http://www.mitoaction.org/audio-podcast en MitoAction.org clean MitoAction.org director@mitoaction.org Mitochondrial Disease Action Committee, Support, Educate and Advocate MitoAction Mitochondrial disease, Mito, Melas, Mitochondrial disease action committee, MitoAction, Metabolic disorders The official MitoAction podcast is a monthly call often with physicians who are experts on mitochondrial disease. Mitochondrial disease occurs when the mitochondria(the powerhouse of a cell) are unable to effectively generate energy during food metabolism. Approximately one in 4000 adults and children have mitochondrial disease ("Mito"). MitoAction is a non-profit organization dedicated to support, education and advocacy for the mitochondrial disease patient community. http://www.mitoaction.org/podcasts/frye-primary-mitochondrial-disease mitoaction-2996 69:17 Mon, 15 Apr 2019 14:14:07 +0000 http://www.mitoaction.org/podcasts/dr-kendall-dtc-testing mitoaction-2993 62:23 Mon, 08 Apr 2019 13:45:21 +0000 http://www.mitoaction.org/podcasts/2019-mito-cocktail mitoaction-2986 62:29 Fri, 15 Feb 2019 20:57:04 +0000 http://www.mitoaction.org/podcasts/pioneers-partners mitoaction-2982 75:35 Mon, 04 Feb 2019 18:42:49 +0000 http://www.mitoaction.org/podcasts/2019-mito-town-hall mitoaction-2976 56:19 Fri, 11 Jan 2019 23:36:20 +0000 http://www.mitoaction.org/podcasts/dr-peter-mcguire-mito-immune-systems mitoaction-2961 78:36 Fri, 05 Oct 2018 21:25:43 +0000 http://www.mitoaction.org/podcasts/dr-amel-karaa-mms-standards-care mitoaction-2951 77:26 Thu, 13 Sep 2018 22:50:12 +0000 http://www.mitoaction.org/podcasts/dr-doug-wallace-discusses-mitochondrial-genetics-and-disease mitoaction-2935 108:43 Sun, 03 Jun 2018 18:49:05 +0000 http://www.mitoaction.org/podcasts/dr-boles-spectrum-medical-child-abuse-and-what-happening-across-country mitoaction-2932 83:30 Mon, 07 May 2018 20:13:32 +0000 http://www.mitoaction.org/podcasts/dr-boles-spectrum-needs mitoaction-2929 62:58 Sat, 07 Apr 2018 22:33:44 +0000 http://www.mitoaction.org/podcasts/dr-koenig-evolution-leigh-syndrome mitoaction-2916 61:38 Tue, 13 Mar 2018 21:07:16 +0000 http://www.mitoaction.org/podcasts/dr-kendall-discusses-it-really-mito Dr. Fran Kendall of VMP Genetics discusses "Is it really Mito? When an alternative diagnosis should be considered."Talking points include:Clinical red flags that suggest an alternative diagnosis should be considered;Why that option should be entertained;Tools utilized to reanalyze patients classified with mitochondrial disease. mitoaction-2910 69:00 Tue, 20 Feb 2018 02:22:15 +0000 http://www.mitoaction.org/podcasts/2018-mito-town-meeting-0 mitoaction-2905 82:37 Wed, 10 Jan 2018 16:36:28 +0000 http://www.mitoaction.org/podcasts/medical-care-what-approach-works-you mitoaction-2896 53:21 Fri, 08 Dec 2017 21:56:34 +0000 http://www.mitoaction.org/podcasts/what-you-should-know-about-genetic-testing-mitochondrial-disorders mitoaction-2888 66:27 Fri, 03 Nov 2017 17:51:52 +0000 http://www.mitoaction.org/podcasts/how-enteric-microbiome-modulates-mitochondrial-function mitoaction-2881 75:22 Fri, 22 Sep 2017 20:37:57 +0000 http://www.mitoaction.org/podcasts/bioelectron-update mitoaction-2858 58:20 Wed, 05 Jul 2017 19:54:53 +0000 http://www.mitoaction.org/podcasts/mitochondrial-replacement-therapy mitoaction-2840 57:45 Mon, 24 Apr 2017 15:42:35 +0000 http://www.mitoaction.org/podcasts/mitochondria-and-mitoq-research-update MitoQ's mission is to raise awareness of mitochondria and the link between optimal mitochondria function, health, and longevity. mitoaction-2833 63:47 Mon, 06 Mar 2017 16:52:42 +0000 http://www.mitoaction.org/podcasts/managing-day-day-mitochondrial-disease Managing the Day- to-Day of Mitochondrial Disease, a MitoAction presentation for ThriveRx Day-to-Day Management of Mitochondrial Disease from mitoaction mitoaction-2831 88:17 Fri, 17 Feb 2017 18:11:07 +0000 http://www.mitoaction.org/podcasts/mito-autism-support-group-call-and-discussion-pandas-jan-2017 Mito-autism support group call and discussion of PANDAS, Jan 2017 mitoaction-2828 96:52 Tue, 17 Jan 2017 20:54:24 +0000 http://www.mitoaction.org/podcasts/2017-mito-town-meeting The annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We'll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease. mitoaction-2827 110:38 Fri, 06 Jan 2017 19:40:50 +0000 http://www.mitoaction.org/podcasts/exercise-and-nutrition-therapy-mitochondrial-disease Dr. Tarnopolsky, Professor of Pediatrics and