Ask CancerCare: All Questions

We are looking for a support group for me the caregiver of my husband and my husband who is the one with cancer.

2025-07-17 00:00:00 -0400

CancerCare offers live Zoom-based support groups for people in New York and New Jersey, and an online message board support group program for people located anywhere in the United States. For more information about these group options, please visit https://www.cancercare.org/support_groups.

If you are looking for a live support group in your area, you may have additional options. The treatment center where your spouse is receiving treatment may offer support groups, and the Cancer Support Community may have a clubhouse near you. Additionally, many diagnosis-specific organizations provide support groups to people impacted by a specific cancer diagnosis (for example, the Colorectal Cancer Alliance or Zero Cancer for Prostate Cancer.

What is the difference between palliative and hospice care? We're trying to explore all possible options for our mother who has advanced cancer.

2025-03-28 00:00:00 -0400

Palliative care is an approach to care that improves the quality of life of patients and their families who are living with severe illness. Palliative care prevents and alleviates physical, psychological and spiritual suffering through the early identification, correct assessment and treatment of pain and other problems. The goal of palliative care is to improve overall quality of life through a holistic approach to care that focuses on relieving symptoms and reducing stress. Palliative care includes the needs and well-being of the patient, caregivers and family members. Palliative care does not mean the patient is dying.

Palliative care can be pursued at diagnosis, during curative treatment and follow-up, and at the end of life. The American Society of Clinical Oncology recommends that people with cancer receive palliative care as early in their diagnosis as possible. Cancer ranks 2nd as the disease most in need of palliative care. When palliative care is provided early, people with cancer tend to have a better quality of life, enhanced mental health, faster recovery and increased survival rates. Research has shown that palliative care helps patients adhere to their treatment plan and reduces the financial burden of care. Additionally, it strengthens coping skills and enhances human dignity. 100% of the studies conducted on palliative care report that it improved quality of life for patients and their families.

Most major treatment facilities have a palliative care department. Patients can request that a palliative care professional be assigned to their medical team. While palliative care is a medical specialty, most palliative care is provided by the primary medical team – nurses and doctors. Palliative care activities include communication, medical decision-making, symptom management, and psychosocial and spiritual support.

Many people confuse palliative care with hospice care because palliative care was born out of the hospice movement.

Hospice care is a specific type of palliative care that is provided in the final weeks or months of life when a patient has decided to stop treatment for the disease or has no other options. Hospice care is comfort care with no curative intent. Like palliative care, hospice provides comprehensive comfort care as well as support for the family, but, in hospice, attempts to cure the person’s illness are stopped. Hospice is provided for a person with a terminal illness whose doctor believes he or she has six months or less to live if the illness runs its natural course.

Hospice care can be offered at home or a facility such as a nursing home, hospital, or even in a separate hospice center. Hospice care brings together a team of people with special skills — among them nurses, doctors, social workers, spiritual advisors, and trained volunteers. Everyone works together with the person who is dying, the caregiver, and/or the family to provide the medical, emotional, and spiritual support needed. A member of the hospice team visits regularly, and someone is usually always available by phone — 24 hours a day, seven days a week.

Although hospice provides a lot of support, the day-to-day care of a person dying at home is provided by family and friends. The hospice team coaches family members on how to care for the person. Families of people who received care through a hospice program are more satisfied with end-of-life care than those who did not have hospice services. Also, hospice recipients are more likely to have their pain controlled and less likely to undergo tests or be given medicines they don’t need, compared with people who don’t use hospice care.

My partner has inflammatory breast cancer. I really want to make the holidays special for her, but I have no money to do it with. Needless to say, I have nothing for the holidays. Any suggestions on how I, a caregiver and worried spouse, can get an extra burst of energy to fight for more money to make this year special?

2024-12-20 00:00:00 -0500

I’m seeing a couple of different stressors here: 1) financial strains and 2) emotional strains connected to burnout. Let’s focus first on the financial strain. Have you tried reaching out to breast cancer organizations to receive financial assistance? Reaching out to places such as Susan G. Komen or Pink Aid’s Pink Purse could help give you some financial aid at this time. In addition, I’d highly recommend that you give CancerCare’s Hopeline number a call to sign up for resource navigation: 1-800-813-4673. Resource navigation is similar to case management; you are paired with a specialist here who can help find you the resources you’re looking for.

Now let’s address burnout. Oftentimes caregivers experience symptoms of burnout (sadness, anxiousness, irritability, changes in appetite, changes in sleep, decrease in physical wellness, etc.) due to lack of self-care. I invite you to think about when you fly on an airplane, the attendant tells you to put on your mask before helping others. This holds true for caregiving as well. If you are unsure of where to start for self-care, check out this great fact sheet on the CancerCare website. Try exploring counseling or a support group. Perhaps download a relaxation app on your smart phone. Even going for a walk can help with relaxation.

My 26-year-old daughter will be staying in Baltimore for 12 weeks and I was wondering if there's some organization that can help her with food while there. She wants to be able to work while getting cancer treatment during those 3 weeks and also needs gas money to travel back and forth on weekends to see her 4-year-old autistic son. Any help would be appreciated.

2024-09-23 00:00:00 -0400

Navigating the cost of daily living expenses can be incredibly challenging while also going through cancer treatment. I can certainly suggest some resources that your daughter may find helpful. Additionally, looking for diagnosis-specific organizations could also provide additional support and resources.

She can reach out to our Hopeline at 800-813-4673 and express interest in financial assistance. An oncology social worker will be able to gather additional information to see if CancerCare has any grants that your daughter could apply for.
Call Baltimore 311. 311 connects Baltimore residents, businesses and visitors by providing a resource of city services.
Contact Bringing Hope Home to see if there are open grants available for travel and food assistance: 484-580-8395 or https://bringinghopehome.org/
Applying for a grant through the Allyson Whitney Foundation. This organization assists young adults diagnosed with cancer through various financial grants https://allysonwhitney.org/grants/

I understand how overwhelming it can be to manage treatment while also worrying about food and transportation. Please let your daughter know that she doesn’t have to face these challenges alone. We encourage her to reach out to our Hopeline, and we would be more than happy to provide additional support and guidance during this difficult time.

My mother and father are 79 and 82, respectively. My mother has had lung cancer for five years and they removed part of her right lung. Now, they've found cancer in her lymph nodes and she has started IV chemo. After three treatments there has been no change in the size of her cancer and her recovery from the treatment is getting worse (more fatigue, more nausea, more hair loss, greater duration of recovery, etc.). They are not receiving any mental or emotional counseling and I suspect will soon be facing difficult decisions about treatment. How can I counsel them to get counseling or join a support group? Where can I point them?

2024-04-26 00:00:00 -0400

Recognizing the importance of addressing the emotional impact of a cancer diagnosis and treatment is crucial. Here are some steps you can take to support your parents in seeking counseling or joining a support group:

Normalize the Need for Support: Approach the topic gently with your parents, reassuring them that experiencing a range of emotions when dealing with cancer is entirely natural. Emphasize that seeking support is a proactive step towards coping with the challenges they’re facing.
Educate Them About the Benefits: Help your parents understand the potential benefits of counseling and support groups. These resources offer a safe environment to express feelings, share experiences with others in similar situations, and learn effective coping strategies for managing stress and anxiety.
Offer Resources: Provide information about reputable counseling services and support groups specializing in cancer care. This could include local hospitals, community organizations, or online platforms like Psychology Today, where they can find licensed therapists and counselors who specialize in supporting individuals and families affected by cancer. These resources can provide valuable support and guidance during this difficult time.
Encourage Open Communication: Advocate for open communication between your parents and their healthcare team regarding any concerns about the impact of treatment on their mental and emotional well-being. Healthcare professionals can often provide valuable referrals to support services or make accommodations to address their needs.

Remember to approach the topic with sensitivity, respect, and patience, recognizing that each individual may have their own unique response to seeking support. Ultimately, the decision to engage in support is up to your parents. Additionally, it’s important to prioritize your own well-being as a caregiver. Seeking support for yourself can provide a valuable outlet for processing your own emotions and navigating difficult conversations, ultimately helping you better support your parents through their cancer journey.

CancerCare offers a wide range of support services, including counseling, support groups, financial assistance, educational workshops, all provided free of charge. Your parents can reach out to CancerCare’s toll-free Helpline at 800-813-HOPE (4673) to speak with an oncology social worker who can offer personalized support and guidance. This resource is available to help individuals and families affected by cancer cope with the emotional, practical and financial challenges they may face. You can also take a look at our lung cancer resources and services.

I would like to get a cancer screening. I need help financially and where to find screenings.

