The Adaptive Mama

TMI #One

2018-05-01T15:44:00.000-04:00

My 2003 Chevrolet has decided to bite the dust. Again. Last time, a local dealer said it needed a motor. I nearly wept. With 233,000+ miles, I highly doubt that our friends @Chevy make ‘em as good as ol Bessie. This go round, she croaked on Scott on the way home from work.

He was able to nurse the old girl home in 2^nd gear. She made it, but barely. He thinks it’s the transmission. Our son Brandon, thinks it’s possibly solenoids in/on the transmission. At this point, we can only hope and pray that it isn’t terminal.

Of course, she only acts up when there is another major bill due. Like you know, tuition. Of course last time it nearly died, it was two weeks before Christmas and 3 weeks before spring tuition was due. When is summer tuition due, you ask? Only in 8 days.

It is the curse of the Thorpes’ and how it normally works in racing. If it’s gonna break down or tear up, it normally does the day before Scott leaves to go out of town. Semantics, two days before he goes out of town. Regardless, we are down to one wore out vehicle.

I know, go buy a new one. Have you met me? I’m probably one of the most frugal accountants you’ll ever meet. I like to plan a purchase and hunt the best price. 80% of our furniture is either 2^nd hand or given to us. I don’t thrift, I just don’t like to shop. And I especially abhor car shopping.

Note: We did recently purchase our eldest a brand spanking new 2018 Rav4. Her previous car was about dead and it too only broke down when Dad was out of town. Since she is an extremely motivated student and has Zell plus other scholarships and works multiple part time gigs, we decided to go ahead and purchase new. Plus a Toyota. She has aspirations of grad school and to become an orthopedic physician’s assistant. I wanted to purchase a car that she could get 10 solid years out of.

My car philosophy is buy lightly used and drive until they are dead. Wring all the goody out of them, and then get some more. I’ve only bought two vehicles since I graduated from college, not counting the Rav4. Occasionally, when we are going through a breakdown, I get pissed and look. Then I get even madder at Detroit. Have you seen those car prices? Outrageous.

But just in case an overly generous person is reading and feels sorry for me, I want a Tahoe, preferably with a heated steering wheel for my arthritic hands. Heated seats are pretty standard these days and a backup camera for my achy shoulders.

What I really really, really really want.

Weather or Not?

2018-04-23T11:38:00.002-04:00

Does the weather get your rheum all in a twist? I must say between the psycho Georgia weather and pollen, my rheum has been majorly confused and flaring big time. Having lived in Georgia 98% of my life, I can say without one doubt, the change in weather DOES affect my allergies and rheumatoid disease.

I’ve had doctors and other health care people tell me the weather doesn’t affect rheumatoid and flares at all. My current rheumy agrees that weather changes can cause pain and discomfort. Per website Everyday Health, weather is one of seven triggers of a flare.

Fellow Rheum sufferer and writer, Ashley Boynes-Shuck has written several books and blog posts about rheum and noted on WebMD that she also experiences flares as the seasons change. I follow her on twitter and she has a lot of information that is great for new rheum patients.

This past weekend, I wanted to replant vegetable seedlings. The crazy Georgia weather report showed a slight cold front and a lot of rain starting on Sunday afternoon. Yes, I got all of my baby vegetable plants repotted and safely stored on the front porch out of the rain. I consider my future garden a great method of exercise.

With the rain and wind blowing in, I began to stiffen up. I knew it was coming and spent the remainder of the day in my warm fuzzy pants and t-shirt, wrapped in a blanket. I should have broken out with the electric blanket and probably will before the day is over.

Does the weather affect your flares? If so, do you notice the change more from hot to cold or cold to warm? For me, it’s basically any change from season to season. Even barometric pressure changes can cause me to flare. Hurricane season is fun too.

What do you do for your flares? Personally, I like heat. I’ll use heating pads, electric blankets and sometimes put my favorite blanket in the dryer to get it warm. Even in the summer, I will use a hand warmer at work when the air condition is too cold.

The weather is going to be nasty the rest of the week. At my rheumy’s suggestion, I’m going to add to more moderate stretching and some walking to keep my muscles limbered up. Hopefully we will have warmer weather and no rain soon. Until then, I’m going to try my best to stay warm and get this flare under control.

Vitamins and Supplements for Autoimmune Issues

2018-04-13T11:50:00.000-04:00

Sometimes we just never k now. Is it an infection, it is viral, did the meds cause it? Normally I can tell when a bad day is coming. They kind of predict themselves, ya know?

I woke up about 3:30 am with the yucks. I had mouth sores this week and they were much worse. Were they meds related or viral? I tried to make the day at work, but it just wasn’t going to happen. I spend the day in the bed alternating a cold rag, zophran and Excedrin migraine. Gargling with warm salty water helped the mouth sores, but they are still aggravating the snot out of me.

Just another day in the rheum life, right? If I had to guess, I’m saying viral. With two school kids in the house, I get exposed to my fair share of germs. I’m very diligent about hand washing but I’m not one of those sanitizer freaks. It’s not unusual for me to catch a bug every now and then.

About a year ago, I began to take vitamins more seriously. I take a multivitamin dosage each day. I also alternate extra vitamin D and calcium as well as daily vitamin C. Unfortunately my skin is to the point that sun exposure is painful, so I felt that the extra vitamin C was important. The plus side, I’ve had noticeably less colds this year.

My rheumy is great about the vitamins and agrees that the extra D and calcium have improved my blood work. I’ve historically had very low vitamin D as well as low iron. I don’t like to take iron, so I try to eat scrambled eggs and spinach about twice per week cooked in an iron skillet. That seems to be working as well. The iron is lower than the Doc would like, but not to the point of supplements.

So what do you guys do? How do you try to keep the virus and other germ caused illnesses at bay? Do you use supplements to help keep you well? And do you take these year round or only in the winter more germy months?

Alot Has Changed

2018-04-10T12:39:00.000-04:00

In the past four years a lot has gone on in the Thorpe family. We’ve moved two more times. The hubs resumed his NASCAR career. DD1 has graduated from high school and is a freshman in college. DD2 will be a senior this next year. The bonus baby is a teenager. Oh. My. Word.

Sadly, my rheumatoid disease has also continued to evolve. It has progressed and not in a positive way. I have a GREAT rheumy doc. He is determined to get me back to my baseline. I have hopes that he can.

A bad flare back in September (thanks to my friend Stress) sent me to the ER. The Enbrel that has given me so much relief doesn’t seem to be cutting the mustard. I still take methotrexate and Satan’s tic tacs when I have to. I religiously take vitamins and almost made it through the horrific flu season unscathed.

