tag:typepad.com,2003:weblog-213654 2011-09-11T18:22:17-04:00 A Layperson Reports on Memory Loss, Alzheimer's & Dementia TypePad TheTangledNeuronhttp://feedburner.google.com tag:typepad.com,2003:post-6a00d83451d58669e2015391849abe970b 2011-09-11T18:22:17-04:00 2011-09-11T18:22:17-04:00 Mona Johnson If you’re caring for an elder with dementia, it helps to have an experienced social worker and geriatric care manager like my friend Nataly Rubinstein to help you through the daily challenges. If you can’t have Nataly by your side...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=dS1If8zOReo:oAfAU6DqZUQ:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/dS1If8zOReo" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/09/alzheimers-disease-and-other-dementia-the-caregivers-complete-survival-guide.html tag:typepad.com,2003:post-6a00d83451d58669e201543551157f970c 2011-09-10T18:09:13-04:00 2011-09-10T18:09:13-04:00 Mona Johnson Sometimes it feels like not much has happened in the world of Alzheimer’s and dementia since my father died. We still don’t know what causes dementia, and there are still no highly effective treatments. But there has been progress in...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=YW-OXkE9oEc:q12Hkjs4GDc:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/YW-OXkE9oEc" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/09/the-i-can-i-will-library-a-major-milestone.html tag:typepad.com,2003:post-6a00d83451d58669e2014e8b6af41d970d 2011-09-09T20:59:25-04:00 2011-09-09T20:59:25-04:00 Mona Johnson It’s easy to say you can live well with memory loss, but what exactly does that involve? How do you arrange your life when you or a family member has been diagnosed with Alzheimer’s or dementia? Where do you start?...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=pSOe7ZrMdks:iku-r3TmF5w:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/pSOe7ZrMdks" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/09/living-well-after-an-alzheimers-diagnosis-new-ebook-available-for-199.html tag:typepad.com,2003:post-6a00d83451d58669e2014e8b323ecb970d 2011-09-02T12:12:20-04:00 2011-09-02T12:12:20-04:00 Mona Johnson click on strip to enlarge Here's the 4th strip of The Musician's Mind, the interactive graphic novel I've been working on. Parker's wife Vanessa owns and runs a high-end home design and accessories store called Domesticity. Since their marriage 25...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=uiMzm-7PzlE:fYDLV3Fl6jM:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/uiMzm-7PzlE" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/09/the-musicians-mind-graphic-novel-4th-strip.html tag:typepad.com,2003:post-6a00d83451d58669e2015434bb5a33970c 2011-08-22T15:53:07-04:00 2011-08-22T15:53:07-04:00 Mona Johnson When my father first showed signs of memory loss, I looked to professionals for answers and cures. Years after his death, I look less for answers and cures, and more for ways to make sense of dementia. Maybe this is...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=KpXlVjlWVDQ:dIXFrPJqriU:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/KpXlVjlWVDQ" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/staying-afloat-in-a-sea-of-forgetfulness-book-review.html tag:typepad.com,2003:post-6a00d83451d58669e2015434bb74a5970c 2011-08-22T13:26:31-04:00 2011-08-22T13:26:31-04:00 Mona Johnson My friend Judy Berry's Lakeview Ranch Model of Specialized Dementia Care™ is featured in the U.S. Agency for Healthcare Research and Quality's (AHRQ's) Innovations Exchange. This publication is a clearinghouse for innovations and tools to improve the quality of healthcare....<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=Ngde4f0J8BU:gbMFUgtPecE:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/Ngde4f0J8BU" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/lakeview-ranch-model-featured-in-ahrq-innovations-exchange.html tag:typepad.com,2003:post-6a00d83451d58669e2015390d2dc02970b 2011-08-19T11:25:53-04:00 2011-08-19T11:25:53-04:00 Mona Johnson The Musician's Mind is an interactive graphic novel about Alzheimer's. The interactive part means that readers can influence the story and characters via blog comments and by “talking” with fictional characters via Facebook, Twitter, online forums, and perhaps some live...