I haven’t written a Blog in quite a while.  The reason being that I have been in horrific pain and not one to open up easily …   This is more about choices than anything else.  I grew up with severe scoliosis and have been extremely fortunate to have lived this long without too many problems–until recently.  What happens when you hear the words Cancer or Tumor or Malignant?  You probably feel surreal, scared, a multitude of different emotions?  That is very normal and why I recommend to my friends, family and clients to bring an adversary to doctors appointments with them.  Someone who can listen and take notes.  Oooops, where I accidentally put the word “adversary”, I obviously meant “advocate”.

Before I go into some of my health issues, I want to tell you (again) my diagnosis and treatment and how I believe it led up to today.

• 10/27/2005 I went for my annual mammogram
• 11/04/2005 I was called back for another mammogram and I must say the radiologist had a charming way with words:  “You have what appears to be an architectural distortion and need to see a surgeon as soon as possible”.  Of course, this was on a Friday, the week before Thanksgiving.
• 11/16/2005 I had a biopsy and then the terrifying waiting game began . . .
• 11/20/2005 My surgeon called and as soon as I heard the word “malignant”, I didn’t hear an0ther word and thankfully my husband was there to take the phone and talk to the doctor about the results.  Those of you who have been through this know that when you hear the word malignant or tumor or cancer
• 11/21/2005 BTW, it is two days before my Birthday and 3 days before Thanksgiving.  I met with my oncologist who suggested I have a lumpectomy, a sentinel node biopsy and have a port put in for the chemotherapy.
• 11/30/2005 I had my surgery and the results were as follows:

Stage 1, Grade 2, clear margins, no lymph node involvement, ER/PR+, HER2 at +3. And after I took the OncotypeDX, http://www.oncotypedx.com/, I found out that I am in the highest percentage for spread and re-occurrence from the date of diagnosis through the next 10 years.

My treatment plan was long:  Four (long) doses of Cyclophosphamide and Adriamycin, better known as A/C; Twelve weekly doses of Taxol (I was allowed to skip the week of my daughter’s wedding); One year, every three weeks, of Herceptin and six weeks, 5 days a week of radiation.  Sometime after I finished the third chemo (Taxol) I began to get a numbness in my left foot which turned into neurapathy (and now going up my left and thigh).  The neurapathy was a side effect of one of the chemo therapies I was getting.  The numbness turned into nerve damage which caused “hammer toes” which meant I had to give away over 50 pairs of shoes.  (I used to be a shoe fanatic and now I have to wear New Balance sneakers).  As though all this information isn’t enough, I started to have horrible pains going across my back and down the back of my thighs.  So now I take strong pain medication and I’m still in pain.  Oh, and by the way, I now use a walker and cannot drive . . .  Before I had breast cancer I worked out 6 days a week and wore a size 6.  The last event I am going to tell you about is something that most of you don’t know about, which is that a certain drug we take for 5 years after we finish treatment can cause blood clots.  In December my husband noticed that my foot was very swollen and he called our doctor who sent us over to the radiology center and I was given a Doppler Ultrasound, only to note that I had blood clots in both legs–they were going to have me take an ambulance to the emergency room, however, my husband was with me (and we were hungry so we stopped to get a bite).  This was not a very good idea since the Emergency Staff was waiting for me to give me a CAT-Scan of my head.  Huh?  I wasn’t aware that blood clots took a direct route to wherever it thought it was going – which were in my lungs also.  I was in the hospital for a week and now I’m on Coumadin.

The reason I am telling you this is so that you read every single piece of information you can get your hands on regarding the side effects of your treatments.  Then you make your decision(s), based on your research and what your doctors recommends.  Remember, there are a lot of options–mastectomy, lumpectomy, reconstruction/no reconstruction, chemo/no chemo, radiation/no radiation and the list goes on and on.  Do I ever wonder how different my life would be if I had had a mastectomy v. lumpectomy?  Absolutely and on a daily basis.

On to happier events, like next week is Valentines Day and we have some lovely gifts to help celebrate, or you can go to http://www.pinkribbongift.com and browse around.

http://www.pinkribbongift.com/dr140.html

The Loving Hugs Heart Pillow-

http://www.pinkribbongift.com/so0004.html

http://www.pinkribbongift.com/ic112.html

Gift Box of Fragrance -”Our gift boxes contain a fragranced 3 oz. soy lotion candle, bath salts in a coconut shell and potpourri in an organza bag”.  Choose from Anti-Stress, Citrus Delight and Very Vanilla.

http://www.pinkribbongift.com/ho2311.html

This marble plaque has a wonderful inspirational saying that can either sit on a table or hang on the wall. It will put a smile on your face. 3.6″ x 7.7″

http://www.pinkribbongift.com/ndtbhb.html — Multi Tone “Hearts” Bracelet – This picture does not do justice, especially if you LOVE hearts.  The bracelet is Triple Burnished Metal Stretch, comes in a gift box and makes a nice gift.

