Save The Cherubs - CDH Awareness Campaign

Save the Cherubs Posters - Osmund "Oz" Wyatt Kidd-Ward

Thu, 21 Jul 2011 15:19:00 +0000

Meet cherub Oz, a model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign! Today is Oz's Birthday and Angelversary. Happy Birthday little one, may all the angels sing to you and all the cherubs dance with you on your special day.

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz25.png

Cafepress Items - http://www.cafepress.com/cherubs/7879449

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz22.png
Cafepress Items - http://www.cafepress.com/cherubs/7879409

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz24.png
Cafepress Items - http://www.cafepress.com/cherubs/7879462

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz22.png
Cafepress Items - http://www.cafepress.com/cherubs/7879568

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz21.png
Cafepress Items - http://www.cafepress.com/cherubs/7879405

Photo by MCate Photography
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz20.png
Cafepress Items - http://www.cafepress.com/cherubs/7879344

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz20.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879502

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz17.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7879590

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz15.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879504

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz14.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879551

Photo by Flippen Photography

Download Full Size Poster - http://www.savethecherubs.org/Savethecherubs-FlippinPhotography-KiddWard-Oz.png
Cafepress Items - http://www.cafepress.com/cherubs/7879481

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz03.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7801407

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz04.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7801406

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz07.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7782097

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz12.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7782094

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz13.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7879608

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz01.jpg SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz01.jpg
Cafepress Items - http://www.cafepress.com/cherubs/7782086

Photo by MCate Photography

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-MarthaCatePhotography-Kidd-WardOz100.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7879482

Save the Cherubs Posters - Douglas Collins

Mon, 11 Jul 2011 18:13:00 +0000

Photos created by the Collins family while expecting cherub Douglas, a model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign.

Photo by Tom Nguyen

Download Full Size Poster - http://www.savethecherubs.org/SavetheCherubs-NguyenTom-CollinsDouglas03.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7883452

Photo by Tom Nguyen

Download Full Size Poster - http://www.savethecherubs.org/SavetheCherubs-NguyenTom-CollinsDouglas02.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7883519

Photo by Tom Nguyen

Download Full Size Poster - http://www.savethecherubs.org/SavetheCherubs-NguyenTom-CollinsDouglas01.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7883521

Save the Cherubs Posters - Jim Beau Reinhardt

Fri, 08 Jul 2011 21:02:00 +0000

Meet CDH Survivor Jim Beau Reinhardt!!! A model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

Photo by Samantha Alday

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-AldaySamantha-ReinhardtJimBeau01.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7876850

Photo by Samantha Alday

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-AldaySamantha-ReinhardtJimBeau02.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7876852

Photo by Samantha Alday

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-AldaySamantha-ReinhardtJimBeau04.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7876856

Photo by Samantha Alday

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-AldaySamantha-ReinhardtJimBeau01.png

Cafepress Items - http://www.cafepress.com/cherubs/7782461

Photo by Dawn Williamson
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-WilliamsonDawn-2011conference01.png
Cafepress Items - http://www.cafepress.com/cherubs/7879623

Photo by Dawn Williamson

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-WilliamsonDawn-2011conference02.png

Cafepress Items - http://www.cafepress.com/cherubs/7879732

Photo by Dawn Williamson
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-WilliamsonDawn-2011conference03.png
Cafepress Items - http://www.cafepress.com/cherubs/7879746

Photo by Dawn Williamson
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-WilliamsonDawn-ReinhardtJimBeau01.png
Cafepress Items - http://www.cafepress.com/cherubs/7879795

Photo by Dawn Williamson
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-WilliamsonDawn-ReinhardtJimBeau02.png
Cafepress Items - http://www.cafepress.com/cherubs/7879796

Photo by Dawn Williamson
Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-WilliamsonDawn-ReinhardtJimBeau04.png
Cafepress Items - http://www.cafepress.com/cherubs/7879762

Save the Cherubs Posters - Braden Holt

Wed, 06 Jul 2011 19:03:00 +0000

CDH survivor Braden Holt! A model for our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!

