Eduardo Salazar, an 11 year old boy with HLH Syndrome, de villa union, durango, mexico

Eduardo clings to life, intubated, a real fighter against orphan childhood diseases

2010-03-04T17:43:00.004-07:00

Eduardo clings to life

It wasn't supposed to be this way

I have not been staying in contact with my Salazar family contact the way I should. It is pretty clear to me, the news is not good. Sometimes it is better to not broach the topic than to bring a flood of pain and sorrow into one's heart.

Eduardo has been battling for his life. He is one tough kid! He has been intubated, if I understand the Spanish explanation. He has been rushed to the hospital. He has suffered like no child should ever suffer.

The Salazar family has given up their dream of getting Eduardo modern medical care. They were never convinced there was anything to modern medicine anyway. They still fight to feed the kids, pay the bills and take care of a very sick child.

Hence, we continue asking for donations for the family. They are noble, maybe too proud to speak out for themselves. Those who have been care takers know, it takes a lot of money to take care of the sick person. Meanwhile, the brothers and sisters take back seat. There is never enough when you make less than $400 a month.

Please send donations to:

Tim Paynter

Attorney at Law

120 South Kalamath St.

Denver, CO. 80223

The problems Blake Robbins is facing, and the problems of Pensylvania school spycams in the LMSD community, pales in comparason to this kid's problems. It puts it all in perspective. It is still an interesting story, http://lawmancolo.blogspot.com/2010/03/lmsd-folding-tent-computer-web-cam-in.html

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Guarded improvement Happy New Year

2010-01-02T00:51:00.004-07:00

Eduardo beats odds

Child with Hemophagocytic lymphohistiocytosis

(HLH syndrome) survives

I spoke to a representative for the Salazar family yesterday. Eduardo is recovering from a childhood disease called Hemophagocytic lymphohistiocytosis *HLH Syndrome*. Most children are lucky to make it two months with out almost immediate treatment. Eduardo's treatment was slow to come, but he is still with us.

I was very relieved to hear that Eduardo is stable. He may even be doing better. They put him through the ringer in El Hospital General in Durango, Mexico. A good portion of his bowel has been removed in a desperate attempt to stop hemorrhaging. This little 12 year old fought with everything he had. Maybe he will be a soccer star after all!

Family and friends are gathered 'round. Gratitude is huge, a belief and tremendous faith has left the Salazar-Rivera family with their young Eduardo. There is also the issue of herbal medicine. Maria Salazar Rivera is working with the doctors in coordinating traditional herbal medicine with modern pharmaceutical treatments when the Mexican health care system can scare them up.

The Salazars still need your help and support. They are struggling under a tremendous burden of taking care of a very sick child and keeping food on the table for brothers and sisters. If things do not change, some of the brothers and sisters will likely go hungry from time to time. It is part of life in Villa Union where jobs are scarce and the pay is marginal.

We remain disappointed we were unable to attract the attention of the Latino press on this story. The plight of Mexican nationals who live in Mexico is compelling. This is a global world we live in and without each other, we have nothing. Those we help today will likely help us tomorrow. We could not seem to make that case to the Piolin por La Manana group, or to any sponsor for that matter.

One must be grateful for what we have. Tonight, we have Eduardo. It is not enough because this young child of Mexico will need treatment for some time to come. It is not enough because there are a lot of 'Eduardo's' out there who need help. It will never be enough until we can find a way to help those who have been lost and forgotten by a world based upon greed and corruption and power.

Happy new year to all of you who have supported us. Please join our email or hit the site feed and follow us. Don't be afraid to send a donation if you have an extra buck or two. And if you don't, we ask you keep Eduardo in your prayers, just as we keep all who suffer in ours!

Dios te bendiga

Uncle Tim

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Resting, a little better, family hopeful

2009-12-23T22:30:00.004-07:00

We have guarded news tonight from the Salazar Rivera family. As Christmas eve approaches, the family tells me Eduardo is doing a little better! Eduardo has HLH, a rare and often fatal illness which strikes mostly children. The 11 year old has been en Hospital General, Durango, MX for a month. He was discharged a few days ago.

The family is considering their options. Traditional herbal medicine is well known to them, and the complicated medical system of modern doctors is beyond their capabilities. They are working with the modern doctors to be sure none of the herbal remedies conflict with current medications.

Little Eduardo has fought with everything he has. Now, it is in God's hands. We hope them the best, as well as all young children and their families who are facing similar situations.

Dios te bendiga,

Uncle Tim

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Eduardo goes home a hero Ticker Tape Parade!

2009-12-21T23:14:00.010-07:00

11 year old boy with rare disease, Hemophagocytic Lymphohistiocytosis also known as HLH syndrome, has fought for his life against all odds.

A few days ago they finally wheeled him out of the hospital.

They removed his lower colon and he has a colostomy bag.

During his more than a month in the hospital there were three desperate nights in which the doctors said it would take a miracle if he were with us in the morning. Miracles happen in threes!

His ordeal may not be over. According to a US national specialists, HLH syndrome patients only have 20% chance using the limited drug therapy which was available to a poor family in a poor country. Orphan diseases like hlh are difficult to fight because they are rare and there are not many specialists who study these kinds of childhood illnesses.

Guarded news for Eduardo

Mexico's son is out of the hospital and back in his

childhood home of Villa Union Duranago.

Bien Venido Pelito!

Eduardo, he likes to be called "Pelito", was in the hospital for over a month. He was diagnosed with hlh syndrome, an illness that is nearly always fatal if not treated within 2 months.

Eduardo went through multiple operations trying to stop the hemorrhaging of blood. Eduardo's lower intestine was removed, bit by bit, operation by operation. He now has a colostomy bag in his side. That is a tough nut to crack for an 11 year old.

"How do you feel about being home?"
the questions flowed.

"Fine," Pelito replied.

