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<channel>
	<title>My Chronic Life</title>
	
	<link>http://mychroniclife.com</link>
	<description>A Health Blog By Someone Who Knows</description>
	<pubDate>Sun, 12 Jul 2009 01:59:22 +0000</pubDate>
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		<title>July Is Eye Injury Prevention Month</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/OXNW2RKP3tI/</link>
		<comments>http://mychroniclife.com/2009/07/11/july-is-eye-injury-prevention-month/#comments</comments>
		<pubDate>Sun, 12 Jul 2009 01:59:22 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Health Information]]></category>

		<category><![CDATA[Health Supplies Equipment]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=663</guid>
		<description><![CDATA[July is Eye Injury Prevention Month in the United States. The first thing I think about is hurting my eyes from an accident, but something very important to consider is keeping your vision safe from sunlight. 
The UV rays from the sun can cause Macular Degeneration and Cataracts. But did you know that you can [...]]]></description>
			<content:encoded><![CDATA[<p>July is Eye Injury Prevention Month in the United States. The first thing I think about is hurting my eyes from an accident, but something very important to consider is keeping your vision safe from sunlight. </p>
<p>The UV rays from the sun can cause Macular Degeneration and Cataracts. But did you know that you can also burn your corneas? It is necessary to wear sunglasses that block UV rays from childhood. For infants, keep them out of the sun.</p>
<p>When you are doing work where your eyes may be injured, such as mowing the lawn be sure to wear goggles to keep your eyes safe. When playing sports do the same. </p>
<p>Your eyesight is precious. Since there are ways to protect it, do it always. </p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2008/02/04/amd-and-low-vision-awareness-month/" rel="bookmark">AMD and Low Vision Awareness Month</a></li><li><a href="http://mychroniclife.com/2008/01/13/saving-on-eyeglasses/" rel="bookmark">Saving on Eyeglasses</a></li><li><a href="http://mychroniclife.com/2008/01/17/national-birth-defects-prevention-month/" rel="bookmark">National Birth Defects Prevention Month</a></li><li><a href="http://mychroniclife.com/2008/04/23/sjogrens-syndrome-dry-eyes/" rel="bookmark">Sjogren's Syndrome Dry Eyes</a></li><li><a href="http://mychroniclife.com/2009/04/22/living-with-sjogrens-syndrome/" rel="bookmark">Living With Sjogren's Syndrome</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/OXNW2RKP3tI" height="1" width="1"/>]]></content:encoded>
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		<item>
		<title>BluFrog Energy Drink Contest</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/9ECEnNPCMHs/</link>
		<comments>http://mychroniclife.com/2009/07/09/blufrog-energy-drink-contest/#comments</comments>
		<pubDate>Fri, 10 Jul 2009 04:01:30 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Health Supplies Equipment]]></category>

		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=658</guid>
		<description><![CDATA[The BluFrog Energy Drink Contest is almost over so I wanted to be sure to pass the word along. I usually don&#8217;t write about contests on this blog, but since the prizes are so amazing, I wanted to be sure my readers had an opportunity to enter.
There&#8217;s three ways to enter:

Twitter about why you think [...]]]></description>
			<content:encoded><![CDATA[<p>The BluFrog Energy Drink Contest is almost over so I wanted to be sure to pass the word along. I usually don&#8217;t write about contests on this blog, but since the prizes are so amazing, I wanted to be sure my readers had an opportunity to enter.</p>
<p>There&#8217;s three ways to enter:</p>
<ol>
<li>Twitter about why you think <a href="http://socialspark.com/metrics/click/post?slot_id=41512&#038;url=http%3A%2F%2Fblufrogenergy.com%2F" rel="nofollow">BluFrog</a> is the best energy drink. Be sure to include the hashtag #blufrog and the link http://bit.ly/UiiJy</li>
<li>Leave a comment about which prize you want to win here - <a href="http://itsabluworld.com/contests/" target="_blank">http://itsabluworld.com/contests/</a></li>
<li>Write a blog post about the prize you want to win. Leave a comment on the page above with a link to your post. (Kind of like this post)</li>
</ol>
<p>Here&#8217;s the prizes that are offered:</p>
<ol>
<li>BigGamer - XBox 360 Elite package</li>
<li>Happy Blu-Year - Trip to New York City to celebrate New Year&#8217;s Eve at Times Square</li>
<li>Bluapalloza - Trip to Chicago to attend Lalapalloza</li>
<li>BluStreak - Trip to Orlando and Richard Petty Racing Experience</li>
<li>XtremeBlu - Trip to Aspen and the Winter X Games</li>
</ol>
<p>For more details on all of the prizes and the rules be sure to visit the <a href="http://socialspark.com/metrics/click/post?slot_id=41512&#038;url=http%3A%2F%2Fitsabluworld.com" rel="nofollow">BluFrog contest</a> page. Don&#8217;t wait too long! The end date is July 17th at 11:59 pm EST.</p>