If you can get your orders in quickly, we will make sure you have them by Valentines Day and, REMEMBER, we donate a % of each gross sale to breast cancer research and through the Lotus Survival Foundation we provide education, financial support for the underprivileged, retreats and many other wonderful gifts to breast cancer patients and their caregivers.  Check therm out at http://www.lotussurvivalfoundation.org/

For those of you who live in the Southern or Central Jersey or Philadelphia, a Renowned Natural Healer, Seldar, will be introduced Friday, February 10 – 7pm – 9pm; “The Cycle of Life” is part of Saturday’s session from 11:30 a.m. – 2:30 p.m.  He will also have Private Healing Sessions by appointment only, starting Friday and ending Monday.  FOR MORE INFORMATION, go to www.awakeningsconnection.com or call (856) 336-5591.

Happy Valentines Day.

Sue

HAPPY HOLIDAYS!!!

Wow, I feel as though it’s been a while since I blogged?  The reason being that I have been in chronic and debilitating back pain.  After seeing the 5th Spine Specialist, I was told by all of them that surgery was not an option as the severity of my back made surgery very dangerous.  I know that most of you won’t know what all of the following means, however, one of surgeons I saw in New York City said in his report, “…spine reveal a 71-degree of the left lumbar scoliosis and compensatory thoracic scoliosis of 43 degrees.  The ribs are impinging on the right ilium” (one of the bones that makes up the hip bone).  And as though that isn’t enough, I have chronic neurapathy from chemotherapy.  I hope you will understand . . .

As some of you know, the holidays are not always the best of times.  There are people who are alone and those that are ill.  Do you ever ask yourself what you can do to make another person happy, especially in December?   You probably know a friend or have a mother, sister, aunt or daughter who is going through the cancer journey and are not quite sure what the proper etiquette is.

Every time you put his paws together he/she will come up with 1 of 7 ‘get well’ wishes!

PLEASE COME & VISIT WITH ME.  When I was first diagnosed the best things my friends could do for me was ‘be there’ and ‘listen’.  “If you want to help a friend diagnosed with cancer, just be there.  Sit there.  Don’t offer platitudes.  Just hold your friend’s hand and let them talk when they need to.” said Kay Wells.  When you’re scared, it’s important to know that someone is there.

“A friend gathers your scattered pieces and gives them back to you in the right order”

WHAT NOT TO SAY

• “You look great!”  and in my mind I was thinking “Are you crazy”
• “Don’t worry, everything is going to be okay” and I would like that in writing with a guarantee.
• “I know what you’re going through…”  and I was thinking “Huh?  How could you possibly know what I’m going through unless you are going through the same thing?”

Teddy Bear Chocolate “Coco” — Whenever you need a little pampering, cuddle up to one of our many pets, which are microwavable for a warm, fragrant hug. A removable insert is filled with fragrant lavender or chocolate or eucalyptus to soothe, and flaxseed which helps to hold in the heat.

WHAT TO SAY

• “How are you feeling?”
• “Tell me what I can do for you.”
• “I don’t know what to say or how to say it, but I do want you to know I am here for you.”

Sterling Silver “Hershey” Pink Ribbon “Kiss”.  Pendent-20″ chain

When someone you care about is diagnosed with breast cancer, you feel that no card of bouquet of flowers will express your heartfelt good wishes, however, receiving a gift from a friend when someone is going through the cancer journey is a wonderful way to say “I care”.   http://www.pinkribbongift.com/index.html or PINK RIBBON ASSOCIATES, LLC offers a unique array of gifts for the mind, spirit, body and soul.  Having gone through the breast cancer journey ourselves, we are continuimng to offer “comfort” gifts for before, during and after treatment, as well as “special” gifts for the family and caregiver.

We are finding that people who visit our website, http://www.pinkribbongift.com/index.html are buying gifts for the holidays, as well as birthdays, anniversaries, baby gifts — gifts for any occasion.

That being said, we wish you a very MERRY CHRISTMAS, HAPPY HANUKKAH, HAPPY QUANZA and a very HAPPY and HEALTHY NEW YEAR.

With Warm Regards,

Susan & Theresa

http://www.pinkribbongift.com/index.html
http://www.helpyouhealcoaching.com
Susan@HelpYouHealCoaching.com

I want to make this personal before talking about Breast Cancer.  I usually get this Blog out by the 15th of the month, however, the past couple of weeks have been extremely stressful.  If you read my Blog about the Lotus Survival Foundation, you will remember that I spoke at their conference last May,  I met such wonderful women there and am so very sad that we lost 3 warriors to Breast Cancer within the last month.  Two of the women are in their 30s and both have 10 year old daughters.  Breast Cancer is the second most common cancer that women may face in their lifetime.  Breast Cancer can occur at any age, however, it is much more likely after the age of 40 and the risk goes up as women age.  Every woman should know about Breast Cancer and what can be done about it.  Here is information from the  American Cancer Society and Susan G. Komen Race for the Cure to help you better understand what you can do to detect Breast Cancer.