Medicine, President and CEO, Exerkine Corporation, and Director of Neuromuscular and Neurometabolic Clinic at McMaster University Medical Center, will discuss the theory and practical issues with endurance and resistance exercise therapy; general nutritional guidelines for mitochondrial disease and the rationale for the mitochondrial cocktail. mitoaction-2825 66:11 Fri, 02 Dec 2016 19:41:29 +0000 http://www.mitoaction.org/podcasts/getting-through-day-mito Getting Through the Day with Mito: Treatments, Supplements, and Humor mitoaction-2818 65:58 Fri, 04 Nov 2016 19:56:33 +0000 http://www.mitoaction.org/podcasts/molecular-diagnostic-testing-mitochondrial-disorders Dr. Adams, Medical Director of the Goryeb Children’s Hospital Genetics and Metabolism Division in addition to the Personalized Genomic Medicine Program at Atlantic Health System in Morristown, NJ, will: Explore gene testing and discuss the rationale for using it as first-line testing.Review traditional diagnostic pathways.Discuss newer testing that has become available in recent years.Review new approaches to attempt to shorten time to diagnosis and increase precision. mitoaction-2813 70:03 Tue, 11 Oct 2016 15:28:58 +0000 http://www.mitoaction.org/podcasts/medical-homes Topics include:The importance of a medical home for a mitochondrial disease patient.Definition of a medical home.How to establish a medical home.Why a medical home is an essential component of good patient advocacy.Tips on maintaining a healthy medical home relationship.Ms. Wees will describe theses issues primarily from a pediatric perspective, but she will give adult examples as well. Ms. Wees is a patient advocate with Empowered Medical Advocacy. She assists parents and caregivers each week in navigating toward improved quality of life for their child and their families.She can be reached through www.EmpoweredAdvocacy.com mitoaction-2809 78:00 Fri, 05 Aug 2016 19:59:34 +0000 http://www.mitoaction.org/podcasts/extended-school-year-and-summer-camp-planning-annette-hines-esq Summertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease.  Mitochondrial disease patients often qualify for and benefit from extended school year services through local school systems as well. Documenting the child's needs to care providers as well as knowing your family's rights to extended school year services can make a huge difference in your child's summer experience.  Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts, will be speaking on the basics of extended school year planning and will answer any questions patients or caregivers may have about summertime planning.Questions to be answered include:Does my child qualify for extended school year services?How do I obtain extended school year services for my child?How does extended school year planning fit into the IEP process?What do I need to do to make sure my child's needs are met at summer camp? mitoaction-2801 63:00 Wed, 20 Apr 2016 20:39:49 +0000 http://www.mitoaction.org/podcasts/mitochondrial-medicine-society-update-2016 Dr. Amy Goldstein provides an update on the Mitochondrial Medicine Society.Areas of discussion include: Transplantation in Mito patientsStroke protocol for MELASStandards of care for Mito patientsCenters of Excellence and the need for community involvement/input mitoaction-2795 64:58 Sun, 03 Apr 2016 17:09:41 +0000 http://www.mitoaction.org/podcasts/incapacity-planning-and-guardianship As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves.  Fortunately, there are legal documents that can be used to communicate our wishes under such circumstances.  This type of legal preparation is called incapacity planning and guardianship. mitoaction-2793 85:51 Thu, 31 Mar 2016 11:34:04 +0000 http://www.mitoaction.org/podcasts/nord-public-policy-team Please join MitoAction this month for a conversation with the public policy team for the National Organization for Rare Disorders (NORD). mitoaction-2786 82:34 Fri, 04 Mar 2016 21:23:34 +0000 http://www.mitoaction.org/podcasts/fatty-acid-oxidation-disorders Areas of discussion include:   *   Do patients with mitochondrial defects also have the potential to have fatty acid oxidation defects?  *   How do disorders of metabolism such as FAOD and mitochondrial disease impact the body's ability to grow, develop and function?  *   What is the current focus in research for understanding and treating FAODs? mitoaction-2779 71:47 Fri, 05 Feb 2016 21:37:15 +0000 http://www.mitoaction.org/podcasts/2016-mito-town-meeting Updates from around the globe during the 2016 Mito Town Meeting. mitoaction-2774 46:47 Fri, 08 Jan 2016 21:30:12 +0000 http://www.mitoaction.org/podcasts/diet-dysmotility-and-tube-feeding Many children and adults with mitochondrial disease experience significant gastrointestinal or digestive issues as part of their daily disease challenges. When considering the pros and cons of a feeding tube and struggling to identify the best diet for dysmotility, many parents, patients and families are confused by all of the possibilities. mitoaction-2770 74:00 Fri, 04 Dec 2015 20:10:11 +0000 http://www.mitoaction.org/podcasts/mitochondrial-myopathy-dr-bruce-cohen Join MitoAction and Dr. Bruch Cohen as we discuss Mitochondrial myopathy. mitoaction-2764 89:45 Fri, 20 Nov 2015 19:55:56 +0000 http://www.mitoaction.org/podcasts/mito-autism-qa-and-parentpatient-discussion-mitochondrial-toxicity Mito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity mitoaction-2757 89:15 Tue, 13 Oct 2015 12:01:42 +0000 http://www.mitoaction.org/podcasts/mitochondrial-disease-and-toxins Mitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial dysfunction, cell damage and organ dysfunction. Join us this month with Dr. Kendall Wallace, Ph.D., DABT, ATS to learn more about mitochondrial disorders which may be acquired by or aggravated by toxins. mitoaction-2754 74:40 Mon, 05 Oct 2015 13:17:54 +0000 http://www.mitoaction.org/podcasts/mito-supplement-therapy What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient. Join us with compounding pharmacist Ted Toufas PharmD RPh from Acton Pharmacy to learn more.Understand what supplements are most commonly used as mitochondrial disease therapies?Learn why certain supplements and co-factors help children and adults with mitochondrial disease or dysfunctionExplore the biochemistry of various supplements and how they work in the body and in energy metabolismDiscuss compounding and understand how compounding is used in mitochondrial disease therapy mitoaction-2747 89:37 Thu, 10 Sep 2015 00:27:20 +0000 http://www.mitoaction.org/podcasts/back-school-tips It's that time of year ... summer comes to a close and children everywhere are going back to school! While a relief for some families, going back to school can be stressful for parents of children with mitochondrial disease. mitoaction-2744 84:00 Mon, 31 Aug 2015 17:59:51 +0000 http://www.mitoaction.org/podcasts/social-security-disability-insurance-ssdi-and-supplemental-security-income-ssi-annette Overview of SSI and SSDI programs;The differences between SSI and SSDI;Social Security’s definition of disability as it pertains to mitochondrial disease;How SSDI is designed to work, eligibility criteria, and the full range of SSDI benefitts;The application and appeals processes for SSI and SSDI; mitoaction-2740 81:36 Fri, 07 Aug 2015 20:22:56 +0000 http://www.mitoaction.org/podcasts/getting-involved-awareness-walk-events-2015 Join Mitoaction as we discuss how to get involved with the Awareness Walk & Events in 2015. mitoaction-2605 38:14 Sat, 13 Jun 2015 00:00:03 +0000 http://www.mitoaction.org/podcasts/basics-estate-planning-and-special-needs-trusts-special-guest-speaker-annette-hines-esq Please join MitoAction as we welcome Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts. Ms. Hines will be speaking on the basics of estate planning and special needs trusts laws in the U.S. mitoaction-2604 67:14 Mon, 01 Jun 2015 23:45:07 +0000 http://www.mitoaction.org/podcasts/cannabis-oil-treat-mitochondrial-disease Dr. Fran Kendall gives the answers to these questions and more regarding the use of medical marijuana (cannabis oil) for treatment in mitochondrial disease patients.What is the historical use of marijuana for medical purposes? Are there legalities associated with medical marijuana use? When is medical cannabis a potential therapeutic option for patients with mitochondrial disease?  