The new service, provided by HealthUnlocked, allows our members to blog about their experiences, comment on posts by other members, ask questions to the rest of the community and follow the LUPUS UK blog to read more about what we are doing – All of this in a safe and friendly environment.

Connect with LUPUS UK and the people affected by lupus.

• See what other people with lupus are doing and thinking
• Answers from people within the lupus community
• Tools to help you make choices that are right for you

If you think that you would be interested in joining this new community then please go to www.lupusuk.healthunlocked.com and sign up.

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Veronica Toescu has now moved on to specialise in counselling services. Thanks go to Veronica for all the help and support she has given to lupus patients over the years and for her great input into the research projects in which she was involved.

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In partnership with Vodafone, JustGiving fundraisers can now receive donations via txt message!

“JustTextGiving, the UK’s first completely free text donation service is now available to JustGiving fundraisers. Create your unique six-digit code, share it and receive donations to your JustGiving page via text message.”

Why use JustTextGiving?

You’ll raise more

Reach more people in new ways – your sponsors can donate anytime, anywhere.

It’s quick and easy

Create your unique six-digit code, share it and receive text donations to your JustGiving page.

It’s free

All text messages are free to send on all networks and 100% of every donation (plus 25% Gift Aid) goes to your charity.

How it works:

Create your own JustGiving fundraising page now!

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So when WMLG committee member John Hibbs, wrote to Stephen asking for his support, and the reply was yes, John set to work on the website to ensure it would withstand the huge surge in traffic!  With the help of local internet consultant Philip John, the WMLG site was temporarily moved to a new host.

Following the tweet late this morning, our site has had almost 3000 hits, with over 5000 page views! #LUPUS was even a UK trending topic on twitter as many thousands of people re-tweeted the link. Traffic is still high as people in the US are now beginning to re-tweet the link too.

Thank you to everyone for your support, especially Mr Fry!

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Today is World Lupus Day!

Tell the world about lupus by sending a text or e-mail to 10 people who do NOT have lupus at approx. 12.30pm on Tuesday 10th May, with the following message:

“Today is World Lupus Day. Please forward this message to 10 more people and help spread the message throughout the world, Thank you – LUPUS UK”

You can also use facebook & twitter to share a link to this website for people to read more about what lupus is!

Join the World Lupus Day facebook event!

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Names being taken to fill these places NOW!

Criteria to fulfil – Must sign promise-form committing to raise a minimum £950 and to wearing the official LUPUS UK running vest during the event.

Must be able to organise own travel and stopover in London – possible for Runners local to Dudley area to travel with the Action Heart Team via coach.

For more information and/or to apply for a WMLG Golden Bond place contact:

Yvonne Norton Tel: 01902 498236 or e-mail: yvonne@wmlg.freeserve.co.uk

New to running? First VLM entry? Running & training tips provided with regular contact from John Hibbs (WMLG advocate and twice London Marathon Runner).

Support/suggestions for raising sponsorship – information leaflets, collecting boxes etc supplied.

LUPUS UK/WMLG stand at ExCel exhibition during VLM registration days.

Lupus Cheering Points along route to encourage Runners.

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The ballot entry system will close when a total of 125,000 applications have been received. Last year the ballot reached this maximum within 24 hours, so get your application in fast.

The London Marathon is the largest annual fundraising event on the planet – runners have raised over £500 million for good causes since the race began in 1981.

If you are successful we would welcome you to run for us and we will support you all the way!

Good luck!

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After months of arduous training, each runner completed the course and, in doing so, raised valuable funding to help lupus research/patient care.

Whilst running the course, Dave Jones, alias Wally Wombat, managed to give a terrific interview to the BBC as well as blowing up and modelling balloons which he gave to the crowds of onlookers.

For the first time ever, a Lupus Cheering Point was set up outside the Ministry of Defence (opposite the London Eye). Organised by John Hibbs, the cheers were led by the Hibbs Family – thank you Team Hibbsy for supporting WMLG, LUPUS UK and LUPUS EUROPE runners so fantastically.

WMLG runners finishing times:

The London Marathon is one of the biggest running & fundraising events in the world and takes place on Sunday 17th April 2011.

West Midlands Lupus Group has 12 runners in this year’s event and along with a further 20 runners for LUPUS UK we want to ensure all of our runners get an extra special cheer!

The cheering point will be located at 24.5 miles along the embankment opposite the London Eye.  Just look out for the big LUPUS UK sail banners!

We hope you can come along and enjoy a magical day supporting our Lupus Runners as they take on the challenge of a lifetime!

Join the LUPUS UK/WMLG London Marathon facebook event.

If you require any further information please contact John via email john@westmidlandslupus.co.uk.

Official Virgin London Marathon website.

Google Map of the cheering point.

A good way of finding this help is to join a local support group – West Midlands Lupus Group (WMLG) offers people living with lupus a chance to meet and share experiences with others.

Why join us?

• It’s one of the best ways to make a real difference to the lives of everyone living with lupus.
• Membership makes you an important part of the only UK registered charity, with over 6,000 supporters, helping people with this serious condition.
• Most importantly, your invaluable support will help us to grow, to move forward and to force breakthroughs and advances in the search for better treatments and a world without lupus.

The benefits of joining are:

• telephone support from local trained WMLG Contacts
• social support via groups in Harborne, Shrewsbury, Hereford & Stratford-upon-Avon
• a Drop-In Clinic at Russells Hall Hospital, Dudley, with speakers and medical help
• two open meetings a year with medical and other speakers
• access to free educational materials – posters and leaflets
• the opportunity to attend the annual LUPUS UK conferences at a subsidised rate and learn what is being done nationally to help the lupus cause
• realising you are not alone in coping with lupus

All our members receive 3 issues of the LUPUS UK national magazine NEWS & VIEWS each year and 3 issues of the WMLG newsletter LUPIE NEWS.

The annual subscription (£10 single member £15 joint membership – 2 people at same address) gives membership of the national charity LUPUS UK and WMLG (members in other areas will be put in contact with their Regional Lupus Group).

We look forward to welcoming you to the West Midlands Lupus Group.

Membership Form

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