THRIVE

Thrive On - PMC 2011

2011-08-12T17:26:21-04:00

Thriving takes many forms.

I was reminded of that recently when I participated in my 14th Pan-Mass Challenge, the annual ride across my home state -- and the birthplace of Paul's Posse.

For the second year running, I was on the sidelines instead of on a bike, which I must admit was bittersweet. Watching people ride by carries its own inspiration, but I'm eager to get back on the proverbial horse! My health is improving and I'm disease free. My body continues to defy the odds, and is still responding to Gleevec. PMC 2012, here I come...

I'm especially proud that the Posse rolls on without me...It was 21 riders strong this year, and multi-generational. There were two father/son combos, and the daughter of my doctor, George Demetri, rode along with her dad. That's what Paul's Posse is all about!

George's research into rare cancers again was the beneficiary of the Posse's amazing success -- this year's effort brought the five-year total to more than $1.3 million. Overall, the PMC expects to raise more than $34 million this year in a Posse accident-free event that drew the likes of Lance Armstrong.

I have attached a link to a video for your viewing pleasure. http://www.youtube.com/watch?v=ZS50m7w8F-E. It was created by my friend and videographer, Sharon Sullivan, who wanted to tell my story of Thriving. I think it captures beautifully what the PMC, and Paul's Posse, are all about. Watching it reminds me of how fortunate I am to have friends like you.

This time next year, I'll be posting about my experience RIDING in the Pan-Mass Challenge.

I Thrive On,

Paul

Paul Posse Rode Again! - Cycle for Survival

2011-03-04T10:53:13-05:00

Cycle for Survival was held about two weeks ago and I have good news and great news. First the good news: As you may recall, my plan was to be an enthusiastic cheerleader. However, plans change, and due to the cajoling of my fellow posse members... I got on the bike and rode. It was hard, as it is been close to two years that I have done any significant exercise.

It felt great to get my legs moving again! My plan is to continue to train -- I renewed my gym membership this week -- with the goal of riding the Pan-Mass this summer. This feels wildly ambitious at this point (the Pan-Mass is 192 miles), as I can barely contemplate riding one loop of Central Park, only 6.2 miles.

Now, the great news. The event raised in excess of $4.5 million, with Paul's Posse raising in excess of $43,000. The importance of all that money was made crystal clear the night of the event. Over a well-earned dinner, my friend and doctor Dr. Gary Schwartz explained how he's continuing to put the Cycle for Survival money to work in his research. In just a few years, Cycle for Survival has funded a total of thirteen clinical trials and studies.

Thank you again for your love, support -- for this event that means more and more to me every year. The exhilaration of getting on the bike that morning was matched only by my gratitude.

Thrive On,

Paul

‘Cycle-For-Survival’

2011-01-10T21:10:50-05:00

I hope all is well and 2011 is off to a great start.

For the past four years, I have participated in ‘Cycle-For-Survival’, a Memorial Sloan Kettering Cancer Center fundraiser. It's an indoor cycling event where 100% of every dollar raised will benefit life-saving treatment research for orphan cancers like mine. Less common but equally dangerous, these cancers do not attract anywhere near the research funding and, therefore, cures are even more elusive.

Since being diagnosed with cancer in 2006 it has been a journey, albeit one with a great many bumps along the road. All things considered, I am still very lucky. Over these past few years, I have met other cancer “Thrivers”. We all share an incredible sense of hope and optimism that one day this horrible disease will be eradicated and that the pain, anguish, and suffering for patients and their loved ones will cease.

I am taking this challenge seriously, and I can tell you that now more than ever I want to be a part of the effort to search for a solution. Before my diagnosis, I was actively raising money for cancer research, but in reality, cancer was a concept, a ‘bad’ thing that was happening to ‘other people’. Today, I am a patient. Today, I know other patients and we understand the importance of cancer in an all-too intimate way. I cherish every conversation about tomorrow, and I know you all agree that the best tomorrow will be one that's cancer free.

Thrive On,

Paul

Donation Link

http://mskcc.convio.net/site/TR/CycleforSurvival/AG_Cycle_Event?px=1156161&pg=personal&fr_id=1423

Also, check out the video my friend Sharon compiled of Paul's Posse and the Pan-Mass Challenge.

http://youtu.be/ZS50m7w8F-E

PMC - Paul's Posse Rides Again

2010-05-25T15:46:39-04:00

Howdy

Well, it's that time of year again: the Pan-Mass Challenge is upon us!

As most of you know, I've ridden in this amazing event for the past 12 years. It's a two-day, 192-mile cycling event that raises money to support the Jimmy Fund and the Dana-Farber Cancer Institute. Last year, the PMC raised $31million to fight cancer.

Paul's Posse has been a proud and dedicated supporter of the cause. Our 2009 total was $231,768, an amazing number in the depths of a tough economic time. All of that money -- 100% -- went to support the incredible work of my friend and physician, Dr. George D. Demetri at Dana-Farber.

I am sorry to report that my body may conspire against me this year. The aftermath of my latest surgery may put me on the sidelines as a reluctant -- but VERY ENTHUSIASTIC -- cheerleader.

I didn't pick this fight with cancer, but I remain ferocious. Enduring three major abdominal surgeries has only made me stronger and more determined to take each month, week and day as a gift.