After enduring many sleepless nights or sleeping upright in a recliner, I finally schedule an appointment with an orthopedic shoulder specialist. You don’t realize how much that slight inward roll of your shoulder means until you can’t do it. Especially if you are right handed and it’s the right shoulder. Ouch!!

I got to the point that lifting my arm up and over to brush my hair was impossible. Buttoning my pants became an Olympic jumping sport. Yes, there should be videos. And most possibly the most humiliating, was fastening a bra. OK, at that point you gotta go to the doctor.

At the ripe age of 48, I need a total shoulder replacement. Then I watched the video. Nope. Nope & no freaking way. They cut your arm off. Ahhhhhhh. I’m still wigging out.

At least the doctor and I agreed that we needed to attempt to kick this can down the road. Most TSR only last 15 years. Which could mean I could possibly endure three of em in my life time. I’m just not ready for all that. Plus the healing time of 8 to 10 weeks, coming completely off ALL my meds, and the risk of infection led me to hope for other options.

The good Doctor ruled out therapy, noting that it would likely make the shoulder worse. We opted to begin treatment with a shot into the joint. It did provide more motion and flexibility. But not being the brightest thing, I’ve tried to overdo it quite a bit. Hard to make up that 6 months of slacking.

It’s been two weeks since the shot. It is still painful to sleep on my side and I have spent a few nights in the recliner. I revisit the good Doc in two weeks. If this doesn’t produce enough relief, we will try to scope it next and clean it out a little bit.

I still don’t understand we can’t squirt some spray foam up in there. That would provide some cushion and be a whole lot cheaper.

My daughter will soon be Fifteen

2013-11-25T09:50:00.000-05:00

Or the Post known as…Oh, no…we are going to have to buy another vehicle!!

Yes, she is counting the days. And it doesn’t help me AT ALL that a few of her friends (and daughters of my heart) have already turned 15 and have given her that learner’s license fever. It is sooo bad that she wants to skip school the morning of her birthday and go get her learners. I told her this is Dad’s department, not mine.

Of course she is about batty because the chance of him being nearby is almost zilch. I bet I can get her roomed cleaned with this one!! With all of this turning 15 talk comes the “I’ll be 16 and what kind of car am I getting?” questions.

Not only am I a mean parent, I am a cheap one too. So my answer of “Whatever is in the drive way and available that day” apparently is not the desired response. She was hoping to hear “Avalanche, or a pick up truck, or a Mercedes…” I’m like “ummmm if anybody gets a cool new(er) ride, it will be ME!!”

Apparently I’m also a selfish parent. Not that our decision is final…Mimi could always win the lottery and buy her a new car. However, right now, our decision is Mommy will get something new(er) and the Suburban (aka…The Tank #2) will become the teenager car. Because it is big. And it doesn’t go race car fast.

My parents did not buy me a new car. I drove a Volkswagen bug one year older than myself when I turned 16 (1968, no clutch, no air…I still love bugs!). I also was taken down to Cotton States Insurance office and introduced to Mr. Earl Ford and told to write the man a check for my insurance.

Oh…that’s right I had a Jay Oh Bee slinging burgers out the drive thru at the old Hardees in Camilla. I also got two fill ups of gas a month at Brooks Texaco. And wasn’t no way I could slip a third tank in because them Brooks brothers were way too tight with my Daddy and would narc me out.

After the old bug died I drive a 1972ish olds…it was gigantuan and pewkish green, fondly referred to by my friends as The Tank. I drove said tank until I graduated from high school. I didn’t get another car until spring of my freshman year in college, it was a Chevrolet cavalier. I HATED that car. I also worked at Wal-Mart and waited tables to make its payments.

Needless to say upon graduation I was simply dying to buy a car…something with air conditioning, a luxury which I had NEVER had in a car. And yes people this was in 1992…NO AIR. As soon as I had been gainfully employed, I went off and bought all by myself a brand spanking new Jeep Cherokee.

It was shiny and red with four wheel drive. It had the coldest air I’ve ever had in a vehicle. I loved my red jeep and drove it until our family simply wouldn’t fit into it anymore. (aka: paid for, no payments, maintenance only) It was an awesome little truck that I drove the sheer living daylights out of. I said I would never buy another jeep because there is simply no way I could get another one that good.

So what am I looking at? Well…this will probably be the car that the eldest gets to take off to college. So I want something as new as possible in my price range…which is cheap as possible. Free maybe? I would like something extremely safe. Since a genuine tank is not possible, I am looking at a range of the smaller Car like SUVs. Everything from the Chevy Acadia, Fords, the new VW (it’s so cute) to BMW’s and yes the Mercedes.

Cost is a major factor. I despise car payments. However paying a lump sum of cash isn’t possible for us. So I pretty much want something that can be paid off in 3 years. We are most definitely looking in the “used” category, previously loved, or whatever the dealers are calling it these days.

Fuel mileage is also a major consideration. I can’t imagine having a car that gets 25 plus miles to the gallon. The Suburban is great for hauling a bunch of kids and their stuff…but oh, it kills the pocket book at the gas tank. I would also like something with a 3^rd row seat that at least the 5 of us can fit in if needed.

Here is the kicker…nobody will go car shopping with me. I’m really not all that mean to the salesmen. I just don’t tolerate their BS really well. And I kind of tell them not to bug me, let me look. I have a speech that is very polite.

“I am looking to purchase a vehicle in the next 6 months. I will be buying used. Please do not suggest new. I am determining which make/brand/features that I want and researching the price points. I do not plan to buy a car today. I realize that the model I am currently perusing will be gone slash sold off the lot in the next 30 minutes. Good for you! If you pester me I will leave. I won’t come back.”

Now, is that really so bad? I know y’all can’t wait to hear the updates…I will probably really start looking about once a month after Christmas. I mean…I have a WHOLE year to look, right?

What’s she is getting!! (Unless anyone cares to donate that Avalanche...call me about this time next year!!)

First Cookie of His Season…Snickerdoodle

2013-11-12T12:38:00.001-05:00

I first started Christmas baking as a way to share with family and friends. I was a part-time stay home Mom and graduate student. Our funds were kind of tight, so gifts for coworkers and friends were going to be homemade.

I don’t remember where I spotted the BHG Christmas cookie magazine, but I’m pretty sure it was standing in line at Ingles or Wal-Mart. On a whim I purchased the magazine and decided that I could make those pretty cookies. How difficult could it be? I was a chemistry whiz until politely asked to not return to class. In my defense, I did warn my lab partners to stand back... this might cause a flame. Since baking is essentially a chemical reaction of ingredients to heat, I figured I could do it.

