PMP Pals' Network Blog

Are Gas Pains Normal After GI Surgery?

noreply@blogger.com (PMP Pals' Network) — Tue, 24 Jan 2012 23:03:00 +0000

Are Gas Pains Normal After GI Surgery?

“Gas” pains are experienced by many GI cancer patients following surgery. These pains will likely be resolved in a matter of a few days, while the digestive system begins to “wake up” recuperate and heal from surgery.

Medications commonly administered after surgery tend to "slow the gut" thus contributing to more "gas" for many patients; therefore some of patients request to reduce the amount of pain medications (narcotics) administered.

Additionally, some of the painful symptoms associated with bloating and “gas” will begin to subside when the patient is able to take longer walks in the hospital corridors. Our digestive systems are not designed for lying in bed all day and respond better when we are able to exercise walk around a bit!

For detailed information concerning your specific medical concerns, consult with your licensed healthcare provider.

Information posted on www.pmppals.org is not intended to substitute for licensed, professional legal or medical advice. Readers are encouraged to seek the counsel of licensed professionals regarding their own personal specific legal and medical needs. Copyright© 2012 by Gabriella Graham/PMP Pals’ Network. All rights reserved. Visit us on the web at www.pmppals.org We have HOPE for YOU!

Post Operative Weight Loss and Canned Supplemental Beverages

noreply@blogger.com (PMP Pals' Network) — Fri, 20 Jan 2012 17:10:00 +0000

Post-Operative Weight Loss & Canned Supplemental Beverages

Family caregivers and, indeed, patients themselves, are surprised if the patient does not gain weight quickly following GI surgery, even though s/he may be consuming canned liquid "nutritional supplemental beverages."

Patients and their family caregivers may not realize that these canned supplemental beverages may lead to the "Three D's", (diarrhea, dehydration and distress) and may prevent post-operative weight gain.

These symptoms may occur in GI cancer patients who have experienced colon resections, gastrectomies, ileostomies, etc.

Commercial canned beverages generally include high percentages of simple sugars (corn syrup) and milk/lactose sugars (milk solids.) These ingredients contribute to diarrhea in patients who may experience "short gut syndrome" and "dumping syndrome" post operatively.

The consumption of commercially prepared supplemental canned beverages, as well as any sweeteners, simple sugars and lactose products, may actually create conditions of weight loss and malabsorption instead of weight gain.

For more information on post-operative nutrition, refer to “Nutrition” link on www.pmppals.org

For specific recommendations regarding your personal nutritional needs, consult with a licensed dietician/nutritionist or physician. The PMP Pals’ Network does not provide medical advice. Patients must seek the counsel for their own physicians and healthcare professionals.

Copyright © 2012 by Gabriella Graham and the PMP Pals’ Network. This article is copyrighted and may not be reproduced without written permission from the author. Visit us on the web at www.pmppals.org We have HOPE for YOU!

When Will I Feel Better After CRS and HIPEC?

noreply@blogger.com (PMP Pals' Network) — Sat, 14 Jan 2012 03:12:00 +0000

Why Am I Still Fatigued After CRS and HIPEC?

AR, age 50+ asks today’s question about post op fatigue. She had CRS and HIPEC four months ago, has returned to work and feels very tired at the end of her day.

“I find it to be challenging, four months post-op, to work all day, then complete my chores at home. Is it normal to feel this tired four months after surgery?”

GG responds:

“As in any case, consult with your physician to determine the cause of your disease. Among other non invasive tests, laboratory “blood work” tests can determine whether you are anemic, have a thyroid imbalance, or other possible contributors to fatigue.

You experienced a very major surgery sixteen weeks ago. The recuperation process for such a complex surgery is gradual.

Most patients who experience CRS with HIPEC are between the ages of 45 and 65 years old. I remind our fellow ‘Pals’ (with a dose of humor) that ‘we aren't 19 years old anymore!’ In other words, we don't ‘bounce back’ as quickly from major surgery as we might have when we were 20 or 30 years younger.

Additionally, recuperation may tend to "feel" a bit slower now during the winter months when many people feel sluggish in general.

Be patient with your recuperation.

By the time your one year post op anniversary comes around, you will feel much better and you will be in awe of yourself when you look back and reflect on your surgery and recuperation!

You are a cancer survivor!

The PMP Pals are optimistic for your healthy and happy future!

For more information on this topic see “When Will I Feel Stronger After Surgery?” on www.pmppals.org

Articles posted in “PMP Pals” and on www.pmppals.org are written from the perspective of patients and their family caregivers and are not intended to substitute for licensed professional legal or medical care. Each patient is unique and should seek the counsel of a licensed professional for their own specific case. Copyright © 2012 by Gabriella Graham/PMP Pals’ Network/All rights reserved. Visit us on the web at www.pmppals.org

PMP Pals' Network Begins 14th Year of Service: 1998-2011

noreply@blogger.com (PMP Pals' Network) — Thu, 05 Jan 2012 17:26:00 +0000

PMP Pals' Network Begins 14th Year of Service: 1998-2011

This month marks the beginning of the fourteenth year of service for the PMP Pals' Network!

Our volunteer "grass roots" program serves patients and their families in 49 countries and in more than a dozen languages!

Developed by a cadre of ten dedicated patients and family caregivers in Holland, the United Kingdom and the United States in 1998, our goals have remained consistent and proven to be successful for more than a decade.

Our mission has been to assist patients in obtaining the best possible medical care/treatment for rare cancers/diseases affecting the digestive system,

To provide practical resources and support (financial, health insurance, transportation, etc.)

To provide pre screened, trained and vetted "Pal Mentors" to share helpful suggestions for pre and post treatment recuperation,

To educate the public about our rare disease, treatments for our disease and the need to support research for treatment,

And, in conjunction with our first goal, to interview, vet and publicize responsible healthcare providers who demonstrate expertise in the treatment of our disease.

The PMP Pals' Network is proud to provide patients and their families with the most comprehensive source of practical information regarding Appendiceal Cancer, Pseudomyxoma Peritonei and all Peritoneal Surface Malignancies via www.pmppals.org, a site so popular that it has been copied by other "support groups" and healthcare industry companies.

The "Pals" pride themselves in providing "real time" and face-to-face support and resources for patients and their families. In spite of the rarity of our various diagnoses, we are able to personally match liked minded patients and their families, in a manner that provides true comfort and assistance at a time when it is needed the most.

PMP Pals puts the "CAN DO!" in Cancer! ®

We CAN outlive our prognosis!

We CAN live well in spite of a challenging and rare diagnosis!

We CAN find a cure for our rare disease!