Photo by Ted Brooks.

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-BrooksTed-HoltBraden.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7586766

Photo by Shana Kelly

Download Full Size Poster - http://www.savethecherubs.org/SaveTheCherubs-KellyShana-HoltBraden01.jpg

Cafepress Items - http://www.cafepress.com/cherubs/7876835

Vote for CDH Babies!!!!

Tue, 14 Jun 2011 15:05:00 +0000

Vote for CDH Babies!!!!

CHERUBS is in the Vivint Gives Back Contest on Facebook!

June 14 - August 27, 20011

Vote for CHERUBS every day to help the babies!

Click here to vote now!

CHERUBS is participating the Vivint Gives Back Contest on Facebook and we need your votes! How to vote:

1. Go to http://www.voteforcdh.org/

2. Log in through Facebook and vote

3. Repeat daily through August 27, 2011

If you're having
troubles with the voting and endorsing process (you're getting an error
telling you to like the page first repeatedly), do the following:

1. On Facebook, go to Account --> Privacy settings2. In the privacy settings page you should see a 'Connecting on Facebook' section. click 'View Settings'.
3. Set 'See your likes, activities, and other connections' to 'everyone'.
This process lets the website see that you have liked the Vivint page, and you will then stop receiving this error.

What Will $250,000 Be Used For?

Should CHERUBS win the Vivint Gives Back contest, money won would go to:

$145,000 for CDH Research

$125,000 for collaberative research with Massachusetts General to pay for lab kits for over 100 families for genetic research into CDH

$10,000 for programming for the long term CDH Research study database to review patient histories and similarities

$10,000 to medical conferences for families and researchers

$95,000 for CDH Support

$10,000 to help sponsor a CDH patient, baby Rhett,
who is currently in an orphanage in the Ukraine. We have several
families who want to adopt him and bring him to the U.S.

$25,000 for Financial Help for families to help cover travel costs to and from the hospital

$30,000 for support services
(support forums, web sites, mailings, newsletters, volunteer software,
toll-free number, adopt a hospital kits and much more). All
services to families are always FREE.

$5,000 for local member get-togethers around the country

$10,000 to CDH HOPE Totebag care packages for newborn and expectant babies diagnosed with CDH

$10,000 to reinstate new member welcome packages

$5,000 to scholarship fund for CDH survivors and siblings

$10,000 for CDH Awareness

$1500 for CDH Awareness Bracelets for families

$1500 for CDH Awareness Ribbons for families

$1500 for CDH Awareness Brochures

$500 for Balloons for Memorial & Awareness Releases

$1000 for Save the Cherubs Campaign Wings

$1000 for Marching in Town Parades

$3000 for CDH Awareness Billboards & Posters

New Save the Cherubs Video!

Sat, 16 Apr 2011 12:25:00 +0000

Learn about our Save the Cherubs Congenital Diaphragmatic Hernia Awareness Campaign in our new video:

Catching Up!

Sat, 16 Apr 2011 12:23:00 +0000

We have many new posters to add and will do so during the next couple of weeks. We are looking for specific types of STC photos right now, if you can help:

Maternity shots
Newborn cherub shots
Hospital shots
Easter shots
Summer shots
School sjots
Sports shots

"Save the Cherubs" Holiday Cards - We need your photos!

Sat, 06 Nov 2010 16:38:00 +0000

We are selling Save the Cherubs holiday cards this year!!!!

But we need your photos!!! Grab / order some wings and take your cherubs (or siblings and a photo of your cherub) and go early to visit Santa, see the mall decorations, decorate a tree or a visit a Christmas shop. Photos needed by November 15th!

A few things...

You can order wings at http://www.savethecherubs.org
It's best to wear bright clothing to contrast with the wings
Photos must be "candid" (no looking straight at the camera) - our campaign is about cherubs in every day life
We must have your model paperwork in! Paperwork can be found at http://www.savethecherubs.org

Possible photo opportunities....