Are there guidelines on dosing and use? Is it true that medical cannabis is for pain and seizures only? Is marijuana addictive, even when used for medical purposes? Have there ever been safety studies published about use of marijuana for medical purposes? mitoaction-2596 68:53 Sun, 17 May 2015 22:54:00 +0000 http://www.mitoaction.org/podcasts/consensus-criteria-mitochondrial-medicine-society-dr-parikh mitoaction-2580 70:02 Fri, 06 Mar 2015 20:27:39 +0000 http://www.mitoaction.org/podcasts/stealth-bt-mitochondrial-myopathy-trial Join us with Stealth BioTherapeutics CEO Travis Wilson and others from the Stealth BT team for a live update from Stealth BT, information about Bendavia, and details about StealthBioTherapeutics' 2015 mitochondrial myopathy clinical trial. mitoaction-2569 53:06 Wed, 18 Feb 2015 13:27:40 +0000 http://www.mitoaction.org/podcasts/2015-mito-town-meeting The annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We'll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease. All are welcome! mitoaction-2551 110:54 Sat, 10 Jan 2015 00:23:44 +0000 http://www.mitoaction.org/podcasts/complex-medical-needs-and-medical-child-abuse-accusations Mitochondrial disorders are characterized by complex presentation of multiple symptoms. Due to a variety of factors, including heterogenity of the disease, erratic symptom presentation and general lack of awareness about the condition, families with mitochondrial disease are more often faced with accusations of medical child abuse than other conditions. mitoaction-2541 87:34 Sat, 13 Dec 2014 01:40:57 +0000 http://www.mitoaction.org/podcasts/pdcd-pyruvate-dehydrogenase-complex-deficiency mitoaction-2527 1:14:30 Tue, 11 Nov 2014 04:16:14 +0000 http://www.mitoaction.org/podcasts/psychiatric-disorders-mitochondrial-diseases mitoaction-2482 56:47 Fri, 03 Oct 2014 19:14:45 +0000 http://www.mitoaction.org/podcasts/2014-mito-awareness-rally Join us as we kick off a month of mito awareness! mitoaction-2476 88:35 Sat, 06 Sep 2014 13:13:17 +0000 http://www.mitoaction.org/podcasts/immune-function-and-mitochondrial-disease mitoaction-2450 55:42 Fri, 01 Aug 2014 19:50:04 +0000 http://www.mitoaction.org/podcasts/epi-743-update mitoaction-2444 69:08 Sat, 28 Jun 2014 17:00:55 +0000 http://www.mitoaction.org/podcasts/autism-mito-and-oxidative-stress mitoaction-1777 104:50 Fri, 02 May 2014 22:26:05 +0000 http://www.mitoaction.org/podcasts/mitoaction-medical-ethics-and-patient-rights-audio-only mitoaction-1654 97:00 Sat, 12 Apr 2014 01:50:46 +0000 http://www.mitoaction.org/podcasts/hearing-loss-mitochondrial-disease mitoaction-1640 62:03 Fri, 04 Apr 2014 18:48:11 +0000 http://www.mitoaction.org/podcasts/dysmotility-and-diet mitoaction-1628 83:09 Sun, 09 Mar 2014 15:20:37 +0000 http://www.mitoaction.org/podcasts/edison-pharma%E2%80%99s-partnership-offers-hope-mito-community mitoaction-1617 67:00 Sat, 08 Feb 2014 22:03:53 +0000 http://www.mitoaction.org/podcasts/2014-mito-town-meeting mitoaction-1607 84:00 Fri, 10 Jan 2014 21:37:21 +0000 http://www.mitoaction.org/podcasts/helping-your-child-become-independent Helping Your Child Become Independent with Dr. Paraq Shah and Ann Weaver mitoaction-1601 62:43 Sat, 07 Dec 2013 02:44:35 +0000 http://www.mitoaction.org/podcasts/creatine-deficiency-and-supplementation-dr-joseph-clark mitoaction-1593 63:00 Fri, 01 Nov 2013 19:42:50 +0000 http://www.mitoaction.org/podcasts/epi-743-clinical-trial-update-october-2013 mitoaction-1591 75:00 Fri, 25 Oct 2013 16:49:30 +0000 http://www.mitoaction.org/podcasts/introducing-bendavia mitoaction-1585 63:13 Mon, 07 Oct 2013 13:56:26 +0000 http://www.mitoaction.org/podcasts/interpreting-genetic-testing Learn the nuts and bolts of interpreting today's genetic tests from Dr. Boles in this informative discussion. Dr. Boles is the scientific advisor for Courtagen Life Sciences and is also a practicing mitochondrial specialist at Children's Hospital Los Angeles. mitoaction-1576 94:34 Fri, 13 Sep 2013 21:03:52 +0000 http://www.mitoaction.org/podcasts/epi-743-leighs-syndrome-trial-update-april-2013 Join MitoAction for An update from Edison Pharma on the Development of EPI-743 mitoaction-1523 90:27 Mon, 08 Apr 2013 14:39:04 +0000 http://www.mitoaction.org/podcasts/get-more-every-doctors-appointment It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions? mitoaction-1514 81:35 Fri, 01 Mar 2013 20:09:28 +0000 http://www.mitoaction.org/podcasts/parents-stress-and-coping-mitochondrial-disease Join MitoAction in discussing how parents can cope with the stress from Mitochondrial disease. mitoaction-1505 63:27 Fri, 01 Feb 2013 20:45:40 +0000 http://www.mitoaction.org/podcasts/2013-mito-town-meeting Listen in as we discuss all that's happening in 2013 in our Mito Town Meeting. mitoaction-1497 81:46 Fri, 04 Jan 2013 20:24:04 +0000 http://www.mitoaction.org/podcasts/sick-protocol-mito-patients-dr-korson Join Mitoaction to discuss sick protocols for Mito patients with Dr. Korson. mitoaction-1489 62:48 Fri, 07 Dec 2012 18:53:24 +0000 