Theresa and I spent the weekend at the Living Beyond Breast Cancer – http://www.lbbc.org/ – Conference for Women with Metastatic Breast Cancer.  We met the most amazing women, some of whom have been struggling with this disease for years – and many who came from long distances to be at the conference.  It is due to this past weekend, that I have decided to do this Blog on Metastatic Breast Cancer.

WHAT is Metastatic Breast Cancer? (MBC), also known as advanced or Stage IV breast cancer, is cancer that has spread outside of the breast to other organs such as bones, liver, lung or brain.  This process is called metastasis.  Although the cancer has invaded other organs, it is still classified and treated as breast cancer.

WHO gets Metastatic Breast Cancer? No one brings metastatic disease on themselves.  The sad truth is that anyone who has had an earlier stage of breast cancer can have a metastatic recurrence and some women have metastatic disease on their initial diagnosis of cancer.

WHY does cancer metastasize? Researchers can’t predict who will get metastatic disease, but they’re working on answers.  Early detection is important, but it is not a cure and does not guarantee MBC will not occur in the future.

WHAT is the main difference between early stage breast cancer and MBC? MBC is treatable, but no longer curable.  Treatment is lifelong and focuses on preventing spread of the disease and managing symptoms.  The goal is for patients to live productive and comfortable lives for as long as possible.

WHAT is MBCN? Metastatic Breast Cancer Network is a national, independent, patient advocacy group dedicated to the unique concerns of the 155,000 women and men living with metastatic breast cancer in the U.S.  MBCN was founded by Nina Schulman and Jane Soyer in 2004.  When diagnosed with advanced breast cancer, they felt isolated and stigmatized.  Their belief that breast cancer should not be viewed as a disease from which one is either a ‘survivor’ or to which one has succumbed, fueled their desire to advocate change.

WHAT is MBCN’s mission? MBCN strives to raise awareness of metastatic breast cancer, to educate patients to advocate for themselves and to fight for treatment to extend life, while the search for a cure continues.

**This information was taken from a brochure printed by MBCN, Metastatic Breast Cancer Network:  Get the Facts

WEBSITE:  www.mbcn.org.

EMAIL:  mbcn@mbcn.org

Be sure to visit our NEW website at www.pinkribbongift.com.  We have a lot of new gifts, including lots of new jewelry and now we have gifts/books for children whose parent has cancer.  We would love your feedback!

Sue

There was an article written in the “New York Times” on January 3, 2013, by Tara Parker-Pope, entitled “Living With Cancer: Chemo Feet” – this could have been written by me!  Tara says:  “Prickly, frozen, cramped, numb: my feet ache as if they were tightly bound in plastic wrap or affixed on cardboard, or I don’t feel them at all.  Several years ago I was infused with a standard form of chemotherapy that causes what oncologists call peripheral neuropathies.  Side effects have turned into permanent after-effects.”

Like Tara, I suffer from the same ailment called chemo-induced peripheral neuropathy.  It’s hard to comprehend that I have one foot which is completely numb and that the numbness has crawled up my leg and created a lot of nerve damage.  At the same time, the pain is excruciating.  There are millions of people suffering from this ailment — there is NO cure – only drugs and homeopathic remedies.  It took my pain doctor, a neurologist, 2 years to come up with the right ‘formula’ for me.  That means I can function, however, it’s not easy.  Last year I had a neuro-stimulator inserted at the base of my spine.  There are many variations of the stimulator and the one I have works by intercepting pain signals before they reach the brain.  To do this, a small system is implanted in the body (for me it is in my spine).  When turned on, the implanted system sends mild electrical pulses to the nerves along the spinal cord.  These pulses diminish the feeling of pain and provide what some describe as a more pleasant massaging sensation or, in some cases, simply the absence of pain.  I am still on pain medication and get physical therapy in the pool two times a week.

As Tara did, I donated a whole lot of shoes to my daughter’s nanny, to my friends and to Good Will.  Yes, I used to be a shoe maven and I’m still a bag maven, but very sad to have to buy shoes with a large toe box so that my hammer toes can fit into the shoe/sneaker.

In closing, I have another quoted paragraph from Tara Parker-Pope, however, I could have written this myself …  “Only clunky old lady shoes hold out the promise of some modicum of balance, since I can’t really sense the ground.  In lieu of a shaky foundation and painful steps, I prefer the horizontal to the vertical.  When I do heave myself  up from the blue couch, images of the mortal heel of a vulnerable Achilles or the wounded ankle of Oedipus come to mind.  But my plodding plate gait has nothing to do with hobbled heroes or immortal feats, as I deliberately plunk one foot in front of the other to ascertain traction, to guard against tumbling.”

Do any of you suffer from peripheral neuropathy? There is a wonderful (private) site that offers support, recommendations and conversations.  The site is:

https://www.facebook.com/groups/supportforneuropathy/

A couple of notes:

I was recently recognized by Who’s Who Publisher’s Prestigious Roster of TOP FEMALE EXECUTIVES in honor of OUTSTANDING PROFESSIONAL EXCELLENCE AND DEDICATION.

