tag:blogger.com,1999:blog-72775058154922858802024-11-01T04:50:07.011-07:00"Tracheobronchomegaly" is the medical name for the degenerative and rare lung disease known otherwise as "Mounier-Kuhn Syndrome".MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-7277505815492285880.post-91260413336128263952011-05-23T18:30:00.000-07:002011-05-23T18:32:55.445-07:00

There are times when words cannot fully express the overwhelming gratitude one feels towards individuals when assisting in providing some Mounier-Kuhn Syndrome awareness.  We'd like to publicly thank "Nicole Bronchu" for her article appearing in today's health section of the "Florida Sun Sentinel".  We would also like to offer our thanks to "Shari Carter" who is featured in a short

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-18929819168116100022011-05-18T23:46:00.000-07:002011-05-18T20:52:27.365-07:00

When speaking of life saving and/or basically single alternatives to a disease such as Mounier-Kuhn Syndrome such as lung transplantation, emotions can fly all over the map. Last fall, our oldest daughter was expecting her new baby, due to arrive this past January. Determined to be of some assistance toward her father any way possible, her emotional thoughts swung her into action, driven to

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-29174887114859635202011-04-13T07:45:00.000-07:002011-05-18T20:24:03.082-07:00

In memory of a friend, this website was born. Joe Carter was diagnosed with "Mounier-Kuhn Syndrome", and after his passing, the Foundation was born to not only honor him, but also to raise funds for MKS research.  Having been in touch with Joe's wife over the past year, after a lengthy recent telephone conversation, together we've made a pact to forge forth by working in unison towards the

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-65728467929853975302011-04-12T07:43:00.000-07:002011-04-12T07:43:54.356-07:00

With the diagnosis I've been given for my "Mounier-Kuhn Syndrome", I've become very aware that I may be absolutely living on borrowed time until the judge and jury sounds the gavel on the desktop (lung transplant or death). but for pure optimal mental health, it remains of utmost importance to press on with the most positive attitude I can muster, even on the most difficult days. When I was

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-67316657853909930902011-02-25T17:36:00.000-08:002011-02-26T15:36:52.623-08:00

Get involved!  Find you more about this great designated day by clicking over to their website, located HERE.  Still working hard behind the scenes.  Mounier-Kuhn Syndrome is now on TWITTER, using our handle of "MounierKuhnSynd" (**no hyphen all one word), and nicely attached to every lung association and foundation worldwide, as well as every respiratory type of doctor and

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-58414882696127305232011-02-05T14:16:00.000-08:002011-02-05T15:02:52.814-08:00

Apologies for the delay in posting here.  May we extend a sincere new year greeting to you and your loved ones for a bright and healthy 2011.  Here's to bringing even more exposure and awareness to MKS. Happy New Year! Please be assured in our absence of posting for a time, there has been much happening behind the scenes. We hope to reveal details on something new and exciting right

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-74928191936246468492010-12-10T19:39:00.000-08:002010-12-10T19:44:54.967-08:00

Who should have a lung function test? Spirometry machine used to perform a PFT Spirometry is most common of the pulmonary function tests (PFT), measuring lung function, specifically measuring the amount of volume and/or speed flow of air that can be inhaled or exhaled.Spirometry is an important tool to assist in accessing lung condition, lung health issues and lung function.In the photos below;

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-62065610805034680942010-11-19T06:16:00.000-08:002010-11-19T06:21:05.780-08:00

We've been remiss for the past little while to post here, but assure you all will become much more active in the near future. We have much to share, and apologize if you've yet to hear back personally via emails, those too will be caught up very shortly.  In the meantime, we'd like to share this brand new video clip produced by Dr. Roger Goldstein, the respiralogist in charge of the (cutting

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com1tag:blogger.com,1999:blog-7277505815492285880.post-66467445887531003502010-10-15T05:44:00.000-07:002010-10-15T06:15:18.158-07:00

Two more people have made contact with us, two who have themselves also been diagnosed with Mounier-Kuhn Syndrome.  Now we are SIX. With each new contact, sharing information often becomes enlightening. For instance, take a peak at the comment introduction underneath of our "Hypoxia Altitude Simulation Testing" post. From commentor "K" leaving a wonderful post of introduction, with that he/

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com2tag:blogger.com,1999:blog-7277505815492285880.post-50533784428791398892010-10-14T18:14:00.000-07:002010-10-14T18:22:45.095-07:00

Autumn... In Autumn, there is beauty everywhere one looks.  Mornings are crisp and cool, not so great for those suffering from lung disease. It hurts to suck in cold air, caution is necessary when breathing outdoors.  This is the time of year when everyone seems to get a cold from the change of season, those very cold mornings and hot afternoons, when no one is really acclimatized

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-45359064878969881642010-09-24T11:50:00.000-07:002010-12-10T20:52:28.875-08:00

Air travel and respiratory disease.  ** Hypoxia-Altitude testing...ever heard of this test before? Neither had we, that is until the referral came from the respiralogy doctor advising it beneficial to have. The telephone call this week notified of the test on October 1st.  Should it be a concern?  YES!  And we're very interested in hearing from any individual out there

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com2tag:blogger.com,1999:blog-7277505815492285880.post-40277409309607344892010-08-31T20:02:00.000-07:002010-08-31T20:02:26.659-07:00

We're in the middle of a heat wave here in Ontario, and the humidity is something else the past few days! During times such as these when indoor living and ultra dependence on air conditioning enters the big picture, there are little reminders everywhere on how this type of climate affects folks with respiratory diseases. The topic of air quality fills my husband's respiratory

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-31264716315167519282010-08-11T10:32:00.000-07:002010-08-11T19:42:28.603-07:00

Every time I attend one of my husband's hospital tests and specialty appointments, there are copious amounts of signage to direct folks towards hand washing stations or antiseptic and/or antibacterial hand pumps.  There have been instances while enduring long waits, either for myself, my husband or both of us, when we sit quietly and observe the activity around doorways and biways, and

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-91563782499953173612010-07-31T07:04:00.000-07:002010-07-31T07:04:51.253-07:00

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com1tag:blogger.com,1999:blog-7277505815492285880.post-62711911121983067922010-07-20T20:30:00.000-07:002010-07-31T07:01:36.233-07:00

There is little by way of support for this rare disease called; "Mounier-Kuhn Syndrome", either around the globe or within the big wide system of cyberspace. Hoping to cross the universe by way of this humble little blog on the intensely personal subject, reaching out toward others with the same diagnosis of said disease, or one of the three other lung diseases which one becomes predisposed to

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0tag:blogger.com,1999:blog-7277505815492285880.post-47198248503189524112010-07-12T16:50:00.000-07:002010-07-12T18:50:48.630-07:00

"Slip away and watch the sunset." ... there are more calls to finish "Those will wait. The sunset won't." ~ The Guardian, Dee Henderson For you who suffers from the effects of a lung disease; When breathing becomes labored know there is another who suffers similarly as you Life is preciousBe thankful for all life's moments And hug the ones you love often When morning's sunrise

MKS Journeyhttp://www.blogger.com/profile/11124619483326334092noreply@blogger.com0