This latest turn of events makes me all the more motivated to once again ask for your generosity for this very worthy cause. Please do whatever you can.

I have attached a link to a video for your viewing pleasure. ThriveOn.mov. My friend Sharon Sullivan produced this video to share my story of Thriving and encourage everyone to support this important cause. I think it captures beautifully what the PMC, and Paul's Posse, are all about. Watching it reminds me of how fortunate I am to have friends like you! (Please feel free to pass on a link to this blog so someone else can see the video)

You can use your credit card to make a donation on line http://www.pmc.org/mypmc/profiles.asp?Section=story&eGiftID=PS0036 .

I thrive on,

Paul

Good News - I Thrive On!

2010-03-31T21:25:18-04:00

Howdy,

The last time you heard from me, I had good news and bad news. This time, I'm happy to say, it's all good news. I'm back at home after almost two weeks in the hospital recovering from my latest surgery. I'm working hard to get back to work -- and back on my bike.

As my doctors had hoped, there was no cancer to be found and believe me, they looked in every nook and cranny. My doctor, Ron DeMatteo, who certainly knows my innards better than anyone at this point, is cautiously optimistic that he has solved the pain issue that has plagued me for the better part of this past year.

I cannot overstate my appreciation and affection for the amazing people at Memorial Sloan Kettering. From the doctor who insisted on checking on me coming off a 26-hour shift to the nurse's aide who told me I was like family (three surgeries will do that), it was an amazing experience. It is not just the level of care, but the level of CARING, that blew me away.

I feel so grateful for all they did -- and for your support through all of this.

I thrive on!

Paul

Good News, Bad News - I Thrive On!!!!

2010-03-01T17:19:03-05:00

Howdy,

I wanted to bring you up to date on the latest in my medical adventures. It's a story of good news and bad news.

Bad news: I'm going under the knife again, on March 16.

Good news: It's not because the cancer is back. (And that's SERIOUSLY good news).

Bad news: They're still not quite sure what's causing my ongoing abdominal pain.

Good news: My doctor told me I have ``the veins of an 18-year-old Navy SEAL.''

As all of you know, I'm a good news guy, and that's what I'm completely focused on. I'm confident that this will be what it takes to get me back on the bike, to put that SEAL-like constitution to the test in a race instead of an operating room!

Thanks, as always, for your support.

I thrive on,

Paul

Cycle For Survival - Thank you!!!!

2010-02-09T14:02:46-05:00

Howdy,

I wanted to give you an update on the extraordinarily successful Cycling for Survival event on Jan 31st. 'Paul's Posse' once again humbled me with its amazing support -- Thanks to many, we contributed over $30,000 to the cause of researching orphan cancers like mine at Memorial Sloan Kettering.

It was, of course, quite a scene, with hundreds of folks pedaling, yelling, and the warmth of all was a stark contrast to the frigid January day. All told, the event raised over $2.2 million.

Among the cyclists were two of my incredible doctors, Dr. Gary Schwartz and Dr. Ronald Dematteo. Unfortunately, I was forced into the role of cheerleader, sidelined by abdominal pain that has become my newest foe. I am currently on a mission to eradicate this situation so I can get back on the bike. I'm set to undergo further testing this week and my doctors are confident they will solve the issue.

Thank you again from the bottom of my heart for your generosity to the Cycle for Survival. Being a spectator only deepened my gratitude to the participants and to folks like you who made their hard work worthwhile.

I thrive on,

Paul

Happy New Year - Paul's Posse Rides Again!

2010-01-06T16:51:28-05:00

Howdy,

One of the greatest joys in my life these days is finding ways to thank the people who are helping to save my life. Though I continue to thank my doctor and friend Gary Schwartz, there are few better ways to show my profound appreciation than to raise money for cancer research at Memorial Sloan Kettering ("MSK").

For the second year, I'll be joining Gary here in New York for ‘Cycle for Survival’. On January 31, Gary, myself and a couple hundred other maniacs, including another friend and MSK surgeon, Ron DeMatteo, will get on stationary bikes at Equinox Fitness and pedal for 8 hours.

‘Cycle for Survival’ was created in 2007 to raise money to research rare cancers -- like the one that Gary is helping me conquer. Being less common and equally as dangerous, orphan cancers do not attract the research funding, drug development incentives necessary to promote and advance treatments and, hopefully, cures. In the last two years more than $ 2 million has been raised for this research. We hope to continue the success of the event with this year's ambitious but seriously important fund-raising goal of $2 million for research that saves lives. I'm proof.

2009 was a stark reminder that the fight for me goes on, underscoring how important Gary's work is. Less than a year ago, I went through a second round of major abdominal surgery -- a risky procedure that's left me with minor pain and deepening gratitude. Part of my strive to thrive is doing this ride, and getting on a real bike. Paul's Posse is riding again!

I know the holidays are just days behind us, and I realize the economic environment is less than optimal for most of us. That said, I would be so grateful and appreciative if you would consider making a contribution to this event. Every dollar counts, every dollar makes a difference, and every dollar yields ever increasing possibility.

Click HERE to visit my personal page to make an online donation or you can send a check to my office address below.

Thrive on,

Paul

"Thanks for Giving"

2009-11-18T16:01:26-05:00

Howdy,

As we look forward to gathering with friends and family next week, I wanted to send along a special note to Paul's Posse saying ``Thanks for Giving!''