I will be speaking at a 2 day Retreat outside of Raleigh, NC, on February 22 & 23. Check out their website!  http://www.lotussurvivalfoundation.org/

In a couple of weeks you will see our brand new website, with a lot of new gifts.  However, you can still access the site at http://www.pinkribbongift.com/

And, I received my Certification as a Health Coach Educator.

I’m adding some items that we are selling for Valentine’s Day and, YES, we will ship overnight right up until the 14th.

First, I need to apologize for not writing a Blog until now.  I have been going through a difficult time with my back pain, neuropathy and 2 surgeries.  I now have a neurostimular implanted in my spine, with the battery pack installed in my butt.  Yes, you heard  right — my tush/butt/rear end and so on.  Needless to say, this has been very painful and I can only hope that it works because I am all out of options.

.  Breast Cancer is the second most common cancer that women may face in their lifetime.  Breast Cancer can occur at any age, however, it is much more likely after the age of 40 and the risk goes up as women age.  Every woman should know about Breast Cancer and what can be done about it.  Here is information from the  American Cancer Society and Susan G. Komen Race for the Cure to help you better understand what you can do to detect Breast Cancer.

WHAT YOU CAN DO:

The best defense is to find breast cancer as early as possible – when it is small, has not spread and is easier to treat.  I was fortunate to have found my lump early and my surgeon got it all.  The American Cancer Society recommends the following for early detection:

• Women should have mammograms each year starting at age 40 and continuing for as long as they are in good health.
• A breast exam by a doctor or nurse should be  part of a regular health exam and should be done at least every 3 years for women in their 20s and 30s and every year for women 40 and up.
• Women should know how their breasts normally look and feel and report any breast change to a doctor right away.  Breast self-exam (BSE) is an option for women starting in their 20s.

WARNING SIGNS OF BREAST CANCER:

Due to the increased use of mammography, most women in the US are diagnosed at very early stages of Breast Cancer, before symptoms appear.  However, not all Breast Cancer is found through mammography.  The most common symptoms of Breast Cancer are a change in the look or feel of the breast, a change in the look or feel of the nipple and nipple discharge.  Here are some warning signs you should be aware of, courtesy of Susan G. Komen Race for the Cure:

• Lump, hard knot or thickening inside the breast or underarm area
• Swelling, warmth, redness or darkening of the breast
• Dimpling or puckering of the skin
• Itchy, scaly sore or rash on the nipple
• Pulling in of the nipple or other parts of the breast
• Nipple discharge that starts  suddenly
• New pain in one spot that doesn’t go away

If you have any of these symptoms, see your health care provider right away.  In most cases, these changes are not cancer.  However, the only way to know for sure is to see your  provider.

THE BEST DEFENSE AGAINST CANCER:

Early detection – finding a cancer early, before it was spread – gives you the best chance to do something about it.  Knowing about cancer and what you can do may save your life.  These are other actions you can take to improve your chances of controlling your health and reducing your cancer risk:

• Stay away from tobacco
• Get to and stay at a healthy weight
• Get moving with regular physical activity
• Eat healthy, with plenty of fruits and vegetables
• Limit how much alcohol you drink-if you drink at all
• Know yourself,  your family history and your risks
• Have regular check-ups and cancer screening tests

VIDEOS THAT CAN HELP:

To learn about Breast Cancer and its treatment, the American Cancer Society website has videos developed and reviewed by the health professionals .

• Cancer 101: What causes cancer and why is it so hard to treat?  Leading experts provide an overview of cancer, from what goes wrong in a cell’s genetic instructions to the latest treatment strategies.
• A Good Doctor-Patient Relationship in Breast Cancer: Women with Breast  Cancer face overwhelming decisions.  Women who have been through it, like myself, say that having a caring doctor can make all the difference.  Learn how to pull together a caring and coordinated treatment team, which should include a Certified Cancer Coach – www.helpyouhealcoaching.com.
• Advice to Women Newly Diagnosed with Breast Cancer: Breast Cancer can turn your world upside down.  There are ways to organize how you treat the disease, and how you approach getting the right information to make treatment decisions.
• Are Some Breast Cancers Different than Others? Learn what tests can determine the type of Breast Cancer you have, and how this information can affect your treatment.
• Be Active in Your Breast Cancer Treatment: In addition to a multidisciplinary team of specialists (nurses, oncologists, surgeons, social workers, nutritionists, genetic counselors and a Certified Life/Cancer Coach); at www.helpyouhealcoaching.com, you have a critical role in your treatment.

For more information about the American Cancer Society, visit www.cancer.org.  For information about Susan G. Komen for the Cure, visit www.komen.org.

As many of you know, I am on the Advisory Board of the Lotus Survival Foundation, an organization I am deeply committed to.  Their mission is to provide Breast Cancer patients and survivors with ways to manage their personal and professional lives through techniques that will strengthen the mind, body and soul.   I was fortunate, once again, to be a keynote speaker at this years’ retreat which was held at the most amazing location–Satchidananda Ashram-Yogaville.  Not only was the Ashram beautiful and surreal-the women at the retreat were amazing and each with their own spiritual energy.

Lotus Survival Foundation is organized exclusively for charitable, educational and scientific purposes, within the meaning of Section 501(c)(3) of the Internal Revenue Code of 1986. Employer Identification Number (EIN) or Federal Tax Identification Number: 27-2550834

We are constantly updating our websites and we are currently in the process of a major overhaul at www.pinkribbongift.com. We are constantly adding new items and you will soon see a brand new look!

