Musings Of My Life With Fibromyalgia

Pain Management Article | Differences between myofascial trigger points and tender points

2011-11-14T11:30:00.000-05:00

Pain Management Article | Differences between myofascial trigger points and tender points

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2011-10-30T12:54:00.000-04:00

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Hopeful Results with New Massage Therapy for Chronic Neck Pain

2011-10-26T19:46:00.000-04:00

Hopeful Results with New Massage Therapy for Chronic Neck Pain

Pain-Topics.org News/Research UPDATES: More Myths About High-Dose Opioids & Death

2011-10-24T12:27:00.000-04:00

Pain-Topics.org News/Research UPDATES: More Myths About High-Dose Opioids & Death

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2011-10-24T11:43:00.000-04:00

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homeless 9/28/11

2011-09-28T20:09:00.003-04:00

Sjodgren's Syndrome :: Adults :: Alliance ENT

2011-06-14T20:42:00.000-04:00

Sjodgren's Syndrome :: Adults :: Alliance ENT

Monday Musings

2011-05-23T14:27:00.000-04:00

Another day & still struggling with a very stiff neck and unbearable pain! Frustration is high and help is low. So many different thoughts running thru my mind. Research for my Parotid gland tumors which are a mystery to all the Dr's I have seen. Sunday was spent with heat wrapped around my neck while trying to find some Reliable information for the medical community. For me that was only more frustrating and scary. Feeling like a medical Mystery. Yes I have Sjogrens Disease & yes the Surgeon said my tumors are "probably related to a collagen vascular disease" yet when I have done research the diseases that come up are Lupus, RA & two more that do not fit any of my symptoms. Blood tests do not show a sed rate that would indicate lupus or RA! Yes Sjogrens is an autoimmune disease, & the Dr. said before i operate you have to treat the underlying cause and cure it. Well Doc there is no cure for Sjogrens disease and Tumors do not magically disapear without treatment. So here i am still wondering where do I for from here.

Musings Of My Life With Fibromyalgia: Preview "Non Mother's Day"

2011-05-08T17:35:00.000-04:00

Musings Of My Life With Fibromyalgia: Preview "Non Mother's Day"

Sunday at Starbucks

2011-04-24T20:31:00.002-04:00

Sunday at Starbucks seems to be my new routine. If I remain at the place where I suppesdly live, if you call it living, well much quieter here despite the music they play. Can't and don't want to deal with being screamed at for being on my laptop by nasty mother and even nastier sister. Yes They say there is nothing wrong with me I am perfectly healthy. How I wish their words would come true. Still new at this blogging thing. So excuse the mess. Still under construction.

Musings Of My Life With Fibromyalgia: Too much to do , never enough time

2011-04-13T15:17:00.000-04:00

Musings Of My Life With Fibromyalgia: Too much to do , never enough time

Too much to do , never enough time

2011-04-13T15:15:00.000-04:00

Well here it is Wednesday & I do not feel like I have accomplished all that i want to. That is a problem I have. Being very hard on myself. New to this blog set up process and getting a bit impatient so please bare with me until I figure this out.

Musings Of My Life & Causes Fibromyaligia, ME,Sjogrens: About public pages

2011-02-19T11:50:00.000-05:00

Musings Of My Life & Causes Fibromyaligia, ME,Sjogrens: About public pages

About public pages

2011-02-19T11:28:00.000-05:00

About public pages

Another day in Paradise ?

2010-10-07T15:42:00.000-04:00

Well another day in so called Paradise, all depends on if you like palm trees, & rip currents, suburbia, etc. Another adventure , Drove to the Emergency Room Saturday Night October 2nd & as soon as you say HEART HEART, You are never put on a waiting list, they just bring you right in. Good and bad , depending on you view things, Well have been having these boom booms in my chest, ignored it for as long as I could , thus three weeks later I drove myself to ER alone as usual. Well the best part of my visit was The ER Dr. giving me some IV. Valium So now I hae an extra heartbeat, or a premature heartbeat etc. After seeing two cardiologists, blood work, A stress test without shoes , sneakers etc, machines i can't even remember the name of and more scans than i have gone thru at airports I am now pondering if there is any connection to this and Fibromyaligia. Of course stress does acceserbate this but stress makes it all worse, I am on information overload. One more thing to research,. Fed up & tired. You don't sleep in the hospital. So here i am with perfect cholesterol, low normal blood pressure, and an extra beat. I could use some extra money screw the heartbeat stuff. And the beat goes on and on and on,.

Musings Of My Life & Causes: Friday with Fibro

2010-09-24T15:54:00.000-04:00

Musings Of My Life & Causes: Friday with Fibro: "So here it is another Friday still struggling with the pain, The insurance company, No idea how much longer I can keep up the fight with mak..."

Friday with Fibro

2010-09-24T15:43:00.000-04:00

So here it is another Friday still struggling with the pain, The insurance company, No idea how much longer I can keep up the fight with making phone calls, advocating & more. Who is advocating for me ? No one but myself. Yes i sign petitions, post, share, do all the right things yet here i am on SSI and an hmo medicaid plan that is horrible and i can't get any help. So much for this supposed great new health care act. what about me ? Tired of pain, not being able to go the appropriate dr's to treat Fibromyaligia, spinal stenosis, My TMJ pain, And i have several tumors on my Parotid Glands. That in itself is an entire chapter.

Yes they did a core biopsy, said something is wrong but they don't know what, come back & see me in Three months, What is going to be different in 3 months i ask ? Absolutely nothing, THey just keep on growing and hurt me more each day,.

I have one grown daughter who is married and is not talking to me now, why who knows, i have grown tired trying to figure out other's irrational behaviour. perhaps it is her controlling husband, And a grand daughter who i have yet to be allowed to see. You know the saying no good deed goes unpunished, well perhaps I should stop doing so many good deeds.

Now to my living situation, not to good when u are forced to live with your mother and an older sister.