I bought some buddah, and shuggar and eggs…that was in 2001 and I am still baking. There have been years when I didn’t bake at all. The years when I baked just enough for a few friends and families. And, years when I baked up enough for my family, your family and a few electrical co-ops.

Accounting can make the holidays really suck. If you are an accountant with a December year end and audit then you get my drift. And, you might should have started baking a few weeks ago. FYI: If you are an accountant and your holidays aren’t awful then I want some of what you are taking. Or you are either the boss or the underling. Somewhere in the middle is the poor accountant who hasn’t done their Christmas shopping and might remind you of Scrooge. She might also say things like, we aren't having Christmas this year and I am NOT putting up a tree.

I digress; lets get back to the baking. This is the first Christmas in 8 years that I haven’t been full time employed. And maybe that is why I haven’t felt the urgency to bake until now. Suddenly, the cold weather is up here and I need to smell some vanilla and cinnamon. And I’m sure the girls would love to start their sampling.

First Batch of Christmas Cookies: Snickerdoodles

While the oven warms, I thought I would share this simple snickerdoodle recipe. It is the first that I tried way back in the day. It is simple, very quick and would make a great cookie to bake with children.

Ingredients:

½ cup butter (room temperature)

1 cup of sugar
¼ teaspoon baking soda
¼ teaspoon cream of tartar
1 egg
½ teaspoon vanilla
Slight pinch of nutmeg or pumpkin spice
1 ½ cups of All Purpose flour
2 tablespoons sugar
1 teaspoon ground cinnamon

Step one: Beat butter with an electric mixer on medium for 30 seconds. ( I use my pampered chef mixing bowl with lid.) Add 1 cup of sugar, baking soda and cream of tartar. Beat until combined while scraping down the side of the bowl. Beat in egg and vanilla.

Add slight pinch of nutmeg or pumpkin spice. (This is Less than a ¼ of a ¼ of teaspoon…you won’t be able to see it in the mixed dough. It adds a hint of flavor!) Mix well then add flour ½ cup at a time. Keep the sides of the bowl scraped down in between adding flour. Mix only until combined well. Do not over mix…it will make your cookies tough. Refrigerate dough for one hour.

While my dough is chilling, I like to wash up all of my measuring cups and spoons. Then I plan whatever dough to mix up next!

Step two: Once chilled, add two tablespoons of sugar and the teaspoon of cinnamon in a small flat bowl. Or, use a paper plate! Shape dough into 1 inch balls and roll in the sugar cinnamon mixture. Place on an Ungreased cookie sheet. (NOTE: I use parchment paper…it is the secret to great cookies and less mess!)

Step three: Bake at 375 degrees oven for 10 to 11 minutes or until edges are golden brown. Transfer to a wire rack to cool. Will yield about 36 cookies. Once cooled, pack in a sealed container and freeze. Separate layers of cookies with wax paper. The snickerdoodle freezes very well for up to 8-10 weeks which makes it the perfect first cookie of Christmas baking.

Baking hint: How well do you know your oven? If it bakes “hot” reduce baking time. Also use a timer. For Every batch! I use the timer built into the stove. Most microwaves have a timer also…so you don’t have to go out and buy one.

I NEED to be Baking

2013-11-06T15:49:00.001-05:00

Really…like I should be mixing up some cookie dough right now. But I have nowhere to put my beautiful creations. That’s right; my cookies are purty to me! And since I don’t have a freezer up here in the trailer hood, I’m pondering what to do.

Do I buy a used freezer or find an economical new one? I really can’t afford a new upright and the chest type is difficult for my 1 ½ arm self. The upright back in Camilla is old and very heavy. It also have been moved several times. From Jasper to Winder, from Winder to Mimi’s and then over to the 285. The hubby is concerned about moving it again with all the bouncing and jostling around.

Of course, he votes for a brand new freezer. And I, being frugal, would rather buy used. (Keep the cheap comments to yourself.) Chest type freezers are much less expensive than uprights. Of course, I also know that I need to think about the long term rather than just being cheap. It’s not like my mobility is going to magically improve. Can’t you just see the girls come skipping in off the bus to find me upside down IN the freezer? Well I can!

In the mean time, the month of November is marching on and quickly at that. I need to get the bowls out and the mixer going. I’ve got to bake myself into the Christmas spirit. I need to hear some Martina McBride Christmas CD (which has gone missing, again!) It is the most awesome CD of classic Christmas songs with some of my favorites such as O Holy Night! Sigh.

Guess I can get in this little freezer and try to arrange things and make me some room. Maybe I can get a container or two of cookies in there while I think through this expenditure. First up is the classic snicker doodle with my top secret ingredient. Y’all want pictures and the recipe?

The Frustration of Chronic Illness

2013-11-04T12:31:00.002-05:00

There should be some type of meetings for us to go to. Hi, my name is Rebecca and I lied 18 times today. No I’m not jesting or poking fun at AA. Many of us with chronic illness display the same people pleasing issues that addicts have.

Don’t believe me? Go ahead…ask me how I’m doing. I dare you. My answer is going to be something like this “pretty good…doing fine” or ‘Oh, I’m getting along…” and I’m going to leave it at that. I mean, do you really want to know?

My right wrist is permanently fused. Thank God my fingers still move. Most days it hurts like hell. I’ve already decided that if I lose use of my fingers that I’m good with amputation, especially if that mitigates the pain. It hurts to type, wash dishes and feed myself. I’ve learned to do just about EVERYTHING with my left hand. Yes, EVERYTHING, infer accordingly. Well except cut with a knife, my knife skills are horrific and will probably one day lead to an ER visit.

Do you wanna hear that my left knee crunches and crackles like rice crispies? Or that after standing up to wash dishes and load the dish washer or put on a load of clothes my feet swell and become numb. That I’m only good for about one hour of chores in the morning and another hour in the afternoon? That buying groceries exhausts me and by the end of the trip to the store I’m shuffling about and dragging my swollen aching feet.

Swollen foot...developing another nodule.

Or, do you want to hear about the fatigue? That feeling of being bone tired and utterly exhausted but knowing that you still have to get up and get the kids to school or fix dinner after a long day at work. Or maybe you want to know about the burning dry eyes, dry skin and how difficult it can be just to swallow food. How you sometimes eat soup because it’s EASY and not because you are on the soup diet.

Oh you wanna talk about diet…why don’t you take some of these little Satan’s tic tacs…prednisone. You will bloat up like a bull frog. But later, when RA ravages all your systems, you start wasting away.

