My Parkinson's Journey

A Whole Year Has Past!

2021-01-21T01:40:00.006-06:00

Howdy, everyone.

I looked at my last post, and discovered that it has been about 4 days over a year since my last post. And a lot has happened this past year--some you know about, some you probably don't. At any rate, I'm here to fill you in!

On the Parkinson's front, not much has transpired of late. Most of the year I was fairly stable. Toward the end of the year, I noticed having a harder time typing. I've been working all year as well, part time. First doing sampling at a Sam's Club for Crossmark, then when the Covid-19 virus hit, that naturally got shut down. Lenita, at the time, was also working there.

So for a while, we worked at Sam's Club, as Crossmark employees. Then, first Lenita shifted over to working for Sam's as a Sam's employee around May or June. I stuck it out longer, waiting for what even today hasn't come: the restarting of sampling and the end of the covid restrictions. I became employed in August at Sam's as well.

Well, when i started having a harder time typing, it reminded me that my time is short, and I have so many more stories and projects that I wanted to do, that I made a decision toward the end of December to quit my job to focus on my writing and my new passion of late: my Linux podcast!

Yep, that's right, despite my sometimes muffled voice and PD affected vocal chords, I do a podcast on YouTube and Lbry called "Not a Linux Guru Guy". 21 episodes later, and I have around 16 subscribers last I checked. WhooHoooo! I'm on a role now! I'll make, at this rate, 1000 subscribers sometime in, say 2025? lol.

So unlike many folk, we haven't been financially struggling. Actually, we are doing about as well as we have at any point in our life. I can't complain.

So, I've been working on one chapter in this new book I've been working on, "Ally's Angelic Adventures" for most of last year! One silly little chapter that I struggled over most of the year, picking at it here and there--watch it be the favorite chapter of the book! But since completing that chapter toward the end of the year, I've written three more--one chapter I wrote in one day!

But I realized how little I've done on the writing/publishing front when I attended the 2nd annual craft fair at our church, and I had to tell people that I didn't publish anything new since last year. So, I've also started editing the second book that I wrote several years ago in the "Legend of the Dragons' Dying Field" series titled "The Dragon Within," the first being "The Magic Within." I hope to publish at least that book, maybe the one I'm working on as well, I'll publish this year. . . stay tuned.

So, overall I'm still doing well both on the PD front, though it is threatening again to start getting worse, but I'm setting myself up to accomplish as much as possible for 2021, both on the writing front and the podcast front, as well as daily life.

So, for 2020, I have been busy. I'll try to stay more on top of keeping you folks updated on my progress.

One other thing, I'll probably be moving this blog over to a different format. I'll most likely leave this blog here on blogger, but expect a post at some point soon to let you folk know where to look for any future posts.

Also, I wanted to apologize for starting and abruptly stopping my PD Man channel. I posted around 5 videos total before I started having a hard time movtivating myself to do more. When that happens, and it no longer is "fun" and "enjoyable" then it is going to come through that way. It was a good idea, but I also tended to feel that there was enough people out there doing the same thing, but who are more qualified than I am doing it, that I began to wonder what I was actually bring to the table that was worth my time?

I can here people thinking, "But, what is so important about Linux?" Well, that is a loaded question, but I've long learned that whatever you do, you do it to help others. That's what makes it "important." And if I can enjoy doing it, it means I will keep going at it until it is no longer "enjoyable." Which hasn't happened yet, and I don't foresee it happening in the future either.

I'll try my best to not let another year go by without a post. Until next time, keep everthing great!

What Have I Been Up to Lately?

2020-01-16T18:57:00.001-06:00

Hi everyone,

I will tell everyone here that this may be duplicate information that you've already heard (read, that is) on this blog. However, I realized that there very well may be people who are subscribed to my YouTube channel that are not subscribed here, and I never did put up a video about it.

So, if you've already heard about my new YouTube channel: PDManRick, and have already decided you don't wish to subscribe to it, then you can ignore the rest of this post.

If, however, you are in the group that either you thought to yourself, "I want to go and subscribe to his new channel," but for one reason or another, you just never got around to it, then this is your reminder to go and do so. Or, if for some reason, you missed hearing about this new channel and wish to go and check it out, then I invite you to do so. And to avoid being part of the previous crowd, I'd suggest you head on over there right now. Just so you don't miss out.

At any rate, this is primarily to notify any of the subscribers to my RLCopple channel that I've moved the Parkinson's videos over to a new channel, something i forgot to do, previously, though I did mention it in a text post here back when I started this new channel.

Watch the following video if it is of any interest to you, then follow your heart. Thank you.

My new PDManRick YouTube Channel: https://www.youtube.com/channel/UCpsUi_6IVHYraRm_fUz-iIw

What Is Parkinson's?

2019-11-06T22:16:00.000-06:00

Howdy, folks!

Just wanted to make a quick note to my family and friends concerning the start of my new Parkinson's Channel, PD Man Rick! I'm throwing an online party, complete with popcorn and drinks. Ehum, At least, on my end! lol.

Seriously, though, I am doing a premier on my opening show, titled "What Is Parkinson's?" It is scheduled to go live at 6:00 pm on Friday, Nov. 8th. If you want to be able to chat with me and others, watch my first episode with me as it goes live, and ask whatever questions that comes to you mind, I would love to have as many of you there as possible.

To be reminded of the event shortly before it goes live, go the link below and hit the "Reminder" button. While you're doing that, you might as well click on the subscribe button and the notification bell so you can keep up with my weekly attempts to educate (and hopefully, in as much as it is possible for a guy with PD, to entertain you as well). Thank you for all your support.

Remember, even if you don't subscribe to that channel, you'll get updates on how I'm doing here on this blog. Likewise, even if you don't intend to subscribe to the new channel, I would like you to come join my "channel opening party/premier" and spend some time. Also, if you know of anyone who may be suffering with this disease, pass this info onto them so that they might benefit from the information I'm planning on putting out into the future. I look forward to exploring the various issues and developments of Parkinson's Disease with everyone who comes along for the ride.

Now, don't make me have to post something strange, like Flat Earth stuff, or Flat Earth debunking. "What?" you say. "What does that have to do with Parkinson's?" About as much as it has to do with anything. LOL!

Here's the link to visit my chat/party/premier page: https://www.youtube.com/watch?v=3ISP0XxZhSc

Hope to see some of you on the 8th at 6 pm. Until then, this is Rick Copple, signing off.

I've Created a Monster!

2019-10-26T23:33:00.000-05:00

A YouTube channel monster, that is. Yep, I've decided to get a little more professional and instead of mixing my PD videos on YouTube with my personal stuff on the same channel, I've created a new channel that will exclusively be about Parkinson's Disease!

As I explain in the introductory video, listed below, my plan is to upload a weekly video every Friday from Nov 8th and on.

I would greatly appreciate it if each of my readers would be so kind as to go to that video on YouTube, and subscribe and click the notification bell. Thank you, ahead of time!

Don't worry, if you don't wish to subscribe to a YouTube channel. If you watch my blog to find out how I'm doing, I still plan to post those things here. However, stuff like the last video, that are not about me personally, will only show up on the new channel.

So if you wish to keep abreast of various things about PD, you'll need to subscribe to that channel to be fully in the know. If you are not interested in those things, but only in how my own journey is going, then you can continue on as you always have, as all that information, whether just on this blog or appearing on the new channel, you will see here on this blog.

So, you ready for the big reveal? The name of my new PD channel is . . . (drum roll)

PDManRick

You can get to mu new channel using the following link:

https://www.youtube.com/channel/UCpsUi_6IVHYraRm_fUz-iIw

And, here is my introductory video!

Parkinson's 2.0

2019-10-17T13:01:00.000-05:00

Yep, I'm back with another video blog. I've also included the text for the video as well, for those who would prefer to read it. This is a summary of what I learned at the symposium by the Movement Disorder Foundation in Denver, about what is most recent in research. Enjoy!

Saturday, October 5, 2019, I attended a program put on by the Movement Disorder Foundation titled, “Parkinsons 2.0: Translating Science Into Treatment”. So I thought I would provide a summary of what I learned during this presentation by three highly rated researchers: Rajeev Kumar, MD from the Rocky Mountain Movement Disorder Center who discussed “New Clinical Trials to slow Parkinson’s Disease and improve motor symptoms”; Brian Berman, MD from the University of Colorado Movement Disorder Center who discussed “Improving the quality of sleep”; and Daniel Parades, PhD from the Knoebel Institute for Healthy Aging who discussed “New directions in Parkinson’s Disease research”.

Rather than try to discuss each person’s presentation separately, I’ll give an overall summary of the whole thing, as many of their points appeared to overlap. I’ll go topic by topic, instead.

1. Research for Slowing and Stopping Progression

The bad news on this front is twofold. The first “fold” is that two of the medications that showed promise in slowing and halting progression of this disease failed when it reached human clinical trials to show any significant effect on accomplishing those goals. The good news is that the cancer drug, Nilotinib, has shown some positive effects on accomplishing those goals. Some clinical trial patients have even noticed a reversal of symptoms. So there is still promise of that happening.

Oh, the other fold? The other bad news is that all this is still around 10 years before coming to market. So it is unlikely it will be here in time to help me personally. That’s assuming it even survives the rest of the trials. However, that is very good news for those newly diagnosed and those who yet have to be diagnosed.

2. Where Does Parkinson’s Disease Start?

This was a very interesting part to me. There were two things they have recently started to look at. One is that Parkinson’s, as a disease, does not start in the brain, but in another, or other parts of the body. Mainly, they are coming to the conclusion that the alpha-synuclein, a protein in the brain that gets “mis-folded” and was the focus for a long time concerning how to “fix” the dopamine problem, is now being seen as a consequence, rather than the cause of this disease. As a matter of fact, the above drug that worked, does so by attacking and cleaning out this toxic protein in the brain.

That doesn’t mean the drug won’t help. But more like it is in a contest, one which the drug may ultimately lose, to clean out the bad protein faster than whatever is causing it to mis-fold in the first place can stuff them in the brain. But, what researchers are realizing is that alpha-synuclein clumps that develop in the brain, preventing dopamine from being utilized and contributing to Lewd Body Dementia, are one part of a chain of events rather than the cause of Parkinson’s Disease.

This has caused them to look elsewhere in the body for where Parkinson’s begins, and naturally, there attention has turned to the gut. Why? Because there is a direct connection from the gut to the brain via the Vagus nerve, in which, they have also found these mis-folded proteins. So it could be, they are now strongly suspecting, that the gut is where Parkinson’s could begin. This is theorized to happen by either loss of “good” bacteria in the gut microbiome, and/or the introduction of “bad” bacteria that can cause inflammation, thus creating these mis-folded proteins.

If true, this is good news, primarily because if one treats one’s diet right, it could positively affect the progression of this disease, or even its prevention in the first place. They suggested that even if one has DNA risk factors to contracting this disease, they can be triggered or not triggered by other environmental factors.

Okay, I need to back up for a moment. This is one of the overlap areas. You see, there are “command genes” that tell a person, “You will get Parkinson’s disease at some point in your life,” but these are only about 10% of the cases of Parkinson’s. However, there are also many, many more genes they have identified as risk factors for getting Parkinson’s. So, for instance, if you eat the wrong thing consistently over the years, it could trigger Parkinson’s into reality whereas it might not in another person without those risk factors. That was another key point they made.

So, what types of foods contribute to a healthy gut as it relates to Parkinson’s? Which should we avoid? A person at the conference asked this question, and the presenters said that there is no research that has looked into it, but the Mediterranean Diet was generally looked at as having some positive effects on PD symptoms.

So, I’ve done some of my own research. I found an article on the Journal of Parkinson’s Disease titled “Linking Smoking, Coffee, Urate, and Parkinson’s Disease – A Role for Gut Microbiota?” which states the following:

This, however, is in contrast to the strong evidence that a diet rich in fiber, fruit, and vegetables is associated with a higher intestinal Prevotellaceae abundance (Good bacteria), lower risk for the development of inflammatory bowel disease, and higher production of health promoting short-chain fatty acids.
(Parenthesis are my own comments)

So, it is fiber, which can only be found in plants, which contributes to the good bacteria to be fed and nourished in order to avoid inflammation of the gut, which would be the causative factor in alpha-synuelein mis-folding. So they are focused now on inflammation in the gut being a trigger for people with these risk factors genes. Which would explain why so many, often years before any symptoms show up, have problems with constipation.

What other parts of the body might they be looking at? I found an article in the Scientific American journal, titled, “Does Parkinson’s Begin in the Gut?” that had some interesting information, especially for me. I will quote the specific interesting section and highlight with * * the big revelation for my PD.