<p>Have you heard about BluFrog Energy Drink? It is made of healthy ingredients and no caffeine. It is only 68 calories per 8.3 oz can. There&#8217;s no jitters and no crash. No need to purchase to enter the contest, but it&#8217;s been getting great reviews. For those of us who can&#8217;t handle caffeine, this may help with fatigue.</p>
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<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2009/04/30/nurses-magazine-provides-info-for-patients-too/" rel="bookmark">Nurse's Magazine Provides Info For Patients Too</a></li><li><a href="http://mychroniclife.com/2009/04/01/walk-a-little-help-a-lot/" rel="bookmark">Walk A Little Help A Lot</a></li><li><a href="http://mychroniclife.com/2009/06/01/mesothelioma-and-asbestos/" rel="bookmark">Mesothelioma And Asbestos</a></li><li><a href="http://mychroniclife.com/2008/07/12/contests-galore/" rel="bookmark">Contests Galore</a></li><li><a href="http://mychroniclife.com/2009/05/18/swine-flu-fashion/" rel="bookmark">Swine Flu Fashion</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/9ECEnNPCMHs" height="1" width="1"/>]]></content:encoded>
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		<item>
		<title>Myasthenia Gravis Status Update</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/E718nAuBMLA/</link>
		<comments>http://mychroniclife.com/2009/07/06/myasthenia-gravis-status-update/#comments</comments>
		<pubDate>Mon, 06 Jul 2009 15:47:30 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Health Information]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=654</guid>
		<description><![CDATA[I thought I&#8217;d update you on what is happening with the Myasthenia Gravis since I saw my neurologist from the MDA last week. I am still amazed that with all of the patients he sees that he is able to remember my symptoms, especially ones that are hard to distinguish.
He noticed right away that both [...]]]></description>
			<content:encoded><![CDATA[<p>I thought I&#8217;d update you on what is happening with the Myasthenia Gravis since I saw my neurologist from the MDA last week. I am still amazed that with all of the patients he sees that he is able to remember my symptoms, especially ones that are hard to distinguish.</p>
<p>He noticed right away that both of my eyelids were drooping. After speaking to me about my symptoms for a little while and then examining me, we talked about how to handle my worsening strength and stamina. During my last visit he suggested that we increase the Cellcept, which I did not agree with. But this time, it felt it was necessary. Instead of increasing my dose to 3000 mg though, we&#8217;re trying 2500 mg. My fear with this increase is that my ability to fight off infections is going to be very low because I am also on Humira.</p>
<p>He agreed that I do need to be more careful than normal about catching colds or anything more serious and to go with the 2500 mg. He also increased two doses of Mestinon. He feels that the MG is worse now because of the heat (I live in Florida and this summer has been pretty bad) and because of starting menopause. Hopefully I won&#8217;t need to be on the higher med dose for a long time. </p>
<p>I&#8217;m going to get a pneumonia vaccine and talk to my Primary Doctor about any other suggestions on how to stay healthy while being on two immunosuppressants. </p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2009/06/08/living-with-myasthenia-gravis/" rel="bookmark">Living With Myasthenia Gravis</a></li><li><a href="http://mychroniclife.com/2008/07/28/myasthenia-gravis-is-a-cyclical-disease/" rel="bookmark">Myasthenia Gravis is A Cyclical Disease</a></li><li><a href="http://mychroniclife.com/2008/05/25/rag-doll-myasthenia-gravis-symptoms/" rel="bookmark">Rag Doll Myasthenia Gravis Symptoms</a></li><li><a href="http://mychroniclife.com/2007/10/03/that-balance/" rel="bookmark">That Balance</a></li><li><a href="http://mychroniclife.com/2008/04/20/myasthenia-gravis-and-the-heat/" rel="bookmark">Myasthenia Gravis and The Heat</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/E718nAuBMLA" height="1" width="1"/>]]></content:encoded>
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		<item>
		<title>CraftyGAgal Succeeds Through Pain</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/aX4Yhapk34Y/</link>
		<comments>http://mychroniclife.com/2009/06/28/craftygagal-succeeds-through-pain/#comments</comments>
		<pubDate>Mon, 29 Jun 2009 03:59:52 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Shopping]]></category>

		<category><![CDATA[Spotlight]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=644</guid>
		<description><![CDATA[I met craftyGAgal on Twitter and learned about how she succeeds in business through chronic pain. We connected on Facebook too. The more I&#8217;ve learned about her and her drive to make and sell crafts and to blog, the more I wanted to share her positive attitude and her beautiful work with my readers.