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and family caregivers and are not intended to substitute for professional, licensed legal and/or healthcare advice. Patients should seek the counsel of their licensed professional consultants regarding their specific needs. Copyright © 2012 by PMP Pals’ Network/All rights reserved

Does HIPEC Cause Dental Sensitivity?

noreply@blogger.com (PMP Pals' Network) — Wed, 04 Jan 2012 18:23:00 +0000

FAQ: “Does CRS and HIPEC Cause Dental Sensitivity?

Appendix Cancer patient Brian from the USA submits today’s FAQ. He was treated with CRS and HIPEC at a cancer treatment center last month, and has experienced dental sensitivity during his recuperation.

Q: “My teeth have been very sensitive to hot and cold following my surgery, a few weeks ago. The pain was more pronounced during the first two weeks following surgery, while I was hospitalized, yet continues to a lesser degree now that I am recuperating at home.

Have other ‘Pals’ experienced dental sensitivity after surgery? Is this a side effect of HIPEC? Neither my surgical oncologist, nor his assistant, have ever had a post op patient complain of this symptom before.”

Pal Patient, and Dentist, Dr Robert Rauch, USA, provides today’s response to this question:

The PMP Pals’ Network (established 1998) has never received a complaint about post op dental sensitivity before. We suspect there is another cause for the sensitivity you are experiencing, and that it is not related to CRS HIPEC.
We suggest you schedule an appointment to consult with your personal dentist.
In the meantime, consider using Sensodyne, or a similar brand of toothpaste, specifically developed to protect against, and to provide relief from, dental sensitivity.

It is possible that the pain and sensitivity you are experienced is caused by clenching your jaw and/or grinding your teeth; common reactions to stress and tension. Patients may feel stressed during the weeks immediately following surgery. Some patients don’t recognize or realize when they are clenching their jaw during their waking hours, or, while sleeping. Your dentist can create a bite guard, customized to comfortably fit you, to alleviate this problem, if it is determined to be the source of your discomfort.

Your dentist can also examine your teeth to determine whether there is any other underlying source (eg an infection) as a possible cause of this pain.”

Robert Rauch, DDS is an Appendix Cancer patient, has personally experienced CRS and HIPEC, and serves as a Pal Mentor for the PMP Pals’ Network. He has been a dentist, in private practice for more than 30 years. Dr Rauch is the author of several books, including "SMILE: Be true to your teeth and they will never be false to you" and “Spiritual Signs and Lessons of a Survivor, Parts I and II.” Visit the “Recommended Reading” link on www.pmppals.org to order these inspirational books.

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and family caregivers and are not intended to substitute for professional, licensed legal and/or healthcare advice. Patients should seek the counsel of their licensed professional consultants regarding their specific needs. Copyright © 2012 by PMP Pals’ Network/All rights reserved

Dr David L Bartlett 2011 Excellence in Patient Care Award Recipient

noreply@blogger.com (PMP Pals' Network) — Thu, 29 Dec 2011 17:48:00 +0000

Dr David L Bartlett, 2011 Excellence in Patient Care Award Recipient

Dr. David L Bartlett has been recognized as a 2011 Leo Criep, M.D. Excellence in Patient Care Award recipient.

The Leo H. Criep, M.D. Excellence in Patient Care Awards are an annual honor given to UPMC Cancer Centers/UPCI physicians who have demonstrated work-related efforts that are truly above and beyond the course of normal duty, and that clearly contribute to the overall quality and success of UPCI and UPMC Cancer Centers by:

* putting patients and families first
* providing compassionate care, physical comfort and emotional support to patients and their families
* giving more than is asked or expected
* guiding patients to be informed, active participants in their care
* promoting a collaborative, cooperative environment
* committing to and embracing the UPCI/UPMC CC vision and mission

Patients Agree; Dr Bartlett is an Outstanding Physician!

"I Can Never Thank Him Enough!"

"After another cancer specialist abandoned me, Dr. Bartlett accepted my case. He performed CRS and HIPEC on me eighteen months ago and saved my life. I received another opportunity to live again and it has been great! I can never thank him enough!" John L, Patient, NED, USA

"He Cares About me as a Patient"

"Dr Bartlett deserves this award! He and his team are the reason I am alive today; that's the simple truth! It's more than just his (and his teams') surgical skills that have truly enriched my life since they began helping me with my disease in 2005.

I knew from the start that he cared about me as a person -- not just another patient. He took the time to truly study my individual case and honestly assess my condition.

He appreciated that my wife and I had read extensively about the disease and was very thoughtful and patient in responding to our many concerns and questions.

He always responded to our questions factually and compassionately. We feel very fortunate to have been connected to Dr. Bartlett. I can't thank him enough for all he has done for me and my family!" Jim M, Cancer free (5 years +) USA

In Support of the Nomination for Dr. David L Bartlett as recipient of the Leo Criep MD Excellence in Patient Care Award 2011

“As both a cancer patient and an advocate for cancer patients and their families, I have had the opportunity to travel throughout the United States to interview surgical oncologists regarding my own case, as well as the cases of my fellow patients.

This experience has provided me with opportunities to interact with these specialists and to be treated by several of them.

For a variety of reasons, I have determined that Dr. David L Bartlett is the most outstanding physician, as well as surgical oncologist, that I have ever had the privilege of knowing.

As a patient and an advocate, I examine many factors in selecting a surgeon for my personal care, or one that I would recommend to my fellow patients. David Bartlett excels for his skills as a surgeon, his knowledge of our rare disease, and his ability to coordinate and “lobby” other specialists to work together for the benefit of cancer research.

One of the qualities that distinguish Dr. Bartlett from the majority of his international colleagues is his willingness to listen to patients, to hear their needs, hopes and fears, and to address their concerns frankly, with compassion.

Dr. Bartlett listens; he doesn’t lecture and overwhelm patients with bravado promises of cures or frightening scenarios of complications.

Time and time again, my fellow patients relay to me how much they appreciate Dr. Bartlett’s calm, unhurried and reassuring manner of responding to their questions. Dr. Bartlett treats patients as human beings, not as potential statistics.

In spite of his brilliance and international renown as an exceptionally skilled surgeon, Dr. Bartlett remains modest and does not boast about his many accomplishments. This factor alone endears him to his patients and renders respect and admiration from his colleagues in the medical community.

Regarding my personal experiences as Dr. Bartlett’s patient, due to the complexity of my case and medical history, I was declined for surgery by all of other most experienced surgeons at major cancer treatment centers across the United States, and had been referred to hospice, when I met with Dr. Bartlett for the first time.

The fact that I am still here today is nothing short of a miracle. The senior patriarch in the treatment of my rare cancer, who would not operate on me, now describes me as “the little miracle” … a miracle that never would have occurred without the skill, confidence, and brilliance of Dr. David L Bartlett."