WHAT YOU CAN DO:

The best defense is to find breast cancer as early as possible – when it is small, has not spread and is easier to treat.  I was fortunate to have found my lump early and my surgeon got it all.  The American Cancer Society recommends the following for early detection:

• Women should have mammograms each year starting at age 40 and continuing for as long as they are in good health.
• A breast exam by a doctor or nurse should be  part of a regular health exam and should be done at least every 3 years for women in their 20s and 30s and every year for women 40 and up.
• Women should know how their breasts normally look and feel and report any breast change to a doctor right away.  Breast self-exam (BSE) is an option for women starting in their 20s.

WARNING SIGNS OF BREAST CANCER:

Due to the increased use of mammography, most women in the US are diagnosed at very early stages of Breast Cancer, before symptoms appear.  However, not all Breast Cancer is found through mammography.  The most common symptoms of Breast Cancer are a change in the look or feel of the breast, a change in the look or feel of the nipple and nipple discharge.  Here are some warning signs you should be aware of, courtesy of Susan G. Komen Race for the Cure:

• Lump, hard knot or thickening inside the breast or underarm area
• Swelling, warmth, redness or darkening of the breast
• Dimpling or puckering of the skin
• Itchy, scaly sore or rash on the nipple
• Pulling in of the nipple or other parts of the breast
• Nipple discharge that starts  suddenly
• New pain in one spot that doesn’t go away

If you have any of these symptoms, see your health care provider right away.  In most cases, these changes are not cancer.  However, the only way to know for sure is to see your  provider.

THE BEST DEFENSE AGAINST CANCER:

Early detection – finding a cancer early, before it was spread – gives you the best chance to do something about it.  Knowing about cancer and what you can do may save your life.  These are other actions you can take to improve your chances of controlling your health and reducing your cancer risk:

• Stay away from tobacco
• Get to and stay at a healthy weight
• Get moving with regular physical activity
• Eat healthy, with plenty of fruits and vegetables
  
• Limit how much alcohol you drink-if you drink at all
• Know yourself,  your family history and your risks
• Have regular check-ups and cancer screening tests

VIDEOS THAT CAN HELP:

To learn about Breast Cancer and its treatment, the American Cancer Society website has videos developed and reviewed by the health professionals .

• Cancer 101: What causes cancer and why is it so hard to treat?  Leading experts provide an overview of cancer, from what goes wrong in a cell’s genetic instructions to the latest treatment strategies.
• A Good Doctor-Patient Relationship in Breast Cancer: Women with Breast  Cancer face overwhelming decisions.  Women who have been through it, like myself, say that having a caring doctor can make all the difference.  Learn how to pull together a caring and coordinated treatment team, which should include a Certified Cancer Coach – www.helpyouhealcoaching.com.
• Advice to Women Newly Diagnosed with Breast Cancer: Breast Cancer can turn your world upside down.  There are ways to organize how you treat the disease, and how you approach getting the right information to make treatment decisions.
• Are Some Breast Cancers Different than Others? Learn what tests can determine the type of Breast Cancer you have, and how this information can affect your treatment.
• Be Active in Your Breast Cancer Treatment: In addition to a multidisciplinary team of specialists (nurses, oncologists, surgeons, social workers, nutritionists, genetic counselors and a Certified Life/Cancer Coach); at www.helpyouhealcoaching.com, you have a critical role in your treatment.

For more information about the American Cancer Society, visit www.cancer.org.  For information about Susan G. Komen for the Cure, visit www.komen.org.

As many of you know, I am on the Advisory Board of the Lotus Survival Foundation, an organization I am deeply committed to.  Their mission is to provide Breast Cancer patients and survivors with ways to manage their personal and professional lives through techniques that will strengthen the mind, body and soul.  On October 22 we are having a fundraiser at Solas Restaurant at the Roof Top in Raleigh, NC.  There will be raffles, a silent auction and more.  And, we now have Online Bidding for some amazing items — CLICK to view yourself — you will be awestruck!

Make Your Bid to Support Lotus Survival Foundation mission to provide Education and Support to low-income breast cancer patients!

“Now is your chance to not only get all the great items you want, but to do it knowing you are helping support our organization and mission.”

YOU MUST check out FUN-RAISING UNDER THE STARS! We have some awesome items to bid on and the money you spend will go to help women and educate them through our fabulous educational retreats.  If you cannot attend on October 22 and would like to donate $60, that money will be used to give a cancer patient who cannot afford the opportunity to have a wonderful evening ‘under the stars’.

Lotus Survival Foundation is organized exclusively for charitable, educational and scientific purposes, within the meaning of Section 501(c)(3) of the Internal Revenue Code of 1986. Employer Identification Number (EIN) or Federal Tax Identification Number: 27-2550834

www.pinkribbongift.com & www.helpyouhealcoaching.com

So, I bet you all think I was vacationing, huh?  NOT!  I worked like a crazy women (no comments, please!).

