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<channel>
<title>Mamassage</title>
<link>http://bupp.blogs.com/rowan/</link>
<description>I live in the Arizona high country with my husband and two kids. 

Maya, my older daughter, started high school this year, and I can't believe it.  When did I get so old?  It seems like only yesterday, that I was gawky and worried about whether or not the guy in front of me in English class liked me or not.  Now I get to watch (with horror) as she goes through all the same triumphs, anxieties and lessons.

My younger daughter, Kajsa, is three.  Yep, I have a 15 year old and a 4 year old.  I guess I must like a challenge.  

Speaking of challenges...Kajsa was diagnosed with Kidney Failure when she was 39 days old.  She hit end stage before her first birthday.  She went onto the transplant list on November 23, 2005.  And on June 3rd 2006 Kajsa received her kidney!  We cannot ever fully express the gratitude we feel each and every day.


My husband, Chris,  is currently going to school for welding.  He is also a fish guy.  We have a big ole tank with several kinds of Cichlids.  If you ever have any questions about fish care, I would be happy to deliver them.

Although I am a full time mom, right now, my training is as a massage therapist and Doula.  Now that Kajsa is transplanted,   I am looking forward to going back to work. I'm just waiting for things to be truly settled.  

My longer term goal, though, is to go back to school once Chris has finished.  After all that we've been through, my respect and admiration for nurses has become great enough that I, too, want to make a difference in people's lives when they need it most.  What a gift to be able to return such love to the world. 
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<title>Take Action!</title>
<link>http://bupp.blogs.com/rowan/2007/08/take-action.html</link>
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<description>People with organ transplants must take immunosuppressive (anti-rejection) drugs for the life of the transplant in order to lower the chance that the body will reject the organ. Currently, Medicare pays for most transplants and covers drugs for 36 months...</description>
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<p>
People with organ transplants must take immunosuppressive (anti-rejection) drugs for the life of the transplant in order to lower the chance that the body will reject the organ. Currently, Medicare pays for most transplants and covers drugs for 36 months after the transplant if the person does not qualify for Medicare because of age or disability. At the end of the 36 months, the kidney recipient must pay for immunosuppressive drugs through private insurance, public or pharmaceutical programs, or pay out-of-pocket.

 </p>

<p>

Too often, people with kidney transplants must choose between taking the medication they need and other living expenses, and they may miss doses or stop taking the medication altogether, increasing the risk that the transplant will fail. Some people on dialysis may even decide not to have a transplant because of worries they will not be able to pay for the drugs.

 </p>

<p>

Although immunosuppressive drugs are very expensive, costing $10,000 - 20,000 a year, if the transplant fails the person returns to dialysis at a cost of over $65,000 a year to Medicare, far more than the cost of the drugs. Congressmen Dave Camp (R-MI) and Ron Kind (D-WI) introduced H.R. 3282 that would extend Medicare coverage of immunosuppressive drugs for the life of the kidney transplant. This is a big step toward preserving the life of kidney transplants!

 
</p>

<p>
Please write to your Representatives and ask them to co-sponsor HR 3282. Share your story, or the story of a loved one, about your experiences with immunosuppressive drug coverage. </p>

<p>For more information on this topic, please click <a href="http://www.kidney.org/takeaction   ">here</a>.</p>

</span><span style="font-size: 12pt; font-family: &quot;Times New Roman&quot;;">&nbsp;</span>

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<category>Current Affairs</category>
<category>health</category>
<category>Kajsa</category>
<category>kiddoes</category>
<category>Organ Donation</category>
<category>Publicity</category>
<category>Science</category>
<category>seen and heard</category>

<dc:creator>Rowan</dc:creator>
<pubDate>Sat, 11 Aug 2007 18:43:42 -0700</pubDate>

</item>
<item>
<title>sleepy</title>
<link>http://bupp.blogs.com/rowan/2007/08/sleepy.html</link>
<guid isPermaLink="true">http://bupp.blogs.com/rowan/2007/08/sleepy.html</guid>
<description>sleepy, originally uploaded by mamassage. Taken at Mimi &amp; Papa's rental house during their visit. I'm just trying out the blogging photos option on Flickr. By the way, if for some reason you don't know Flickr; it's time to crawl...</description>
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<p><style type="text/css">.flickr-photo { border: solid 2px #000000; }.flickr-yourcomment { }.flickr-frame { text-align: center; padding: 3px; }.flickr-caption { font-size: 0.8em; margin-top: 0px; }</style></p>

