The Womb Warrior

Reflecting on 2014, Family-building, and Possibilities

2014-12-31T15:55:00.000-08:00

With the new year on the horizon, I've been in a little bit of a panic. I am no stranger to anxiety and panic attacks, and while this hasn't risen anywhere near to the level of panic attack (with work over the years, those appear to have mostly been dealt with), the anxiety is nevertheless present. I just cannot believe 2014 is over! Where did it go? I've been feeling like I must not have done anything with it because it barely seems to have existed! 2013 was by far one of the worst years of my life - I lost a baby and my dad, among others. I remember being at the end of 2013 and thanking God for both the blessings 2013 had brought (my sweet, silly kitty, for one), and that it was OVER. But this new year's eve, I feel so desperate for MORE of 2014!

Then someone reminded me of some of the great pictures I'd posted through the year, and I decided to go back through them and make a collage for myself of a handful of amazing moments and memories from the year. I am SO glad I did!

Of course this year wasn't perfect. I lost a grandfather. And amazing experiences don't just fall into your lap (98% of the time). You have to work for them, persist, and be ready for the unexpected. That's exactly what I did. At the beginning of the year, I had several goals: Become a life coach by taking and finishing the UC Davis program (done), incorporate my business (done), become a public speaker (not yet), finish a first draft of my first novel (not yet), put our house on the market so we can by our dream home (done), pick an adoption agency (done), finish our adoption agency application (not yet), plan and take a 3-4 week trip overseas (done), visit my husband's side of the family (done), work on a few close friendships (ongoing), and lose 15 more pounds or 1 more clothing size (LOL).

You can see that some goals were met while others weren't. To be fair, though, it was a bit ambitious. Probably unrealistic. But OMG, what an amazing year it led to! I made incredible friends in my coaching class, and got to see things out in the world that so overwhelmed me, I was overcome with tears of joy while in their presence. No wonder I want MORE of 2014!

On the one hand, my list, as a set of goals, was unrealistic and overwhelming. People ask me why I haven't made more progress on the adoption paperwork - why I seem to be putting it off. Some of it might be that I'm procrastinating from a fear of failure, but honestly, it's because when it comes to building my family, well, I have more control over the outcome of other things. Admittedly, we need a better support community for us to move forward through the adoption process, so that's something I'll be looking for in 2015.

But if, instead of viewing my overwhelming, unrealistic list as one of goals, we view it as a list of possibilities, then WOWZERS! Anything can happen!

People are different, and while some do well with goals, some of us, including myself, thrive under a looser construct. We need space for creativity and bounce back faster from the unexpected when we aren't constricted by what we see as boundaries and rules that our Gremlins tell us we should be following and make us feel bad if we don't.

My resolution for 2015 is this: Instead of goals, I will have possibilities. Because that's really what they are anyway.

Are you more motivated by goals or possibilities? How did you do with them last year? How do you think this applies to building your family or coping with infertility?

Wave of Light 2014

2014-10-15T22:11:00.001-07:00

I am the mother of 4 children who will never have a birthday.

Every year on this day, people like me who have experienced pregnancy or infant loss, and others who support us, light candles in acknowledgement of our losses and to help spread awareness. I learned of this and began my participation after my first two miscarriages, in 2010. That was the year I discovered an amazing community of bloggers and tweeps who shared my struggles. I hope if you have this in common with us and haven't reached out, that you will. We are here for you.

Here is my Wave of Light for 2014. This year is a little different - we have an overly curious kitten, so no open flame this year. Nevertheless, here's to my babies in heaven, Athanasios, Barbara, Cecilia, and Diomedes. My prayers are always with you, and I hope you're surrounded by the love of your grandpas, too.

Reboot!

2014-07-20T15:18:00.001-07:00

Hello my loyal and lovely readers! In case you hadn't noticed, I've been on a bit of a blogging hiatus. A lot has happened in the last year, since my last post. The last time I blogged I talked about things happening in my life and feeling like clay being shaped by unseen forces. Since then, my dad died, a kitten showed up at our house and adopted us, I traveled to three other countries, I started a new business, another friend died, and we are moving forward with choosing an adoption agency!

But, none of that is what this post is about. Because you see, Thursday is the start of BlogHer 2014! It's being held in San Jose, where I partially grew up, and driving distance from where I now live. That fact has inspired me to reboot this blog, and start a couple of others to support my brand new website going live any day now! I hope you will all do me the honor of reading what I have to say over there as well, when those blogs are up and running.

One of the primary hotels conference attendees are staying at is the Fairmont in San Jose. I just stayed at the Fairmont for my 20-year high school reunion this weekend. And yes, I will be back on Wednesday for BlogHer. But after my stay I have a few tips to share! 1) Join the President's Club to get free WiFi. 2) The in-room minibar is very thorough, and of course also very expensive, and very sensitive! If you move anything you will be charged for it as well as a room service fee. 3) The Fairmont hotel parking is valet only. 4) If your car is a hybrid, you pay half for overnight guest parking. 5) At least some of the valet parking is out in the sun. When I got my car back it had clearly been sitting in the sun all morning. My plan on Wednesday is to tip a valet a few extra dollars when he takes the car, show him the sun visor and ask him to put it in the windshield when he parks the car. 6)The valet/bell hop system is poorly managed and understaffed. My experience this weekend was that when a conference is checking out on Sunday, they do not have bell hops available to come to your room and get your luggage at check out time. The wait to have your car retrieved gets very backed up. Maybe it's better if you check out earlier on Sunday, but I would give yourself plenty of extra time if you are on a schedule on Sunday and need to get a car out of the Fairmont's hotel parking.

Also, regarding transportation: if you are driving around the Bay Area, make sure to carry cash for bridge and road tolls. The lowest I know of is $5. And, if you are planning on using public transit, please research it first. Ours is not as convenient or thorough as many back east.

Let me know if you have any other questions about the Fairmont or anything related to San Jose. I will do my best to answer them!

Seven

2013-03-27T19:45:00.001-07:00

There are so many things I could write about right now, and I plan on addressing them, one by one, in the near future. Some of you know what we went through earlier this year. Some of you don't. It suffices to say, I have come out the other side feeling changed, awakened. For the first time in my life, I feel as clay must feel, soft and pliable, ready to be shaped by a master potter into something miraculous.