2024-03-15 00:00:00 -0400

There are many benefits to screening for cancer. Early detection is key to improving outcomes if a cancer is diagnosed. There are several recommended cancer screenings, including: breast, cervical, colon, lung, prostate, and skin, depending on an individual’s risk factors. It is important to ask your doctor about which screening is right for you. Many times, insurance companies will cover these recommended screenings if you are eligible to receive them. If someone is uninsured or underinsured, there may be options for assistance. Free or low cost screenings can be found in several ways.

First, ask your doctor if they have any services or programs in the community
The Department of Health provides free cancer screenings. Check your state’s location and program
The Centers for Disease Control (CDC), provides information on screening and access to care

Additionally, CancerCare offers a Time To Screen line at 855-537-2733 where you can talk to one of our specialists about screening information.

Are there any resources to assist someone who is uninsured in getting a colonoscopy?

2024-03-11 00:00:00 -0400

If you or someone you know is uninsured, there may be free or low cost options to help you access a colonoscopy. It can definitely feel overwhelming to access this care and worry about the financial cost or other barriers. Below are some options to contact for a free colonoscopy:

The Colorectal Cancer Alliance provides resources to access free screenings and financial assistance for those that are eligible
In some states, the Department of Health provides free screenings, including colonoscopies
Your health care team may know about possible resources or programs in your area

Additionally, CancerCare offers a Time To Screen line at 855-537-2733 where you can talk to one of our specialists about screening information. Our free publication Colorectal Cancer: The Importance of Screening and Early Detection can also help answer questions about this test.

I just got my screening MRI and my PSA is rising slowly for 3 years from 4.0 to 5.1. The MRI indicates a level 4 lesion well defined with no infiltration. I have an MRI fusion targeted biopsy scheduled in late May. Is the waiting period for this lesion appropriate? I'm being seen at a university hospital and clinics by a urologist.

2024-02-26 00:00:00 -0500

It is always a good idea to be proactive in your health. Although it is typical to follow up with a biopsy following these results, the time frame to schedule it may vary based on other factors. It is not uncommon to feel concerned or anxious waiting for these tests. In order to feel more confident with these decisions, we always suggest speaking with your doctor about how these choices are made. When possible, a second opinion may also make you feel comfortable with your care. Below are some questions to help guide these conversations:

What is the purpose of this biopsy?
What is the typical follow up for these screening results?
How was the timing of this biopsy decided? Can it be scheduled sooner?
How will the results be discussed with me?

The Prostate Cancer Foundation has a list of additional questions on PSA screening and biopsy.

CancerCare offers a Time To Screen line at 855-537-2733 where you can talk to one of our specialists about screening.

I've been matched for clinical trial HER2 cell therapy and I need help to pay to be in this clinical trial please.

2023-09-29 00:00:00 -0400

Regarding financial assistance for clinical trials, there are a few avenues you can explore. You can contact the treatment center to see if they offer any grants or financial aid. Furthermore, some organizations provide some financial assistance including Lazarex CARE. You can also reach out to your insurance company to advocate for yourself regarding coverage. For transportation, there are some non-profits that can provide grants to help including CancerCare. Please call our HOPEline at 800-413-4673 for more information. If you are interested in exploring alternative clinical trials, you can utilize myTRIAList at https://mytrialist.org/ for more options . Wishing you luck as you navigate through this journey.

My 12-year-old grandson has cancer. He’s in his second chemo cycle and his hair is beginning to fall out. He’s got a positive attitude but it is tough. If I let him shave my head bald, would that be beneficial to him?

2023-08-14 00:00:00 -0400

Firstly, I would like to acknowledge that as a grandparent, it’s natural for you to feel a connection to your grandson’s well-being, and witnessing him go through this challenging situation can be particularly painful. Seeing the physical effects of the cancer treatment, including hair loss, can evoke feelings of sadness. It’s important to remember that these emotions are completely normal and valid. Naturally, during moments like these, you may find yourself wanting to “do” something to help alleviate the situation.

Just like adults, when children experience hair loss it can be very distressing. Cancer treatment and side effects look different for every child and often cannot be prevented. Hair loss due to treatment can impact self-image, confidence and overall emotional wellbeing. During this time, it can be helpful to discuss these changes with the child and other family members so they know what to expect. In addition to this, you can ask them directly, how they would feel about this decision. Checking in with their feelings will be an important consideration when making this choice.

Once you know that hair loss is expected or occurring you can plan ahead. Discuss with your family member what they would like next steps to be. Do your best to use clear, simple language when talking with children while providing them with different options. Every person is different and has different needs so there is no right or wrong option. If they choose to shave their head it can be helpful to take a picture with how their hair is usually worn, so if they would like a wig in the future a hair stylist can get a better idea of what they are looking for. If they wish to keep their hair as long as possible, take time to experiment with different hats or scarves to find whatever helps with their confidence. Do your best to be patient, this can be a stressful process for all involved.

As caregivers there are a number of ways to provide support to someone experiencing side effects to cancer treatment. It’s important to accept and validate patients’ feelings, and provide a space for them express themselves. Hair is a meaningful part of our identity, losing that can change how we relate to others. Be sure to allow an outlet for their feelings. That can include sports, art, music etc. Hair loss is usually temporary and often grows back several months after treatment ends. It’s also important to know that following hair loss, hair can grow back a different color or texture.

You may find the following wig resources helpful to children and teenagers affected by hair loss.

It can also be helpful to reach out to individual and peer support so children know they are not alone. This can be found at your child’s treatment center or some of the additional resources below.

Our staff of professional oncology social workers may be able to provide additional support for you and your family. To speak with an oncology social worker, call our Hopeline at 800-813-HOPE (4673) or email info@cancercare.org.

Are there any resources available to assist families deliver a cancer diagnosis including side effects associated with treatment to children and adults with intellectual disabilities?

2023-08-07 00:00:00 -0400

A cancer diagnosis has a large impact on the entire family unit and it can be difficult to know how much information to share. When speaking with children about a cancer diagnosis or side effects there are a number of things to keep in mind including providing accurate, age appropriate information, how the treatment may impact their lives, and allowing the space for questions and support.

To meet the demands of a cancer diagnosis, families must alter their roles and patterns in order to balance the physical and emotional impact. Children and adults with intellectual disabilities may find change difficult, therefore it is important to communicate how any changes in routine or physical changes you may experience could impact them. What you say is as important as how you say it.

Be sure to use a calm reassuring voice and have the conversation in a safe environment. Don’t be afraid to use the word “cancer” or show them where it is on your body. It can be helpful to think and prepare in advance for these conversations. Keeping in mind the age and development of your family member, do you best to use simple, clear language or artwork. Be prepared to repeat yourself and allow for them to react in their own way. Additionally, ensure your child that you are readily available whenever they have any questions or concerns. There is no one-size fits all approach as each individual and family has different needs. Some individuals may be non-verbal or cannot rely on speech to communicate, therefore communication differs based on a person’s age, challenges and abilities.

Together with your family, identify people your loved one would feel comfortable with turning to for support. This could include other family members, teachers, social workers and friends. There are also a number of support services through treatment centers available for patients and caregivers of those impacted by cancer.

The American Cancer Society may also provide a list of support services available within your area.
The Autism Society’s National Helpline and YAI website are both a great place to learn about resources and support within your area. Here you can speak with a trained specialist who can provide support options.

You may find the following books and publications helpful when explaining cancer and its side effects:

Getting on with Cancer by Veronica Donaghy, this is a story about a woman with down syndrome whose doctors tell her she has cancer. It described her emotions in the moment as well as her different treatment options.
Going to Outpatient’s by Sheila Hollins, Jane Bernal and Matthew Gregory. This book is aimed for those with learning disabilities and designed to help explain what happens in various outpatient settings. It explores feelings about going to the doctor as well as different procedures.
What Happens When Someone I Love Has Cancer by Sara Olsher (ages 4-10) This book helps families that want to explain what cancer is and how it can impact a child’s life.
Mom or Dad Has Cancer…Now What?
Helping Children Understand Cancer: Talking to Your Kids About Your Diagnosis
Talking to Children When a Loved One Has Cancer

Our staff of professional oncology social workers may be able to provide additional support for you and your child. To speak with an oncology social worker, call our Hopeline at 800-813-HOPE (4673) or email info@cancercare.org.

I am a 66-year-old surviving spouse of a cancer patient who sadly died in 2021. While I reached out and found help a few months after she passed, it's time for me to seek out a higher level of help. I'm specifically looking in person surviving spousal support either one-on-one or in a group, and I live in New Jersey.

2023-05-24 00:00:00 -0400

CancerCare provides individual grief counseling with an oncology social worker in New Jersey and New York. The sessions are usually every other week and they last 45 minutes. CancerCare also offers bereavement support groups and you may check for the next session on our support group page.

All our services are free and they are open to anyone who has lost a loved one to cancer in the past 18 months and lives in New Jersey or New York. Depending on preference and availability, we hold sessions over Zoom or in person (if you are vaccinated).

