The Fab Life of a Young Divabetic

JDRF Walk 2006 NASARA'S STARS

noreply@blogger.com (shelbee) — Thu, 08 May 2008 02:18:00 +0000

Nasara's Stars in front of the Capital at the JDRF finish line.

We will miss you guys this year, but will see you in 2009

noreply@blogger.com (shelbee) — Sun, 04 May 2008 02:41:00 +0000

Nasara's Stars will not be walking this year, but our prayers and hopes are with everyone who is walking. This event deserves the same coverage as any other walk that occurs. May we continue to pray for GOD to restore any cell in anyone's body that is not working as HE created it work. GOD BLESS everyone.

Strength through weakness

noreply@blogger.com (shelbee) — Wed, 30 Apr 2008 11:58:00 +0000

Hello All,

The other day when it was time for a site change, Nasara took the indwelling unit out of her hip and she must have hit a vain or something. She started crying and shaking as the blood flowed like a fountain. It took me a few minutes of continued pressure and ice to stop the flow. That has never happened before. She will be on a pump holiday for a little while. I wonder if she hit a vain or was the tube embedded in her muscle? So be careful all. God is good - she is be-bobbing around with her signature beautiful smile - blessing others. Peace and Blessings.

Something that makes you say, HHHMMMM

noreply@blogger.com (shelbee) — Tue, 08 Apr 2008 02:59:00 +0000

Did you know that there is data that links the onset of Juvenile Diabetes to vaccinations? Neither did I, until I came across an article re: Dr. Classen, CEO of Classen Immunotherapies, Inc. WOW - mind blowing. I am ready to push up my sleeves. Our children need the same advocacy and media attention as autism - it is my understanding that the root of the problem - the conditions our children have are the same - What do you think? Much more to come - I even think that it has hindered my daughters reading and math skills, since she was diagnosed so early - at the age when a child's brain is developing certain skills. HMM.......

Advice Letter - This is how we are multifaceted

noreply@blogger.com (shelbee) — Tue, 25 Mar 2008 00:58:00 +0000

Hi Michelle,

My name is Shelbee Williams and my 9 year old daughter Nasara was diagnosed at 2 - she has been pumping for 2 years also - Cozmo. In any event, when (recently) went to the hospital to have my son, I contacted another type 1 family from her school, who (GOD bless them) to assist my parents with the care of my daughter. I did have somewhat of an advantage, because they were a prior daycare parents of mine (I opened a daycare for children with special needs when my daughter was diagnosed), who agreed to help. It was a blessing, because they were in the neighborhood next to mine.

Even though she is on the pump, during my labor, her blood sugar got out of control and my parents were a nervous wreck - at the same time - they wanted to be at the hospital with me and my husband. So, prior to them arriving at the hospital, I contacted my friends grandmother and my parents and daughters met and got everything under control. (There was a big bubble in the tubing). It was actually funny from my end (of course in retrospect), because I am in the hospital bed, breathing through contractions while providing diabetes management on my cell phone (that was losing power). When my doctor came to see me he said, oh diabetes clinic - smiling. I was suppose to have natural child birth, but unfortunately I had to have a C-section - my last child and a C-section - But GOD is GOOD - he is beautiful - his name is Zion Paul.

Sorry, I am probably getting long winded - try the school clinic to meet other diabetic families and ask if someone may be able to assist. I realize that you may not know these people, but we all have kindred spirits in the condition that has been placed on us. Stay Strong.

Nasara 1 month after diagnosis - HER STORY

noreply@blogger.com (shelbee) — Fri, 21 Mar 2008 14:10:00 +0000

My name is Shelbee Williams and I am the mother of a 9 year old Type 1 (insulin dependent) diabetic daughter who has been given a GOD inspired invention that would benefit Type 1 & Type 2 diabetics and I have been praying and searching for an angel investor to bring this concept to reality.

To be continued.

