tag:blogger.com,1999:blog-34261828466184412642024-09-19T09:01:07.370-05:00Living with a metabolic disorder in the muscular dystrophy family of diseases. Rants and musings from insightful to insanity.Jeremy F. Crowsonhttp://www.blogger.com/profile/05137984462800710483noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-3426182846618441264.post-37582632736799003802016-06-17T16:08:00.001-05:002016-06-17T16:08:37.131-05:00

They say a blogger should never acknowledge how long it's been since their last post. However, when it's been five years, well it's been five years. That's hard to comprehend. To be honest I had forgotten for a while that I started this blog. It was started out of frustration and a need to vent, combined with a drive to inform and help others going through similar problems. I found though

Jeremy F. Crowsonhttp://www.blogger.com/profile/05137984462800710483noreply@blogger.com0tag:blogger.com,1999:blog-3426182846618441264.post-77280676200715689402011-07-14T04:17:00.002-05:002011-07-15T04:26:08.343-05:00

It didn't occur to me until today that in my last post I didn't mention one major aspect of my disease that is also invisible, yet plays a major role: the pain. I named this blog pains and recreation for a reason. Yet somehow the pain skipped my mind when writing the last article, likely because I spend much of my time attempting to put the pain out of my conscious thoughts. Anyone with chronic

Jeremy F. Crowsonhttp://www.blogger.com/profile/05137984462800710483noreply@blogger.com0tag:blogger.com,1999:blog-3426182846618441264.post-42919737749845494062011-07-08T18:23:00.003-05:002011-07-16T00:10:41.981-05:00

Here’s a hypothetical situation. Ignore the technical fictions. They are of no concern to the point.  Please pretend this is all entirely possible.  It will be explained at the end. Let’s say you drive a Chevy Tahoe 4x4.  It’s heavy, yet it’s a newer model, with a strong and reasonably fuel-efficient V-8 engine and a 20-gallon fuel tank that will take you a long way with the

Jeremy F. Crowsonhttp://www.blogger.com/profile/05137984462800710483noreply@blogger.com2tag:blogger.com,1999:blog-3426182846618441264.post-59235409528811951782011-07-08T00:50:00.000-05:002011-07-08T00:50:30.513-05:00

I've considered doing a blog for a while, but until now felt that it would be pointless. Why would anyone care what I have to say? Well, some things have changed, and I now believe that perhaps some people could benefit from my ramblings, and indeed there are some people who need to hear it. Two years ago my life changed. After 33 years, my body suddenly decided to flip a genetic switch and

Jeremy F. Crowsonhttp://www.blogger.com/profile/05137984462800710483noreply@blogger.com0