<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:wfw="http://wellformedweb.org/CommentAPI/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
	xmlns:georss="http://www.georss.org/georss" xmlns:geo="http://www.w3.org/2003/01/geo/wgs84_pos#" xmlns:media="http://search.yahoo.com/mrss/"
	>

<channel>
	<title>Orphan Druganaut Blog</title>
	<atom:link href="https://orphandruganaut.wordpress.com/feed/" rel="self" type="application/rss+xml" />
	<link>https://orphandruganaut.wordpress.com</link>
	<description>PROVIDING COMPETITIVE INTELLIGENCE, NEWS, INTERNET BUZZ ON GLOBAL ORPHAN DRUG DEVELOPMENTS &#38; RARE DISEASES</description>
	<lastBuildDate>Sat, 13 Jun 2015 11:48:32 +0000</lastBuildDate>
	<language>en</language>
	<sy:updatePeriod>
	hourly	</sy:updatePeriod>
	<sy:updateFrequency>
	1	</sy:updateFrequency>
	<generator>http://wordpress.com/</generator>
<site xmlns="com-wordpress:feed-additions:1">37186919</site><cloud domain='orphandruganaut.wordpress.com' port='80' path='/?rsscloud=notify' registerProcedure='' protocol='http-post' />
<image>
		<url>https://s0.wp.com/i/buttonw-com.png</url>
		<title>Orphan Druganaut Blog</title>
		<link>https://orphandruganaut.wordpress.com</link>
	</image>
	<atom:link rel="search" type="application/opensearchdescription+xml" href="https://orphandruganaut.wordpress.com/osd.xml" title="Orphan Druganaut Blog" />
	<atom:link rel='hub' href='https://orphandruganaut.wordpress.com/?pushpress=hub'/>
	<item>
		<title>10 New FDA Orphan Drug Designations: Week of 06/08/15</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/13/10-new-fda-orphan-drug-designations-week-of-060815/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/13/10-new-fda-orphan-drug-designations-week-of-060815/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Sat, 13 Jun 2015 11:48:32 +0000</pubDate>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Oncology]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10527</guid>

					<description><![CDATA[&#160; &#160; &#160; &#160; &#160; &#160; The chart below identifies 10 new FDA Products Receiving Orphan Designation for the week of 06/08 – 06/12/15 as of 06/13/15 in ascending “Orphan Drug Designation Date” order. FDA Products Receiving Orphan Drug Designation (Week of 06/08 – 06/12/15)  # Generic Name/ODD Date Sponsor Company Indication 1 Adenoviral vector expressing the E. [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/13/10-new-fda-orphan-drug-designations-week-of-060815/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10527</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-two_small_test_tubes_held_in_spring_clamps.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-two_small_test_tubes_held_in_spring_clamps.jpg" medium="image">
			<media:title type="html">256px-Two_small_test_tubes_held_in_spring_clamps</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>6 New FDA Orphan Drug Designations: Week of 06/01/15</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/07/6-new-fda-orphan-drug-designations-week-of-060115/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/07/6-new-fda-orphan-drug-designations-week-of-060115/#comments</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Sun, 07 Jun 2015 12:16:29 +0000</pubDate>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Oncology]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10523</guid>

					<description><![CDATA[  &#160; &#160; &#160; &#160; &#160; The chart below identifies 6 new FDA Products Receiving Orphan Designation for the week of 06/01 – 06/05/15 as of 06/07/15 in ascending “Orphan Drug Designation Date” order. FDA Products Receiving Orphan Drug Designation (Week of 06/01 – 06/05/15)  # Generic Name/ODD Date Sponsor Company Indication 1 2-(5-fluoro-2-methyl-1H-indol-3-yl)-1H-imidazo[4,5-f][1,10] phenanthroline/ 06.01 Aptose Biosciences [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/07/6-new-fda-orphan-drug-designations-week-of-060115/feed/</wfw:commentRss>
			<slash:comments>1</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10523</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-two_small_test_tubes_held_in_spring_clamps.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-two_small_test_tubes_held_in_spring_clamps.jpg" medium="image">
			<media:title type="html">256px-Two_small_test_tubes_held_in_spring_clamps</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>Patient Advocacy: Top Grant-Giving Disease Foundations</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/05/patient-advocacy-top-grant-giving-disease-foundations-2/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/05/patient-advocacy-top-grant-giving-disease-foundations-2/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Fri, 05 Jun 2015 04:16:51 +0000</pubDate>
				<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10518</guid>