While many lines of evidence support the gut origins of Parkinson’s, the question of how early the gastrointestinal changes occur remains, Tansey says. In addition, other scientists have suggested that it is still possible that the disease begins elsewhere in the body. In fact, Braak and his colleagues also found Lewd bodies in the olfactory bulb, *which led them to propose the nose as another potential place of initiation.*

Wow, for four reasons personally.

One, because I’ve had nasal problems all my life. Nothing big, just runny and stuffy nose beyond colds and the like.

Two, because in 2012, when my symptoms first started showing up, I came down with a chronic case of the boils. What does that have to do with your nose? Well, I realized it was a chronic situation when no sooner had one boil gone away than another would crop up. This happened consistently from around Feb through May of that year. I did some research on chronic boils, and I discovered that they are caused by an infection in the nasal passage, and can be treated with antibiotics. So, when I was at my doctor, I told him what I had discovered. He prescribed me with a nasal antibiotic that I would swab with a Q-tip up each nostril, though he didn’t think it would stop them. However, they stopped.

Not knowing how long to continue applying it, I continued to use the antibiotic for a while longer, and redid the treatment a few weeks after that to ensure it was “dead.” However, it was during that time that I noticed my first symptom of PD, dystonia in my left arm (though I had no idea what it was called then). Dystonia is involuntary tightening of muscles in one or more parts of the body, causing pain and discomfort as well as not being able to effectively use that part of the body.

Three, later in 2012, when my first tremor started in my left hand, around October of that year, I had a cold. Once that cold was over, however, I still had a runny nose. Constantly. It never has stopped. Even today, I’ve had to blow my nose several times. Sometimes it is better, sometimes it gets worse, but it is always there. I read an article that stated that a runny nose was an symptom of PD little understood or known about. Around 60% of PD patients report having a runny nose like mine. (If I’m remembering that statistic correctly.)

And four, this happened recently, last time I was at the dentist. I was scheduled to get my permanent dentures on the fourth of October. However, I had a fall. A fall which caused me to hit my chin on the big ice-chest I was trying to carry. It started to run away from me, and I attempted to catch up to it. That resulted in me losing control, and I fell onto the ice chest, my chin hitting it, and other parts of my body got scrapped up. I know, I know, I should have had help.

Anyway, when we went to the dentist, the dentist, Josh, looked at it, and decided to get a full x-ray of the jaw, to make sure I didn’t fracture it or something. The result was, no I did not fracture it, but to allow the swelling to go down in the jaw area before he took impressions for the new set of dentures, he delayed it until October 16th, which happened yesterday. (smile)

But, he noticed something else in the x-ray. He told me that it appeared I had a sinus polyp in my right nostril. He told me it was probably nothing to worry about—I’ve probably had it a good part of my life. An article from the Mayo clinic about nasal polyps states: “They result from chronic inflammation and are associated with asthma, recurring infection, allergies, drug sensitivities, or certain immune disorders.” Bingo! I highly suspect that my own PD started in my nose, based on all this information. It would also explain why a very common early first symptom of PD is the loss of smell, which I, fortunately, have never had. I’m planning on discussing this with my movement disorder specialist at our January or February meeting.

3. Multifaceted Aspect of Parkinson’s

Another realization that they had through their research, obvious from what we have said above, is that they are looking at treating different types of Parkinson’s differently. Obviously, if PD can start at different places in the body, how one might treat a person with PD will likewise vary. So no longer are they focused on looking at PD and its treatment as a “one-size-fits-all” application, but as different diseases within the same family of PD, and therefore, different treatments.

We currently do the same with other diseases, like cancer. There are different areas that a cancer can start in, whether we are talking about colon cancer or breast cancer. Different cancers are treated differently. You are not going to get, for example, a colon surgery if your cancer is in your liver.

4. A Focus on Preventing Parkinson’s

They believe they are close to being able to identify a bio-marker for PD. A bio-marker is something that they can look for to indicate if a person is at risk for PD or not, before they start showing symptoms. The idea is if they had this bio-marker, they could test for it much like they can currently do for heart disease by testing for cholesterol. By doing a DNA test for various risk factors, they can propose changes to the person’s lifestyle and potential medications, many of them re-purposed from existing medications, to significantly delay the onset of PD, or maybe they never come down with the disease to begin with. They believe they are getting very close to being able to have PD screenings. One method proposed is to look for the accumulation of mis-folded alpha-synuclein proteins in a blood sample.

5. Feeling Sleepy?

The answer to that question for many PD patience is “no”! This tends to be a big non-motor symptom many with PD experience, often before other symptoms show up. Luckily, I’ve had no problems getting to sleep, and staying asleep. The only issue I’ve had is with my Deep Brain Stimulation. If I forget to turn it down before going to bed, my sleep isn’t as deep, and I can act out what I’m dreaming.

One night, for instance, when I didn’t have it turned down, I dreamed I was playing a game of tennis with someone. When I swung my racket to hit a ball, in real life I swung my hand right into the wall! Didn’t hurt the wall, but my wife and I had a rude awakening.

Ironically, this topic was the last speaker, so everyone had sat through four presentations. On top of that, the presenter had a smooth, soothing voice. So while he was discussing sleep, me, my wife, and others were having a yawn-fest!

At any rate, after discussing the symptom and problem associated with a lack of sleep, and that even when many people feel they are sleeping enough, but in reality are not, he discussed their research on sleep and a piece of electronic headgear they are testing that can positively affect one’s sleep. The minimal necessary amount of sleep one needs to get on most nights is seven hours. Anything less than that, the brain cannot do all it needs to accomplish in one night to keep a person healthy. Most people take around 30 minutes to fall asleep. So even if someone is going to bed in time to get seven hours, they are generally only getting six and a half hours of sleep.

Since I have DBS, I doubt I could even use the electronic headgear if I did have a problem with sleeping at night. But for many PD patients who struggle with this, such a device could be a real benefit,

Concluding Thoughts

The symposium was very informative and good. They talked fast and provided some good support, and hope for what is coming in the future. I’m glad I went. I believe I understand better even how my own PD started.

"How Am I Doing on DBS?" You Ask.

2019-08-16T13:32:00.000-05:00

Well, I'll tell you . . . in this video. Yes, that's right, my first video blog in a while, pretty much since before we moved last year. I just installed the software onto my "New" laptop to record more professionally but I've yet to add the intros and other stuff to it. A future project.

One thing I need to correct from what I said in the video. I said we moved into our new apartment on 8/6. I also said it seemed like it had been longer than that. The second of those two statements is more accurate. We actually moved to this apartment on July 6th, so we've been hear nearly a month and a half. Before that, we lived with my daughter for around 9 to 10 months.

I knew once I got moved in and settled down, I wanted (and I believed I had promised earlier) that I would resume doing the video blog post so you could "see" how well I am doing, and not just being told how well I'm doing.

So today I fulfilled that goal by downloading and installing the necessary software onto my Linux laptop, and the result is what you see here. I like my new laptop (new since more than a year ago, actually). It is faster, and the video and audio quality of the built in camera and microphone is great! I didn't even need to use my headphones to record this.

So, without further comment, I present to you my video blog:

Low-T Update

2019-05-29T10:08:00.000-05:00

Hi folks. I promised some time ago to update everyone on the possibility of Low-T due to Parkinson's. I've seen the urologist and here is my prognosis. As I stated last time, I'll be divulging some personal information in this post. Nothing graphic, by far, but I will be discussing sexual feelings. So if that is an uncomfortable topic for you, you may want to pass on reading this.

I went to see the urologist, we discussed the situation in some detail. He finally said there are two things that would potentially eradicate any feelings and functioning of sexual satisfaction: low testosterone being one of them. The other was a hormone that affected feelings more directly. If that was low, it could also cause a problem. So, he ordered me a blood draw to test for both conditions. However, he said while low-T could affect feelings, it wouldn't necessarily affect erectile dysfunction.

So I had my blood drawn and it was sent off for testing. It came back and it had normal amounts of both hormones for my age. Now it appeared I was back to square one. However, the urologist had said something that gave me and him a clue. Because the recommended treatment for being low on the hormone (sorry, I forgot the name of it, but I recall it started with a P) that can more directly affect treatment was, get this, a dopamine-agonist! He said if that was the problem, he could prescribe me a low dose of this dopamine-agonist that I had never heard of or taken. Since I had a normal level of the hormone, then the urologist didn't prescribe it for me.

But it got me to thinking that dopamine may have something to do more directly with the lack of feelings. The fact that I hadn't needed to take any medication to control my tremors, thanks to DBS, left me dopamine depleted overall, only living on whatever my brain was able to still produce, which was obviously not very much.

And, I had not attempted to try a dopamine-agonist to help my low dopamine problems, which extended to more than lack of sexual feelings. I had been having problems with my drooling, and my voice had grown softer, mainly due to feeling like I was attempting to talk through a mouth full of cotton. (I know, I know. There are exercises I can do for that.) But I chalked this up to the lack of dopamine as well.

So, I decided that I would give a dopamine-agonist a try, being that it wasn't know to give people dyskinesia like levodopa does. I talked to my neurologist about it and he prescribed the same dopamine-agonist (being I already knew I could tolerate that one) that I had used before DBS. Amazingly, not only did my drooling lessen significantly, and my voice grew clearer (still have some issues with feeling like I have to yell to talk normal, but it significantly became better), but sexual feeling returned as well, to a degree.

Apparently, dopamine is involved in more than muscle control. I know, I can hear many of you thinking, "Well, duh. It is also involved in the reward system." Yeah, I knew that. However, I had picked up from somewhere that the reward system was separate from the actual feelings. The dopamine reward system goes something like this. You experience a pleasure, both sex and drugs do the same effect, the dopamine system tells your brain, "This is very desirable. You should want more of this in the future! Like, NOW!" This then convinces your will to accede to its demands, and it starts the reward cycle all over again. However, I had read somewhere that having more dopamine didn't equate to having the feelings which set off that reward cycle. Thus, up to this point, I had never considered that my lack of dopamine might factor into my sexual feelings.

But apparently that is the case in my situation. Exactly what the reason for that is, isn't clear. However, dopamine is involved as a neurotransmitter in the brain. It has many functions in that capacity, from sending signals to move a muscle, all the way to what a particular pleasure feels like. I know it can't generate pleasure, but it has the ability to identify some feeling as a pleasure by triggering certain synapses in the brain. That could magnify the sense of that pleasure. At least, that is one theory I have. Unproven as it may be, it at least has the sense of logic to it.

Then I had another idea. When I took the full 100 mg pill of levodopa, it barely gave me some dyskinesia. That should mean that I could tolerate a half dose of it with no dyskinesia. So, I tested it out by taking some older pills I had from Oct 2017. I knew they may not be as potent as fresh, but for the test, I figured it would work. I took 50 mg of levodopa 3 times a day, and again I noticed additional improvements in the non-motor symptoms I mentioned above. So I contacted my neurologist, told him what had happened, and he prescribed me a fresh set of pills of levodopa.

So the gist of where I'm at is that I've had feeling return as a result of increasing the amount of dopamine in my system. I don't have low-T, which is good on not having to have an infusion of that for every two weeks for the rest of my life. So I'm currently happy that my situation has improved in that regard and in other ways. And I still have the benefits of DBS, in that I don't have any dyskinesia, nor the ups and downs of medication on/off times. As a matter of fact, I find it is easy to forget to take my meds because I don't have worsening symptoms to remind me to take them.

I hope this can help others figure out what works for them, and other options. Of course, my experience may not be yours. Be sure to consult with your doctor about any of these issues. But the above is my experience, for what it's worth.

Another Day Goes By

2019-04-19T07:32:00.000-05:00

Yep, its that time of the year again. April is here and so is Parkinson's Awareness Month.

Some of you probably think I forgot, but nay, nay! I haven't forgotten my annual poem I always do this time of the year. This one is a little different of a poem, that I pray ends on a happier note than at first it appears it will. See what you think!

--------------------------

Another day goes by
Another day closer to the end.

Another day goes by
Another symptom grows stronger.

Another day goes by
Another disability appears.

Another day goes by
Another dopamine-cell dies.

Another day goes by
Another day to be alive.

Another day goes by
That I can spend with you.

PD is Low-T

2019-02-22T00:07:00.000-06:00

Howdy, everyone. I'll get to the bulk of this post right after I update everyone on how things have gone so far. I'll try and keep this part short. No, I'm not going to go over anything here but PD progress.

I recently had a visit with my new Movement Disorder Specialist. His name is Dr. Aaron Haug (I believe I've spelled that last name correctly). He appeared to be an attentive and knowledgeable doctor, and personable as well. I think we'll get along just great. At least as far as first impressions go. We went over my account of my medical history, correcting a few things that someone was wrong in it, like which side it started on. (It had the right side, when it was my left arm that started tremoring, though what might have been confusing is my right side ended up surpassing my left in its degree of tremors.) I like him so far. One of the things I feared is whether he was the trusting kind with my DBS settings. My former neurologist gave me a fair amount of leeway in allowing me to adjust my settings. I was afraid this doctor might be more restrictive than that. But he wasn't, he was fine.