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=uvtHSYr6a44:FDX-3_GCPbs:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/uvtHSYr6a44" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/the-musicians-mind-need-input-on-character-interaction.html tag:typepad.com,2003:post-6a00d83451d58669e201543498d632970c 2011-08-17T10:59:34-04:00 2011-08-17T11:00:32-04:00 Mona Johnson click on strip to enlarge In the third strip of The Musician's Mind graphic novel about Alzheimer's, Parker is back home in Chicago, being interviewed for a nationally broadcast public television program. He sticks to his favorite theme of truth...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=wM-TWzWflw4:K7L_dCr-g3w:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/wM-TWzWflw4" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/the-musicians-mind-graphic-novel-3rd-strip.html tag:typepad.com,2003:post-6a00d83451d58669e2014e8a916936970d 2011-08-11T17:49:38-04:00 2011-08-11T17:50:17-04:00 Mona Johnson click on strip to enlarge Here's the second strip of The Musician's Mind, the interactive graphic novel I've been working on. The story is about Parker Sanningham, a concert pianist who is diagnosed with Alzheimer's and disappears at the height...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=oiptNcGwkKU:7Bc-7rSrN5I:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/oiptNcGwkKU" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/more-about-the-musicians-mind.html tag:typepad.com,2003:post-6a00d83451d58669e2014e8a685df5970d 2011-08-05T14:04:26-04:00 2011-08-05T14:04:26-04:00 Mona Johnson Richard Taylor, PhD Note: as a person with dementia and a retired psychologist, Richard is uniquely positioned to think about Alzheimer's and dementia. Here are some of his thoughts about what the headlines on biomarkers mean for people with dementia...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=Yd85DrgFMYE:pO91U93FgtI:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/Yd85DrgFMYE" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/biomarkers-some-thoughts-from-richard-taylor.html tag:typepad.com,2003:post-6a00d83451d58669e2014e8a2975cf970d 2011-08-02T16:56:30-04:00 2011-08-03T12:40:50-04:00 Mona Johnson click on strip to enlarge I've been working on an interactive graphic novel called The Musician's Mind. The story is about Parker Sanningham, a concert pianist who is diagnosed with Alzheimer's and disappears at the height of his career. That's...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=KM8mPngpnCw:ilTb9zveZUE:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/KM8mPngpnCw" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/08/graphic-novel-about-alzheimers-and-dementia-need-your-feedback.html tag:typepad.com,2003:post-6a00d83451d58669e201538ffd5681970b 2011-07-18T14:25:24-04:00 2011-07-18T14:25:24-04:00 Mona Johnson Those of you on Facebook may want to check out a new free online support group called Memory People. People with dementia, caregivers and advocates may join - I've posted instructions here.<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=MsLydK6Faso:3kYc8o4vq0g:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/MsLydK6Faso" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/07/memory-people.html tag:typepad.com,2003:post-6a00d83451d58669e2014e8986aa13970d 2011-07-01T15:51:12-04:00 2011-07-01T15:51:12-04:00 Mona Johnson Have an idea about or experience in talking about dementia (yours or someone else’s)? Please consider sending it to Stand Up Speak Out, a collaboration among Richard Taylor, Laura Bramly and Alzheimer’s Disease International. Here’s how they describe their effort:...<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=ORfaT2p6ahA:AUZR3RqTXqY:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/ORfaT2p6ahA" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/07/talking-about-dementia-ideas-needed.html tag:typepad.com,2003:post-6a00d83451d58669e2014e5ffd04c7970c 2011-03-20T09:01:08-04:00 2011-03-20T09:01:08-04:00 Mona Johnson After watching this short video from Anne Basting's Penelope Project, I'm doubly sorry I couldn't be there.<div class="feedflare"> <a href="http://feeds.feedburner.com/~ff/TheTangledNeuron?a=3Fn7g15MSEo:D8pH3pRVtNg:yIl2AUoC8zA"><img src="http://feeds.feedburner.com/~ff/TheTangledNeuron?d=yIl2AUoC8zA" border="0"></img></a> </div><img src="http://feeds.feedburner.com/~r/TheTangledNeuron/~4/3Fn7g15MSEo" height="1" width="1"/>http://www.tangledneuron.info/the_tangled_neuron/2011/03/a-look-at-the-penelope-project.html