She still won't eat

noreply@blogger.com (shelbee) — Sat, 15 Mar 2008 02:59:00 +0000

Today,

Low, low and low - but not hungry?????? Although she did tell me that she is beginning to tell when she is high - she said that her legs shake. When she is low her hands shake. She has not felt like herself today - she said she thinks she is feeling her body adjusting to the new target rate the Endo put her on. GOD has got you my suga buga.

Peace and Blessings, Shelbee

She is not hungry

noreply@blogger.com (shelbee) — Fri, 14 Mar 2008 02:27:00 +0000

Hello,

For the last two days, after we corrected the time issue on the pump, she has not been hungry. She has either been right on target or a little low. What to do when they wont eat?

Peace and Blessings, Shelbee

Pump Problems - Smith to the rescue

noreply@blogger.com (shelbee) — Thu, 13 Mar 2008 03:28:00 +0000

Hello Everyone,

Just wanted to share our drama with the Cozmo not working and having to get a replacement with a cozmonitor sent to us. I must say this was the first time that it took longer than I expected. Smith medical is usually very good in getting items sent out in time. Nasara (naturally) had to go back to the syringe therapy (6 shots per day & Lantus) while we waited. Finally after 4 days we received the new Cozmo, but they failed to put in the cozmonitor -another 5 days go by. My only issue was we were penalized for their mistake. They sent the pump via fedex, but sent the cozmonitor (that they left out of the box) by regular ground. Not a smart move. In any event, she is back on her pump, but we after 2 days of lows I realized that the time was wrong on the pump, which thoroughly messed up her basal delivery. When my husband had the info downloaded from the computer to the pump, we forgot to check the time - it is an option you have to check so it goes automatically with the time on the computer - if you do not check that area - the clock on the pump will be inaccurate - SO BEWARE.
WHEW - everything is back to "normal". Peace and Blessings, Shelbee

A Prayer for a Day

noreply@blogger.com (shelbee) — Sun, 02 Mar 2008 14:07:00 +0000

Hello Everyone,

I wanted to share this prayer that Nasara expressed to me for ALL Diabetics, - "Mommy wouldn't it be nice, if GOD gave all diabetics HIS Powers for a day - HIS Power would make our pancreas work and that way we could eat whatever we wanted (without gaining weight) and then the next day we could go back." I pray that one day soon, it will be just like that. Stay encouraged everyone and remember GOD loves you.

Today

noreply@blogger.com (shelbee) — Sat, 16 Feb 2008 01:13:00 +0000

Good Evening,

Today I received what I call, "a wink from GOD", when the substitute clinic room aide at my daughters school gave me a compliment. She complimented me on my constant care of my daughters diabetic needs. I had to bring her some new test strips - and I was making the aide aware of not having to worry about Nasara - that I always made her lunch and I put the carb amount in the bag. And that Nasara could pretty much handle the rest. She was surprised, because she does not see often enough, parents that are so on top of their diabetic child's needs. I said, that it was hard for me to believe, knowing just how critical their care is - and it REQUIRES constant management. Their care must be aggressive in order to prevent any complications down the line. It was all SO worth it to me. I often am humbled by the responsibility that GOD has placed on me - to care for HIS child. Anyway, I thought I would share. GOD BLESS EVERYONE

Off the cuff

noreply@blogger.com (shelbee) — Fri, 01 Feb 2008 14:27:00 +0000

I am venting this morning - the following issues I would like to address - eventually

1. overnight air bubble in tubing - that causes high blood sugar all night - potentially DKA

2. cracks in the pump

3. too much tubing

4. advocacy at school - I PREVAILED!