Decorating a Christmas tree
Hanging a wreath
Lighting a menorah
Caroling
Visiting Santa
Riding in a holiday train
Shopping in the mall (decorating for Christmas)
Browsing in a Christmas shop
Opening presents
Sledding
Decorating at the cemetary

The point is to show the holiday spirit through a child's eyes... a cherub's eyes.

ALL cherubs can participate! Even non-survivors (through their siblings or cousins and by including their photo somewhere in the picture. A sibling/cousin can wear wings and represent your cherub) and expectant cherubs.

ALL submitted photos will be included and sold through our shop on Cafepress.com

Cards will be available to purchase by November 20th! What a great way to raise CDH awareness!!!!

We also need photos for our Save the Cherubs calendar for November (Thanksgiving, leaves, football or something similar), December, March and April.

Save the Cherubs
Congenital Diaphragmatic Hernia Awareness Campaign

Cherubs are everywhere. They are your next door neighbor's new baby. The little girl on the swingset at the park.   The teenager that sits behind your son in high school geometry class.   The person behind you in the grocery store line.    Their scars are hidden under clothes, their stories a bit sad and taboo to talk about - so the miracles are not seen with the naked eye and you have probably mistaken a cherub for a "normal" person many times.   But they are there; walking miracles with invisible wings.   And missing babies that belong to the grieving parents who you don't see grieve; your local bank teller, the man who held a door for you at the gas station, the old woman who drove the car in front of you at the stop light this morning.   Cherubs are everywhere.

Unless you have been affected personally by CDH, you probably have never heard of it.   The mission of "Save the Cherubs" is to make Congenital Diaphragmatic Hernia a phrase everyone knows how to say and everyone knows what it means. By raising awareness, we hope to raise research funds to save these babies - Save the Cherubs.

Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth.   Babies born with CDH often endure long hospitalizations and other complications such as pulmonary hypertension, infections, feeding issues, asthma and temporary developmental delay.    Some babies develop worse complications and sadly, 50% of babies born with CDH do not survive.    The cause of CDH is not known.

Cherubs are people who were born with Congenital Diaphragmatic Hernia, a severe and often fatal birth defect that occurs as often as Cystic Fibrosis and Spina Bifida. Every 10 minutes a baby is born with CDH - adding up to over half a million babies since 2000.   Yet, CDH is given very little media attention, virtually no research money and until CHERUBS came along in 1995 there was no information and no support for families of babies diagnosed with CDH.   We have no national telethons, no large corporate sponsorships.   We have been struggling for years to bring attention to CDH and now, we are going to do so on a national level.

For 15 years, cherubs have been the awareness symbol of Congenital Diaphragmatic Hernia (CDH).   Through this project, families around the world are working with CHERUBS, photographers and the media to raise CDH awareness in a unique and striking photo and marketing campaign, which we hope will take your breath away and make you want to learn more about CDH and how you can help save these children.

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support was founded in 1995 to give hope and information to families of children affected by Congenital Diaphragmatic Hernia (CDH).    We are a 501(c)III non-profit global CDH organization with members in 38 countries.    Run solely by volunteers and donations, CHERUBS strives to allow families to have free access to information materials, support services, awareness projects and to make a CDH connection with other families going through the same ordeal.  We are just a grassroots organization of families working hard to make a difference and trying to give Congenital Diaphragmatic Hernia Awareness wings to take flight.

CHERUBS is fighting hard to search for the cause, prevention and best treatments of CDH.   We invite you to help us to help these families and to help Save The Cherubs.

Save the Cherubs Photoshoot - Oz Kidd-Ward

Wed, 30 Jun 2010 16:09:00 +0000

Many thanks goes out to photographer Martha-Cate Spencer, for taking these gorgeous photos!

http://mcatephotography.wordpress.com

The models for this photo shoot are Oz's amazing parents Kendrah Kidd and Chris Ward!

Thank you to Oz for not giving your mom any trouble during the hot photo shoot and thank you Kendrah and Chris for being such good sports and so willing to help other CDH families even while you're in the midst of your own CDH journey!