<div class="flickr-frame">	<a href="http://www.flickr.com/photos/bupp/978584554/" title="photo sharing"><img src="http://farm2.static.flickr.com/1234/978584554_cf077351a1.jpg" class="flickr-photo" style="width: 334px; height: 254px;" /></a><br />	<span class="flickr-caption"><a href="http://www.flickr.com/photos/bupp/978584554/">sleepy</a>, originally uploaded by <a href="http://www.flickr.com/people/bupp/">mamassage</a>.</span></div>	
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<p class="flickr-yourcomment">	Taken at Mimi &amp; Papa's rental house during their visit.&nbsp; </p>

<p class="flickr-yourcomment">I'm just trying out the blogging photos option on Flickr.&nbsp; By the way, if for some reason you don't know Flickr; it's time to crawl out from under that rock &amp; give it a whirl.&nbsp; It's a lot of fun.</p></span>

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<dc:creator>Rowan</dc:creator>
<pubDate>Wed, 08 Aug 2007 17:16:30 -0700</pubDate>

</item>
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<title>Neat Story</title>
<link>http://bupp.blogs.com/rowan/2007/08/neat-story.html</link>
<guid isPermaLink="true">http://bupp.blogs.com/rowan/2007/08/neat-story.html</guid>
<description>LOS ANGELES, August 7, 2007 (KABC-TV) - The push by the Department of Motor Vehicles to get more people to become organ donors led to one DMV employee giving the gift of life to another. Gaston Gonzalez had needed a...</description>
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<br /><p class="firstParagraph setTextSize"><span class="dateline">LOS ANGELES, August 7, 2007 (KABC-TV)</span>
- The push by the Department of Motor Vehicles to get more people to
become organ donors led to one DMV employee giving the gift of life to
another.</p> 

			
			<p>
Gaston Gonzalez had needed a new kidney since 1999.
</p>

<p>&nbsp; &nbsp;&nbsp; 
No one in his family was a good donor match.
</p>

<p>&nbsp; &nbsp;&nbsp; 
But at a Donate Life event last year, fellow DMV employee Hooshang Torabi heard Gonzalez's wife tell their story.
</p>

<p>
Torabi offered to donate a kidney to Gonzalez in honor of the donation
his daughter made to save her mother's life with a kidney donation in
1998.
</p>

<p>
The two underwent a great deal of testing and it was determined Torabi was a perfect match. The transplant occurred last week.</p>

<div id="relatedLinksStoryBody">
<div id="relatedLinksStory">

<div id="relatedLinksBody">
<ul id="storyRelatedLinks"><li class="relatedlink"><a href="http://www.onelegacy.org/prod/components/" target="_blank">LINK: Transplant Donor Network (www.onelegacy.org)</a></li></ul>
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<category>family at large</category>
<category>health</category>
<category>Kajsa</category>
<category>Organ Donation</category>
<category>Science</category>
<category>seen and heard</category>

<dc:creator>Rowan</dc:creator>
<pubDate>Wed, 08 Aug 2007 13:19:01 -0700</pubDate>

</item>
<item>
<title>Cock</title>
<link>http://bupp.blogs.com/rowan/2007/06/cock.html</link>
<guid isPermaLink="true">http://bupp.blogs.com/rowan/2007/06/cock.html</guid>
<description>So lately Kajsa’s been into making inappropriate noises as often as possible. It’s annoying, but we know hope it’s a phase. Having experienced Maya when she was four; however, I have a bit more patience for it than Chris does....</description>
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<p class="MsoNormal">So lately Kajsa’s been into making inappropriate noises as
often as possible. It’s annoying, but we
<del>know</del> hope it’s a phase. Having experienced Maya when
she was four; however, I have a bit more patience for it than Chris does. </p>



<p class="MsoNormal">Unfortunately, though, Kajsa was at the store with Chris
when the following interaction occurred.</p>