Master Potter Spins His Wheel, from Nagarjun

I have experienced much loss in my life. The death of loved ones, born or unborn, and other, less critical losses that still manage to carry a certain amount of trauma. But never have I had so many losses occur in such a short amount of time. I read somewhere that the average person experiences a serious loss once every three or so years. From the end of last year, into the beginning of this one, in about seven weeks, we had seven tragic and scary events: Two deaths of loved ones, a miscarriage, an attempted burglary, an out-of-town hospitalization, a loved one’s cancer diagnosis, and a complicated situation of being trapped while pregnant.

Many people recognize some of these as losses. But others are not as obvious. So, as I tell you about them, I intend to include some analysis of my own grief. I'm sure this process will leave me feeling vulnerable. I can only hope to continue to receive the same compassion you have shown me in the past.

Pregnancy & Infant Loss Awareness

2012-10-15T21:59:00.001-07:00

This is Pregnancy and Infant Loss Awareness Month, and today was Pregnancy and Infant Loss Awareness Day. To commemorate our lost babies, many in the community participate in the Wave of Light, lighting candles at 7 PM in our own time zones. Here is mine:

I am the mother of three lost babies, Athanasios, Barbara, and Cecilia. So I light three candles, one for each. They are on our household altar, an Orthodox Christian tradition. Here's another picture so you can see the Icons a little better:

We have an Icon for the patron saint of each of our babies. the largest one, in the center, is Saint Barbara. The smaller one to the left is Saint Athanasios, and the tiny one to the right is Saint Cecilia. There is also a glass Icon of Jesus, and part of our Icon of King David in this photo (David is the Wacky Wicketeer's patron saint.) We have others on our household altar and in our home, but these are the ones the help us grieve our babies. Each saint has a name/feast day, and it's on these days that we memorialize that lost child and all that happened or didn't happen centering on their part in our lives. In this way, we can remember them and pray for them once a year, without obssessing over the exact dates of events.

My first two losses, Athanasios and Barbara, were "missed miscarriages". This means that fetal death was diagnosed while they were still in the womb. I then waited for my body to push them out. Athanasios took a week. Barbara took two and a half weeks. When people ask what date I had the miscarriage, or I have to fill it out on a form, this always befuddles me. What date do I pick? The date when I had that eight-week ultrasound done and the heartbeat that had been there two weeks before was gone? Or the date I went into my mini-labor? Or the date I passed the fetal tissue? Having one day each year to grieve these events, and the term milestones and due date that were never reached, and the day of my BFP, helps me cope. It helps to keep my life focused on living.

I want to note here that in our theology, humans do not become Angels. Angels are another type of being entirely. So, though I may occasionally use the term to describe my babies in Heaven, I use it loosely, not under the belief that they are actually Angels. The more accurate term to me is "Lost Babies". I prefer to be called a "Baby loss mother" or "Mommy of a lost baby" than "Mommy of an angel". But, for my loss to be acknowledged at all is both an honor and a rarity, so I really don't mind the use of the term angel in doing so.

Thanks for reading this post. And to those that go so far as to acknowledge my losses, a big thank you for your compassion and respect. One in four women of childbearing age experience pregnancy or infant loss, yet it is still a taboo subject. This means many parents are left to grieve alone. I hope you'll help me change that.

PCOS

2012-10-08T13:11:00.002-07:00

Photo of Pearls from Wikimedia Commons

September was PCOS awareness month, and suddenly it's over and I realize I didn't do an official post for it on this blog! I did address my PCOS in my last post, so if you want to know more about it, you can read it here. I also addressed it further in a guest post for the Resolve New England blog. I'm rather proud of that post, and would love for you to go read it at http://www.resolvenewengland.org/2012/09/pcos-from-not-me-to-thats-me/.

Something that a lot of people don't think about is that PCOS, or Polycystic Ovarian Syndrome, covers a huge range of experiences and symptoms. It's even in the name. The term "syndrome" references the fact that it is a spectrum disorder. In some women, PCOS causes ultra-long or non-existent menstrual cycles, but not all. For some it's a cause of infertility, but not for all. For some, it causes miscarriages, but again, not all. Some women, but not all, have related weight difficulties, and some struggle with facial hair and/or acne. But it's a little different for almost everyone.

The most important piece of information to take from this though, is that PCOS is very common. It's considered the most common cause of infertility, and it is estimated that between 5 and 10 percent of women of reproductive age are affected by it. You can learn more about it here.

The Decision to do DEIVF

2012-09-12T16:03:00.000-07:00

Fractal Ovary by Gilberto Santa Rosa

So where are we now as far as trying to add to our family? What’s the next step?

Basically, we have decided our next step will be to use donor eggs, also known as DEIVF (Donor Egg In Vitro Fertilization). It’s been tough getting here. Not just because of all we’ve been through. Making the actual decision has been hard. And since we can change our mind at any time realistically until our donor has started meds, maintaining this decision is also challenging.

First, it took some time for the Wacky Wicketeer to come around to the idea. When I brought it up at first he was just negative about it. Then he told me why – because he couldn’t imagine his DNA combining with anyone’s other than mine. It was this really weird, romantic, unexpected reaction, so I was like, “awww!” and “WTF?” at the same time! Later, we talked about it some more and I told him I didn’t think he realized what he was taking away from me by deciding we wouldn’t use donor eggs. As opposed to donor embryo, he was taking away my opportunity to bring more of HIM into the world. This man I love so much…I just can’t imagine the world without him in it, and part of my safeguarding that, since I know it will happen someday, is in trying to duplicate him. LOL. I know, that sounds strange, but there it is.

As compared to adoption, which he was ready to go ahead with, DEIVF would allow me to be pregnant, give birth, and possibly breastfeed. I would still have the opportunity to be the child’s birth mother, if not its genetic mother. I might be ready for adoption someday, but I’m not right now. To be ready for it, I would need to grieve these things.

He was still reluctant. Then one day he came home from work and said he was ready to proceed using donor eggs. I asked him what changed his mind. He told me a guy at work told him he needed to “just get over it!” Hah! After all that I had said, it took some guy from work who had been through an IVF or two to have his child, telling my Wacky Wicketeer to get over it.