Save the Cherubs Photoshoot - Sofia Carman

Tue, 29 Jun 2010 19:38:00 +0000

Many thanks goes out to photographer Martha-Cate Spencer, for taking these gorgeous photos!

http://mcatephotography.wordpress.com

The models for this photo shoot are cherub Sofia Carman and Cole Fisher, brother to cherub Zoe Fisher.

Thank you to Sofia for wearing the wings and being so adorable!

Save the Cherubs Photoshoot - Zoe Fisher

Tue, 29 Jun 2010 18:41:00 +0000

Many thanks goes out to photographer Martha-Cate Spencer, for taking these gorgeous photos!

http://mcatephotography.wordpress.com

The models for this photo shoot are Zoe's family; Aaron, Erin and Cole Fisher.

Thank you to the Fisher family for allowing us inside their home, for letting us make them cry and most of all... for sharing Zoe.

Save the Cherubs & cherub Aaron Younce make the newspaper with the world's first CDH awareness billboard!

Wed, 16 Jun 2010 19:22:00 +0000

We made the paper! Here is an article posted in the Wilkesboro, NC "The Record"

http://www.therecordofwilkes.com/newsa.asp?edition_number=556&pg=F

Local youth on first billboard for CDH campaign

By REBECCA TRIPLETT-JOHNSON

For The Record

Aaron Younce, of North Wilkesboro, is featured on the first ever billboard for the Congenital Diaphragmatic Hernia Association's [CDHA] national awareness campaign, 'Save the Cherubs'.

And, Wilkes County is the premier site for the billboard presentation. The electronic sign which rotates images every few seconds, is located on the east bound side of West D Street near Arby's and will remain through June 23. Billboard space was donated by Lamar Advertising. Williamson and her husband Craig, members of the Younce family and Severt were on hand as the billboard was first displayed last week.

Younce is depicted on the sign wearing cherub wings, the symbol of 'Save the Cherubs' campaign, which was founded by Dawn Williamson in 1995. Photos for the campaign were taken by The Record's Missy Severt and are being used on billboards, pamphlets and the CDHA website.
Younce, the son of Carl and Julie Younce, attends Mountain View Elementary School and has lived with the severe disorder since his birth in 1999.

"I am so happy to be on the billboard so that lots of people can see it and learn about what CDH is," said Younce. "I hope it will also help people understand what 'Save the Cherubs' is all about and what it is doing to help others who have it while working to find out why the disorder happens to babies."

CDH occurs when the diaphragm fails to fully form, allowing the abdominal organs to move into the chest cavity preventing complete and normal lung development and growth. One in every 2500 babies are born with CDH.

Upon Younce's birth, doctors gave his parents the horrific prognosis that he would not live. He spent the first three months of his life in the PICU and NICU at Wake Forest Baptist Medical Center where he underwent two major surgeries and numerous other medical procedures to help correct some of the most critical issues. When his team of specialists determined he had gained enough strength to go home, his family turned their nursery into an in home hospital room equipped with life saving oxygen, heart monitors, suction machines, feeding pumps and pulse oximeter. For many years, this was the normal everyday life in the home.

With continued medical support, family love and God's blessings, Younce gained strength and abilities that enabled him to detach from his highly controlled and monitored lifestyle. Today he is capable of living without daily oxygen except when he requires extra breathing help during bouts of illness. However, CDH has left Younce with pulmonary hyperplasia of the left lung, pulmonary hypotension and asthma, making every other illness that he contracts, such as colds or viruses, much more serious and harder to fight.

"As a parent of a child with CDH it is so hard to watch your child struggle to just breathe at times," said Aaron's mother Julie. "To sit in the NICU and not know what the next five minutes will hold for your baby is the worst feeling in the world. Aaron is a little older now and continues to struggle with simple things we so often take for granite like eating and gaining weight. Even with all of his continued problems never one time has he questioned why or why me. He is going out there and telling anyone and everyone about CDH and cherubs in order to make them aware of the serious disorder in hopes of one day finding a cause and a cure. Aaron is a hero to me."

