins is also important. If you just follow this email alone, most of the conditions of Lupus should be alleviated."

Lupus Hope

2011-11-29T03:23:00.001-08:00

Lupus Hope

Healing Scriptures

Posted: 28 Nov 2011 05:42 AM PST

Hope you all had a Happy Thankgiving and a pleasant weekend!

This post is dedicated to Rosa, who fought with me that God makes certain people sick for them to suffer and that for some there is no hope of getting well....this is for her....

God wants you to be well! He will show you how to get well if you will follow His lead. He led me along step by step and He will do the same for anyone else! Read the Healing Scriptures link below.

I definitely feel I got sick for a reason. It was a learning experience. Getting sick helped me learn to be healthier and to help my family, friends and everyone I meet to be healthier as well! I learned:

1) I shouldn't treat my body like garbage and just throw in unhealthy food
2) I need to exercise
3) I need to have healthy relationships/less stress
4) I need to say "No" if I am too tired
5) I need to take time to care for myself first then I will have more to give to others
6) I needed to research how to be and stay well naturally/holistically
http://www.faithandhealthconnection.org/uploads/bible-scriptures-on-healing.pdf

Lupus in Flight

2011-11-27T05:24:00.001-08:00

Lupus in Flight

Wilderness

Posted: 26 Nov 2011 04:46 PM PST

The tide turns:
this wilderness is my domain,
transcending images
to ascertain
a single truth
amidst the lies;

there are no lies,
only whens and whys;

We don't belong
this family of I's,
We live to die
in peace and strife,
Our tragic lives
are alibis.

We fear to seek
the deeper still,
in case we fall
and falling fail,
to fulfil the telling
of our tale.

© Shaista Tayabali, 2011
for dverse poetry prompt 'wild';
Matisse, 1916, The Piano Lesson (Time intersects in this composition; in the open living-room window of Matisse's house at Issy-les-Moulineaux, outside Paris, his son Pierre practices the piano. A candle sits on the instrument, illuminating a triangle of lawn. In the bottom left corner is a representation of one of Matisse's sculptures, Decorative Figure (1908), while the severe "teacher" in the opposite corner is actually a representation of the painting Woman on a High Stool (1914). Precise geometry and elusive illusion!)

Lupus Hope

2011-11-24T03:21:00.001-08:00

Lupus Hope

You or someone you love has Lupus? What next...

Posted: 23 Nov 2011 08:10 AM PST

I get letters occasionally that ask for specifics of what to do to help someone that has Lupus or has been diagnosed with Lupus. Feel free to contact me. I would love to talk to you or help you in any way that I can.

First thing though...I am NOT a doctor....I am a Nutrition Consultant and a person that has Lupus and a blogger that researches diet and holistic healing with reference to Lupus (and other diseases) ....but I do have some things that I can recommend through my experience and the research and reading that I've done for the past 6 years.

1) Get tested for Celiac Disease through your regular doctor or even better a gastroenterologist.

2) Find a great holistic doctor

3) Get an IgG food allergy test, or an ALCAT test

4) Avoid any food allergens that you are found to have

5) If all the food allergy tests come back negative...I seriously doubt it...try an elimination diet (only try the elimination diet AFTER you are tested for Celiac Disease- though you can try an elimination diet after the Celiac test and before the IgG or ALCAT test)

When you are finished with the above steps, then gradually do as many of the action items on the following 2 links that you can (go slow don't get overwhelmed)

I need to combine these 2 lists into one but I haven't yet....please look at both....

So you have Lupus What do you do next?
http://lupushope.blogspot.com/2010/02/so-you-have-lupus-what-do-you-do-next.html

General Health Tips for Everyone
http://lupushopehealingplan.blogspot.com/2011/06/general-health-tips-for-everyone.html

Lupus Hope

2011-11-23T03:45:00.001-08:00

Lupus Hope

Eat UR Veggies dot com

Posted: 22 Nov 2011 05:19 AM PST

Check out this woman's blog. She has Lupus and is on a Whole Foods Diet.
http://www.eaturveggies.com/

CHRONICLYsILLy

2011-11-22T23:19:00.001-08:00

CHRONICLYsILLy

My Journey with Benlysta- Infusion #2

Posted: 22 Nov 2011 10:14 AM PST

Infusion #2- My Journey with Benlysta!