Copyright © 2011 by Gabriella Graham, Patient
Visit Gabriella and all her “Pals” at www.pmppals.org

Holiday Air Travel Tips for Cancer Patients

noreply@blogger.com (PMP Pals' Network) — Thu, 22 Dec 2011 18:06:00 +0000

Holiday Air Travel Tips for Cancer Patients!

Patients may have special needs when traveling through busy airports, especially during the busy holiday season!

Whether you are recuperating from recent surgery, or are lacking the marathon strength stamina often required for current air travel, you and your caregiver (spouse/family member) may consider the following options for requesting “curb to curb” assistance for your next flight!

1. Read the TSA guidelines for disabled passengers as posted on www.pmppals.org

2. Request "curbside" wheelchair service when you make your plane reservation (the airlines do not charge extra for curbside wheelchair service.)

3. When your cab/car service drops you off at the terminal curb, a porter will bring a wheelchair for you to the curb for you.

4. The porter will take you, in the wheelchair, with spouse/friend accompanying you as your caregiver, directly to Security (the porter will push the wheelchair.)

5. You and caregiver will receive priority Security check in.

Priority Security checks in may require taking you aside to a private area for a pat down or bringing you straight through "regular" Security where you may also receive the pat down, in front of the public and be scanned. Advise the TSA attendant if you have an Ostomy, prosthetic, feeding tube or any other medical apparatus. Be prepared to show all carry ons, including those for medical supplies to the security agent. You may also consider bringing a letter or note (written on a prescription letterhead) from your physician to confirm your need for particular apparatus.

6. Via priority check in with the wheelchair, you won't have to wait in line for Security...you'll get to the head of the line with the wheelchair porter

7. The wheelchair porter will take you directly to the final check in for your plane (and will take you make "pit stops" at the food court or restroom along, if need.)

8. The wheelchair porter will leave you and your chair at the final check in. This is where you generously tip the wheelchair porter who has been so helpful (and who is earning minimum wage!)

9. The airline staff will take you, in the wheelchair, with your caregiver accompanying you, into PRIORITY boarding, REGARDLESS of which class of ticket you are holding.

10. When you arrive at your destination, another wheelchair porter will meet you, take you to baggage pick up and finally take you to the curb where, where your family or cab can retrieve you.

Anyone reading these steps can follow them whenever you or a loved one is flying with a temporary (e.g. recuperating from surgery) or permanent disability!

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and their family caregivers and are not intended to substitute for licensed, professional legal or medical advice. Individual should seek counsel from licensed professionals regarding their specific needs. Copyright © 2012 by Gabriella Graham/PMP Pals' Network/All rights reserved. Visit us on the web at www.pmppals.org

Cancer Can't Control Our Holiday Spirit!

noreply@blogger.com (PMP Pals' Network) — Wed, 21 Dec 2011 00:50:00 +0000

Cancer Can’t Control Our Holiday Spirit!

Every morning I sift through the incoming updates as Pal members around the world report information about their current health status. The reports range from happy news of clear annual CT scans and normal range tumor markers to exchanges about chemo regimens that may no longer be effective in halting tumor growth among specific patients. We also address the needs of those families who are experiencing their first holiday season following the loss of a loved one.

Much like Ebenezer Scrooge and the Grinch, cancer attempts to creep into the holiday season to steal our joy. Regardless of how ruthless cancer may be, it does not defeat the fighting spirit of our fellow cancer patients and their families!

Countless Pals report they are “taking a break” from chemotherapy for the holidays, ready to re-engage the cancer beast again in January with a stronger, more powerful chemo “cocktail.”
Pals recuperating from challenging surgeries are making plans to begin the new year with improved strength and stamina.

Pal families who have lost a loved one are extending themselves to help other families and to begin new traditions.

As we prepare to celebrate Hanukah and Christmas we look ahead to the New Year with renewed courage and enthusiasm for fighting the cancer beast!
Cancer cannot control our holiday spirit!

This essay is dedicated to all my fellow cancer warriors, Christine F Mike H, Charlotte H, Andy N, Josh O, Robert R and to the Pal families around the world.

This essay is an excerpt from “Where the Red Tailed Hawk Flies: Cancer Can’t Defeat Us!” by Gabriella Graham Copyright © 2011 by Red Tailed Hawk Publishing/All rights reserved.

Pioneers in Cancer Therapy

noreply@blogger.com (PMP Pals' Network) — Mon, 12 Dec 2011 17:46:00 +0000

Pioneers in Cancer Treatment

This morning I talked with a caregiver whose father has agreed to be treated with an experimental chemotherapy in an attempt to halt the rapid progression of the cancer that has challenged him for months. I commented to the caregiver that I believe his dad is courageous in agreeing to be treated with the new therapy, especially in consideration of the possible side effects of the treatment.

The son responded that his father is feeling anything but courageous. “Truthfully, Dad is distressed and uneasy about this new treatment. He has become suspicious of the doctors and wonders if they are using him as a guinea pig to test this new therapy.”

Who among us has not felt this way, even if just for a moment, when considering the pros and cons of established medical treatment, let alone, new medical therapies?

On one hand, we patients are optimistic that a new treatment will arrest and possibly eradicate our disease. On the other hand, as educated patient/consumers we read the “fine print”, hear rumors of what might possibly go wrong, and perhaps increase the suffering that we are attempting to prevent.

Virtually everyone living today, who has ever been treated through modern medicine, has benefitted since our mother’s pre natal care, from what were initially experimental treatments. These treatments have been refined and improved through the centuries. Anesthesia, pain management, infection prevention, vaccination, diagnostic tests, etc, etc, have all been developed through experimentation. Therapies that initially are tested with laboratory animals, eventually move ahead to human testing, if they are deemed worthwhile.

Since we have all benefitted from tests that were conducted on patients before us, we may consider it to be part of the human responsibility to also participate in new tests, if we are inclined to do so. We ask ourselves, “Do the risks outweigh the benefits?” “Do I have other choices?” “What are the consequences of me accepting this therapy, or not accepting it?” Sometimes we feel we are caught between a “rock and a hard place” especially when our options are limited.

How much does our perspective affect the way we consider the risks and benefits of new therapies? Do we see ourselves as “guinea pigs”, as helpless laboratory animals, or as pioneers dedicating our bodies to science?

Are we gamblers, taking a chance with a roll of the dice, so to speak? Or, are we warriors, attempting another stand, risking possible defeat, or the bounty of improved health?

For those of us who have experienced years of medical treatments, surgeries, chemotherapies and the gamut of diagnostic tests, whether we realize it or not, we have contributed to the teaching of countless young physicians, nurses, researchers and medical technicians who have observed and treated our medical cases, both with “conventional” methods and new therapies. Yes, our bodies, are tested and used to educate healthcare professionals. In turn, the knowledge gained from our surgeries, and our medical care in general, is used to create medical therapies to aid patients in the future.

