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	<title>The Life Raft Group</title>
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	<link>https://liferaftgroup.org</link>
	<description>Supporting patients with gastrointestinal stromal tumor &#38; other rare diseases</description>
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		<title>From Patient Registry to a International Scientific Conference</title>
		<link>https://liferaftgroup.org/2026/05/from-patient-registry-to-a-international-scientific-conference/</link>
		
		<dc:creator><![CDATA[Denisse Evans]]></dc:creator>
		<pubDate>Tue, 26 May 2026 13:05:06 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[asco]]></category>
		<category><![CDATA[Denisse Evans]]></category>
		<category><![CDATA[Patient Registry]]></category>
		<category><![CDATA[poster presentation]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60881</guid>

					<description><![CDATA[Our study on NF1-associated gastrointestinal stromal tumors was accepted for presentation at ASCO this year - this milestones highlights the power of patient registries.]]></description>
		
		
		
			</item>
		<item>
		<title>Long-Term GIST Survivors Share Advice</title>
		<link>https://liferaftgroup.org/2026/05/long-term-gist-survivors-share-advice/</link>
		
		<dc:creator><![CDATA[Daniela Saunders]]></dc:creator>
		<pubDate>Tue, 26 May 2026 13:00:12 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Long-Term GIST]]></category>
		<category><![CDATA[Long-Term Survivors]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60787</guid>

					<description><![CDATA[Long-term GIST survivors shared insights on expert care, self-advocacy, and the power of community while living with GIST.]]></description>
		
		
		
			</item>
		<item>
		<title>SPAGN Conference 2026</title>
		<link>https://liferaftgroup.org/2026/05/spagn-conference-2026/</link>
		
		<dc:creator><![CDATA[Tara Ruggiero]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:55:50 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[SPAGN]]></category>
		<category><![CDATA[Tara Ruggiero]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60777</guid>

					<description><![CDATA[The SPAGN Conference 2026 emphasized the power of patient involvement, collaboration, and whole-person care in improving sarcoma treatment and support.]]></description>
		
		
		
			</item>
		<item>
		<title>LRG Athletes for GIST Hit Milestones!</title>
		<link>https://liferaftgroup.org/2026/05/lrg-athletes-for-gist-hit-milestones/</link>
		
		<dc:creator><![CDATA[Egny Mendoza]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:50:32 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Antoinette Pauwels]]></category>
		<category><![CDATA[Jersey City Marathon]]></category>
		<category><![CDATA[LRG Athletes]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60663</guid>

					<description><![CDATA[LRG Athletes Toni Pauwels and Edoardo Leone reached inspiring race milestones while using their journeys to support and raise awareness for the GIST community.]]></description>
		
		
		
			</item>
		<item>
		<title>Adventure in Nashville &#8211; See the Sights &#038; Sounds</title>
		<link>https://liferaftgroup.org/2026/05/nashville-sights-sounds/</link>
		
		<dc:creator><![CDATA[Brianna Enciso]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:45:59 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Life Fest 2026]]></category>
		<category><![CDATA[Nashville]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60785</guid>

					<description><![CDATA[Find adventure in Nashville! Explore the sights and sounds of Music City while you're at Life Fest 2026.]]></description>
		
		
		
			</item>
		<item>
		<title>Life Fest Nashville is Calling You!</title>
		<link>https://liferaftgroup.org/2026/05/life-fest-nasvhille-calling/</link>
		
		<dc:creator><![CDATA[Rebecca Pauley]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:40:10 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Life Fest]]></category>
		<category><![CDATA[Life Fest 2026]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60661</guid>

					<description><![CDATA[Every two years Life Fest brings patients, caregivers, and experts together for a powerful weekend of connection, education, and support. 2026 takes us to Nashville!]]></description>
		
		
		
			</item>
		<item>
		<title>What 19 Years With GIST Has Taught Me</title>
		<link>https://liferaftgroup.org/2026/05/what-19-years-with-gist-has-taught-me/</link>
		