And please remember that I am a Cancer Coach, as well as a two time cancer survivor and I would be glad to speak with you.

Sue

www.pinkribbongift.com & www.helpyouhealcoaching.com

Hopefully, some of you have noticed that I haven’t written a Blog since February and are curious as to the reason?  I have what is known as chemotherapy-induced peripheral neuropathy.  You can read more about this at http://www.cancer.org/Treatment/TreatmentsandSideEffects/PhysicalSideEffects/ChemotherapyEffects/PeripheralNeuropathy/peripheral-neuropathy-caused-by-chemotherapy-toc

And, yes, I suffer from chemotherapy-induced peripheral neuropathy.  What does that mean and what can happen to you and your body?  I used to workout every day, part of which included walking 3 miles a day; now I walk with a walker and my workout consists of working with a physical therapist in a pool.  Of course, this is very surreal and I keep feeling as though this isn’t happening to me — except when my left ankle gives way without any warning and I am on the ground, which is exactly what happened to me last month and that fall is probably the worst fall yet.  My husband and I had a birthday party for 2 of our granddaughters.  As people were leaving, I walked into the kitchen and tripped on the door of the dishwasher–I knew as soon as I hit the floor that my arm was broken, however, I had no idea that the left side of my forehead had swelled up to the size of a softball.  My husband, with our 3 granddaughters, drove me to our local emergency room where is was confirmed that I had broken arm plus a ‘brain bleed’.  http://www.webmd.com/brain/brain-hemorrhage-bleeding-causes-symptoms-treatments.  Unfortunately, the brain bleed could not be treated at that hospital, so I was taken by ambulance to Capital Health Stroke and Cerebrovascular Center of N.J. and I ended up in I.C.U.  I did get wonderful care there and eventually I was allowed to go home (with a new drug, Coumadin) and a cast on my broken arm.

The following is from an article in the FPN News, http://www.foundationforpn.org:  “What people don’t realize is how much of a shock neuropathy  can be.  The disease is not bad enough, but even greater than that is the impact it has on a person’s image, self-worth, and self-confidence.”  Those are the words of someone  who struggles with peripheral neuropathy (PN).  Like many, he learned that while neuropathy  doesn’t seem so bad in the beginning, the symptoms can become so severe you become limited in what you can do in a way that you never have known or even imagined before.  “Sports and fitness exercises become difficult to impossible and your social life disappears like snowflakes in the sun.”

Those of us diagnosed with PN have to change.  Where we had previously defined ourselves predominantly by our roles:  career, spouse, parent, friend, we now have to look at ourselves in a new light.  It is not always clear what really has changed, and we find ourselves questioning at every turn:  Do I really feel tingling, burning, numbness?  Is it really that bad or is it all in my head?  You can’t describe the sensations you’re feeling because they are so difficult to put into words.  “What did I do to deserve this?”  Unfortunately, those same questions tend to be echoed by many people in the social support system.  If our conditions are partial mysteries to the experts, imagine the discomfort we generate in those around us.  It’s not their fault; how can they really understand something they’ve barely heard of and they can’t see?  The closest to us  may say, with good intentions:  “Just tough it out.  Maybe you’re depressed.  You look fine to me.”  Because of these questions and responses from others, we tend to isolate ourselves because of embarrassment, frustration, and the unpredictability of our conditions.  Alone with ourselves, our condition can become our only companion.  Dr. Scott Berman, author of Coping with Peripheral Neuropathy, writes, “We must find meaningful things to focus our attention on that are not pain.”

Dr. Breslow suggests keeping a Pain Diary to show you how to rearrange your days to be able to do more of what you want to do.  In closing his book Dr. Berman reminds the reader that coping with PN is no easy task and you will have to create your own style of coping.  “When you rediscover your personal identity, your self-worth, your uniqueness, your ability to relate to others, then you have beaten the illness, whether or not you are in remission…Life is about the journey,not the outcomes.”

So I am attempting to find the “New Me”, who now has to take pain pills before getting out of bed, who can not drive while on my pain meds, who has to walk with a walker for fear of falling, and me, who is making every attempt to abandon the embarrassment.

On a new and exciting topic, The Lotus Foundation, http://www.lotussurvivalfoundation.org/, is having another amazing retreat and I will once again be one of the keynote speakers.  For more information on the next retreat, which will be held on September 12-16, 2012, click on the link above.

I haven’t written a Blog in quite a while.  The reason being that I have been in horrific pain and not one to open up easily …   This is more about choices than anything else.  I grew up with severe scoliosis and have been extremely fortunate to have lived this long without too many problems–until recently.  What happens when you hear the words Cancer or Tumor or Malignant?  You probably feel surreal, scared, a multitude of different emotions?  That is very normal and why I recommend to my friends, family and clients to bring an adversary to doctors appointments with them.  Someone who can listen and take notes.  Oooops, where I accidentally put the word “adversary”, I obviously meant “advocate”.

Before I go into some of my health issues, I want to tell you (again) my diagnosis and treatment and how I believe it led up to today.