craftyGAgal&#8217;s real [...]]]></description>
			<content:encoded><![CDATA[<p>I met craftyGAgal on Twitter and learned about how she succeeds in business through chronic pain. We connected on Facebook too. The more I&#8217;ve learned about her and her drive to make and sell crafts and to blog, the more I wanted to share her positive attitude and her beautiful work with my readers.</p>
<p>craftyGAgal&#8217;s real name is Meredith Crosby. She is 31 years old, married and has twin boys who are 7 years old. When she was a young girl, she was involved in a boating accident and injured her back. Her condition worsened after her pregnancy due to carrying twins and the weight gain that went along with it. She also has scoliosis and has had to endure a spinal fusion and a costoplasty- where they removed several centimeters of five of her ribs to remove a hump that was in her back due to the scoliosis. The ribs are then left broken to heal back together.  She had two titanium rods put into my back, 13 screws and lots of other hardware. These were both very painful operations.</p>
<p>Meredith describes her condition as, &#8220;Constant never ending Pain, numbness in limbs and sometimes lips, unable to do anything for long periods of time, depression, anxiety, loss of social life&#8230;&#8221; But she has a loving and supportive husband and her children love her unconditionally. She is part of the Invisible Illness group because she doesn&#8217;t look disabled and has friends and even some family members who don&#8217;t understand her situation and her chronic pain.</p>
<p><img class="alignleft size-full wp-image-649" title="craftygagal_etsy_pendant-1" src="http://mychroniclife.com/wp-content/uploads/2009/06/craftygagal_etsy_pendant-1.jpg" alt="craftygagal_etsy_pendant-1" width="147" height="220" />After being told that she could not work, she began crafting for fun and to keep her mind busy and occupied. She makes stained glass, beaded and gemstone jewelry and crochets baby items and hats. She has a store on Etsy - <a href="http://www.etsy.com/shop.php?user_id=6596255" target="_blank">craftyGAgal</a>, where she takes custom orders and lists new items every day.</p>
<p>*<strong>Important</strong>* If you shop at her Etsy store between now and the end of the day on July 6th, put in a code &#8220;MyChronicLife&#8221; to the &#8220;Note to Seller&#8221; area you will get a 10% discount.</p>
<p>Get to know her and her bubbly personality on <a href="http://twitter.com/craftyGAgal" target="_blank">Twitter</a> and on <a href="http://www.facebook.com/craftyGAgal" target="_blank">Facebook</a>, where she&#8217;s also known as Southern Handmade Gifts. She&#8217;ll have you laughing, I promise! And if you think that isn&#8217;t enough, visit her blog, <a href="http://craftygagal.blogspot.com/" target="_blank">craftyGAgal&#8217;s Southern Handmade Gifts</a>.</p>
<p><em>This is an ongoing effort to <strong>spotlight</strong> people with chronic illness, health issues and disabilities who are making a contribution in some way despite their pain, sickness, etc.</em></p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2007/10/14/wave-of-light-for-pregnancy-and-infant-loss/" rel="bookmark">Wave of Light for Pregnancy and Infant Loss</a></li><li><a href="http://mychroniclife.com/2007/08/31/disabled-online-users-association-doua/" rel="bookmark">Disabled Online Users Association - DOUA</a></li><li><a href="http://mychroniclife.com/2008/12/08/gno-random-acts-of-kindness-for-bloggers-like-me/" rel="bookmark">GNO Random Acts of Kindness for Bloggers Like Me</a></li><li><a href="http://mychroniclife.com/2008/10/04/living-not-surviving-with-pain/" rel="bookmark">Living Not Surviving With Pain</a></li><li><a href="http://mychroniclife.com/2009/05/16/extra-income-for-those-with-health-issues/" rel="bookmark">Extra Income For Those With Health Issues</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/aX4Yhapk34Y" height="1" width="1"/>]]></content:encoded>
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		<item>
		<title>Primary Medical Care For Chronically Ill</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/Ub9JvOapI2I/</link>
		<comments>http://mychroniclife.com/2009/06/27/primary-medical-care-for-chronically-ill/#comments</comments>
		<pubDate>Sat, 27 Jun 2009 06:25:36 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[DisABILITY Advocate]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=642</guid>
		<description><![CDATA[Have you ever been refused primary medical care if you have are chronically ill? If so, do you have one chronic illness or multiple ones?  I&#8217;m trying to get a handle on this issue because it seems to be a trend that I&#8217;m learning about. It has also happened to me.