If you are interested in receiving bereavement counseling, please call our Hopeline to register as a client and to request the service. The social worker who answers the line will do a short assessment, talk to you about what’s available and enroll you for our services. The number to call is 800-813-4673.

Are there any live video chat support groups available for people specifically with lung cancer? I'm trying to help a loved one find this type of support. Both live chat and lung cancer specific are important to her.

2023-02-27 00:00:00 -0500

CancerCare offers two types of support groups, one is online and the other is via live, video chat. Our online support groups take place on a message board that is open to members 24/7 and you can post in the group whenever is convenient. The groups are moderated by an oncology social worker who provides support, resources and guides the conversation. Our online groups do not have a particular meeting time and do not include video chat or live chat functionality, such as Zoom. The groups that are offered via video chat are only available to those residing in NY and NJ, in accordance with our social work licensing laws. I have noted the link to our online group for lung cancer and our live chat, video group, depending on where your loved one lives:

Lung Cancer Patient Support Group - Online: https://www.cancercare.org/support_groups/2-lung_cancer_patient_support_group

Living With Cancer: Lung Cancer Patient Support Group - NY and NJ: https://www.cancercare.org/support_groups/73-living_with_cancer_lung_cancer_patient_support_group

CancerCare also has a partnership with a lung cancer advocacy organization called LUNGevity. They offer their own series of virtual support meetups for patients and caregivers. You can see the schedule and register by following this link: https://www.lungevity.org/for-patients-caregivers/support-services/virtual-meetups

LUNGevity also offers peer matching that might be helpful to your loved one. This allows a patient or caregiver to connect with another lung cancer patient or caregiver to get support and encouragement during their cancer journey. Here is the link to that program: https://www.lungevity.org/for-patients-caregivers/support-services/peer-to-peer-mentoring/lifeline-support-partners

I hope this information is helpful. If you would like more information about CancerCare programs or ideas about other support beyond CancerCare, I encourage you to call CancerCare’s Hopeline at 800-813-4673 for more immediate “live” guidance at any point in the future. All the calls are answered by oncology social workers who can offer information, support and resource referrals after learning a bit more about your situation and needs. Our Hopeline hours are Mondays through Thursdays 10 a.m. -5:45 p.m. ET and Fridays 10 a.m. - 4:45 p.m.

I would like to find a support group for my wife. She was recently diagnosed with ovarian cancer. Can you please provide information regarding this specific type of support group?

2023-02-17 00:00:00 -0500

Support groups are a great way for people to connect around shared experiences, provide support or encouragement and have an outlet where others understand the feelings and challenges that come with a cancer diagnosis. CancerCare offers an online support group for people diagnosed with ovarian cancer. The groups are moderated by an oncology social worker who provides support, resources and guides the conversation. Our groups do not have a particular meeting time and do not include video chat or live chat functionality, such as Zoom. If she is interested in registering, you can direct her to this link: https://onlinegroups.cancercare.org/Account/Register

This same platform also offers caregiver support groups, in case you or anyone in your family would like to connect with support.

I also suggest Share Cancer Support, an organization that focuses on supporting patients with breast, ovarian and gynecological cancers.

Where can I find the latest screening info for cervical cancer? Seems like the recommended time between screenings has changed?

2023-01-31 00:00:00 -0500

The first step with any cancer diagnosis is obtaining access to screen. Fortunately, there are places you can look into to acquire the latest information. Some places to seek updates about screenings would be the Centers for Disease Control and Prevention (CDC) and National Cervical Cancer Coalition. Both organizations have information about when to take your screens, and resources where you can find a screening center near you. Speaking with your OB-GYN is also another option in determining the best time for you to have a screen.

CancerCare offers more about screening for cervical cancer through the publication Cervical Cancer: Understanding Risk Factors and Screening. We also offer a Time To Screen line at 855-537-2733 where you can talk to one of specialist about screening.

I'm a caregiver for a family member who has multiple myeloma and we are in a bind right now. We need financial assistance.

2022-11-21 00:00:00 -0500

CancerCare is just one of the many organizations that offers financial aid to cancer patients (check our Financial Assistance Program page for current available funds). As a caregiver, you can significantly help both your loved one and yourself by calling CancerCare at 800-813-4673 to apply for financial assistance. If the patient does not feel comfortable calling independently, or is unable to call independently, you can assist by calling with them or on their behalf. Most likely, as the caregiver, you will have all the information necessary to complete the financial application. We also encourage you to call no matter what type of caregiver you identify as (parent, child, spouse, friend, short distance, long distance, directly supporting or indirectly supporting). Remember to let the person whom you are speaking with know that you are a caregiver, as they may be able to connect you with other helpful resources and services geared specifically towards your own needs.

CancerCare also provides caregiver resources and a searchable Helping Hand online database to locate additional resources.

What is the recommendation for a mammogram screening for a 74-year-old woman with no history or family history of breast cancer?

2022-10-31 00:00:00 -0400

The most important screening test for breast cancer is the mammogram. It can detect breast cancer up to two years before the tumor can be felt by you or your doctor. Breast cancer screening guidelines may vary slightly from organization to organization. It can be a little confusing to understand what is right for you because of this. However, for women between 50 and 74 years of age, the recommendation is typically every one or two years, depending on individual factors and shared decision making with your doctor. At 75 years of age, women should continue to discuss the use of mammography in their care to determine frequency.

Discussing your individual risk with your health care provider can help determine how frequently you should be screened. It is always a good idea to work with your doctor to set up a schedule that is right for your age and situation. In addition to the doctor, there are resources to contact in order to possibly receive additional information. Below are some resources that may be helpful:

CDC’s National Breast and Cervical Cancer Early Detection Program (NBCCEDP): Provides breast and cervical cancer screenings and diagnostic services to women who have low incomes and are uninsured or underinsured.

Time to Screen: Provides information on how to get access to screening options and may be able to assist in other care solutions and provide screening eduation.

Susan G. Komen: Offers a Breast Care Helpline and Patient Navigation to help guide patients through the health care system and remove barriers to breast care. You can call directly at 877- GO KOMEN (877-465-6636).

Finally, CancerCare’s website provides options to educate patients on breast health that may be helpful, including:

Since I'm not sure how I'll feel during treatment, how do I approach my employer about possibly needing some time off? Can it be flexible? I've been told some people are able to continue to work, but not all.

2022-09-30 00:00:00 -0400

You’re right that it’s hard to know ahead of time how treatment is going to impact you and your ability to work. Some people are able to work during treatment and others require more time off. I would recommend speaking with your direct supervisor and an HR representative as soon as possible to let them know your treatment plan and ask about your company’s benefits and time-off policy, including short-term disability and FMLA.

If you’re going to be treated with chemotherapy, some people find that they need to take about a week off immediately after treatment but then are able to return to work for 1-2 weeks before their next infusion, depending on how far apart your treatments are. If you’re going to be treated with radiation, some people choose to schedule their radiation appointments either early in the morning or late in the afternoon and go to work before or after, though that schedule can become difficult the longer you undergo radiation due to its cumulative effects.

Again, speaking with your supervisor and HR ahead of time will help you better understand your options and prepare for treatment. I would also recommend speaking with your support system of family and friends, as you will likely need additional practical and emotional support as you go through treatment. If you have additional questions or need any help finding resources along the way, please feel free to call CancerCare’s Hopeline at (800) 813-4673. I’m also including some great organizations below that focus on working while undergoing treatment:

Cancer and Careers

Cancer and Careers provides essential tools and information for employees with cancer. They offer a comprehensive website, free publications, career coaching, insurance information, and a series of support groups and educational seminars for employees with cancer and their healthcare providers and coworkers. Also, offers a free résumé review service and a micro-grant program to help pay for professional development opportunities to build new skills.

Job Accommodation Network (JAN)

Leading source of free, expert, and confidential guidance on workplace accommodations and disability employment issues. Working toward practical solutions that benefit both employer and employee, JAN helps people with disabilities enhance their employability, and shows employers how to capitalize on the value and talent that people with disabilities add to the workplace.

Triage Cancer

Provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers.

I am looking for legal advice about my job. Because of my treatment I had for cancer, I can not drive. My job wants me back in the office full time. I have been working from home this past year. My husband has to drive me to work and that is one hour with out traffic and I go in the office 2 times a week. Starting in September I was told I had to start working full time in the office knowing I have nerve damage to my feet / legs and I get cramps. Please help.