Just as we have benefitted, and our lives have been extended from the contributions of patients that were treated before us, so will future patients benefit from the medical care we receive today!

Articles posted in “PMP Pals” and on www.pmppals.org are written from the perspective of patients and family caregivers and are not intended to substitute for professional, licensed legal or medical advice. Each patient’s case is unique, therefore individuals should seek the counsel of their own healthcare providers. Copyright © 2012 by Gabriella Graham/PMP Pals’ Network. All rights reserved. Visit us on the web at www.pmppals.org

Should I Take Probiotics After Appendix Cancer Surgery?

noreply@blogger.com (PMP Pals' Network) — Mon, 05 Dec 2011 03:19:00 +0000

Should I Take Probiotics After Appendix Cancer Surgery?

Today’s question comes from Brian in the USA:

“I am recovering from CRS and HIPEC and have had several organs removed from my digestive system. I have an ileostomy, which may be ‘reversed’ in the future. I am just beginning to eat solid foods again. Like any surgical patient, I have been receiving antibiotic therapy.

Should I take probiotics?”

PMP Pals responds:

“Patients like you have specific nutritional needs. Your question is best answered by your professional healthcare team, including your surgical oncologist, and specifically, your registered dietician.

Since you have an ileostomy, you may experience a “rapid transit” of contents from your stomach and small intestine, out through your stoma. This phenomenon is also referred to as “dumping syndrome.”

If you experience this, the benefits, if any, of probiotics, or any other supplement, may be negligible as the supplement may not remain in your digestive system long enough to be absorbed and to be effective.

Ask your registered licensed dietician to review your specific needs with you. Provide your dietician with a copy of your operative report so s/he can read exactly which portions of your digestive system have been removed and “re routed” (for lack of a better description!) to determine which foods and/or supplement may be beneficial to you.

Please refer to the Nutrition page and Blog Library on www.pmppals.org for numerous articles pertaining to the nutritional needs of Appendix Cancer, PMP and PSM patients.

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and their families and are not intended to substitute for licensed, professional, legal or medical advice. Patients should seek the counsel of their licensed healthcare providers.
Copyright © 2012 by Gabriella Graham/PMP Pals’ Network/All rights reserved.
Visit us on the web at www.pmppals.org We have HOPE for YOU!

Questions to Ask Your Doctor About Chemotherapy

noreply@blogger.com (PMP Pals' Network) — Sat, 03 Dec 2011 23:04:00 +0000

This week, Pal Caregiver, GF from the USA poses this question to pmppals@yahoo.com:

“My wife’s oncologist says she should begin the treatment of systemic chemotherapy to treat her diagnosis of Pseudomyxoma Peritonei. Should she agree to receive chemotherapy or not?”

PMP Pals responds: “As with any medical scenario, whether or not a patient commences chemotherapy is a topic that one should explore thoroughly with one’s personal physician and/or team of healthcare providers.

Each patient is unique. Pseudomyxoma Peritonei is not "one size fits all" disease. Whether or not a patient decides to pursue chemotherapy treatment will depend on the pathology, symptoms and aggressiveness of her particular case.

Pseudomyxoma Peritonei is generally treated by surgical oncologists with specifically detailed surgery (CRS), which may or may not include HIPEC(Hyperthermic Interperitoneal Chemotherapy.)

In the past, systemic chemotherapy was thought to be unsuccessful for patients diagnosed with Pseudomyxoma Peritonei. However, during the past decade, due to the availability of more chemotherapies developed for the treatment of colon/colorectal cancers, some physicians are recommending systemic chemotherapy for specific Pseudomyxoma Peritonei patients.

When preparing to consult with the oncologist, the patient should prepare a concise,
detailed list of questions and should have the following reports in hand:

Pathology report(s) from surgery, biopsy, paracentesis, etc,

Laboratory test(s) for tumor markers specifically the current CEA and CA 19 9 markers, and

The radiologist’s written report from the patient’s current CT scans.

These are among the questions for consideration when meeting w/your oncologist:

Why is systemic chemotherapy being proposed?

What is the extent and location (ie on the small intestine) of remaining visible disease, per recent surgery or CT scan(s)?

Why type of chemotherapy(ies) does the oncologist recommend?

Why is he/she recommending this particular chemotherapy regimen for this particular diagnosis?

What data justifies the particular chemotherapy that the oncologist is proposing?

How does the oncologist anticipate this particular chemotherapy will help the patient?

What are the known side effects of this chemotherapy?

For additional resources regarding the efficacy of systemic chemotherapy, you are invited to participate in the PMP Pals’ Chemo Resource Group via www.pmppals.org and to read chemotherapies being prescribed to Pseudomyxoma Peritonei patients on the CHEMOTHERAPY link under “TREATMENTS” a http://www.pmppals.org”

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and their families and are not intended to substitute for licensed, professional, legal or medical advice. Patients should seek the counsel of their licensed healthcare providers. Copyright © 2012 by Gabriella Graham/PMP Pals’ Network/All rights reserved. Visit us on the web at www.pmppals.org
We have HOPE for YOU!

Frustration: Physically Fit Yet Diagnosed with Cancer

noreply@blogger.com (PMP Pals' Network) — Fri, 02 Dec 2011 18:40:00 +0000

What good does it do to be physically fit?

Patients are naturally distressed when they are diagnosed with cancer.

The average age of diagnosis for Appendix Cancer and Pseudomyxoma Peritonei patients is approximately 44 years.

Typically this an age when many patients consider themselves to be within the “prime” of their careers, with their personal/family lives, and fitness levels often at their peak. Although, while in our mid forties, we realize that we may lack the stamina of a 22 year old, nowadays, the forties continue to be a rather youthful decade due to the popularity of fitness regimens, knowledge of the importance of good eating habits and awareness of the hazards of smoking.

Therefore, it is with good reason that fellow patients are dismayed following their cancer diagnosis…

“I don’t understand this! I’ve always taken good care of myself!”

“I’ve never smoked a day in my life!”

“Why me? I’m a marathon runner!”

“But everyone always compliments me on how healthy and fit I look!”

“How could this happen to me?”

Cancer can and does “happen” to anyone including infants and the elderly, and certainly it “happens” to people during their middle age years.

While we know that some practices, and/or exposures, i.e. cigarette smoking, high fat/low fiber diets, exposure to asbestos or radiation, etc, may cause cancer, we are still unsure of the root causes of most cancers.

When otherwise fit and healthy patients are diagnosed and understandably bewildered that their non smoking, healthy eating and physically fit bodies appear to have betrayed them, I offer the following thoughts for reflection…

Most of patients have little or no control over what may be described as the
“luck the draw” (or lack of it!) regarding cancer. After you have been diagnosed and knowing that you are facing extensive surgery and chemotherapy, which would you prefer to improve the odds that you will experience a successful recuperation and an eventual remission:

a healthy, non smoking nutritionally strong and fit body or
a smoking, overweight, and out of condition body?

