tag:blogger.com,1999:blog-8751731154330640651Mon, 28 Nov 2011 00:43:38 +0000Autism CostDevelopmental delaysHealth CareAutism TreatmentsAutism HistoryMedicinebig pharmaAutismEarly mistakesfamily treeQuestion the Medical EstablishmentCFGFHib vaccineAutism DenialvaccinesEnvironmental ToxinsFire RetardantsABALiving with a child on the Autistic Spectrum. (Disclaimer!) I'm writing this on my own. Don't rely on my memory as a possible source of information. If you have questions, start doing your own research. Just like any other blog, start from the bottom. Updated completely at random.http://myautisticlife.blogspot.com/noreply@blogger.com (SAHDSAC)Blogger19125tag:blogger.com,1999:blog-8751731154330640651.post-8159730289073570298Wed, 23 Dec 2009 23:42:00 +00002009-12-26T10:46:35.121-05:00MedicineHealth CareAutismbig pharmaDear President Obama and Congress,Please stop compromising on health care. You know what should go into this legislation, please do the right thing.Thank you,All of UsAnd now, we rant. . .I don't want to have to be forced to pay for insurance that doesn't work for me. I don't want the government telling me what is good for me, (my history with government funded health advisories isn't the http://feedproxy.google.com/~r/MyAutisticLife/~3/NGWzBhXUKAs/open-letter-to-politicians-and-rant.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2009/12/open-letter-to-politicians-and-rant.htmltag:blogger.com,1999:blog-8751731154330640651.post-8384020829389222378Fri, 23 Jan 2009 15:24:00 +00002009-01-23T18:27:59.440-05:00I watched the Inauguration Speech on the 20th.I haven't done that in nearly two decades.I've thought of immigration to find a country that might take a better stand on healthcare. I've watched as people point at my son, called him names, and rejected my family, not just my son, because of his autism.People that make comments at the grocery store, when my son hums to calm himself after being http://feedproxy.google.com/~r/MyAutisticLife/~3/04tVNJ3bszo/is-this-end-of-nation-of-self-centered.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2009/01/is-this-end-of-nation-of-self-centered.htmltag:blogger.com,1999:blog-8751731154330640651.post-8239012667850632924Sun, 23 Nov 2008 18:46:00 +00002008-11-23T13:47:54.745-05:00Look! Up in the sky! It's. . . It's. . . Oh, just an airplane. I don't have a cape. I can barely lift my spirits, let alone a train, but I keep plugging away.As a line from one of my favorite animated movies says, “When life hands you lemons, you make lemonade. Then, after a few days, the lemonade goes bad and turns to pig swill.”I’m not a plumber, or a carpenter, or an accountant, (obviously, byhttp://feedproxy.google.com/~r/MyAutisticLife/~3/6FGqUOV25TI/generic-man-or-joe-not-friggin-plumber.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/11/generic-man-or-joe-not-friggin-plumber.htmltag:blogger.com,1999:blog-8751731154330640651.post-5311071794116973802Wed, 28 May 2008 16:01:00 +00002008-12-10T00:36:36.462-05:00Autism CostI got to see a movie at a theater this past weekend. It's the first movie I've seen in a theater since I was on travel last year. Of course I wasn't with my wife. That would be too much like being married. No, the wife offered to take our son swimming so that I could go watch a show. Normally, when we volunteer like that, it's so the other can get something accomplished at the house. Fix a leaky http://feedproxy.google.com/~r/MyAutisticLife/~3/IoUnBHAFquM/perspective.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/05/perspective.htmltag:blogger.com,1999:blog-8751731154330640651.post-1717142378244421565Wed, 14 May 2008 13:08:00 +00002008-12-10T00:36:36.589-05:00AutismOkay, in the greater Washington DC area, people accept certain, "Laws of Elected Officials".An example, "Congressman/Senator/Representative/Mayor so-and-so ran over 3 latino children yesterday afternoon, after a 12 martini lunch with Big Pharma lobbyist." (I made this up, honest)The story that comes out is, "Congressman/Senator/Representative/Mayor so-and-so took steps yesterday to reduce illegalhttp://feedproxy.google.com/~r/MyAutisticLife/~3/ELEsONG0ahI/spin-baby-spin.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/05/spin-baby-spin.htmltag:blogger.com,1999:blog-8751731154330640651.post-8587554772355190952Wed, 30 Apr 2008 18:46:00 +00002008-05-09T08:15:47.208-04:00After massive amounts of trial and error, piles of experiments, and truckloads of money, we're still working on recovering our son. He has made a lot of progress, and is as healthy as we can keep him, so I guess we're on the right track.The problem is that my son isn't just a case of thimerisol poisoning. His case is a little more involved. Since it has been established that the mother now passeshttp://feedproxy.google.com/~r/MyAutisticLife/~3/W_1cIY-o3is/taking-long-road-with-detours-and.