All of you appreciate the emotions of the journey I've been on during the past three years, but I wanted to share something that stopped me in my tracks (not an easy task, as you know!). Below, I've pasted a letter from my doctor, George Demetri, to all of you. Together, our team has contributed more than ONE MILLION DOLLARS to fund George's research related to GIST and other cancers.

I encourage you to take a minute to read the letter, because while my words and George's -- by his own admission -- fail to capture the enormity of your generosity, his sentiments echo mine. What Paul's Posse has done for George is a reflection of love and friendship that I'm enormously grateful for, and which has pulled me through some very difficult times.

Please know that I'll be giving thanks for all of you next week, and always. Be well, and as always...

Thrive on!

Paul

Dear Paul and Members of Paul’s Posse,

Words are completely inadequate to express my heartfelt thanks to everyone for the extraordinary support of our mission here at Dana-Farber Cancer Institute given by all the members of Paul’s Posse through the Pan Mass Challenge. Since joining together with a shared vision only three years ago, this team has raised more than $1 million for research to advance our understanding of GIST so that we can use this knowledge to develop new targeted therapies to help patients.

At the deepest level, this is a testimony to the warmth and respect that we all feel for Paul, and our research team and I are inspired to work harder every day to make the very best use of these important funds. In these challenging economic times, we make sure that every dollar for research goes as far as it can towards finding new breakthroughs and offering patients effective new treatment options as quickly as possible, as if our own lives depend on this (since other lives do depend on this). We are so happy to tell you that these funds are enabling our team to make some of the most rapid translations of laboratory discoveries into clinical application. In collaboration with colleagues across the world, our team has been privileged to be at the cutting edge of some of the most innovative new drug development projects in GIST and other cancers.

We simply could never accomplish all that we do in our research without the “grass roots” support of Paul’s Posse, the PMC, and the generosity of all the individual donors who have made this possible. The Posse has a remarkable spirit, and that spirit has been transformed into the support that powers our research and care mission here at Dana-Farber, and one in which we are working in collaboration with experts around the world to reduce the burden of GIST and other cancers for patients everywhere.

I hope we can all celebrate together again next year, and I certainly hope to share with everyone more results from our very promising work in this field.

POSSE UP, and thanks again to everyone for keeping the spirit thriving!

George D. Demetri, MD

Pan-Mass Challenge - MISSION ACCOMPLISHED

2009-08-05T10:15:29-04:00

Howdy,

I just came back from riding in this year's Pan-Mass Challenge. I can happily say, "MISSION ACCOMPLISHED;" I finished. We were blessed by almost perfect weather--not too hot, no rain and reasonable headwinds on the Cape. This year, thankfully, we had no broken bones, stitches, or road rash. I am thrilled to report that as of this moment we have collectively raised more than $100,000 and counting as monies are still coming in.

It's been three years now that I pulled together 'Paul's Posse' to support me and my formidable battle with cancer. This year 'The Posse' rode the PMC together again with our bond and determination as strong as ever. If it was not for my fellow Posse members, I would not have completed my 12th PMC, considering just a short 90+ days ago; I was recovering from major surgery and a very uncertain future. I am so very thankful and each day is an absolute blessing.

This year two scenes particularly struck me. The first was a child at the third water stop on the first day holding a sign saying "I'm 13 this year because of you." The second was the 100+ kids at the Cape Cod Sea Camp who scream their heads off in support as we rode passed. The PMC is not about the personal achievement - it's about what we, who are strong and able, can give to others- life and hope.

The PMC is unquestionably a reaffirmation of the human spirit. I cannot help but hope that this collective support, focus, and determination will be rewarded someday soon with cures.

Thank you so very much for your wonderful friendship.

I Thrive On,

Paul

This weekend Paul's Posse Rides again!

2009-07-29T09:47:21-04:00

Howdy,

Well, it has been a about 3 years since I was diagnosed with Cancer and 2 years since I had my first cancer resection surgery. Since my last surgery 90 days ago, I have ridden my bike 373 miles (but who's counting?) training for the Pan Mass Challenge ("PMC"), which takes place this coming weekend: 192 miles from Sturbridge, MA to the tip of Cape Cod in Provincetown. I WILL FINISH though it might not be with the same pizzazz as in years past.

For the past 11 years I have ridden in the PMC and now that I am a "Thriving" cancer patient, the 2009 PMC will be more meaningful than ever for me.

In the past, I always rode to help raise money for cancer research, but I never imagined I would ride as a possible beneficiary of that research.

As for the ride itself, I am again making the trip with a group of friends who are known on the road as "Paul's Posse." All the money we raise will again go directly to support the research of Dr. George Demetri, the world's leading authority on GIST, the type of cancerous tumor that found its way into my body. I have even convinced George, to ride in the PMC again!

I've taken this challenge seriously for these past 11 years, and I can tell you that now, more than ever, I want to be a part of the effort to search for a solution. Before my diagnosis, cancer was a concept, a bad thing that was happening to other people, and a bad thing that I wanted to help stop. Now that I am a patient, I understand the importance of the PMC on a whole new level. Now, when I talk about hope on the roads of Massachusetts, it is no longer a conversation about the looks on the faces of the thousands upon thousands of supporters lining the route. It is now a conversation about my own future, my own treatment, and the hope that new research will one day leave me cancer free.