Which patient has the better odds of recuperation and remission?

Whether one is unexpectedly diagnosed with cancer or whether one accidentally trips on a flight of stairs and breaks an ankle, isn’t it better to be physically fit and to take good care of oneself “just in case” a mishap or a serious illness befalls you?

Upon reflection, aren’t you glad that you prepared your body for the most strenuous “marathon” of your life?

Be thankful that you have made the wise choice of having taken good care of yourself!

The PMP Pals’ Blog is written from the perspective of a patient and is not intended as a substitute for licensed, professional medical advice. Consult with your own healthcare provider regarding your specific needs. Copyright © 2012 by the PMP Pals’ Network/All Rights Reserved. Visit us on the web at www.pmppals.org. PMP Pals’ Network: Resources and Referrals for Patients, Family Caregivers and Healthcare Providers

Appendix Cancer Patients Can Overcome Holiday Depression

noreply@blogger.com (PMP Pals' Network) — Thu, 01 Dec 2011 17:36:00 +0000

Tips for Overcoming Holiday Depression

Depression is a condition that touches the lives of many patients, and their family caregivers. The symptoms of depression may become more pronounced during the winter or holiday season. Among the causes for depression among some Appendix cancer and Pseudomyxoma Peritonei patients are....

Isolation
Isolation may include situations of not being able to relate to other cancer patients, nor having them relate to you. Most people have heard of colon, breast or lung cancer, few people, have ever heard of Appendix Cancer, or Pseudomyxoma Peritonei.

Many traditional or well-known cancer societies don’t support patients diagnosed
rare cancers, as their research and support services are directed towards the more
common cancers, e.g. breast cancer.

Confusion
Many local or family physicians aren’t familiar with Pseudomyxoma Peritonei and may mis diagnose the condition, thus delaying appropriate medical treatment.

Fear
Patients and their loved ones may have concerns about surgery and other
medical treatments. Although the internet has become a modern tool for sharing information, some methods of information, may be sources of misinformation, leading to fear and confusion.

Fatigue
Insomnia, worrying, and general lack of sleep associated with diagnosis, can contribute to the condition of depression.

Change
Lifestyle adjustments, whether temporary or permanent, associated with medical treatment, may contribute to depression. Changes in lifestyle may affect employment, athletic recreation, relationships and intimacy.

Medications
Side effects from some medications may contribute to depression. Pharmacists and physicians can educate patients and their caregivers about the possible side effects related to some medications.

Finances
Medical treatment, and time taken from work to complete treatment, can strain any budget. The “Financial” link at www.pmppals.org provides resources for disability and other benefits, in addition, help with health insurance challenges.

Sources of Relief from Depression
If you or a loved one is depressed in relation to your diagnosis, medical treatment or prognosis, seek help through:

Professional counseling through licensed, healthcare professionals,
Spiritual guidance of your choice,
Direct, “one on one” communication with other “PMP Pals”
Request a “Pal Mentor” to assist you with helpful resources and practical suggestions!
Become proactive in your medical treatment,
Research your options for medical treatment,
Become a “team player” with your healthcare provider!

A well-informed patient may be less likely to feel depressed after some of the fear and mystery of their medical treatment plan is fully understood.

Volunteer to help others. It has been proven in numerous studies that when we extend ourselves to help others, we benefit as well!

Share your talents and positive experiences with other patients; we all have valuable and helpful resources to exchange with one another!

Articles posted in PMP Pals, on the PMP Pals’ Network Blog are written from the perspective of patients and their family caregivers, and are not intended to substitute for licensed, professional legal or medical assistance. Patients should seek the guidance of their licensed healthcare professionals. Copyright © 2012 by Gabriella Graham/PMP Pals’ Network/All rights reserved. Derechos de PMP Pals' Network © 2012. Todos los derechos reservados.

PMP Pals Spotlights Dr Amer Zureikat

noreply@blogger.com (PMP Pals' Network) — Tue, 29 Nov 2011 01:59:00 +0000

Dr Amer Zureikat, UPMC, Pittsburgh, PA

Surgical oncologist Amer Zureikat, MD, specializes in the treatment of complex gastrointestinal malignancies with a focus on minimally invasive treatments for all types of gastrointestinal cancers.

He is a principal investigator at UPMC in several clinical trials focusing on immunotherapy in the treatment of patients with metastatic colorectal cancer.

Dr. Zureikat is board-certified in general surgery. He received his medical degree from the Royal College of Surgeons in Ireland, Dublin.

He completed his residency in general surgery at the University of Chicago Medical Center and a fellowship in surgical oncology at the University of Pittsburgh School of Medicine.

Dr. Zureikat is a member of the Society of Surgical Oncology, the American College of Surgeons, and the Association of Academic Surgeons.

Click here for detailed information about Dr Zurkeikat and other HIPEC treatment specialists.

Copyright 2011 by PMP Pals' Network/All rights reserved.

Does Food Interfere with the Effectiveness of Chemotherapy?

noreply@blogger.com (PMP Pals' Network) — Fri, 18 Nov 2011 17:37:00 +0000

Does food interfere with the effectiveness of chemotherapy?

Appendix cancer patient, KR, from the USA, will begin systemic chemotherapy treatment, using Folfiri, within a few days. She submitted the following question to the PMP Pals’ Network:

“I read on the internet that some foods may interfere with the effectiveness of chemotherapy. Which foods should I avoid?”

PMP Pals replies:

“We are not aware of any foods that interfere with the effectiveness of chemotherapy.

1. There are a wide variety of chemotherapies. When seeking information, be sure that the information you obtain is specific to the chemotherapy prescribed to you, in this case Folfiri.

2. Always seek advice of this nature from your oncologist and your pharmacist.

3. A helpful source of information, specific to your question is the advice nurse available via the manufacturer/producer of nearly any chemo prescribed for you. The major pharmaceutical companies (e.g. Roche, Teva, etc.) provide telephone advice nurses to answer questions from patients.

The PMP Pals' Network does not endorse the use of online "chat rooms", "message boards", Facebook, etc. for obtaining detailed medical information. Specific medical information should be directed to one's licensed, professional healthcare team.

"Click" here for more info about chemotherapy.

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and their families and are not intended to substitute for licensed, professional, legal or medical advice. Patients should seek the counsel of their licensed healthcare providers. Copyright © 2011 by Gabriella Graham/PMP Pals’ Network/All rights reserved.
Visit us on the web at www.pmppals.org We have HOPE for YOU!