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/04/taking-long-road-with-detours-and.htmltag:blogger.com,1999:blog-8751731154330640651.post-2114896639117604819Mon, 31 Mar 2008 16:17:00 +00002008-03-31T21:30:30.357-04:00AutismAutism DenialSo, we have the CDC, AAP, FDA, AMA, and SCA (Society for Creative Analysis, otherwise known as mainstream media) marketing the hell out of the genetics/better diagnosis angle for the cause of autism. Where are these people getting these ideas?First, there has to be money to allow for the 'studies' being touted that assure the public that autism isn't also caused by the one thing that makes http://feedproxy.google.com/~r/MyAutisticLife/~3/9S7hv736JZE/insanity-plea-or-how-to-deny-everything.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/03/insanity-plea-or-how-to-deny-everything.htmltag:blogger.com,1999:blog-8751731154330640651.post-5858021058459520839Mon, 10 Mar 2008 19:39:00 +00002008-03-11T16:28:56.239-04:00Autism CostOkay, we've established the fact that my son regressed into autism. We've established that the recovery of my son is very expensive. Hmm, I guess we haven't established that yet.My wife and I are both educated professionals. She has an MBA and I have been working in IT and graphic arts for more than 10 years and have an AAB and a Occupational Associates Degree, (which is basically a trade http://feedproxy.google.com/~r/MyAutisticLife/~3/irlIXAjHX9M/follow-money.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/03/follow-money.htmltag:blogger.com,1999:blog-8751731154330640651.post-8852037076272898455Sat, 08 Mar 2008 17:42:00 +00002008-04-07T07:00:51.253-04:00vaccinesAutismI had to interject this so that the few people that read this blog can check out some news from our world.The Vaccine-Autism Story: Trust Your Government, or Be a Patriot and Get on GooglePosted March 7, 2008 01:33 PM (EST)A big autism bomb went off yesterday, about how US medical personnel had determined that vaccines had aggravated a little girl's mitochondrial disorder, resulting in autism. http://feedproxy.google.com/~r/MyAutisticLife/~3/A_v4Y3l-9Xo/david-kirbys-article-on-huffington-post.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/03/david-kirbys-article-on-huffington-post.htmltag:blogger.com,1999:blog-8751731154330640651.post-3612791272519046210Tue, 26 Feb 2008 13:22:00 +00002008-02-26T08:25:36.347-05:00Autism TreatmentsAutism CostThat's what we were told by most of the medical establishment. The Web, on the other hand, was telling us that if we spent our money with X person or X treatment, our child would be spouting poetry within days of beginning treatment.Ya gotta love snake oil salesmen. . .Then you've got the groups and individuals who believe that uncontrollable bowels, fits of screaming, smacking your head against http://feedproxy.google.com/~r/MyAutisticLife/~3/CPK27Lavd0U/no-hope.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/no-hope.htmltag:blogger.com,1999:blog-8751731154330640651.post-2594179752992049784Thu, 21 Feb 2008 21:54:00 +00002008-02-21T17:36:39.492-05:00Autism TreatmentsCFGFABA"What can we do about this?" Hmmm, just like everyone else, we hit the web. The wife throwing in hundreds, (I mean that literally) of hours researching what to do with a child with Autism. (They weren't calling it a spectrum disorder yet, but we'll get there.) ABA? (applied behavior analysis) That sounds good, let's see if we can find someone in, (insert major city here) that can do that. Oops. http://feedproxy.google.com/~r/MyAutisticLife/~3/GtOfZM3HtC0/treatmentservices-conundrum.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/treatmentservices-conundrum.htmltag:blogger.com,1999:blog-8751731154330640651.post-4738520939118883527Wed, 20 Feb 2008 16:42:00 +00002008-06-17T21:17:29.295-04:00Developmental delaysAutismEarly mistakesSo, we'd moved, put our house on the market, I'd started school, we were learning about a new area of the country, trying to find a daycare so that the wife could work while I went to school, and now, we had to learn about autism. The first thing we found out is that no daycare will accept children with autism. Oops. Um, we've already taken out loans for my schooling, and we're past the refund http://feedproxy.google.com/~r/MyAutisticLife/~3/83U8o1MJDbM/insult-to-injury.