• 10/27/2005 I went for my annual mammogram
• 11/04/2005 I was called back for another mammogram and I must say the radiologist had a charming way with words:  “You have what appears to be an architectural distortion and need to see a surgeon as soon as possible”.  Of course, this was on a Friday, the week before Thanksgiving.
• 11/16/2005 I had a biopsy and then the terrifying waiting game began . . .
• 11/20/2005 My surgeon called and as soon as I heard the word “malignant”, I didn’t hear an0ther word and thankfully my husband was there to take the phone and talk to the doctor about the results.  Those of you who have been through this know that when you hear the word malignant or tumor or cancer
• 11/21/2005 BTW, it is two days before my Birthday and 3 days before Thanksgiving.  I met with my oncologist who suggested I have a lumpectomy, a sentinel node biopsy and have a port put in for the chemotherapy.
• 11/30/2005 I had my surgery and the results were as follows:

Stage 1, Grade 2, clear margins, no lymph node involvement, ER/PR+, HER2 at +3. And after I took the OncotypeDX, http://www.oncotypedx.com/, I found out that I am in the highest percentage for spread and re-occurrence from the date of diagnosis through the next 10 years.

My treatment plan was long:  Four (long) doses of Cyclophosphamide and Adriamycin, better known as A/C; Twelve weekly doses of Taxol (I was allowed to skip the week of my daughter’s wedding); One year, every three weeks, of Herceptin and six weeks, 5 days a week of radiation.  Sometime after I finished the third chemo (Taxol) I began to get a numbness in my left foot which turned into neurapathy (and now going up my left and thigh).  The neurapathy was a side effect of one of the chemo therapies I was getting.  The numbness turned into nerve damage which caused “hammer toes” which meant I had to give away over 50 pairs of shoes.  (I used to be a shoe fanatic and now I have to wear New Balance sneakers).  As though all this information isn’t enough, I started to have horrible pains going across my back and down the back of my thighs.  So now I take strong pain medication and I’m still in pain.  Oh, and by the way, I now use a walker and cannot drive . . .  Before I had breast cancer I worked out 6 days a week and wore a size 6.  The last event I am going to tell you about is something that most of you don’t know about, which is that a certain drug we take for 5 years after we finish treatment can cause blood clots.  In December my husband noticed that my foot was very swollen and he called our doctor who sent us over to the radiology center and I was given a Doppler Ultrasound, only to note that I had blood clots in both legs–they were going to have me take an ambulance to the emergency room, however, my husband was with me (and we were hungry so we stopped to get a bite).  This was not a very good idea since the Emergency Staff was waiting for me to give me a CAT-Scan of my head.  Huh?  I wasn’t aware that blood clots took a direct route to wherever it thought it was going – which were in my lungs also.  I was in the hospital for a week and now I’m on Coumadin.

The reason I am telling you this is so that you read every single piece of information you can get your hands on regarding the side effects of your treatments.  Then you make your decision(s), based on your research and what your doctors recommends.  Remember, there are a lot of options–mastectomy, lumpectomy, reconstruction/no reconstruction, chemo/no chemo, radiation/no radiation and the list goes on and on.  Do I ever wonder how different my life would be if I had had a mastectomy v. lumpectomy?  Absolutely and on a daily basis.

On to happier events, like next week is Valentines Day and we have some lovely gifts to help celebrate, or you can go to http://www.pinkribbongift.com and browse around.

http://www.pinkribbongift.com/dr140.html

The Loving Hugs Heart Pillow-

http://www.pinkribbongift.com/so0004.html

http://www.pinkribbongift.com/ic112.html

Gift Box of Fragrance -”Our gift boxes contain a fragranced 3 oz. soy lotion candle, bath salts in a coconut shell and potpourri in an organza bag”.  Choose from Anti-Stress, Citrus Delight and Very Vanilla.

http://www.pinkribbongift.com/ho2311.html

This marble plaque has a wonderful inspirational saying that can either sit on a table or hang on the wall. It will put a smile on your face. 3.6″ x 7.7″

http://www.pinkribbongift.com/ndtbhb.html — Multi Tone “Hearts” Bracelet – This picture does not do justice, especially if you LOVE hearts.  The bracelet is Triple Burnished Metal Stretch, comes in a gift box and makes a nice gift.

If you can get your orders in quickly, we will make sure you have them by Valentines Day and, REMEMBER, we donate a % of each gross sale to breast cancer research and through the Lotus Survival Foundation we provide education, financial support for the underprivileged, retreats and many other wonderful gifts to breast cancer patients and their caregivers.  Check therm out at http://www.lotussurvivalfoundation.org/

For those of you who live in the Southern or Central Jersey or Philadelphia, a Renowned Natural Healer, Seldar, will be introduced Friday, February 10 – 7pm – 9pm; “The Cycle of Life” is part of Saturday’s session from 11:30 a.m. – 2:30 p.m.  He will also have Private Healing Sessions by appointment only, starting Friday and ending Monday.  FOR MORE INFORMATION, go to www.awakeningsconnection.com or call (856) 336-5591.

Happy Valentines Day.

Sue

HAPPY HOLIDAYS!!!