Or maybe you’d like to hear about the pharmaceutical side effects? My hair fell out on 2 of the 3 drugs I tried. Methotrexate made me so nauseated, it was way worse than being preggers with a yager hangover. Now THAT is nauseated. The Aleve that I currently use to manage the daily inflammation is eating up my stomach. I try to remember to take a prevacid each evening and keep a bottle of Tums next to my bed. It seems that the drugs are almost as bad as the disease itself.

I could keep this up for quite a few more paragraphs…but if you read this far then you are getting my drift. Four out of Seven days a week, I feel like shit. Is that what you want to hear? The truth smacks and doesn't make for polite Wal-Mart/grocery store conversation.

What can you do for your friends that may have Lupus, RAD, Reynaud’s, Sjorjens or Psoriatic Arthritis? If you notice me or them having trouble lifting a cup (yep, the old coffee cup can sometimes be too heavy to lift) offer to help. If you notice your friend, sister, mother/father looks tired don’t offer to help or ask about a meal. Just show up…sweep, vacuum or load the dish washer. Pay for someone to clean their house. Drop off a pot of soup or frozen casserole. Believe me any help will be appreciated.

Please understand that if you see one of us out somewhere with family or friends, they are making a TREMENDOUS effort to be there. Just because they are out and about doesn't mean it won't cost them later.

Yeah…I was a little worked up when I wrote this. It is so hard to get other people to understand the pain, the debilitation, and the life sucking of a chronic disease. But I ain’t taking none of it back…it’s the truth. And if you can’t handle it, then please just walk away and don’t ask…because today I feel like shit…and I’ve got a softball awards banquet tonight that I don’t intend to miss. So I’m off to find my prednisone and aleve. Gonna chase it with some Benadryl, put up swollen foot and rest.

The Soup Edition

2013-10-29T13:58:00.001-04:00

In between billing and posting loads today, I am simmering a pot of taco soup. The weather isn’t that cold…yet. However, I am making it to take over to Scott’s Mother and Step Dad. His mom had a pacemaker put in Saturday. She is doing really well, but still should be taking it easier than what she is.

And bless her English soul, she loves any kind of soup. At her and Grandpa Dave’s ages (80 plus), they don’t do a lot of cooking and eat a lot of Campbell's out of the can. I told Scott to give her a choice of two of three soups: Potato soup, taco soup or vegetable soup. They chose Taco and Potato.

Taco soup is sooo easy…and I probably never make it the same way twice. The ingredients are simple and this time of year most people have them on hand.

Ingredients:

1 lb Ground meat browned (venison, beef, pork, turkey…your choice)

½ cup diced onion (for us RAD folks, pic sweet sells them already diced or buy fresh from produce dept)
Combine with:
1 can tomatoes with chili’s
1 can diced tomatoes
1 can stewed tomatoes
1 can black beans
1 can red beans
1 can corn
2 tablespoons of taco seasoning (homemade)
2 tablespoons of ranch seasoning (or one packet)

I don’t do this at home like most folks would. I add the can of tomatoes with chilies to the browned meat and onions. Then add one half can of black beans, one half can of red beans and drained can of corn. Blend remaining beans and can of stewed tomatoes in blender and add to soup pot. Then add the final can of tomatoes. I also add about two cans of water rinsing out the tomato cans.

Add the taco and ranch seasonings, stirring well. Allow the soup to simmer. The longer it cooks, the better it is. Now if you like soupier taco soup, add an additional can of petite diced tomatoes or a can of beef broth. I prefer tomatoes. If it is “too” spicy, reduce the taco seasoning. In other words, cook it to you and your family’s taste!

Other than the pain of opening cans (Santa please bring me an electric can opener…my wrists will be so grateful!) and the onion chopping, this is very easy to throw together. My girls like it served with grated cheese, sour cream and tortilla chips. It is also wonderful with some Granny Fussell Egg bread.

I am going to put the cooled soup in two medium sized containers in the freezer. This way, Grandma Peggy can take out just the portion that she and Grandpa Dave need for one meal. This is also very easy to double for a crowd or if you want to fill up that freezer for the busy Basketball season!

Up next…Potatoe soup: It is wonderful too!

The Work Rut

2013-10-21T00:22:00.000-04:00

I guess for some of us, the work rut is just a habit. A really bad habit that we fall --- no plunge into head first. The trucking had been very busy for nearly four months and guess what feel to the wayside while it was so busy. You got it, my health.

Now if this was the first time, or the second time, I allowed…yes willingly allowed, my work schedule to dictate my health I could say, “oh, my bad…” But for me, this is just the same old rut…the one I very comfortably go back to. I work like a dog and run myself ragged looking after the kids and everybody BUT MYSELF.

Well, guess what? As usual, it has caught up with me. The loads starting slowing down and as usual, I started fretting. Oh, my gosh…no loads! What will we do? And as usual, eventually during praying (more like talking to God) I finally got the message. He must think I am so dense. Duh…maybe the work has slowed down because I need to slow down.

It was like a smack right between the eyeballs. Yes, I did partially quit my full time job to help Scott with the business. But mostly, I quit to have more time to REST and to invest the rest of my time into my children and family. A decision made after many long arduous hours of prayer.

Since I didn’t have as many loads to bill, this Sunday afternoon the girls and I went to the park. The park that has a playground, walking trails, four super nice basketball goals, soccer fields, softball fields…and only about 3 miles from the house. Maddie, Carlee and I shot hoops while AnnaB played her heart out on the monkey bars.

Well, I shagged balls while Maddie and Carlee worked on shooting drills. The weather was cool and we enjoyed just getting out. We are planning to go back today weather and homework permitting. And I’m looking forward to my one-armed woman ball shagging date with my girls!

If I won the Lottery

2013-10-16T14:55:00.000-04:00

The joke use to be, if I won the lottery I was building a gym for the girls’ former school…a big gym, with air conditioning and some nice soft seats with a mezzanine. However I’ve since had a change of heart. No Gym. I’m gonna build my baby school…

Reality is if Mama won the lottery nobody would know…until the crushed ice machine was installed…that would be my dead giveaway. After paying some bills, buying a really large (used, I know always cheap) diesel motor home, I would give a lot to charity. Then I wondered what charities? Then later that day I watched a 27 minute video about the amazing Dr. Ben Carson.

And then I decided…I would build a school. That’s right, an LD school, South of Macon. It is amazing at the resources that are available north of Macon, especially if you have deep pockets. But nowhere in the rural south is there a Bedford school for children who learn differently.