What are the side effects of HIPEC?

noreply@blogger.com (PMP Pals' Network) — Wed, 16 Nov 2011 03:09:00 +0000

RS from the USA asks:

“How long does it take to recuperate from HIPEC? What are the post op side effects of HIPEC?”

PMP Pals responds:

“Recuperation times and side effects are as varied as our fellow patients themselves. Currently, within the PMP Pals’ Network, post HIPEC patients range in age from 30 to 80 years of age!

The most common side effects reported among our post HIPEC Pals are fatigue, nausea, medical anorexia, and weight loss; however these symptoms may related to CRS itself and can occur without HIPEC.

Here are photos of just a few of the cancer free Pals, all of whom have been treated with HIPEC many years ago.

Here are articles written by a few of our longtime Pals who have been cancer free, on average, ten years post HIPEC.

Contact us to request a HIPEC Pal Mentor.

For more information, please see our HIPEC Treatment Specialists page.

Copyright © 2011 by PMP Pals’ Network/Gabriella Graham. All rights reserved.
Articles published by the PMP Pals’ Network and posted on www.pmppals.org are not intended as a substitute for professional medical or legal care. Individuals should seek the counsel of licensed healthcare professionals regarding their own specific needs. Visit us on the web at www.pmppals.org

Solutions for Post Op Nausea

noreply@blogger.com (PMP Pals' Network) — Thu, 10 Nov 2011 23:30:00 +0000

Q: LA in the USA asks the following…

My adult daughter had CRS and HIPEC three months ago, yet still feels nauseated with occasional bouts of nausea. Her surgical oncologist says it will take a few months for her digestive system to “wake up.” Is this normal?

GG responds:

Each patient’s case is unique; it's not unusual for patients to experience nausea three months post CRS and HIPEC.

However, your adult child should be physically evaluated by her surgical oncologist to rule out any complications (ie obstructions, new tumor growth, adhesions, etc.)

For future follow up care, she may consider doing what many GI cancer patients like myself do; seek the counsel of a local gastroenterologist. Since gastroenterologists specialize in treating the digestive system as a whole, some of them are more knowledgeable regarding GI distress than are the local "family doctor" or local oncologist.

Perhaps your daughter’s surgical oncologist and a local gastroenterologist develop a treatment plan to discover the source of your daughter’s symptoms and alleviate them.

The articles posted in “PMP Pals” and on www.pmppals.org are written from the perspective of patients and their family caregivers, and are not intended as a substitute for professional medical or legal advice. Patients should seek the counsel of their licensed professional healthcare providers. Copyright© 2011 by Gabriella Graham/PMP Pals’ Network/All rights reserved.

Do Cancer Patients Benefit From Physical Fitness?

noreply@blogger.com (PMP Pals' Network) — Wed, 09 Nov 2011 03:49:00 +0000

What good does it do to be physically fit?

Patients are naturally distressed when they are diagnosed with cancer.

The average age of diagnosis for Appendix Cancer and Pseudomyxoma Peritonei patients is approximately 44 years.

Typically this an age when many patients consider themselves to be within the “prime” of their careers, with their personal/family lives, and fitness levels often at their peak. Although, while in our mid forties, we realize that we may lack the stamina of a 22 year old, nowadays, the forties continue to be a rather youthful decade due to the popularity of fitness regimens, knowledge of the importance of good eating habits and awareness of the hazards of smoking.

Therefore, it is with good reason that fellow patients are dismayed following their cancer diagnosis…

“I don’t understand this! I’ve always taken good care of myself!”

“I’ve never smoked a day in my life!”

“Why me? I’m a marathon runner!”

“But everyone always compliments me on how healthy and fit I look!”

“How could this happen to me?”

Cancer can and does “happen” to anyone including infants and the elderly, and certainly it “happens” to people during their middle age years.

While we know that some practices, and/or exposures, i.e. cigarette smoking, high fat/low fiber diets, exposure to asbestos or radiation, etc, may cause cancer, we are still unsure of the root causes of most cancers.

When otherwise fit and healthy patients are diagnosed and understandably bewildered that their non smoking, healthy eating and physically fit bodies appear to have betrayed them, I offer the following thoughts for reflection…

Most of patients have little or no control over what may be described as the
“luck the draw” (or lack of it!) regarding cancer. After you have been diagnosed and knowing that you are facing extensive surgery and chemotherapy, which would you prefer to improve the odds that you will experience a successful recuperation and an eventual remission:

a healthy, non smoking nutritionally strong and fit body or
a smoking, overweight, and out of condition body?

Which patient has the better odds of recuperation and remission?

Whether one is unexpectedly diagnosed with cancer or whether one accidentally trips on a flight of stairs and breaks an ankle, isn’t it better to be physically fit and to take good care of oneself “just in case” a mishap or a serious illness befalls you?

Upon reflection, aren’t you glad that you prepared your body for the most strenuous “marathon” of your life?

Be thankful that you have made the wise choice of having taken good care of yourself!

The articles posted in “PMP Pals” and on www.pmppals.org are written from the perspective of patients and their family caregivers, and are not intended as a substitute for professional medical or legal advice. Patients should seek the counsel of their licensed professional healthcare providers. Copyright© 2011 by Gabriella Graham/PMP Pals’ Network/All rights reserved.

How to Set Limits for Hospital Visits After Surgery

noreply@blogger.com (PMP Pals' Network) — Tue, 08 Nov 2011 16:10:00 +0000

How to Set Limits for Home and Hospital Visitors After Surgery

As much as we appreciate cards, calls and visits from friends and family, during or following medical care, some appendix cancer patients and their families feel overwhelmed when hospital and home visits are “overextended.”

This week I received an inquiry from a caregiving “Pal” who expressed the following concerns:

“My husband is recuperating from CRS and HIPEC, and returned home, from the hospital, last week. A visiting nurse comes by to change his bandage each morning.

My husband needs to take a long nap every afternoon. Several neighbors, relatives and co-workers have stopped by to visit unannounced. I feel uncomfortable asking them to call first or to limit their visits. My husband almost feels obligated to answer all calls and accept “drop in” visitors. He is clearly fatigued yet feels we must “entertain” friends and family.

I am running short on patience and wonder how other spouses manage balancing caregiving while setting limits for visitors.”

In response, I share the following suggestions for enjoying visits from friends and family while setting boundaries to respect your personal “space.”

Telephone calls:

Post an outgoing message on your cell or home voicemail advising friends of your “telephone hours.” Tell friends and family that you welcome their incoming calls during specific hours of the day and for brief durations of time. Here is a suggestion for your voicemail message:

“Please call back between between 2 and 4 PM. I am limiting calls to ten minutes per caller.”

Hospital and home visits:

Set limits for your own, or for your spouse’s visiting hours in the hospital and at home. Limit the number of visitors you, or your spouse will receive and during which days and hours. Tell friends and family “John is awake for visitors on Sunday, Tuesday and Thursday from 1 to 2 PM. He requires the remainder of the day for rest and medical care.”