Coverage in "The Vail Daily"

I had the most wonderful opportunity at the University of Colorado at Denver Cancer Center where I did one-on-one coaching with cancer patients.  It was amazing to coach these women who are going through very difficult situations–all dealing with having cancer, as well as financial issues, husbands who left when they were diagnosed, hoping they survive to see their children grow up and graduate from school.  Unless you are going through this difficult journey, it is hard to imagine what it’s like–you can sympathize, you can emphasize–you will never know or understand the fear, anger, pain, body image and self esteem issues that these awesome women are going through.  While I was coaching, Lori Ovitz, whose website is  http://www.facingthemirror.org/, did facials, as well as makeup.  Lori used to be a celebrity make up artist, who now works only with cancer patients.  While all this was going on, Monique Tunney, whose website is http://www.artaboutyou.com, was taking photos and shooting video.

Another woman I met, Julie Grimm, has amazing new products for cancer patients, which will be on our site shortly.  It comes as a set or individually and is definitely worth taking a look at – I only wish I had it during my cancer treatment!  Her website is

In Vail,  I did have the opportunity to speak with a spa technician on how to communicate with a cancer patient/survivor.  Instead of asking “How are you feeling?”, ask “If you could draw a picture of what you would like your face to look like, tell me about it”.  Always attempt to ask open ended questions — that will put the cancer patient/survivor at ease and they will open up about themselves very quickly.  The technician will most likely learn more than they ever imagined.

And speaking about spa treatments, I found a great piece on “Skin and Nail Changes” during chemotherapy.  I got this from the Cooper Cancer Center in Voorhees, NJ and was written by the “U.S. Department of Health and Human Services: National Institute of Health”.

“I was glad to learn that most skin and nail problems go away after treatment.  For now, my nurse told me about a lotion to help my skin feel better.”  Unknown author.

Call your doctor or nurse if:

• You develop sudden or severe itching
• Your skin has a rash or hives

Let your doctor or nurse know if:

• Your skin is itchy, dry, red, or hurts
• Your nails are dark, yellow or cracked

For minor skin problems:  Be careful what you put on your skin.

• Use only mild soaps that are gentle on your skin
• Use lotions and creams.  Ask your nurse when to use them
• DON’T use products on your skin that have alcohol or perfume in them
• Ask what products or brands you should use on your skin

Our next Blog, coming out shortly, will deal with intimacy after cancer–I know this is a ‘hot’ topic and one that many women (and men) are uncomfortable discussing…

A COACH helps people find their inner strength to reach their full potential, even in the most adverse situations.

http://www.pinkribbongift.com– we donate a percentage of our gross sales to various breast cancer organizations who not only do research for cancer patients and survivors, but also provide support in the form on online groups, answers to medical questions, resources, etc.  Please visit our site, as we have a great array of gifts for patients, survivors, caregivers and friends,

www.HelpYouHealCoaching.com.

Thank you for your support!  Sue

After my diagnosis and 3 different types of chemotherapy, one year of Herceptin and 38 zaps of radiation, I had a lot of decisions to make.  I wasn’t in a big rush, but I had to start thinking about what I wanted to do for the rest of my life.  I had been a Regional  Sales Manager for a tax and legal publishing company for as long as I could remember.  I knew I couldn’t go back to doing that, as I had too many side effects from all the cancer treatments.

How I Found My Passion

What would make me want to get up in the morning and say, ‘I love my work and I love my life’?

If I were given all the skills and talents necessary, what would my ideal career look like?

If money was no object, what would I want to do?

The answer came to me like a lightening bolt:  I wanted to give back to the cancer community.   So, the first thing I did was start an online gift company with my dear friend, Theresa, who I met while we were going through chemotherapy together.  And, as you know, gifts are given to show appreciation, celebrate a new beginning, recognize an achievement, mark a passage, bring a smile and say “I care”.

http://www.pinkribbongift.com/gu015389.html

“Get Well Soon Bear”. Clap my hands to hear 7 different messages! You won’t find a better and more cuddly get well gift anywhere!

http://www.pinkribbongift.com/dr140.html

Loving Hugs Heart Pillow will nurture and take care of your tender spots. This is a wonderful soft and cuddly companion for anyone who has gone through surgery especially a mastectomy or lumpectomy because the pillow fits comfortably under the armpit and helps with the pain of surgery.  The pillow is microwaveable.  This comforting pillow, which is filled with natural herbs like cinnamon, clove and eucalyptus, is great for day or night.

Above are two items that we sell on our website at www.pinkribbongift.com. Our mission remains to offer a beautiful assortment of gifts that are of exceptional quality and appropriate for those suffering the effects of cancer and other forms of the disease.  We also have wonderful gifts for the family members and caregivers.  Theresa and I discovered a shared passion for giving back.  By reaching out to the medical community and other cancer survivors like ourselves, we quickly realized that “feel good” gifts were in demand.  As I have mentioned before, we donate a percentage of our gross sales to various cancer organizations

My other passion is helping people and coaching them through difficult times.  As a Sales Manager, I was constantly coaching my sales people and it is for that reason that I decided to go back to school to become a Certified Life Coach.

A Coach helps people find their inner strength to reach their full potential, even in the most adverse situations

I then decided that I wanted to have my niche in coaching cancer patients, so I went back to school again to become a Certified Professional Cancer Coach.