http://www.mitoaction.org/podcasts/exercise-and-physical-therapy Discuss exercise and physical therapy for children, teens and adults with mitochondrial disease with MitoAction and Kimberly Serra. mitoaction-1484 66:19 Mon, 05 Nov 2012 16:55:45 +0000 http://www.mitoaction.org/podcasts/edison-pharma-epi-743-clinical-trial-meeting Listen to the Edison Pharma EPI-743 clinical trial meeting. mitoaction-1477 90:40 Mon, 08 Oct 2012 15:10:28 +0000 http://www.mitoaction.org/podcasts/education-and-school-advocacy-tips-cristy-balcells-and-kirsten-casale Listen to Cristy Balcells and Kirsten Casale discuss Education and School Advocacy Tips. mitoaction-1465 91:06 Fri, 07 Sep 2012 18:28:15 +0000 http://www.mitoaction.org/podcasts/genetics-genomics-mitochondrial-dna-testing Join MitoAction and Dr. Richard Boles from Children's Hospital Los Angeles and Courtagen Life Sciences, Inc to discuss the following questions: What is genomic sequencing and how does it change testing for mitochondrial disorders?, Is NextGen testing appropriate for all people with suspected mitochondrial disease?, How can DNA sequencing change information available about family inheritance of mitochondrial diseases?, Do advances in genomic sequencing impact treatment options for Mito patients? mitoaction-1443 71:24 Fri, 03 Aug 2012 19:19:46 +0000 http://www.mitoaction.org/podcasts/mito-autism-and-cerebral-folate-deficiency Join MitoAction this month with Dr. Richard Frye, MD PhD, Director of Autism Research and Associate Professor of Pediatrics at Arkansas Children's Hospital mitoaction-1419 65:41 Fri, 01 Jun 2012 21:01:35 +0000 http://www.mitoaction.org/podcasts/9-tips-ensure-your-insurer-pays Join us this month as we discuss strategies for advocating for the diagnosis, management and treatment of your mitochondrial disease. mitoaction-1415 46:34 Tue, 22 May 2012 13:53:39 +0000 http://www.mitoaction.org/podcasts/interpreting-labs-101-dr-mark-korson Interpreting Labs 101 with Dr. Mark Korson. mitoaction-1405 70:04 Mon, 16 Apr 2012 13:19:27 +0000 http://www.mitoaction.org/podcasts/practical-approaches-mito-diagnosis-dr-richard-haas Practical approaches to a Mito diagnosis with Dr. Richard Haas from the UCSD Mitochondrial and Metabolic Disease Center. mitoaction-1390 82:48 Fri, 02 Mar 2012 19:28:06 +0000 http://www.mitoaction.org/podcasts/advocating-responsibly-and-communicating-effectively Advocating Responsibly and Communicating Effectively with Mannie Taimuty-Loomis, MA, LBS from Jonah & The Whale Foundation mitoaction-1380 62:48 Fri, 03 Feb 2012 21:39:50 +0000 http://www.mitoaction.org/podcasts/2012-mito-town-meeting 2012 Mito Town Meeting with MitoAction members discussing activities, events and volunteer opportunities for 2012. mitoaction-1367 85:41 Fri, 06 Jan 2012 20:26:40 +0000 http://www.mitoaction.org/podcasts/how-do-i-know-i-have-mito Dr. Kendall discusses how to figure out if you have Mito. mitoaction-1342 60:08 Fri, 04 Nov 2011 19:12:23 +0000 http://www.mitoaction.org/podcasts/iv-hydration-and-nutrition-current-topics-thrive-rx IV Hydration and Nutrition, Current topics with Thrive RX mitoaction-1335 58:50 Fri, 07 Oct 2011 20:02:23 +0000 http://www.mitoaction.org/podcasts/immunodeficiency-disorders-and-mitochondrial-disease Join MitoAction to discuss Immunodeficiency Disorders and Mitochondrial Disease with Dr. Susan Pacheco from Memorial Hermann Texas Medical Center Department of Pediatric Allergy and Immunology mitoaction-1328 52:19 Fri, 02 Sep 2011 17:55:25 +0000 http://www.mitoaction.org/podcasts/seizures-strokes-and-migraines-dr-mary-kay-koenig Seizures, strokes and migraines with Dr Mary Kay Koenig mitoaction-1319 55:25 Fri, 05 Aug 2011 22:42:46 +0000 http://www.mitoaction.org/podcasts/dr-fran-kendall-speaks-about-mito-autism Dr Fran Kendall speaks about Mito-Autism: Diagnosis, Testing and Treatment. mitoaction-1312 55:11 Fri, 08 Jul 2011 18:15:46 +0000 http://www.mitoaction.org/podcasts/edison-pharma-question-and-answer-about-epi-743 Edison Pharma Question and Answer about EPI-743, emergency drug treatment protocol for mitochondrial disease with Dr. Guy Miller and Dr. Greg Enns mitoaction-1305 72:06 Thu, 16 Jun 2011 20:02:13 +0000 http://www.mitoaction.org/podcasts/school-and-iep-advice-kids School and IEP advice for kids with Mito-Autism with Kirsten Casale, MitoAction Educational Advocate. mitoaction-1302 21:52 Wed, 15 Jun 2011 13:39:00 +0000 http://www.mitoaction.org/podcasts/service-dogs-children-and-adults-mito Listen to