For my part, I am and have sent out countless letters raising money, trained (wish I had more miles under my belt), and will do the ride - all 192 miles of it - never losing hope.

If you are reading my Blog, I'm asking you to make a pledge to the cause. As in 2008 when the members of Paul's Posse raised nearly $300,000, 100% percent of the monies raised by Paul's Posse this year will go directly to the Dr. George Demetri at the Dana Farber Cancer Institute.

I realize the economic environment is less than optimal for most of us. That said, I would be so grateful and appreciative if you would consider making a contribution to this event. Every dollar counts, every dollar makes a difference, and every dollar yields ever increasing possibility.

I truly believe somewhere along the road between Sturbridge and Provincetown lies a cure for cancer, maybe even for me. You can help us find it.

Thanks for joining the battle.

Thrive On,
Paul

Click here to visit my personal page and make an online donation.

Paul's Posse 2009 PMC Ride

If the text above does not appear as a clickable link, you can visit the web address:

https://www.pmc.org/egifts/ps0036

Paul's Daily Dose - I'm back!

2009-05-13T12:06:55-04:00

Howdy,

I’m back! Back home from another round of surgery, no, there was nothing malignant, but there were 7 rapidly growing tumors that my doctors needed to remove. It feels great to be home, but there were moments over the last 14 days where the pain and discomfort were unbearable. However, as a cancer Thriver, I have learned to count the victories, not the setbacks and my surgery last week was a victory. A victory and a blessing that I share with my doctors, nurses and friends, most importantly Gretchen. It was their strength, support, and love that carried me through and I am most grateful.

Thriving is a mindset in which one is careful to avoid regrets and embrace opportunity at every corner. Yes, I have cancer, and that sucks, but things could be worse: I could have allowed the illness to keep me away from my love of cycling. I could have let the disease change me. Instead, I have, and will continue to do my best, to define what it means to be a cancer Thriver.

For the past 11 years I have ridden in the Pan-Mass Challenge, a two-day, 192-mile cycling event that raises money in support of the Jimmy Fund and the Dana-Farber Cancer Institute. The Pan-Mass Challenge has grown tremendously over time, and the event raised over $35 million last year, bringing their all time total to more than $238 million.

As a cancer Thriver, and now two time cancer surgery graduate, the 2009 Pan-Mass Challenge will be more meaningful than ever for me.

So on August 1^st, I will start my 12th Pan Mass challenge with my fellow riders of ‘Paul’s Posse’. It is going to be harder because of my surgery, new chemotherapy regimen, and lack of training. But I am going to do it.

I’ve taken this challenge seriously for these past 11 years, and I can tell you that now, more than ever, I want to be a part of the effort to search for a solution, and I am hoping that you want to be a part of it too. Before my diagnosis, cancer was a concept, a bad thing that was happening to other people, a bad thing that I wanted to help stop. Now, as a patient for the past two years, I understand the importance of the PMC on a whole new level. Now, when I talk about hope on the roads of Massachusetts, it is no longer a conversation about the looks on the faces of the thousands upon thousands of supporters lining the route. It is now a conversation about my own future, my own treatment, and the hope that new research will one day leave me cancer free. For my part, I am asking myself to send out countless letters raising money, train hard and do the ride, and never stop hoping. For your part, I’m asking you to make a pledge to the cause.

You’d be hard-pressed to find a more worthy and leaner organization. In 2008, 100 percent of all funds raised by PMC riders went directly to the Jimmy Fund. More importantly, as in 2008, when the members of ‘Paul’s Posse’ raised nearly $300,000, 100% of the money raised by ‘Paul’s Posse’ this year will go directly to support the work of my doctor, friend, and three time ‘Paul’s Posse’ member, Dr. George D. Demetri at Dana-Farber.

Your tax-deductible check can be made payable to PMC/Jimmy Fund and you can mail it to me. Alternatively, you can use your credit card to make a donation https://www.pmc.org/egifts/my egift ID is PS0036.

I know these are tough financial times, but cancer doesn’t know we’re in a recession, so please donate what you can.

Gratefully,
Paul

Paul's Daily Dose - 5/4/09

2009-05-04T10:11:27-04:00

Paul's surgery was more complicated than expected. The surgeon found and removed 9 tumors in 6.5 hours as compared to the original plan of removing the identified 3 tumors in 2.5 hrs. Essentially, the “Chip Shot” turned into a “Par 5.” He weathered the surgery well and now faces the challenges of recovery.

The good news is that the final pathology report confirmed what the doctor’s thought – all 9 were Desmoid tumors. The plan of attack going forward seems to be a doubling of his current Gleevec dose!!! Great news all things considered.

Paul’s recovery has been somewhat typical for such an extensive surgical procedure. The first two days, Paul was feeling pretty good doing his laps around the hospital floor and having visitors. These last few days have been more difficult and the level of discomfort significantly heightened. The doctors assured us that his recovery is following the expected path. Paul, too, recalls a similar cycle the last time around. We anticipate his energy level to strengthen and his physical activities to increase. With some luck, he might well be able to go home by weeks end.

Thank you so much for your love and support.

As Paul would say: Thrive on!!!

Thank you!

Gretchen

Paul's Daily Dose - surgery is over!