I am very excited about being asked to speak with cancer patients and survivors next month in Vail, CO.  I will also be working with estheticians on how they can work with clients who either have cancer currently or are survivors Please visit www.spa4thepink.org.

And, of course, please go to our online gift company and spend the $$$ to help eradicate cancer forever: http://www.pinkribbongift.com/

We sincerely appreciate your support!!!

Additional sites I recommend you log onto:

http://www.lotussurvivalfoundation.org/

http://www.talkabouthealth.com/

http://www.helpyouhealcoaching.com/

I hope everyone is having a wonderful summer, in spite of the very unusual high temperatures.

“Illness is not something to feel ashamed of.  It is not a sign of misfortune or defeat.  Suffering is the fuel of wisdom, and it opens the way to happiness.  Through illness, human beings can gain insight into the meaning of  life, understand  its value and dignity, and strive to lead more fulfilling lives”. Daisaku Ikeda

http://www.lotussurvivalfoundation.org/resources/SiteAlbums/1049689/commercial-photography-florida-nc-non-profit-08.jpg

The “Lotus Survival Foundation” was founded to provide education and access to resources meant to assist those who have been affected by, or are concerned about Breast Cancer.  The LSF provides support through education, group healing retreats and mentoring programs.  The Lotus Survival Foundation offers financial assistance to those in need.

I was so excited to be asked to attend the conference as a key note speaker at the retreat in Florida and wanted to share some of the wonderful ideas I learned from the other speakers.

Audrey Giron:  Asi me rio – Laughing Yoga — The Laughter Yoga has become an alternative for patients with Cancer and these are some of the benefits:  Increase your immune system; Natural painkiller; Decrease stress; Is an effective anti-depressant and anti-anxiety; Helps you sleep; Catharsis, laughter provides us with an excellent method to get rid of emotional issues and can even unlock emotions stored in your body.

I was the next speaker and my topic was about “Handling Your Feelings”.  I told everyone about my experience and how I dealt with my diagnosis and then I asked the women to share their initial feelings.  These women were amazing in that some of them made it to this retreat with Stage 4 breast cancer and many of the stories created a lot tears.  Next we did an exercise of Unity; a deep centering technique using Solitudes CD; breakout session which was an interactive discussion about feelings.  Having cancer is the most profound experience in someone’s life.  I asked each group to think about what they would say if a newly diagnosed friend came to them, what one inspiration from their experience could they offer them.

http://www.youtube.com/watch?v=eH95BJmPOs0&feature=youtu.be

Areanne L. Breedlover, CPA, discussed the following topics:  (1) What fears are universal?; (2) Communicating with large bureaucracies, i.e. IRS (skills that work with IRS also work well in dealing with insurance companies); (3) Utilizing scarce resources; (4) Financial tools;  (5) Medically related tax deductions and issues; (6) What is a taxable estate?   Areanne talked about how all these issues related to patients and survivors – she also handed out her booklet entitled: Financial Foundations: Fears and Facts.

Lori Ovitz, Professional Makeup Artist and  Author:  Facing the Mirror: www.facingthemirror.org. The first time Lori volunteered teaching a cancer patient to use make up tricks, FOREVER changed her view of make up and her career.  Her 2o years of experience as a make up artist for celebrities and top models gave her the background to create techniques to help cancer patients overcome the daunting side effects of their appearance.  It has been so gratifying to watch a patient transform not only from the outside but the inside as well.  Lance Armstrong, Founder, Lance Armstrong Foundation, wrote:  “Ovitz’s book provides easy-to-follow steps on how to maintain physical appearance and enhance your quality of life with, through and beyond cancer.”  Lori is currently offering 10% off first time orders from Coverfx.com and a FREE Facing the Mirror GUIDE BOOK.  If you would like to order enter promo coder at checkout: CFX0009Y10-M.

http://www.lotussurvivalfoundation.org/resources/SiteAlbums/1049689/commercial-photography-florida-nc-non-profit-18.jpg

Xiomara M Boyce, Outreach Navigator at Duke Breast Wellness Clinic, talked about:  (1) Effects of Radiation During and After Treatment; (2) Effects of Chemotherapy During and After Treatment; (3) Effects of Medicines.

Susan McHugh (Me) @ www.HelpYouHealCoaching.com and www.pinkribbongift.com.  This was a very interesting topic to discuss — Dealing with Your Body, Your Image and Your Sexuality – this was an interactive conversation, wherein we discussed the side effects of various breast cancer drugs and dealing with sexuality after cancer treatment.  There is a wonderful book which is on my website and was written by a friend who is a breast cancer survivor.  The book is INTIMACY AFTER BREAST CANCER (Dealing with your body, your relationships and sex) by Gina Maisano.

Tania Fabela, Master in Nutrition.  It has been estimated that 30-40% of all cancers can be prevented by lifestyle, physical activity and dietary measures alone.  Cancer and cancer treatments may cause side effects related to nutrition.  The side effects of cancer and cancer treatment can effect eating.