the discussion with John Moon from NEADS.org about service dogs for children and adults with Mito. mitoaction-1299 70:33 Fri, 03 Jun 2011 19:26:57 +0000 http://www.mitoaction.org/podcasts/dysautonomia-dr-boles Listen as we discuss Dysautonomia with Dr. Boles. mitoaction-1233 79:00 Fri, 06 May 2011 19:55:31 +0000 http://www.mitoaction.org/podcasts/mona-inocentes-discusses-iv-access Mona Inocentes discusses IV Access, Use and Complications with MitoAction. mitoaction-1224 73:21 Mon, 04 Apr 2011 17:59:26 +0000 http://www.mitoaction.org/podcasts/mito-diagnosis-and-autism An informal discussion with Cristy Balcells on Mito diagnosis and Autism from our February 2011 Autism-Mito Support Meeting. mitoaction-1218 74:03 Mon, 14 Mar 2011 20:51:53 +0000 http://www.mitoaction.org/podcasts/sleep-disorders-dr-weiss MitoAction conference call with Dr Matthew Weiss discussing sleep disorders. mitoaction-1216 86:34 Fri, 04 Mar 2011 21:39:52 +0000 http://www.mitoaction.org/podcasts/genetics-mitochondrial-disease Listen to the discussion on the genetics of mitochondrial disease with Nancy Slate. mitoaction-1161 110:26 Fri, 04 Feb 2011 21:18:48 +0000 http://www.mitoaction.org/podcasts/mitochondrial-function-disorders Listen in as Dr. Richard Boles discusses Mitochondrial Functional Disorders. mitoaction-1135 74:26 Fri, 03 Dec 2010 21:07:35 +0000 http://www.mitoaction.org/podcasts/research-and-realities-exercise Exercise: Research & Realities for Mitochondrial Disease with Margaret O'Riley RN from Vancouver General Hospital mitoaction-1125 66:10 Fri, 05 Nov 2010 22:25:17 +0000 http://www.mitoaction.org/podcasts/interview-al-muto-pine-pharmacy An interview with Al Muto from Pine Pharmacy discussing a new formulation for patients with mitochondrial disease. mitoaction-1123 11:45 Wed, 03 Nov 2010 18:01:25 +0000 http://www.mitoaction.org/podcasts/support-siblings-kids-mitochondrial-disease Learn about support for siblings of kids with mitochondrial disease. mitoaction-1103 64:15 Fri, 01 Oct 2010 20:19:05 +0000 http://www.mitoaction.org/podcasts/mito-awareness-radio-clip A mito awareness week radio clip that you can submit to your local radio stations. mitoaction-1096 0:56 Tue, 21 Sep 2010 13:55:37 +0000 http://www.mitoaction.org/podcasts/blood-tests-mitochondrial-disease-diagnosis-dr-sommer-medomics Blood tests for Mitochondrial disease diagnosis, with Dr. Sommer of MEDomics mitoaction-1093 82:24 Thu, 16 Sep 2010 18:35:29 +0000 http://www.mitoaction.org/podcasts/caring-whole-patient For someone who lives with mitochondrial disease, understanding the "big picture" is important. mitoaction-1077 50:44 Fri, 03 Sep 2010 20:38:27 +0000 http://www.mitoaction.org/podcasts/use-hyperbaric-oxygen-therepy-mitochondrial-disease-patients Listen in as we discuss the use of hyperbaric oxygen therepy for mitochondrail disease patients. mitoaction-1066 87:40 Fri, 06 Aug 2010 20:36:16 +0000 http://www.mitoaction.org/podcasts/muscle-biopsy-testing-dr-fran-kendall For many years, muscle biopsy has been considered the best way to obtain an accurate diagnosis of mitochondrial disease. mitoaction-1052 52:40 Fri, 09 Jul 2010 20:15:59 +0000 http://www.mitoaction.org/podcasts/mitochondrial-toxicity Dr. Katherine Sims from Massachusetts General Hospital shares information important to everyone concerned about their health, and explains why recognizing potentially toxic agents can be especially worrisome and detrimental. mitoaction-1004 52:23 Fri, 04 Jun 2010 20:38:37 +0000 http://www.mitoaction.org/podcasts/nutrition-mitochondrial-disease-patients Join us this month to learn more about the challenges facing kids and adults with Mito when it comes to nutrition. What are the goals for Mito patients, and how are they different from nutrition goals for the typical population? mitoaction-977 50:19 Fri, 07 May 2010 20:37:17 +0000 http://www.mitoaction.org/podcasts/becoming-great-advocate Becoming a great advocate: advice for complex patients and families, with Mark Korson MD and Maggie Orr RN mitoaction-939 00:54:59 Mon, 05 Apr 2010 19:11:28 +0000 http://www.mitoaction.org/podcasts/question-and-answers-compounding-pharmacists Q&A with compounding pharmacists about vitamins and supplements for Mito patients. mitoaction-923 61:59 Fri, 05 Mar 2010 21:15:20 +0000 http://www.mitoaction.org/podcasts/dr-marcus-favero-speaks-psychiatric-disorders-meds-and-mito Dr. Marcus Favero speaking on Psychiatric Disorders, Medications & Mitochondrial Disease mitoaction-907 