2022-09-01 00:00:00 -0400

I’m sorry to hear that your job is not being more supportive of your needs during post-treatment. Given your cancer diagnosis you should be protected by the Americans with Disabilities Act or ADA. This law applies to any employer with 15 or more employees and protects against job discrimination for people with cancer and people who had cancer in the past that may still be impacting their ability to work. According to the ADA, as long as you are able to perform the essential functions of your job, your employer must make reasonable accommodations. If you can do your job from home, it would be a reasonable accommodation for your employer to allow you to continue working remotely. You should discuss this accommodation with your HR department, letting them know your situation and that you would like to request a reasonable accommodation under the ADA. If your HR department refuses to make this accommodation you could reach out to your local Legal Aid office or any of the resources below for additional assistance:

The Cancer Legal Resource Center

Cancer Legal Resource Center (CLRC) is a program of the Disability Rights Legal Center (DRLC), a 501C-3 non-profit, public interest advocacy organization that champions the civil rights of people with disabilities as well as those affected by cancer and other serious illness. DRLC’s Cancer Legal Resource Center provides information through its national telephone assistance line, outreach programs and community activities to educate and to support cancer patients, their families, healthcare professionals and advocates on matters like maintaining employment through treatment, accessing healthcare and government benefits, taking medical leave and estate planning.

Phone: 866-843-2572

Triage Cancer

Triage Cancer is a national, nonprofit organization that provides free education on the legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.

Resource page: https://triagecancer.org/cancer-resources-and-educational-information

Legal and financial navigation program: https://triagecancer.org/gethelp

Phone: 424-258-4628

Email: info@triagecancer.org

My brother is 70 and has been diagnosed with metastatic cancer. He has had chemotherapy and radium 223 treatments. Both have had harsh side effects (nausea, vomiting, weight loss, constipation, skin changes, weakness, sadness and depression). How do I as his caregiver support him? It's also not a good fit with his oncologist.

2022-07-25 00:00:00 -0400

First, I would like to normalize your experience and how challenging navigating a loved one’s cancer diagnosis can be. Watching the physical changes that accompany cancer treatment can bring up many mixed emotions including feelings of helplessness. It can be hard to sit with the feeling of not being able to “do” anything to take his pain away. However, one thing that may be helpful is saying, “I am here for you. How can I help?” This can provide relief for him. Also, perhaps offering some practical ways to help. I am not sure if you live nearby, but perhaps saying, “I can walk your dog 1x a week” or “I will send you food on Mondays.” People frequently appreciate when we do something for them without asking what needs to be done. However, if you are not sure how you can help, it is ok, and encouraged, to say: “What could I do to help alleviate some of your stressors?”

Another helpful tip is using “I feel” statements. Sharing “I feel” statements can help in explaining what you are going through to your brother. You can share, “I feel I don’t know how to help you. Please tell me what I can do.” This can provide a good starting point for further conversations between you and your loved ones.

Trust and rapport are very important when thinking about ones relationship with the treatment team. If you are feeling it is not a good fit, I would recommend discussing with your brother receiving a second opinion. One option is to look into the insurance company and see what other hospitals/physicians are in his network. Another thing you can do is to contact an academic medical institution or a National Cancer Institute-designated facility.

Having a social worker or therapist to help you process everything can also be helpful. If you choose to look for additional support, feel free to look at the below link or call CancerCare’s Hopeline at 800-813-4673 and an oncology social worker can assist you further.

Psychology Today is a great resource for one on one counseling and you can search by zip code, insurance etc.

My best friend went in for a breast exam back in October. Since then, through imaging they found a "mass" that has gotten bigger and shows all sign of cancer. She is not insured and can't afford the out-of-pocket costs for a biopsy. She doesn't qualify for government programs without a diagnosis. They want to do a biopsy, but it cost too much. What are her next options?

2022-03-25 00:00:00 -0400

A biopsy is the best way to determine if a mass is cancer, or a benign (non-cancerous) condition. If someone is uninsured, it can be difficult to follow up with this procedure. It can definitely be stressful to not know how to proceed and get care. However, there may be options to explore in order to get access to low cost, affordable care.

I would first encourage your friend to have this discussion with her current health care team, if she hasn’t already. This could help them understand how to best address her care and provide next steps for someone who is uninsured. They may have options such as charity care programs or payment plans for patients who are uninsured or underinsured.

In addition to the doctor, there are resources to contact in order to possibly receive assistance with a breast biopsy. Below are some resources that may be helpful:

Time to Screen: Provides information on how to get access to screening options and may be able to assist in other affordable care solutions.

Finally, CancerCare’s website provides options to educate patients on breast health that may be helpful, including:

Breast Cancer; Understanding Risk Factors and Screening
Terms to Know: Screening and Diagnosis

When should I be screened for colon cancer?

2022-02-28 00:00:00 -0500

Screening is important because many colorectal cancers can be prevented through regular screening. Additionally, if cancer is found early, colorectal cancer is highly treatable. Screening options for colon cancer include stool-based tests and an exam called a colonoscopy. It is generally recommended to start having colon cancer screening at age 45, regardless of gender. People at increased risk of colorectal cancer may start earlier, depending on your doctor’s instructions. It is important to talk to your doctor about your risk of colon cancer to determine the best screening plan for you.

How do I deal with the anxiety of showing your body to your husband after having a double mastectomy? I am having a difficult time looking at myself so what will my husband feel?

2022-01-26 00:00:00 -0500

Coping with the loss of breasts is a very challenging experience for many women who go through mastectomy surgery, especially when the breasts are considered a source of confidence or a sense of feminine pride. I’m sorry that you’ve had to go through this loss and adjustment at all. If you’re recovered from your mastectomy and find you’re still feeling uncomfortable with how your chest looks, delayed breast reconstruction is an option available to you once you have completed the rest of your cancer treatment. While it may feel different from the breasts you originally had, implants may help you feel more comfortable in your skin. If this is something you think you’re interested in, I’d recommend contacting your surgeon who performed your double mastectomy for next steps. They may be able to refer you to a plastic surgeon if you’re not already in touch with one.

Aside from that, I think allowing yourself to go through the grieving process of losing your breasts is an important part of regaining confidence in your body image. What you went through is something most would consider traumatic – both from a body image standpoint and from a medical point of view. It’s okay to be sad that you no longer have this part of you. Recalibrating our sense of self and self-identity isn’t something that happens overnight. As you grieve, you will hopefully come to accept how your body looks now, at least enough to regain your confidence. It may be worth focusing on other parts of your body that give you confidence and make you feel sexually desirable—like legs, butt, arms, face, just as a few examples.

I’ve neglected to speak about your husband’s point of view until now, and I apologize for that. But that is because, in my view, your ability to feel comfortable and love yourself is more important than the perspective of any other person. Others pick up on how we feel about ourselves and it’s also hard to accept the love of others if we have not made room for it inside of ourselves. To give a bit more tangible recommendation, it may help to have an honest conversation about your husband about how you’re feeling about your body. Your husband took an oath to love you for the rest of your lives when you married; as your life partner, I would imagine he will love you regardless of your appearance. Even so, letting him in onto how you’re feeling will allow him to better support you an make you feel comfortable during intimate moments. I know this sounds cliché, but people fall in love with who someone is as a person more than their appearance. It may take a bit of faith to believe he still finds you desirable when you yourself feel insecure—and this is a very natural problem to have! But I truly believe this is something you can work through with open communication and self-nurturing.

Christmas is very special to me. My mother passed away on Christmas. My family is having a hard time this year as I was diagnosed in September with metastatic cancer. I really need smiles and laughter. Any suggestions?

2021-12-27 00:00:00 -0500

I’d like to thank you for taking the time to write in to us and offer my condolences to all that you’re going through, both with your own cancer and your mother’s loss.

I can certainly understand the conflict of emotions present in your family this holiday season: wanting to experience joy along with everyone else when dealing with something like cancer and like grief. You shared that your family is having a hard time coping, but how about you? Since you’re the person being directly affected by this, I hope you’re making time for your own coping as well.

To address more of what it sounds like you’re inquiring about, how to help lift the spirits of your family, I have a couple of ideas I usually recommend to clients in similar situations:

Starting new family traditions. I’m sure there are some your family already have that are the source of warm, happy memories for you. Starting a new one can help your family connect in the form that is now (without your mom, but potentially new in-laws or children) and can help your family have happy memories with/of you despite you going through cancer treatment right now.
Celebrations of life are also very helpful in coping with grief specifically. Rather than eulogizing your mother’s death, reflecting on the moments of joy during her life and the happiness she brought each of you can help make Christmas a more positive experience for you all.

I also recommend checking out some of our resources through our website about cancer and the holidays.

We offer a fact sheet Coping With Cancer During the Holidays
We also have a booklet specific for the caregiver experience during the holidays. This may be helpful for your family members, if you’re interested.
We have a Connect Education Workshop episode from a few years ago about coping with cancer for the holidays. You can listen to it on our website, though you can also find our workshop on whichever podcast app you use. (I should note that even though this was part of a series about renal cell cancer, a lot of the points about coping and emotional support can apply to your situation as well).

You can also speak to one of our oncology social workers by phone, Monday through Friday, on our HOPELINE, 800-813-4673.