He appeared to understand where I was coming from, and why I no longer took any medications. That's because the few times I've taken some levodopa, one pill, I had a slight return of my dyskenisa. Nothing most people would notice, but I could feel the old familiar pull on my neck. Apparently I'm very sensitive to that aspect, so I'm very thankful that the DBS works so well.

The rest of the update will be in the following article that I will go to now, about low testosterone in men with PD. Note: this does get into a more personal issue. Nothing graphic, but does involve a more personal matter. If that bothers you, don't read it. You have been warned!

One of the issues that many face when they get PD is a declining libido. However, I had not specifically had that problem. Yes, my libido had declined a little since I'd started showing PD symptoms, but I was still able to "function" around 50% to 70% of the time, depending on what else was going on.

Then, once I had my DBS put in, everything down below simply stopped working. At first, after some research, I figured I would need to wait around nine months and see where I was at. For those that haven't read/watched my DBS posts, it takes around three to six months for the swelling in the brain to go down. I found a study on sexual satisfaction after DBS, and it was around half who thought it improved, and half that thought it declined. Uh, I would be in the latter half by nine months out, the earliest the study would take someone. Apparently, they wanted to make sure that the people they took were around a minimum of three months of settling down after their brain swelling should have resided.

At the time, I thought, "Well, I'll just wait until nine months to evaluate this situation again. Meanwhile, I was prescribed generic Viagra to help, which it did, but not enough to "finish the job."

On top of that was my difficulty initially (and still exist, though not to the degree it did in the first six months) coordinating my movements. When nine months were up, I realized my situation had not really improved significantly. Some, but nothing that put things right again. So I figured it was due to that inability to control my movements, which my previous neurologist said made sense. So I continued on, trying to add levodopa back into the mix some, which didn't really improve things much, and like I said, sort of gave me a low form of dyskenisa.

So i had pretty much given up by that point. Figured this was the way things were. And I would gladly give that part of my life up if required to have a better quality of life in other areas.

Then one day recently, something made me wonder about testosterone. So I started to do some research, I typed into the search engine, "Parkinson's testosterone" and came up with some articles that described that PD often resulted in a lower testosterone levels in men than in control groups about the same age.

Then it hit me. "What if I have low testosterone?" So on that hunch, I did another search on "levodopa testosterone," and pulled up some articles that confirmed my suspicions: that levodopa helps raise testosterone in PD patients. Suddenly, it all made sense. I regularly took levodopa up until, I had DBS! Once I lost that extra dopamine flying around in my brain since DBS had taken over, my testosterone had dropped as well. I didn't have that much dopamine up in my brain any longer. Apparently, dopamine is one of the keys in the production of testosterone.

So, I've contacted my neurologist to refer me to a urologist to test that, as well as any other reasons I might be having problems. Of course, if I do have low testosterone, it could mean getting a shot every 2 weeks for the rest of my life. Ug. That is, unless my insurance will pay for the much more expensive gel drug and such. I have yet to go to the urologist, he/she hasn't even called me yet to make an appointment. So I'll try and get on here and report any diagnosis I end up with once I find out what that is.

At any rate, that might help someone who reads this and is having the same problem. Thanks for reading and I'll be back!

Time for an Update!

2018-12-08T15:43:00.000-06:00

I know I'm overdue for an update for friends and family. I'm sure people would like to "see me" in a video, as that would tell more how I'm doing than I can describe on a blog post. Unfortunately, being we're staying with my daughter, there isn't a good place for me to create that video. So, this will have to do for now.

So, how am I doing?

Well, pretty good, overall. I know, I know, you were hoping for more info than that.

So I'll dig into the particulars.

DBS

So far, the DBS (Deep Brain Stimulation surgery) is still controlling my symptoms without any help from medications. That is, over a year later, I'm still medication free! I can still type well, though I'm feeling a little more resistance in my left arm due to the dystonia I have there. But not so much that it is affecting my typing a lot.

As a result, I'm still going full bore on writing. I currently have four books finished that I need to finish editing on and get published. The closest one that is ready, will be published any day now, is the fourth and final book in my Virtual Chronicles series, Reality Game. I also have another science-fiction title in the editing process: Rebellion. Additionally, I have two non-fiction titles: Healing Infidelity Through Faith, and Looking Into the Orthodox Church that are in editing. Probably the other three will come out early next year, except for that last one since I'm planning on submitting it to a publisher. They always tend to take more than a year to process anything once they've agreed to publish something.

I'm currently writing another science-fiction book as well: Deep Brain Invasion. I intended to get that done for National Novel Writing Month, which was this past month, but I got sidetracked into other projects and didn't finish it. That said, I seem to be getting more done without a schedule or time limits or other factors that NaNo provides. So, I'm still writing that book and should finish it early next year, probably will be published sometime late next year or early the following year.

So, yeah, my DBS is still operating as expected and I'm still happy that I had it done. I'm so, so glad to be off my medication roller coaster!

Diet

My plant-based diet is still working great. Plenty of energy and such. I do tend to take a nap in the afternoon, but I've been doing that since my DBS, so I attribute that more as a side-effect of the surgery rather than any lack of energy on my diet. The reality is that my diet provides me plenty of energy as long as I keep eating enough calories to keep my weight up. That was a challenge when I was on the keto diet as well. I'm clocking in around 153 lbs. currently. My lowest weight was around August of last year on the keto diet: 147 lbs. So I appear to be doing okay on that front at this time.

So can I tell whether the plant-based diet is helping my symptoms or not? Well, as far as I can tell, I feel pretty "normal" most of the time. I might be progressing a bit, in that I've had to turn up both sides one "notch" on my DBS once this year. But that would be minimal, I think. So it appears my progression is on a slow-track so far. As to whether the diet is helping with that, I can't say for sure (especially without any control groups to compare against--the Doctor would be helpful for that . . . yes, I'm talking about that Doctor, as in Who), but according to all I've read, it should be helpful in at least slowing progression. The gut health has a lot to do with Parkinson's symptoms, and I can report that my stools have been pretty normal and healthy, which would indicate that it is helping my PD symptoms in other areas.

One symptom that has always been a problem and still is, probably because it is one of those non-motor symptoms that DBS isn't supposed to help, is my chronic runny nose I've had ever since the first PD symptoms showed up. I must use around 50 tissues a day. Being indoors seems to make that worse, which I am indoors most of the time. So, I have this chronic runny nose issue still. Even after seeing my doctor about it and having a nasal spray prescribed. Well, if that is the worst thing, I'll survive.

TUCDA

I now have a confession to make. I haven't been taking this medication since I had DBS. I know I said I was going to do so, but it was hard to remember to take it three times a day without the regular medications to remind me, that I kept forgetting. Now that our income has changed with the move to Colorado, we simply wouldn't have the money to keep up with it anyway. As I indicated above, I've not discovered that my PD has progressed that much so far this year. Whether that would have happened no matter what, or whether the plant-based diet has slowed progression, who knows?

Anywho, I am sorry that I wasn't able to keep up the experiment, though it would have been difficult, if not impossible, to tell how much of an effect it would have had. There are simply too many factors to account for in my situation to know what has caused my slow progression to date: DBS? Diet? Exercise? ????

But I am very thankful that my symptoms have slowed down, whatever the cause, from the breakneck pace they were on for the first two to three years.

Exercise

Since getting my DBS done last year, the amount of exercise I was getting went down. Not totally gone, by any means, but the amount I was getting wasn't up to my pre-DBS standard. Not sure exactly why that was. Maybe because I now could write more, I spent more time doing that, and other things I wasn't able to do as often as before? I know the amount of window cleaning jobs I received was eating into my gym time, but that was its own form of exercise as well. You try holding a 30 foot pole in place for several hours and see how in shape you are!

Now, I thought moving to Colorado would get me back into the gym more. Why? Because I was fortunate enough to snag a job at the local YMCA here to do Zumba Gold classes. I went through their process and did all the training, But I wasn't scheduled for any classes. When I checked with the boss, she wanted to make sure I could cue well. That is, she wanted me to be able to point out where I was going next with my moves. No problem, I thought. At most it might require some refining of what I was doing.

To make a long story short, I discovered that she wanted me to cue all my moves four beats before I did them, and she also said that I needed to simplify my moves into three basic steps per song, and do more verbal cuing. I've tended to rely upon visual cuing because my voice isn't very loud and it gets too complicated to do the verbal cuing at the same time. With around 3 to 4 months of practice, perhaps. But not any time soon. So, based on my learning style, she was asking me to rework all my songs, which would take a minimum of three months, into more simpler steps, and to cue four beats ahead of any move, which I didn't know how to even practice that.

Combined for the fact I don't currently have anywhere to work on that, I felt I couldn't do what she felt I needed to do that her students would need and expect in order to do these dances. So I told her as much, apologized, and told her I couldn't do it. I sent that email to her back around mid-November. I've not heard anything from her since. So, I won't be doing any Zumba classes. Also, no job at the YMCA as far as I know right now.

Which also means I won't be going to the gym on a regular basis, and mostly I've been holed up in my daughter's apartment, doing writing and such, Which does exercise the fingers, but that is about it. I'm thinking I need an alternate plan if I'm going to get my cardio in. I'm seriously thinking about using some dumbbells to lift weights in a cardio way on my own. Maybe. We'll see. Because I know how important cardio is for slowing the progression of PD. So in my mind, I shouldn't neglect it for very long.

One avenue is my Parkinson's group that I've attended once since I've been here. They have some programs going on which they were interested in me doing some Zumba for them. We'll see if that turns up anything. Another option is the Parkinson's program at the Y, but is its own thing separate from the Y, that does cycling, is looking for instructors for that. Maybe. So I have options, just a matter of figuring out what I should do. I'll let you know how all that ends up panning out.

Move to Colorado

We've been here for over three months now in Colorado. Getting colder all the time. It has snowed like around four times since we've been here. Always, ironically, on a Sunday morning. Last Sunday was the first Sunday in a while that we've not had snow. Looks like no snow for the coming Sunday either. That said, of late our lows have been in the lower teens. And winter has yet to officially start, though we are getting closer.

We are still staying with our daughter and her family. We're all getting along fairly well, with minimal problems. But, we do want to get into our own place as soon as possible. We're hoping by January or February we'll be able to do that as long as the pieces fall into place.

Lenita is working at a job she seems to love: being the "Sample lady" at the local supermarket chain. They keep her quite busy and provides the biggest amount of our income at current. Though whether that along with my disability and the amount we're getting for selling the company is going to be enough for us to live on once we get an apartment is questionable. She still wants to get into childcare, her original plan. How that will happen, though, is the question.

All we really need is for my books to hit the big time! Have a movie made based on them, or something.

All in all, we are happy here. The scenery is beautiful and all as well. We've gotten some medical help that we didn't get in Texas. Lenita is on Medicaid as well as Nathan. I've got my Medicare. The only glitch is that Medicare doesn't cover much in the way of dental unless you buy a plan specifically for that purpose. I was on Medicaid for the month of October, because they put you on it when you apply, and then they took me off of it because I received too much money from my disability. While I was on it, though, I was able to get eight infected teeth pulled. She wanted to pull them all and give me dentures, but alas, they only supplied enough dental money for one year to pull those 8 teeth. But at least I got those done before it ended.

So we've settled in. We've both have our Colorado driver's license and plates. So no one knows we're from Texas anymore merely by driving behind us. They would only find that out when I talk to them in my Texas accent.

I should be going back to Texas soon, for a not very good reason, though. I will be flying down to San Antonio to stay with my brother and his wife for a few days because my other brother, number 2, Rob, is dying of cancer. He is currently in a nursing home. Whenever they schedule his memorial service, that's when I plan on going down there for a few days. Hopefully I'll have some time to go visiting.

Forgive any typos in this posting. I'm going to give it a once-over before posting. I've got things to do! See you later.

The Dirty Secret

2018-10-13T10:22:00.000-05:00

Today I've finally decided to discuss a dirty little secret, or not so secret as the case may be: constipation. I've been intending to write this article for some time, but it has been slow in coming. (See what I did there?)

A lot of people have this problem, but Parkinson's patients tend to be overly afflicted by it. I used to be and have a few solutions to tell you about how to deal effectively with this problem, whether or not it is due to Parkinson's.

I'm going to first discuss the basic problem, then am going to discuss the following potential solutions: The process, Diet, Supplements, Exercise, Medications, and DBS.