I have heard it recommended that once you have a failed cycle at a clinic, you should change clinics. I think if it was a complete failure, i.e., no frozen embryos remaining, this is likely excellent advice. Each clinic I’ve been to has made little mistakes here or there that impact my confidence in them as a major part of my Fertility Team. So, we decided to change clinics. That same work friend of his, and an online friend of mine, each recommended a particular clinic in the Bay Area. So, we are switching to that one.

Because of the change, and because our initial infectious disease testing has expired, we have a lot to do before we’d actually cycle. I found myself procrastinating in getting the records and such. I finally realized that I hadn’t fully come to terms with the loss of my genetic connection to this theoretical child. I was, and still am, in the midst of grieving this aspect. My therapist says it will continue through to the child’s birth, but that the important part is that I get through some initial stages of it first. What I realized was that I was still in some denial about this being what we need to do.

I have recently lost about 20-25 pounds. For the first time during this infertility roller coaster, I have a healthy BMI. As I’ve mentioned before, the primary cause of my infertility and miscarriages is poor egg quality caused by PCOS. Hence the egg donor route. However, the weight loss, and the fact that I’m now running regularly, can help regulate my insulin, and possibly result in my ovaries being less PCOS-ey. (How’s that for a made-up word?) In summary, my improved weight could mean better fertility. Of course, we still have that pesky little slow sperm problem, so it’s still unlikely we’d get pregnant on our own.

Over the course of this journey, I’ve become a fairly religious person. So here’s what goes through my head: What if God meant for me to get healthy again before having kids? What if he delayed my dreams coming true because I was headed down the same path to diabetes and kidney failure that killed my Grandma at age 63? So just in case, how about giving my body a few cycles of trying out the old-fashioned way? Now that my eggs might be better? Maybe after all, God does intend us to use an egg donor, a donated embryo, or to adopt a born child. Maybe the child or children that we are destined to parent are a different genetic combination. But we can’t know that. I just need to give my body this opportunity, to accept the reality that we need an egg donor.

So, we’re taking our time getting the paperwork and initial testing done for the new clinic. Then we have to pick out a donor. By then, we’ll have gone through a few cycles of trying to get pregnant on our own again. What’s meant to be, will be!

If you have any questions, please ask! Nothing is off limits here. Just please be kind. J

Filling My Life with Other People’s Children

2012-09-06T10:53:00.001-07:00

Yes, it has been a loooong time since I’ve posted! I spent most of the year not thinking about kids of my own. Or at least, trying to not think about them. I had a few ideas for posts, but each time felt like I couldn’t focus on this blog at that moment.

One of the things that filled my life this year is other people’s children. This is an emotionally charged topic for us infertiles. Most of us experience so much longing for children of our own, envy is unavoidable. It’s not that we’re not happy for those that have kids. It is completely possible to be happy for someone and jealous of what they have at the same time. It’s part of the grief we have for that loss of what we expected. The loss of a dream of children, whether one or many, no matter how temporary or permanent.

I was there a couple of years ago. I’ve been on this TTP journey for five years now. Between years one and three-and-a-half was the hardest. I went through my miscarriages, my first failed IVF, and I couldn’t bear pregnant bellies, babies, or hardly kids of any age. When I was younger I found other people’s kids mostly irritating anyway. It seemed like so many of them were undisciplined. Now I have a better understanding of child development, and while there are still some brats that I will not hesitate to yell at or lecture, most kids are mostly good, and some even highly entertaining and/or helpful.

I have my Priest to thank for helping me move past my jealousy about other people’s kids. He knew about our infertility and miscarriages, and at the three-year mark, he suggested I help teach the Pre-K Sunday school class. It was hard at first. Seeing that adorable bunch of three and four year olds most Sundays was very emotional for me. But it was also exhausting and fulfilling. The following year, I took over as head Pre-K teacher, and I’m doing it again this school year. It has been wonderful watching them grow up, and even brings a tear to my eye as they move on to their Kindergarten class. We take a summer break from May through September, and I am so excited to start back up in October, and meet my new batch of three year olds!

I also have my nephew to thank, via my only sister. My sister got pregnant in between my two pregnancies that ended in miscarriage. I was so excited for her, and at the same time jealous. Even now, I still struggle with jealousy during others’ pregnancies. My Monchichi (my own personal nickname for my nephew) was born just past my third year mark. From day one, I have felt a connection with him that is indescribable. He reminds me of my sister as a baby, and it sort of feels like watching my best friend grow up all over again! (I’m over four years older than my sister.) I miss him so much when I’m not with him, and much of my traveling this year has been to visit him. I can’t wait until he’s old enough to come visit Aunt Jamie! He’s almost two, and we have conversations where he talks nonsense and I pretend to understand. I also give him raspberries, hang him upside down, and play silly games with him. We laugh so much together! I love him to pieces.

Finally, I have my Godkids to thank, via their mom, my friend Rebecca. Technically, we only sponsored the boy, but I don’t generally feel the need to distinguish them on that level. If that little girl ever needed me, I’d be there for her as much as for our Godson. The boy is 10 and the girl is 8 and a half. They’ve been in our lives for almost 2 years now. This past year I’ve had the opportunity to have them visit on an almost weekly basis. We do some schoolwork, character building, some sports, games, art projects, watch some cartoons, eat dinner and they sleepover. I often read to them at bedtime. They bring such innocence and light into my life! On weeks when I don’t get to spend time with them, life just isn’t quite as good.

I have other friends and family with kids who I would love to know better, too. Unfortunately, many of our friends dropped off the map once they had kids. Some people seem to think that since we don’t have kids, we don’t want to be around them. Admittedly, that may have been true once upon a time, when we were actively grieving. But it hasn’t been for awhile now. Sadly, we have lost friends over these years dealing with infertility and pregnancy loss. But, it has made more room in our lives for our younger friends!

For those of you dealing with infertility, how do you feel about other people’s kids? Has your experience changed over the years? Do you think you’ll try to have more of other people’s kids in your life?

Shaking It Out

2012-01-21T16:36:00.000-08:00

My favorite current song is Florence + The Machine's "Shake It Out". After four and a half years of trying to have a baby, failed IUIs, IVFs, and miscarriages, with diagnoses of both male and female factor infertility, I feel like I need to "Shake It Out".