<blockquote><p class="MsoNormal">Some dear, sweet little old lady walked up to Kajsa
proclaiming, “Oh what a cute little girl.”</p>

<p class="MsoNormal">Kajsa immediately turned to sweet little old lady and
bellowed, in a preternaturally low voice, “Cock!” </p></blockquote>





<p class="MsoNormal">I’m not sure what Chris did at that point as this is the
part of the story where I interrupt each time, either with fits of
inappropriate giggles or queries as to where she could have picked up on such
vernacular.</p>



<p class="MsoNormal">Part of me feels that I may be to blame. You see, Kajsa’s favorite restaurant, bar
none, is the Chinese one down the road. The woman who owns the place coddles my girl telling her how proud she
is that she eats spicy Kung Pao Tofu. She, additionally, always gives Kajsa
some little gift as we leave. These have
been everything from a bird whistle that you blow water through to make it sing
- to magnets with full frontals of koala bears. Seriously, they're odd. And
yet, there they are – proudly displayed on our refrigerator. </p>



<p class="MsoNormal">Anyway, while waiting for our food to arrive, we always have
to check out the placemats’ <a href="http://chinese.astrology.com/rooster.html">Chinese
Astrology</a>. Chris is a rabbit. Maya’s a monkey. Kajsa’s a sheep. And when it gets to me, having been born in
1969, I unfailingly proclaim, “I’m a cock!” </p>

<p class="MsoNormal">And so I am. I’ll crow all day
unless you put a bag over my head. Heck
we moved out into the middle of nowhere with nothing to do and thousands of
miles between myself and anything or anyone familiar. So what did I do, I started a blog and began
some cyber crowing. But this isn’t
really about me, is it?</p>



<p class="MsoNormal">It’s about my dear sweet little girl with a mouth like a
sailor. We’ve caught her saying a few
other questionable (at best) things lately as well. She’s called her new puppy, Rufus, both a “little prick” and a “little
pussy”. (Hmmmmm…Canis Hermaphrititus?) </p>



<p class="MsoNormal">Now, I <strong>know</strong> she didn’t get those here. When we asked her where she <em>did</em> hear them, her response was,
“Pre-school – a loooong time ago.” Mind
you, she’s barely four. And while that
does, somewhat, let me off the hook; it seems that now I get to have a fun, and
oh so comfortable, conversation with her teachers. </p>

<p class="MsoNormal">I’ll let you know how it goes.</p>

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<category>Kajsa</category>
<category>kiddoes</category>

<dc:creator>Rowan</dc:creator>
<pubDate>Mon, 25 Jun 2007 09:18:58 -0700</pubDate>

</item>
<item>
<title>Paul's Day</title>
<link>http://bupp.blogs.com/rowan/2007/06/pauls-day.html</link>
<guid isPermaLink="true">http://bupp.blogs.com/rowan/2007/06/pauls-day.html</guid>
<description>June 21st marks a very important anniversary in my family. Three years ago my father-in-law, Paul decided to discontinue dialysis therapy. This may seem to be a horrific thought to some of you out there. But for him it was...</description>
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<p>June 21<sup>st</sup> marks a very
important anniversary in my family. Three years ago my father-in-law, Paul
decided to discontinue dialysis therapy. This may seem to be a horrific thought
to some of you out there. But for him it was a very courageous and well thought
out decision. <o:p></o:p></p>

<p class="MsoNormal">You see, Paul had developed type one diabetes
at 11 or 12 years old and lived with it for 48 years. He was originally told
that he probably wouldn’t live to be thirty. He and my mother in law, Lynne,
had three rowdy boys: Steve, Erick &amp; Chris; followed by a very much alive
daughter, Heather. Paul also got to see all of his boys married, as well as
looking into the eyes of four beautiful&nbsp; granddaughters.&nbsp; So he’d
seen so much more than he ever expected to.<o:p></o:p></p>