The Problem

One of the more common "non-motor" symptom of Parkinson's disease is constipation. I put "non-motor" in quotes, because the reality is it is a motor system even though people don't think of it in that way. Your large colon is a muscle that pushes your solid waste down and out. But, being an automatic process that we usually don't think about, we don't tend to classify it as a motor symptom. But in reality, there are motor issues at play here that Parkinson's can affect.

But it isn't merely a motor issue either. Many Parkinson's patients are missing key bacteria in their gut that help to digest food. This can result in hardened stools. Getting the gut back in shape is one key component of dealing with PD constipation.

I've also read that PD can affect the smoothness and dryness of the colon wall. This will make it harder to move stools through the colon. I recall feeling that problem as well.

The Process

Most people who have constipation push with all their might to get it out. I've since discovered that this is counterproductive. Sure, it works sometimes, but it can cause worse and worse constipation as well.

Before I knew that bit of info, I would strain to push it out. My all-time record of sitting on the toilet and trying to get it out was a little over three hours. It was grueling. I was literally crying by the time it was over with in one big explosion. That was after cramming suppositories up there and all that. I feared at the time I would end up in the emergency room because I couldn't get it to budge, no matter how hard or how many times I pushed.

The problem with pushing hard is twofold. One, it puts stress on your internal organs. That can cause its own set of problems. Problems you don't want. Two, it can pack the stool into your colon in such a way as to exacerbate the problem.

The best process I've found is to: First, let your natural colon process take over and expel it on its own schedule. This is by far the best method and can make for the least stress on the body.

Second, if it needs a little help to get going, like when you feel the need to go, but it stops short of coming out, some moderate pushing is in order. What I've found works best is breathing deep with your stomach. That produces a natural shove and nudge of the stool. If you feel it is necessary, you can provide a moderate push at the deepest part of the breath. Nothing that will turn your face red type of pushing, just use as much as it may require.

Third, if it still doesn't come out, don't push with all your might. Sit there continuing to do deep breaths until you either expel the stool, or you are forced to give up and try again later. Whatever you do, don't push excessively in a straining manner as that will make it worse in most cases and you'll run the risk of damaging internal organs.

If after three attempts like this, it still won't come out, consider going to see a doctor.

The Diet

Your diet plays a large part in what kind of gut bacteria you have. The types of bacteria you have in your gut are largely dependent upon what you feed them. So if you eat processed foods, the bacteria you'll tend to end up with are largely those that help breakdown sugar and fats. If you eat fiber rich foods, however, your gut will grow bacteria to process those types of nutrients.

It should go without saying if you eat a lot of fat and sugar heavy types of food, like meat, cheese, eggs, most processed foods, etc., that your constipation will get worse, not better. Take cheese, for instance, It is mostly a concentrated lump of fat. Around 90% saturated fat. I know from experience when I've eaten too much cheese in the past that I've had constipation problems. That was before I had PD. All that fat can gum up the works in your colon, especially if you are already prone to constipation by PD.

The type of diet that works best at reducing constipation is one that is starch and fiber rich. That means lots of bread, vegetables, fruit, and legumes of various types and forms. If you need to eat meat or meat products, and processed foods, serve them in very small portions and only occasionally. But it is best to eliminate them altogether. The more problems you have with constipation, the more strict you need to be with eliminating those foods. A plant-based diet will do more to correct your gut bacteria than most any other method.

Additionally, it is a good idea to stay hydrated. I usually drink plenty of water and other liquids each day. I tend to always have a water bottle full of water close by.

You can gauge how well you are doing based on the frequency of your bowel movements. Healthy individuals will have around one bowel movement a day. If you go two or three days without one, know that you are building up to a constipation episode and take preventative measures as soon as possible.

Supplements

"But Rick, what about fiber supplements?"

Yes, they do help. When I had constipation on a regular basis, they were one part of my routine to help stave off that problem. All by themselves, they didn't do the trick, but they helped. Now I take them more for the B12 they contain than for the fiber. At any rate, if you can get your fiber from whole foods like I've listed above, you are far better off and will not need fiber supplements. That said, even if you are getting plenty of fiber from your diet, it won't hurt to add more from a supplement.

However, the most effective supplement I ever took for this problem was Magnesium. I took around 500 mg a day, which appeared to keep my stools soft enough. The only time I needed more fire power was when I was on Amatadine because that medication had the side effect of more constipation added on top of PD. However, magnesium was my primary supplement to fight against constipation. Also, it had the added benefit of helping my nervous system operate at peak performance.

The times I had the worst constipation was the days I forgot to take my magnesium for the day. There may be other supplements that work for other people, but those are the two that worked best for me.

Exercise

"Aw, do I have ta?"

Yep, if you want to address the cause rather than just the symptoms. The colon, as I mentioned above, is a muscle. PD affects muscles, and it can affect the colon. It can interrupt the smooth movement downward of a stool. As PD progresses, it makes your muscles weaker due to the tremors and any dystonia affecting the muscle. The solution to this is exercising those muscles.

This was dramatically brought home to me back in 2015. In 2014, during our trip to Hattiesburg, MS from our home (at that time) in Marble Falls, TX, I was constantly stopping to use the bathroom. My bladder muscles had grown weak enough by that point that I frequently had a hard time holding it in. I had many close calls on that trip, and at least one or two misses. My need arose without warning and usually left me little time to find a restroom.

In Feb. of 2015, I had started to exercise regularly at the YMCA doing Zumba and Pilates. By the next fall when we left for Hattisburg, I had little problem and could go for quite a while before needing the bathroom. The reason? Mostly due to Pilates, because it works the core muscles. They got stronger, and therefore my bladder had more control. As a matter of fact, several of my muscles grew stronger during that period. I had several of my symptoms reversed because of it.

"But Rick, that's dealing with the bladder, not the colon."

Yes, but they are in the same area. It was harder to gauge the constipation. However, it was in 2014 I sat on the toilet for over three hours. I never had that bad of constipation since I've started exercising regularly, even when I took Amantadine. I know that it has been one of the things that has helped my constipation issues.

Medications

There are over-the-counter and prescription medications that one can use. The problem is that they can have side-effects and complications with other medications you may be taking. Be sure to check contradictions with other medications before taking even over-the-counter medications. By far, the best methods are the above ones, but in some cases that will not be enough and you may need more powerful methods. It is a good idea to check with your doctor before taking any additional medications, even over-the-counter ones. I personally have no experience with those, as I've never had need to use them.

DBS

DBS, or Deep Brain Stimulation, can help with constipation. It generally doesn't help non-motor symptoms, but as I've indicated above, the colon is a muscle that can be affected by PD, so there is some motor issues involved, even though there are also non-motor issues. All I know is currently, over the past year since my DBS surgery, I've had near zero problem with constipation. I am also doing the plant-based diet, so I know I'm getting plenty of fiber, but I no longer take magnesium and my stools and frequency of bowel movements are quite normal.

Now, am I saying get DBS to solve your constipation problems? No, there are other ways to deal with it. However, it could be one consideration in whether to get DBS or not. And I'm not saying for sure that it will solve it for you. It depends on why you are constipated and whether DBS will affect that or not. However, if it does affect it, it is one potential side-benefit of getting DBS.

That has been my experience with constipation to date. I'm sure as this disease progresses, I will deal with it again. But for now, I've conquered it using the above methods. Maybe it will help you too.

Link Between Parkinson's and Tooth Decay

2018-10-03T21:25:00.004-05:00

I went to the Dentist today (10/3/18). To put it bluntly, my teeth are falling apart. I was told today, that I have about five teeth that are worth saving, and even those were weak. The conclusion? To extract them all out for full dentures.

That prognosis caused my wife, Lenita, to ask when I started noticing the decay accelerating. I thought back, and it appeared to happen around the time my Parkinson's symptoms started appearing. I did a quick search on "Parkinson's and Tooth Decay" and came up with a series of articles. This scholarly article seems to put a definite correlation between the two. Indeed, another article talked about a study that compared tooth decay among differing types of neurological conditions, and the PD had the worst record of good health and healthy teeth.

So, I'm just saying, if you have or get PD in the future, you may want to pay special attention to your teeth and your dental hygiene. Your doctor is probably not aware of this information as there isn't a lot of studies done on this topic. It may be too late for my teeth, but not for yours.

My problem is finding the money to get this done. Could be a couple of years or more as we struggle to get back on our feet.

Year in Review with DBS

2018-10-01T15:23:00.000-05:00

As of last Saturday, Sept. 29, was one year since my Deep Brian Stimulation (DBS). So I figured it was a good time to review the past year in relation to getting DBS.

It was a bit scary getting wheeled into the operating room. Waving bye to my wife, wondering if something went wrong, if it would be the last I'd see her. I know she was thinking the same thing. As they wheeled me down the hallway, I remember thinking, "This is my last chance. I could hop off this gurney and say I've changed my mind." But I didn't. Obviously. But I knew going in that though most of them go without a hitch, there is that small percent of a chance of hitting the wrong spot in my brain could cause a hemorrhage, and possibly death, or I could come out of it with severe brain damage. According to the statistics, around a 5% chance of it.

Thankfully, I wasn't one of those 5%. I even didn't get any infections or rejections. Everything went as smoothly as could have been expected. I thank God for his protection and guiding the surgeon.

And being on the table, knowing and feeling the pressure of him cutting into my head, and drilling through my skull, will be experiences I'll remember forever. While I know some come out of that surgery with PTSD, I was mostly curious and was paying attention to everything that was going on around me. Even when they probably thought I was under and out. lol. I recall saying to them at one point, "Should I be awake now?" As it seemed they were preparing to do some other surgical stuff that I would be out for. I even recall them debating about what route to take with the lead on the left side of my brain. One guy suggested putting a rod on my head to check if their new system was positioning it correctly. The head surgeon rejected that idea, thankfully for me. I wasn't too keen on getting a rod attached to my skull unnecessarily.

Of course, the recovery was slow going. It took a full six months as I slowly regained my balance, and abilities. At first, I was pretty wobbly due to having my settings turned up too high. All you have to do is go and look at the video on this blog I took shortly after my first setting and getting turned on. I had a real problem fixing myself lunch in the kitchen. One day, after bouncing off the counters and such, I had to give up. It was exhausting.

But after around four or five sessions with my movement disorder specialist, I finally landed on a setting that seemed to "work" for me. At least, it keeps me at a level I could manage. Except for when I did Zumba. That required a lower setting that barely controls my tremors, but is low enough that I can more adequately dance and play pickleball without my legs going crazy.

But the really cool things, is despite all that I've been able to do a lot more writing than I have in a long time. Since Sept. 29 last year, I've finished two novels I started working on and had partially completed, as well as compiling and writing a non-fiction work that I've tentatively titled, "Looking into the Orthodox Church." A book for inquirers into Orthodoxy. That's all in addition to some short stories I've written.

So I've been busy working on that. Also, I started a window cleaning business which was going well while we were in Marble Falls, but now that we are here in Denver CO, we are starting all over again. I've had one potential contact, but that's it so far. But, while in Marble Falls, I was doing around 5 to 7 jobs a month in addition to other jobs, like pressure washing driveways. And it was growing. Hopefully it will grow here too, once I start getting some clients.

Additionally, as several of you know, I will soon start my job at the YMCA here in Denver as a Zumba instructor. I've been patiently waiting for this to happen. Though it is nearing a full month since coming here. Long process, apparently. Anyway, I look forward to that. Not only for getting going in it, but we need the income!

So, I've been asked over and over again whether I would have done DBS knowing what I know now. And my answer has always been "YES!" Though there has been some difficulties here and there with it, the life it has restored in me is well worth it. Someday, my disease will progress to the point DBS is no longer effective, but my hope is with a good diet (as I talked about last post) and plenty of cardio exercise (which I'll be getting plenty of as a Zumba instructor), I can slow the progression down to the point where that will not happen for a few more years.

Stay tuned to this blog to find out what happens to me in the next few years.

BTW, I'm planning on doing NaNoWriMo (National Novel Writing Month) this November. First one I've done since 2010 I believe, 8 years ago. check out my writing blog for more news of that.

Why I'm on a Plant-Based Diet, and Why You Should Be Too.

2018-09-25T14:53:00.000-05:00

"All well and good for you, Rick. If it helps you, more power to you. But why do I need to be on a plant-based diet?"

I know I could "talk" or in this case, type till I'm blue in the face, and there will be some people who are simply not willing to give up their meat, dairy and eggs. Even though it will in all probability, lead to heart disease, cancer, or some other chronic disease. I know that some may feel that I'm being radical. However, the science is all there. The clinical trials and all the best evidence points toward that reality.

What? You want links? How about the following:

From Parkinson.org, a general guide to how diet affects PD and what the current evidence shows.

From Dr. McDougall, has some interesting things to say on this subject.

From the Brian Grant Foundation's blog interview with a movement disorder specialist.