After our last failed embryo transfer in November, with no frozen embryos left, and at almost 36 years old, the odds becoming increasingly stacked against us having a our own genetic child, spending $20,000 a pop on each additional IVF attempt feels like a massive waste of money. Unless something else changes to improve our odds, I don't see us doing more IVF attempts using my own eggs. Neither does the Wacky Wicketeer. To be honest, I don't really want to put my body through that again for these odds. I have no idea how some women go through it seven times. Two has done me in. I can feel my organs, different pieces of my body, rebelling against the process; Screaming at me to stop.

Right now we're not sure what family-building route we will take. Donor egg? Donor embryo? Adoption? There's still no goalie in place, but with our odds, we know better than to get our hopes up that a) we'll get pregnant, plus b) we'll stay pregnant. Miracles do happen, but in the meantime we are researching our options, and taking some time to "shake the devil off our back", as Florence might put it.

Take a minute to enjoy the video and read the lyrics. I think we can all use an occasional "Shake It Out"!

Regrets collect like old friends
Here to relive your darkest moments
I can see no way, I can see no way
And all of the ghouls come out to play
And every demon wants his pound of flesh
But I like to keep some things to myself
I like to keep my issues drawn
It's always darkest before the dawn

And I've been a fool and I've been blind
I can never leave the past behind
I can see no way, I can see no way
I'm always dragging that horse around
And our love is pastured such a mournful sound
Tonight I'm gonna bury that horse in the ground
So I like to keep my issues drawn
But it's always darkest before the dawn

Shake it out, shake it out, shake it out, shake it out, ooh woaaah
Shake it out, shake it out, shake it out, shake it out, ooh woaaaah
And it's hard to dance with a devil on your back
So shake him off, oh woah

I am done with my graceless heart
So tonight I'm gonna cut it out and then restart
Cause I like to keep my issues drawn
It's always darkest before the dawn

Shake it out, shake it out, shake it out, shake it out, ooh woaaah
Shake it out, shake it out, shake it out, shake it out, ooh woaaah
And it's hard to dance with a devil on your back
So shake him off, oh woah
And it's hard to dance with a devil on your back so shake him off

And given half the chance would I take any of it back
It's a fine romance but its left me so undone
It's always darkest before the dawn

Oh woah, oh woah...

And I'm damned if I do and I'm damned if I don't
So here's to drinks in the dark at the end of my road
And I'm ready to suffer and I'm ready to hope
It's a shot in the dark and right at my throat
Cause looking for heaven, found the devil in me
Looking for heaven, found the devil in me
Well what the hell I'm gonna let it happen to me

Shake it out, shake it out, shake it out, shake it out, ooh woaaah
Shake it out, shake it out, shake it out, shake it out, ooh woaaah
And it's hard to dance with a devil on your back
So shake him off, oh woah

Shake it out, shake it out, shake it out, shake it out, ooh woaaah
Shake it out, shake it out, shake it out, shake it out, ooh woaaah
And it's hard to dance with a devil on your back
So shake him off, oh woah

Florence And The Machine Shake It Out lyrics found on http://www.directlyrics.com/florence-and-the-machine-shake-it-out-lyrics.html

My Organization Memes

2012-01-06T22:34:00.000-08:00

Hello, dear readers, and happy 2012! Again, it’s been too long since my last post. I have so many ideas for posts backed up in my head, I hardly know where to start. So, I asked around, and here’s where I’m starting: My organization memes.

I do writing, legal and consulting work as an independent contractor from home. So, I make my own work schedule and limit my hours to only part-time. I also do volunteer work for my Church, run a local book club and co-run a local peer support group for infertile women. The point being, I have lots of stuff to do, but no kind of a regular schedule, and much of it not bringing in any money. Since that leaves the Wacky Wicketeer as the primary breadwinner, I also feel it’s my responsibility to be the primary homemaker. Yes, I am a proud housewife!

My unorthodox schedule lends to time passing without much housekeeping getting done, either because it doesn’t occur to me to do it, or it doesn’t have the pressure behind it that makes it a higher priority. So I thought why not use memes? You know, the way bloggers do for regular posts like “Wordless Wednesday”, “Meatless Monday”, etcetera. So here’s what I came up with:

Mail, Media & Medicine Mondays – This helps me make sure I check my two mailboxes a minimum of once a week, and that the mail actually gets sorted, including any coupon clipping. It also is when I schedule social network status updates for the dozen or so accounts I run as a volunteer. Third, it’s when I sort all my pills out into their little weekly/daily labeled boxes.

Tasty Tuesdays – This reminds me to do my meal planning and grocery shopping.

Wash, Water & Weigh-in Wednesdays – Wash refers to laundry. Of course, I can’t do ALL my laundry in one day, but this reminds me to get it started, wash those things I might put off, like extra linens, and do any leftover folding, hanging and ironing. Wednesdays are also for watering the potted plants and weighing myself.

Thoughtful Thursdays – I try to focus on reading, research and writing.

Fresh Fridays – Fresh is just another word for clean. Each Friday I pick a room to make “fresh”. My house has 12 rooms plus the hall/stairs/landing area, so it’s a lot for one person to clean. Having a day each week devoted to one room is supposed to help me keep up without feeling overwhelmed. Having it be a last-minute decision as to which room also allows me to pay more attention to rooms that need it. Check back with me in a few months to see if it’s working!

What do you do to help keep yourself on task and accomplish those mundane things that could easily slip by, like housekeeping?

Also, since I'm so behind on blogposts, what would you like me to post about?

Wave of Light: Pregnancy & Infant Loss Awareness Day

2011-10-15T22:16:00.001-07:00

Saturday, October 15 was/is Pregnancy and Infant Loss Awareness Day. To honor those babies gone too soon, many of us participated in a "wave of light" by lighting candles at 7 pm in our time zone.