Wow, I feel as though it’s been a while since I blogged?  The reason being that I have been in chronic and debilitating back pain.  After seeing the 5th Spine Specialist, I was told by all of them that surgery was not an option as the severity of my back made surgery very dangerous.  I know that most of you won’t know what all of the following means, however, one of surgeons I saw in New York City said in his report, “…spine reveal a 71-degree of the left lumbar scoliosis and compensatory thoracic scoliosis of 43 degrees.  The ribs are impinging on the right ilium” (one of the bones that makes up the hip bone).  And as though that isn’t enough, I have chronic neurapathy from chemotherapy.  I hope you will understand . . .

As some of you know, the holidays are not always the best of times.  There are people who are alone and those that are ill.  Do you ever ask yourself what you can do to make another person happy, especially in December?   You probably know a friend or have a mother, sister, aunt or daughter who is going through the cancer journey and are not quite sure what the proper etiquette is.

Every time you put his paws together he/she will come up with 1 of 7 ‘get well’ wishes!

PLEASE COME & VISIT WITH ME.  When I was first diagnosed the best things my friends could do for me was ‘be there’ and ‘listen’.  “If you want to help a friend diagnosed with cancer, just be there.  Sit there.  Don’t offer platitudes.  Just hold your friend’s hand and let them talk when they need to.” said Kay Wells.  When you’re scared, it’s important to know that someone is there.

“A friend gathers your scattered pieces and gives them back to you in the right order”

WHAT NOT TO SAY

• “You look great!”  and in my mind I was thinking “Are you crazy”
• “Don’t worry, everything is going to be okay” and I would like that in writing with a guarantee.
• “I know what you’re going through…”  and I was thinking “Huh?  How could you possibly know what I’m going through unless you are going through the same thing?”

Teddy Bear Chocolate “Coco” — Whenever you need a little pampering, cuddle up to one of our many pets, which are microwavable for a warm, fragrant hug. A removable insert is filled with fragrant lavender or chocolate or eucalyptus to soothe, and flaxseed which helps to hold in the heat.

WHAT TO SAY

• “How are you feeling?”
• “Tell me what I can do for you.”
• “I don’t know what to say or how to say it, but I do want you to know I am here for you.”

Sterling Silver “Hershey” Pink Ribbon “Kiss”.  Pendent-20″ chain

When someone you care about is diagnosed with breast cancer, you feel that no card of bouquet of flowers will express your heartfelt good wishes, however, receiving a gift from a friend when someone is going through the cancer journey is a wonderful way to say “I care”.   http://www.pinkribbongift.com/index.html or PINK RIBBON ASSOCIATES, LLC offers a unique array of gifts for the mind, spirit, body and soul.  Having gone through the breast cancer journey ourselves, we are continuimng to offer “comfort” gifts for before, during and after treatment, as well as “special” gifts for the family and caregiver.

We are finding that people who visit our website, http://www.pinkribbongift.com/index.html are buying gifts for the holidays, as well as birthdays, anniversaries, baby gifts — gifts for any occasion.

That being said, we wish you a very MERRY CHRISTMAS, HAPPY HANUKKAH, HAPPY QUANZA and a very HAPPY and HEALTHY NEW YEAR.

With Warm Regards,

Susan & Theresa

http://www.pinkribbongift.com/index.html
http://www.helpyouhealcoaching.com
Susan@HelpYouHealCoaching.com

I want to make this personal before talking about Breast Cancer.  I usually get this Blog out by the 15th of the month, however, the past couple of weeks have been extremely stressful.  If you read my Blog about the Lotus Survival Foundation, you will remember that I spoke at their conference last May,  I met such wonderful women there and am so very sad that we lost 3 warriors to Breast Cancer within the last month.  Two of the women are in their 30s and both have 10 year old daughters.  Breast Cancer is the second most common cancer that women may face in their lifetime.  Breast Cancer can occur at any age, however, it is much more likely after the age of 40 and the risk goes up as women age.  Every woman should know about Breast Cancer and what can be done about it.  Here is information from the  American Cancer Society and Susan G. Komen Race for the Cure to help you better understand what you can do to detect Breast Cancer.

WHAT YOU CAN DO:

The best defense is to find breast cancer as early as possible – when it is small, has not spread and is easier to treat.  I was fortunate to have found my lump early and my surgeon got it all.  The American Cancer Society recommends the following for early detection:

• Women should have mammograms each year starting at age 40 and continuing for as long as they are in good health.
• A breast exam by a doctor or nurse should be  part of a regular health exam and should be done at least every 3 years for women in their 20s and 30s and every year for women 40 and up.
• Women should know how their breasts normally look and feel and report any breast change to a doctor right away.  Breast self-exam (BSE) is an option for women starting in their 20s.

WARNING SIGNS OF BREAST CANCER:

Due to the increased use of mammography, most women in the US are diagnosed at very early stages of Breast Cancer, before symptoms appear.  However, not all Breast Cancer is found through mammography.  The most common symptoms of Breast Cancer are a change in the look or feel of the breast, a change in the look or feel of the nipple and nipple discharge.  Here are some warning signs you should be aware of, courtesy of Susan G. Komen Race for the Cure:

• Lump, hard knot or thickening inside the breast or underarm area
• Swelling, warmth, redness or darkening of the breast
• Dimpling or puckering of the skin
• Itchy, scaly sore or rash on the nipple
• Pulling in of the nipple or other parts of the breast
• Nipple discharge that starts  suddenly
• New pain in one spot that doesn’t go away

If you have any of these symptoms, see your health care provider right away.  In most cases, these changes are not cancer.  However, the only way to know for sure is to see your  provider.

