tag:blogger.com,1999:blog-21411799986228450572024-12-18T22:22:09.014-05:00Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.comBlogger647125tag:blogger.com,1999:blog-2141179998622845057.post-20596561633420322092021-05-04T12:07:00.001-04:002021-05-04T12:09:48.133-04:00

 Peanut Needs Surgery GoFundMe!The kids dog needs hip surgery :(  Between her ER bills and the surgery itself, we are up to around $3500 in vet bills--if you can spare a few dollars to help, we would really appreciate it! Peanut is a sweetheart and has watched me do deep pressure and distraction techniques when someone has an anxiety attack or a meltdown and has taught herself how

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-1672511260781892682020-06-08T18:14:00.001-04:002020-06-08T18:14:32.105-04:00

I do really well for a while and then.....it all falls apart.  We have had a couple of big moves since the last time, some new diagnoses, some new doctors and specialists and months of shelter in place!  We did the crisis schooling from home thing from March until end of May and let's just say that wasn't really any fun for any of us.....I think the Super Kid had the easiest time of it

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-51734857627808283822018-11-13T12:37:00.000-05:002018-11-13T12:37:02.370-05:00

All four kids had their well child checkups recently.  During his, the Super Kid mentioned to his pediatrician that he gets some bad chest pain during cross country that takes a while to go away.  Because of family history as well as the fact that the Super Kid has a wonky EKG, Dr M wanted him to see cardiology.  He saw a different doctor than Iz sees but Dr S was incredibly

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-27862633634023234682018-08-25T11:36:00.002-04:002018-08-25T11:36:39.880-04:00

School has started back up again.  The Busy Little B and the Super Kid are back to school, Baby W (who isn't really a baby anymore, is he?) starts preschool after Labor Day, and Miss Iz is homeschooled again this year--we will formally start once W goes to school so we can focus without toddler interruptions :p The Busy Little B is back on his trileptal.  Neuro left us hanging--he

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-20629101403607538852018-07-24T12:23:00.003-04:002018-07-24T12:23:47.675-04:00

EEG was normal and so we are left with no plan and no direction on getting a plan.  I have come to despise this neurologist.

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-48297387268627845892018-06-30T14:40:00.002-04:002018-06-30T14:40:48.675-04:00

The Busy Little B is fully off his Trileptal. Things have been......challenging.  Two weeks until EEG day and we can get a new plan in place! W had his last sessions of OT and speech--it will be so strange not to have those appointments anymore.  We still have OT, speech, therapy, swim, and ESY to keep us busy, though ;) Iz has really been struggling with impulse control lately. She

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-91550258966698910662018-06-22T13:39:00.000-04:002018-06-22T13:39:01.789-04:00

Isn't school ending supposed to make things more relaxed? We still have tons of appointments and ESY and evaluations and things have been hectic. The Busy Little B is weaning off his trileptal and let me tell you, it is not fun.  His level of obsessive compulsiveness has dramatically increased and it makes things so hard on everyone.  I will be so glad when July 13th comes and he has

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-49136486101052446142018-06-11T14:56:00.001-04:002018-06-11T14:56:31.480-04:00

The Busy Little B saw the neurologist and it was frustrating.  Since she's convinced he no longer has seizures (and she's insistent maybe he never did because how his previous neuros treated him isn't how she would treat someone with absence seizures), she doesn't seem that interested in helping with the secondary symptoms that were helped by the seizure med that are now returning full force

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-79931357982326374752018-06-06T11:12:00.000-04:002018-06-06T11:12:02.267-04:00

Miss Iz's OT told me she's so impressed with Iz's control over her anxiety.  Miss J has been pushing boundaries with Iz, asking her to do things that are more and more difficult and frustrating for her.  It is needed to help her progress but it wasn't that long ago that Iz wouldn't have been able to handle it--now, she's employing her calm down strategies and working through things :)&

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-48495472833623182322018-06-01T17:13:00.001-04:002018-06-01T17:13:10.959-04:00

It was a nice morning so we met Miss K at a nearby park for OT.  W had a great time!  Miss K brought her weighted ball and they carried it about, rolled it down the slide, played hide and seek.  W worked on all sorts of skills and stayed fairly focused.  It was an excellent session

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-69876060065415496632018-05-31T11:50:00.001-04:002018-05-31T11:50:50.713-04:00

The kids were off on Monday so only four days of school in the last week.  Hard to believe tomorrow is their last day! Both the Busy Little B and Iz had really good OT sessions on Tuesday.  They both worked hard and their OTs are pushing them out of their comfort zone to work on more and more difficult (to them) stuff.  B also had speech.  Since he's only been going to the

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-34663672589499595292018-05-27T14:27:00.003-04:002018-05-27T14:27:52.984-04:00

We have a three day weekend for Memorial Day and the Super Kid and Busy Little B are grumpy over it because they don't want to miss school :p  Next Friday is their last day and they don't think they should have to give up any of their days of school because there are so few left LOL  Not that long ago, they didn't want to go, now they are sad they can't.  Silly kids

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-3701685987711806612018-05-19T12:13:00.001-04:002018-05-19T12:13:16.980-04:00