I&#8217;ve either been turned [...]]]></description>
			<content:encoded><![CDATA[<p>Have you ever been refused primary medical care if you have are chronically ill? If so, do you have one chronic illness or multiple ones?  I&#8217;m trying to get a handle on this issue because it seems to be a trend that I&#8217;m learning about. It has also happened to me.</p>
<p>I&#8217;ve either been turned down by doctors&#8217; offices on the phone before my first appointment when I explain that I have multiple chronic illnesses, been told that I can longer remain a patient because my care is too complicated or have had to &#8220;fire&#8221; doctors who refuse to maintain the tests and/or relationships with the many specialists that I must see.</p>
<p>You may be wondering why I divulge my health information on an initial phone call to a doctor. I&#8217;ve learned to do that because I don&#8217;t want to make an appointment, drive there, fill out forms and then be told that I&#8217;m not wanted. It saves me time and energy.</p>
<p>I&#8217;d like to hear what your history has been with this situation please. This can be the first step in promoting our issue and trying to get a solution for it.</p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2008/03/09/medical-bills-oh-no/" rel="bookmark">Medical Bills - Oh No!</a></li><li><a href="http://mychroniclife.com/2008/04/29/the-state-of-health-care/" rel="bookmark">The State of Health Care</a></li><li><a href="http://mychroniclife.com/2008/11/06/finding-specialty-health-care-in-a-rural-area/" rel="bookmark">Finding Specialty Health Care In A Rural Area</a></li><li><a href="http://mychroniclife.com/2008/06/22/doctor-vacations/" rel="bookmark">Doctor Vacations</a></li><li><a href="http://mychroniclife.com/2008/08/28/life-disrupted-review/" rel="bookmark">Life Disrupted Review</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/Ub9JvOapI2I" height="1" width="1"/>]]></content:encoded>
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		<item>
		<title>Disappointments With Chronic Illness</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/4DeqjSCY5L0/</link>
		<comments>http://mychroniclife.com/2009/06/14/disappointments-with-chronic-illness/#comments</comments>
		<pubDate>Mon, 15 Jun 2009 03:18:10 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Disney Fanatic]]></category>

		<category><![CDATA[Family Life]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=638</guid>
		<description><![CDATA[I try my best to be positive, but there are some days when I can&#8217;t help but be disappointed with living with chronic illnesses. Today is one of those days. We arrived for our first day at Disney World. I knew that it was going to be hot of course and planned accordingly.