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/insult-to-injury.htmltag:blogger.com,1999:blog-8751731154330640651.post-8105073957959931466Wed, 20 Feb 2008 14:08:00 +00002008-02-20T11:54:59.709-05:00Developmental delaysAutism DenialLet's see, how many ways can you think of to come up with excuses as to why your son doesn't talk, won't make eye contact, and spends hours, (like 3 hours or more at a time) rolling a ball down a tilted box? My wife started to worry about him way before I did. She's smart, even if she does bite every now and again. . . We got the usual comments, "Einstein didn't talk until he was [insert some http://feedproxy.google.com/~r/MyAutisticLife/~3/A0Las-gBNc4/river-in-egypt-denial.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/river-in-egypt-denial.htmltag:blogger.com,1999:blog-8751731154330640651.post-3762914161236775495Tue, 19 Feb 2008 18:06:00 +00002008-02-20T08:07:01.943-05:00Hib vaccinefamily treeOur son was making progress. Learning to walk, making gestures, brightening, and piles of other hints that all was well. He was trying new foods, we were starting to potty train. . . I was in hog heaven. Living the dream. A beautiful wife, an even more beautiful child. . . The only thing missing would be some uplifting elevator music playing in the background!The wife had convinced me that we http://feedproxy.google.com/~r/MyAutisticLife/~3/VuIK85T2mRU/still-hangin-in-there.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/still-hangin-in-there.htmltag:blogger.com,1999:blog-8751731154330640651.post-4779847082003129848Tue, 19 Feb 2008 16:31:00 +00002008-02-19T13:47:16.484-05:00Environmental ToxinsFire RetardantsAutismWe did the usual things that parents, especially new parents, did. We went and got family photos, picked a pediatrician that was, mostly, aligned with our way of thinking, and constantly read about how to keep our child safe. Meanwhile, we had purchased a house, (70s era place) and bought new furniture to go into the house. We were still working out the single to married things, (translation: shehttp://feedproxy.google.com/~r/MyAutisticLife/~3/0smHwQfEZBw/early-years-ba-before-autism.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/early-years-ba-before-autism.htmltag:blogger.com,1999:blog-8751731154330640651.post-4485619076759562907Tue, 19 Feb 2008 02:48:00 +00002008-02-19T13:48:21.824-05:00Autism HistoryAutismOkay, by now, you've got this image of a tree-huggin', vegetarian, sandal-wearin', liberal arts kind of metrosexual guy. (I had to explain metrosexual to the wife, which is really funny if you know us).Buzzer!!!!!!Not really. I'm not a sandal fan, haven't hugged a tree in recent memory, (not sure about a few years in there. . .)I believe that if we weren't supposed to eat animals, they shouldn't http://feedproxy.google.com/~r/MyAutisticLife/~3/fWZ4Ki1_2ZA/little-about-author.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/little-about-author.htmltag:blogger.com,1999:blog-8751731154330640651.post-5924400675591877826Mon, 18 Feb 2008 20:32:00 +00002008-02-20T11:48:08.663-05:00Question the Medical EstablishmentAutism"Don't be silly! Of course you need to vaccinate your child for Hepatitis B right after birth. It says so right here in the schedule." You wouldn't want your son to catch a disease transmitted from the dirty needles of drug abusers would you? [sarcasm] 'Cause I was thinking that right after we get out of the hospital would be a good time to show him how to mainline crack! [/sarcasm]I really likehttp://feedproxy.google.com/~r/MyAutisticLife/~3/oYjHR6Rnteg/tow-line-you-must-follow-herd.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/tow-line-you-must-follow-herd.htmltag:blogger.com,1999:blog-8751731154330640651.post-6038816872005839347Mon, 18 Feb 2008 19:04:00 +00002008-02-19T13:49:17.253-05:00AutismEarly mistakesMy son did the usual things for his first year, year and a half. He started walking at almost exactly one year. Put on weight like he should, his blond hair was too pretty to cut, so his hair was getting long and driving his Great Grandma nuts, (She used to be a Beautician, back when people actually went to school to learn their trade).The storm was coming.My wife REALLY took to the Internet. http://feedproxy.google.com/~r/MyAutisticLife/~3/fFqnmSnuj_s/storm-clouds-on-horizon.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/storm-clouds-on-horizon.htmltag:blogger.com,1999:blog-8751731154330640651.post-7271109501384880015Thu, 14 Feb 2008 12:36:00 +00002008-02-18T15:36:25.696-05:00Autism3229 Days. 77496 Hours. 8 years, 10 months or so. That's how long I've lived with a child on the Autistic Spectrum as of this post. I've been married for more than 10 years, we have a dog, a nice house, 2 cars, in-laws, and the mortgage. I was so happy when my son was born. See, my wife is a little older than I am, and the doc told us she only had a 15 percent chance of getting pregnant due to http://feedproxy.google.com/~r/MyAutisticLife/~3/I3WAyuXpKC4/issue-one.htmlnoreply@blogger.com (SAHDSAC)0http://myautisticlife.blogspot.com/2008/02/issue-one.html