64:48 Mon, 08 Feb 2010 14:26:55 +0000 http://www.mitoaction.org/podcasts/overwhelmed-no-more Tips from special needs coach Joan Celebi. mitoaction-871 57:24 Tue, 08 Dec 2009 21:07:18 +0000 http://www.mitoaction.org/podcasts/update-mito-treatment-approaches Dr. Anselm is a member of MitoAction's medical advisory committee and practices in Child Neurology at Children's Hospital Boston. Her research is focused on clinical presentation of children with mitochondrial disorders and their response to therapy. mitoaction-854 44:57 Mon, 09 Nov 2009 14:24:17 +0000 http://www.mitoaction.org/podcasts/coping-mitochondrial-disease MitoAction welcomes Carole Slipowitz PhD and Maggie Orr RN M.Ed this month to discuss the challenges of dealing with a diagnosis of mitochondrial disease. Any chronic illness can be overwhelming - for a child, a family, or an adult with the condition.  However, due to the unpredictability, complexity of symptoms, and uncertain prognosis, a diagnosis of mitochondrial disease is especially stressful...and exhausting. mitoaction-837 65:25 Mon, 05 Oct 2009 14:36:18 +0000 http://www.mitoaction.org/podcasts/munchausens-proxy-accusations-children-mitochondrial-disease This topic is dramatically important to the parents of children with complex gastrointestinal presentations of mitochondrial disease.  MitoAction addresses this topic today in response to the increasing number of accusations of child abuse and Munchausen by proxy that have been placed upon many parents of children struggling from the devastating symptoms of mitochondrial disease. mitoaction-806 54:25 Tue, 08 Sep 2009 14:39:03 +0000 http://www.mitoaction.org/podcasts/work-or-not-work MITO Meeting Aug 7, 2009 with Lee Jurman from Personal Disability Consulting on the topic: "To work or not to work: Tough choices for adult Mito patients" mitoaction-785 72:36 Mon, 10 Aug 2009 14:05:43 +0000 http://www.mitoaction.org/podcasts/medical-foods-mito Solace Nutrition and Medical Foods joins MitoAction July 10th for a toll-free teleconference to discuss medical foods, how they interact with electron transport chains and more. mitoaction-748 54:14 Fri, 10 Jul 2009 20:51:51 +0000 http://www.mitoaction.org/podcasts/home-nutrition-support-guest-deb-pfister-nutrithrive Join us as expert Deb Pfister from NutriThrive discusses g-tubes, j-tubes, TPN and the ins and outs of parenteral and enteral nutrition for adults and children who need alternatives to food for nutrition and hydration. mitoaction-706 59:12 Mon, 08 Jun 2009 13:49:26 +0000 http://www.mitoaction.org/podcasts/drug-toxicity-and-mitochondria MitoAction is excited to welcome Dr. James Dykens, Director of Investigative Cellular Toxicity at Pfizer Drug Safety Research &  Development and author of the 2008 book "Drug Induced Mitochondrial Dysfunction". mitoaction-654 67:17 Fri, 01 May 2009 21:06:40 +0000 http://www.mitoaction.org/podcasts/palliative-care-hospice Palliative care and hospice: Focus on quality of life with guest speaker Dr. Patricia O'Malley from Massachusetts General Hospital mitoaction-616 47:49 Fri, 03 Apr 2009 19:03:48 +0000 http://www.mitoaction.org/podcasts/special-needs-planning-workshop-with-jack-raycroft MitoAction welcomes Jack Raycroft for a discussion on special needs planning.  MitoAction meeting March 6 2009. mitoaction-591 61:12 Mon, 09 Mar 2009 13:40:04 +0000 http://www.mitoaction.org/podcasts/mitoaction-interview-with-stephen MitoAction interview with Stephen. mitoaction-585 14:42 Mon, 02 Mar 2009 15:58:00 +0000 http://www.mitoaction.org/podcasts/mitoaction-interview-with-jamie-emory A MitoAction interview with Jamie Emory. mitoaction-578 19:39 Wed, 25 Feb 2009 19:11:55 +0000 http://www.mitoaction.org/podcasts/autism-mitochondrial-disease Autism and Mitochondrial Disease, Feb 6 2009 with guest Dr. David Holtzman mitoaction-551 127:24 Fri, 06 Feb 2009 22:10:41 +0000 http://www.mitoaction.org/podcasts/ideas-occupational-therapist-with-speaker-susan-orloff-otrl Join MitoAction with guest speaker Susan Orloff OTR/L to discuss ideas to help with the energy/sensory connection for children and adults with mitochondrial disease. mitoaction-527 53:43 Fri, 09 Jan 2009 20:01:08 +0000 http://www.mitoaction.org/podcasts/genetic-inheritance-patters-mito-with-guest-speaker-katherine-sims Genetic inheritance patterns in mitochondrial disease, guest speaker Dr. Katherine Sims of Massachusetts General Hospital An overview of ways that mitochondrial disorders may be inherited, designed