		<dc:creator><![CDATA[Ed Cohen]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:35:46 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Ed Cohen]]></category>
		<category><![CDATA[GIST Survivor]]></category>
		<category><![CDATA[Long-Term Survivors]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60680</guid>

					<description><![CDATA[Ed shares his 19-year survivor journey of resilience, multiple surgeries, evolving treatments with the support of family, expert doctors, and advocacy resources that helped him continue moving forward with hope.]]></description>
		
		
		
			</item>
		<item>
		<title>Miami Precision Biannual Conference</title>
		<link>https://liferaftgroup.org/2026/05/miami-precision-biannual-conference/</link>
		
		<dc:creator><![CDATA[Toni Pauwels]]></dc:creator>
		<pubDate>Tue, 26 May 2026 12:30:50 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Antoinette Pauwels]]></category>
		<category><![CDATA[Miami Precision Biannual Conference]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60657</guid>

					<description><![CDATA[A meaningful reflection on connection, self-advocacy, and the power of community at the Miami Precision Biannual Conference.]]></description>
		
		
		
			</item>
		<item>
		<title>Patient of the Month &#8211; May 2026: Gonzalo Arroyo Ortega</title>
		<link>https://liferaftgroup.org/2026/05/pom-gonzalo-arroyo-ortega/</link>
		
		<dc:creator><![CDATA[LRG Contributor]]></dc:creator>
		<pubDate>Fri, 22 May 2026 18:00:07 +0000</pubDate>
				<category><![CDATA[Member Stories]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Patient of the Month]]></category>
		<category><![CDATA[Gonzalo Arroyo Ortega]]></category>
		<category><![CDATA[member stories]]></category>
		<category><![CDATA[Member Story]]></category>
		<category><![CDATA[patient story]]></category>
		<category><![CDATA[POM]]></category>
		<category><![CDATA[Thriving Together]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60689</guid>

					<description><![CDATA[Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Gonzalo Arroyo Ortega shares her story.]]></description>
		
		
		
			</item>
		<item>
		<title>Open Positions at The Life Raft Group</title>
		<link>https://liferaftgroup.org/2026/05/open-positions-lrg/</link>
		
		<dc:creator><![CDATA[LRG Staff]]></dc:creator>
		<pubDate>Tue, 05 May 2026 19:05:39 +0000</pubDate>
				<category><![CDATA[Hidden]]></category>
		<category><![CDATA[Career]]></category>
		<category><![CDATA[Employment]]></category>
		<category><![CDATA[job openings]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60626</guid>

					<description><![CDATA[Join a mission-driven team working to improve survival and quality of life for people living with GIST and other rare cancers. At the LRG, every role contributes to research, education, advocacy, and patient support that helps ensure no one faces rare disease alone.]]></description>
		
		
		
			</item>
		<item>
		<title>Caregiver of the Month &#8211; April 2026: Gentry Trice</title>
		<link>https://liferaftgroup.org/2026/04/com-gentry-trice/</link>
		
		<dc:creator><![CDATA[LRG Contributor]]></dc:creator>
		<pubDate>Fri, 10 Apr 2026 12:00:07 +0000</pubDate>
				<category><![CDATA[Caregiver of the Month]]></category>
		<category><![CDATA[Member Stories]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Caregiver]]></category>
		<category><![CDATA[Caregiver of the month]]></category>
		<category><![CDATA[Gentry Trice]]></category>
		<category><![CDATA[member stories]]></category>
		<category><![CDATA[Member Story]]></category>
		<category><![CDATA[patient story]]></category>
		<category><![CDATA[Thriving Together]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60424</guid>

					<description><![CDATA[Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Gentry Trice shares her story.]]></description>
		
		
		
			</item>
		<item>
		<title>GIST Summit / GIST Day of Learning 2026</title>
		<link>https://liferaftgroup.org/2026/03/gist-summit-gist-day-of-learning-2026/</link>
		