Click here to learn about Bedford….http://www.thebedfordschool.org/

So if money and budget weren’t an object or I had the money in the bank, how would I do this? So I thought some more. I would partner with an existing independent, preferably parochial school. Wouldn’t it be wonderful to have an LD school on the same campus with an existing school? A school within a school…

The students would get the best of both worlds…an established campus and infrastructure along with a learning environment specifically designed to assist with their learning.

I would build a separate wing with 8-10 classrooms. The classrooms, much like the ones at Bedford would have state of the art technology and be very organized. The teachers would be trained just for LD kids and the curriculum and daily schedule would reinforce methods that will allow them to succeed.

Class size would be limited to somewhere between 6-10 kids per class and would have grades K5 through 9^th grade. The goal: to equip students to enter high school with the background and skills to be successful while also provide services to transition through high school and on to post secondary education.

Would this be expensive? Most certainly. Bedford is about 17G a year. But in south Georgia this education could be offered much more economically. And y’all know I’ve crunched the numbers. Let’s say that typical private education tuition averages 5 grand per year with a targeted enrollment of 15 per class. That class would generate 60,000 in revenue to cover teacher pay and overhead. This is revenue per student NOT cost per student.

If half that enrollment would be optical for a LD classroom, say 8 students, then an LD school class would need to generate $7500 revenue per student. Compare that to 17,000 per student. Now look around. Would a school with this type of student population be able to draw full enrollment for K5-9^th grade? That is a total of 80 students.

I would have happily either commuted or relocated to this type of school had this been an option for my child. Now I want to know are there 79 more parents and students that are would do the same?

And I also want to know where is a school that has a heart for LD kids and a vision to offer this very needed service in South Georgia?

Very sadly and very regrettably, I have realized that my child could have had that Bedford education…and had it near her family and friends. I didn’t crunch the numbers…the cost is actually small, the tuition even though more than the average independent school in South Georgia is still attainable for many families with LD students.

For less than a million bucks we could have a Bedford South. If you are interested in building this dream, if you have a vision of an alternative other than moving your entire family or if you have that million (or a few hundred thousand), please let me know. I’d come back for that.

Sniff sniff…I smell Fall

2013-09-25T11:57:00.000-04:00

For those of us who love to bake, especially during the holidays, Christmas will be here before we know it. Now some folks look forward to the shopping, decorating and parties. Not me. Nope, I look forward to all the grocery stores setting up the baking display. Like a moth to a flame, I start circling as soon as the poor employees break out with the center baking isle at the Wal-Mart.

I’ve already declared I would bake this year. I started Christmas baking when we bought our first house in Jasper as a way to have inexpensive but delicious gifts for neighbors, coworkers family and friends. I taught myself to bake with the really good ingredients, buttah and high fat chocolate. Once I returned to full time work, baking became my therapy. I was meant and determined to bake myself into the holiday spirit.

As an accountant, the worst part of the year is from November through March. Really it starts in October…and just ruins any Christmas cheer you attempt to conjure up. The worse work was, the more I baked. One particular year, our ENTIRE freezer was completely full of cookies.

I have no clue how many dozens or flavors I baked. I just know I baked and baked and baked. And sang Martina McBride’s Christmas cd for hours…late into the night. I don’t recall if I ever developed the full blown Christmas spirit…but I my coworkers can testify to a tasty Christmas!!

Unfortunately, my love for baking and my RAD tend to contradict one another. I’ve always used a hand held mixer to mix cookie dough. This past Christmas I baked about half my usual repertoire due to not physically being able to use the mixer. Unless my right wrist experiences its own Christmas miracle, this might be the last year I can bake solo. (The wrist has completely knitted together and gives me fits. Some days I’d literally like to gnaw it off, but the sight of blood makes me faint.)

Y’all know I got a game plan…I’m gonna bake. But I’ve got a few obstacles to overcome. First, I don’t have an upright freezer up here. So I’ve got to either find a very economically priced freezer or bring up the older very heavy one from home. Then I need to figure out how I’m going do so much chopping with my left hand. (Send band aides…I’m gonna need ‘em.) Lastly, I’ve gotta get a way to play Martina McBride Christmas favorites cd while I bake. Perhaps I need a trip to the pawn shop for an early Christmas present to me…an iPod!!

Task number one is going to write down all the recipes…that’s right. I’m going to make me a booklet of all my favorite Christmas cookie recipes. I would like to make up a mini recipe book with the 30 plus Christmas recipes along with some of my Granny Fussell’s most famous. Hopefully I will be able to figure how to do this and sell it through pay pal or Amazon.

Task number two is to make my baking list: a guesstimate of all the folks I would like to gift some of my baby Jesus Joy to. And lastly task number three is my baking budget…It may amuse a few folks but I do budget this into my Christmas and holiday expenditures…right along with gifts, decorations, extra gasoline and donations.

I’m tremendously looking forward to this season of holidays and ready to spend extra time with my family and friends. So I better get to baking…only 91 days until Jesus birthday!!

Homemade BBQ Sauce

2013-05-20T14:51:00.000-04:00

In preparation of not being about to do a whole lot of cooking over the next few weeks, I finally got my big behind in gear and starting doing a little freezer cooking. Yesterday evening after a whirlwind trip to the big Dawg city, I cooked about 4 pounds of ground critter in the crock pot (your choice…sometimes it’s deer, turkey or cow). This time I drained it and then seasoned with my homemade taco seasoning and one can of chili tomatoes.

Two gallon size bags are now in the freezer holding about 1 ½ pounds of cooked taco meat each. The rest is in a container in the fridge for tonight’s dinner. Smart me!! In discussing what else we would like this week, HC2 declared she wanted some BBQ meat.

This translates into a Boston butt (pork roast) in the crock pot, which I’d already told y’all about once before. She was in luck as we had one in the big freezer. It is now nearly done in the big crock pot. Sadly, I am completely out of BBQ sauce.

This put me on a mission to find a 98% homemade sauce recipe. I hunted around on pinterest but most sauces were ketchup based. Fortunately, being born Baptist and liking to eat, I have a lot of church cookbooks. I flipped through a few of these cookbooks and found one to serve as my “guide”. I know this could be dangerous.

The base of this sauce is conned tomato sauce. I wanted to make enough to use for our dinner and baste the roast. I think I will have plenty since I nearly quadrupled the recipe.

1 large can of tomato sauce

1 cup brown sugar
¾ cup of vinegar
4 or 5 Tbsp. of brown spicy mustard
2 Tbsp. of dehydrated onion
1 Tbsp. of paprika
½ tsp. of garlic salt/seasoning
½ tsp. of cayenne pepper
Pinch of salt and dash of black pepper (maybe two)

Once the ingredients all “melted” including the brown mustard, I let it come to a gentle boil then reduce the heat. It is not a thick sauce. If you like it thicker, maybe add a little cornstarch or simmer longer.