The smile on his face told the whole story. Eduardo was going home.

Going home was complicated. The people of Villa Union, Durango, Mexico, know all about Eduardo Salazar. They showed up at the Salazar rivera home in throngs. There was a parade of sorts, all for a brave little boy who may be Mexico's next great soccer star.

The brothers and sisters painted Pelito's room. It was the best gift they could give this great brother ! To top it all off, brothers and sisters put a big Bien Vendio sign in Pelitos room to make it look bright.

There were smiles on every face, tios, cunados, vecinos, hermanos y hermanas of course, friends from school...Eduardo was finally home, something they said would not happen.

Eduardo comes from a poor family. With 7 children, Marisela, Maritela, Jain, Miguel Angel, Mariela, and Jaime, it is difficult to give material things to them. Today, Eduardo had about every toy an 11 year old could want! There were more toys than he and all of his brothers and sisters combined had gotten in their lifetimes!

Eduardo was happy to see some of his brothers and sisters play with some of the toys. He is very weak and could not play with most of them!

Then there are plenty of flowers for all of the family to enjoy!

Finally, the line into the Salazar Rivera home was too long. Eduardo was so tired. His wishes were respected and the party went somewhere else.

Mom and dad and the family are thrilled to have their child home. It is as though Dios had given them a miracle. There are big smiles of wonderment, relief, a sense that a light at the end of the tunnel has been seen.

What they don't know is that HLH is like a wolf in the night, waiting to strike it's victim.

The US expert I spoke to said the chances of recuperation with Gama Globulin alone were slim. Eduardo would do better for awhile... and then .... without a bone marrow transplant and chemotherapy the blood in Eduardo's system may pull him down again.

Today, we thank God for what we have. All of the neighbors want to thank God, too. Each wants to take Pelito to their own respective churches so they may thank God in their own way for this bundle of miracle in front of them!

Pelito just smiles, but the smile is one of strength and defiance. He has beat the odds, he knows he will pull through and we beleive in him.

The cost of medical care in Mexico is high and there is a question about the quality. We are still seeking donations to bring Eduardo here so he may take

advantage of one of the few clinics in the US.

Short of that, the Salazar Rivera's want him to have the best medical care thy can in Mexico.

Our appeal to Piolin Por La manana and Univivion was a complete flop. Perhaps they have something against me personally. That would be a tragedy, to put personality in front of the well being of a child.

Maybe we did not catch their eye, although I sent the Piolin station manager several notes. These people have immense power, prestige, imagine the number of people who are trying to get something from them for their own personal gain. All we are trying to do is help save Eduardo.

If Eduard Sotelo will not help us perhaps we can appeal to the competition. This remains a compelling story about an innocent boy who wants to be a soccer star and got held up by an ugly illness called HLH Syndrome. This is a story about how a forgotten city in Mexico pulled together to help one of their own.

God bless the Salazar Rivera family. God bless Eduardo Salazar Rivera. God bless all of those who helped him in his fight for life. God bless those few who turned their back, for we are all children of God. God bless you, and if you have a little boy or a little girl who is fighting a potentially fatal disease, God bless your young one. Out thoughts and prayers are with you.

Dios te bendiga,

Uncle Tim

We Almost Lost Eduardo Un Hijo con HLH

2009-12-14T18:30:00.013-07:00

Child who went through

hell is still with us!

Eduardo battles a rare childhood disease

Family appeals for help

"We almost lost Eduardo Last Tuesday night. This child is fighting with all his heart, and I am sure, those who have been following this story, Eduardo knows you are with him, too." said Tim Paynter, an attorney in Denver, Colorado.

Paynter was talking about Eduardo Salazar Rivera an11 year old child, who contracted a rare disease which strikes mostly children called HLH syndrome. Fortunately, Eduardo has what is known as SHLH, which means the illness came on after or is secondary to an infection, likely the Epstein Barr virus. Victims of HLH usually die within 2 months after onset without medical treatment.

"You can imagine how the parents must feel!"

"HlH is an illness similar to cancer and more specifically like leukemia, but is neither cancer nor leukemia." said Paynter. "They treat it the same way as cancer and leukemia, they us chemotherapy and a bone marrow transplant."

You have to be lucky to get a bone marrow transplant and chemotherapy in Mexico according to Paynter. Eduardo comes from a poor family in sleepy Villa Union, Durango, Mexico. The idea of paying for sophisticated treatment costing in excess of $500,000 is not within the means of a humble family.

"You can imagine how the parents must feel", Paynter noted. "What parent does not grieve when he cannot give his child what he needs. It must be very difficult when that which you cannot give means life or death for the child."

Paynter said the would-be soccer star has had a large portion of his intestine removed.n

"They said the entire intestine was removed" Paynter said. "There is a language barrier, so I am not sure if it was the entire intestine or just the entire upper intestine."

"We needed the help of influential people like Univision, like Piolin Por La Manana"

Friends of the Salazar family were optimistic they could bring Eduardo to one of the few clinics that specialize in HLH in the U.S. Erin Kennedy, from Castle Rock Colorado, also a good friend of the Salazar's, was checking out preparations.

"We could not come up with the money to be able to help Eduardo."

"We needed the help of influential people for that, like Univision, Piolin Por La Manana, that kind of clout." Paynter said.

"It is more than just money. We need muscles to help fast tracking immigration, we kneed an aircraft to get Eduardo to the hospital fast. These are the kind of things wealthy media company's have access to."

"If you don't have cash then send something you don't want!"

"We are praying for this child of Mexico." Erin Kennedy said. "God has his plan for Eduardo. We hope it is for this bright child to remain around for awhile.!"

Paynter and Kennedy are accepting donations of cash and of things to be sold on the Internet.

"If you don't have money then send something you don't want anymore and we will sell it on eBay!" Paynter said.