THE BEST DEFENSE AGAINST CANCER:

Early detection – finding a cancer early, before it was spread – gives you the best chance to do something about it.  Knowing about cancer and what you can do may save your life.  These are other actions you can take to improve your chances of controlling your health and reducing your cancer risk:

• Stay away from tobacco
• Get to and stay at a healthy weight
• Get moving with regular physical activity
• Eat healthy, with plenty of fruits and vegetables
  
• Limit how much alcohol you drink-if you drink at all
• Know yourself,  your family history and your risks
• Have regular check-ups and cancer screening tests

VIDEOS THAT CAN HELP:

To learn about Breast Cancer and its treatment, the American Cancer Society website has videos developed and reviewed by the health professionals .

• Cancer 101: What causes cancer and why is it so hard to treat?  Leading experts provide an overview of cancer, from what goes wrong in a cell’s genetic instructions to the latest treatment strategies.
• A Good Doctor-Patient Relationship in Breast Cancer: Women with Breast  Cancer face overwhelming decisions.  Women who have been through it, like myself, say that having a caring doctor can make all the difference.  Learn how to pull together a caring and coordinated treatment team, which should include a Certified Cancer Coach – www.helpyouhealcoaching.com.
• Advice to Women Newly Diagnosed with Breast Cancer: Breast Cancer can turn your world upside down.  There are ways to organize how you treat the disease, and how you approach getting the right information to make treatment decisions.
• Are Some Breast Cancers Different than Others? Learn what tests can determine the type of Breast Cancer you have, and how this information can affect your treatment.
• Be Active in Your Breast Cancer Treatment: In addition to a multidisciplinary team of specialists (nurses, oncologists, surgeons, social workers, nutritionists, genetic counselors and a Certified Life/Cancer Coach); at www.helpyouhealcoaching.com, you have a critical role in your treatment.

For more information about the American Cancer Society, visit www.cancer.org.  For information about Susan G. Komen for the Cure, visit www.komen.org.

As many of you know, I am on the Advisory Board of the Lotus Survival Foundation, an organization I am deeply committed to.  Their mission is to provide Breast Cancer patients and survivors with ways to manage their personal and professional lives through techniques that will strengthen the mind, body and soul.  On October 22 we are having a fundraiser at Solas Restaurant at the Roof Top in Raleigh, NC.  There will be raffles, a silent auction and more.  And, we now have Online Bidding for some amazing items — CLICK to view yourself — you will be awestruck!

Make Your Bid to Support Lotus Survival Foundation mission to provide Education and Support to low-income breast cancer patients!

“Now is your chance to not only get all the great items you want, but to do it knowing you are helping support our organization and mission.”

YOU MUST check out FUN-RAISING UNDER THE STARS! We have some awesome items to bid on and the money you spend will go to help women and educate them through our fabulous educational retreats.  If you cannot attend on October 22 and would like to donate $60, that money will be used to give a cancer patient who cannot afford the opportunity to have a wonderful evening ‘under the stars’.

Lotus Survival Foundation is organized exclusively for charitable, educational and scientific purposes, within the meaning of Section 501(c)(3) of the Internal Revenue Code of 1986. Employer Identification Number (EIN) or Federal Tax Identification Number: 27-2550834

www.pinkribbongift.com & www.helpyouhealcoaching.com

So, I bet you all think I was vacationing, huh?  NOT!  I worked like a crazy women (no comments, please!).

Coverage in "The Vail Daily"

I had the most wonderful opportunity at the University of Colorado at Denver Cancer Center where I did one-on-one coaching with cancer patients.  It was amazing to coach these women who are going through very difficult situations–all dealing with having cancer, as well as financial issues, husbands who left when they were diagnosed, hoping they survive to see their children grow up and graduate from school.  Unless you are going through this difficult journey, it is hard to imagine what it’s like–you can sympathize, you can emphasize–you will never know or understand the fear, anger, pain, body image and self esteem issues that these awesome women are going through.  While I was coaching, Lori Ovitz, whose website is  http://www.facingthemirror.org/, did facials, as well as makeup.  Lori used to be a celebrity make up artist, who now works only with cancer patients.  While all this was going on, Monique Tunney, whose website is http://www.artaboutyou.com, was taking photos and shooting video.

Another woman I met, Julie Grimm, has amazing new products for cancer patients, which will be on our site shortly.  It comes as a set or individually and is definitely worth taking a look at – I only wish I had it during my cancer treatment!  Her website is

In Vail,  I did have the opportunity to speak with a spa technician on how to communicate with a cancer patient/survivor.  Instead of asking “How are you feeling?”, ask “If you could draw a picture of what you would like your face to look like, tell me about it”.  Always attempt to ask open ended questions — that will put the cancer patient/survivor at ease and they will open up about themselves very quickly.  The technician will most likely learn more than they ever imagined.

And speaking about spa treatments, I found a great piece on “Skin and Nail Changes” during chemotherapy.  I got this from the Cooper Cancer Center in Voorhees, NJ and was written by the “U.S. Department of Health and Human Services: National Institute of Health”.