Instead of visiting [...]]]></description>
			<content:encoded><![CDATA[<p>I try my best to be positive, but there are some days when I can&#8217;t help but be disappointed with living with chronic illnesses. Today is one of those days. We arrived for our first day at Disney World. I knew that it was going to be hot of course and planned accordingly.</p>
<p>Instead of visiting the parks during the heat of the day because it affects the Myasthenia Gravis, I planned on keeping busy indoors and going to the parks after the sun goes down. Today we did just that, well almost. I stayed in the resort during the day, looking around and of course checking out the shopping. We ate lunch here too. I got to take a nap in the late afternoon and we planned on going to Epcot about 7 PM. </p>
<p>Unfortunately the minute we got outside the heat hit me and I felt terribly weak. So weak in fact that I couldn&#8217;t even use my scooter. Not good for me or for my husband and daughter. I have been going through some serious issues with the MG lately so I guess this was to be expected.</p>
<p>We were able to take our van to go out to eat instead. Torrow is another day and I&#8217;m using my positive attitude to think that I will feel better. I&#8217;m going to get a good night&#8217;s sleep and be sure to take my meds on time, eat right and not stress. </p>
<p>I&#8217;ll keep you posted on how things go. The one great thing about Disney is that even if I don&#8217;t get to the Parks, there&#8217;s so much that I can do indoors to have fun.</p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2008/04/20/myasthenia-gravis-and-the-heat/" rel="bookmark">Myasthenia Gravis and The Heat</a></li><li><a href="http://mychroniclife.com/2009/06/08/living-with-myasthenia-gravis/" rel="bookmark">Living With Myasthenia Gravis</a></li><li><a href="http://mychroniclife.com/2008/09/25/fruit-salad/" rel="bookmark">Fruit Salad</a></li><li><a href="http://mychroniclife.com/2008/04/12/napping-is-an-art/" rel="bookmark">Napping is an Art</a></li><li><a href="http://mychroniclife.com/2008/01/01/new-years-day-and-before/" rel="bookmark">New Years Day and Before</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/4DeqjSCY5L0" height="1" width="1"/>]]></content:encoded>
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		<item>
		<title>Lasik Surgery</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/rey1kjtpRSs/</link>
		<comments>http://mychroniclife.com/2009/06/11/lasik-surgery/#comments</comments>
		<pubDate>Fri, 12 Jun 2009 03:59:51 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Health Information]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=634</guid>
		<description><![CDATA[Choosing a doctor to perform your Lasik Surgery can be difficult. You want to be sure that the doctor has performed many surgeries and has done them successfully. If you are able to read testimonials from patients that is helpful. Checking on the doctor&#8217;s credentials from your state&#8217;s medical board is another way to feel [...]]]></description>
			<content:encoded><![CDATA[<p>Choosing a doctor to perform your Lasik Surgery can be difficult. You want to be sure that the doctor has performed many surgeries and has done them successfully. If you are able to read testimonials from patients that is helpful. Checking on the doctor&#8217;s credentials from your state&#8217;s medical board is another way to feel confident.</p>
<p>If you can get information on the procedure by seeing seeing one done live that can help prepare you. I&#8217;m a person that wants to know everything in advance. Other people don&#8217;t want to and would rather have the procedure done without much information in advance. </p>
<p><a href="http://www.davisvisionmd.com/">Salt Lake City Lasik Surgery</a> has a video of a procedure for anyone to see:</p>
<p><object width="340" height="285"><param name="movie" value="http://www.youtube.com/v/x8wxlx6RkQk&#038;hl=en&#038;fs=1&#038;rel=0&#038;color1=0x006699&#038;color2=0x54abd6&#038;border=1"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/x8wxlx6RkQk&#038;hl=en&#038;fs=1&#038;rel=0&#038;color1=0x006699&#038;color2=0x54abd6&#038;border=1" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="340" height="285"></embed></object></p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2009/06/01/june-is-myasthenia-gravis-awareness-month-2/" rel="bookmark">June Is Myasthenia Gravis Awareness Month</a></li><li><a href="http://mychroniclife.com/2008/10/16/a-bit-better/" rel="bookmark">A Bit Better</a></li><li><a href="http://mychroniclife.com/2008/07/18/video-on-myasthenia-gravis/" rel="bookmark">Video on Myasthenia Gravis</a></li><li><a href="http://mychroniclife.com/2008/08/14/self-advocacy/" rel="bookmark">Self-Advocacy</a></li><li><a href="http://mychroniclife.com/2008/08/02/get-over-it/" rel="bookmark">Get Over It</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/rey1kjtpRSs" height="1" width="1"/>]]></content:encoded>
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		<feedburner:origLink>http://mychroniclife.com/2009/06/11/lasik-surgery/</feedburner:origLink></item>
		<item>
		<title>Living With Myasthenia Gravis</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/BHIKYxosxZo/</link>
		<comments>http://mychroniclife.com/2009/06/08/living-with-myasthenia-gravis/#comments</comments>
		<pubDate>Tue, 09 Jun 2009 02:38:37 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Chronic Illness]]></category>

		<category><![CDATA[Health Information]]></category>

		<category><![CDATA[Loving Life]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=631</guid>
		<description><![CDATA[Many people don&#8217;t know what it is like to live with Myasthenia Gravis because it is a rare disease. I&#8217;d like to shed some light into my life. 