Good Afternoon to you all, and I hope you are all preparing for a happy and healthy (I use the term loosely, but nonetheless...) Thanksgiving coming this week! My Turkey Day week started off with my second infusion of Benlysta, the 2nd of the first 3 that are given in the first month as the loading dose, to jump start the process! After that it will be given once, monthly- now I am no fan of infusions but for the timing being it certainly beats adding another pill into the already ridiculous routine ( at last count it was 32 pills a day- ABSURD and working to get that number way down -beginning with getting off the dreaded and yet beloved- PREDNISONE!)

The infusion, however is made so much more pleasant due to the lovely nurse Debbie, whose bedside manner is immaculate, and who truly makes you relaxed and comfy for the entire process ( I mean the Pre-infusion Benadryls help take the edge off too- LOL)! Things went smooth with the infusion, and I was a bit concerned as to whether or not I would be able to get my second infusion as scheduled due to a recent stay at CLUB H (the trendy Hospital in town). It's all the rage this fall season and has all the latest trends from the hole-y hospital gowns that apparently are only made on triple XLs, to the latest in food (on the all liquid diet- it was all the rage in hollywood too last year!), from yogurts to soup broths what more could a gal want! But my colitis is calming down, I am on the mend and we were able to get the go-ahead from my Rheumatologist to move forward with the infusion!

Once I was hooked up to my mock-tail (medical cocktail), it took about an hour from start to finish, and I was out the door and on my way home to sleep off the Benadryl (it always makes me a little more Loopy than usual!) And aside from the day after mini-hangover feeling and headache I have had minimal side effects from the Benlysta and am very happy with how I have tolerated it thus far. My next infusion, the last of my loading dose is schedule for December 5th, 2011. Wish me Luck and have a fantastically silly Thanksgiving full of spoons!

[New post] The newest “TREND” on the net

2011-11-22T17:01:00.001-08:00

The newest “TREND” on the net

by Nicole Scholz

**Disclaimer** The thoughts and words posted here are my opinions and thoughts from what I have experienced, nothing less, nothing more, just opinions, much like elbows every has them............onto the posting****

Before I go into my actual reason for posting, I will update health wise. Today it was been 4 weeks since my Oral surgery, and the gums are healing up great Doc says they are healing better than he imagined they would. Yayyyy!

Thanksgiving is right around the corner and Dack and I's family have yet to prove to surprise us again this year. Same ole same ole' His Dad is driving two times the distance it would be to here to spend the holiday with his brother, and Dack's brother's "boyfriend" doesn't like to share and won't let his brother bring our nephews down to spend the holidays with us. Our son left for Alaska in April and our daughter lives in Ohio and her Bio Dad brought her step sisters up so they all could spend the week with them. So it will be just my husband and myself, we have plans with friends, & things are going to be great Our families are fairly reliable every year, they leave us out every time, I am used to it, my family has always been pieces of shit, however my husband was used to his mom making everyone come over and making everyone get along. When she passed away, that all stopped and it seemed his father and brother couldn't have been happier they finally got to do what they wanted to do...............FINALLY, to which didn't include us.

Ok now the drumroll...........................to announce the newest "Trend" when you decide you dont like something one of your friends does or say the newest thing is "DE-FRIENDING" them on Facebook. Really?.........................................seriously like this is goint to hurt my feelings. It tells me one thing straight on, you're a coward, if you can't tell me and talk to me like an adult why you have a problem with me, you think that it is going to shatter my world that you take me of your friends list.