2009-04-28T15:26:56-04:00

Paul's surgery was more complicated than expected. The tumors are likely desmoid as originally thought, but we are awaiting pathology which could take as much as 5 days (hopefully sooner.)

He weathered the surgery well and may be up and possibly walking before the day’s end. As Paul has mentioned to more than a few of us - 64 laps around the hospital floor equals 1 mile.

Paul is so thankful for all the love and support from all of you. He feels very luck and blessed.

I will keep you posted.

As Paul would say:

Thirive on!!!

Thank you!

Gretchen

Paul's Daily Dose - Medical update

2009-04-21T09:59:14-04:00

OK, not so good news.

I don’t know if you are jonesing for the TV show “ER” or you find that “House” just doesn’t cut it (no pun intended). Well, here’s a new one “Paul goes back to the OR.”

All kidding aside, I am headed back to the OR.

Here is the scoop...

I had tests last week and my desmoid tumors continue to grow and need to be removed. My doctors not wanting to waste any time, have scheduled me for surgery April 28th. The procedure, which I hope will be followed by a speedy recovery, will not be as involved as my initial surgery. To quote one of my doctors, this surgery is a "chip shot" (I am hoping he is a good golfer!).

As I have said so many times before, I have wonderful doctors in whom I am totally confident.

Thank you for your support and I Thrive on,

Paul

Paul's Daily Dose - Medical update

2009-03-19T16:16:24-04:00

Good news!

As you know from my previous post, my tests came back positive for tumor growth. Since then, I have had additional tests, I have received the definitive results. Defying the odds, these new tumors are NOT a recurrence of GIST! I have another growth; they're called fibromatosis or desmoid tumors.

Desmoid tumors are somewhere in between truly benign tumors and the malignant tumors. Desmoids are not truly benign because they are locally aggressive, but they do not metastasize like malignant cancers. Long story short – Desmoids don’t grow like metastatic cancers but can cause associated problems due to their size and location. As mine are inoperable, they are just going to monitor.

To quote Gary Schwartz, one of my amazing doctors: "Paul, you dodged a bullet." Needless to say I am very fortunate. Thanks to everyone for your support.

Thrive on,

Paul

Paul's Daily Dose - Medical update

2009-03-02T20:59:37-05:00

Howdy,

To steal a line from Elton John, “The Bitch is Back!”

Yes, I am very sorry to report that my cancer has once again has shown its’ ugly face.

A week ago, I had a PT/CT scan and got the disturbing news: “We saw something we don’t like”.

It’s a refrain you never get used to.

The scans showed multiple growths in the abdomen that were not present 3 months ago. Subsequent tests confirm that my cancer has mutated and is now resistant to my current drug therapy. As I have said so many times before, I have the BEST team of doctors and I am confident they will come up with a new “cancer cocktail”, as surgery is not an option. I know that they are going to do everything possible and you know that I will fight with everything I have. I did not pick this fight with cancer, but it’s a battle I will win.

As a cancer Thriver, I have learned to count the victories, not the setbacks. Last year, I finished the NYC marathon for the second time, and the PMC for the 11th. This year, I hope to complete my 12th PMC, but may need to compete in a different sort of marathon between now and then.

As always, I will draw more strength than you can imagine from the support my friends my original diagnosis, and for that I remain eternally grateful.

Thriving is a mindset in which one is careful to avoid regrets and embrace opportunity at every corner. Yes, cancer is back, and that sucks, but things could be worse: I could have allowed the illness to keep me away from the marathons, the triathlons and the PMC. I could have let the disease change me. Instead, I have, and will continue to do my best, to define what it means to be a cancer Thriver.

I Thirve on,

Paul

Paul's Posse rode again - and raised over $67k

2009-01-28T13:01:41-05:00

Thank you!

Cycle for Survival was a huge success exceeding the fund-raising goal of $1.2 million. Thanks to you – Paul’s Posse collectively raised over $67,000 of that total.

Profound and inspirational – such a large group of people with varying backgrounds spinning together for some part of eight hours in complete solidarity with a singular goal and wish - to combat cancer (orphaned cancers, more specifically).

I am pleased and honored that two of my doctors from Memorial Sloan Kettering (“MSK”) not only showed up but actively participated, breaking a sweat in both cases! It was remarkable how many thankful patients, family members, and friends approached them and recalled their ‘story’ – a story encompassing great care, hope, and the best science & research focused on curing cancer. As a MSK cancer THRIVER, the event was overwhelmingly emotional and simultaneously energizing.

So, thank you so very much for your generous contribution. As I said in my solicitation, every dollar counts, every dollar makes a difference, and every dollar yields ever increasing possibility.

Thrive on,

Paul.

Paul's Posse rides again! (sort of)

2009-01-23T10:13:17-05:00

Howdy,

On Sunday, January 25th I will be participating in 'Cycle for Survival', an indoor cycling event benefiting lifesaving cancer research at Memorial Sloan-Kettering (MSK). I am joined by others and especially my dear friend and doctor at MSK, Gary Schwartz. I think the following letter Gary wrote is very compelling as to why we need your support.