					<description><![CDATA[&#160; &#160; This week, GEN (Genetic Engineering &#38; Biotechnology News), publishes an online list of the top 35 Nonprofit Disease Foundations (2015 Edition) that give grants and awards for research. The Nonprofit Disease Foundations are ranked by the “percentage of total expenses spent on these grants and awards.” Per the article: &#8220;The list does not constitute a complete [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/05/patient-advocacy-top-grant-giving-disease-foundations-2/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10518</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2014/01/kid_hugging_a_rainbow.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2014/01/kid_hugging_a_rainbow.jpg" medium="image">
			<media:title type="html">Kid_hugging_a_rainbow</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>FDA Breakthrough Therapy And A Rare Disease: Genzyme’s ERT Olipudase Alfa For Niemann-Pick Disease</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/04/fda-breakthrough-therapy-and-a-rare-disease-genzymes-ert-olipudase-alfa-for-niemann-pick-disease/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/04/fda-breakthrough-therapy-and-a-rare-disease-genzymes-ert-olipudase-alfa-for-niemann-pick-disease/#comments</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Fri, 05 Jun 2015 00:35:33 +0000</pubDate>
				<category><![CDATA[Enzyme Replacement Therapy]]></category>
		<category><![CDATA[FDA Breakthrough Therapy Designation]]></category>
		<category><![CDATA[Genzyme]]></category>
		<category><![CDATA[Lysosomal Storage Disorders]]></category>
		<category><![CDATA[Niemann-Pick Disease]]></category>
		<category><![CDATA[Olipudase Alfa]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10511</guid>

					<description><![CDATA[Genzyme, a Sanofi company, announces June 4th that the FDA grants the Breakthrough Therapy Designation (BTD) to its investigational Enzyme Replacement Therapy (ERT), Olipudase Alfa. It is being developed for the treatment of the nonneurological manifestations of the rare disease, Niemann-Pick Disease (NPD) Type B. There are currently no approved treatment options for patients with Niemann-Pick [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/04/fda-breakthrough-therapy-and-a-rare-disease-genzymes-ert-olipudase-alfa-for-niemann-pick-disease/feed/</wfw:commentRss>
			<slash:comments>3</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10511</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/02/white_pocket_reflection.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/02/white_pocket_reflection.jpg" medium="image">
			<media:title type="html">White_Pocket_Reflection</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>FDA Breakthrough Therapy Designation: Statistics Chart Updated (as of 05/31/15)</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/03/fda-breakthrough-therapy-designation-statistics-chart-updated-as-of-053115/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/03/fda-breakthrough-therapy-designation-statistics-chart-updated-as-of-053115/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Wed, 03 Jun 2015 23:42:53 +0000</pubDate>
				<category><![CDATA[FDA Breakthrough Therapy Designation]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10508</guid>

					<description><![CDATA[&#160; &#160; The CBER BTD #s are current as of 05/31/15 and the CDER BTD #s are current as of 05/29/15. The changes are as follows: •   The total # of FDA CDER + CBER BTD Requests received by the FDA increases from 304 to 308 •   The total # of FDA CDER + CBER [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/03/fda-breakthrough-therapy-designation-statistics-chart-updated-as-of-053115/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10508</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/02/fda-logo.gif" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/02/fda-logo.gif" medium="image">
			<media:title type="html">FDA logo</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>FDA May 2015 Products Receiving Orphan Designation</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/02/fda-may-2015-products-receiving-orphan-designation/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/02/fda-may-2015-products-receiving-orphan-designation/#comments</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Tue, 02 Jun 2015 04:16:24 +0000</pubDate>
				<category><![CDATA[FDA May 2015 Orphan Designations]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10505</guid>