to educate patients, families, and community healthcare providers. mitoaction-511 88:29 Fri, 05 Dec 2008 21:48:21 +0000 http://www.mitoaction.org/podcasts/teen-interview-with-harrison Interview with 19 year old teen Harrison living with mitochondrial disease mitoaction-447 24:12 Thu, 23 Oct 2008 15:39:40 +0000 http://www.mitoaction.org/podcasts/teen-interview-with-olivia Interview with 14 year old teen Olivia, living with mitochondrial disease mitoaction-446 18:05 Thu, 23 Oct 2008 15:26:01 +0000 http://www.mitoaction.org/podcasts/interview-with-reed Interview with Reed, 13 year old teen living with mitochondrial disease mitoaction-438 9:30 Thu, 16 Oct 2008 21:07:13 +0000 http://www.mitoaction.org/podcasts/interview-with-morgan Interview with Morgan, 15 year old teen living with mitochondrial disease mitoaction-437 29:14 Thu, 16 Oct 2008 21:05:33 +0000 http://www.mitoaction.org/podcasts/interview-with-donovan Interview with Donovan, 17 year old teen living with mitochondrial disease mitoaction-436 23:51 Thu, 16 Oct 2008 21:02:51 +0000 http://www.mitoaction.org/podcasts/interview-with-kristin Interview with Kristin, 18 year old teen living with mitochondrial disease mitoaction-435 14:32 Thu, 16 Oct 2008 20:59:09 +0000 http://www.mitoaction.org/podcasts/interview-with-annalise Interview with Annalise, 23 year old living with mitochondrial disease mitoaction-434 18:20 Thu, 16 Oct 2008 20:49:05 +0000 http://www.mitoaction.org/podcasts/october-mito-meeting-tummy-troubles Dr. Alex Flores speaks about gastrointestinal issues for mitochondrial disease patients. mitoaction-422 78:38 Fri, 03 Oct 2008 21:28:02 +0000 http://www.mitoaction.org/podcasts/mitochondria-the-big-picture Interview with Dr. Christoph Westphal, Sirtris Pharma mitoaction-401 17:41 Fri, 12 Sep 2008 19:50:48 +0000 http://www.mitoaction.org/podcasts/meeting-coq10-creatine-august-1-2008 This month MitoAction welcomed Dr. Fran Kendall of Emory University's Department of Human Genetics mitochondrial program to discuss the dosing debate around CoQ10 and creatine. mitoaction-395 74:22 Mon, 08 Sep 2008 17:27:22 +0000 http://www.mitoaction.org/podcasts/drug-trial-begins-targeting-mitochondrial-diseases Exclusive Interview with Dr. Guy Miller, CEO of Edison Pharma. On July 15, 2008 Edison Pharma and partner Penwest Pharmaceuticals announced that A0001, an "improved" variant of Coenzyme Q10 (CoQ10), has entered Phase 1 clinical development with healthy volunteers. Edison predicts trials in patients with inherited mitochondrial disease will begin in 2009. mitoaction-402 22:51 Sat, 19 Jul 2008 13:52:35 +0000 http://www.mitoaction.org/podcasts/meeting-pain-july-11-2008 MitoAction.org meeting discussing pain. mitoaction-375 46:05 Fri, 11 Jul 2008 07:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-multiple-specialists-june-6th-2008 MitoAction meeting discussing multiple specialists mitoaction-374 82:18 Sun, 01 Jun 2008 07:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-heat-intolerance-may-2nd-2008 MitoAction.org meeting discussing heat intolerance. mitoaction-373 81:48 Fri, 02 May 2008 07:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-dysautonomia-april-4th-2008 MitoAction.org meeting discussing Dysautonomia. mitoaction-372 84:16 Fri, 04 Apr 2008 07:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-the-mito-cocktail-march-7th-2008 MitoAction discusses the mito cocktail. mitoaction-371 99:01 Fri, 07 Mar 2008 08:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-disability-advocacy-febrary-1st-2008 Mitoaction meeting about disability advocacy with special guiest Valerie Powers Smith, Attorney-at-law mitoaction-370 98:22 Fri, 01 Feb 2008 08:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-committee-chairs-january-28th-2008 MitoAction meeting with the committee chairs. mitoaction-369 77:37 Mon, 28 Jan 2008 08:00:00 +0000 http://www.mitoaction.org/podcasts/meeting-exercise-intolerance-january-4th-2008 Mitoaction teleconference discussing exercise intolerance with mito. mitoaction-368 83:47 Fri, 04 Jan 2008 15:24:32 +0000 http://www.mitoaction.org/podcasts/meeting-holiday-stress Mitoaction discussion dealing with holiday stress and the importance of watching fluid intake. mitoaction-367 110:59 Fri, 07 Dec 2007 08:00:00 +0000 http://www.mitoaction.org/podcasts/interview-with-cristy-balcells-september-30th-2007 Interview with the Director of MitoAction.org; Cristy Balcells. mitoaction-364 6:35 Sun, 30 Sep 2007 20:53:57 +0000