My Busy Little B has been having a hard week.  The rigidity in his thought patterns has been getting worse and he's been fixating on things a lot lately.  Small deviations in "normal" are overwhelming.  He had to take a mental health day from school Friday because he just couldn't handle multiple things being "wrong"--he spent a lot of time rocking back and forth, pacing, doing

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-82329339601647664322018-05-16T10:25:00.001-04:002018-05-16T10:25:09.011-04:00

Today was just not a good appointment day for the Busy Little B.  He had another OT and while he's worked with her before, he doesn't mesh well with her.  She does great with Iz and the Super Kid but chances are always high B will just shut down on her.  She challenges his rigid ideas of how things need to go, he overloads, he shuts down.  She ended their session early and I

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-43418479694022541452018-05-13T12:41:00.002-04:002018-05-13T12:41:26.931-04:00

Happy Mother's Day!

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-77672928255150373832018-05-10T11:17:00.002-04:002018-05-10T11:17:40.629-04:00

of the Busy Little B's OT and it scares me :p He is up for recertification so they are updating his goals and she thinks by the time the next recert comes up in three months, he will have met all his goals and be ready for discharge.  He has made so much progress since we switched OT to the rehab center and that is fantastic but I am also so nervous that stopping OT will also stop progress

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-22934597562427636442018-05-05T14:10:00.000-04:002018-05-05T14:10:08.241-04:00

He signed up for the Orchestra contest for the school district and his time slot was this morning.  He prepared a piece to play solo and performed in front of the judge this morning.  The judges are professional musicians and they give the performers feedback on how they can improve and what they do really well.  The Super Kid has pretty bad anxiety so this was so so hard for him

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-29575975556396544932018-05-05T00:51:00.001-04:002018-05-05T00:51:09.567-04:00

We've been putting off W's OT appointment for weeks now.  First it was the stomach bug so we postponed a week.  Then it was the walking Nyquil Ad so we postponed another week (the OT has a little itty bitty baby at home so she and I both are cautious about exposing Miss K to the germs--I don't want her carrying them home to the little one!).  Then Miss K had something come up with

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-36800720830166746782018-05-02T19:59:00.001-04:002018-05-02T19:59:34.195-04:00

Over the weekend, W's SLP texted asking to switch days so we had speech today instead of tomorrow.  He was really chatty today and really paid attention (some days he is just all over the place).  They played Barnyard Bingo and he had a blast.  They just filled all the "cards" up and he practiced say the colors and names of the animals and then they put the animal discs back in the

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-31906924672001277972018-05-02T11:37:00.002-04:002018-05-02T11:37:53.315-04:00

Can we get another Poor B?  Yet another OT today (at least they didn't cancel?) but it was another speech therapist as well!  Looking ahead at the schedule, his speech therapist keeps changing as well.  I wish they'd get some more consistency :p  Its not all bad--one reason we moved his speech to the rehab center is because they do have so many SLPs and the other place only

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-36594044208200817342018-04-28T14:16:00.001-04:002018-04-28T14:16:10.813-04:00

Poor B.  He loves going to OT and looks forward to it and they cancelled his second session this week :(  Now that Miss A is gone, they are trying to cover her patients with the other OTs until they can replace her but there just aren't enough slots to go around.  Honestly, I'm a little annoyed, though.  I'm so happy for Miss A that she find a full time spot but one of the

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-45306216007613969052018-04-25T12:41:00.000-04:002018-07-24T12:24:34.973-04:00

Poor B--he had two new therapists yesterday!  Luckily his OT is someone he knows and has worked with before so he had no problem working hard for her.  He loves her and so when she fills in for Miss A, he is happy to go with her.  It would be awesome if she gets to be Miss A's replacement once the dust settles down and they have all of Miss A's clients assigned out to other

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-92103212964156643152018-04-21T10:59:00.000-04:002018-06-30T14:42:46.771-04:00

A couple days after the Spring Blizzard, we got six inches of heavy wet snow.  Under that heavy wet snow is a layer of gooey mud from the melted blizzard snow so my main vehicle is now stuck in the mud :|  Fun times during Mud Season! Miss Iz has been working on some new sensory strategies with her OT and has been doing a great job.  She keeps Miss J on her toes as things will

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-20597369175405443522018-04-16T13:00:00.002-04:002018-06-22T13:40:03.586-04:00

We survived the Spring Blizzard!  A bit over fourteen and a half inches of snow fell and before the snow started we had multiple instances of hail and severe thunderstorms.  Fun times, y'all, fun times ;)

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0tag:blogger.com,1999:blog-2141179998622845057.post-587131395485434342018-04-13T16:11:00.003-04:002018-06-16T14:40:30.117-04:00

Picked up the Busy Little B from school and had a nice long talk with his teacher about his progress and behavior. He's come a long way from the beginning of the year!  Now that they've identified the learning disabilities, working with him is more targeted and those concepts he really struggled to learn are coming easier. He's coping well :)  The twice a week OT is really helping his

Piperhttp://www.blogger.com/profile/13779176630307664546noreply@blogger.com0