The exhibition will feature several teen photographic models living with a variety of genetic conditions with each image identified by first name only. The student visitors will have opportunities to read about the photographic models themselves and their lives through a safe Positive Exposure controlled informative blog. Each model will commit to blogging about their everyday lives twice a week for the duration of the project (4-6 weeks)

Students are encouraged to get to know the models featured through the blog and keep a journal recording their new discoveries.

The host school is encouraged to create curricula based on the exhibition and across disciplines of education including Creative Writing, Music, Art, Photography, Philosophy and Science classrooms.

By inviting high school students to see young people living with genetic difference through Positive Exposure’s life-affirming lens as well as hear a collective of voices so often compelled into silence, it is hoped that high school students will gain a deeper understanding and respect for the many differences in the world around them. This is going to be AMAZING!!!!!!!

A few of our bloggers:

The program in in its Pilot Phase and We’ll keep you posted:

In the meantime: Check out our new Kartemquin movie trailer: http://www.youtube.com/watch?v=3zOPXTusNik

Also: Have a look at our ON BEAUTY Website: Blog us something!!!

www.iambeauty.me

Pallister Killian Syndrome

http://www.pkskids.net

Thu, June 24 – Sun, June 27

Where: Mt Laurel NJ

Marfan Conference

www.marfan.org

Thu, July 8 – Sun, July 11

Where:Houston

Chromosome 18 Conference

www.chromosome18.org

Sun, July 11 – Wed, July 14

Where: Tulsa

Mountain States Genetics Foundation’s Annual Education Conference

Wed, July 14 – Thu, July 15

Where:Denver

Nobody took my picture here. But this is just as good:

You will be receiving a formal letter of appreciation, but I do want to again thank you for taking the time to come to Denver and present. Everyone adores you and your work!

and we are always so glad to have you join us. As expected, so far all comments are extremely positive. We’ll be in touch soon.  Take care and keep us posted of your work.  We are in process now updating the 2011 strategic development plan, and I am hopeful that we can find ways to collaborate and support your work in the year ahead.

Kind regards, Susan M. Bryan

President, MSGF Board of Directors

NOAH:

www.albinism.org

Thu, July 15 – Sun, July 18

Where:DC

CH 18 Europe: First Conference EVER!!!!!!

Fri, July 30 – Sun, August 1, 2010

Where: Glasgow

DM Myotonic Dystrophy: STAY TUNED!!! The conference is next weekend!

Fri, August 13, 2010 – Sat, August 14, 2010

Where:MN

I also wanted to add an e-mail from our amazing Jayne Waithera who is starting up Positive Exposure Kenya to raise awareness and fortify our community in Kenya to protect our brothers and sisters with albinism! Jayne was there representing Positive Exposure but was also the recipient of The Innovation Award for the Empowerment of Women and Girls! We are all so proud of Jayne. She rocks!

Ghana has been very busy but also interesting meeting young African women leaders from 21 African countries. I have really learnt a lot and this is a great asset for for PE Kenya.
I have also managed to build networks with other regions, I also did a lot of presentation about albinism and my role in PE Kenya and most people have expressed interest in incorporating albinism issue in their projects.
In Ghana I managed to meet most renown human rights activists and I have done  a lot of  sensitization on our issues.
Side note(I met Her Excellency Mary Robinson former Ireland president and she was really impressed by the cause I’ve taken she said’” That’s a very great initiative  as many people around the globe are ignorant about albinism all the best”).
You remember the twelve year old boy from Ghana? I met the mother initially and when she told me the story I suggested to  go see the boy at home which I did on Sunday 25th july. This remains one of my greatest achievements so far. I  talked to the whole extended family   from the basics concepts of albinism and  some cultural believes surrounding albinism. The most intresting one was that the whole family believed the boy was born with albinism because the mom ate some sort of beans which the boy was never allowed to take for the last 13yrs. But on this day I broke the taboo by myself feeding on the same beans and giving it to the boy and all this little boy could say was “You are great!” it was really hard to convince them but I made it. Infact we agreed on him having beans  twice every week and the mom says she is doing well. Ill send you a detailed reports on the findings.
OOoh dear lemmie pause   there is much needed  … but we are heading somewhere..
Attached please find photos of the BIG DAY  in the boys family house.

I would like to thank Ralph Rucci for his support and absolute generosity and his constant support and inspiration encouraging me always to believe in my instincts, to see, to accept, to embrace and celebrate unique vision and beauty without compromise. I also would like to thank Rosina Rucci who has worked tirelessly promoting and supporting Positive Exposure. Believing in not only our mission, but also believing in each and every one of these stunning kids. And Vivian Van Natta, as amazing and busy as they are there at Chado, Viv  has always been an integral part of this evening’s success.