To mourn and honor the three babies we've lost, the Wacky Wicketeer and I named each one after a Saint, in the Greek Orthodox tradition of naming babies. Also in the Orthodox Christian tradition, we have icons of Saints in our home, mostly in an area set up specifically for prayer. The patron Saints of our angel babies are Athanasios, Barbara, and Cecilia. So far we have icons for Athanasios and Barbara, but have yet to find one for Cecilia. On their Name Days, we light a candle and say a prayer for their souls and ours. So we thought it appropriate that on this community-wide day of remembrance, we light three candles and say prayers for all affected by pregnancy or infant loss. (If you look closely at the photo, you'll see the icons of Saints Athanasios and Barbara on the left.)

Our wave of light.

So how do I feel about these losses? I still struggle on occasion to understand why. I struggle with dreams of who my babies may have become. But then I remind myself that the why doesn't matter, and that my babies are with God. This allows me to see His light in every baby--to see just how precious each one is. I can see Him shining through in their little faces, and feel connected to all my babies, past, present, and future.

Five Snowflakes

2011-09-04T17:45:00.000-07:00

The thing about IVF is that it's relatively unpredictable. Most people who haven't been through it don't realize the combination of steps and gambles, twists and turns, along the way. We just had one of these happen to us. Fortunately, it may be a blessing in disguise.

First of all, I've mentioned before that I was overstimmed during my first IVF, which was likely the cause of my low egg maturity rate, and that my stim dosages were decreased this time, in an attempt to avoid overstimulation. Well, it seems to have worked! IVF #1: 21 sizeable follicles, 19 eggs retrieved, 8 mature, 5 embryos after fertilization with ICSI. IVF #2: 9 sizeable follicles, 11 eggs retrieved, 7 mature, 5 embryos after fertilization with ICSI. So you can see that the success rate at each step has been higher.

Today was the third day after egg retrieval (which by the way, was curiously more painful this time). We learned from the Embryologist that all 5 embryos are still growing, although one is slacking. A healthy embryo should be 6 or more cells by this point. Today we had a 9-cell, two 8-cells, a 7-cell, and a 5-cell. If my memory is correct, with IVF #1, we had an 8 cell, three 6-cells and a 5-cell. So the theme of higher success rates at each step of IVF #2 is continuing!

This IVF cycle has been more complicated because we want to do preimplantation genetic screening (PGS) at the day 5 stage, instead of day 3 like last time. In IVF #1, we had a single-cell biopsy done of our embryos at day 3, to test them for a severe chromosomal abnormality, and hopefully prevent another miscarriage. The results came back on day 5, and we had one competent embryo. Two tested as incompetent, and two were inconclusive. Unfortunately, the two that were inconclusive had already ceased growing on their own, or we would have given them a try.

A day 5 biopsy collects more than one cell for testing, and it takes longer to get the results. But it's also more accurate. However, it does require freezing. So our first plan for IVF #2 was to do a freeze-all cycle. But then, considering that we could easily end up with only 1 or 2 embryos to test at day 5, and that the 5-day growth process culls some of the genetically incompetent embryos anyway, we decided to have a back-up plan of preparing for an embryo transfer. In the case that we ended up with only 1 or 2 embryos at day 5, doing PGS seemed pretty pointless. But the result has been that I have had to prepare for both circumstances - a freeze-all, and a day 5 transfer. Having to explain this over and over again to confused nurses was no picnic.

Today, when the Embryologist called with our day 3 results, I was so relieved when she said we still have all five. If we had already been down to 1 or 2 poor-grade embryos, we would have gone in for a transfer today, and I am still in pain from my egg retrieval on Thursday, so I really don't feel ready to get pregnant. I was already getting worried about the very realistic possibility I would need to do a transfer on Tuesday, wondering if I would still be in pain. But, she also had some surprising news.

The Embryologist told me that they always grow a batch of mouse embryos to test the culture medium and lab environment, and that all her mouse embryos had just died. She needed to pull all embryos out of culture. In other words, they all had to be either transferred or frozen. So we froze all five of our embryos. The more accurate term would be "cryogenically preserved", but "froze" is easier to type.

Of course, the idea of something being seriously wrong in my embabies' first nursery concerns me, but I couldn't be happier with the Embryologist's response time, and her focus on saving them. The amazing part is this feels like a blessing. My body does not feel ready to become pregnant right now. This will give me a few weeks to feel completely healthy again.

So when will we get PUPO (pregnant until proven otherwise-describing my state after an embryo is transferred)? Probably anywhere from late September to late October. Vague enough for you? I'll write more about what that part will entail in a later post. For now, we have five snowflake babies resting peacefully. Please pray for them and for us!

As always, please feel free to ask any questions. This often seems like science-fiction to me, but at this point I've probably become so familiar with it, I brush over some points that need explained. No question is too simple.

Thankful Thursday: Spa Professionals

2011-08-25T21:16:00.000-07:00

It has been awhile since I've done a Thankful Thursday post, but as I was getting a massage earlier this week, it occurred to me that I don't know what I'd do without my spa professionals!

I'm thankful for my aestheticians - the ones that regularly wax my eyebrows, and the one that gave me my first ever facial this week! It was just a mini-facial, but it made me feel great. Thank God for the aestheticians that allow me to focus on me, and make me feel beautiful in the process.

Most of all, I'm thankful for massage therapists! They work magic with their hands and arms, kneading the stress out of my shoulders and back, soothing tired, aching arms and legs, and finding tension points I didn't know existed in my hands and feet. I have had some massage therapists that were absolutely heaven-sent. I'm thankful that these skilled people found their way to this profession, where they spend their time and energy helping the rest of us simply feel better.

Friday Freakout: Bad Clinic Behavior

2011-08-19T08:49:00.000-07:00

I don’t understand why IVF clinics aren’t more sensitive to what their patients are going through. I don’t understand why they aren’t more careful to ensure they don’t stress us out more than we already are, and why they don’t make the effort to provide us with more information and greater transparency, so that we can have some sense of trust and control in a situation where we are vulnerable and powerless.