5. she does not check her blood sugar on time, not without reminders - HUH

6. she forgets to bolus

7. educating others about how the blood sugar affects behavior

OK - I feel better - OH- those dreaded used test strips

WOW

noreply@blogger.com (shelbee) — Fri, 18 Jan 2008 16:42:00 +0000

This morning I was driving Nasara to school - there was a 2 hour delay because of snow and she said - oh, we were going over what she was going to select for lunch. I make her lunch M-Th and let her buy on Friday - sometime because of the pizza bagel - in any event, lately she said that the pizza bagel was heavy so we opt for the fruit salad with pretzel and sorbet - so I asked her if that is what she wanted - and she said to my amazement - "mommy, you know, I noticed that when I eat a lower carb meal, I have great blood sugar numbers - so I am going to start eating more low carb meals. WOW - this is a child that I constantly get on to remember to check her blood sugar and everything else.

GOD is amazing - sometimes - no a lot times, I get tired, upset, confused about the 24/7 diabetes management with her - trying to get her to be more responsible - and it seems like - when I feel like giving up - through the mouths of babes. Have a blessed day everyone

Happy New Year

noreply@blogger.com (shelbee) — Fri, 11 Jan 2008 01:59:00 +0000

Hello,

Wow, so much has gone on since the last time I blogged. With the birth of my son, family birthdays, moving my family and the holidays - and I am starting a new business and I have diabetic invention prototype being built for patenting - I Praise God for 2008 - this is the year for New Beginnings - Peace and Increase

Today was a day - Nasara's blood sugar dropped to 39 before lunch - I am pretty sure it was the new insulin - we did a site change this morning. It is so important to learn your child's body to different events or elements - for example - in addition to the new insulin acting faster and stronger - her blood sugar would always drop around 1-2am when she was on Lantus regiment.

Nasara told me she was going to be more responsible and proactive to her diabetic management. YEAH - I pray for the best - I have been trying to make her own it more - not rescuing her so much - and when I do that I feel guilty, but I want her to step up to the plate - when I am around - she does great when I am not. Well, my 9 week old son is waking up. Peace and Blessings, Shelbee

Our New Addition

noreply@blogger.com (shelbee) — Fri, 14 Dec 2007 15:22:00 +0000

Nasara is holding her 5 week old baby brother, Zion Paul. This weekend we are going to Howard University's Diabetes Support Group Christmas Party. We are looking forward to this - to meet other diverse children and their families. I have been prayerful about meeting other families in the area to share with. Have a good weekend.

Welcome

noreply@blogger.com (shelbee) — Tue, 04 Dec 2007 18:12:00 +0000

This was a beautiful day in Ocean City, Maryland. This is Nasara and her cousin Gabriella on the balcony - praising the sunshine. Nasara was actually on a pump holiday for that week - and actually we kept the holiday going into the second week of school - until she said she missed it and was tired of being "stuck". Well, it was such a blessing that she was still on holiday, because Friday, September 14, Nasara was hit by a car on her way to school. God is good in that she did not suffer broken bones, but she was scraped up and bruised up pretty good - but we are SO thankful she did not have on her pump - because it definitely would have been destroyed and added another emergency situation to the accident. Nasara is doing well, she does have some footpain and backpain and is nervous to walking in the street and riding in cars, but she is my Shero - GOD has a mighty purpose for this child.

Godmommie's Love

noreply@blogger.com (Unknown) — Tue, 20 Nov 2007 22:22:00 +0000

Hi Nasara!

I am glad that God chose me to be your Godmommie. You are a beautiful divabetic! Remember it is important to bolus okay. Remember it is Thanksgiving time and remember to check your carbs and everything before you eat. During this Thanksgiving season I thank God for a beautiful, special Goddaughter! Smooches!

Love,

Godmommie

Mom Update

noreply@blogger.com (shelbee) — Sat, 03 Nov 2007 17:20:00 +0000

Well, we are excited - I am in the first stage of labor - YEAH - everything is going well - I just wanted to say how impressed I was with Smith Medical in replacing my daughter's pump. I emailed the company regarding two cracks and they Fedex me a new one the next day. The next time you hear from me I will be a new mother again. Peace and Blessings.