Cash should be sent to
Tim Paynter
Trust account
Attorney at Law
120 South Kalamath St.
Denver, Co., 80223

Gifts should be sent to
Tim Paynter
Attorney at Law
120 South Kalamath St.
Denver, CO., 80223

"We are not trying to save every child's life, although we would like to. We are trying to save Eduardo. Won't you be a part of it?"

Child fights for his life in Durango hospital

2009-12-13T02:43:00.004-07:00

Eduardo Fights For Life

Frantic family celebrates the gifts god gave them

We did not hear anything from the Salazar family for the past several days.

Finally we made contact with Maria Salazar Rivera today. This is a mixed blessing. We were relived to hear Eduardo is still with us. We must all celebrate the gifts god gave us. The other part of the good news is this little child is doing slightly better.

The bad news? This budding soccer star has been through more operations in an attempt to stop hemorrhaging. One must wonder how much a little boy can take.

Maria was on the run, getting ready for a trip back to the hospital where she could be by her child's side. We know it has been a terrible struggle for her, taking care of 6 other children and Eduardo, too!

We express our disappointment the Latino radio and TV stations ignored this 11 year old boy in his time of need. Does any one care what happens to those living South of the border?

That especially applies to Eduardo Sotelo, who I though would run with this story. He is such a compassionate person ln the radio, and even though my time with him on the Piolin Caravan to Washington D.C. was short, I thought he was a good soul. Geez, I still think so!

God has a different plan. If you are one of those who cannot use the "G" word, then stick the word destiny in the phrase. Eduardo has his destiny. Maybe it is not what we wanted for him. We have resigned ourselves Eduardo will not get the medical treatment he needs, and the established media outlets were no help at all.

Please keep your hearts and prayers open for Eduardo. We are still seeking donations of cash or things to sell on eBay. Having a sick child is a very costly disaster which hit the Salazar family hard.

Mail Cash to:
Tim Paynter
Attorney Trust Account
120 South Kalamath
Denver, Co., 80223

Mail Things to:
Tim Paynter
Building A
120 South Kalamath St.,
Denver, CO., 80223

Every penny helps. We may not be able to save all sick children, let's start with Eduardo!

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Deadly Illness Strikes After Mono, Epstein Barr

2009-12-07T12:33:00.009-07:00

Have you or your child had Mono? Epstein Barr? Herpes? Watch for sores on your body which may indicate you have been infected with HLH. If left untreated the illness is usually fatal within 2 months!

Hemophagocytic lymphohistiocytosis, or HLH, presents with persistent fever and paleness. There can be jaundice and neurological symptoms, such as irritability. If you or your child have these symptoms then seek treatment immediately. The sooner the illness is diagnosed the better the survival chances.

Young Eduardo Salazar has been infected with this ugly disease. You can read about his fight at the following address:

http://saveeduardo.blogspot.com/2009/12/resting-peaceful-hopeful-where-r-u.html

HLH mostly infects children and is an autoimmune disease. There is a treatment for it called the 2004 treatment protocol, which has been successful in cases brought on by secondary infection like Mono, herpes or Epstein Barr. Those who acquire the illness through heredity have a significantly reduced chance of long term survival.

More information about HLH can be found here:

http://www.cdc.gov/ncidod/eid/vol6no6/fisman.htm

While HLH is rare, it is an illness that requires vigilance. If you suspect you have symptoms don't delay in seeing your doctor!

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Child Fights Rare Disease, Needs Donations of Cash, Items 2 Sell on eBay

2009-12-07T11:34:00.007-07:00

Eduardo Salazar Rivera is fighting Hemophagocytic lymphohistiocytosis, HLH. He needs donations of money and things to sell on eBay. Please send to Tim Paynter, Attorney at Law, 120 South Kalamath St., Denver, Co., 80223.

Feel free to email me.

More information on HLH is at the following URL, Thanks, Tim.

http://www.histio.org/site/c.kiKTL4PQLvF/b.1851483/k.7487/Hemophagocytic_Syndromes.htm

More information on Eduardo:
http://saveeduardo.blogspot.com/2009/12/resting-peaceful-hopeful-where-r-u.html

Thanks, Uncle Tim

11 Year Old Needs Money For Medical Care, Rare Disease, HLH Syndrome Attacks

2009-12-06T01:58:00.018-07:00

Eduardo Sleeps...

Sometimes all we have left is prayer

Join Us In This Story of Hope

For A Child Fighting A Rare Disease

December 05, 2009

In life there is always hope. We finally heard from the Salazar Rivera family who are watching over their son, Eduardo in El Hospital General de Durango, Mx..

It is hard to imagine how a young boy can fight so hard. Little Eduardo Salazar Rivera is still alive and kicking. He has been through two more tough surgery's as the doctors frantically try to stop his internal hemorrhaging. Eduardo is out of intensive care once again.

The sad truth, until Eduardo is able to get the
best of care his chances are not very good
Eduardo's parents want to move hospitals. They are not convinced their son is making progress where he is. The sad truth, until Eduardo is able to get the best of care his chances are not very good. But God has his plan and we have been praying for Eduardo, that God's plan be done, what ever than may be.

For those just joining our blog, little Eduardo Salazar Rivera is suffering from a rare childhood disease called HLH or Hemophagocytic lymphohistiocytosis. There are two forms, hereditary HLH and HLH acquired through secondary infection, or SHLH.

Those who acquire the illness through heredity have a poor prognosis even if they can they can force the illness into remission. Those who acquire the illness through infection, as appears to be the case for Eduardo, have up to a 70% of recovery with aggressive treatment. Aggressive treatment includes chemotherapy, imunotherapy and a bone marrow transplant.
We appreciate cash donations or gifts of
property to be sold on eBay
The family is short funds and appreciate donations, money or property to be sold on eBay. Please send to Tim Paynter, Attorney at Law, 120 South Kalamath St. Denver, CO., 80223. If you have connections to the media we would appreciate your assistance in this desperate call for help.