This is a sweet n tangy sauce. You can definitely taste the mustard and hint of garlic. I would like it a bit hotter but don’t think that would go over too well with the kiddos. Keep on tasting until you get it the way you want it. For now, since I haven’t recycled an old ketchup bottle, I have poured it into an old cheese canister.

Preparing to go Low Carb/Kind of Gluten Free

2013-05-16T11:07:00.001-04:00

The past couple of weeks, as suggestions by family and a few forum friends, I have been researching gluten and its effects on the autoimmune system. Wow!! Who knew? It has amazed me at how much I have learned not only about RAD, but about the whole spectrum of autoimmune diseases including celiac disease.

There is a ton of information out there and I have read so much that my head hurts…pun intended my migraine friends. I can’t recall all of the data, but the gist of it is today’s modified wheat is much higher in gluten than what our grand and great grandparents ate. This could be leading to an increase in the many people whose bodies respond in a negative way to gluten.

And by gluten I don’t just mean white bread. The stuff is everywhere…cookies, cream soup, gravy mixes. It is truly difficult to comprehend how much gluten is in the foods we buy and consume each day. I am very overwhelmed and have been for about a week.

It is difficult to determine where to start. Weight watchers has been working for me until I went back on prednisone for a week. I think it would be possible to low carb/less gluten using the weight watchers plan. I’m still researching this part so I will get back with you on this.

I’ve read part of the blond chick from The View, Elisabeth Hasselbeck's journey to a celiac diagnosis. It is heartbreaking at how she suffered and amazing at how she has overcome its debilitating effects. It does give me hope that through the right combination of meds, diet and exercise that I can recoup some former quality of my life.

My goal isn’t to run marathons or swim the English Channel. I simply want to get back to a point of feeling well with enough energy to accomplish each day’s events. So please bear with me as I start to eliminate all this wheat. I’m pretty sure my family won’t enjoy this and it won’t be easy. I’d certainly appreciate your prayers and support.

Furniture List for Craig’s List or Thrift Stores

2013-05-15T09:34:00.002-04:00

Since I’ve given up on traditional furniture shopping, I’ve decided to post my list that I will be looking for online and at thrift stores in the next few months.

1. Dining room table with six chairs…need a really good sized table and would like a table big enough for 8 chairs.

2. Sleeper sofa or sectional with a sleeper…gotta have extra room for Mimi and Poppy. Although she claims the camper will be her “guest” house!

3. Two full size loft beds…yes my beloved and a friend will build these. We also need two desks, two chests and one large mirror for the “prettiest” child. Her words, not mine. For the first time the two teens will be sharing a room. Extra prayers for me!

4. We are debating the benefits of a bunk bed/trundle bed or raised bed with storage for one child. She can’t make up her mind other than she wants pink, purple and zebra!! Won’t that be bright!

5. Of course, a big concern is a washer and dryer. Ours are pushing 8 years old. They have been a great set and have done tons of laundry. I found a local place that sells last year models and reconditioned sets for a great price. I’m budgeting for a “like” new set of uprights. I’m crossing my fingers and hoping for a red set. I also want an upright freezer.

Per Mr. Germ-phobic, I will break down and budget for all new mattresses. I thought my idea of blow up mattresses was excellent…no way the kids could hide stuff under their beds. Looks like I’m getting vetoed on that as well.

There are a few kitchen things we will pack, but it’s not going to be an all-out packing marathon. The girls and I are looking forward to plundering the excellent thrift stores in and around Athens. We are blessed to have my Mother’s retirement camper to stay in while we assemble our furniture. It is certainly making the move less stressful for me.

Lava Cake

2013-05-14T13:50:00.000-04:00

So simple, but oh so yummy. I first had this at a Pampered chef party. I didn’t actually go to the party, but I was able to enjoy the leftovers in the company break room. By far, for those of us with chocolate addiction issues…or those who take horrific meds like prednisone every day, this is a quick easy way to get a fix.

The ingredients are basic and simple: One box of your choice of chocolate cake mix plus ingredients to mix it up and once can of chocolate frosting. Please folks…don’t all rush to Harvey’s or Wal-Mart right now…y’all cause a traffic jam!

Mix up the cake according to the directions. Pour into a greased or sprayed ceramic or stone baking dish. Dot the mix with the can of frosting. Cook in microwave for 12-14 minutes.

Important Note: Watch your microwave and try to use a dish that will spin. If you bake ware is too large to spin, then take out the dish and rotate it half way through the cook time. My microwave cooks “hot”. So my cake was done after about 12 minutes.

I baked my lava cake in my PC beautiful red stoneware baking dish. I’d had it for several years and NOT ever used it. Shame on me. After a wash with hot water, it was baptized by chocolate lava. And boy was it awesome with a scoop of vanilla ice cream.

The best part of this dessert, not only is it easy it’s so quick!! I can see this being a big hit during the summer for cookouts. It would also be easy for camping since I used a whisk to mix and not an electric mixer. The only thing that could have made this better would have been a sprinkle of some toasted pecans!!

We Will Just Sit on the Floor

2013-05-13T23:43:00.000-04:00

Our impending move is almost here. I suddenly realized, duh…we must have some additional furniture. Our plans are to be back and forth between both houses. When we are home, we will still need beds, pots and pans and something to sit on.

So Mimi, Maddie and I went to Albany to look around. My original game plan was to find some of the basics used on Craig’s list; table, sofa, dressers, etc. My husband, the nicey nice germ-phobic, went all “yuck” on me. I’m like OK, I’ll go look at new stuff. Besides, most of what we have is old or hand me downs. It would be wonderful to have brand spanking new “adult” furniture.

Or so I thought. Boy did I get my feelings hurt. Since when did the price of furniture nearly double? Mattresses, most especially, have gone up since we last purchased one new nearly 7 years ago. And for the record, I have great taste. Or at least the price tags that I had the nerve to flip over said I had great taste.

I’ve never been a dress to impress, drive to impress or “house” to impress type of person. I am more of a good quality, long lasting purchaser. I’ve never bought much into any type of trendy stuff. My style has definitely evolved into sturdy stable Southern Living without all the flowers. By the time we had hit the fourth furniture store, my “style” had reverted back to garage sale and I was ready to go home.