To my patients and their families:

If you are reading this letter it is either because I have taken care of either you or one of your family members at Memorial Sloan-Kettering Cancer Center in New York. I am writing to you now to ask for your help.   This year we are facing huge cut-backs in federal funding for cancer research.   As Chief of the Melanoma/Sarcoma Service and as Director of the Laboratory for New Drug Development, I have led a major effort to find new treatments for patients with cancer.   This includes patients with cancers of the skin, soft tissue, as well as cancers of the gastrointestinal tract.    Based on these laboratory efforts we have launched many new clinical programs at MSKCC.   Some of you may have benefited from them.   The future success of this cancer research program will depend on continued research funding.

In order to raise cancer awareness and to raise the money we need to sustain our cancer research efforts, on Sunday January 25, 2009 I will be participating in an indoor cycling event called "Cycle for Survival". I will be part of cycling relay team to benefit MSKCC. This event will be held at Equinox health clubs throughout New York.   Two hundred bicycling teams will be pedaling their hearts out to raise money for cancer research. This year it has been determined that a large share of this money will go directly to my laboratory and clinical research program.

One of my patient's, Paul Schaye, will be the captain of my relay team. Paul is an amazing person.   He is a patient with a gastrointestinal stromal tumor (GIST) who is on the drug called Gleevec. This last year he underwent major surgery to remove this cancer from his stomach as well as from his liver. Today he is cancer free.   What is truly remarkable about Paul is that he just completed the New York City marathon!

On January 25th, Paul and I will be biking for you and our MSKCC family. I am closing in on my 19th year at MSKCC. Never once have I written a letter like this and never once did I ever envision that I would have to do so.    But, desperate times require desperate measures.

Thank you in advance for supporting our efforts in our fight against cancer,

Sincerely,

Gary K. Schwartz, MD

The following link is a clip of Gary discussing his research and the Spin event.

Fox News - Cycle for Survival

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http://www.myfoxny.com/myfox/pages/InsideFox/Detail?contentId=8295607&version=1&locale=EN-US&layoutCode=VSTY&pageId=5.2.1

To make a donation please Click here
If the text above does not appear as a clickable link, you can visit the web address:

http://mskcc.convio.net/site/TR/CycleforSurvival/AG_Cycle_Event?pg=personal&fr_id=1050&fr_id=1050&px=1156161

Click here to view the team page for Paul's Posse

If the text above does not appear as a clickable link, you can visit the web address:

http://mskcc.convio.net/site/TR/CycleforSurvival/AG_Cycle_Event?pg=team&fr_id=1050&team_id=4120

Thank you so much for your support.

Thrive on,
Paul

MISSION ACCOMPLISHED!!!

2008-11-03T15:17:05-05:00

I did it; I made it to the finish line of the New York City Marathon!

The single most overwhelming feeling that I felt coming over the line was gratitude and yes, relief. Hey, 26.2 miles is a long way!

I could not have done it without the support of my dear friends and more importantly my ‘running’ Posse of Fran, Jim and Liz. They accompanied and cajoled me to the finish line. Their encouragement, threats, jokes, and love, got me through the race.

Your support on this journey is very much appreciated. I am amazed how many of you continue to read all of my emails/posts, and I am very grateful. I cannot put into words how your friendship has touched me. Thank you so very much.

Thrive on,

Paul

Here is more: Schaye – New York Post November 2, 2008

"Paul's Daily Dose" - October 2008

2008-10-22T19:16:13-04:00

Howdy –

Well, it's been two years since I was diagnosed with Cancer and almost a year to the day that I had my surgery. What better way to celebrate my miraculous recovery than to take a VICTORY LAP through the 5 boros of New York? That's right, I am running the New York City Marathon.

Two years ago when I ran my inaugural marathon, I had company (aka 'Paul's Posse') run with me along the route. We had such a great time that I'm reviving the tradition.

Come and join me in this year's marathon as a relay runner. As a relay runner, no one person has to cover any great distance (and trust me, I won't be going very fast). So, if you happen to be in New York City, please let me know if you would like to join me and be in 'Paul's Posse'.

Thrive on!
Paul

Paul's Posse - Leah Demetri's thank you letter

2008-09-02T08:46:59-04:00

This is a letter from Leah Demetrie (George's Daughter from Dana-Farber)

Dear Paul,

I just thought I'd share with you the letter I wrote to the people who supported me for the PMC. It was an honor to meet you, and it was truly inspiring for me to ride with you and the Posse. Everyone on the team was incredibly supportive, and I can't wait to do it again next year!

Though the weekend of August 1st may have come and gone, I wanted to thank you for supporting me in my quest to ride the Pan-Mass Challenge this summer. It was by far one of the most memorable experiences of my life.

Let me start by giving you glimpse of my experience at the PMC. On Friday night of PMC weekend, I attended the event’s opening ceremonies in Sturbridge where the ride would commence the following morning. I found myself surrounded by an enthusiastic crowd of doctors, cancer survivors, those who have lost loved ones to the disease, and my own co-workers from the Dana Farber. It wasn’t until that moment that I realized just how incredible it is that a single event can bring together such a diverse group of people, all fighting together for the common goal of curing cancer. As I listened to the various speakers tell their stories that night, I was moved to tears. But don’t get me wrong – the tone of the night was certainly not melancholic. Instead, it was full of hope and energy, for as I learned, that’s what this ride is all about.