		<dc:creator><![CDATA[Brian Morello]]></dc:creator>
		<pubDate>Wed, 25 Mar 2026 15:31:05 +0000</pubDate>
				<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[Events]]></category>
		<category><![CDATA[GIST Education]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60398</guid>

					<description><![CDATA[The GIST Summit 2026, held on March 21, at MD Anderson Cancer Center in Houston was a highly successful collaborative event that brought together approximately 125 patients, caregivers, medical professionals, and subject matter experts from across the country.]]></description>
		
		
		
			</item>
		<item>
		<title>Histotripsy: What Patients Need to Know</title>
		<link>https://liferaftgroup.org/2026/03/histotripsy-what-patients-need-to-know/</link>
		
		<dc:creator><![CDATA[Daniela Saunders]]></dc:creator>
		<pubDate>Tue, 24 Mar 2026 14:24:21 +0000</pubDate>
				<category><![CDATA[GIST Education]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60366</guid>

					<description><![CDATA[Let's talk about histotripsy and sarcoma - what is the potential of this new procedure?]]></description>
		
		
		
			</item>
		<item>
		<title>LRG on the Road: Representing the GIST Patient Voice in Texas</title>
		<link>https://liferaftgroup.org/2026/03/representing-the-gist-patient-voice/</link>
		
		<dc:creator><![CDATA[Simran Singh]]></dc:creator>
		<pubDate>Mon, 23 Mar 2026 21:08:17 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60343</guid>

					<description><![CDATA[Simran Singh, Data Mgmt. &amp; Research Manager, traveled to Texas to give a presentation on the LRG and the patient journey to trial investigators at GSK.]]></description>
		
		
		
			</item>
		<item>
		<title>Patient of the Month &#8211; March 2026: Barney Mulvihill</title>
		<link>https://liferaftgroup.org/2026/03/pom-barney-mulvihill/</link>
		
		<dc:creator><![CDATA[LRG Contributor]]></dc:creator>
		<pubDate>Thu, 19 Mar 2026 16:14:07 +0000</pubDate>
				<category><![CDATA[Member Stories]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Patient of the Month]]></category>
		<category><![CDATA[Barney Mulvihill]]></category>
		<category><![CDATA[member stories]]></category>
		<category><![CDATA[Member Story]]></category>
		<category><![CDATA[Patient of the month]]></category>
		<category><![CDATA[patient story]]></category>
		<category><![CDATA[POM]]></category>
		<category><![CDATA[Thriving Together]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60259</guid>

					<description><![CDATA[Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Barney Mulvihill shares his story.]]></description>
		
		
		
			</item>
		<item>
		<title>What does an Expanded Access Program mean for GIST patients?</title>
		<link>https://liferaftgroup.org/2026/03/what-does-an-expanded-access-program-mean-for-gist-patients/</link>
		
		<dc:creator><![CDATA[Simran Singh]]></dc:creator>
		<pubDate>Thu, 05 Mar 2026 19:50:52 +0000</pubDate>
				<category><![CDATA[Clinical Trials]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Newsletter]]></category>
		<category><![CDATA[Compassionate Use]]></category>
		<category><![CDATA[expanded access program]]></category>
		<category><![CDATA[Simran Singh]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60174</guid>

					<description><![CDATA[Pharmaceutical companies may create an Expanded Access Program (sometimes called compassionate use) when a clinical trial is no longer enrolling but the medicine still shows promise.]]></description>
		
		
		
			</item>
		<item>
		<title>LRG &#038; Collaborators Publish New Paper on Adjuvant Imatinib in KIT Exon 9 Mutations</title>
		<link>https://liferaftgroup.org/2026/03/lrg-collaborators-publish-new-paper-on-adjuvant-imatinib-kit-exon-9-mutations/</link>
		