I’d also like to thank Miche Griffin who has helped make this benefit SHINE.

The benefit  will help Positive Exposure develop and reproduce sustainable programs and curricula that will reach more  medical professionals, students, legislators, and communities worldwide. To help us reach more kids living with genetic syndromes and help us develop the portable and sustainable tools needed to empower these kids and enable them to be advocates for themselves, changing public perceptions and attitudes towards difference beginning with their own communities. The proceeds from the benefit will help us partner with more support groups and communities worldwide, to inspire individuals, families and friends to see the beauty in these gorgeous kids and to reshape and redefine the boundaries of beauty to include all difference. Donations from the event will further develop Positive Exposure programs in communities where prejudices, discrimination, ignorance leads to human rights violations, ie: the murder for body parts  in Tanzania. Support will help us throughout Africa to develop portable and sustainable initiatives in partnership  with governments and existing local NGOs to abolish such ignorance creating tools needed to mobilize communities to accept and embrace all difference. Joanna Rudnick from Kartemquin Films presented a few clips from our documentary. This film will be incredible. THANK YOU EVERYONE, FOR YOUR SUPPORT….

Positive Exposure's champion Ralph Rucci (center) and friends, (left to right) Jay Glenn, the divine Rita Perrault, RR, me and event maestro, Ronnie Davis of Great Performances.

Joanna Rudnick presenting On Beauty film clip. Kartemquin Films!

Friends

Lovely Rosina Rucci and the generous Mario Rinaldi of CHAMPAGNE PAUL GOERG 1er CRU.

The Amazing Zachary and his family...

Great friends!!!

Elizabeth, family and friends!

Watching the On Beauty film clip....

Joseph and Amye

Vaughn Edelson from the Genetic Alliance, Joanna and me!!

Me and the beautiful Maggie from KenyaAwesome Dr. Fouad Otaki!

Our Liz Matejka Grossman and friends!

Please RSVP by April 11.

Evening Schedule

* Silent Auction (items include Week on the Vineyard at the Pink House, dinner for two at La Grenouille, Positive Exposure original image.)
* Positive Exposure Exhibition
* Positive Exposure introduction: Ralph Rucci
* Positive Exposure presentation: Rick Guidotti, founder and director
* Preview of Trailer from Kartemquin Films documentary on Positive Exposure

—————–

More about host Ralph Rucci:

* Video
* New York Times

Med Students at Exhibit.

Things are amazing here in Doha. With tireless efforts from recent Weill Cornell Medical College-Qatar graduate, Fouad Otaki and Nada Hassen from the Public Affairs department, we have managed at short notice to exhibit, lecture and photograph lots of new friends. The exhibition was a huge success and the prints, on canvas are spectacular. Thank you Weill Cornell Medical College and The Qatar Foundaton for your support and making this visit AMAZING! Went to Al Bayan School for Girls this morning and everyone there embraced our message. Celebrate the spirit of difference. This place rocks! Busy day shooting tomorrow at several local hospitals. More news soon!

The AWESOME Fouad Otaki.

Installing the Exhibition. The 7 foot prints arrive.

Opening night!

Exhibit.

Interviews for the documentary.

The Exhibit.

Rick, Joanna and Jayne!

The Amazing Ghanim, living with Cauldal Regression Syndrome.

Ghanim, the wildman skateboarder!

Take a peek…

3rd Year med students at WCMC-Q! We shot lots of photos. They are all superstars!

Joanna spreading the word about the screening of her film In the Family.

A very proud me!

The lovely Nadia! 3rd Year Med student....

Ghanim and his twin brother Ahmed, who doesnt have the syndrome but is just as crazy and fun!

What does the legislation entail?

From Rep. Gerry Connolly’s site:

• Condemns the murder and mutilation of people with albinism in East Africa;

• Urges governments in East Africa, particularly the governments of Tanzania and Burundi, to take immediate action to prevent further violence against persons with albinism;

• Calls for swift justice against those who have engaged in such reprehensible practices,

• Calls upon governments in East Africa, along with international organizations, other donors, and the United States, to actively support the education of people with albinism about the prevention of skin cancer and provide appropriate levels of assistance;

• And urges the United States to assist the governments of East Africa and other organizations to seek elimination of violence against people with albinism.

Read more here.