My father has multiple myeloma and it is disheartening to see to him lose weight. He is 74 years old and I wish I could do much more for his pain. Can you recommend nutritional and pain resources?

2021-12-23 00:00:00 -0500

Caring for a loved one with cancer can be difficult. It is admirable and not uncommon to want to ease your loved ones pain. As physical changes occur, it can be especially overwhelming and may bring up feelings of helplessness. Reaching out and gathering information as you have done is an important and helpful step.

Many patients do experience changes in weight, including weight loss. These changes are common and can be caused by a number of factors including poor appetite, fatigue or treatment side effects. It is important to talk with your father’s medical team so that the weight loss may be evaluated. You can also request a referral to meet with a dietician who can work closely with your father to maintain a healthy weight. The following CancerCare fact sheets offer additional information on nutrition: Coping With Caner-Related Weight Changes and Muscle Loss and Tips for Managing Nausea and Increasing Appetite During Cancer Treatment. More information on locating an oncology dietician can be found at www.oncologynutrition.org.

Bone pain is another common side effect of multiple myeloma. Again, communicating with your father’s medical team will be an essential component to managing his pain. Remember, your father is the expert in what he is feeling; informing his doctors about the severity, location, and type of pain he is experiencing can help determine an appropriate approach to pain relief or reduction. Doctors may recommend managing bone pain by: wearing a brace, having radiation therapy or taking pain medications. If pain persists he may also consider consulting with a pain specialist.

More information on pain can be found in our publication Managing Cancer Pain. View all of CancerCare’s pain-related resources.

I'm wondering if there are any good resources out there that would help me know what to expect as I'm taking care of my mom who has advanced cancer.

2021-12-17 00:00:00 -0500

Caring for a family member or loved one with cancer can be a full-time job. There are lots of unknowns and by asking for help, you have taken the first step in helping your mother. Luckily, there are a variety of resources available to assist you with caring for your mother. I encourage you to start by taking care of yourself so that you can be as prepared as possible to assist your mother. You will find suggestions in our publications, “Caring Advice for Caregivers: How Can You Help Yourself?” and Caregiving for Your Loved One With Cancer.

Our free Connect Education Workshops provide helpful, practical information:

Family Caregiver Alliance is an organization that focuses solely on the needs of caregivers.

Another helpful resource is the American Society of Clinical Oncology’s publication, Advanced Cancer Care Planning: What Patients and Families Need to Know About Their Choices When Facing a Serious Illness, which may be downloaded from their website or ordered free of charge.

Caregivers have their own unique set of needs, and although you do not have cancer, you are living with the disease every day. You may find speaking with a counselor or joining a support group for caregivers helpful. CancerCare offers counseling as well as online and telephone support groups specifically for caregivers. You may also want to listen to our Connect Education Workshop, Stress Management for Caregivers: Taking Care of Yourself Physically and Emotionally.

What resources are available for women with cervical cancer who have no medical insurance? I was going to a specialist and my cancer was advancing. I have had no treatment since due to lack of insurance.

2021-11-11 00:00:00 -0500

The many challenges of being diagnosed and not having insurance are stressful and emotionally difficult. Navigating treatment without insurance can feel daunting, but there are resources you can explore that may be able to help. First, I would encourage you to speak to your previous specialist and medical team about the current difficulty you are experiencing. You indicated you were receiving treatment at one point but had to stop; a social worker, nurse navigator, or someone in the finance department of the specialist’s office or treatment center may be able to help guide you. There may be local resources that can help pay for treatment, and sometimes offices will be able to work out a payment plan with you once they are aware of the situation.

I would also recommend exploring if you would be eligible for Medicaid in your state. The eligibility varies from state-to-state, and you can learn more about the program here. Often your local social services office can help with determining eligibility and submitting the application.

You can inquire about any charity care or reduced cost care you may be eligible for at local hospitals or treatment centers; public hospitals are required to provide some level of charity care, but policies can vary and you would need to check with the hospital for their specific eligibility and application process.

CancerCare provides a searchable database of cancer resources and assistance based on zip code. You can utilize the search to investigate any additional resources that may be available near you.

My sister has breast cancer, and now she has lymphedema as a result of her breast removal. Her therapist wants her to get a sleeve and glove. She went to be fitted and found the cost would be about $340. Medicare nor insurance will pay anything on this. Is there any funding available for this expense?

2021-10-26 00:00:00 -0400

For women undergoing breast cancer treatment and those in the survivorship phase, lymphedema can pose new challenges at an already difficult time. Unfortunately, despite ongoing advocacy efforts, there is minimal insurance coverage for lymphedema garments including the sleeve and gloves that your sister was encouraged to obtain. For many women, the large out of pocket expense of the garments can be a significant financial challenge. There are some resources that exist to assist women in purchasing the lymphedema supplies that they need.

CancerCare may be able to assist with a one-time grant for the purchase of lymphedema supplies. To determine eligibility, you or your sister would call our Hopeline at 800-813-4673 and speak briefly with an oncology social worker. If eligible, a brief application would be mailed to your sister for completion.

There may be other local organizations that provide assistance for lymphedema supplies. Our Hopeline social workers would be happy to explore potential resources for your sister. We can be reached Monday through Thursday from 9 a.m. - 7 p.m. Eastern Time and Fridays from 9 a.m. - 5 p.m. Eastern Time.

My cousin has been diagnosed with cancer, and she's engaged. She's worried that she won't be able to have children and seems quite depressed. Is there someone she could speak with to help her figure out what is possible?

2021-09-17 00:00:00 -0400

Starting a family is an experience that many look forward to their whole lives. Unfortunately, a cancer diagnosis can threaten one’s chance of having this experience. The extent to which your fertility is compromised is based on many factors, including age, type of cancer and method of treatment. It is so important to talk to your healthcare team prior to and while in treatment to determine how your treatment plan may impact your fertility and the best ways of preserving it. There are many options available to preserve fertility, including freezing your eggs, embryos and ovarian tissue. If your doctors do not bring up fertility preservation, be sure to be your own advocate and address your concerns right away.

It can be incredibly stressful and difficult to think about how your treatment will affect your fertility, especially at such a young age. This might not only impact you, but your partner as well. Feelings of depression and anxiety are common while exploring your options. There are many support services available that can help navigate fertility perseveration and emotions this conversation might cause. Oncology social workers are able to offer support and guidance regarding this difficult topic. CancerCare offers free counseling services provided by their licensed oncology social workers.

Additional fertility resources include:

The Oncofertility Consortium
The Samfund: Support for Young Adult Cancer Survivors
CancerCare’s publication Coping With Fertility Concerns: Finding Resources and Support

Would you recommend specific websites or organizations that can provide the latest information about biomarkers (and testing)?

2021-08-17 00:00:00 -0400

Biomarkers (short for biological markers) are indicators in the body or tumor that can influence which treatments may be most effective for an individual and allow for personalized medicine. Understanding biomarkers can be challenging and complex. Getting access to accurate information is important. I would first encourage you to speak with your health care team to better understand which biomarker test is best for you based on the specific diagnosis. Here are some questions for your doctor to identify which biomarker testing is right for you and how that would influence your care:

Is there a biomarker test for my type of cancer?
How is this test administered?
How will that test help in the diagnosis or treatment of my cancer?
Can I get a copy of the pathology report and the results of biomarker tests?
How accurate are these results?
Should I get a second opinion on the pathology of my tumor and/or biomarker testing?

Your health care team could also recommend trusted websites or organizations specific to the diagnosis. There are many resources that provide the latest information on biomarkers. The specific website that would best provide information for you would depend on the type of cancer. For example:

LUNGevity has specific information on lung cancer biomarkers
Fight Colorectal Cancer has dedicated a portion of their website to educate patients on biomarkers pertaining to that diagnosis
FORCE: Facing Hereditary Cancer EMPOWERED provides information about biomarkers and specific cancer types
American Cancer Society reviews biomarkers and personalized medicine

Finally, CancerCare’s website provides options to educate patients and caregivers on different types of cancer biomarkers, including:

I was just diagnosed with breast cancer on my right breast and abnormal cells in the left breast. How do I cope with the anxiety of the anticipation? And the cancer too? I don't know what to expect?

2021-08-07 00:00:00 -0400

Hearing that you have cancer is very scary, and it is natural to have anxiety, specifically anticipatory anxiety. Anticipatory anxiety is increased anxiety to a scary situation you are about to confront, i.e. your diagnosis and treatment.

There are several ways to cope with anxiety, such as keeping a journal about your anxiety. When journaling here are some things you might consider are: what was the situation in which anxiety occurred?, if you are having negative thoughts, ask yourself what was your initial negative thought?, note how your body feels and where in your body you feel the anxiety, then ask yourself “What is the evidence for this negative thought? Am I looking at both sides of the issue?” Then counter those negative thoughts with three alternative positive, self-supportive statements. In addition, there are other ways to manage anxiety, for example, controlled breathing, meditation or progressive muscle relaxation. These techniques can be used anywhere and anytime. Also, if you are having negative thought patterns and feel that you are becoming overwhelmed, it may be helpful to have someone to talk to about your fears, someone who can be objective, someone that you can trust. You may want to join a support group, engage in individual counseling or both. CancerCare offers short-term counseling, and support groups in various modalities.