<p class="MsoNormal">Now during this time his health continued to
decline. By the time that I met Paul, he was already sporting two prosthetic
legs and soon thereafter lost three of his fingers. I saw him go in and out of
the hospital and rehabilitation centers more times than I remember. Through all
of this, he usually kept both his senses of wonder and humor. It often made me
feel awed, myself when I was around him. His love of life tended to be
contagious. Now I’m not saying that every day was fluffy clouds and flying
unicorns. But looking back, his joy of life and thirst for divinity, are what I
remember most about him. <o:p></o:p></p>

<p class="MsoNormal">When he went back into the hospital for the
last time, he’d lost another dialysis catheter site and they were talking about
placing a port in his last whole arm. It actually didn’t take Paul long to
decide that this wouldn’t do. I cannot possibly imagine the conversation that
he must have had with Lynne. To try to do so might just break my heart. We got
the call later that day to tell Chris that his father had decided to allow
himself to die with dignity. How could he not – it was how he’d lived his life.
We made some phone calls and headed off to the hospital. <o:p></o:p></p>

<p class="MsoNormal">Paul couldn’t see very well by then, but was
so overjoyed to have us present. There were so many photo albums to pore over
and talk about. I left for a while as I knew that relatives would be pouring in
and I wanted to clean the house. This also gave the boys some time alone with
their dad. <o:p></o:p></p>

<p>Calls were quickly made to Hospice and Paul
was brought home to receive his constant flow of visitors. His last meal was
delicious biscuits and gravy ala my brother-in-law, Erick (who had raced back from <st1:state></st1:state> California) and on father’s day he had the tiniest sip
of scotch with his children.</p><o:p></o:p>

<p class="MsoNormal">It took 3 days for Paul’s body to shut down
and he left us on summer solstice – the longest day of the year. He breathed
his last breath in the most, well, beautiful way imaginable – with his family
all standing round holding him and telling him that they loved him. And we all
meant it so incredibly much. I think that everyone who ever knew him is a
better person for it. <o:p></o:p></p>

<p class="MsoNormal">It has been a few years since that night, but
I still think about Paul every day. Whether I’m playing with his grand-daughter
and she looks at me just so or I find myself gawking at the beauty of life with
its full spectrum of possibilities, he’ll just pop into my head. As the
anniversary of his passing has drawn nearer I’ve felt an increasing need to
express my love and admiration for Paul – husband, father, son, brother, uncle,
seeker, teacher, adventurer, inspiration…<o:p></o:p></p>

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<category>family at large</category>

<dc:creator>Rowan</dc:creator>
<pubDate>Wed, 20 Jun 2007 22:12:53 -0700</pubDate>

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<title>tribute</title>
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<description>Moreena over at Healthcare Hollaback &amp; The Wait and Wonder has sent out the request for positive hospital stories as they pertain to the folks who in their kindness have pulled our stays further from unbridled terror. And I was...</description>
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<p class="MsoNormal"><strong>Moreena
over at <a href="http://healthcarehollaback.blogspot.com/">Healthcare Hollaback
</a> &amp; <a href="http://thewaitandwonder.clubmom.com/thewaitandwonder/">The Wait and
Wonder</a> has sent out the request for positive hospital stories as they
pertain to the folks who in their kindness have pulled our stays further from unbridled terror. And I was so pleased to
find myself torn when trying to decide who to honor. Finally, I settled on the thought possibly
posting more than once. <o:p></o:p></strong></p>

<p class="MsoNormal"><strong>The
following submission is but a snippet of a(n even) long(er and more) <a href="http://bupp.blogs.com/rowan/2006/01/monday_memories.html">rambling post</a>
I wrote in January of 2006. In it I
barely mention our midwife and the wonderful pediatrician she recommended. Were it not for this chain of caring
professionals; however, Kajsa would have wasted away to a toxic bit of nothingness. They forever hold my grateful heart in their
souls.<o:p></o:p></strong></p>

<p class="MsoNormal"><strong>The
true honoree of the post is a nurse, named LaDawn. And bear in mind that while she was, indeed,
a real live person; she has come to represent to me an archetype of sorts – so
often have I thought of her. <o:p></o:p></strong></p>

<p class="MsoNormal"><strong>And
now for the real post. </strong></p>

<p class="MsoNormal">~~.~~.~~.~~.~~.~~.~~.~~.~~.~~~.~~<br /><strong> <o:p></o:p></strong></p>