That is just a small sampling when I did a search on Parkinson's and plant-based diet on Google.

Plus, there is much more clinical trials and information dating back to the 1950s about how a plant-based diet protects from heart disease and cancer, the top two killers in Western Society. Western Society as everyone who eats like us. Those areas of the world that only rarely eat meat or dairy products have near zero incidents of heart disease and cancer. Pretty much every study done on this topic shows that a plant-based diet will be protective for anyone getting heart disease or cancer. Even better, in both cases, it shows that it can *reverse* those diseases.

Nuerodegenerative diseases like Parkinson's aren't so fortunate on the reversing area. Brain neurons are not as likely to grow back and start producing dopamine again. However, it is hoped that providing the antioxidant and other infection reductions that a plant-based diet has to offer, will slow or even stop the progression of the disease. That has yet to be proven, however, even though there is some laboratory and animal testing that has promising results.

However, the biggest chance it can help people that are either yet to get PD or some other chronic condition like MS, ALS, etc., is to go on a plant-based diet. The downside is that most people think something like that is a radical approach, that the food will not be as good as their steak and potatoes, that they could never give up their cheese, or eggs, or add in whatever you love that you would have to give up. Until . . . you get a chronic disease, or come down with heart disease or cancer. Then suddenly, you realize the value of listening to someone like me.

Consequently, many will not do this diet that has been proven beyond a shadow of a doubt to prevent and heal most diseases we face. The cool thing is that you don't have to do, buy, or take one thing from for one problem, another for a different problem. I'm not selling you any supplements that claim to do that. One for each possible disease you might get. Rather, I'm promoting eating healthy for the reason that I know it is the best thing for anyone to do. This one change, in our diet, could profoundly affect the future of our lives.

Eating healthy is the solution for everyone. And for those that might be able to avoid getting a chronic condition like PD, it means more years of living without tremors, muscle tightness, pain, etc. It is too late for me, to a point. I've had PD symptoms for six years now. The damage is done in my brain, and short of a miracle, there isn't any way I can get that function back. All I can hope for is slowing of the progression down to a hopefully slow crawl. But you still have a chance to live a full and healthy life. Why wait until the damage is done?

Nutrition and exercise are the two biggest factors in Parkinson's Disease. Both in their lack in getting it and in using them to manage it. Can you afford to wait until you get a disease before giving up meat, dairy, and eggs? I wish I had known this back when I was still young. My life might have been much different if I had.

If the above doesn't convince you, but your interested in the topic, I would suggest watching this video that Dr. Gregor gives on how a plant-based diet can cure and/or alleviate the leading 15 causes of death. If he can't convince you, I don't know who could.

We're in Colorado!

2018-09-17T16:12:00.000-05:00

Hello, everyone.

Yes, as I've said in the title, we've successfully arrived in Colorado with our lives and stuff intact. I had one big harrowing experience in coming here, though.

We were driving down I25 toward Denver, about a little over 40 minutes from our final destination. Just north of Colorado Springs, I suddenly noticed the trailer swaying back and forth. I was controlling it, but not knowing why it was doing this, I thought maybe it would correct itself or get out of control worse. Then it dawned on me that one of the two tires on each side of the trailer must have blown. I was correct.

My wife, driving the van behind me, was in a panic as she related to me after we safely made it to the side of the road. She started smelling smoke, and started looking for where it was coming from. Then she noticed smoke coming from the trailer. She yelled for our son to call me and tell me to get off the road. About that time, however, is when she saw the tire shred apart and I started fishtailing in the heavy traffic on each side of me. She relates that she was in frantic prayer as well as telling me to get off the road.

About the time I realized what had happened, I looked over in my window to see if I had a way to pull over to the side of the road. Amazingly, I did. Most likely because the tire blew on the right side and and so people were slowing down in fear of me fishtailing into them. So I moved over with success. Upon looking at the damage, since we had one good wheel on that side it could ride on, we decided to slowly make our way down the side of the road until the next exit, about a mile away. We did and parked in front of a 7-11 under construction there. A Starbucks was there to provide a place to recoup as well. Which turned out to be a good thing as we had to wait over 2 hours before roadside assistance came and replaced the tire.

So we arrived a few hours later than expected. Better than spending the night(s) in a hospital. We were truly thankful for all the prayers for our safe travel.

So now we have been here over a week. A lot has happened this past week. I'll just relate the more important things. One, key thing is the YMCA job appears to be a lock at this point. I met with Colleen, the Health and Wellness director at the YMCA, twice last week. The last time was to get some paperwork done. She's submitted the background check to Texas, so we are just waiting for that paperwork to get back before we can proceed, which she said could take as long as six weeks or more. So I wait. Wait for Texas to respond. Once that happens, however, I'll go into HR and fill out their paperwork and then I'm officially hired. According to Colorado state law, I'll be considered a resident once I'm gainfully employed. So that will also become the moment I'll be an official Colorado resident.

Aside from that is doing all the other switch-overers of our address. As well as obtaining new stuff, like I've still got to get my driver's license, register the car, etc. I do have a new bank account, I've changed addresses with Social Security and changed my direct deposit info, since that takes 2 months to switch over.

And money is tight, more than I expected it to be. We have enough to buy some groceries and gas for the truck, but not much more. But we're budgeting closely, working to get enough money through work. Like as of today, I've had one request to get a bid on doing window cleaning. Still waiting to hear where they are located. Hopefully that pans out to be my first CO client. Lenita is still looking for kids to baby sit, and Kalee is still looking for a job so she can eventually pay for our new apartment or other location. It will all come together in God's good time, I'm sure.

At this point, I would like to thank all those who have donated money we would need to move. It was just enough to pay for our trip gas, motel in Amarillo, the trailer, and food along the way. I was hoping we'd be able to save up for our emergency fund from that money, but it was not to be. It will happen as we roll along, however. At any rate, know your money was used well and appreciated very much.

Anyway, if you want to know our new current address and phone number, send me an email at rick@copple.us, or private message me on Facebook if you know me via that route, and I'll give it to you.

As far as my PD is going, great! Still, after all this excitement, no medications are being taken. I even have some functions slowly, ever so slowly, returning. I'm hoping they mostly return back to "normal" whatever that my be. But I'm getting more surefooted and all.

In a few days, it will have been one year since my DBS surgery. (Sept. 29th). It is like the time before DBS is fading. But that's why I started this blog, to document my disease progression, to determine what has helped and what hasn't, for me. So I can look back and see how far I've come. Hard to believe I am doing so well, even before DBS, than I was toward the end of 2014. Exercise has helped a lot to reverse a lot of symptoms. It also, I believe, prepared me for DBS as well. My balance had improved as well as other issues. Even though since DBS I'm not as sure footed as I used to be, I still have great balance. My last visit with my neurologist she asked me how my balance was doing. I told her overall good, though sometimes I more easily trip over stuff (especially when I'm tired). I then proceeded to show her by lifting one foot off the ground and holding it out in front of me. She told me not many of her clients could do that.

Yes, eventually this disease will overtake me. But at least I feel I have some time left to get things done I want to get done, and to spend some quality time with Lenita and the grandkids. I suppose if Lenita was Bilbo talking to Gandolf, she would say, "Grandkids, Gandolf, grandkids!" (That's a reference to Bilbo responding to Gandolf's query as "Mountains, Gandolf, mountains." in the Lord of the Rings Movie, for those few who didn't watch them.) I feel the same way too. We've come here for the grandchildren, though the mountains are a nice side benefit.

All in all, things are going well. I watched Lenita as she stood on the balcony with the grandchildren earlier today, thinking we've made it possible for her to do what she really wanted to do. She's happy, therefore, I'm happy. God is good.

Move and some News

2018-08-22T03:30:00.000-05:00

Well, our move is proceeding along at a brisk pace. We've successfully got all our stuff gone through, what needs to be thrown away is thrown away, boxes in the garage waiting to go to GoodWill, the inspection report is done and our payoff balance has been solidified. We just had the appraisal done today (or yesterday by this point) so we're praying that comes out good for our buyer's bank.

So far, we are still set to close on September 7th, and we will be on our way to Denver, CO after that happens. So much needs to fall into place for that move to happen.

Well, one big piece of the puzzle fell into place today. This past morning, I had a phone interview with the program director at the YMCA in the Denver area. It went real well, and from all I can tell, I'm going to be hired to do a Zumba Gold class as well as back up for regular Zumba classes at the main Y, as well as all the other 5 Ys in the area! She assured me I would have a place in the Denver YMCAs.

That has motivated me to renew my practice. I'm excited for that opportunity! For those who have encouraged me and pushed me along this path, I am very grateful. I am now really looking forward to going to Denver, even though I regret missing my friends here. New places, new opportunities!

On my Parkinson's front, my symptoms are still being purely controlled by my DBS implants. I'm still good enough that I'm washing windows on a regular basis. Life is good.

About the only problems I have is needing to turn it down when I do Zumba (or my feet get too excited), and when I sleep (or I hit my wife in the night.) The only problems I have during the day is:

1. I get a little over excited when I bend over or get up from a squat/lunge position. I generally am able to catch myself when that happens. I've discovered you need good balance to have DBS not because that will go away some, but because you'll need it to recover from those moments when you do lose your balance. I have to think when I get up from the floor or from a chair "center of gravity!"

2. My speech can easily get too soft. I've never been a loud person to begin with, but with no extra dopamine flowing through my brain, that has become a little more of a challenge. Sometimes I can compensate by speaking louder. Other times, like right after eating or when I become dehydrated, I feel as if I'm trying to talk through a mouthful of cotton. So sometimes speaking loud enough for others to hear me is a problem.

Other than that, I feel like I'm good most of the time, 24/7! That's a definite improvement over what I had experienced before. So yeah, almost a year later, I'm glad I had DBS surgery. It has changed my life for the better.

At least for the time being. I know the disease progresses still. I'm reminded of that every time I switch from the lower to the higher setting, because there is about a 3-5 second period of time when it is off and I shake like someone attached a giant vibrator to my body. It is during those periods of time that I'm reminded of what is being controlled. Like just under the surface, there is this monster waiting for its inevitable rise to take over my body.

Someday. Just not yet.

I was sad to hear of my uncle-in-law who recently died of complications due to his Parkinson's. It reminded me that Parkinson's Disease is listed as the 14th cause of death in the USA. It puts a nail in the coffin of the saying people frequently cite: "You don't die of Parkinson's, you die with it."

I imagine people say that to make it not be so much the boogyman that other diseases like cancer or ALS are. It is a slower way to die, I'll give it that. However, that may not be such a good thing in itself. What is easier to go through? To die quickly or slowly?

At any rate, I'm still able at this point, thanks not only to the DBS, but also all the exercise I've done and my healthy diet. to live a normal life. I attribute it all to those three factors. That means for the time being, I'll continue to be a Zumba instructor and a window washer, as well as write stories in me that are wanting to come out.

So between the move and the new job, I'm ready to start on my new journey as I continue to battle my Parkinson's.

So, what have you accomplished of late?

My Recent Findings and a Move.

2018-07-27T04:47:00.003-05:00

I wanted to give a quick update on my last post. Yes, I've definitively noticed a difference on my symptoms as per the plant-based diet. How, you may ask?

Simply, I've cheated on occasion, as I indicated in my original statement I would. That is, on special occasions, I would eat meat and the like. I recently had one such special occasion, my birthday! July 16th is my birthday, and we celebrated by going to Chili's. I had one of my favorites, baby back ribs.

The following days, I could tell a difference. My right hand can have breakthrough tremors on occasion. I had noticed previously that I could hold a pencil or whatever in my right hand without any tremors, which is a new progress. Until I went on plant-based eating, I couldn't do that without some tremors breaking through the DBS. But the more I've been on a plant-based diet, the better I'm able to keep that hand from trembling when I'm holding something.

But after the Chili's feast, my right hand would tremor if I held anything. The worst is when I attempt to hold a cup of liquid. It will get sloshed out and create a mess in fairly short order.

So yeah, I'm going to stick to a plant-based diet for the foreseeable future. All the scientific evidence to avoid all diseases like heart and cancer are to do a plant-based diet. Having Parkinson's is enough. I don't need heart disease and cancer to be added to the mix of stuff I and my wife need to deal with.

So I've finally found the diet that will help with my symptoms. Yay!

I recently met with my Movement Disorder Specialist. We discussed a few things, but overall I'm doing great with my DBS. Still no medications required. I feel blessed to have this procedure and am glad every day that I have near zero symptoms and can do the things i used to do, like write. Which I've been doing quite a bit of lately, save for the last couple of weeks. Which leads me to the next thing I need to talk about.

I wanted to let you know why it may be a while before I can get another update out. We are moving! To Denver, CO area, no less. What has prompted this move?