In regards to learning what to expect, you may want to keep an open line of communication with medical team about treatment, side effects and ways to manage side effects. Please read our fact sheet on questions to ask your medical team.

Is there a support group for newly diagnosed people? I'm 55 and just diagnosed with soft tissue sarcoma on my right leg, below the knee. So many questions! How long can I keep working; how do I tell my friends and relatives; how do I tell my workmates and supervisors; how will I cope with all the medical bills?

2021-07-12 00:00:00 -0400

Being newly diagnosed is a chaotic time as you’re taking in a lot of information and figuring out the details of your diagnosis and treatment plan. Joining a support group or reaching out to a peer matching program might be a good way to learn from other patients. At this time, CancerCare does not have a group for newly diagnosed patients or for sarcoma. Our support groups are offered based on demand and we have not had enough members to create these groups to be active and helpful to participants. But, I can make some suggestions to help you get connected to support and information.

First, the following organizations focus on sarcoma education, resources and support:

Sarcoma Alliance (view their support group resources)
Sarcoma Foundation of America (lists this as an online group option: inspire.com/groups/sarcomaconnect)
Sarcoma Coalition

You can also try www.smartpatients.com, which offers many different groups for patients and caregivers affected by specific illnesses including sarcoma.

Peer matching is another great option to connect with another patient with a similar diagnosis. Someone who has been through this will be able to give you suggestions, answer questions and tell you what helped them during their diagnosis. I would suggest:

I also wanted to share some helpful information from our programs. CancerCare has couple of publications and workshops that cover the questions you mentioned:

Specific to sarcoma:

Managing Costs of Cancer:

Managing the Cost of Cancer

Workplace resources:

www.cancercare.org/tagged/workplace_issues

You may also want to look at www.cancerandcareers.org, which can provide you with helpful suggestions about navigating the workplace and employee rights during a cancer diagnosis.

I hope these suggestions are helpful and would encourage you to reach out to CancerCare’s Hopeline at 800-813-4673. All the calls are answered by oncology social workers who can connect you with support and resources. Our hours are Mondays to Thursdays 10 a.m. - 6 p.m. EST and Fridays 10 a.m. - 5 p.m. EST.

How can I learn about meditation to help me deal with breast cancer?

2021-06-06 00:00:00 -0400

While some practitioners might work with specific populations to develop meditation techniques with a focus on the issues unique to their cancer, the universal goals of meditation are essentially the same, to quiet the mind and help people focus on the issues at hand. In that process many people find peace.

In the practice, research has shown that meditation helps relieve, or at least manage, stress, physical and emotional. Since too much stress and worry can exacerbate cancer, meditation can help reduce stress, with residual effects that last throughout the day, giving those who practice more clarity of mind to focus on what needs to be done.

Here are two breast cancer websites that offer additional information about meditation. They provide education about the practice and other tips that take a holistic view of how breast cancer patients can better care for themselves.

University of California San Francisco (UCSF) Breast Cancer Self-Care and Recovery: Meditation. They also offer Breast Cancer Self-Care and Recovery topics, including: Introduction to Lifestyle Change, Nutrition and Breast Cancer, Hydration: Water and Health, Exercise Program, Guided Imagery and Sexuality and Breast Cancer

I'm trying to compile resources for a close friend whose husband was diagnosed recently with glioblastoma. Could you share what you think are resources that could be helpful for her? Any places that could help with financial or help support them?

2021-05-25 00:00:00 -0400

First of all, I am so sorry to hear about your loved one’s recent brain cancer diagnosis. CancerCare offers online support groups for both patients and caregivers, which he/she may find helpful. If she is in the New York/New Jersey area, he/she may sign up for individual counseling to cope with being impacted by a brain cancer diagnosis. I would encourage your friend to call the CancerCare Hopeline (800-813-4673) to get connected to possible financial resources that could be of support. They may also search our Online Helping Hand Database for practical resources.

Another organization he/she might find helpful is the American Brain Tumor Association (ABTA). They have a peer matching program where he/she can be connected to another caregiver and get support one on one that way.

What support groups are there for people with skin cancer? My brother was diagnosed two months ago and I think he could benefit from one.

2021-05-16 00:00:00 -0400

It’s never easy to adjust to a cancer diagnosis. Everything changes when you hear the words “you have cancer.” It is a time when many people need extra support. Speaking to an oncology social worker can help reduce the stress of adjusting to a diagnosis and assist with understanding treatment options, side effects, disclosure and finances/insurance issues. I always emphasize that reaching out for help is a sign of strength. Oncology social workers are trained in how a diagnosis of cancer affects a person and his or her family and friends. They are also trained to help cancer patients and their families tackle the problems that accompany the disease, such as the financial demands, the physical changes, social adjustment and psychological impact, and care. Adjusting to and dealing with the diagnosis is an important part of the healing process.

Cancer often makes people feel isolated. Joining a support group allows people with cancer to feel less alone because they are talking with others who are experiencing similar fears and concerns. They can speak openly and freely without feeling that they are being a burden to friends and loved ones. Please know, your brother would have to call himself for these services.

CancerCare can provide that help in many ways. Currently, we have an online group for people with melanoma. Our registration process is streamlined so it is very user friendly. We can also provide individual telephone counseling. All of our services are free of charge, and our services are for both the people with cancer and their loved ones.

The Cancer Hope Network is a way to connect, by telephone, with an individual with a similar diagnosis. Their volunteer survivors are trained to talk you through some of the common difficulties that come along with any diagnoses.

Please remember that you and your brother are not alone. CancerCare’s services are here to help you.

Is there any financial help available to pay for fertility treatment costs?

2021-04-26 00:00:00 -0400

When discussing fertility, preservation costs can play a huge role in determining how to move forward. It may be essential to explore your fertility options—physically and financially—when diagnosed with cancer. It is important to speak to your doctor or specialist in regards to your concerns; they may be able to offer further guidance that best suits your needs. There may also be organizations that offer financial assistance to help pay for these fertility costs.

The following organizations may offer financial assistance to help alleviate these expenses:

You may also view all of CancerCare’s fertility resources.

When I was diagnosed, my cancer was aggressive and treatment needed to start as soon as possible. So when asked about fertility, I didn't get a chance to review all my options or come up with the money to get it done. I had a partial hysterectomy (my ovaries were removed but my uterus is still there). I was wondering what would be my options for children in the future?

2021-04-11 00:00:00 -0400

When you are diagnosed with cancer you are faced with many immediate decisions to make, it is extremely overwhelming. It is challenging to process the news of your diagnosis, especially when you have been notified that treatment needs to begin right away. Unfortunately, fertility is not always an immediate conversation or something an individual may automatically think about when beginning cancer treatment. It may not feel or seem like a priority in that moment. Fortunately, the topic of fertility is gaining increasing awareness for both men and women. More and more doctors are having these conversations prior to cancer treatment. And, there are many wonderful organizations that support fertility options—physically, emotionally, and even financially.

In general, fertility preservation is the process of saving or protecting eggs, sperm, or reproductive tissue so that a person can use them to have biological children in the future. It may be time sensitive and could also be necessary to explore prior to cancer treatment. However, everyone’s situation is different and there are many factors to be considered. Therefore, it is important to speak to your medical team to further discuss what your options may be. You may also want to make an appointment with a fertility specialist to gain additional information throughout this process. As medical advancements continue, doctors and patients may become aware of more options. Today, there are many ways to have children and it is important to determine what may be the best fit for you.

The following resources may also be helpful to explore:

Fertility issues can be stressful and complex. If you would like to further discuss this topic and how to address it before, during, and after treatment you may be interested in calling CancerCare’s Hopeline to speak to an oncology social worker.

My mother is 71 and was recently diagnosed with cancer that has spread to her lymph nodes. She has always been a bit difficult and very impatient. I am trying my best to be everything to her, but it seems no matter what I say or do, she thinks I'm condescending, or annoying or unwilling to help. I suggested a therapist or support group could help, and she got furious with me. I've read that anger and emotions are normal after a diagnosis, but she truly seems out of control. Any advice on how I can communicate effectively with her?

2021-03-22 00:00:00 -0400

Uncertainty is one of the most challenging emotions that comes with a cancer diagnosis. Not only does the individual diagnosed have to cope with the emotional and practical challenges, but also the caregiver. People often feel so anxious that they become agitated if they do not get answers to their questions quickly. As you explained, many times, individuals will displace their anger. Unfortunately, it is much easier to be angry at someone than cope with the many mixed emotions accompanying a cancer diagnosis.