Amy J. Sear — “Asian philosophers developed over centuries and across numerous nations and cultures, offer significant benefit to anyone seeking to maximize health and well being.  There are many that are simple and straight forward and that anyone can learn, do, and incorporate into one’s daily life.”  Amy covered excellent topics, such as:  Food, Eating, Sleep, Movement Herbs, Taoism, Yin and Yang Balance, Qi Flow, books and more.

Scott Phillips, Patient Navigator for Oncology, Heritage Hospital Cancer Center.  “The main function of a Patient Navigator is to guide patients through the health care system.  When a patient encounters a ‘barrier’ to getting quality health care, the Patient Navigator  is there to help remove that obstacle and assist the patient with finding the resources necessary to overcome it.  A Patient Navigator can be a nurse, a social worker, another health care professional or a non-professional who has been trained to provide Patient Navigator services.”

I realize that this Blog is off the beaten track and is a whole lot of information.  However, the Lotus Survival Foundation is doing such an awesome job in assisting those in need, those who are suffering as well as survivors.  I urge you to go to their website and see for yourselves what the Foundation is all about.  If you want additional information on the various speakers, please e-mail me at susan@pinkribbongift.com.

There is another wonderful site which is fabulous and worth checking out:  www.talkabouthealth.com.  (1) Meet others just like you (they match you with peers and experts); (2) Learn from experienced peers (answers and live chats with the right people); (3) Share  your experiences (helping others by sharing your knowledge).

www.HelpYouHealCoaching.com–A Coach helps people find their inner strength to reach their full potential, even in the most adverse situations.

www.pinkribbongift.com–Pink Ribbon Gift has some wonderful gifts for patients, survivors, family, caregivers and actually anyone.  We donate a percentage of our gross sales to various breast cancer research organizations.

Last month I started a dialogue about Ovarian Cancer and this month I would like to continue along those lines.  Why?  Ever since Theresa and I started Pink Ribbon Associates, LLC, two and a half years ago, people have been asking us ‘why only breast cancer’?  And the answer was easy–because we both had breast cancer and it’s easy to write about something you know.  However, now that I am getting my certification as a Professional Cancer Coach, I have to learn about all different types of cancers and because Ovarian Cancer is so prevalent among women and because it is so difficult to diagnose, I am taking this opportunity to inform you, my readers, as well as myself.

Picking up from last month:

Preparing for your initial doctor visit:

Write down any symptoms you’re experiencing; write down key personal information; make a list of all medications; ask someone to go with you so that you don’t misinterpret anything; and, write down any and all questions you want to ask.

Questions you may want to ask your doctor:

• What can the cause of my symptoms be?
• What kinds of tests do I need?
• What types of treatments are available and what are the possible side effects?
• What do you feel is the best course of action?
• What is my prognosis?
• Are there any restrictions that I need to follow?
• Should I see a specialist?  What will it cost?  What will my insurance cover?
• Are there any brochures or other printed material that I can take with me?  What websites would you recommend?

If Ovarian Cancer is your diagnosis, you will need coping skills and support:

• Know what to expect. Find out everything you want to know about Ovarian Cancer – such as type, stage, treatment options and side effects.
• Be proactive. Talk to your doctor, family and people you rely on for support how you want to approach decision making.  For example, some women prefer to get all the information and make treatment-related decisions for themselves.  Others would rather have the feedback from others before making decisions.  And some women like to blend these two approaches.
• Find someone to talk to.  Find a friend or family member with whom you feel comfortable discussing your feelings.  You may also find the concern and understanding of a formal support group or other cancer survivors to be helpful.  It may help to talk with others who have already been through the challenges you’re facing.
• Let people help — they want to help!
• Set reasonable goals. Having goals helps you feel in control and can give you a sense of purpose.  Reach for attainable goals–don’t set yourself up fail.
• Take time for yourself.  Eat well, relax, get a massage, get enough rest–all of these things can help combat stress and fatigue.  Cut back on time commitments and plan ahead.

Loretta Schatz said, “Awareness of ovarian cancer can save lives and lack of awareness really does kill.”  Schatz knows what she’s talking about.  She’s seen it happen, and it might easily have happened to her.  The symptoms discussed last month are not definitive and can easily be attributed to many other causes.  According to Schatz, “There is no definitive test for early detection.”  That’s why approximately two-thirds of the women diagnosed with ovarian cancer lose their lives to it.  This three-time cancer survivor does not like those numbers and has embarked on a crusade for change–a change that can happen only when more cases are diagnosed in the early stages.

“Women have to take care of themselves,” according to Schatz.  Especially Jewish women, because ovarian cancer, like breast cancer, is a Jewish (Ashkenazi) disease with the presence of  BRCA1 and/or BECA2 gene mutations among significant risk factors.  Women past 50 are also at higher risk.

“Listen to your body; do not ignore symptoms and don’t take no for an answer,” says Schatz.  “If you have symptoms and/or family history insist on tests, including a CA-125 blood test and an ultrasound.”

For more information, contact the Ovarian Cancer Research Fund at 800-873-9569 or visit www.ocrf.org.