I'll be honest. It wasn't because I wanted to move. I've come along somewhat reluctantly, especially at first. That is mainly for two reasons. One, it is obviously much colder there for much longer than it is here in Central Texas. While I've lived in colder climates before, I didn't necessarily enjoy it. There are, if I'm being honest, some things I enjoy about snow and cold. But overall, if I had to chose, I'd take the heat of Texas over the cold of Colorado any day.

Yep, that's even including the high temps here of late being around 109 degrees. I was much more miserable this past Christmas running around in the teens of Colorado than I was in the 109 heat of Texas.

Now, if I hadn't had DBS, this would be a no-brainer. Cold weather makes my tremors go crazy. While I was cold this past Christmas, I didn't have the same problems that I'd had before when my symptoms. So I know that for the time being, the "cold doesn't bother me anyway," at least as far as my tremors go. Still, that means at some point when the DBS is no longer effective at keeping my symptoms at bay, it will mean moving back to a warmer climate if I'm to be reasonably comfortable. I'm willing to cross that bridge when I come to it.

Two, financially, I feel we are doing better now than in times past. In large part to my being able to do window work. I've done well enough to catch up on my mortgage payments while also paying off a debt I owe. I have a couple of houses scheduled next couple of weeks that will amount to around 1000 dollars. That's on top of what my wife makes cleaning houses, which also continues to grow. I feel like it is crazy for us to drop all this and start over in a new place. I won't have my wife's clients to get window work from. I'll be starting my window cleaning business from square one in Denver, giving up the good progress I've made in the last 6 months of doing this.

Still, we've worked it out financially. Lenita is going to finally get involved in her passion, which is taking care of kids. To start out, in Colorado, you can legally have 4 kids to watch without a license. She will watch two of our grandkids starting out. This will allow our daughter to get her interior design career started. She figured she could afford paying for an apartment for us easier than to put her two kids in daycare. So once she has a job, she'll be able to pay for us to have a place to stay. That means she can watch two other kids for around 1000 each a month. Along with my disability payment that will result in a little over 3000 dollars we will have at a minimum. I've calculated that the bills we'll have there will barely fit into that income. As I work on getting my window cleaning business going in Denver, that will be gravy on the top to give us some extra spending money.

I know there are some questions left in the above picture. Like, what happens if my daughter doesn't get a job very quickly. We'll be staying with them initially, until that happens. There are considerations to take into account if that gets extended too long, And a lot is riding on whether Lenita can get another couple of kids to watch and how quickly that will happen. Otherwise, we could end up figuring out how to live on my 1200 a month disability payment. Also a lot depends on how quickly I can get window jobs to increase our income.

So we've worked out the financial side of it, though it all depends upon how quickly my daughter can get a job, how quickly my wife can get a couple of extra kids to watch, and how quickly my window cleaning business takes off there. Still, it seems a bit crazy for us to dump what we've worked so hard for, right when we'd be making the extra money we'd need to be more financially secure.

But if there is one thing I've learned, is that a happy wife can lead to a happy life. And my poor wife cannot continue to do the housecleaning work she's been doing for these past 18 years. She generally cleans around 3 to 7 houses a day. Yes, she doesn't do them all herself, but that is where our company has grown to, and she is doing the bulk of the houses herself, putting in long, hard and grueling 8 hour-plus days, cleaning 3 to 4 houses a day herself along with her crew. She frequently takes pain medication just to survive the day. She can't keep that up forever.

So, I want her to retire from her cleaning business, and this seems the best prospect for doing that. She wants to start her own daycare in Colorado. More power to her! It is for this reason, and yes, we'll be closer to our grandchildren and she'll see them nearly every day, that we decided to do this. We pray it will all work out financially. We are trusting God to help us.

But there are some positive feelings I have about this venture. One, I've always wanted to live in Colorado at some point. Mainly, "Mountains, Gandlolf!" I loved the time I was in Colorado Springs at a mountain retreat, and climbed a couple of mountains. One I climbed around 5 am, to watch the sun rise over the range as I sang hymns to God. That was a very impressive experience in my life. I've been drawn to the mountains ever since.

Two, there appears to be a vibrant Parkinson's community. The University of Colorado has the biggest DBS centers in the country. There will be plenty of support and help there from knowledgeable people.

Three, one of the reasons my daughter and son-in-law moved there was because it was listed as one of the best states for autism support. Being their older son has autism, that was a big draw for them. Likewise for us. While Texas isn't ranked as one of the worst, it is far from the best. Our oldest son, Nathaniel, has autism as well. We are hoping where the resources haven't been adequate in helping him become independent, Colorado will help. It certainly seems to have more resources there for him.

So for the above reasons, I'm willing to live with some financial uncertainty and the cold weather. It will be for us another venture in which we trust God to make a way for us. It will certainly be an adventure.

However, what this means for this blog is that it may be a while before I post another update. Depends on a lot of factors as to when that happens. Our current plan is if the house sells quickly (a lot depends on that) then we'll leave sometime between 9/15 and 10/1. Otherwise, I'll post new information when I have new information to post and when I have the time to do so.

Until then, pray for us if your the praying type. If your not, then whatever well-wishing you want to send our way will be appreciated. I thank each one of you for your support.

Plant-Based Diet, All the Way!

2018-06-26T21:14:00.000-05:00

My last post centered around how I would go on a plant-based diet to see how it might help my symptoms. After doing some more research, I know that I'm on the right track. Even if it doesn't help my Parkinson's symptoms, it will certainly be a more healthy way of eating.

There are many in our society who believe that a healthy diet includes some form of meat. Indeed, my wife often said, "Where's the meat in this meal?" If you look at the FDA food recommendations, they all suggest that eating meat is a healthy thing to do. We've been convinced, primarily by our culture, spurred on by the meat and dairy lobbies, that eating meat is an essential and necessary part of our diet.

But is it really?

Now, I've heard people say in response to my pronouncement that I'm going plant based, something along the lines of "I could never give up meat, or cheese, or eggs."

Let me, in all sincerity, ask you: even if it would save your life? Even if you suffer a heart attack? Are you aware that heart disease has been proven, not merely speculated, but proven to actually be REVERSED when people go on a plant-based diet?

Here's the truth of the matter. Heart disease and cancer are our number one and two, respectively, killers in the Western world. In places that haven't yet adopted a Western diet, like Kenya, they have a near non-existent death rate of heart disease and cancer. Study after study, as a matter of fact, every single study ever done on this topic, were talking clinical controlled studies, all show without exception that anyone who eats meat has a much, much higher chance of cardiovascular disease and cancer than those who are on a plant based diet. There are no studies anyone can point to that show that eating meat has a lower risk of heart disease and cancer. The studies that purport to do so are ones funded by the meat and diary association, and are relative to a much worse diet. But anytime eating plant-based is compared to eating animal products, the result is always the same: a marked absence of heart disease and cancer rates in those eating plant-based diets.

I don't care how much you like cheese, eggs, and a steak. Is it really worth the risk of dying earlier than you would have? Do you seriously want to indulge in those things knowing you'll most likely be leaving before your grandchildren or great-grandchildren are born? What exactly are you willing to sacrifice to stay eating meat, dairy, and eggs?

Now, I understand. Sometimes, due to eating necessity, one must eat some meat or other such bad thing. But more and more I'm loathing doing so. That's because I know what it is doing to my body. This past week, my daughter and her family were staying with us. We had a great time. Still, I was forced to eat stuff I would not normally eat. And I could tell the difference. Sugar out the ying-yang. Processed foods containing who knows what. I drew the line at drinking real milk (otherwise known as a pregnant cow's estrogen-laden party). But I felt the differnece in my body. My Parkinson's symptoms even got worse. So much so that I had to turn my left side up one notch on my DBS controller because my left hand felt stiffer than it had.

Now my diet isn't perfect by far. That said, I always recall Dr. Gregor's advice about eating meat on occasion: when you eat some meat, it is like kicking your shin against something, hurting it. Left alone, it will heal in time. But if you keep kicking it over and over again, three times a day, it will never heal, only get worse.

I can hear someone say, "But grandpa lived to be 120 years old smoking and eating eggs and bacon every morning."

One can always find an exception to the rule. The question is, are you willing to bet your life that you will be one of the few, one of the rare cases when it doesn't affect you? That is a serious question. If you are willing to die of a heart attack, cancer, or deal with diabetes, eat that steak, gouge on those eggs. That is the sure route to end up later in life with a heart attack, cancer, diabetes, or all three.

As a matter of fact, the evidence is so overwhelming that eating meat and dairy will kill you, the Surgeon General should force meat and cheese producers to put a warning on all their products that eating this can cause you to die early of a heart attack or cancer. He did if for cigarettes, he should do it for meat and dairy. Because that's how serious this is. Lung cancer from cigarettes is minimal compared to the cancer risk from eating animal products day in and day out.

But he won't because the meat and dairy lobbies are too powerful and entrenched. But that is what should happen if we seriously followed the science.

God created us herbivores, not omnivores.

My Parkinson's Life Style Eating Plan

2018-05-11T00:29:00.000-05:00

I’ve been on the Keto diet, as well as several other Paleo and plant-based diets in hopes they would help my Parkinson’s symptoms. When my wife and I decided to get serious with our eating life style again, we looked at our options and our focus turned back to doing the Dr. Wahl’s version of the Paleo diet which we tried for several months on her first level. Her third level was a combination of paleo and Keto. I had been on a Keto diet before, so I decided to give it a go. Then I started researching it all again, and I realized that the Keto diet wasn’t the way to go. Indeed, a plant-based diet has all the science behind it. So, I took what I discovered concerning a plant-based diet, as well as some key parts of the Wahl’s Paleo diet, and put together the following guidelines that I plan to find out if it helps my Parkinson’s symptoms.

You may ask, “If you currently aren’t on any medications and your symptoms are currently being controlled by your Deep Brain Stimulation device, how are you going to know if it helps or not?”

Good question. Mainly I’ll discover if it helps when I switch my programs on my DBS remote. I currently have two settings, a high one and a low setting. The low setting is when I need more fine control of my movements such as when I do Zumba, whereas the higher setting deals with my symptoms better. Also, I use the lower setting when I sleep, otherwise I toss and turn all night, sometimes beating up my wife, and I get very little deep sleep. Whenever I change the program, there is around 3-5 seconds when I’m not getting any stimulation at all and I’ll usually shake during that time. That’s when I’ll be able to key in on it. If I start to show some noticeable signs of improvement, I may experiment with turning the system off to see what happens—of course with my wife around so she can turn it back on for me if I’m shaking too badly. So that would be how I can tell how much it is effecting me.

I’ve intentionally avoided quoting a lot of studies and sources in this article. That’s because: 1. I wanted to simply tell what I was doing. 2. I know that anyone can search on the Internet any of this information and find what I’ve found. So I’m going to avoid citing my sources, not because I’ve got anything to hide, but I hope this will motivate you to do your own research and come up with your own conclusions. However, I will give you one site to start your research on: http://nutritionfacts.org. There are a bunch of informative, short videos on that site, which break down what scientific studies have said about nutrition. Do a search on a topic of your choice, like “Parkinson’s.” That is a good facts-based source of information to learn more about the science behind a plant-based diet.

Consequently, I’ve been working on developing an eating plan, otherwise known as a diet, that addresses two major concerns: 1. My health going forward, especially as it relates to Parkinson’s Disease, and 2. My wife’s weight loss goals, while keeping my own weight at an optimal level, around 150 lbs., give or take 5 lbs.

The main objective to accomplish these goals will be to eat healthy. It is my premise that eating healthy will resolve most of these goals, as well as others. But what does eating healthy mean in this context?

I should add that this is what I believe will work best for me. I’m not recommending this as a diet to any specific person, though I believe in general it will be a good diet for the majority of people. However, none of this should be taken as medical advice for a specific situation or person. I’m not a therapist or a nutritionist. Any changes in your diet should be done in conjunction with your doctor’s knowledge and advice.

Based on my research, eating healthy involves the following objectives: 1. It avoids and/or minimizes added sugar intake. 2. Avoid and/or minimize processed foods, save for those with a simple and whole food list of ingredients. 3. Avoid meat, save for special occasions (such as special feast days, anniversary, birthdays, etc.) 4. Avoid dairy, eggs, and cheese. 5. Focus instead on approximately: 3 cups of fruit, 3 cups of greens, and 3 cups of colorful veggies. 6. Eat around 1 cup of beans a day. 7. Moderate use of whole grains. 8. Moderate use of “good” oil. Let’s break that down.