Younce is looking forward to spending lots of time swimming and learning about the art of clay sculpture during his summer break. He is excited to enter the fourth grade in the fall and see all of his old friends while making new ones at school.

For more information on CDHA and 'Save the Cherubs' visit www.savethecherubs.org

MCatePhotography photographs 3 CDH Families for Save the Cherubs CDH Awareness Campaign

Wed, 09 Jun 2010 21:27:00 +0000

June 9, 2010

Save the Cherubs

Monday I drove up to Winston-Salem for a volunteer photo shoot for Save the Cherubs. Occasionally I scan Craigslist for photography gigs, and I am so glad I happened upon this ad. Save the Cherubs is a support group raising awareness of Congenital Diaphragmatic Hernias–or CDH. CDH is where the diaphram fails to close completely and is left with a hole where organs can invade the chest cavity…causing the lungs to not develop properly. This is only a tiny bit of information on CDH. To read more visit their website.
There were 3 photo shoots for the Save the Cherubs ad campaign. One of little 2 year old Sophia, a survior of CDH. The second was of Kendrah, pregnant with a cherub on the way. And the third, remembering Zoe, lost last year to CDH.
Meet Sophia! You could never tell how sick this little girl was. She has the energy of 2 kids, and a laugh that could rival a soundbite on a hallmark card.

Cole–brother to Zoe–was such a huge help. Sophia loved him!

Meet Kendrah! Her and her husband, Chris, are expecting little Oz in July. Kendrah was such a trooper with all the poses we were having her do. She is already such a strong woman, and I know that with Chris by her side, there is nothing she can’t do.

The last shoot was probably the most emotional and raw photoshoot I’ve ever done. We went over to Erin and Aaron’s (yes they have the same name) house to take pictures in Zoe’s nursery. Poor little Zoe lost her battle with CDH last October. Erin is one of the stongest women I’ve ever met. Despite such a tragic loss, that only happened last year, she still has a spunk about her that says, “I will not be brought down”. It was truly a blessing meeting her. It really puts everything in perspective. My husband and I suffered a miscarriage last fall, and while it was tragic…I’m sure it doesn’t compare to losing a child you knew and held. Grab the tissues everyone…
Big brother Cole with the cat he gave Zoe.

They had casts made of Zoe’s hands and feet so they would always remember what they looked like.

Such a powerful image.

Outside at Zoe’s garden.

Releasing balloons in memory of Zoe.

Thank you guys so much! Every single one of you is inspirational.

--------------------------

Thank you Martha Cate!!!! And thank you to the Kidd-Ward, Fisher and Carman families!!!!!!

For more information on this campaign you can visit http://www.savethecherubs.org or the campaign blog at
http://savethecdhcherubs.blogspot.com/

The World's 1st CDH Awareness Billboard!!!!

Wed, 09 Jun 2010 20:32:00 +0000

Today, the world's very first Congenital Diaphragmatic Hernia Awareness billboard went up!

Its in Wilkesboro, NC on the West D Street/ 421 bypass.

This photo was taken for our Save the Cherubs CDH Awareness Campaign. It is of CDH survivor, Aaron Younce. His mom, Julie, called the local billboard company and asked if they would donate a billboard for the campaign and they did!

This is a HUGE step for CDH Awareness as 1000's of people will view this billboard and learn about CDH!!!!

Thank you to our model, CDH survivor, Aaron Younce and to his wonderful parents Julie and Carl!!!!
Thank you Missy Severt for taking the picture!
Thank you Rebecca Triplett-Johnson from the Record!
Thank you Jessica and Jamie at Lamar advertising!
And thank you Lamar Advertising!!!

3 Photo Shoots with MCatePhotography!

Tue, 08 Jun 2010 03:08:00 +0000

Today we went to Winston-Salem, NC to meet with 3 CDH families for photo shoots with MCatePhotography's amazing photographer Martha Cate Spencer

Below is a sneak peak of the photos from her blog:

http://mcatephotography.wordpress.com/2010/06/07/save-the-cherubs-sneak-peak/

2 yr old cherub Sofia Carman

Kendrah Kidd, mom of cherub on the way, Oz

In the room of cherub Zoe Fisher, lost last year to CDH

Thank you to all the amazing families who participated to raise Congenital Diaphragmatic Hernia awareness saand to Martha Cate, who is an absolute pleasure to work with and whom we are so thrilled to have on board Save the Cherubs!