Since Myasthenia Gravis affects my muscles, I am often weak. Most often my symptoms begin with my eyes. Almost all of the time, my right eyelid droops. [...]]]></description>
			<content:encoded><![CDATA[<p>Many people don&#8217;t know what it is like to live with Myasthenia Gravis because it is a rare disease. I&#8217;d like to shed some light into my life. </p>
<p>Since Myasthenia Gravis affects my muscles, I am often weak. Most often my symptoms begin with my eyes. Almost all of the time, my right eyelid droops. To people who don&#8217;t know me it may not be noticeable, but it is to me and my family and friends. It becomes noticeable if my symptoms worsen and there&#8217;s nothing that I can do about it. I then begin to feel like my forehead is drooping. You can&#8217;t see that, but it&#8217;s a pretty awful feeling. My speech can get slurred and I sound like I&#8217;m drunk. My head feels heavy, too heavy for my neck to hold it up.</p>
<p>If I get worse, my arms and legs then begin to feel very heavy. I often feel that I can&#8217;t move, especially walk. This doesn&#8217;t scare me any more, but it annoys me. I get very frustrated because I feel like I&#8217;m stuck in one place. I do have a scooter to use so if I feel strong enough, I can use it.</p>
<p>The worst symptoms for me is feeling like my throat is closing up. When I am extremely weak, this happens suddenly. This scares me a lot. It makes me feel like I&#8217;m choking. This will also happen for no reason in the middle of the night. I have to either get up myself or if I&#8217;m too weak, have my husband get some food (if I can swallow it) and my Mestinon. I also have trouble swallowing food sometimes and issues with breathing, especially when I move around a lot.</p>
<p>When I have a flare up, these symptoms are more constant, but on normal days, they do not happen very often. Being in the heat, getting stressed, being around chemical odors (even cleaning supplies) and just doing too much physically can set the symptoms off.</p>
<p>Life with Myasthenia Gravis, is not too bad because I know that most of the time my medication can control my symptoms. It may take some time for it to work, but it does work. If I need to have my medication dose changed, I can call my neurologist or go see him. </p>
<p>I haven&#8217;t been to the ER because of MG symptoms, also called a crisis, in years. I am grateful for what I am able to do and how my life is going right now. </p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2008/05/25/rag-doll-myasthenia-gravis-symptoms/" rel="bookmark">Rag Doll Myasthenia Gravis Symptoms</a></li><li><a href="http://mychroniclife.com/2008/06/01/june-is-myasthenia-gravis-awareness-month/" rel="bookmark">June is Myasthenia Gravis Awareness Month</a></li><li><a href="http://mychroniclife.com/2009/06/01/june-is-myasthenia-gravis-awareness-month-2/" rel="bookmark">June Is Myasthenia Gravis Awareness Month</a></li><li><a href="http://mychroniclife.com/2009/07/06/myasthenia-gravis-status-update/" rel="bookmark">Myasthenia Gravis Status Update</a></li><li><a href="http://mychroniclife.com/2008/07/28/myasthenia-gravis-is-a-cyclical-disease/" rel="bookmark">Myasthenia Gravis is A Cyclical Disease</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/BHIKYxosxZo" height="1" width="1"/>]]></content:encoded>
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		<feedburner:origLink>http://mychroniclife.com/2009/06/08/living-with-myasthenia-gravis/</feedburner:origLink></item>
		<item>
		<title>Ebook Library</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/pLhTbC7dLzA/</link>
		<comments>http://mychroniclife.com/2009/06/04/ebook-library/#comments</comments>
		<pubDate>Fri, 05 Jun 2009 00:55:10 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[Advocacy]]></category>

		<category><![CDATA[Health Information]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=628</guid>
		<description><![CDATA[Imagine having an eBook library at your fingertips. One that you can search by topic or title. I was able to find information on health topics, something that I normally research online. I put in the topics chronic illness, myasthenia gravis and sjogren&#8217;s syndrome. Not only did a large amount of eBooks come up, but [...]]]></description>
			<content:encoded><![CDATA[<p>Imagine having an eBook library at your fingertips. One that you can search by topic or title. I was able to find information on health topics, something that I normally research online. I put in the topics chronic illness, myasthenia gravis and sjogren&#8217;s syndrome. Not only did a large amount of eBooks come up, but also more specific topics in these categories. For example, with sjogren&#8217;s syndrome, I found &#8220;sjogren&#8217;s syndrome symptoms&#8221; that was clickable. </p>
