Living on the Frontlines

Health Update: it's the little things that annoy me

Living on the frontlines — Fri, 03 Jul 2009 03:08:00 GMT

Here's just another little health update for my records. This week my acid reflux has been acting up. I"m not sure why. Okay, the night I ate Indian food might be easily explained, but otherwise because of the reflux I've been sticking to...(read more)

A case for studying rare disorders

Living on the frontlines — Wed, 01 Jul 2009 02:30:00 GMT

Last week I blogged about some of the interesting papers I’d found on my latest troll through the medical papers (the ones I can get to anyway). One thing I left out, mostly because it didn’t fit with the topic at hand, were the papers I found where the...(read more)

Public information meeting: National Heart, Lung and Blood Institute

Living on the frontlines — Wed, 01 Jul 2009 02:19:00 GMT

Two weeks ago now Donna and I attended the public information meeting for the National Heart, Lung and Blood Institute. It was the first time I’d attended this meeting and Donna was showing me the ropes. It was two days packed full of information, but...(read more)

More pics from the parade! Go HPS Chicago!

Living on the frontlines — Mon, 29 Jun 2009 21:45:00 GMT

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Congrads Dr. Guttentag

Living on the frontlines — Mon, 29 Jun 2009 21:39:00 GMT

Congrads to Dr. Guttentag. Here we are posing for a pic with Dr. Guttentag on the far left, then Carmen, me, Donna and Dr. Gochuico. The American Thoracic Society is divided up into different assemblies, each one focused on a particular area. For example...(read more)

Health Update – I don’t like the heat!

Living on the frontlines — Mon, 29 Jun 2009 21:37:00 GMT

This is just a brief health update. Some of you might have noticed I haven’t blogged as much lately – pics are easier to post. This past week I’ve felt so drained. I can’t seem to sleep enough. It’s as though I force myself through the day getting done...(read more)

Thumbs up for HPS Outreach!

Living on the frontlines — Sun, 28 Jun 2009 01:22:00 GMT

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Marching for the cure!

Living on the frontlines — Sun, 28 Jun 2009 01:20:00 GMT

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Hmmm....a little networking at the parade? Grin!

Living on the frontlines — Sun, 28 Jun 2009 01:19:00 GMT

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It's Janet

Living on the frontlines — Fri, 26 Jun 2009 21:17:00 GMT

Here's Janet, beating the sun with one of those HPS unbrellas....(read more)

Getting the word out about HPS in Chicago!

Living on the frontlines — Fri, 26 Jun 2009 21:15:00 GMT

More of our float folks!...(read more)

The HPS float getting underway!

Living on the frontlines — Fri, 26 Jun 2009 21:13:00 GMT

Note the unbrellas, also for sale from the Network - grin! Thanks so much to all of these folks that came out to support us in the effort to get the word out! They have no idea what a difference they're making the lives of hundreds of HPS'ers...(read more)

Janet with one of our smaller supporters on Parade Day!

Living on the frontlines — Fri, 26 Jun 2009 21:11:00 GMT

Awe, Janet and Anthony, who is this little person with the beautiful eyes? (Parade photos by Anthony)...(read more)

Ahhh...lovely signage!

Living on the frontlines — Fri, 26 Jun 2009 21:09:00 GMT

Close up of the signage on the float!...(read more)

And here's what our float looked like before it was loaded up with supporters!

Living on the frontlines — Fri, 26 Jun 2009 21:08:00 GMT

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