					<description><![CDATA[&#160; &#160; &#160; &#160; &#160; &#160; The chart below identifies FDA May 2015 Products Receiving Orphan Designation as of 06/02/15 in ascending “Orphan Drug Designation Date” order. FDA May 2015 Products Receiving Orphan Designation # Generic Name/ODD Date Sponsor Company Indication 1 Tacrolimus/ 05.04 Stanford University School of Medicine Pulmonary Arterial Hypertension 2 Tadalafil/ 05.04 Eli Lilly &#38; Co [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/02/fda-may-2015-products-receiving-orphan-designation/feed/</wfw:commentRss>
			<slash:comments>1</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10505</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/11/256px-nessler_cylinders.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/11/256px-nessler_cylinders.jpg" medium="image">
			<media:title type="html">256px-Nessler_cylinders</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>Friedreich’s Ataxia: Film Premiere</title>
		<link>https://orphandruganaut.wordpress.com/2015/06/01/friedreichs-ataxia-film-premiere/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/06/01/friedreichs-ataxia-film-premiere/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Tue, 02 Jun 2015 01:17:36 +0000</pubDate>
				<category><![CDATA[Friedreich’s ataxia]]></category>
		<category><![CDATA[Friedriech’s Ataxia]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10479</guid>

					<description><![CDATA[I – Introduction Friedreich’s Ataxia (FA) is a degenerative neuro-muscular disorder that affects approximately 1/50,000 people in the United States. FA can start anywhere from childhood to adulthood. There is loss of muscle strength and coordination. Those patients diagnosed with FA at a young age require mobility aids, such as a wheelchair, walker, or cane by [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/06/01/friedreichs-ataxia-film-premiere/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10479</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/05/c614_250x250-640x640-250x2501.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/05/c614_250x250-640x640-250x2501.jpg" medium="image">
			<media:title type="html">C614_250x250 (640x640) (250x250)</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>2 New FDA Orphan Drug Designations: Week of 05/25/15</title>
		<link>https://orphandruganaut.wordpress.com/2015/05/30/2-new-fda-orphan-drug-designations-week-of-052515/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/05/30/2-new-fda-orphan-drug-designations-week-of-052515/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Sat, 30 May 2015 12:09:36 +0000</pubDate>
				<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10497</guid>

					<description><![CDATA[&#160; &#160; &#160; &#160; &#160; The chart below identifies 2 new FDA Products Receiving Orphan Designation for the week of 05/25 – 05/29/15 as of 05/30/15 in ascending “Orphan Drug Designation Date” order. FDA Products Receiving Orphan Drug Designation (Week of 05/25 – 05/29/15)  # Generic Name/ODD Date Sponsor Company Indication 1 Prasugrel Hydrochloride/ 05.26 Eli Lilly Sickle [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/05/30/2-new-fda-orphan-drug-designations-week-of-052515/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10497</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-two_small_test_tubes_held_in_spring_clamps.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-two_small_test_tubes_held_in_spring_clamps.jpg" medium="image">
			<media:title type="html">256px-Two_small_test_tubes_held_in_spring_clamps</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>Guest Blogger: 1st International Congress on Clinical Genetics And Genetic Counselling In Rare Diseases</title>
		<link>https://orphandruganaut.wordpress.com/2015/05/29/guest-blogger-1st-international-congress-on-clinical-genetics-and-genetic-counselling-in-rare-diseases/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/05/29/guest-blogger-1st-international-congress-on-clinical-genetics-and-genetic-counselling-in-rare-diseases/#comments</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Fri, 29 May 2015 04:04:59 +0000</pubDate>
				<category><![CDATA[Meetings & Events]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10486</guid>