1. Avoid and/or minimize added sugar intake.

I won’t go into this one much. Almost everyone knows that eating added sugar to things is bad, even if those same people tend to eat it anyway. It is a primary cause of inflammation, and a contributing cause of extra calories, obesity, type two diabetes, and heart disease. Almost all diets plans restrict sugar, and many try to totally eliminate it. Long gone are the days when “Super Sugar Crisp” was a great marketing strategy. They changed it during the 80s to “Super Golden Crisps” even though it had the same ingredients.

That said, we do need glucose to survive. Our body is designed to run on it. However, there is enough in our regular diet to give the amount of glucose to accomplish that goal. So that’s why I’ve said to minimize added sugars. That is, sugar found in fruit and some vegetables is okay. Just avoid spooning, refined or otherwise, sugar into what you eat. Also, avoid any foods where sugar has been added, even nut milks at the store.

That said, sugar has been given a bit of a bum rap. Many think that by eliminating sugar from one’s diet, that will be enough to lose weight. However, sugar isn’t the biggest culprit in the “Battle of the Bulge.”

2. Avoid and minimize processed foods, save for those with a simple list of whole food ingredients.

Processed foods is another no-brainer. All you need to do is look on a list of ingredients to see how much bad stuff they tend to put into these things. All sorts of chemicals, natural flavors which is a word for “we’re not going to tell you what we’re putting in here, but hey, they’re natural! So is poison ivy, but they had better not put that in their product. From fructose corn syrup, to hydrogenated oils, to all those preservatives and other chemicals they throw in there to make their product more palatable and keep it from rotting on the store shelves, we need to avoid them. With the advent of processed foods in the 60s, American’s have grown worse and worse in their health. There is good reason to believe processed foods have played a big part in that downward spiral.

“But Rick, I don’t always have time to cook that meal.”

I understand. That’s why I said to “avoid” and “minimize” your exposure to these foods. So I’m not saying stay away from them 100%. Rather there are times when we need to be able to grab something on the go, and we don’t have time to cook. When that happens, I’d suggest looking at the label ingredients on anything you buy and buy the best possible product. Then use it sparingly as a last option, so that it is a small percentage of your total intake for the day.

For instance, if you don’t normally have time to get a bowl of oatmeal or other healthy breakfast, you may find a breakfast bar with ingredients in it that will work on your plan. But if you do have the time one morning, eat the bowl of oatmeal instead.

“So I can eat lots of Fritos and potato chips because they have simple ingredients?” Well, not really. Mainly because of the type of oils they use. That said, those two are much better for you than the flavored varieties or the majority of other chips that add in a lot of chemicals.

3. Avoid meat, save for special occasions.

This and the next one may be more of a challenge for many. Eating meat has been such a daily event for most of us since we were young, we’ve grown up firmly believing we should eat meat at every meal. But the truth is, until recently in human history, meat was a special occasion meal. Most of what our ancestors ate was berries and vegetables. That’s because meat would spoil pretty quickly after killing it. They didn’t have things like refrigerators. The best they could do is to turn it into jerky.

Remember the Biblical story of when the Prodigal Son returned home? What did the father command to be done? “Go thrash some wheat and make a special loaf of bread!” No, he called for the fatted calf to be killed so that they could celebrate. That indicates they didn’t tend to have meat on the menu except for those special occasions. That was the norm even when meat was available.

But why? I know the Paleo folks and the Keto folks would tend to disagree. All you have to do is to look at the science to know why. 1. Meat, all meat, has a chemical in it (I believe it is called Lacten if my memory serves me correctly.) This chemical will accelerate the aging process in a person. So every time you dig into that steak or chicken, you are speeding up your aging process. 2. Most all meat is infested with pesticides from the grains they are fed. Even some meats labeled grass fed and free range are shown to contain pesticides once tested.

Being that pesticides are one of the known causes of Parkinson’s, I don’t want to add anything into my system on a regular basis that adds to that destruction.

“But Rick, don’t you know that according to a study in 1990, that 99.99% of all ‘pesticide’ were from plants and not man-made?”

Yep, sure do. This is the only study I’ll point to. You can find it at this link. The point it is making is that while we complain about all the man-made pesticides in our food, the bulk of them are natural to the plant. There are several points that can be made about this.

One, that the percentage is deceiving to a degree. First off, the definition of pesticide they are operating from is:

A pesticide is any chemical, natural or human-made, that is designed to kill another organism. Using that broad definition, there are probably hundreds of thousands of pesticides in the natural environment. Link

The list of natural pesticides is huge. So it is no wonder that our diet mainly contains those substances. However, that does not result in the effect of the other .09% being inconsequential. Indeed, due to the concentrated state of those pesticides compared to natural ones, their effect can be greatly magnified.

Two, if we go according to the study’s results, around half of the “pesticides” they found were “rodent carcinogenic”, which means that they were carcinogenic to rodents in a study. That means there are others that are non-carcinogenic, or even beneficial to us. So, for example, caffeine is listed as pesticide. An apple browning is listed as a pesticide. Even flavonoids, which we know are good for us, but because they kill other bad things by oxidizing them, were considered a pesticide. So the list isn’t as big as they make it out to be. That 1.5 grams of estimated daily intake of natural pesticides would be cut to 0.75 if what they say is true. Given the first point, it is clear that they man-made pesticides are more significant than the study lets on.

Three, quoting from the study itself:

Caution is necessary in interpreting the implications of the occurrence in the diet of natural pesticides that are rodent carcinogens. It is not argued here that these dietary exposures are necessarily of much relevance to human cancer. Indeed, a diet rich in fruit and vegetables is associated with lower cancer rates. This may be because anticarciogenic vitamins and antioxidants come from plants.

In other words, the amounts are so low that the nutrients in plants protect one from any negative effects of such carcinogens. Unfortunately, you don’t get that same benefit with meat, which is why there is statistically a much higher chance of getting cancer when you eat meat on a regular basis.

However, if natural as well as man-made pesticides are present in our food, how much more so for cows and chickens who are fed grass and free-range bugs and such. According to this study, they are eating and concentrating within themselves all those rodent carcinogenic pesticides they are eating, even if they are not getting any man-made ones.

This does not even go into the greater risk of heart disease and cancer that practically every study done on those who regularly consume meat face.

4. Avoid dairy, eggs, and cheese.

The science behind this is irrefutable. Dairy is bad for you on many levels due to the high saturated fat content, plus the hormones and antibiotics they shoot these animals up with. But the worse of these, especially as far as weight gain and health is concerned, is cheese. That’s because cheese is concentrated fat, around 70% fat, most of it being saturated fats. That is one of the worst kinds of fat.

Oh, I know. There are all sorts of people out there saying saturated fats are fine and in some cases good for you. But according to the science, they don’t have a leg to stand on. The “studies” they quote tend to be small studies or taken out of context. For instance, they cite a study of why the saturated fats in coconut oil isn’t bad for you because a pacific island ate it and they weren’t overweight. But, did the study take into account the other healthy foods they ate that would have offset any potential negative effects? Or did they eat the coconut as a snack rather than stuffing processed oil into their mouth, minus the fiber of the plant, which would have helped process the oil in their system?

Rather, in hundreds of studies, dealing with large groups over a long period of time (5+ years), they consistently show that eating high saturated fat leads to heart disease, weight gain, and diabetes, among other things. In addition, there is another study showing a population that doesn’t eat well also eating coconut oil, and they are obese. Does that prove that coconut oil isn’t good for you? No, no more than the other study shows it is good for you. But the studies that use coconut oil in a controlled setting? They all show it is bad for you.

But cheese, especially on pizza, is the biggest source of saturated fat in the nation. Also, there is a definite correlation between the amount of cheese eaten by Americans, and the level of obesity. Cheese is such a big culprit in this, that one doctor said if we eliminated this one thing from the American diet, we would solve the obesity problem in this country, along with several health problems.

But why is dairy so bad, then? Aside from high levels of saturated fats, (not as high as cheese, but still high), it is because of the cow’s hormones in the milk used for dairy products. Those hormones are there because, surprise, surprise, the cow has been pregnant! There are hormones that a young growing calf needs in its milk. Hormones that we need, for the first year or two of our life. But certainly not as teens or adults. Additionally, all those pesticides that the cow, or its parents, has/have been eating are in that milk.

The good news is that there are some good substitutes for milk. Aside from soy milk, there is also currently almond milk, cashew milk, coconut milk, flax milk, walnut milk, and I’m sure they are coming up with new ones as I write this. Much of it is good, some of it almost identical to the flavor and texture of cow’s milk.

Cheese substitutes are getting better, but still have a ways to go. Though daya is good enough to top a pizza. Eggs are another matter. You can find substitutes for recipes, but not to replace them in the frying pan or to hard boil them. Yet. Butter, however, one can find good substitutes for it, though one has to watch the ingredients to know whether it is truly good for you or not.

5. Focus instead on approximately. 3 cups of fruit, 3 cups of greens, and 3 cups of colorful veggies.

This is where you’ll get most of your nutrients. Fruit provides sweetness, vitamin C, as well as the flavinoids that provide your antioxidants. Same for the colorful veggies on the antioxidant front. The green veggies are needed for other nutrients, like you can get from kale, spinach, green beans, and the like.

This realization was key where it concerns Parkinson’s. I was reading the Wahl’s Paleo Diet book. She reversed her Multiple Sclerosis symptoms using her diet. I was about to seriously think about following that diet, despite what I knew above about meat. Then I watched a video on nutrition.org, about Parkinson’s and flavinoids. It was pointing out that the free radicals that attack the brains of PD patients are likely treatable with these types of fruits and vegetables. The antioxidants found in fruit like blueberries and grapes, as well as beets and various colored peppers, were shown to enable sick and near dying cells to come to life in a petri dish and in mice studies.

It then dawned on me that Dr. Wahl’s symptomatic reversal may have had little to do with eating meat and more about eating these flavonoids. That’s when I decided to go to a plant-based diet in order to deal with my Parkinson’s.

6. Eat around 1 cup of beans a day.

Despite what you may have heard about beans being toxic, that’s only if you don’t soak and cook them. Indeed, beans supply plenty of protein and other vital nutrients your body needs. So soak, cook, and eat those fiber rich beans. Sprinkle them on salads, along with some nuts and seeds. They are good for you.

7. Moderate use of whole grains.

Keto diets have been responsible for the vilification of whole grains. Yes, there is some nasty bread out there, probably the majority of what you’ll find at your grocery store is suspect. They tend to use “Enriched flour” which at first sounds good. What it actually means, however, is due to the processing of the wheat, the vitamins and minerals were stripped from it. So they add some of them back in and call it “enriching” the flour.

You’ll also find that many of the breads contain suspect ingredients such as high fructose corn syrup and chemicals added in to preserve freshness and make the bread “fluffier” and otherwise more appealing. Yes, I’d recommend reading labels and avoiding such bread. If that’s the only bread you can get, then it is better to not eat bread.

However, bread made with whole grains and simple ingredients is good for you. “But they’re carbs,” I can hear you say. “That’s a starch that will turn into sugar, and we all know sugar isn’t good for you!”

The problem with that statement is it isn’t totally in scientific context. For one thing, unless you are in ketosis, you need glucose flowing though you veins to survive. That’s because your brain runs on the stuff. It doesn’t have the ability to use fat. Which is why you have to be in ketosis for the Keto diet to work. The rest of your body can use the fat it stores in its cells, but your brain’s only fuel, if it doesn’t have glucose, is its backup: ketones.

So, unless you are on a keto diet and are in ketosis, it is essential that you have an adequate supply of glucose available for your body, but especially for your brain, to operate on. Otherwise, you’re dead.

And the complex carbs are the best way to get that fuel for your brain and body. Why not just eat spoonfuls of sugar to get that glucose? It is because it will give you too much glucose, too quickly. In order for your body to convert that starch into glucose, it first has to break down the molecules, using up around 25% of its calories in the process. Plus, whole grains provide your body much needed nutrients and fiber as well.

So, what is a “moderate” amount of bread? Good question, since moderate is a relative term. What I mean by that is you don’t want to pig out on bread. Even if you eat whole grains, if you eat too much of them, you can get a glucose spike. A serving once or a couple of times a day isn’t overdoing it, in my thinking. Much higher and you’ll be getting too much starch in your system.

About the only bread on the market that you might find in the bread section that I would recommend is “Dave’s Killer Bread” line. Check it out if it is available in your area, you’ll see what I mean. Another good bread is “Ezekiel Bread,” which you can find in the frozen section of your grocery store. What you want to look for is that it contains “100% whole grains” and is organically grown and non-GMO. If you can’t find it at the grocery store, you can always make it yourself using 100% whole grain, organic, and non-GMO flour.

Jesus said He is the “Bread of Life.” If he equated himself with bread, then it has to be needed for our physical, as well as spiritual life.