As you know, my focus up to now has been on Breast Cancer because I am a Breast Cancer Survivor.  But what about other cancers, like Ovarian Cancer, which doesn’t get anywhere near the amount of publicity as Breast Cancer?  I went online, did some research, and was fortunate to meet a wonderful woman who was diagnosed with Stage IIIC Ovarian Cancer in 2000.  Before I tell  you her story, I want to share some information I found online, mostly on the MayoClinic.com website.

“Ovarian cancer is a type of cancer that begins in the ovaries.  Women have two ovaries, one on each side of the uterus.  The ovaries–each about the size of an almond–produce eggs as well as the hormones estrogen, progesterone and testosterone.  Ovarian cancer often goes undetected until it has spread within the pelvis and abdomen.  At this late stage ovarian cancer is difficult to treat and is often fatal.  Ovarian cancer treatments are available.  Researchers are studying ways to improve ovarian cancer treatment and looking into ways to detect ovarian cancer at an earlier stage–when a cure is more likely”.

Some of the signs and symptoms of ovarian cancer may include:

• Abdominal pressure, fullness, swelling or bloating
• Pelvic discomfort or pain
• Persistent indigestion, gas or nausea
• Changes in bowel habits, such as constipation
• Changes in bladder habits, including a frequent need to urinate
• Loss of appetite or quickly feeling full
• Increased abdominal girth or clothes fitting tighter around the waist
• A persistent lack of energy
• Low back pain

From what I have read, there are three types of ovarian cancer:

• Cancer that begins in the cells on the outside of the ovaries
• Cancer that begins in the egg-producing cells
• Cancer that begins in the hormone-producing cells

And the risk factors are as follows:

• Inherited gene mutations
• Family history of ovarian cancer
• A previous cancer diagnosis
• Getting older
• Never having been pregnant
• Hormone replacement therapy for menopause

At this point I want to tell you about Loretta, who I met with two days ago–and although she may disagree with me, and despite a broken wrist–she has a positive attitude, a sense of humor and is very easy to talk to.  Loretta was first diagnosed in 2000 with Stage IIIC ovarian cancer.  Her symptoms were bloating, weight gain, pain in the pit of her stomach, discomfort around her shoulders and a drop of blood.  Her doctor did vaginal ultrasound and then sent her to Jefferson University Hospital for a pelvic ultrasound.  After that, she was advised to see an oncologist immediately.  And in December 2000, Loretta had surgery, followed by 6 rounds of chemotherapy.

Loretta had to get blood work every 3 months and two and and a half  years later, her blood count went up.  She had no symptoms.  Her doctor ordered a Pet Scan and a lymph node under her right arm was found, so more surgery and more chemo.

After another year and a half, Loretta’s count went up again and another Pet Scan was ordered and another lymph node was found again under her arm.  This time Loretta had surgery and opted out of having chemo.

In 2007, Loretta had another Pet Scan and they found a tumor in her clavicle.  She endured another surgery and this time had radiation.

It’s now 2011 and Loretta is still here, looking wonderful and when I asked her about attitude, her response was “Attitude gets you through the day”.  I have to say that she is an amazing women who is working very hard at helping other women with this disease and raising funds for the Sandy Rollman Ovarian Cancer Foundation, which was created in honor of a 33-year-old woman who died of the disease eight years ago, because ovarian cancer research “is very poorly funded”.  Loretta urges women to have annual rectal and vaginal pelvic examinations.  She organizes seminars and rallies.  “And I do a lot of preaching,” she says.

“Listen to your body; do not ignore symptoms and don’t take no for an answer,” says Loretta.  “If you have symptoms and/or family history insist on tests, including a CA-125 blood test and an ultrasound”.

For more information contact the Ovarian Cancer Research Fund at 1-800-873-9569 or go to www.ocrf.org.

For information on finding a Cancer Coach, please visit www.HelpYouHealCoaching.com

And if you are looking for a gift for Mother’s Day or a gift for someone who just needs to know that you care, please visit www.pinkribbongift.com

I bet you’re wondering why this post is about Neuropathy?  I wonder how many of you reading this post have neuropathy?  And who is suffering with pain, numbness and other symptoms?  Are you getting any treatment?

According to the American Cancer Society, “chemotherapy-induced (chemo-induced) peripheral neuropathy may be called CIPN for short.  CIPN is a set of symptoms caused by damage to the nerves that are further away from the brain and spinal cord.  These distant nerves are called peripheral nerves. They carry sensations (feeling) to the brain and control the movement of our arms and legs.  They also control bladder and bowel, though these nerves are affected less often.  Chemo-induced peripheral neuropathy can be a disabling side effect of cancer treatment and is caused by some of the chemotherapy drugs used to treat cancer”.

Do you have any of the following symptoms of CIPN?