Advise the nurses at the call desk of your preference for visiting hours. Visitors don’t always check in at the call desk, therefore, you will also need to post a handwritten sign on the door to your room, advising everyone of your personal visiting hours.

Don’t assume that “other cancer patients” who may visit you, will be perceptive of your energy limitations; they will not be.

Many well meaning and caring friends and relatives have NO concept of how tired post op CRS and HIPEC patients are, what they have experienced in the hospital, the amount of uninterrupted time that patients need to bathe, change dressings, attend to “bathroom needs” (which are generally more frequent during the weeks immediately following surgery) the time required to eat and consume nutritious foods, or to administer TPN and change bandages without having the

Gifts for patients:

Likewise, visitors may be unaware of appropriate gifts for recuperating appendix cancer patients.

Many gastrointestinal cancer patients experience nausea, especially following HIPEC or other chemotherapy treatment(s.) Therefore, when selecting floral arrangements, visitors should select non fragrant flowers, i.e. tulips or cyclamens, or non flowering plants.

Thoughtful gifts include music selections, CDs, light hearted films and DVDs, pre paid cell phones, crossword puzzles, magazines and books.

Whether patients are recuperating in the hospital, or have returned home, they, and their family caregiver, will appreciate gifts of an hour or two of housekeeping services, laundry/dry cleaning, grocery shopping, transportation to medical appointments, extended childcare, gift cards, prepared meals, comfy lounging apparel, care and shelter of pets, etc.

Visitors should limit wearing, or giving, gifts of fragrances, scented lotions, and perfumes. Patients may easily become nauseated from aromatic food or beverages, including coffee, therefore, visitors should limit their own refreshments to the hospital cafeteria or coffee shop.

Patients and their family caregivers can sit down together and discuss their own needs for setting limits for visitors. Friends and family will never know your personal preferences unless you tell them your wishes!

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and their family caregivers and are not intended as substitutes for licensed, professional legal or medical advice. Each case is unique; therefore, patients should seek their own professional medical counsel. Copyright © 2011 by Gabriella Graham/PMP Pals’ Network. All rights reserved. Visit us on the web at www.pmppals.org We have HOPE for YOU!

Tips for Physicians Using Twitter

noreply@blogger.com (PMP Pals' Network) — Mon, 07 Nov 2011 18:13:00 +0000

MDs on Twitter: Professional vs Personal

Twittter is a convenient and efficient method of communicating with others.

However, when sending a "Tweet" be mindful that your communications are being "broadcasted" throughout cyberspace. Just like any blog, website or message board posting, once "tweeted" your message can be seen by anyone, indefinitely.

When setting up a Twitter account, ask yourself, "What is the purpose of Tweeting?"

Do you want to share medical information with other physicians? With patients?

Or, do you want to let your spouse know what time you'll be home for dinner?

Do you want to cheer for your favorite team or encourage others to vote for your favorite candidate?

Here's a suggestion:

Set up two Twitter accounts and keep the postings entirely separate.

For your professional account, post your photo and professional name ie: Dr Maria Smith at the Global Cancer Treatment Center. Use that account to post professional information that you want to share with your peers and patients. Examples are, publications you have posted, scheduling of symposiums, links to your hospital website, etc.

Do not post personal information, including your family vacation photos, on your professional Twitter account.

For the personal account, post your personal name ie "Soccer Mom Maria" at Any City USA. Use the personal account to cheer for your favorite team, political candidate, rate the movie you enjoyed last weekend, etc.

Consider keeping your professional Tweets separate from those that are personal.

Twitter is a valuable tool for communication and marketing when used wisely.

Copyright © 2011 by PMP Pals’ Network/Gabriella Graham. All rights reserved.
Articles published by the PMP Pals’ Network and posted on www.pmppals.org are not intended as a substitute for professional medical or legal care. Individuals should seek the counsel of licensed healthcare professionals regarding their own specific needs. Visit us on the web at www.pmppals.org

Why Doesn't My Surgeon Visit Me Daily?

noreply@blogger.com (PMP Pals' Network) — Sun, 06 Nov 2011 22:10:00 +0000

Why Doesn’t My Surgeon Specialist Visit Me Daily?

Most PMP Pal members choose to schedule their surgeries at university hospitals. The majority of our surgeon specialists are professors; the young physicians who do visit you daily (more commonly twice a day) are their students, who carefully report on your daily condition, under the supervision of your surgeon specialist.

Due to the detailed nature of our surgeries, it is not uncommon for our operations to last eight to fourteen hours, sometimes even longer. The time surgeons spend in the operating room does not include prep time to evaluate and plan the treatment of your individual case; this requires additional time.

The long hours in the operating room, combined with hours devoted to consulting with newly diagnosed patients in the clinic, time devoted to research studies, time scheduled for coordination and preparation of symposiums and conferences, etc, leaves little time for daily bedside visits with patients in the hospital. Therefore, frequent monitoring of the patient’s recuperation, as conducted by the nursing staff and physicians in residence/training, provides the surgeon specialist with the opportunity to supervise your recuperation without daily visits.

When your surgeon does visit you, don’t be surprised if s/he pops in very early in the morning (on the way to surgery) or very late at night (after surgery has been completed.)

Copyright © 2011 by PMP Pals’ Network/Gabriella Graham. All rights reserved.
Articles published by the PMP Pals’ Network and posted on www.pmppals.org are not intended as a substitute for professional medical or legal care. Individuals should seek the counsel of licensed healthcare professionals regarding their own specific needs. Visit us on the web at www.pmppals.org

How Can I Regain Weight After Appendix Cancer Surgery?

noreply@blogger.com (PMP Pals' Network) — Sat, 05 Nov 2011 03:32:00 +0000

JL from the USA asks:

“I am about 11 months post-CRS, and feeling great! My weight had stabilized at a pretty good number. However, recently my weight seems to be dropping again. Perhaps my body is not making efficient use of the food I eat, because portions of my digestive system were removed during surgery. I don't know what else to eat, or how to eat much more than I am eating.

Why am I losing weight? How can I maintain my weight, and perhaps gain additional weight?”

GG responds:

“There could be many reasons for your weight loss. The first place to begin is by consulting with your medical team, which should include your surgical oncologist, an endocrinologist and a registered, licensed dietician.

Among other tests and examinations, your surgical oncologist will investigate any possible recurrences of cancer; your endocrinologist will test you for diabetes, hormonal imbalance, pancreatic malfunction, and other possible reasons for your weight loss. After all of your tests and examinations have been completed, the dietician can assist you in developing a diet for your specific needs.

Have you changed/increased your level of physical activity recently?