Photo by takomabibelot

The Wacky Wicketeer and I have been patients at three clinics in Northern California. Here are some of the stressful mistakes we have encountered:
·        Failed to diagnose me properly
·        Failed to inform us of miscarriage risks to IUI due to our diagnosis
·        Miscalculated dates on IUI protocol calendar
·        Made us wait over an hour in the waiting room, making our appointment over an hour late (multiple occasions, and multiple clinics)
·        Miscalculated prescription quantity
·        Mishandled post-miscarriage fetal tissue
·        Improperly tested post-miscarriage fetal tissue
·        Lied about limitations of genetic testing of post-miscarriage fetal tissue
·        Failed to return phone calls (multiple occasions, and multiple clinics)
·        Failed to respond to emails (multiple occasions, and multiple clinics)
·        Talked to me like I was an idiot for asking about the safety of progesterone suppositories during pregnancy, after I had already miscarried once while on them
·        Delayed submitting my prescriptions to the specialty mail-order pharmacy until the last minute (I only received them 18 hours before I had to use them because I spent two days on the phone yelling and pleading with people)
·        Failed to timely submit an insurance claim
·        Minimized & failed to warn me about potential recovery time after egg retrieval
·        Delayed my cycle start date by a week for a non-medical reason after we had already rescheduled work, work travel, and numerous other activities
·        Tried to delay my cycle start date by a week for a non-medical reason a SECOND TIME, after we had already re-rescheduled everything around the first change
·        Delayed giving me dates for an injection class until a week before, such that I couldn’t go because I already had bought plane tickets, conference passes, and made reservations for an out-of-town conference
·        Failed to give me a pre-emptive pain med prescription for the most painful experience of my life
·        Failed to provide thorough information on costs and insurance coverage for IVF
·        Failed to provide an information packet of any sort on how that clinic does IVF
·        Lack of transparency as to staffing changes that may be occurring during a cycle

I have received apologies--from a newly-hired nurse for rescheduling, and from a doctor for my painful experience. I still see that nurse and doctor. Nothing else on this list has been corrected or apologized for. For a service that we gamble tens of thousands of dollars on, and that requires us to substantially rearrange our lives for a painful, mere attempt, at having children, the very beneficiaries of our struggle, the fertility clinics, should be more conscientious of how their mistakes and behavior affect us.

The larger, immediate problem when these sorts of mistakes occur is that it strikes at the heart of an in-progress IVF cycle (or other treatment). It makes us doubt the very people that are supposed to be important members of our team. For me, the single thing that most influences my anxiety level during an IVF cycle is my faith and trust in my fertility team. That includes my clinic staff, nurses, embryologists, doctors, phlebotomists, pharmacists and geneticists, as well as my husband. While other people can be supportive and helpful during an IVF cycle, if they aren’t, I can block them out while in-cycle. I can’t block out this group. I need them, and I need them to be reliable and trustworthy.

I know we’re not the only ones, so what clinic mistakes and issues have added to your infertility stress?

Wordless Wednesday: Tired, So Tired

2011-08-17T12:02:00.000-07:00

Can't you see I'm napping?

BlogHer Recap Part 1: Vacation, Expo & Parties

2011-08-16T20:10:00.000-07:00

BlogHer is basically a summer camp for grown up girls who like to be on the internet. I mean this in a very, very, good way. Don’t get me wrong, the Wacky Wicketeer had a great time too, but he is not the target demographic. This year, BlogHer was in San Diego. Just a plane-hop from home!

Vacation

Since we decided to make it a vacation for him and travel as a couple, the Wacky Wicketeer and I arrived in San Diego Thursday morning. I did not register for PathfinderDay because I found out about too late, after we had already made our plans. Also because it cost more money. Fortunately, we were able to check into the hotel early, so we dropped off our luggage, and figured out how we could take public transit to the Hotel del Coronado. Our hotel room at the Marriott was awesome, and from the 22^nd floor, we had a great view. But the Hotel del Coronado is a landmark that has been around since the 19^th Century, and is a work of art in wood.

View from our room at the Marriott

Hotel del Coronado

We spent the rest of the day on Coronado Island, checking out the hotel, having lunch on their deck, and enjoying the beach. And that was my last meal we paid for until Sunday.

Beach on Coronado Island

Expo and Parties

That night the conference really began, with a series of three parties. I had obtained an Expo and Cocktail Pass (a.k.a. the Party Pass) for the Wacky Wicketeer so he could attend these events with me, and each night there were three more parties. All had complimentary food, and we had received drink tickets with our conference badges, so the parties alone made up for the cost of our conference admission.

The Expo was awesome. And huge. And full of giveaways. One woman’s junk was another woman’s swag, and thanks to the swag exchange room, we could take and leave accordingly! The Wacky Wicketeer (a.k.a. the Digital Emperor) was ready to pass out from the effort of trying to consume every ice cream, lasagna, sausage, and other food product being offered at the Expo. Referring to these samples, he called it “Costco on steroids!” Thank goodness there was dedicated time for it on Thursday, because otherwise I would not have had a chance to see most of it. Thanks to the Expo, we got to meet the Pine Sol Lady and the Swiffer Dust guy (on Thursday), not to mention Bob Harper and Giuliana Rancic (on Saturday).

As for the actual parties, they were pretty fun. Though I was pretty disappointed in the first night, Friday and Saturday made up for it. Thursday nights’ parties had pretty bland food. The others were an improvement. My favorite party was Sparklecorn, and you can see the awesome unicorn cake in last week’s Wordless Wednesday post. If the Expo was Costco on steroids, Sparklecorn was girl power on steroids! It was all about unicorns, sparkle, and glow-in-the-dark sticks. The DJ was the best I’ve heard in a long time, and we had a great time dancing the night away! There were also giant, soft pretzels, which I love. Saturday night’s parties were unique and fun, but by the time we got to Cheeseburgher, I was ready to pass out from exhaustion. So we gave away the rest of our drink tickets, and called it a conference.

Fireworks while at the Social Fiesta

The coolest part about the parties was that I got to meet some great bloggers and tweeps that I already knew online: Maya, Dresden, MrsLaLa, and Dead Cow Girl, to name just a few! A highlight was Dresden, upon first meeting us, saying to the Wacky Wicketeer, “wow, you’re cute!” She made him blush and me giggle!

Come back soon to read about Friday and Saturday’s conference sessions!

Friday Freakout: IVF Meds

2011-08-12T12:05:00.000-07:00

I’m calling this post a “Friday Freakout” as a tribute to the fact that my greatest psychological challenge is anxiety. It rots my gut on a regular basis.