Caregiving is very challenging, especially as you are doing all you can for her. As you already did, letting her know that resources are out there is immensely helpful, even if she became angry. While she may think these services aren’t necessary now, you have let her know that support is available when she is ready.

Also, as much as possible, take care of yourself. If you have insurance, reach out to your company and see if they can provide you with a list of therapists in your network. Therefore, you can have a place to process the emotional highs and lows of caregiving. Also, find time for self-care. This can be an extra five minutes in the shower, a nice walk, or mindfully sipping your coffee in the morning.

Lastly, I would like to share with you the Caregiver Bill of Rights written by Jo Horne. It is an ongoing reminder that outlines the rights belonging to those caregiving for a loved one.

One of my favorite lines is, “I have the right to get angry, be depressed, and express other difficult feelings occasionally.” Remember, you are also learning to navigate this “new normal” of caregiving and going through the highs and lows. Often, people will print it out and tape it on their mirror or keep it in their wallets.

If you have any further questions, please contact CancerCare’s Hopeline at 800-813-4673. An oncology social worker will be able to guide you further on resources in your area and CancerCare services. We offer free online support groups that can be helpful as you will share with other individuals also navigating caregiving challenges.

I am a 20-year-old college student and I recently lost two grandparents to cancer. I was close to both and am having trouble dealing with guilt and regret for not being there when they died or spending more time with them. What can I do?

2021-03-21 00:00:00 -0400

I suggest seeing if your school has a counseling center. You mentioned that you are having trouble dealing with the guilt, which is understandable, with two significant losses. That can overwhelm your capacity to cope and make sense of what happened, let alone arrive at a meaning that you can live with. Struggling with that by yourself can increase your sense of powerlessness and isolation.

Guilt and regret are not unusual. And you may have a valid reason for feeling those emotions. My hope is that in working with a counselor, over time you can rediscover other aspects of your relationships with your grandparents that are being overshadowed by the immediacy of the loss, and incorporate those into a comforting narrative that integrates both the loss and the closeness of your relationship with each of them, and the ongoing meaning they, and those relationships, continue to have even in the present.

Thoughts of what you could have or should have done are evidence that you are having a hard time accepting the losses. It’s a little bit like magical thinking, in reverse. If you had only done that one thing, the outcome would have been different, and you wouldn’t be feeling this way. This is normal, and should decrease as you adjust to the new reality. Talking about it with someone who understands can facilitate that adjustment.

We offer bereavement support groups, both in-person in our New York City offices, and online. You might also contact your school’s health and wellness center to see if they have any information on local young adult bereavement support groups.

I've finished treatment and now I feel like I'm on my own. Are there things I should be doing?

2021-03-12 00:00:00 -0500

Finishing cancer treatment often brings mixed feelings. A sense of relief and feelings of accomplishment are normal; so, too, is uncertainty about the future. Your instinct to prepare in some way for your survivorship is a good one. Here are some steps you can take to keep both your mind and your body healthy as you continue to work with your medical team.

Ask your doctor for a Treatment Summary. This should include:

Your type(s) of cancer with the date and stage at diagnosis
Types of treatment received (surgery, chemotherapy drugs, radiation doses and tests performed)
Complications experienced (side effects, transfusions, hospitalizations)
Other services used (physical therapy, acupuncture, herbal)

Discuss with your doctor what your Follow-Up Plan will be. This should include:

Future schedule of visits (time and date)
Who will deliver follow-up care (and where)
Tests that will be done and why (surveillance and preventative)
Assessment and treatment for long- or late-term effects (e.g., lymphedema, depression, pain)
Evaluation of current health behaviors and promotion of healthy life style

There are great resources available that can help you organize all of the above information. The LiveSTRONG Foundation has developed worksheets and a Survivorship Notebook. The National Coalition for Cancer Survivorship (NCCS) provides information about Living Beyond Cancer.

You mentioned feeling “on your own” now that your treatment is complete. This is a common feeling when treatment ends, and it’s good to know about the different types of support available to you:

Professional support provides you with information, resources and counseling
Peer-to-Peer support reduces your sense of isolation and helps you connect with others who share similar concerns

To tap into these types of support, speak with an oncology social worker or join a post-treatment support group at CancerCare. A social worker can also help you identify local support services.

Finally, you might find it useful to listen to these Connect Education Workshops:

I have stage 4 non-small cell lung cancer and now am receiving Tarceva. I'm trying to prepare for the future by exploring hospice and want support for my husband. Do you know what kind of pain I might expect?

2021-03-06 00:00:00 -0500

There is no easy means of determining how late-stage lung cancer may progress. At times the process can be relatively benign and pain free; at other times, it may cause the person with cancer to deal with discomfort and pain. You have already identified one of the most appropriate resources for managing your situation - hospice care.

Hospice provides some of the best palliative care available and focuses on the patient’s physical, emotional and spiritual comfort. We encourage patients and family members dealing with late-stage cancer to contact local hospices as soon as possible. This gives patients and their loved ones the opportunity to develop a relationship with staff and ask questions (such as how pain and symptoms can be managed) and to determine what services could be helpful. Connecting with hospice often times results in peace of mind for both patient and family members, as needs can be assesed, questions answered, and important next steps identified.

For more information about hospice and end-of-life care, please consult the National Hospice and Palliative Care Organization’s website, Caring Info.

Another resource is our publication, “Caregiving at the End of Life”. And remember that CancerCare’s professional oncology social workers assist lung cancer patients and their loved ones in situations similar to yours and can help them navigate their way through end of life care.

I'm worried my grandfather is not getting the best treatment for his cancer. When I ask him to ask more questions, he tells me he trusts his doctor and that's it. He lives in a rural area, and I would like for him to get a second opinion, but not sure how to?

2021-02-22 00:00:00 -0500

Thank you for reaching out. We highly recommend all patients receive second opinions, especially when you believe that your grandfather is not getting the best treatment for his cancer. If he has insurance, I would reach out to the company and see what other hospitals/physicians are in his network. You may also want to contact an academic medical institution or a National Cancer Institute-designated facility. Secondly, it is important to remember that most doctors welcome a second opinion. Receiving a second opinion is a normal part of the cancer journey. The second opinion will help confirm the diagnosis/treatment and may suggest other alternative treatment options.

We realize that starting this conversation with your grandfather’s doctor may feel uncomfortable. However, keep in mind that many times doctors appreciate this as it is another opportunity for someone else to review their care decisions. Here are a couple of statements that may help:

“I would like the reassurance of a second opinion. This will help us feel confident in continuing with the current treatment plan. What is the next step?”
“I am worried for my grandfather as he is sharing minimal information with me. I would appreciate it if you could please provide me with more information regarding his current treatment plan.” This will be essential information to know when comparing notes between the original treatment team and second opinion. Additionally, you can request to have his current treatment plan sent to the second opinion physician.

Also, I would recommend speaking to his treatment team regarding a Comprehensive Geriatric Assessment. This will help analyze his cancer, comorbid medical conditions, functional, psychological, social, financial and cognitive status. These assessments are essential for older adult clients as they provide a wealth of information that can help guide treatment decisions.

For additional information on improving doctor-patient communication, view our resources.

Please know CancerCare is here for you. Our oncology social workers are available to assist you and address the many issues that come up as you and your family go through this. We can help you with questions to ask your medical team and also provide support. You can contact us through our Hopeline at 800-813-HOPE (4673).

Are there any alternative treatment options available for cervical cancer? Or things I could be doing in addition to standard treatment?

2021-01-14 00:00:00 -0500

Alternative treatment options for cancer can include a wide variety of approaches that are sometimes used in place of conventional measures of care practiced by Western practitioners, such as chemotherapy and radiation. Examples of alternative treatment options may include acupuncture, acupressure, homeopathy and naturopathy. When these alternative practices are used in conjunction with conventional medicine they are often referred to as complementary medicine. To learn more, read Memorial Sloan-Kettering’s publication, Complementary Therapies to Ease the Way During Cancer Treatment and Recovery .

When considering alternative and complementary treatment for cervical cancer, it is very important to communicate with your medical team. Some alternative therapies may be contraindicated for the treatment plan your doctor has recommended. The National Cancer Institute (NCI)’s Office of Cancer Complementary and Alternative Medicine provides extensive information and sponsor clinical trials that examine complementary practices in cancer care. For more information on these trials and the current research in this area, call NCI at 800-4-CANCER or read their publication, Thinking About Complementary and Alternative Medicine: A Guide for People With Cancer.

If you’re considering utilizing alternative or complementary therapies, it is important to keep your medical team informed about what you are doing/taking; keeping the lines of communication open and being open about any additional therapies you are utilizing can allow you and your medical team to continue working as a team for optimal outcomes. For tips on effective ways to speak to your medical team, see CancerCare’s fact sheet, “Doctor, Can We Talk?“ Tips for Communicating With Your Health Care Team.