Sometimes all we have left is the power of prayer. I hope you will keep Eduardo in your prayers, and his family, as we are all children of God. Eduardo could be your nephew, or grandson or the child of someone you know... We can't save every child, very sad if true. We can save Eduardo, and we ask you to be part of it.

Uncle Tim

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No News, 11 YO Fighting For Life, HLH Syndrome, Childhood Diseases Deadly

2009-12-05T17:21:00.003-07:00

For our new followers, Eduardo Salazar Rivera is an 11 year old boy fighting for his life against a childhood disease called HLH Syndrome, or Hemophagocytic lymphohistiocytosis. This disease is a rare illness difficult to diagnose. It strikes mostly children. Those who acquire it through infection, as Eduardo apparently has, have a 70% chance of recovery if they get the right treatment protocol. Those who do not get appropriate treatment usually die within 2 months.

Little Eduardo has been through hell. Last we heard he had suffered hemorrhaging and he lost over a pint of blood. There was the night of miracles in which the doctors said it would take one for him to pull through. He did. He now has a colostomy with a significant portion of his bowel removed.

Little Eduardo has been through hell

We hope no news is good news. The family has been in crisis, and we have been praying for God's will. We have also been fund raising as the treatment for HLH is very expensive. Sad to say, Eduardo is not in the ranks of the lucky ones to receive the chemotherapy and bone marrow transplant that he likely needs. He still has a chance.

After all of that depressing news, let me give you something positive. Now is your chance to make a difference in this young man's life. We need donations of any amount. We are also accepting items to sell on eBay. Everyone has something they don't want.

let me give you something positive

Please help little Eduardo as if he were your own nephew or grandson. We are all children of God. We can't save every child with a rare illness, not yet at least. But we can save Eduardo.

Please send donations of money or things to be sold on eBay to:

Tim Paynter,
Attorney at Law
120 South Kalamath St.
Denver, CO., 80223

If you include your email we will tell you when your item comes up for sale, if you send items. That way you can see what the item sells for and be part of the Salazar Rivera family.

If you have a little one suffering from illness, please write and leave comments. Every child has the right to live. Let's celebrate our lives together and share in the wonders that we have been given.

Thanks you thank you thank you,

Dios Te Bendiga,

Tim Paynter

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Resting, Peaceful, Hopeful, Where R U? Childrens Diseases, Charity

2009-12-01T12:20:00.004-07:00

What do you do when your child has a likely terminal illness? What do you do when the research options are limited? What do you do when the medical diagnosis for a young boy is poor, a child who has yet to live much life falls gravely ill? What can you do for a mom or dad lost in their grief, in their own sense of powerlessness, thier desire to give everything...but who don't have what is needed, money, power, respect to help their son?

The Salazar Rivera family has done what they can. I hope they are proud. As friends of the family we appealed for public support. Our plan was to bring this young son of Mexico to St. Jude's Hospital where no child is refused. Our plans have gone awry.

Our appeal to Latin America radio stations for help, our appeal to Univision and people with power have gone unheard. The plight of a poor boy from Villa Union Durango Mexico has been lost on a world interested in more important things...money, prestigue, a realization not everyone can be helped, so why help anyone? Why help Eduardo?

Do I sound bitter? Frustrated? Angry=afraid? Probably all of these apply. I can only imagine how a mother and father crying for their young son must feel...

But we have some things to be grateful for. Eduardo has come out of his coma. After surviving the night of hell, the night they said it would take a miracle to survive, he is still with us. They removed a large portion of his intestine. As I understand it, he has a colostomy. He is finally taking in nutrients which were so desperately needed.

The experts I talked to tell me this a stop-gap. If Eduardo is to survive he needs chemotherapy, he may need a bone marrow transplant, and he will certainly need extended hospital care to guard against infection. Most of this he can best find in the US. Alas, the US public has been unwilling to hear Eduardo's story. I am not going to make an appeal for help, donations, things to sell on ebay. All I ask now, for those few who stumble upon this blog, is your prayers.

I will keep you posted as to how Edaurdo is doing. I would love to hear about your personal struggles, your points of view, what worked and did not. I would love to hear about how you feel if your child is suffering too. In unity we find serenity, even when it does not comport with our wishes.

Uncle Tim

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HLH Syndrom and Eduardo Salazar, A Child from Villa Union Durango, Hope Through Prayer,

2009-11-27T11:13:00.010-07:00

Edaurdo Salazar Rivera is an 11 year old with Hemophagocytic lymphohistiocytosis or HLH syndrom, a frequently terminal, mostly child hood disease. While it is not a common childhood illness, when it strikes it is frequently fatal.

One of the first medical questions is whether the syndrome is passed through family lines. This is not a heredity trait one wants to have. Those who acquire this childhood disease trough heredity have substantially reduced survival chances.

Children with HLH Syndrom acquired through infection have a higher chance of recuperation. It is termed as a secondary infection because the HLH syndrom is secondary or brought on after infection, frequently through the Epstein Barr virus. The Epstein Barr Virus is a form of herpes, HHV-4. Nearly 95% of all people in the US have herpes HHV-4. Herpes acquired in adolesence is usually passed as mononucleosis.

While most of us have the Epstein Barr Virus, HLH Syndrome is not an illness you can catch. It appears there must be a genetic predisposition. Once the underlying infection is resolved the HLH may go into remission.

A great source for information for Hemophagocytic lymphohistiocytosis can be found a: http://www.histio.org/site/c.kiKTL4PQLvF/b.1851483/k.7487/Hemophagocytic_Syndromes.htm

Eduardo Salazar appears to have secondary HLH. My friend Erin Kennedy of Castle Rock, Colorado, along with the Salazar family, have been trying to get Eduardo to one of the few medical specialists associated with HLH Syndrome. This is why we reached out to the powerful Latino media outlet Univision, and some of their popular hosts, El Gordo y La Flaca and Piolin Por Manana. Eduardo Sotelo has a heart of gold and we thought our Eduardo's struggle might hit home for Sotelo.