This particular friend I know why he did it. he started in giving me parental advise, again Hi he is a 46yr old man been divorced 20yrs and has no kids, and he decided he thought some girl he slept with years ago that had a baby that is what his. 13yrs later he goes to the grandparent tells her he is sure it is his kid and then he manages to TALK to this little girl without her MOTHER knowing(if this was my kid he would be dead) was promising to pay her college tuition, and I Pad and a shit ton of other things, all this while getting evicted from apt after apt working a temp job that does catering jobs, so he is a 46yr old waiter, who says he can get other jobs, but doesn't. Now.........here is what I think happened and I was thinking it would happen all along. He had a paternity test done and she isn't his.......... .and OMG this guy can't ever be wrong, he will go off the grid before someone finds out he is wrong. What he doesn't realize is that he is wrong a lot and a lot of ppl know, he is the only one that doesn't know that he is wrong lol. He claims to be a "Famous" photographer, an Award winning writer (One award), he sells himself as a novelist to which he probably sold 30 copies that he independently published so NO ONE has ever heard of his book. He gets an article or two published in magazines, like Obscure sports digest (movie reference) His whole persona is fake. Yet he criticizes everyone about every little fault they have, basically to make himself feel better. So, the only reason I notice he had de friended me was my hubby has a Chrome program that tells you when someone de-friends you the date and time lol I was in using the office computer and that is where the program is on the browser. He came in looked over my shoulder and I had the page open to see who it was, and my hubby was like awwww I guess you won't get to share in all that wealth and fame he has, he is too good for you know baby, and we both laughed, and I said well at least when he gets kicked out of his next place he won't be asking us to stay here, that is a huge plus. lol So this new hurt your feeling's trend............not catching on.

He can sit and waste time pretending he is someone important, when I know I am important my husband and kids and that is satisfaction enough. When he is getting evicted from his next apartment, trailer, hotel or where ever I will be fast asleep, because this fellas style is to jump ship in the middle of the night.

Be aware people of St. Louis, Mo Tommy "Jonq" as he calls himself, is his double personality where he lives out his fantasy world. For all you CREDITORS Thomas Horan will rent from you and disappear in the night owing you rent. He works for Temporary Companies for a reason......can't run out on your bill when you work for a REAL corporation Ask a sleep by numbers company manager to run his name, he bought a bed in Iowa and never paid for it or so he claims, he lives a lie so you never know when he is lying or if he even knows the difference is anymore. His mother was a brilliant woman, she was also an alcoholic, and was bipolar schizophrenic, to which has more than noticeably been passed down to him, he feels it all a matter of mind over matter, if he thinks he isn't mentally ill he won't be. LMAO Wouldn't i t be nice if were that easy. Be very careful around this man, I have known him my whole life, he is manipulative, vindictive, & he will be-friend you to get what he can suck out of you for his needs and then drop you like a bad habit. He owes a mutual friend of ours quite a bit of money and as to here my friend tell it, its the opposite way around...seeing a pattern, here he lives in a twisted little world that suits his needs and his only. Our mutual friend said he never expected to get it back when he helped him out, He says the same as I do, he will never change, he see's us as all being unstable, instead of the other way around.

I have recorded conversation of this man's ramblings and my husband, friends & my psychiatrist has listened, and he said its ramblings of a bipolar schizophrenia, with Narcissistic personality disorder, & other things, he has let other Dr's listen and this man can be dangerous the longer he goes without treatment. So if you know him... congratulations he is your friend now and no longer mine, I don't need any more chaos in my life. I like it boring as it is now.

Will post again in a couple days...........until then.............BE CAREFUL ST. LOUIS, MO (kind of another movie reference ending lmao)

Nicole Scholz | November 22, 2011 at 7:01 pm | Categories: Nicole's crazy life | URL: http://wp.me/pG1m3-j7

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Lupus Hope

2011-11-22T03:05:00.001-08:00

Lupus Hope

Who Owns the Organic Brands?

Posted: 21 Nov 2011 08:15 AM PST

Who owns those organic health food brands at the grocery/health food store? Scary....You can only hope they are doing "the right thing". Using non GMO, organic, and sustainable farming etc.
Click on the links for the article/video and organizational chart.

http://www.cornucopia.org/wp-content/themes/Cornucopia/downloads/OrganicT30J09.pdf

http://articles.mercola.com/sites/articles/archive/2011/11/19/mark-kastel-cornucopia-good-food-movement.aspx?e_cid=20111119_DNL_art_1

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New post on Nicole's crazy, tragic Sometimes almost magic Awful, beautiful life................

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