<p>The eBooks are in pdf, word, rtf and ppt files, but can be accessed in html form. I was able to easily <a href="http://www.ebook-search-queen.com/">Search for any eBook</a> because this database is huge. I was extremely pleased with the information I found.</p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2009/04/19/sjogrens-syndrome-awareness-month/" rel="bookmark">Sjogren's Syndrome Awareness Month</a></li><li><a href="http://mychroniclife.com/2008/05/10/artificial-tears-and-sjogrens/" rel="bookmark">Artificial Tears and Sjogren's</a></li><li><a href="http://mychroniclife.com/2008/02/21/research/" rel="bookmark">Research</a></li><li><a href="http://mychroniclife.com/2008/08/26/delicate-subject/" rel="bookmark">Delicate Subject</a></li><li><a href="http://mychroniclife.com/2007/10/29/mayo-mill/" rel="bookmark">Mayo Mill</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/pLhTbC7dLzA" height="1" width="1"/>]]></content:encoded>
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		<feedburner:origLink>http://mychroniclife.com/2009/06/04/ebook-library/</feedburner:origLink></item>
		<item>
		<title>Wheelchair College Scholarship</title>
		<link>http://feedproxy.google.com/~r/MyChronicLife/~3/bdMPrWKSaLY/</link>
		<comments>http://mychroniclife.com/2009/06/03/wheelchair-college-scholarship/#comments</comments>
		<pubDate>Thu, 04 Jun 2009 01:36:36 +0000</pubDate>
		<dc:creator>Connie</dc:creator>
		
		<category><![CDATA[DisABILITY Advocate]]></category>

		<category><![CDATA[News]]></category>

		<guid isPermaLink="false">http://mychroniclife.com/?p=625</guid>
		<description><![CDATA[I was pleased to learn about a college scholarship for people who use a wheelchair. This scholarship is for $500 and is expected to be used for books or other extra needed items for full time students. This is provided two times a year, fall and spring and has other requirements besides the use of [...]]]></description>
			<content:encoded><![CDATA[<p>I was pleased to learn about a college scholarship for people who use a wheelchair. This scholarship is for $500 and is expected to be used for books or other extra needed items for full time students. This is provided two times a year, fall and spring and has other requirements besides the use of a wheelchair and those are that the student must:</p>
<ul>
<li>Be enrolled in an accredited two or four year college</li>
<li>Have a minimum 3.0 GPA</li>
<li>Complete a 500 word essay by the deadline specified</li>
<li>Be a legal resident of the USA</li>
<li>Complete an application by the deadline</li>
<li>Submit two character references (more information about this will be provided after the application is received)</li>
</ul>
<p>The deadline for the upcoming fall scholarship is July 31, 2009 and can be completed online or via the mail. If done by the mail, the postmark must be July 31, 2009. There are two questions for this essay. Only one needs to be completed:</p>
<ul>
<li>What area of your school do you think would benefit from improved accessibility and how would you improve it?</li>
<li>What area of your school do you feel has excellent accessibility and why?</li>
</ul>
<p><img class="alignleft size-full wp-image-626" title="ameriglide-achiever" src="http://mychroniclife.com/wp-content/uploads/2009/06/ameriglide-achiever.gif" alt="ameriglide-achiever" width="161" height="56" />The <a href="http://www.ameriglide.com/scholarship/">AmeriGlide Achiever Scholarship</a> enables someone who faces challenges every day to not only earn money but to promote what is needed to make colleges more accessible for people with disabilities.</p>
<div id="crp_related"><h3>Related Posts:</h3><ul><li><a href="http://mychroniclife.com/2009/03/20/spot-compression-mammogram/" rel="bookmark">Spot Compression Mammogram</a></li><li><a href="http://mychroniclife.com/2009/05/16/extra-income-for-those-with-health-issues/" rel="bookmark">Extra Income For Those With Health Issues</a></li><li><a href="http://mychroniclife.com/2009/06/01/ppp-v4o-new-blogging-site/" rel="bookmark">PPP V4.O New Blogging Site</a></li><li><a href="http://mychroniclife.com/2009/01/18/come-join-us-at-doua/" rel="bookmark">Come Join Us At DOUA</a></li><li><a href="http://mychroniclife.com/2008/11/22/online-masters-degree-in-nursing/" rel="bookmark">Online Masters Degree in Nursing</a></li></ul></div><img src="http://feeds.feedburner.com/~r/MyChronicLife/~4/bdMPrWKSaLY" height="1" width="1"/>]]></content:encoded>
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