Every child deserves the right to live. Children from Villa Union, Durango, Mexico are no exception.

Tim Paynter is an attorney and civil rights advocate fighting for equal treatment for all, justice through government and children's rights.

Sleep Well My Sweet, All Children Count, Eduardo

2009-11-26T15:23:00.004-07:00

After going into surgery a variety of times trying to stop hemmorahging, Eduardo has been placed into a drug induced coma.

Our pleas for help have gone unheard, sad to say. There has been no response for this needy child with HLH, a mostly children's disease. On today's day of grace, day of thanks, I am grateful Eduardo is with us at all, even though he is not awake.

The family remains desperate for your prayers. This is a family that is pulling together in crises. What greater crises than having your young son at risk? If you know how to pray, I hope you pray with all your might, that God's will be done, and if that will is to return Eduardo to us, then we shall be grateful, and if that will is to take Eduardo from us, then we too, shall remain grateful.

The family is desperate for financial help. They would still like to bring young Eduardo to the US where he can get the best of treatment. Please email me if you have intereest.

God bless, dios te bendiga,

Tim

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We Are Desperate, Can You Help? Call for Eduardo's Life!

2009-11-24T08:45:00.002-07:00

we are aggresivelly seeking media support and help. The family, and Eduardo are running out of options. Here is the press release we put out. Are you willing to help us contact your favorite media star and tell them about Eduardo. Do you care

Eduardo Salazar Rivera is on his death bed. He has a chance but needs to see an expert right away!

Eduardo’s family and friends ask your help in bringing this to the attention of the Latino Press. The family is optimistic the powerful wheels of Univision and the radio show host Piolin Por La Mañanas might have the clout to rush this child through immigration on a medical visa and open the doors for community funding for this boy who wants to be a soccer star.

"We are desperate" said family friend Tim Paynter, an attorney in Denver, CO. "What would you do if this were your child? We are out of options and we need your help!"

Paynter says he cries almost every day. He says he writes daily on the net asking for help. He has sent emails to Eduardo Sotelo, Piolin Por La Mañana, published on craigslist, word press, blogger and blog.

“No one takes it seriously.’ Paynter said. “No one cares about this little kid! He is passing blood, the doctors don’t know what to do, his Mother Maria Salazar Rivera is frantic... How do I get someone to care?”

If you are willing to help, try 1-888-474-6546 for Piolin, or listen to his show for the number.

This email probably works:
Sergio, station manager, piolinporlamanana@univisionradio.com

These might work, too.

elshowdepiolinporlamanana@univisionradio.com

elshowdepiolinporlamanana@univision.comor

“We are also looking for help from other media sources. If you know someone in the media, or someone else that can help, are you willing to make one phone call? One Phone call” Paynter said crying. “We can’t even get people to make one phone call. Hurry. This kid is in trouble!”

Tim Paynter
English Representative 720 951 1700
Spanish Representative 303 594 3035

"Eduardo's future is in your hands. Without your help we don't know what we are going to do."

Press Release: Friends of Sick Child Ask For You To Call Piolin For Help! Make a Phone Call!

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Tough News, Big Heart, Paisano Luchando, Que Hare'

2009-11-22T16:31:00.007-07:00

Jesus Christo, I don't have writer's block, I just don't know what to say..My heart is heavy, bad news, can you pray?

The family called last night, terrified for thier little Eduardo. He had lost a pinto of blood, not sure what exploratory surgery found, they are not either. He is out, there is a slight improvement, very slight. We know every day this light of Mexico spends in the hospital, is a big chance less he walks out.

Miracles happen, God has his plan, what miriacle does he have in mind for Eduardo?

Censored 4 Asking Tough Questions

2009-11-22T13:09:00.008-07:00

Censors Gag Tough Reporting

Part of the process of living is leaving your mark on the world. It is not an ego thing, from my perspective. Some of us leave a positive mark; others a negative mark. A wise person knows he can make a difference and he does his best to make that difference.

Eduardo Salazar Rivera is fighting tough odds. He has an illness that strikes one in a million, mostly children. Without treatment most die within 2 months. Those who get treatment with Gamma Globluin alone have a 20% survival rate; those who get the works, chemotherapy, immunotherapy, professional medical care in a hospital setting-have a 70% chance.

As if Eduardo does not have the deck stacked against him, there are three more factors working against Eduardo:

Hi is poor, so he does not have access to traditional medicine others do;

He is a Mexican National;

He is a Poor Mexican National in Mexico instead of the US.

In order to give Eduardo the best chance possible he needs the best medical care money can buy. Isn't that what we all want for the important people in our lives?

In order to get the best doctors Eduardo Salazar must have access to funding. Even if the entire procedure were free, it costs the family a lot of money to take care of a critically ill child. There are other brothers and sisters who need help. Care takers need taking care of, too.

I have hit a brick wall on getting help for a Mexican national in Mexico. Our neighbors to the south have not learned how to care for the poor. It is beyond our ability to change that. If Eduardo were simply Hispanic in the US, then there would be a lot more solutions.

There would also be more solutions if Eduardo were a Mexican National in the US. At least we would not be fighting the visa process. While we would still have funding issues, some organizations like the Catholic Charities are willing to help children in their region.

So that is what I said. Let's just say the message was not well received.

I appealed to the conscience of the American people and of the Latino press with disastrous results. Face it, Blogger is about one thing: namsy pansy reporting, a million articles on how to write a blog, be a good lover, make money...but the moment you become controversial in your writing, blogger boots you off of the bus.