So guess what? We’re there. Where? IVF number 2. I started my morning injections of Lupron on Thursday, and start stimming next Thursday night. My protocol is 10iu of Lupron daily until next Thursday, then drop it to 5iu, and add 225iu daily of Follistim. My last birth control pill is tomorrow, so CD 1 should be about next Tuesday. I’m also taking Metformin, prenatal vitamins, DHA, CoQ10, and extra calcium and vitamin D, but these are all oral pills. Only the Follistim and Lupron are injections.

On August 26^th I’ll go in for a monitoring ultrasound, and my RE will decide whether to schedule me to trigger, or have me continue on Lupron and Follistim longer and return for another ultrasound before triggering. Our first IVF, we had a low percentage of the total eggs retrieved that had triggered properly. My understanding of the trigger is that it tells the eggs it’s time to go from 46 to 23 chromosomes, so they can be fertilized. My RE thinks it didn’t work on a lot of them because they had grown too fast. In other words, I was “over-stimmed”.

Even though we had a single, genetically competent, girl embryo that made it to transfer, since she didn’t implant and we didn’t have any others make it to blastocyst stage for freezing, that cycle was a total bust. The only thing it did was give us very expensive clinical data showing we end up with a lot of chromosomally abnormal sperm and eggs, thus conceiving chromosomally abnormal embryos. That is, when they are able to actually conceive.

This time, my dosage of Follistim has been decreased, and an additional stim dropped entirely, with the hope that this will allow more of my eggs to mature a little slower, and properly trigger. This is what we are now hoping and praying for virtually every day.

I’ve also decided that I’m going to learn how to give myself the injections this cycle. That does not mean I will actually be doing them all myself. Nurse Stepmom is again generously giving me my injections, but I’m going to have her teach me how. I’ll do a couple under her tutelage, on the off chance I get stuck having to do it myself. But until that happens, I’m having her do it! I haven’t had pain or a bruise from any of these injections yet, and I firmly believe I owe that to her expertise and skill! This process is stressful enough without having to stab myself every day.

And no, the Wacky Wicketeer is not allowed near my shots. You see, my big, strong husband is afraid of needles. Despite this fact, he grudgingly said to me one day, “I guess I could try giving you a shot.” I replied with a firm, “no way!” I love him for wanting to help, but what I don’t need is a husband passed out on the floor and me still standing there, having to stab myself.

Finally, I promised my tweeps (friends on Twitter, for those who aren’t) that I would share another use for the insulated bags Dove gave us at BlogHer ‘11. Here it is: Transporting our IVF meds that are supposed to be refrigerated! Hey, if it’s good enough for ice cream…

If you have any questions about anything I’ve discussed in this post, please don’t hesitate to ask!

Wordless Wednesday: Sparklecorn

2011-08-10T08:20:00.000-07:00

My BlogHer '11 Experience - Mere shadows
against the sparkly backdrop of woman & blogger power!

The Sparklecorn '11 cake! A variety of perspectives at BlogHer '11.
Photo by Aurelia Cotta.

On Frequent Blogging and BlogHer '11

2011-08-08T21:49:00.000-07:00

Most of you know that I spent much of the last five days in San Diego at BlogHer '11. The Wacky Wicketeer went with me and it was awesome! It was also a lesson in sleep deprivation for me. On the other hand, the Wacky Wicketeer got to sleep all day while I was at the sessions. I'm planning additional posts on our experiences while we were down there, but I'm still waiting to get my hands on some pics that were taken.

Before heading to BlogHer, I read that it was important to identify my primary purpose for attending. Mine was to gain knowledge and inspiration for becoming a more frequent blogger. To that end, I've learned about editorial calendars, prioritizing, memes, and all sorts of helpful tools! Today I even started my own blog editorial calendar. I'm hoping this will help me to better honor your investment in reading this blog.

One of the other things I realized along the way is that I've been making my blog design too complicated. So, you should see some changes soon that will hopefully make it a little easier to read, and give it a cleaner feel.

Before I sign off tonight, I'll leave you with a pic that was a highlight of my trip: meeting Bob Harper, the trainer from The Biggest Loser!

Wordless Wednesday: Celebrating Independence Day

2011-07-06T17:19:00.000-07:00

Wordless Wednesday: My Light from Within

2011-05-25T22:10:00.000-07:00

Photo taken in 2006 by Andrea of Andrea's Images

Cop-out from Blogging About the Rest of My IVF Cycle

2011-04-02T00:28:00.000-07:00

Obviously, I need to finish blogging about my IVF cycle, but I don't feel like it yet. So I grabbed this from Rocket City Rebel's Tumblr site:

Reblog and bold what applies to you.
• I’m loud.
• I’m sarcastic.
• I cry easily.
• I have a bad temper.
• I’m easy to get along with.
• I have more enemies than friends.
• I’ve smoked. (Twice in college)
• I drink coffee. (Down to a cup a day instead of 12!)
• I clean my room daily.

My appearance:
• I wear makeup. (If I’m leaving the house.)
• I wear a piece of jewelry at all times. (Except in water, I inevitably at least have on earrings or my wedding ring)
• I wear contacts.
• I wear glasses.
• I have braces.
• I change my hair color often.
• I have a piercing.
• I have small feet.

Relationships:
• I’m in a relationship now. 
• I’m single.
• I’m crushin’. (On the same person I'm in a relationship with! Yes, I know that's cheesy.)
• I’ve missed an ex before.
• I’m always scared of being hurt.
• I’ve told someone I loved them when I didn’t.
• I’ve told someone I didn’t love them when I did.
• I’ve been in love more than two times.
• I believe in love at first sight.

Friendships:
• I have a best friend.
• I have at least ten REAL friends. (I have lots of IRL friends, but my criteria for what is a REAL friend is rather stringent.)
• I’ve gotten a phone call in the last 48 hours from a friend.
• I’ve beaten up a friend.
• I’ve been in a serious fight with a friend.
• I can trust at least five people with my life.

Experiences:
• I’ve been on a plane.
• I’ve taken a taxi.
• I’ve taken a city bus.
• I’ve taken a school bus.
• I’ve made a speech.
• I’ve been in some sort of club.
• I’ve won an award.
• I’ve spent 24 hours on the computer straight.