I work in a hospital and would like to better understand the challenges LGBTQ+ people face in medical settings. I'd like to educate the team I work with.

2020-12-18 00:00:00 -0500

It is important to be mindful of the fact that the LGBTQ+ community has historically faced a great deal of violence and discrimination. Although we have made massive strides toward greater equality, stigma and biases do still exist. A 2010 study by Lambda Legal revealed that 56% of LGBTQ+ respondents had experienced discrimination in healthcare, including being refused treatment and/or physical touch, as well as being blamed for their health status. For this reason, be mindful of the fact that an LGBTQ+ identified client may be feeling fear or anxiety during your encounters with them.

Healthcare providers may assume their acceptance of LGBTQ+ patients is a given, or that sexual orientation and gender identity is not relevant to the quality of their care. However, implementing simple changes such as visibly displaying a rainbow flag or utilizing more inclusive language at intake can go a long way in soothing underlying concerns and foster a greater sense of safety. Clearly indicating that your practice is an accepting environment signals to both LGBTQ+ patients and staff that it is okay for them to be “out” without fear of intolerance. This has been linked to improved health outcomes and overall wellness across the continuum of care. The National LGBT Cancer Network and the HRC’s annual Healthcare Equality Index both outline best practices and recognition criteria for LGBTQ+ affirming healthcare services.

Much of the potential harm or misunderstanding LGBTQ+ folks experience in medical settings is likely inadvertent and usually results from a lack of familiarity or fluency with LGBTQ+ culture. Your desire to educate yourself and your team is a vital first step in creating a more inclusive environment. The National LGBT Cancer Network offers excellent LGBTQ+ Cultural Competency trainings, which can make a huge and lasting impact in both the mental and physical health outcomes of your LGBTQ+ patients.

I have been diagnosed with cancer. I have no insurance or can't get Medicaid. I owe a doctor for a previous procedure. I've applied for disability, and I have no income. I can't get the radiation treatment I need - what should I do?

2020-08-31 00:00:00 -0400

It sounds like you might not be able to afford coverage at this time so you should reach out to hospitals that might offer charity care. Charity care will help get some kind of treatment but it depends on the hospital what their charity care consists of. Another option is to see if there are hospitals that have their own insurance network. Some hospitals and cancer centers offer their own in-house insurance which is only valid within the facility for services. The last option for receiving services is to inquire about patient assistance programs within the hospital or cancer center. Patient assistance programs can help by providing a grant, payment plans, sliding scale or resources about other grants to help cover the costs.

You may take a look at our online resource guide to see what financial resources are available to you.

One last suggestion regarding the previous bill is reaching out to your network of family and friends. Sometimes family members and friends can assist with some of the funds or can assist in coming up with a fundraising plan.

If you would like more personalized experience, CancerCare offers a Resource Navigation Program free of charge that will provide you with a case manager than can assist in locating local financial and emotional support resources.

My sister was diagnosed with cancer recently, and she has no health insurance (she does not qualify for Medicaid). What can she do?

2020-08-24 00:00:00 -0400

If your sister was previously employed and receiving health insurance coverage through her employment inquire about COBRA which will help her keep that insurance. Another option of getting coverage is through the Health Insurance Marketplace for the state that she lives in. You can do that through www.healthcare.gov. The Health Insurance Marketplace will ask questions in order to determine what coverage is available for her needs as well as what her current budget allows. These two options are available to help her get coverage, but it will also require a fee for the coverage. If the fees are a too much for her current budget then a suggestion is to look into Insurance Premium Payment programs that might help offset some of the costs.

If paying for insurance coverage at this time is not in the realm of possibilities, then you can reach out to hospitals that might offer charity care. Charity care will help get some kind of treatment but it depends on the hospital what their charity care consists of. Another option is to see if there are hospitals that have their own insurance network. Some hospitals and cancer centers offer their own in-house insurance which is only valid within the facility for services. The last option for receiving services is to inquire about patient assistance programs within the hospital or cancer center. Patient assistance programs can help by providing a grant, payment plans, sliding scale or resources about other grants to help cover the costs.

If you need any additional resources or assistance, CancerCare offers a number of publications with resources for financial assistance. Below are two of them:

If you would like a little more personalized experience CancerCare offers a Resource Navigation Program free of charge that will provide you with a case manager who can assist in locating local financial and emotional support resources.

Lastly, another resource is www.cancerfinances.org that offers a toolkit for navigating finances after a cancer diagnosis.

I'm concerned about taking my mother to her radiation treatments due to COVID-19. Are there guidelines or rules available that would help me make sure she's safe?

2020-07-28 00:00:00 -0400

We know that cancer patients and survivors are more vulnerable to COVID-19. However, being in active treatment and navigating this pandemic can feel especially difficult. Be sure to discuss with her treatment team the safety precautions they are taking. If possible, prior to the radiation appointment, request a telemedicine meeting and ask questions such as:

Can we wait in the car until the team is ready for her?
Are visitors being allowed at this time?
Can she wear her mask during radiation?

Here is a link to our factsheet regarding speaking with your treatment team. Perhaps, this will also help clarify some additional questions you may have.
“Questions to Ask Your Health Care Team About the Coronavirus and COVID-19”

Cancer centers are doing their best to ensure safety and continuity in treatment. Many are enacting social distancing markers, health screenings, frequent cleanings, and more. However, you are not alone in this concern. We are hearing from patients and caregivers how stressful it is to navigate not only a cancer diagnosis but also this unprecedented time. Increased feelings of anxiety and fear are normal. Feel free to reach out to our national hotline (800-813-4673) to see if any of our other services are of interest to you. Our social workers are happy to explore additional resources. We provide limited financial assistance that can help with treatment-related cost. Applying for this program could help with the cost of taking her to treatment and reducing any use of public transportation.

A friend's wife has stage 3 colon cancer. Being a teacher, she lost her job and husband is being laid off in two weeks (both are do to the pandemic). How can we get finance assistance so we can make ends meet?

2020-06-19 00:00:00 -0400

COVID-19 has had such an immense impact on jobs, and I can understand how difficult this may be as your wife continues through cancer treatment. I would definitely encourage you to call our Hopeline (800-813-4673) to speak to one of our oncology social workers about potential financial assistance options through our organization. Some hospitals or treatment centers may have different patient payment plans to help offset some of these cancer treatment related costs, a social worker or financial counselor may be able to provide more information. There are also organizations that provide small financial assistance grants that may help to alleviate some overall costs. Our social workers also can explore additional resources for financial assistance. Some organizations may have specific funding for those impacted by COVID-19 such as:

It may also be helpful to look into either short-term benefits or unemployment benefits if possible.

I’m a nurse who lost my job due to COVID-19 and was just diagnosed with cancer without insurance. I’m kind lost because most cancer hospital do not take people without insurance.

2020-06-19 00:00:00 -0400

Unfortunately, being uninsured, underinsured, or finding health insurance can be extremely difficult as one proceeds with cancer treatment. I can understand many mixed emotions when diagnosed as well as continuing through several hardships and obstacles that may arise. Please know you are not alone, and there may be several options to explore.

CancerCare offers limited financial assistance for cancer-related costs such as transportation and child care, and our oncology social workers can help you find resources. CancerCare also now provides free national Resource Navigation Services to patients, post-treatment survivors and caregivers affected by cancer. We offer a short-term, strengths-based approach to resource navigation where the social worker will work with the client in connecting them to resources, referrals and financial assistance.

Depending where you live, there may be state options to access medical insurance coverage. Triage Cancer is an extremely helpful resource in navigating health insurance concerns. Additionally, I would recommend taking look at the Healthcare Marketplace. I am also wondering if there are any short-term benefits or unemployment benefits that you may be eligible for.

I'd like to organize a support group for cancer survivors and people facing a cancer diagnosis. What do I need to do to get one started?

2020-05-20 00:00:00 -0400

Support group has become a much broader term than many of us realize. What type of support group do you intend to start? At CancerCare, we offer three modalities of support group: including in-person, which is the format that most of us think of when we think of a support group; telephone, which is more like a weekly conference call that is moderated by an oncology social worker; and on-line, which is a message board format. Each modality has different features as well as limitations.

After deciding what modality of group will be most beneficial to your potential group members, you will also want to determine the content, structure and policies. Is your group about members sharing their experiences? Do you want an educational component with guest speakers? How often are you going to meet and where? Who is eligible to participate in the group? Who is going to moderate the group? What are the rules for discussion and maintaining privacy? What mechanisms are in place to enforce your group’s guidelines?

Familiarize yourself with existing groups. Local medical centers often offer support groups that are open to the community. Contact national advocacy organizations for specific cancer diagnoses to find out if they have a chapter where you live.