<p class="MsoNormal"><strong>One
of the things that Chris always loved best about me was my parenting style. So
when we found out that we were to have a baby, we were elated. We signed up
with Baby Diaper Service, took Bradley classes, and found the best midwife
imaginable. <o:p></o:p></strong></p>

<p class="MsoNormal"><strong>Kajsa
was born at home on a warm late spring day. She was full term (although a bit
small) and had all her fingers and toes. We figured the rest was the easy part.
After all, I was an old pro. I’d always remembered the words of Maya Angelou,
“<em>Ain’t no trouble when you’re packin’ for double.</em>”<o:p></o:p></strong></p>

<p class="MsoNormal"><strong>Toni,
our midwife, came by at day three to do the heel stick. I cried and cried to
think of anyone hurting my baby. It all came back normal. Kajsa was a bit
underweight. But, we figured all babies drop at first. <o:p></o:p></strong></p>

<p class="MsoNormal"><strong>When
Kajsa was still dropping at 2 weeks, Toni gave us the name of a very good
pediatrician. Dr. Oriel is this neat little guy who reminds me of Peewee Herman
with out the annoying laugh or off beat movie preferences. He had actually
taught at Albert Einstein, and has a huge love of babies. We went to see him. </strong></p>

<p class="MsoNormal"><strong>He began to talk to us about vaccination schedules. We told him that just was
not gonna happen. While he was not exactly OK with this he agreed that it was
our decision to make, and asked only that we read his information, as well as
the literature upon which we had based our decision. </strong></p>

<p class="MsoNormal"><strong>Dr.
Oriel was also worried about Kajsa’s weight and had me go to see a lactation
specialist to make certain that I was nursing well and that she didn’t have any
problems with sucking. While we were at it, we began checking to see if she was
allergic to my milk. This, I thought was the most absurd and insulting of notions
I’d ever heard. Now I wish with all my heart that this had been the issue. I
would have been quite put off, but I would have eventually gotten over it.<o:p></o:p></strong></p>

<p class="MsoNormal"><strong>I
was pumping around the clock and mixing my milk with formula at high caloric
ratios to try to fatten her up. But she just kept dropping weight. We met Dr.
Oriel at his office on the 4<sup>th</sup> of July for a weight check. Down,
still. Then he met us there two days later on a Sunday. He was so befuddled by
our little bird girl. So, he said that he’d really like to take some blood to
rule out a few things. Gulping down the nausea, we said alright. </strong></p>

<p class="MsoNormal"><strong>We then watched in horror as he tried desperately to
get blood from both arms. Finding this to be extremely difficult, we went
downstairs to the lab. The woman there was eventually able to get some blood
from her scalp. The poor girl was just SO dehydrated. </strong></p>

<p class="MsoNormal"><strong>We
went over to some good friends’ house that night for a visit and were just
settling down to watch Lord of the Rings, when my phone rang. Dr. Oriel was on
the line. Since he knew how little we valued Western/Allopathic medicine. He
pulled no punches. </strong></p>

<p class="MsoNormal"><strong>“<em>Rowan,
there’s something wrong with Kajsa’s kidneys. We need you to go to MaryBridge
Children’s Hospital. You have time to go home and pack some clothes for
yourself. Do not go anywhere else. You are in direct admission. That means they
know you are coming.</em>”</strong></p>



<p><strong>I
hysterically went tearing into the other room where Chris was playing video
games with his friends. I’m not sure that dolphins could have understood me as
I tried to relay what I’d just been told. Chris took the phone and got
directions to MaryBridge.&nbsp; </strong></p>

<p><strong>As we drove back to </strong><st1:city><st1:place></st1:place></st1:city><strong>Auburn</strong><strong>,
I just kept wondering if this could all actually be real. I sobbed for the
whole ride and just kept thinking that they must be horribly, horribly wrong.
These things simply do not happen to me. I vacillated between disbelief and
sheer terror. Chris said nothing and drove. </strong></p>

<p class="MsoNormal"><strong>As
I arrived at our house, I couldn’t figure out what to pack. Should I take
clothes for Kajsa? Would she wear them while we were there? How many diapers
would we need? Would there be a place to wash them? This is how much I knew
about hospitals. I grabbed about 500 ounces of my milk from the freezer as we
ran out the door.<o:p></o:p></strong></p>