Music:
• I listen to R&B.
• I listen to pop.
• I listen to techno.
• I listen to rock.
• I’m one of those people who play songs repeatedly until I hate it.
• I download music.
• I buy CD’s. (Not anymore)

Television:
• I spend at least six hours a day watching television.
• I’m in love with Days Of Our Lives.
• I’ve seen and liked the O.C.
• I’ve seen and liked One Tree Hill.
• I’ve seen and liked America’s Next Top Model.
• I’ve seen and liked CSI.

Family Life:
• I get along with both of my parents.
• My biological parents are still together.
• I have at least one brother.
• I have at least one sister.
• I’ve been kicked out of the house.
• I’ve ran away from my home.
• I’ve sworn at my parents.
• I’ve made my parents cry.

Whoa, that section on Family Life was a little weird!

Wordless Wednesday: Hope

2011-03-09T11:00:00.000-08:00

To My Future Children

2011-03-05T20:22:00.000-08:00

A song came on the radio when I started my last post, that made me feel like it should be dedicated from me to my five embies, as my future children (and made me cry-or maybe that was the progesterone I'm on). It's an 80's song called "The Promise", by When in Rome. Of course it wasn't written for this purpose-It's a romantic love song, but it strikes a chord in me right now. Here are the lyrics, and the music video:

If you need a friend,
don't look to a stranger,
You know in the end,
I'll always be there.

And when you're in doubt,
and when you're in danger,
Take a look all around,
and I'll be there.

I'm sorry, but I'm just thinking of the right words to say. (I promise)
I know they don't sound the way I planned them to be. (I promise)
But if you wait around a while, I'll make you fall for me,
I promise, I promise you I will.

When your day is through,
and so is your temper,
You know what to do,
I'm gonna always be there.

Sometimes if I shout,
it's not what's intended.
These words just come out,
with no gripe to bear.

I'm sorry, but I'm just thinking of the right words to say. (I promise)
I know they don't sound the way I planned them to be. (I promise)
But if you wait around a while, I'll make you fall for me,

I promise, I promise you...

I'm sorry, but I'm just thinking of the right words to say. (I promise)
I know they don't sound the way I planned them to be. (I promise)
And if I had to walk the world, that make you fall for me,
I promise you, I promise you I will.

I gotta tell ya, I need to tell ya, I gotta tell ya, I gotta tell yaaaa ...

I'm sorry, but I'm just thinking of the right words to say. (I promise)

I know they don't sound the way I planned them to be. (I promise)

But if you wait around a while, I'll make you fall for me,

I promise you, I promise you...

I'm sorry, but I'm just thinking of the right words to say. (I promise)

I know they don't sound the way I planned them to be. (I promise)

And if I have to walk the world to make you fall for me,

I promise you, I promise you I will ...

I will...

The IVF Experience: Egg Retrieval through Day 3

2011-03-05T16:37:00.000-08:00

We last left off at the HCG "trigger" injection. I used to think the sole purpose of the HCG was to make you ovulate, so I wondered what it's use was in an IVF cycle, when they don't want you to ovulate before they retrieve the eggs. It turns out it also tells your eggs to switch from 46 to 23 chromosomes-an important step if you want room for the 23 chromosomes a sperm will add!

Thirty-five hours after triggering, I had my egg retrieval (ER). This entailed not eating or drinking anything-not even water-from 5 in the morning until my retrieval just after noon. The water was absolutely the toughest part of that! At the clinic, I filled out more forms, changed into a hospital gown, hairnet, and booties. I was allowed to keep my bra and socks on, so I wore my special silly socks to help keep my spirits up and my feet warm! Besides, other than your hoohah, your feet and calves are what your surgery team ends up seeing most of the time, and you want them in a good mood!

Nurse "Sweet" was my prep and recovery nurse, and first she tried to put the catheter in my hand for the IV. It didn't go so well. So, the anesthesiologist, Dr. "Silent" took care of it, hooked me up, then walked me into the OR. As I'm climbing onto the table and swinging my knees up over the stirrups, I'm already feeling like I've had a couple drinks, and frankly, I don't even remember laying down, that sedation worked so fast! I do remember asking my main IVF Nurse, Nurse "Mellow" if she liked my socks! She said yes, they're great!

Next thing I knew, I was feeling awesome and back on my original gurney, and I just really wanted to keep sleeping, but Nurse Sweet insisted I had to wake up! I vaguely remember telling her and maybe someone else in the room they they all did a great job, that it was awesome, that they were awesome and I loved them all, and that I would bake them zucchini bread. I was probably quite entertaining, but hopefully welcome comic relief after the cranky patient I overheard before me.

While I was asleep, here's what my team was supposedly doing: The RE takes a long needle, and using a speculum and an ultrasound machine, inserts it into the vagina, through the vaginal wall, and into each mature follicle in each ovary. Dr. Analytical said he retrieved 19 eggs, so that would be 19 follicles. Fun, eh?

After a brief recovery period, I was sent home with painkillers and instructions to take it easy, not immerse myself in water, lift more than 10 lbs, have sex, or get my heart rate over 120 for two weeks, among other things. Pre-op was at 11:45, ER at about 12:45, and I was home at 3:30.

The next afternoon, Nurse Mellow called to give me the fertilization report. Out of 19 eggs, I only had 8 that were mature. This was a big drop to start this process with, and I was horribly disappointed, not to mention still in physical pain. Only five had fertilized, with a sixth runt that was a possibility. This made me cry. Looking forward, I knew we still had to get to Day 3, then through genetic screening, and to Day 5, for transfer or freezing. Then, of course, there's my history of pregnancy loss. All those hurdles seem awfully daunting with 5, maybe 6 embryos. (Not to mention-only 8 out of 19 were mature?! No wonder we're infertile!)

Today we got our Day 3 report, and while number 6 didn't make it, the other 5 did! We have another one falling a little behind, but still ok. Ideally, they want 6 or more cells on Day 3, and when Nurse Mellow called me this morning, she said number five only had 5 cells. However, three of my embies were already up to 7, and one of them even had 8 cells! This is blessed news!

So, we still have five embies growing like the little stubborn warriors we know they are. Please continue to send them your prayers, good vibes, and well-wishes. As their mother, I know they can feel the love, as do the Wacky Wicketeer and I.