The next morning, however, I was beside myself with nerves. When we lined up with our bikes at 6am to begin the ride, it finally hit me just how unprepared I was. I may be athletic, but my training had consisted of a few rides on my mountain bike combined with a whopping total of just 50 miles on my road bike. The farthest I had ridden in one go was 20 miles, and this was no 20 miles – I now had 192 to face in the coming hours. Amazingly, I managed to push aside the butterflies in my stomach, clip in my shoes, and start pedaling.

At the second water stop, I was still feeling great, but it was the long stretch to the lunch stop that really got me. After almost 70 miles, my hamstrings began cramping up, I dropped one of my water bottles in the road along the way, and I had long ago been separated from my dad. I wasn’t in the best of shape when I finally arrived at that third stop, but I certainly wasn’t ready to give up. With a couple of bananas, a little stretching, and a whole lot of Gatorade, I was back out on the road in less than an hour, this time with a new agreement to stick with my dad all the way to Provincetown. And what a difference it made. We may have taken it slow, but encouraging one another through all the steep hills and the impending exhaustion, we both made it to Provincetown in high spirits.

Another moving aspect of the event came from riding with "Paul’s Posse," a group who has come together in support of one of my dad’s patients. Having ridden in the PMC long before his own diagnosis of cancer, Paul has been an avid supporter of the event for years. Despite recovering from surgery just a short 9 months ago, Paul rode once again this summer, for he is not one to stand by and watch. His courage was truly inspiring to me. He made sure the team stuck together, and it was quite an experience to finish in Provincetown with the entire Posse by my side.

As I learned from riding with my dad and the Posse, what really got me through this ride was the love and encouragement of my friends, family, and everyone who cheered me on during the ride. Without you, I would have never been able to accomplish such a feat. I never believed I would be able to reach the fundraising minimum of $4,000. "I’m only 17, I don’t even know that many people!" I told my parents. But thanks to you, I raised nearly $6,000! Together, we have been able to truly make a difference, and I can’t wait to get right back on my bike and do it all again next summer.

Love,

Leah

Paul's Posse Pan-Mass Challenge 2008

2008-08-06T10:26:14-04:00

Howdy,

I want to take a moment to thank each of you for once again riding in this year’s PMC and for supporting Paul’s Posse.

Just a year ago we pulled together as a team forming Paul’s Posse in support of me and my formidable battle with cancer. This year we rode together again, my cancer arrested, and our bond and determination stronger than ever.

I feel so very fortunate and blessed that I was physically able to complete my 11th PMC with all of you considering just a short 9 months ago I was recovering from surgery and a very uncertain future. Each day is an absolute blessing, and I am so very thankful.

While we certainly ride for the common good, we ride as a team united in solidarity honoring our friendship and unyielding passion to help eradicate cancer. The PMC is unquestionably a reaffirmation of the human spirit. I cannot help but hope that this collective support and focus will be rewarded someday soon with cures.

Though we exceeded our quota for crashes, broken bones, stitches, and road rash, the Posse’s spirit remained undeterred and everyone is ‘on the mend’ without serious injury. I�am thrilled to report that as of this moment we have collectively raised more than $250,000.� Wow!!! Incredible!!!

Thank you so very much for your wonderful friendship.� Looking forward to riding with all of you next year and for many many years to come.

Thrive On,

Paul

�

Great news! Paul's Daily Dose - FINAL EDITION!

2008-04-15T15:02:18-04:00

I have great news. I had my first PT/CT scan last week since my surgery. They saw no evidence of disease! Nada, Nothing, Zilch. I am very grateful. I will continue taking my chemotherapy as a preventative measure, and be monitored.

Overall, I am a very lucky guy and I am Thriving,

Thank you for your interest and support.
Paul

Paul's Daily Dose - Pan Mass Challenge

2008-02-28T12:59:06-05:00

Howdy ,

Well, it has been 1 year, 4 months, and 1 day since I was diagnosed with Cancer and 3 months, 22 days, 1 hour, 51 minutes, 15 seconds since I had my Cancer resection surgery (but who’s counting?). I feel great and my prognosis is very positive. I am Thriving.

As you know, for the past 10 years I have ridden in the Pan-Mass Challenge, a two-day, 192-mile cycling event that raises money in support of the Jimmy Fund and the Dana-Farber Cancer Institute. The Pan-Mass Challenge has grown tremendously over time, and raised over $32 million last year, bringing the all time total to more than $204 million.

Now that I am a “Thriving” cancer patient, the 2008 Pan-Mass Challenge will be more meaningful than ever for me. In the past, I always rode to help raise money for cancer research, but I never imagined I would ride as a possible beneficiary of that research.

As for the ride itself, I am again making the trip with a group of friends who are known on the road as “Paul’s Posse.” All the money we raise will again go directly to support the research of Dr. George D. Demetri, the world’s leading authority on GIST, the type of cancerous tumor that found its way into my body. I have even convinced George, to ride in the PMC again!

Therefore, on Aug. 2nd, I will start my 11th Pan Mass challenge. Similar to the 2007 PMC, it is going to be harder because of my illness and my treatment, but I am going to do it.

I’ve taken this challenge seriously for these past 10 years, and I can tell you that now, more than ever, I want to be a part of the effort to search for a solution, and I am hoping that you want to be a part of it too. Before my diagnosis, cancer was a concept, a bad thing that was happening to other people, a bad thing that I wanted to help stop. Now that I am a patient, I understand the importance of the PMC on a whole new level.