		<dc:creator><![CDATA[Denisse Evans]]></dc:creator>
		<pubDate>Wed, 04 Mar 2026 17:32:24 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Research]]></category>
		<category><![CDATA[Adjuvant Imatinib]]></category>
		<category><![CDATA[Denisse Evans]]></category>
		<category><![CDATA[KIT exon 9 mutations]]></category>
		<category><![CDATA[Patient Registry]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60206</guid>

					<description><![CDATA[Published on February 26, 2026, this international study represents a major collaboration between The Life Raft Group and thirty-five leading cancer centers across the U.S., Europe, and Japan to better understand treatment for gastrointestinal stromal tumors (GIST) with KIT exon 9 mutations.]]></description>
		
		
		
			</item>
		<item>
		<title>The Many Hats of a GIST Caregiver</title>
		<link>https://liferaftgroup.org/2026/02/the-many-hats-of-a-gist-caregiver/</link>
		
		<dc:creator><![CDATA[Rebecca Pauley]]></dc:creator>
		<pubDate>Thu, 19 Feb 2026 18:00:31 +0000</pubDate>
				<category><![CDATA[Caregiver Support]]></category>
		<category><![CDATA[Coping with GIST]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Caregiver]]></category>
		<category><![CDATA[Caregiver Day]]></category>
		<category><![CDATA[caregiver support group]]></category>
		<category><![CDATA[Coping for Caregivers]]></category>
		<category><![CDATA[GIST Mentor Program]]></category>
		<category><![CDATA[Rebecca Pauley]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60134</guid>

					<description><![CDATA[The role of caring for someone you love with sarcoma arrives without training, without a handbook, and usually without a support system. We understand your situation and want to help.]]></description>
		
		
		
			</item>
		<item>
		<title>Patient &#038; Caregiver of the Month &#8211; February 2026: Carolyn &#038; Mark Dewalt</title>
		<link>https://liferaftgroup.org/2026/02/pom-carolyn-mark/</link>
		
		<dc:creator><![CDATA[LRG Contributor]]></dc:creator>
		<pubDate>Fri, 13 Feb 2026 13:00:07 +0000</pubDate>
				<category><![CDATA[Caregiver of the Month]]></category>
		<category><![CDATA[Member Stories]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Patient of the Month]]></category>
		<category><![CDATA[Caregiver of the month]]></category>
		<category><![CDATA[Carolyn Dewalt]]></category>
		<category><![CDATA[COM]]></category>
		<category><![CDATA[Mark Dewalt]]></category>
		<category><![CDATA[member stories]]></category>
		<category><![CDATA[Member Story]]></category>
		<category><![CDATA[Patient of the month]]></category>
		<category><![CDATA[patient story]]></category>
		<category><![CDATA[POM]]></category>
		<category><![CDATA[Thriving Together]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60091</guid>

					<description><![CDATA[Each member has a unique story, but all reflect the intrinsic courage of one facing the challenge of GIST. Carolyn &amp; Mark shares their story.]]></description>
		
		
		
			</item>
		<item>
		<title>World Cancer Day: From Survivor to Supporter</title>
		<link>https://liferaftgroup.org/2026/02/world-cancer-day-from-survivor-to-supporter/</link>
		
		<dc:creator><![CDATA[Rashi Kapoor]]></dc:creator>
		<pubDate>Wed, 04 Feb 2026 14:00:39 +0000</pubDate>
				<category><![CDATA[Advocacy]]></category>
		<category><![CDATA[Global]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[India]]></category>
		<category><![CDATA[International]]></category>
		<category><![CDATA[Rashi Kapoor]]></category>
		<category><![CDATA[Sarcoma]]></category>
		<category><![CDATA[World Cancer Day]]></category>
		<guid isPermaLink="false">https://liferaftgroup.org/?p=60077</guid>

					<description><![CDATA[On World Cancer Day, it is important to remember that cancer care does not end with surgery or chemotherapy - Rashi Kapoor of Sachin Sarcoma shares her thoughts.]]></description>
		
		
		
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