• Pain
• Burning
• Tingling (“pins and needles” feeling)
• Loss of feeling (numbness or just less ability to sense pressure, touch, heat or cold)
• Trouble using your fingers to pick up or drop things
• Balance problems
• Trouble with tripping or stumbling while walking

In case you haven’t figured it out yet, I am writing about this because I have chronic CIPN in my left foot, which has caused nerve damage and hammer toes (don’t you just love that name?)  and has spread up my leg.  The pain is, at times, unbearable so I’m not only on pain medication but also see a neurologist/holistic health practitioner three times a week.  The National Cancer Institute has a very informative and interesting article entitled Chemotherapy-induced Peripheral Neuropathy.

Here’s some of what I’ve personally learned:

1. Medication/Therapy – As soon as you feel pain, tingling or numbness of your foot/feet/hands after a chemotherapy session, inform your oncologist immediately.  Why?  Because he/she will know how to treat it, whether by prescribing pain medication or over the counter non steroidal anti-inflammatory (NSAID) medications, ordering physical therapy, or just helping you cope with the discomfort.
2. Maintain a Healthy and Balanced Diet -  We should be eating a diet rich in fruits and vegetables, since these foods can provide a rich source of fiber and if you are on pain medications, as I am, constipation is a major problem.
3. Avoid Extreme Temperatures – Extreme temperatures such as hot and cold can be harmful to the nerves and tissues within the hands and patients may inadvertently suffer from burns or frostbite upon exposure to extreme hot or cold. Chemocare.com recommends that patients suffering from neuropathy protect themselves by wearing gloves and other warm clothing in cool weather.  These protections cannot reverse existing nerve damage, however, caution can act as a preventative treatment against further neuropathy.  I actually use some of our aromatherapy animals, which can be microwaved or put in the freezer. I even have three favorites that can each be found at www.pinkribbongift.com.  Be sure to visit for more comforting ideas…

Comfy Critters “Hot Diggity Dog”,

Comfy Critters “Casey  Cozy Cat” and

“Spa Girl” Water Bottle

Additional treatments for neuropathy;

• Seeing a pain management specialist, usually a neurologist
• Going to a holistic health practitioner
• Using meditation to relax
• Of course, exercise.

I hope that you have found this informative and that, for those of you who suffer from neuropathy, you have found new ways to cope with this debilitating problem.

Another Informative Tidbit;

Have any of you heard of the Lotus Survival Foundation? The Lotus Survival Foundation was founded to provide education and access to resources meant to assist those who have been affected by, or are concerned about Breast Cancer. The LSF’s provides support through education and group healing retreats.  We believe that all three elements of mind, body and soul are crucial to holistic health and well-being.

I’m so excited to have been chosen as one of the Key Note Speakers at the Mind, Body & Soul Retreat from May 22 through May 26, 2011 . I’ll be speaking about the effects of Breast Cancer on the mind and the body. I will provide more information as it becomes available.  My material is also featured on my coaching site at Help You Heal Coaching.  Check it out if you can’t join me at the Retreat!

As most of you know I am a Certified Cancer Coach and have the following certifications: (CPC) Certified Professional Coach; (CEC) Certified Empowerment Coach; and (Eli-MP) Energy Leadership Index-Master Practitioner.  I graduated from IPEC, which stands for the Institute for Professional Excellence in Coaching.  I am a two-time cancer survivor and I am a Professional Cancer Coach from NAPCC, National Association of Professional Cancer Coaches.  I am trained in cancer nutrition, holistic cancer therapies, pain management, chemotherapy, radiation and surgical protocols.  As a Cancer Coach, I am able to advise the patient of all their options for treatment, medical and holistic.  One the most important things I do is provide emotional care and support and if it is geographically feasible, I am available to patients who specifically request that a Cancer Coach act with them or on their behalf during a visit with their oncologist, or during a diagnostic or treatment procedure.  I also provide the knowledge to my patients that I have walked in their shoes and have gone through surgery, chemotherapy and radiation.  Please feel free to check out my website at www.helpyouhealcoacbing.com.

When someone you care about is struck by cancer, you feel that no card or bouquet of flowers will express your heartfelt good wishes.  Gifts are given to show appreciation, express love, celebrate a new beginning, recognize an achievement, mark a passage, bring a smile and say “I care”.  Whether a friend, colleague, loved one or acquaintance, Pink Ribbon Associates offers a wide-range of unique “comfort” gifts for those suffering the effects of cancer, as well as “special gifts” for the family members, caregivers and friends.  A few examples would be

Think Pink Blanket

Think Pink Tote Bag

Tri-Tone Inspirational Bracelet

Lee Roy, the Lavender Pig

Plaque-Never Never Never Give Up

The journey through cancer can feel very lonely, even when surrounded by loved ones.  The smallest gesture gave me strength and confirmed that people really were pulling for and thinking of me during that awful time.  Theresa and I hand select each and every gift with the recipient in mind and hopes to create a special moment when each special present is opened.  Some of the gifts offered on our site are beautiful hand made jewelry, glassware, candles, inspirational plaques and magnets, as well as stationery, books and journals.  We also carry a large assortment of aromatherapy products.  There is something in every price range, but bringing a smile and a little peace of mind to anyone suffering is priceless.  Please visit our  website at www.pinkribbongift.com

Until next month . . .