CDH Survivor & Save the Cherubs CDH Awareness Campaign in the news!

Wed, 05 May 2010 06:05:00 +0000

http://www.therecordofwilkes.com/newsa.asp?edition_number=550&pg=F

Local youth chosen Ambassador for CDH awareness campaign

By REBECCA TRIPLETT-JOHNSON

For The Record

Aaron Younce, son of Carl and Julie Younce of North Wilkesboro, has been chosen as one of several Ambassadors to represent children born with Congenital Diaphragmatic Hernia [CDH] for the 'Save the Cherubs' national awareness campaign.

Younce, a student at Mountain View Elementary School, has lived with the severe disorder since his birth in 1999. His parents learned of the defect prior to his birth.

Upon his birth, doctors gave his parents the horrific prognosis that he would not live. Younce spent the first three months of his life in the PICU and NICU at Wake Forest Baptist Medical Center where he underwent two major surgeries and numerous other medical procedures to help correct some of the most critical issues. When his team of specialists determined he had gained enough strength to go home, his family turned their nursery into an in home hospital room equipped with life saving oxygen, heart monitors, suction machines, feeding pumps and pulse oximeter. For many years, this was the normal everyday life in the home.

CDH, unknown to most, occurs as often as other defects such as Cystic Fibrosis and Spina Bifida. The goal of the Raleigh based, national CDH CHERUBS non-profit organization is to bring awareness, understanding and hope to families fighting the deadly defect.
"When Aaron learned that he had been chosen to represent the CHERUBS, he was excited and relieved to know it would help people understand what he is living with," said his mother. "After numerous questions from his friends at school as to what caused his many scars, he kidded with them and told them that he had been bitten by a shark. He has always been very relaxed about discussing his illness and wants everyone else to understand it. By being one of the faces of this 'Save the Cherubs' campaign, he is glad that he will be able to help others who suffer from CDH and those who don't but want to understand it.

Missy Severt, The Record Sports photographer and owner of Photo Memories Studios was chosen to photograph Younce for the campaign. Her work will be showcased in the national awareness campaign in print and billboards. The first digital billboard will be displayed in early May along Hwy 421 Bypass near Arby's.

"Our family is proud to be part of such a wonderful project and appreciate all of the time that Missy put into the many photographs she took," said Younce. "We hope this will bring much awareness and education to a very serious and life threatening birth defect that, until now, has been unknown to almost everyone."

For more information on CDH and "Save the Cherubs' go to www.savethecherubs.org

CDH Awareness In The News - ABC2 News in Maryland

Tue, 20 Apr 2010 03:49:00 +0000

http://www.abc2news.com/news/local/story/Raising-Awareness-For-Rare-Disease/gNWbJ7dZEEui7QRclGlXGg.cspx

Brooke Sroka is a 2 year old CDH survivor in Maryland who participated in our Save the Cherubs campaign with her photographer mom, Mandy Sroka. The media was alerted to the campaign and they chose to interview the Srokas, who did an AMAZING job in raising Congenital Diaphragmatic Hernia Awareness!!!

WTG Sroka family!!!!!!!! :)

Save the Cherubs Congenital Diaphragmatic Hernia Awareness Campaign

Tue, 20 Apr 2010 03:48:00 +0000

Our Photo Shoots are under way!!!! We have had 4 photography shoots, have 20 more planned, photographers in dozens of states who are volunteering, a billboard in May, a television interview and a front page newspaper article! This campaign is raising a whole lot of Congenital Diaphragmatic Hernia Awareness!

Take a look at some of the gorgeous photos we have already begun to use to raise CDH Awareness!