That is what happened here. Where is Eduardo Sotelo and Univision with its most popular radio show Piolin Por La Manana? Where is US corporate sponsorship like Apple? Where are my fellow Americans? Where are all of the well to do who could come to Eduardo's help but won't?

Does Eduardo deserve the right to live? Would he deserve the right to live if he were your child?

Will you help?

We need volunteers to bring this case into the public. We need money to pay for medical expenses, legal expenses, travel and the lsit goes on.

We need people from all races and all nations to pull together and help save dying children, one child at a time.

When I ask these questions then the censors go to work. The ugly American, who has more than enough, won't help, and he does not want anyone to know it. That is part of the problem with Eduardo's fight. The true story about the rich American, the poor Mexican, never gets told.

Will you help?
Send your donations of money or things to be sold on eBay to:
Tim Paynter
120 South Kalamath St.
Denver, CO., 80223

Write or call if you are willing to donate time or can help us make media contacts-
Tim Paynter 720 951 1700, in Spanish 303 594 3035

Watch Free Press Release, at least they have not been censoring my news posts:

Free Press Release at least puts my stuff out. Be sure to watch for updates from them!

Free Press Release

Eduardo Hemorhages--Operating Room In Prep

2009-11-21T09:22:00.007-07:00

Geeez! Why does it have to be this way?

There was just a frantic call from Mexcio. Eduardo is hemorrhaging and the operating room is being prepared as I am writing this. The family is frantic, tears, disappointment, wishing it were not so, desperation, Christ not sure what to say. I know saying how I feel, or trying to imagine how frantic parents feel, is futile. Words never give it justice.

This is a story of a young man fighting for his life. He has HLH, a rare autoimmune disorcer. As with so many battles, sometimes it just seems a losing battle. If you beat one thing then there are five more coming at you.

Hope, faith, surrender, wiilingness to accept positive and negative out comes without pretending to understad why either must be so...

For those of you who have young ones fighting for their lives, you know how this is. Please keep 11 year old Eduardo Salazar Rivera in your prays this Saturday morning. You can write him and we will get the message to him, eduardoenvivo@gmail.com, that translates to Eduardo en life!

Don't Worry Be Positive!

2009-11-21T08:25:00.005-07:00

Don't worry, be positive!

This has been a tough week for Eduardo Salazar Rivera who lies in the General Hospital in Durango, Mexico, fighting for his life.

Eduardo has a rare disease called HLH which afflicts mostly children. Survival rates are marginal unless treatment is begun quickly. Even then, we lose way too many little ones.

Eduardo has finished his course of five days of Gamma Globulin, an immune drug designed to help him ward off the cancer-like illness he has been fighting. If he is really lucky he will make a full recovery, the illness will go into remission, and he won't need the next treatment...chemotherapy likely followed by a bone marrow transplant.

If Eduardo is not lucky he is going to be really Unlucky. A lot of people with hearts of gold have been beating their heads against the wall trying to figure out how to get Eduardo the next phase of treatment if he needs it. There won't be a lot of time to figure it out. As things stand now, the $500,000 needed is so far out of the reach of everyone I know that is is not an option for Eduardo.

I have spent a lot of time being worried this week and not very positive. Watching a broken health care system, both in the US and in Mexico work, or better said, not work, has been frustrating. The cost of taking care of young lives is so high the solution society has worked out for us is to toss these little people aside as if they don't count.

Every child has the right to live.

So that leaves me with few options. Let go, let god. Accept the things I cannot change. Pray that God's will and my will are the same, and be prepared to accept God's will if they are not.

Don't worry. Eduardo, Be positive~

God speed, God Bless!

Donations Needed-Cash or Goods! Cancer Leukemia Chemo eduardo sotelo charity auction ebay, hp mark hurd

2009-11-19T13:08:00.002-07:00

Everyone has something they don't want. Help save a life!

That usually does not apply to cash, but sometimes. If you are critically ill, for example, and thinking about what to do with what you have, this might be a great place to put it. Help us save Eduardo's life!

We need $500,000 for medical expenses-chemotherapy, bone marrow transplant, extended hospital stay, gamma goblulin, eezzz and we need it as fast as we can get it!

Little Eduardo Salazar Rivera has HLH, which is a rare " orphan " disease sometimes associated with Epstein Barr Virus. It is fatal in many cases. Eduardo needs emergency treatment and he has no way to pay for it.

That is where you come in. Assuming you are not willing to give up your cash, and you are not planning on dying soon, then that leaves a third option:

Give us something you don't want or don't use so we sell it on ebay!

Include your email address and we will tell you when your item is scheduled so you can see how much it brings!

Good items might be a gold necklace you don't wear, a digital camera, a car, boat or airplane, the possibilities are endless!

All it needs to be is something that makes sense to sell. We don't need people dropping their junk at our door, but on the other hand, one man's junk is another man's treasure!

Will you open your heart to an 11 year old boy whose only crime in life is wanting to be a soccer star?

Mail or drop your donation of money or goods:
Tim Paynter
Attorney at Law
120 South Kalamath St.
Denver, CO., 80223

720 951 1700.

Thanks, friends of Eduardo Salazar Rivera.
edaurdoenvivo@gmail.com

We have not heard from Eduardo Sotelo, Piolin Por La Manana, CNN, Univision, HP, Mark Hurd, or any of the high up guys to whom we have appealed for help. I guess they just don't care.

Every child has a right to live. How about Eduardo Salazar Rivera?

Everyone Counts, Every Child Has a Right To Live! Where is Univision, Piolin, The Conservative US Press?

2009-11-19T00:31:00.017-07:00

"Every Child Has A Right To Live"

"I am pretty broken up" said Denver attorney Tim Paynter. "I have been trying to help a little kid in Mexico suffering from a rare, often fatal disease."

According to Paynter, the child might die if he does not get help soon.