I had a list, and really just wanted to get an idea of how much new stuff cost as opposed to used. However, between the wallet shock and my joints screaming in pain, I think returning to plan A is our best option. So it’s back to Craig’s list perusing for high quality furnishing from those trendy folks that like to redo. Not only will that help me stick to my “budget”, my knees will love me for it too!

BWI...Go Ahead, Write Me a Ticket

2013-05-07T11:10:00.000-04:00

I am guilty...for blogging while sick. Wonder if that ticket is more than a tail light ticket? Hmmmm. I rightly don't know. I do know that whatever bug/infection I came down with Sunday night is kicking my behind. And that is the joy of RAD...

I felt great Sunday afternoon. Watched part of the rain soaked Talladega race, rested from a busy Saturday and had lunch with the family. But by the time the race restarted I could tell something was a little off. No I don't mean the darkness in Talladega...although I will hopefully get a racing post up sometime this week over at backroads blog.

It started off as a headache and quickly went down hill. I've run low grade fever for 2 plus days. The fun part: I can't tell if I have a sinus infections, something viral or just having one of those yucky RAD days.

But it doesn't really matter what the underlying cause. What matters right now is that my kitchen is a wreck, the laundry needs rolling over and I need to make a trip to the school to see my "guidance" counselor Mrs. Grace about my middle child. Plus Scott has errands that need running. So I am up, sipping coffee and trying to chase away this mental fog with caffeine and ibuprofen.

My brain says get to moving and my body is saying "Nope, I wanna go back to bed." Unfortunately for these old creaky joints, the brain is probably gonna win this one.

Today's Doctor Visit

2013-05-03T22:58:00.002-04:00

Confused, Annoyed and Frustrated

Granted most folks don’t enjoy going to the doctor. I came very close to canceling this appointment as I had a list of other things that I could have done. Talladega, 8^th grade community service project, laundry…well you get my drift, just about anything beats a trip to a medical professional!

Since appointments are hard to reschedule with my doctor I decided to go ahead, spend the $20 bucks on gas and create another medical bill. This was my first visit since starting the biologic cimzia. And since I hadn’t been on any type of DMARD for about four months, I’ve noticed a good bit of inflammation and pain in several (or most) of my large joints.

My current doctor is really young, like maybe 12. Not really, but isn’t it weird when you finally start to get older than the doctors? I wanted to ask for his driver’s license or school ID. He is very thorough and seems to at least take more interest in my overall well-being than the previous doctor.

However, when I went through my current state of RAD…severe pain in knees, hips, lower back, shoulders and wrist, his response kind of put me off. He said that the resulting pain was not from the RAD inflammation but due to osteo damage. Duh…what? I was a bit confused. He said if I had insurance, he would send me for physical therapy and maybe injections in the knees. I was thinking more like can’t you do some X-rays and check for damage first?

Apparently I haven’t been exercising enough either. I have orders to walk 10 minutes a day. EVERYDAY. And, he said not to sit for more than 15-20 minutes at a time, which isn’t a problem unless you are driving somewhere. Maybe he and my hubby are conspiring against me to get all that laundry caught up.

He also recommended that I start water aerobics/swimming when possible. I will definitely be joining the swim place as soon as we get relocated. Aleve for pain, prednisone as needed and continue the cimzia to give it more time to work on the RAD.

All of this cost $88 bucks and two hours of my time. Maybe I am just being an impatient patient. But I want to feel better. NOW. RIGHT NOW. Is that so wrong?????

Yes, this is a whiny post…hoping my fellow RAD rheumies can give me some advice and my well friends will hunt me down and gently kick me in the rear!

UPDATE: Homemade Laundry Detergent

2013-05-01T10:55:00.000-04:00

Or How to Make $108 Per Hour

Just made the 2nd batch...again it took much longer to assemble my antique food processor than to mix it all together. I am staying with the same "recipe" for right now. The clothes appear to be clean and smell fine, so I'm not going to change anything up.

The 2nd best news: I still have enough washing soda and borax for at least two more makings, effectively reducing the cost per batch to really cheap. I originally bought the washing soda, borax and two bars of soap from Walmart.

The washing soda was about $3.50, borax $5.00 plus each bar of soap was $.94. I will have four makings out of this for a total cost of about $3 per batch. That is 12 weeks of laundry or $4 per month vs my normal expenditure of $13 per on detergent alone.

So even though I'm only saving $9 per month, that equals $108 per year. At five minutes for batch, that is one hour per year of my time. I only wished that I made $108 per hour back in my working days.

Menu Planning for May

2013-04-30T11:47:00.003-04:00

I’m trying really hard to plan ahead for the next three weeks of May. After you quit laughing, please keep reading. I have been so diligent these past two months, trying new recipes seeking something different to add to our favorite standbys. I’ve had a few hits and quite a few misses.

I can’t be the only person that gets tired of cooking the same thing, over and over. I keep trying to tell my three little darlings, we can try something new. I promise not to poison any of you. Just keep trying.

Tonight’s requests: spaghetti from one, taco night from another. Again? It’s just not happening. I may revert to another old main stay of the Thorpe house, little (as in mini) hamburger steaks with homemade mashed potatoes and green beans. But for the rest of the month, I am going to find at least one more ground beef recipe to try and one more crock pot recipe.

What to do with this?????

The only way for us to stay out of the drive through is to work on that meal plan. We are well known at the Dairy Queen. I guess it is a good thing that my crowd has never met a cow they didn’t like. They love hamburgers. We do grill a lot this time of year but right now I’m looking for “inside” recipes.

So if you have any suggestions or a family favorite that doesn’t involve hamburger helper, please send it on. Preferably really quick while I’ve got out this calendar!

The hated Chore of Grocery Shopping

2013-04-29T11:16:00.001-04:00

Am I the only one that detests grocery shopping? I don’t think it’s just the RAD even though lifting cases of water and jugs of milk can be painful. Partly I don’t like spending the money and then having to unload the stuff, generally by myself, and finally put it all away.

Last week, I managed to stay out of any large grocery store except for one small trip Wednesday. I wouldn’t have gone then had I not needed one item to complete our meal. Sigh. I did a pretty good job of using what we had in the large freezer and the pantry.

But this week I had to go. And I went alone. Of course most of what I needed was for Scott. I hate for him to have to work all weekend on the trucks and trailers and then have to do his own grocery shopping for the truck. Plus, I probably spend less than he does and buy him healthier stuff. Except the Oreos, I caved on the real, name brand Nabisco Oreos.

I don’t count the specific items I buy for Scott for the truck in my budget. The poor fellow has to eat, right? I would like to be able to save a little more and cut our weekly grocery budget down to about $50/60 per week without extreme couponing and eat healthy. Is that asking too much?