8. Moderate use of “good” oil.

There are two considerations on this one. Again, what does “moderate” mean in this context, and what what are “good” oils? The first one is easier to nail down. It is less than 30 grams of fat per day. Or, to put it differently, around 20% of your total calorie intake. No need to measure it out unless you simply want to get an idea how much that is for you. Rather, I would suggest that you simply keep away from fried foods and use oil very sparingly in cooking, preferring instead to use a little water.

So, what are “good” oils? I would suggest that most, if not all, your oil be derived from plants. That would be olives, avocados, walnuts, flax, chia seeds, as well as other nuts and seeds, including coconuts. Note: this is actually eating these foods, not talking about bottles of oil extracted from those sources. Two reasons for this.

One, if you eat the oil along with the fruit, nuts, etc., you get the oil delivered the way nature intended, which fills you up quicker so overall you’ll get less oil than you would if you poured oil into the pan for cooking.

Two, the roughage that you get with fruit, which is absent in a bottle of oil, slows the total absorption of oil into your system and enhances your gut ecosystem. Additionally, the plant oils all contain healthy oils, especially omega-3 oils known to be an oil that doesn’t negatively effect your body when used in moderation. Indeed, you’ll need some oil in your system to be healthy.

“But what about coconut oil, which is predominantly saturated fat? Didn’t you use to eat a lot of it earlier in your Parkinson’s journey?” Why, yes I did. If you look back in the early entries in this blog, you can find where I posted that I ate 2-3 tbs. of it in my morning bowl of oatmeal at the time. I discontinued that mainly because I failed to see any benefit from it for me personally. Also, last year when I was on the Keto diet, I added a tbs. of it in my morning coffee, along with butter and heavy whipping cream, mainly because I needed the fat calories to maintain my weight. Now that I’m back to a carb-based diet, that would be way too much of any kind of oil.

Anyway, there is a lot of pro-coconut oil, as well as anti-coconut oil, people who may read this. I don’t want to get into it here, whether it is worth eating or not. On this diet, I’ll use it when it is appropriate, but if you eat it as coconut flesh and not as pure oil as I stated above, any potential negative effects from it will be mitigated. If you believe it is good for you, well, you don’t have to follow this diet. You are free to do what you want to do. But there is no scientific evidence that coconut oil is good for you, some case studies show that it is bad for you. I’m basing this on the best science that I can dig up. So I don’t plan on eating a lot of it. Most of it will be when I need to cook and the substitute butter I use contains it. In my case, very little.

I will use olive oil on my salads. I’ve read that due to compounds in it that heat turns into negative substances, I will probably avoid using it for cooking, but it has some good omega-3 oils that are beneficial, so on my salads it will go! I will add, though, that the majority of my oils will be from the foods themselves, not from a bottle of oil.

That’s it. My Parkinson’s Life Style Eating Plan. What do you think about it? What are its chances of helping my symptoms? Time will tell!

An Update of the Update of My Update

2018-03-26T18:04:00.000-05:00

Here is the promised video blog containing my new choreography for Numa Numa Lei! Need I say more? Here's the vblog, v-dog. <g>

Go to https://www.youtube.com/Gsi2OS8BRJU in order to view this video

Overdue for an Update

2018-03-23T00:22:00.000-05:00

Hi everyone. Yep, I've been busy of late. That's mainly why I've not put out a new update for a while. So I thought I would put up this brief update. No video, though I do have some video of me doing choreography to Numa Numa. And no, before anyone asks, it isn't me pumping my hands up and down and swaying back and forth, as funny as that would be to see. (New chair Zumba, anyone?)

Nope, this is real Zumba choreo that I created. I plan on revealing it at the Zumbathon.

Oh, you haven't heard about that? Well, let me fill you in as it is directly tied to the purpose of this blog.

First, what is a Zumbathon? It is a "marathon" Zumba dancercise in order to raise money for a cause. I'm hosting this Zumbathon at the Cottonwood Shores Community Center and Park: 4111 Cottonwood Dr., Cottonwood Shores, TX.

The "cause" I'm doing it for is to raise money for the Burnet County Parkinson's Support Group, to give them funds to do more programs and the like. Everyone who can come is welcome. There is a suggested donation (IOW, you don't have to donate, but put in whatever you are able) of $15.00 per person. It is scheduled to take place on 4/21/2018, from 2 to 4 pm. Come for the whole thing, leave early, or come late. Whatever you are able to do.

Leading the dances will be yours truely, Amanda Jaynes from the Burnet Y, and Meredith Jowers from the Rockport Y (formerly also from the Burnet Y too). In addition to us three, we may have a couple (or more) special guest Zumba leaders join us. So if you're in the area or can be on that Saturday afternoon, we'd love to have you come dance with us and support our cause!

Okay, so there is that. What else? Well, on my DBS progress, that is coming along nicely. I've become smoother in my motions more and more. The doctor told me it would take 3 to 6 months for the swelling in my brain to go down from the surgery. On the 29th of this month, it will officially be 6 months. So aside from some minor smoothing out of my motions, I guess this is about as good as it is going to get. How good? Well, I'll save that for the next video.

I've made some fine tuning of my settings recently, but am still not on any medications. I find it amazing still that if I turned off my unit, I would be a crazy shaking person. Instead, I'm typing right now about as smooth as I ever have. And the cool thing is I'm this way all the time, every day! Sometimes I almost forget I have Parkinsons.

I did have one minor set back of late. Not even sure I should call it a setback as I don't know for sure if it affected me at all. I was going to change out a light bulb over the washer and dryer, which are in a closet area of a room in the house. So I set up the step stool and ascend it, only to have my head bump full speed into a door frame of where the doors would be if it were a closet.

It hurt, and I almost fell off, but instead ended up sitting on the bed (yep, the guest room is also our laundry room, weird house for sure). I waited to see if anything would happen. Upon feeling the top of my head where it hurt, I could tell I'd scratched it up pretty good. Luckily, it missed the spots where the appliances were installed, so no damage there. That would have been the worse case scenario, potentially requiring surgery to fix whatever might have been busted. The only other thing I was worried about was potential swelling of that area of the brain. I haven't noticed any changes in my thinking or ability to move. So I think the fluid around the brain did its job in protecting it.

At any rate, I believed I dodged that bullet. I worry about what might happen if the appliances ever take a direct hit. Could even shift the leads enough to make them ineffective. I also scratch my head more where the wire goes down along the left side of my head. I worry if I could scratch enough that a hole appears and exposes the wire. I know logically that isn't likely to happen, but I still worry about it.

There are only two PD symptoms to date that DBS hasn't had any effect on. One, my runny nose. I had a constantly runny nose ever since the fall of 2012 when I first started showing signs of getting PD. I had a cold at the time, the cold ended but the runny nose didn't. And even though I've not had any cold since (thanks to the Vit C I take nearly every day, and the Zinc) my nose runs almost constantly. Some days are better than others, but I always have a box of kleenex next to me at my desk.

At any rate, this is a symptom that the drugs didn't even help with. The doctor at first thought it was allergies, but that medication didn't help relieve it. Then I ran across a study saying around 60% of PD patients also have runny noses. But it makes sense that this very non-motor symptom would still be there, being that DBS only helps with motor symptoms.

Some motorish symptoms, like constipation, I was also warned DBS might not affect. However, in that area DBS has definitely improved. I still take magnesium to aid in other areas, but I don't have any serious constipation problems anymore. Your mileage may vary if you have PD.

However, another motorish symptom hasn't been helped by PD. That is swallowing. Now, I do have pretty good swallows. My main area has been in taking pills where problems occured. Even that has improved some, and I usually now take them with Walnut milk, which has Omega-3 oils in them, which helps to not only provide more "slide" but also is thicker than water, so it makes the pills easier to swallow.

Where it is most evident, however, is in drooling. Everyonce in a while, I find myself trying to slurp drool back into my mouth. Doesn't happen all the time, so I guess normally it isn't a big problem. However, on occasion, it escapes! This is a symptom I know the carbadop/levadopa took care of. I could gage it I was overdue on my meds before on whether I would start drooling.

So the DBS has had some effect on that symptom as well. If it didn't, I'd be a drooling fool for sure. But it isn't 100% as good as the medications. I can hear my speech therapist saying, "Swallowing exercises." Yep, I need to do more of those to strengthen those muscles. I know that would help.

Other than those two things, however, I feel pretty normal most of the time. The only time it shows up more is when I'm playing pickle ball. I have it turned down as low as I dare to increase my ability to move smoother and play smoother, so the stress of playing often has my right arm tremoring somewhat. What they call "break-through tremors." But that happens to some extent (just not as bad) when it is up higher and I'm holding anything with my right hand. For some reason, that activates some tremors. If I'm not holding anything, it is steady. So since I'm holding the racket in my right hand, it would make sense that it would tremor somewhat. Once I start moving my right arm, though, it goes away.

Though I've wondered if that is also due in part to brain swelling. Mainly I say that because lately I've noticed at my regular setting, that it doesn't happen as much. I just picked up a pin and held it out, and no tremors. Before, it would have started tremoring. So that is some of the fine tuning that is happening as the remaining bit of brain swelling goes down.

On the cataract surgery side of things, nothing new to report there. I can still see great out of that eye. Good as new! Thank goodness.

The other news is the progress on my work. I probably mentioned that I started adding window washing to my wife's cleaning business back in December. Since then, work has gradually started to pick up. I just did a 2 hour job today. (Actually, yesterday as it is officially 12:04 am.) I did a full day job earlier this week, and a pressure washing job about mid-week. So work is coming in. Business is growing. I have an ad coming out in the local paper soon that is scheduled to run for 7 weeks. So that is likely to generate some extra work. It had better! I need that to pay for the ad.

Also, I'm zeroing in on getting two new books ready to publish, hopefully a fiction book by the end of the summer. It will be the forth and final installment of my Virtual Chronicles series. The first three are: Mind Game, Hero Game, and Virtual Game. This one will be Reality Game. The other one will be a religious non-fiction book that I hope to get published through a publisher, called: Looking into the Christian Orthodox Church. It is basically a book designed for Orthodox inquirers and answers some of their questions. Very limited audience, I'll admit. But it is a book that has been on my mind to put together long before I started writing fiction in 2005. Figured I needed to get this out now if I was going to do it, since who knows how long I'll be able to write once the DBS isn't able to keep me stable enough.

So that's my "brief" update. Yea, yea, I know. Not so brief. But I'll have more, including me dancing on my next video when it comes out. Hopefully next week. Until then, imagine the unimaginable! (My favorite saying from my new book.)

My Parkinson's Journey: DBS and Cataract Surgeries Update

2017-12-18T17:56:00.000-06:00

I've delayed getting an update on my cataract surgery. Not because of anything bad happening, but just real busy it seems. So here it is, without further notice, here is my video!

I'm Doing Great So Far.

2017-12-01T07:00:00.001-06:00

I've been doing great!

Just wanted to give everyone a heads up who has been following this blog. I can tell, so very slowly, that I'm getting more stable. Still doing steady enough and can type well enough, that I just finished around 25K words on my novel during the second half of November. Woot!

But still not quite good enough to do Zumba. But I can tell when I helped vacuum at a job the other evening, that wasn't quite as erratic in vacuuming as I was the time before. So there is some progress, however minor it may be. I was actually encouraged by a study on DBS. They wanted to see what people's experiences were before and after DBS surgery. The evaluated them shortly before their DBS surgery, but then waited between 9 and 12 months after their surgery before evaluating them again. Supposedly, by the time that rolls around, a lot of the getting used to it and settling down of the extremities should have happened. IOW, in around 6 months, when my doctor says is the outside time frame when I can expect to be back to normal, is when, well, I can get back to my normal life before DBS, except without the tremors!

I'm also going to have my cataract surgery on Dec. 13th. Two Wednesdays from now. I'm praying that I'm not one of the very few who end up with any complications. I know it chances of happening are pretty slim, and most come away from it seeing great, but there is still that chance. It may not be brain surgery (had it, survived it), but it is eye surgery. So pray that everything goes well.

That's the updates for now. I'll be checking back in with you shortly after the 13th.

Later!

My Parkinson's Journey: Post Deep Brain Stimulation Update

2017-11-03T13:36:00.001-05:00

Hi. Time for another update. Some new news to report, as well as updating for old news.

https://www.youtube.com/embed/TURY-p53dOw

My PD Journey: Week 2 of DBS Programming

2017-10-17T19:33:00.000-05:00

After one week from, that place where the Devil shines, with my new DBS settings going crazy on me, I'm finally at a normal place since yesterday, returning to semi-normal, or about as close as I believe I ever could.

ON A CONTINUAL, CONSISTENT, BASIS! 24/7. ALL THE TIME!!

Sorry for yelling, but I'm so happy to be here!

On with today's video, so you can see for yourself!

https://www.youtube.com/embed/87GdBJCYfiw