The 11 year old boy, who is lying in a hospital in Durango, Mexico, is the victim of Hemophagocytic Limphohisti0cytosis Syndrom, or HLH.

Paynter says he consulted with experts in the field. They said the child needs aggressive treatment or he may die. In this case, aggressive treatment includes chemotherapy and possibly a bone marrow transplant.

Hospital General De Durango in Mexico wanted payment in advance for an expensive medication called gamma globulin. The family forked over $400 a day for 5 days in advance, on threat of the child being sent home to die.

"Unless he receives help Eduardo will probably die."

Paynter said the expert from the Histocytosis clinic in Cincinatti, OH, which is likely the foremost clinic in the United States for HLH, said Gamma Globulin alone is rarely adequate to preserve life.

"Treatment could cost hundreds of thousands of dollars."

"After talking to the expert, yesterday, I found out treatment could cost hundreds of thousands of dollars!" My lord Paynter said, a tear falling from his eye. "We thought we were doing great coming up with over $2,000 in a few days."

Paynter said he has been frantically knocking on doors full time during the past week trying to find funds for the child.

"Every door I knock on gets slammed in my face!"

Paynter said he called Catholic Charities when the family needed the initial $2,000.

"We only help people in this country"

"Sorry, we only help people in this country" she said.

Then he called the Good Will, was referred to the Salvation Army who sent him back to Catholic Charities, Then he called the Shriners. They don't do this kind of work and if they did, it would be in Mexico for a Mexican boy.

"'I have treated a lot of Mexican children' the guy on the other end of the line told me defensively. He did not get the point of my post."

The guy with Angel Flight did. Angel Flight are volunteer pilots who transport sick people at no charge.

"We don't knowingly transport illegal aliens" the voice on the other end of the line told Paynter.

"At least that guy understood I was talking about Mexican nationals in specific, and not Hispanics in general."

"It was the presumption that the Salazar's were illegal because they are Latino and coming from Mexico that bothered me." said the attorney. "I am sure the chap had the best of intentions. He is so conditioned by the plague of hate that he could not see how his assumption was offensive."

"I can't even get the Mexicans to give to Mexicans." Paynter said and then explained his play on words.
He says Mexcian Nationals who have immigrated here legally won't help. He said he has been knocking at the door of Piolin Por La Manana, the most popular radio show host in the Latino world, to no avail.
"To be fair to Eduardo Sotelo, the person behind the Piolin personality, I presume I have his company email, which is another story. I also presume he read the email. Here is a guy who advocates for Latino sick and oppressed and I can't get a response."
The attorney added, to be fair to the community that knows the Salazar family, Latinos and others, the giving has not stopped. If they know us they give. Why is it poor people are the ones to always give?
The Denver attorney has sent emails to Mark Hurd at HP. No word. Can you imagine what Fox News, Sean Hannity, Bill O'Reilly and god forbid, Lou Dobbs would give? Nothing. What do you think?

"No one cares about a Mexican."

The American public says it does not discriminate against Mexicans. Paynter says what we really mean is we don't discriminate against Hispanics. But discrimination against Mexican nationals who are in this country is rampant. That is what we call discrimination based upon national origin.

"You can't discriminate against either one, race or national origin."

"So why should we discriminate against a terrified mother as she holds her child, screaming in pain, just because they are Mexican nationals in Mexico? Maybe we can't save every child, but we can save Eduardo Salazar. Maybe tomorrow it will a child near you who needs the help.

"If You don't like the title, why not get out your check book and help Eduardo?"

"If you don't like the title to the piece, then why not get your checkbook out and help this kid out? If you don't do it right now you will probably forget..."

"You see" Paynter said, finally relaxing as he sat back in his char, "When it comes to our children, everyone regardless of race or nationality has something in common. We agree, Every child has a right to live. Especially if that child is mine."
Donations can be sent to:
Tim Paynter
In trust for Eduardo Salazar Rivera
120 South Kalamath St.
Denver, CO., 80223

If you can't send money, why send something you don't want, and we will put it on eBay?

,,,,,,,,

Just a note, I am interviewing myself in this piece. I have not found anyone who has the guts to do it for me, or for the country.

Good man Sad Man--News From Eduardo-- Piolin Silent

2009-11-18T13:56:00.001-07:00

Well.... Eduardo is responding to therapy with the gamma Globlulin. Great! Hooray!

I emailed a specialist in HLH today. She told me gamma globulin is a reprieve. Without intensive therapy there is little chance. They have room in their clinic, but, alas...it is not free.

We are talking $300,000 to $500,000 to save Eduardo's life.

I cried. Then I prayed.

What is more important, my house, or the life of a little boy? Geeez, life can be so unjust.

The pearl in the conversation is the US specialist does not think the symptoms sound like HLH. Wow, that would be a godsend!

Meanwhile, not a single person has responded to our plea for help. Sure enough, we have not gotten a response from Univision or Piolin, or Eduardo Sotelo, or even one single person we did not already know.

I guess I need to get to know more people!

If you are willing to give, here it is: You can send unwanted but nice items for our internet auction or send bucks.

Please mail your item for our auction for Eduardo or a check to:
Tim Paynter
Attorney at Law
120 South Kalamath St.
Denver, CO., 80223
720.951.1700

When people we know hear about Eduardo they immediately reach into their pockets. We don't even have to ask.

Why is it, the poor people give?

Stay tuned if you like what you read.

Why not check out our ads. It is important to support our sponsors...even if they don't give us money we get a blog.

What I don't understand is, Why doesn't America care about a little boy in a far off place called Durango, Mexico?

Marked Iimprovement-US Citizens Stingy

2009-11-17T17:16:00.000-07:00

I was relieved to hear my new friend in Mexico is doing a little better. He has been fighting against all odds. We are concerned he is not getting enough treatment and the little better that he is doing will not be enough.