					<description><![CDATA[The 1st International Congress on Clinical Genetics and Genetic Counselling in Rare Diseases was held in April 2015 in Seville, Spain. The Orphan Druganaut Blog is honored to have Cristina Payán, biotechnologist and specialist in rare diseases as Guest Blogger. Ms. Payán, Science Committee Chair of Genetic insidER and organizer of the meeting, writes a [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/05/29/guest-blogger-1st-international-congress-on-clinical-genetics-and-genetic-counselling-in-rare-diseases/feed/</wfw:commentRss>
			<slash:comments>1</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10486</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/02/genetic-insider-meeting-logo.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/02/genetic-insider-meeting-logo.jpg" medium="image">
			<media:title type="html">Genetic Insider Meeting Logo</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>Pfizer And Rare Lung Disease: FDA Approval Of Rapamune For Lymphangioleiomyomatosis (LAM)</title>
		<link>https://orphandruganaut.wordpress.com/2015/05/28/pfizer-and-rare-lung-disease-fda-approval-of-rapamune-for-lymphangioleiomyomatosis-lam/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/05/28/pfizer-and-rare-lung-disease-fda-approval-of-rapamune-for-lymphangioleiomyomatosis-lam/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Thu, 28 May 2015 22:48:01 +0000</pubDate>
				<category><![CDATA[Lymphangioleiomyomatosis]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Pfizer]]></category>
		<category><![CDATA[Rapamune]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<category><![CDATA[Sirolimus]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10481</guid>

					<description><![CDATA[The FDA announces late on May 28th, that Pfizer’s Rapamune (Sirolimus) is approved for the treatment of Lymphangioleiomyomatosis (LAM), a rare and progressive lung disease that affects mostly women of childbearing age. This is the first FDA approved drug for treating LAM. Rapamune is available as both an oral solution and a tablet. Originally in [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/05/28/pfizer-and-rare-lung-disease-fda-approval-of-rapamune-for-lymphangioleiomyomatosis-lam/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10481</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2014/10/marty_schmidt_in_the_himalayas.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2014/10/marty_schmidt_in_the_himalayas.jpg" medium="image">
			<media:title type="html">Marty_Schmidt_in_the_Himalayas</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>PTC Therapeutics And DMD: STRIVE Patient Advocacy Grant Program</title>
		<link>https://orphandruganaut.wordpress.com/2015/05/26/ptc-therapeutics-strive-patient-advocacy-grant-program/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/05/26/ptc-therapeutics-strive-patient-advocacy-grant-program/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Tue, 26 May 2015 04:04:22 +0000</pubDate>
				<category><![CDATA[Ataluren]]></category>
		<category><![CDATA[Duchenne Muscular Dystrophy]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[PTC Therapeutics]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<category><![CDATA[Translarna]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10472</guid>

					<description><![CDATA[PTC Therapeutics, a New Jersey biopharmaceutical company, announces this month, that the company is launching a new grant awards program, STRIVE (Strategies to Realize Innovation, Vision, and Empowerment). The purpose of the program, which will focus on Duchenne Muscular Dystrophy (DMD) for 2015, is to provide funds to nonprofit patient advocacy organizations for the support [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/05/26/ptc-therapeutics-strive-patient-advocacy-grant-program/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10472</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/01/csiro_scienceimage_7630_test_tubes.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2015/01/csiro_scienceimage_7630_test_tubes.jpg" medium="image">
			<media:title type="html">CSIRO_ScienceImage_7630_test_tubes</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>Agilis Biotherapeutics And Collaboration: Rare Disease Gene Therapies</title>
		<link>https://orphandruganaut.wordpress.com/2015/05/25/agilis-biotherapeutics-and-collaboration-rare-disease-gene-therapies/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/05/25/agilis-biotherapeutics-and-collaboration-rare-disease-gene-therapies/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Mon, 25 May 2015 15:50:19 +0000</pubDate>
				<category><![CDATA[Agilis Biotherapeutics]]></category>
		<category><![CDATA[Angelman Syndrome]]></category>
		<category><![CDATA[Gene Therapy]]></category>
		<category><![CDATA[Intrexon Corporation]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<category><![CDATA[University of South Florida]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10460</guid>