“I was glad to learn that most skin and nail problems go away after treatment.  For now, my nurse told me about a lotion to help my skin feel better.”  Unknown author.

Call your doctor or nurse if:

• You develop sudden or severe itching
• Your skin has a rash or hives

Let your doctor or nurse know if:

• Your skin is itchy, dry, red, or hurts
• Your nails are dark, yellow or cracked

For minor skin problems:  Be careful what you put on your skin.

• Use only mild soaps that are gentle on your skin
• Use lotions and creams.  Ask your nurse when to use them
• DON’T use products on your skin that have alcohol or perfume in them
• Ask what products or brands you should use on your skin

Our next Blog, coming out shortly, will deal with intimacy after cancer–I know this is a ‘hot’ topic and one that many women (and men) are uncomfortable discussing…

A COACH helps people find their inner strength to reach their full potential, even in the most adverse situations.

http://www.pinkribbongift.com– we donate a percentage of our gross sales to various breast cancer organizations who not only do research for cancer patients and survivors, but also provide support in the form on online groups, answers to medical questions, resources, etc.  Please visit our site, as we have a great array of gifts for patients, survivors, caregivers and friends,

www.HelpYouHealCoaching.com.

Thank you for your support!  Sue

After my diagnosis and 3 different types of chemotherapy, one year of Herceptin and 38 zaps of radiation, I had a lot of decisions to make.  I wasn’t in a big rush, but I had to start thinking about what I wanted to do for the rest of my life.  I had been a Regional  Sales Manager for a tax and legal publishing company for as long as I could remember.  I knew I couldn’t go back to doing that, as I had too many side effects from all the cancer treatments.

How I Found My Passion

What would make me want to get up in the morning and say, ‘I love my work and I love my life’?

If I were given all the skills and talents necessary, what would my ideal career look like?

If money was no object, what would I want to do?

The answer came to me like a lightening bolt:  I wanted to give back to the cancer community.   So, the first thing I did was start an online gift company with my dear friend, Theresa, who I met while we were going through chemotherapy together.  And, as you know, gifts are given to show appreciation, celebrate a new beginning, recognize an achievement, mark a passage, bring a smile and say “I care”.

http://www.pinkribbongift.com/gu015389.html

“Get Well Soon Bear”. Clap my hands to hear 7 different messages! You won’t find a better and more cuddly get well gift anywhere!

http://www.pinkribbongift.com/dr140.html

Loving Hugs Heart Pillow will nurture and take care of your tender spots. This is a wonderful soft and cuddly companion for anyone who has gone through surgery especially a mastectomy or lumpectomy because the pillow fits comfortably under the armpit and helps with the pain of surgery.  The pillow is microwaveable.  This comforting pillow, which is filled with natural herbs like cinnamon, clove and eucalyptus, is great for day or night.

Above are two items that we sell on our website at www.pinkribbongift.com. Our mission remains to offer a beautiful assortment of gifts that are of exceptional quality and appropriate for those suffering the effects of cancer and other forms of the disease.  We also have wonderful gifts for the family members and caregivers.  Theresa and I discovered a shared passion for giving back.  By reaching out to the medical community and other cancer survivors like ourselves, we quickly realized that “feel good” gifts were in demand.  As I have mentioned before, we donate a percentage of our gross sales to various cancer organizations

My other passion is helping people and coaching them through difficult times.  As a Sales Manager, I was constantly coaching my sales people and it is for that reason that I decided to go back to school to become a Certified Life Coach.

A Coach helps people find their inner strength to reach their full potential, even in the most adverse situations

I then decided that I wanted to have my niche in coaching cancer patients, so I went back to school again to become a Certified Professional Cancer Coach.

I am very excited about being asked to speak with cancer patients and survivors next month in Vail, CO.  I will also be working with estheticians on how they can work with clients who either have cancer currently or are survivors Please visit www.spa4thepink.org.

And, of course, please go to our online gift company and spend the $$$ to help eradicate cancer forever: http://www.pinkribbongift.com/

We sincerely appreciate your support!!!

Additional sites I recommend you log onto:

http://www.lotussurvivalfoundation.org/

http://www.talkabouthealth.com/

http://www.helpyouhealcoaching.com/

I hope everyone is having a wonderful summer, in spite of the very unusual high temperatures.

“Illness is not something to feel ashamed of.  It is not a sign of misfortune or defeat.  Suffering is the fuel of wisdom, and it opens the way to happiness.  Through illness, human beings can gain insight into the meaning of  life, understand  its value and dignity, and strive to lead more fulfilling lives”. Daisaku Ikeda

http://www.lotussurvivalfoundation.org/resources/SiteAlbums/1049689/commercial-photography-florida-nc-non-profit-08.jpg

The “Lotus Survival Foundation” was founded to provide education and access to resources meant to assist those who have been affected by, or are concerned about Breast Cancer.  The LSF provides support through education, group healing retreats and mentoring programs.  The Lotus Survival Foundation offers financial assistance to those in need.

I was so excited to be asked to attend the conference as a key note speaker at the retreat in Florida and wanted to share some of the wonderful ideas I learned from the other speakers.