I had hoped that by planning menus and shopping wisely, I would be able to avert the dreaded weekly shopping trip. That’s all good, but unfortunately, none of my “help” plans to eat next week. So I had to lift all the heavy items and load them in the bus myself. Then, unload it all by myself. Do you have ungrateful little grocery eaters at your house too?

I am continuing to adjust our budget to reflect one income. Of course, next to housing and utilities, food tends to be the next largest expense for us. So, how do you buy groceries? Especially my fellow autoimmune sufferers…do you go once per month and stock up on everything?

Do you go once a week because you like to escape? Scott use to accuse me of that when the girls were very little. Do you use a menu plan to save money? I'm open to suggestions. Got to get those dollars and our budget tighter!

And it's a Hit

2013-04-25T09:38:00.001-04:00

     It wasn’t my intention to instantly please the picky eater. On this one, I just got lucky. In moving around stuff in my big freezer, I found a sirloin roast. I thought hmmm, haven’t had a roast with onions and carrots in a long time. And this is something that can cook while I do other stuff…namely my new admin duties for CST.

    I decided to drag out my electric skillet. It is a marvelous gadget that currently resides in the camper. It is versatile and great for warming up spaghetti sauce or taco meat at the lake or for cooking Sunday breakfast. It is sold at Wally world and we use ours a lot.

This is about as simple and easy as it can get. It doesn’t take long to assemble and get back to your to do list. So gather up a couple bags of carrots, an onion, and one can of cream of mushroom soup, and your choice of seasoning. Preheat the skillet to about 250 and lightly spray or add a couple tablespoons of olive oil. If you have never used an electric skillet, the heat will cycle so don’t freak if it seems to turn itself off.

I normally chop the onion and lay it around the roast. While the roast begins to cook, I wash, peel and slice carrots. Rheum tip: I will probably buy the mini bagged ones next go round. My wrist was worn out after chopping two bags of carrots. Also, if you can't chop, most larger grocery stores carry the chopped fresh onions.

Once the roast has cooked for an hour or so, I added the can of cream of mushroom soup and a can of water. (I have been using my own cream of soup mix. However, I had a few cans in my pantry that I need to use.) Whisk around the soup and it will eventually thicken and make gravy. Then add the carrots, cover and go roll over your laundry.

I let the roast cook on a low temperature until the carrots are done. This is great served with mashed potatoes or rice and leseur peas.

Spiritual Consequences

2013-04-24T11:57:00.001-04:00

I am convinced that every Monday morning while planning his week, God, Jesus, the Holy Spirit and St Pete all discuss what sermons are needed in which congregations for the next Sunday. While They are having this discussing, God points out to Pete that I, Rebecca Newton Thorpe, need a certain message. During this time my Pastor is busy in his study, reading the Word and meditating on his next sermon. He then receives a knee mail strait from God who lays on his heart what we all need to hear that particular week.

Now that might be a bit simple minded for some of you, but please consider that I am the source. You also need to know that I truly believe that each message we hear on Sunday is special and sent to each of us straight from above.

This past Sunday, I opened up my bulletin and my head probably spun around. Bam, He got me again. The title, “Why do bad things happen to good people?” Of course, there had been a lot of bad in our world lately, but this spoke to me on a really personal level. With my diagnosis of RAD, I’ve never said “why me?”. I pretty much know that if not for grace, it could be a whole lot worse, especially if I got what I deserved.

I see my RAD as a consequence of making a very poor decision and not having the faith to trust that if God told me to do something, that He would also handle all the details.

The school year of 2009-2010 was a very bad one for our middle child. I was basically an absent parent, having chosen my job over parenting and my health. Of course, I felt that I had no other choice. Or at least this is what I rationalized in my mind. Wrong. We have choices.

In August of 2009, my workload increased significantly right along with the start of the new school year. I was working so hard and such long hours that I didn’t get the depth of how my child was struggling. Pretty bad for a parent to admit, huh?

In November of that school year, Scott and I visited The Bedford School in Fairburn, GA open house for summer school camp. It was a wonderful school specifically for LD kids. I knew in my heart that she really needed to attend school there. After a great deal of prayer and more work related hardships, in May of 2010 God said quit. So I wrote my letter of resignation and rode it around on the dash of my car for two or three weeks.

I simply didn’t have the faith to do it and financial fear paralyzed me. Seven months later, in January of 2011, I had what was my first flare of RAD. Of course I had no clue what was going on. It took about two months to get diagnosed and two years and 3 months later here I am, crackling and popping with every step.

I am not angry at God. I am very annoyed at myself for lots of reasons. But through a lot of prayer and meditation I realize that forward is the only way to go. I can’t undo a bad decision that I made nor can I change the results. I can take it for what it is, give it all over to God and go the way He directs.

Cimzia Update

2013-04-23T08:55:00.001-04:00

I was the dart board like recipient of my 3^rd round of injections this past Sunday. My mother is still getting way too much pleasure out of these injections. I may have to find another nurse! My injections were running one week behind due to finishing up some taxes. This last go around, I didn’t have any major symptoms, just felt really yuck and tired. The headache didn’t show up until later in the evening. This morning, I’m still tired but up trying to check a few to do’s off my list.

The only symptom benefit thus far has been a reduction of the sjogrens: less dry mouth and not having to use the eye drops daily. I am supposed to take injections every two weeks. I can assure you that stretching that out to three weeks was too far. By the end of the 3^rd week, the sjogrens symptoms had retuned. At this point, I can’t say that the RAD pain has lessened any.

So I went to the discussion boards, reading up on this biologic. There don’t seem to be as many people taking it. And it does appear to take several months, 4-6 by some accounts, to get noticeable relief. And most people are taking it in conjunction with other medications such as methotrexate. Which makes me shudder just to type. MTX was a horrible treatment for me.

I am still using the white knuckle approach to the pain. However, the inflammation has become “system” wide and now I think it’s time to call the doctor and get some type of steroid kick. Have I mentioned that I’m not fond of steroids? Mainly the weight gain, but I get extra cranky when on them for an extended time.

So some more research later I found that many patients routinely will take a 3-5 day course of prednisone starting with a 30 mg punch, then 20, and finally 10. Or even starting with a higher dose and stepping down over the 5 days. These patients are stating that a shorter course of prednisone is enough to give a 3-4 week relief from their current flair. The benefit is NOT taking prednisone at a lower dose for an extended time.

In the meantime, I’ve decided to add walking a few days a week and light weight lifting on the opposite days. Light, as in 15 minute walks and maybe 10 minutes of weights and so far so good.