					<description><![CDATA[&#160; &#160; Agilis Biotherapeutics is a biotechnology company focusing on DNA-based therapeutics for rare diseases that affects the Central Nervous System (CNS). The company has formed both academic and corporate collaborations for advancing gene therapies for rare diseases: •   University of South Florida and Angelman Syndrome •   Intrexon Corporation and Friedreich’s Ataxia. I – Angelman Syndrome [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/05/25/agilis-biotherapeutics-and-collaboration-rare-disease-gene-therapies/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10460</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-dna_repair.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2013/12/256px-dna_repair.jpg" medium="image">
			<media:title type="html">256px-DNA_Repair</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
		<item>
		<title>Rare Disease Advocacy Groups Receiving FDA Orphan Designations</title>
		<link>https://orphandruganaut.wordpress.com/2015/05/25/rare-disease-advocacy-groups-receiving-fda-orphan-designations/</link>
					<comments>https://orphandruganaut.wordpress.com/2015/05/25/rare-disease-advocacy-groups-receiving-fda-orphan-designations/#respond</comments>
		
		<dc:creator><![CDATA[Orphan Druganaut Blog]]></dc:creator>
		<pubDate>Mon, 25 May 2015 14:36:58 +0000</pubDate>
				<category><![CDATA[Gene Therapy]]></category>
		<category><![CDATA[Giant Axonal Neuropathy]]></category>
		<category><![CDATA[Orphan Drug]]></category>
		<category><![CDATA[Orphan Drug Designation]]></category>
		<category><![CDATA[Orphan Drug Development]]></category>
		<category><![CDATA[Orphan Drugs]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Rare Disease]]></category>
		<category><![CDATA[Rare Diseases]]></category>
		<category><![CDATA[Sandhoff Disease]]></category>
		<category><![CDATA[Tay-Sachs]]></category>
		<guid isPermaLink="false">http://orphandruganaut.wordpress.com/?p=10451</guid>

					<description><![CDATA[&#160; &#160; &#160; Rare disease patient families are setting up not-for-profit organizations, leading the way for funding research and accelerating the drug approval process. This Blog Post looks at two rare disease advocacy groups that have received FDA Orphan Drug Designation (ODD) for novel gene therapies: •   Hannah’s Hope Fund (HHF) •   National Tay-Sachs and Allied [&#8230;]]]></description>
		
					<wfw:commentRss>https://orphandruganaut.wordpress.com/2015/05/25/rare-disease-advocacy-groups-receiving-fda-orphan-designations/feed/</wfw:commentRss>
			<slash:comments>0</slash:comments>
		
		
		<post-id xmlns="com-wordpress:feed-additions:1">10451</post-id>
		<media:thumbnail url="https://orphandruganaut.wordpress.com/wp-content/uploads/2014/01/kid_hugging_a_rainbow.jpg" />
		<media:content url="https://orphandruganaut.wordpress.com/wp-content/uploads/2014/01/kid_hugging_a_rainbow.jpg" medium="image">
			<media:title type="html">Kid_hugging_a_rainbow</media:title>
		</media:content>

		<media:content url="https://0.gravatar.com/avatar/0c64dcdc85d01cc6323d46a11b3c24cdc516dcef94b5e4829eb98c76aab97a6d?s=96&#38;d=identicon&#38;r=G" medium="image">
			<media:title type="html">orphandruganaut</media:title>
		</media:content>
	</item>
	</channel>
</rss>