<p class="MsoNormal"><strong>We
arrived safely (somehow) and were admitted to the seventh floor. Chris and I
filled out what seemed like sooo much paperwork. (I can now do this in my
sleep.) Chris stayed in the room as the IV specialists came up to draw more
blood. I <del>have </del>had an intense fear of needles; so a wonderful nurse named,
LaDawn, took me to a soundproofed treatment room to figure out the unbelievably
industrial looking breast pump. <o:p></o:p></strong></p>



<p><strong>While
there, she talked to me about her son. He had some chronic illness. She and her
husband had lived on an army base in </strong><st1:country-region><st1:place></st1:place></st1:country-region><strong>Germany </strong><strong>
when he was diagnosed. Her experiences led her to change careers to become a
pediatric nurse. This story would repeat itself over and over during our
various hospital stays. The mommy nurses were always my favorites. They just
get it. </strong></p><strong><o:p></o:p></strong>

<p class="MsoNormal"><strong><em>This</em></strong><strong>
is who can provide emotional support like no one else. It is from nurses whose
children have had chronic illnesses that I learned how to be an unbelievable
advocate for Kajsa. They are a resource to be valued, and never overlooked. <br /></strong></p>

<p class="MsoNormal"><strong>They are, indeed, the key to hospital sanity. </strong></p>





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<category>family at large</category>
<category>health</category>
<category>Humpday Hero</category>
<category>Kajsa</category>
<category>kiddoes</category>
<category>Organ Donation</category>
<category>seen and heard</category>

<dc:creator>Rowan</dc:creator>
<pubDate>Tue, 19 Jun 2007 19:39:01 -0700</pubDate>

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<title>Happy Aniversay, Kiddo</title>
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<description>I can't believe that it has now been one year since we got the call to go down to Phoenix. And tomorrow will be the anniversary of Kajsa's kidney transplant. It gets me all choked up to think about it....</description>
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I can't believe that it has now been one year since we got the call to
go down to Phoenix.&nbsp; &nbsp;And tomorrow will be the anniversary of Kajsa's
kidney transplant.&nbsp; &nbsp;It gets me all choked up to think about it.&nbsp; &nbsp;But
then again, I cry at the drop of a hat these days.&nbsp; &nbsp;(I'd be great in
movies - or maybe an after school special, eh?)<br /><br />Anyway, the
Prescott transplant support group had a barbecue today, so we headed
over there after I got off work.&nbsp; &nbsp;It was <em>such</em> a beautiful day.&nbsp; &nbsp;(80 degrees, and not a cloud in the sky.)&nbsp; <br /><br />After
we'd all eaten and had a while to chat; our host, Robin, brought out a
cake with a #1 candle on top which she promptly lit.&nbsp; &nbsp;We all
sang happy birthday, as there's not a happy transplant anniversary
song.&nbsp; &nbsp;(I'll be taking submissions, if anyone's up for the task.)&nbsp; Then Kajsa blew out the candle and made a wish.&nbsp; &nbsp;<br /><br />Upon doing
so, she proclaimed to everyone, &quot;Now I'm five!&quot;&nbsp; &nbsp;So we had to tell her
that this was celebrating her new birthday, not her old one.&nbsp; &nbsp;It might
take a while for her to fully 'get' it.&nbsp; &nbsp;But at least she doesn't
think she's five anymore.<br /><br />Tomorrow evening we're heading over to
another barbecue.&nbsp; &nbsp;I guess it's the season.&nbsp; &nbsp;Yep, with our newfound
freedom, and as time goes by, we're making more and more friends.&nbsp; &nbsp;I
guess you could say that her transplant actually brought new life to
the whole family.&nbsp; &nbsp;<br /><br />What a precious gift.</td></tr>
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<category>family at large</category>
<category>health</category>
<category>Kajsa</category>
<category>kiddoes</category>
<category>Organ Donation</category>

<dc:creator>Rowan</dc:creator>
<pubDate>Sat, 02 Jun 2007 22:11:06 -0700</pubDate>

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