Audrey Giron:  Asi me rio – Laughing Yoga — The Laughter Yoga has become an alternative for patients with Cancer and these are some of the benefits:  Increase your immune system; Natural painkiller; Decrease stress; Is an effective anti-depressant and anti-anxiety; Helps you sleep; Catharsis, laughter provides us with an excellent method to get rid of emotional issues and can even unlock emotions stored in your body.

I was the next speaker and my topic was about “Handling Your Feelings”.  I told everyone about my experience and how I dealt with my diagnosis and then I asked the women to share their initial feelings.  These women were amazing in that some of them made it to this retreat with Stage 4 breast cancer and many of the stories created a lot tears.  Next we did an exercise of Unity; a deep centering technique using Solitudes CD; breakout session which was an interactive discussion about feelings.  Having cancer is the most profound experience in someone’s life.  I asked each group to think about what they would say if a newly diagnosed friend came to them, what one inspiration from their experience could they offer them.

http://www.youtube.com/watch?v=eH95BJmPOs0&feature=youtu.be

Areanne L. Breedlover, CPA, discussed the following topics:  (1) What fears are universal?; (2) Communicating with large bureaucracies, i.e. IRS (skills that work with IRS also work well in dealing with insurance companies); (3) Utilizing scarce resources; (4) Financial tools;  (5) Medically related tax deductions and issues; (6) What is a taxable estate?   Areanne talked about how all these issues related to patients and survivors – she also handed out her booklet entitled: Financial Foundations: Fears and Facts.

Lori Ovitz, Professional Makeup Artist and  Author:  Facing the Mirror: www.facingthemirror.org. The first time Lori volunteered teaching a cancer patient to use make up tricks, FOREVER changed her view of make up and her career.  Her 2o years of experience as a make up artist for celebrities and top models gave her the background to create techniques to help cancer patients overcome the daunting side effects of their appearance.  It has been so gratifying to watch a patient transform not only from the outside but the inside as well.  Lance Armstrong, Founder, Lance Armstrong Foundation, wrote:  “Ovitz’s book provides easy-to-follow steps on how to maintain physical appearance and enhance your quality of life with, through and beyond cancer.”  Lori is currently offering 10% off first time orders from Coverfx.com and a FREE Facing the Mirror GUIDE BOOK.  If you would like to order enter promo coder at checkout: CFX0009Y10-M.

http://www.lotussurvivalfoundation.org/resources/SiteAlbums/1049689/commercial-photography-florida-nc-non-profit-18.jpg

Xiomara M Boyce, Outreach Navigator at Duke Breast Wellness Clinic, talked about:  (1) Effects of Radiation During and After Treatment; (2) Effects of Chemotherapy During and After Treatment; (3) Effects of Medicines.

Susan McHugh (Me) @ www.HelpYouHealCoaching.com and www.pinkribbongift.com.  This was a very interesting topic to discuss — Dealing with Your Body, Your Image and Your Sexuality – this was an interactive conversation, wherein we discussed the side effects of various breast cancer drugs and dealing with sexuality after cancer treatment.  There is a wonderful book which is on my website and was written by a friend who is a breast cancer survivor.  The book is INTIMACY AFTER BREAST CANCER (Dealing with your body, your relationships and sex) by Gina Maisano.

Tania Fabela, Master in Nutrition.  It has been estimated that 30-40% of all cancers can be prevented by lifestyle, physical activity and dietary measures alone.  Cancer and cancer treatments may cause side effects related to nutrition.  The side effects of cancer and cancer treatment can effect eating.

Amy J. Sear — “Asian philosophers developed over centuries and across numerous nations and cultures, offer significant benefit to anyone seeking to maximize health and well being.  There are many that are simple and straight forward and that anyone can learn, do, and incorporate into one’s daily life.”  Amy covered excellent topics, such as:  Food, Eating, Sleep, Movement Herbs, Taoism, Yin and Yang Balance, Qi Flow, books and more.

Scott Phillips, Patient Navigator for Oncology, Heritage Hospital Cancer Center.  “The main function of a Patient Navigator is to guide patients through the health care system.  When a patient encounters a ‘barrier’ to getting quality health care, the Patient Navigator  is there to help remove that obstacle and assist the patient with finding the resources necessary to overcome it.  A Patient Navigator can be a nurse, a social worker, another health care professional or a non-professional who has been trained to provide Patient Navigator services.”

I realize that this Blog is off the beaten track and is a whole lot of information.  However, the Lotus Survival Foundation is doing such an awesome job in assisting those in need, those who are suffering as well as survivors.  I urge you to go to their website and see for yourselves what the Foundation is all about.  If you want additional information on the various speakers, please e-mail me at susan@pinkribbongift.com.

There is another wonderful site which is fabulous and worth checking out:  www.talkabouthealth.com.  (1) Meet others just like you (they match you with peers and experts); (2) Learn from experienced peers (answers and live chats with the right people); (3) Share  your experiences (helping others by sharing your knowledge).

www.HelpYouHealCoaching.com–A Coach helps people find their inner strength to reach their full potential, even in the most adverse situations.

www.pinkribbongift.com–Pink Ribbon Gift has some wonderful gifts for patients, survivors, family, caregivers and actually anyone.  We donate a percentage of our gross sales to various breast cancer research organizations.