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How Gavin hurt his hand

Lost and Tired — Wed, 30 May 2012 14:26:10 +0000

If you look a few posts back, you’ll see a picture of Gavin’s hand, injured. We couldn’t figure out how the heck he had done that. We weren’t sure if he had done it during his meltdown or if something else had happened. The...

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jess — Wed, 30 May 2012 10:22:11 +0000

Dear Mrs. R-B., I understand willful ignorance. It’s a powerful thing – especially when it comes to our children. Heck, I spent a year denying that my baby girl had autism. So I get it. I really do. But one day, something snaps. It has to. When you live with someone, love someone, PARENT someone, [...]

IMFAR 2012: One Autistic Attendee’s Perspective

Shannon Des Roches Rosa — Wed, 30 May 2012 10:00:00 +0000

Carol Greenburgwww.thinkingautismguide.comSome of the people referenced in this post are affiliated with Autism Speaks. TPGA does not consider Autism Speaks an organization that benefits autistic people. -SRThe author and Stephen ShoreEvidence-based in...

Now we have tremors

Lost and Tired — Wed, 30 May 2012 06:56:00 +0000

I noticed yesterday that Gavin is experiencing some pretty severe tremors. He physically can’t stop his hands from shaking. I don’t know if this is something that we should be concerned with. I mean, it makes me really nervous but at t...

Stem Cell “therapy” for autism: a warning

Sullivan — Wed, 30 May 2012 06:00:07 +0000

A recent news article focused on autism researchers who are also autism parents. One of the researchers in Autism scientists search for help, for their own kids’ sakes is Ricardo Dolmetsch, whose work on stem cells and autism was one of the highlights of IMFAR 2011 and was a focus of NIMH director Tom Insel. [...]

All I have seen

rhemashope — Wed, 30 May 2012 05:07:35 +0000

Life in Autism Land often brings unexpected joy and beautiful humor, and I love having this space to record it. It’s startling how in an instant, moments in the journey can also bring a tidal wave of unsettling fear, heartache and discouragement. On the whole, we have not experienced a high degree of self-injurious and [...]

Final Thoughts: 05/29/2012

Lost and Tired — Wed, 30 May 2012 03:32:06 +0000

While today has been trying, it’s over now and we have all survived together. The appointment with Dr. Pattie went well and Gavin participated to the best of his ability. I don’t know how much Gavin actually retained but the effort was ...

Today’s Victory: Two Players

Lost and Tired — Tue, 29 May 2012 22:54:39 +0000

Today’s Victory goes out to Emmett and Elliott. It’s a rare occasion to see the two of them playing so nicely together. This afternoon, they were both sitting on the couch, playing Sonic Generations on Elliott’s 3DS. They were actu...

MMS, or how to cure autism with bleach. Brought to you by AutismOne

Sullivan — Tue, 29 May 2012 21:57:31 +0000

There are so many strange theories about autism which come and go that one doesn’t have the time to read up on all of them. Such is the case with MMS, which I now know stands for Miracle Mineral Solution. Recently the chatter on some of the yahoo groups I subscribe to increased with discussions [...]

#Autism: Let your kids know you’re proud

Lost and Tired — Tue, 29 May 2012 21:23:00 +0000

Something I always make sure I do, at least once a day, is tell each of my boys how proud I am of them. When it comes to the days that we struggle, I really try to focus on this. I want them to know that no matter their choices, I’m alway...