Now, when I talk about hope on the roads of Massachusetts, it is no longer a conversation about the looks on the faces of the thousands upon thousands of supporters lining the route. It is now a conversation about my own future, my own treatment, and the hope that new research will one day leave me cancer free. For my part, I am asking myself to send out countless letters raising money, train hard and do the ride, and never stop hoping. For your part, I’m asking you to make a pledge to the cause.

You’d be hard-pressed to find a more worthy and leaner organization. In 2007, 100 percent of all funds raised by PMC riders went directly to the Jimmy Fund. More importantly, as in 2007 when the members of Paul’s Posse raised nearly $500,000, 100% percent of the monies raised by Paul’s Posse this year will go directly to the Dr. George D. Demetri at Fan-Farber.

I truly believe somewhere along the road between Sturbridge and Provincetown lies a cure for cancer, maybe even for me. You can help us find it.

Your tax-deductible check can be made payable to PMC/Jimmy Fund and you can mail it to me. Alternatively, you can use your credit card to make a donation on line http://www.pmc.org/mypmc/profiles.asp?Section=story&eGiftID=PS0036 . If you have questions please do not hesitate to or e-mail info@chestnuthillpartners.com.

Thanks for joining the battle.

Thrive On,
Paul

Paul's Daily Dose

2008-02-12T20:55:54-05:00

Howdy all,

I had a CT scan last Friday and as one of my doctors said to me, “your liver looks great”, (He was looking at my good side). I continue to take Gleevec and the next major milestone will be a PT/CT scan in two months. Maybe then, I will be allowed to have a glass of wine.

Considering that my surgery (that was a hellish experience) was just three months ago, I am feeling strong. It is great to back at the gym and training. Just this past weekend, I completed a two-hour spin and ran 5 miles the weekend before. It is a matter of getting in shape for the Pan-Mass Challenge, that is just around the corner. Hey, I may even give the New York Marathon another go.

Overall, life is great and I am a very lucky guy.

I Thrive on,
Paul

Paul's Daily Dose

2008-01-21T12:40:33-05:00

Howdy,

I am getting my energy back (a little everyday). I wish my recovery was faster; however, my doctors are pleased and implore me to have patience (something I do not have a lot of). I actually started going back to the gym, and I am doing light training. Not ready for an Ironman, however, I could handle a few loops of Central Park on the bike.

Overall, I am a lucky dog.

Thrive On,

Paul

Paul's Daily Dose- Happy Holiday's & Happy New Year

2007-12-25T18:33:36-05:00

Howdy,

Gay joins me is wishing you all the best for the Christmas season and good health in the New Year.

It's been 7 weeks since my surgery and it was projected that I would be back in training in 4-6 weeks. Well, I may have had some irrational exuberance, as I am still on home rest. Luckily, I have a healthy stash of good books and I expect to be back at work after the first of the year.

I am an Ironman (maybe Ironman light, as I am 20lbs lighter).

Thrive on,
Paul

Paul's Daily Dose

2007-12-05T17:07:53-05:00

Howdy,

Well, it has been one month to the day that I had my surgery. It has been the best of times and the worst of times (sorry Dickens). I have been so fortunate that Gay was not only with me during my hospitalization, but she has also been with me during my home bed rest. How nice is that.

My doctors are very pleased with the progression of my recovery and they keep stressing patience (something that I’ve always had in limited quantity). I’m told I won’t feel totally normal for about five months. My days consist of “muffies” (MFES or Meds, Food, Exercise, and Sleep) three times a day. I had to come up with something to remember what I should be doing. Hey, I know it’s not a lot to look forward to but in reality it is.

One of the things I miss is seeing New York City in its holiday splendor. The smell of chestnuts from street vendors and the wonderful sparkle of Christmas lights is a joyous experience. This is minor in the scheme of things as I expect to enjoy many more holidays to come.

Wishing you a great holiday season and a Happy New Year!

Thrive on

Paul

Paul’s Daily Dose - Home for the Holiday

2007-11-22T11:24:39-05:00

Howdy,

After being hospitalized for 12 days at MSK, being home for the Holiday, is something I will never take for granted again. Please don’t get me wrong, all the staff, be it nurses, housekeeping, phlebotomists, room service personnel, and doctors were exceptional! However, there is just no replacement for sleeping in one’s own bed and all the comforts that it brings. The one thing that made my stay remarkably tolerable was that Gay was with me 24/7. Talk about a trooper, here I am sleeping on a super deluxe hospital bed and Gay is sleeping on a chair that has a seat cushion that extends. (She is also delighted to be sleeping on a bed too).

I want to emphasize again the incredible results of my procedure. Prior to surgery, the game plan was to get as much of the visible tumors as possible and those that were unresectable would continued to be treated with chemo. However, my “A team” of doctors “GOT THEM ALL”. My doctor at MSK is one of a few people in the world who would have attempted such a difficult procedure. As he says, operating on the liver is like operating on Jell-O (it’s a moving target and very fragile). I will continue to take my chemo and be closely monitored, but I can now say with incredible joy, “I am NED (no evidence of disease). This is a glorious Thanksgiving.

Please join us in counting our blessings and giving thanks. More importantly, please pause today and give thanks for the wonderful things you enjoy.

Thrive on,
Paul