Oh boy - Halloween

noreply@blogger.com (shelbee) — Wed, 31 Oct 2007 19:54:00 +0000

Hello everyone,

May the children have a blessed, safe & fun time today and tonight. Remember for everyone who provides care for Type 1's - SUGAR FREE does not mean CARB FREE - pay attention to the labels - also the different sugar substitutes. Peace and Blessings, Nasara's Mom

What I like to do

noreply@blogger.com (shelbee) — Mon, 29 Oct 2007 15:44:00 +0000

I like to draw, do hair and school. I like to play with my friends and family. I love the outdoors (animals and insects) and swimming. There is so much to do other than watch T.V. This is me and my friend Kiki at Diabetes Day Camp at Bullrun Park in 2005 (I think)

Endo Appt

noreply@blogger.com (shelbee) — Mon, 22 Oct 2007 22:58:00 +0000

We had to reschedule our Endo appointment, but we did get to see our Diabetes Educator - who is a God Send - Celia Henderson, National Children's Medical Center in Washington, DC - we went over numbers and only needed one change. Nasara does have a crack in her pump - so I will call Deltec to get a replacement - prayerfully - it won't be a problem. In any event, we are waiting for the arrival of our baby - I don't know whether it is a boy or girl - I like surprises. Nasara is very excited and has LOTS of LOVE to give. Tomorrow - I have a meeting with an IEP team (for the 3rd time) trying to get an IEP for Nasara - this story has evolved - I will post my letter that has received some important attention - overall - it is so sad that if a parent or guardian of a type 1 child - does not advocate for his or her rights, they would fall through the cracks - this is unacceptable - our children deserve every opportunity and/or access to state or federal programs that will assist them in being successful students - they all are destined for greatness. Peace and Blessings

Mommy's Words

noreply@blogger.com (shelbee) — Fri, 19 Oct 2007 01:26:00 +0000

Help,

My daughter will actually forget to bolus - how is this possible - we have dealing with this for over 7 years now. Does she actually forget - or just wants to ignore it. It is so challenging, because I sympathize with her, but I also have to educate her on the importance of not missing a bolus - or checking her blood sugar when she should. I just continually pray that that GOD will give me the necessary wisdom to raise a happy, healthy child. Tomorrow is Endo day - pray for a good A1c.

Nasara's Words

noreply@blogger.com (shelbee) — Tue, 16 Oct 2007 22:51:00 +0000

When I am low I start to shake, my heart beats fast, I feel dizzy, hunger, weak, and irritable. When I am high I am very thirsty - sometimes my vision gets blurred. Sometimes I get mad because I have it and sometimes I get discouraged. But I am happy to be me. My friends like to learn about it. I had a pump holiday. You get used to pumping. When I start to give myself a shot - I kept doing the same spot. When I check my blood sugar - all my friends crowd around me. Sometimes it is fun and sometimes it is not. So don't be discouraged, if you get a insulin pump (I have a blue Cozmo) it is great because it is so much easier and if you get into a sport you can keep track of your blood sugar.

Pumping Again

noreply@blogger.com (shelbee) — Tue, 16 Oct 2007 13:52:00 +0000

My daughter said she was tired of "sticking" herself and wanted to put her pump back on. She had been on a "pump holiday" since August 11, 2007. Initially, we welcomed the break since we were going to the beach for week and "we" needed the freedom from not having to worry about any potential damage to the pump. But most important - this is only GOD - the second week of school she was hit by a car - GOD is GOOD - she suffered no broken bones - however she did get banged up - and we were so glad she did not have her pump on - because it clearly would have been damaged - and added another element during her initial ER evaluation.

The Fab Life of a Young Divabetic...

noreply@blogger.com (shelbee) — Mon, 15 Oct 2007 23:44:00 +0000

This blog is about change and daily insight into the life of a nine year old, beautiful, African American girl - Nasara. Her name means "to be successful and victorious".

She is changing the face of type 1 - one day at a time.