Friend Erin Kennedy from Castle Rock, Colorado, has been working non-stop. She has been consulting with doctors at Children's Hospital in Denver. There is talk of a medical visa. We are lucky to have Erin on our side.

"There is talk of a medical Visa."

I was looking at Eduardo's picture today, and he is so thin. This is a kid that had a lot of energy and a lot of heart. I have a difficult time understanding why god makes these decisions, but I know it is not in my hands.

I have a harder time understanding why my fellow Americans, especially the people of Denver, have been unwilling to respond. I kind of understand it in a way. I have taken the same attitude many times. I was afraid of getting scammed, I was selfish and justified being stingy because I did not know the victim.

"I have a hard time understanding why my fellow Americans, especially the people of Denver, have been unwilling to respond"

When I say people of Denver, I am talking about those who do not know us personally. Those who are familiar with the Salazar family have been very generous. They understand how serious this is and how much we need the help. The problem is, most of them are poor people and their is a limit to how much they can give.

Our latest thought is an Internet auction. If people don't have money they surely have something they don't want. I spoke with the eBay on-line help people and for the first time I can say they were zero help. After getting transferred five times I finally gave up. At least I have know we can't use the word charity. Heck, this just came up, how would we be a charity already?

"If people don't have money they surely have something they don't want and can give."

I am a Strong believer in higher powers. I don't know what my higher power wants from me, or for Eduardo. I don't know what the future holds for anyone. If God wants Eduardo, as he will want all of us one day, then so be it. I must do my part, and we are all asking others to do their part. Maybe that really is nothing. What do you think?

Items For Auction Needed 4 Eduardo-11 y.o. Desperate for help

2009-11-17T04:42:00.000-07:00

Eduardo Salazar Rivera is a lively boy who is facing a difficult future. He has an illness called HLH, an autoimmune disease which is treated like cancer. His medications have been costing $400 a day.

"We would like to have a fund raiser auction" said US friend and attorney Tim Paynter.

"We are seeking items in good shape which can be auctioned off on the Internet"

Paynter said cash gifts have been slow in coming for the 11 year old who dreams of being a soccer star. But who does not have an unused necklace, or a digital camera?

Paynter said US friends are asking you to mail your items to his office in Denver, Colorado. The items will be sold on the Internet, either on ebay or via the net using an auction company using Proxbid

"Be sure to include your email with your gift" Paynter said. That way he can notify each person when their item comes up for sale.

A lot of people are short of money Paynter indicated, but who does not have something in good shape which they don't need?

Paynter said they will also accept vehicles and boats but want to sell those where they are.

"Why not write Eduardo in person?" eduardoenvivo@gmail.com

Send gifts to: Eduardo Salazar Rivera, c/o Tim Paynter, 120 South Kalamath St. Denver, CO. 80223. If it is a cash give be sure to put the word "Attorney Trust Account" on the check. "We can't let this child die" Paynter said. "All he wanted was to be a soccer star!"

Tests Tomorrow--Results Mixed, Response Sad

2009-11-17T00:40:00.000-07:00

Eduardo has tests tomorrow to see how his initial treatment has effected the uglyillness that is infecting his body. A more sophisticated program would have given Daniel a lot more treatemnt in order to kill the nastiness that threatens his life.

Our appeal for help has, for the most parts, fallen on deaf ears. Eduardo Sotelo, Bull Hurd, Cu Cui, Univision, HP have all declined to take any real interest in the story of an 11 year old future soccer star with life threatening challenges in front of him. Too bad.

We will have to wait for the next day to find out what is recomended. Meanwhile, the family struggles under the weight of a sick boy while trying to maintin the famiily at the same time. Please keep him in your prayers as the media has not.

Nino de 11 Anos de Edad Espera a que la Medicacion Para Salvar Su Vida

2009-11-16T09:04:00.000-07:00

Un Nino de 11 anos se encuentra en una hospital en la ciudad de Durango, Mexico. La familia hizo una llamamiento a la prensa de los EE. U.U. como Eduardo Sotelo en la programa Piolin Por La Manana, y Cu Cui. La familia tambien esta pidiendo ayuda de todas las razas para salvar este hijo valiente.

Eduardo ha HLH, un enfermedad de auto inmune poco comun. El sistema hospitalario de Mexico no es financiado a dar medicamientos costoso a uno hijo pobre. La medicina es dificl a conseguir. Cuando consiguen el costo es $400 diario.

Hay poco expertos en la enfermedad HLH en el mundo. Hay clinicas in E.E. U.U., Suecia y Aregentina. El tratamiento que recomendian es mas agresiva que en Mexico. Las posibilidades a recuperar son 20% en un tipo de tratamiento, y 70% en la clinica de especialistas.

Amigos en el E.E. U.U. Tim Paynter and Erin Kennedy esta hablando con la familia Salazar. Quieren llevar Eduardo a los Estado Unidos. Paynter es un abogado en Denver, Colorado. El dice que se llevera gente poderosa para abrir la frontera raidamente. Eduardo no tiene tiempo para esperar.

El equipo de el Piolin Por La Manana cuenta con expertos en inmagracion. Ellos pueden se capaces para obtener una visado rapidamente por Eduardo. Pero no ha respondido a la peticion de Eduardo por ayuda. Otros personas de la prensa pueden estar effectiva tambien. Pero nadie quiere ayudar.

Es triste este hijo de Mexico no se puede recibir el tratamiento que se necesitan. El no ha hecho nada mas que quiero estar una estrella de football. Quien sabe, va estar famoso como Sasa Salcido?

Por favor, si estas dispuesto ayudar, envie su donacion de cualquier cantidad a:

Tim Paynter

Attorney Trust Account

For Eduardo Salazar Rivera

120 South Kalamath Street

Denver, CO., 80223

Por que no enviar tu mensaje a Eduardo? eduardoenvivo@gmail.com