Model Cherub: Celie McGilberry
Photographer: deAnn McGilberry



Model Cherub: Aaron Younce
Photographer: Missy Severt



Model Cherub: Aaron Younce
Photographer: Julie Younce



Model Cherub: Brooke Sroka
Photographer: Mandy Sroka Photography



Model Cherub: Juan Pablo Arce
Photographer: Arce Photography



To see more gorgeous photos or to sign up to be a Save the Cherubs model or photographer, visit our web site at http://www.savethecherubs.org

Wings

Fri, 09 Apr 2010 01:17:00 +0000

We are on the look out for a campaign sponsor who will donate prop wings for our photo shoots. Ideally, we would like 500 sets of wings in child, adult and newborn sizes. If you would like to donate or know of a great deal, please contact us!

While we will gladly loan sets of wings for photo shoots, many models and photographers want to purchase their own. Here are some great shops that will ship for free!

18 inch wings, suitable for kids or adults. These are the wings used in most of our shoots.

$17.50 at AnytimeCostumes.com

Child Size Wings

$8.99 at AnytimeCostumes.com

6 - 18 month old wings

$6.73 at thestylehome.com

Missy Severt, Photographer

Tue, 06 Apr 2010 22:24:00 +0000

We would like to thank Missy Severt for joining our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!!!!

Photo Memories By Lisa

Tue, 06 Apr 2010 22:22:00 +0000

We would like to thank Photo Memories By Lisa for joining our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!!!!

Loebach Studios Photography

Tue, 06 Apr 2010 22:17:00 +0000

We would like to thank Loebach Studios for joining our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!!!!

GJSmith Photography

Tue, 06 Apr 2010 22:10:00 +0000

We would like to thank GJSmith Photography for joining our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!!!!

Penny Gwaltney Photography

Mon, 05 Apr 2010 22:11:00 +0000

We would like to thank Penny Gwaltney Photography for joining our Save the Cherubs Congenital Diaphragmatic Hernia Awareness campaign!!!!

* CDH parents who would like to work with Penny, please make sure to sign up to participate and we will set up a photo shoot for you

Kelly Sue Photography

Fri, 26 Mar 2010 20:56:00 +0000

CHERUBS wishes to thank Kelly Sue Photography, who is donating 25% of her print and session fees to CHERUBS during the month of April for our Save the Cherubs campaign. Thank you, Kelly!

Save The Cherubs - CDH Awareness Campaign

Save the Cherubs Posters - Osmund "Oz" Wyatt Kidd-Ward

Save the Cherubs Posters - Douglas Collins

Save the Cherubs Posters - Jim Beau Reinhardt

Save the Cherubs Posters - Braden Holt

Vote for CDH Babies!!!!

New Save the Cherubs Video!

Catching Up!

"Save the Cherubs" Holiday Cards - We need your photos!

Save the Cherubs Photoshoot - Oz Kidd-Ward

Save the Cherubs Photoshoot - Sofia Carman

Save the Cherubs Photoshoot - Zoe Fisher

Save the Cherubs & cherub Aaron Younce make the newspaper with the world's first CDH awareness billboard!

MCatePhotography photographs 3 CDH Families for Save the Cherubs CDH Awareness Campaign

From wonderful photographer Martha Cate Spencer, who photographed 3 CDH families this week for our Save the Cherubs CDH Awareness Campaign

MCatePhotography: the blog

June 9, 2010

Save the Cherubs

The World's 1st CDH Awareness Billboard!!!!

3 Photo Shoots with MCatePhotography!

CDH Survivor & Save the Cherubs CDH Awareness Campaign in the news!

CDH Awareness In The News - ABC2 News in Maryland

Save the Cherubs Congenital Diaphragmatic Hernia Awareness Campaign

Wings

Missy Severt, Photographer

Photo Memories By Lisa

Loebach Studios Photography

GJSmith Photography

Penny Gwaltney Photography

Kelly Sue Photography

CHERUBS wishes to thank Kelly Sue Photography, who is donating 25% of her print and session fees to CHERUBS during the month of April for our Save the Cherubs campaign. Thank you, Kelly!

http://site.kellysuephotography.com/