Do you maintain a food diary and notate your daily intake of protein, carbohydrates, fats and overall calories?

Click here to read “Do you need to keep a food diary?”

Have you been tested for lactose intolerance?

Many “Pals” attempt to regain calories by consuming high fat/high sugar content beverages and foods including commercial products like Ensure or Boost, or smoothies and milkshakes made with milk products, without realizing that post-surgery, some patients are unable to tolerate lactose, dairy, or simple sugars including corn syrup (found in many processed foods.) These “foods” can actually contribute to weight loss, as they often cause or contribute to diarrhea symptoms.

Click here to read our NUTRITION page including articles about the Malabsorption Diet and about Lactose Intolerance.

When you schedule a consultation with a licensed dietician, give him/her a copy of your operative report so that s/he can clearly read the portions of your digestive system that have been removed. Diets for GI cancer patients are not “one size fits all” and must be developed for each individual patient.

Our NUTRITION page includes information about a protein supplement sold under the name of BeneCalorie. Some “Pals” have found this product to be helpful in supplementing your diet. Ask your licensed dietician whether the BeneCalorie product is appropriate for you.

In conclusion, consult with your medical team of specialists, as noted above, to determine

1) the cause of your weight loss and
2) methods to maintain and perhaps gain additional weight.

Articles posted in PMP Pals and on www.pmppals.org are written from the perspective of patients and family caregivers and are not intended to substitute for licensed, professional legal or medical advice. Patients should seek the counsel of their licensed healthcare professionals regarding their specific medical needs. Copyright © 2011 by Gabriella Graham/PMP Pals’ Network. All right reserved.

ASPSM Seeks to Compile Patient Data

noreply@blogger.com (PMP Pals' Network) — Fri, 04 Nov 2011 17:25:00 +0000

The ASPSM is seeking the cooperation of cancer patients and physicians in compiling important data.

The American Society of Peritoneal Surface Malignancies (ASPSM) was created to improve the care of patients afflicted with peritoneal malignancies. The ASPSM membership is comprised of more than 130 healthcare professionals from around the world. Pseudomyxoma Peritonei is among the diagnoses described as Peritoneal Surface Malignancies or PSMs.

Dr Jesus Esquivel and his colleagues of the ASPSM have developed a survey form for the collection of data regarding the diagnosis, treatment and outcome of treatment, for PSM patients. The ASPSM refers to this form as the “PROGRESS in Patient Initiated Program” form.

The goal of the collection and analysis of the data is to help healthcare providers and patients understand the importance of

- early recognition of the common signs and symptoms of PSMs and the
- early referral to an appropriate treatment center.

The ASPSM PROGRESS form includes three pages, as follows:

Page 1: to be completed by the patient,

Page 2: to be signed by the patient and completed by the surgeon,

Page 3: the confidentiality statement to be checked and signed by the patient

Finally, the patient will fax or email the completed form back to the ASPSM for data collection.

Currently, the PROGRESS survey is limited to PSM patients residing and being treated in the USA.

Click here to learn more about Peritoneal Surface Malignancies.

Copyright © 2011 by the PMP Pals’ Network/All rights reserved.

HIPEC Chemotherapy Programs in Mexico

noreply@blogger.com (PMP Pals' Network) — Mon, 31 Oct 2011 16:05:00 +0000

Dr Jesus Esquivel Teaches HIPEC Treatment Techniques in Mexico

Surgical oncologist, Dr Jesus Esquivel, volunteers his time teaching surgeons Mexico in the techniques of CRS and HIPEC for the treatment of patients suffering from peritoneal carcinomatosis.

During the past four years Dr Esquivel has traveled from his practice in Baltimore, MD numerous times to instruct surgical oncologists seeking effective methods for the treatment of peritoneal surface malignancies.

Dr Esquivel has initiated the instruction of CRS and HIPEC techniques in other cities throughout Mexico. During the past year, Dr Esquivel has flown to Guadalajara five times, teaching other surgeons and performing eight CRS and HIPEC procedures.

Dr Paul Sugarbaker and Dr Esquivel have co-chaired an annual peritoneal cancer treatment workshop in various cities in Mexico, during the past three years.

The fourth workshop is scheduled for April 2012 at the National Cancer Institute in Mexico City. (Instituto Nacional de Cancerologia or INCAN.)

Dr Guillermo Flores-Ayala treats cancer patients at the Instituto Jalisciense de Cancerologia in Guadalajara, Mexico.

He is one of the surgeons who has studied CRS and HIPEC treatment techniques under the tutelage of Dr Esquivel.

Dr Flores-Ayala tells PMP Pals, "Dr Esquivel has been my mentor and I am going to make him proud of me!

Indeed Dr Esquivel finds teaching and mentoring to be fulfilling. He tells PMP Pals, "This has been an incredible experience!"

Dr Esquivel continues, "Guadalajara is the second largest city in Mexico, with a population of 8 million people, and Dr Guillermo Flores-Ayala is the only surgical oncologist qualified to provide HIPEC treatment there!"

For more information about Drs Esquivel, Flores-Ayala or Sugarbaker, see our HIPEC Treatment Centers page.

Copyright 2011 by the PMP Pals' Network. All rights reserved. Visit us at www.pmppals.org

Preparing for Surgery: Don't Forget to Pack These Last Minute Items!

noreply@blogger.com (PMP Pals' Network) — Wed, 26 Oct 2011 16:33:00 +0000

Preparing for Surgery, Part 7: Don’t forget to pack these last minute items!

Don’t forget to pack these last minute items before you leave for the hospital!

Hand Sanitizer Gel...Purell (or similar brand) alcohol based gel hand sanitizer or hand wipes. Keep a bottle of Purell, or packets of handwipes in your pocket or purse. Place an extra bottle on the night stand in the hospital and remind physicians, nurses, lab technicians and other healthcare providers to clean their hands before touching the patient.

Pre paid telephone calling card...cell phones aren't allowed in some sections of hospitals. Telephone calling cards provide a helpful alternative when using “land line” telephones inside the hospital, hotels or airport. (These cards make thoughtful “get well gifts” from friends and family and are more practical than a box of candy!)

Cash, in small bills...handy to have on hand for “tips” for the sky caps and porters at the airport, hotels and cabs. Request “curbside wheelchair service” at the airport, for post op travel. Following surgery, and when returning home, a competent airport sky cap or porter, will make navigation through check in at throughout the terminal much easier, and tips will be appreciated!

For additional helpful tips in preparing for surgery, visit www.pmppals.org

Articles posted in "PMP Pals" and posted on www.pmppals.org are written from the perspective of patients and family caregivers, and are not intended to substitute for professional medical or legal advice. Obtain the counsel of a licensed healthcare professional regarding your specific needs. Copyright© 2011 by the PMP Pals' Network/All rights reserved.