<?xml version="1.0" encoding="UTF-8"?>
<?xml-stylesheet type="text/xsl" media="screen" href="/~d/styles/rss2full.xsl"?><?xml-stylesheet type="text/css" media="screen" href="http://feeds.feedburner.com/~d/styles/itemcontent.css"?><rss xmlns:atom="http://www.w3.org/2005/Atom" xmlns:openSearch="http://a9.com/-/spec/opensearch/1.1/" xmlns:georss="http://www.georss.org/georss" xmlns:gd="http://schemas.google.com/g/2005" xmlns:thr="http://purl.org/syndication/thread/1.0" xmlns:feedburner="http://rssnamespace.org/feedburner/ext/1.0" version="2.0"><channel><atom:id>tag:blogger.com,1999:blog-5259260234139265601</atom:id><lastBuildDate>Thu, 16 Feb 2012 15:40:07 +0000</lastBuildDate><category>orthostatic intolerance</category><category>laser energetic detox</category><category>organic acids</category><category>toxins</category><category>cobalamin</category><category>mood</category><category>infection</category><category>ONOO</category><category>PEM</category><category>metals</category><category>colon cleansing</category><category>CIRS</category><category>VIP</category><category>ME</category><category>dysbiosis</category><category>modifilan</category><category>adrenal stress</category><category>Kapel</category><category>EDTA</category><category>anti-virals</category><category>LED</category><category>virus reactivation</category><category>inflammation</category><category>sinusitis</category><category>PTSD</category><category>folic acid</category><category>low dose naltrexone</category><category>folate</category><category>autism</category><category>camping</category><category>detoxification</category><category>amino acids</category><category>housing</category><category>restless leg syndrome</category><category>methylation</category><category>lyme</category><category>MCS</category><category>CMS</category><category>chelation</category><category>simplified Yasko</category><category>variable symptoms</category><category>coxsackie</category><category>glycine</category><category>Dr. Rea</category><category>homeopathy</category><category>SAM-e</category><category>biotoxin</category><category>sauna</category><category>nutrition</category><category>biofilm</category><category>chlorella</category><category>glutathione</category><category>CFS</category><category>Trivedi</category><category>supplements</category><category>cardiac symptoms</category><category>bowel</category><category>disability</category><category>hypnosis</category><category>yoga</category><category>emotions</category><category>NO</category><category>tongue analysis</category><category>growth hormone</category><category>hair analysis</category><category>B12</category><category>neurotoxin</category><category>environmental illness</category><category>unmasking</category><category>fingernail analysis</category><category>fatigue</category><category>B-12</category><category>body temperature average</category><category>neural therapy</category><category>mold</category><category>B-6</category><category>stress</category><category>personal</category><category>dysautonomia</category><category>immune dysfunction</category><category>HGH</category><category>DMPS</category><category>thyroid</category><category>chemical sensitivity</category><category>Shoemaker</category><category>minerals</category><category>allergies</category><category>energy</category><category>insomnia</category><category>NDF</category><category>TILT</category><category>aerobic exercise</category><category>Rich Van Konynenberg</category><category>immune system</category><category>dust</category><category>POTS</category><category>natural healing</category><category>probiotics</category><category>CDC</category><title>Search for the Cure: My Healing Journey</title><description>Follow my experience as I explore new protocols for recovery from The Worst Illness Ever (also known as CFS, ME, CFIDS) which I contacted in 1987.  I've been unable to work since 1994, but I never give up hope. My posts are filled with information (I studied naturopathy in 1999-2003 to heal myself).  I hope you, your friends with ME-CFS, and your caretakers will learn something useful from my journey.</description><link>http://cfsmethylation.blogspot.com/</link><managingEditor>noreply@blogger.com (Janis)</managingEditor><generator>Blogger</generator><openSearch:totalResults>95</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><atom10:link xmlns:atom10="http://www.w3.org/2005/Atom" rel="self" type="application/rss+xml" href="http://feeds.feedburner.com/blogspot/tphz" /><feedburner:info uri="blogspot/tphz" /><atom10:link xmlns:atom10="http://www.w3.org/2005/Atom" rel="hub" href="http://pubsubhubbub.appspot.com/" /><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-5606415653277508299</guid><pubDate>Wed, 18 Jan 2012 03:52:00 +0000</pubDate><atom:updated>2012-01-17T22:52:30.668-05:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">toxins</category><category domain="http://www.blogger.com/atom/ns#">Shoemaker</category><category domain="http://www.blogger.com/atom/ns#">orthostatic intolerance</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">nutrition</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">Kapel</category><category domain="http://www.blogger.com/atom/ns#">Dr. Rea</category><category domain="http://www.blogger.com/atom/ns#">detoxification</category><title>Hypersensitivity and the practice of extreme avoidance</title><atom:summary>A friend loaned me Rea and Patel’s Reversibility of Chronic Degenerative Disease and Hypersensitivity, a thick, technical, soporific medical book which, when all the technical language is peeled away, has an interesting core of great personal relevance to me.
Over the past two weeks, since January 2, I have experienced a dramatic and traumatic transformation.  I started waking around 4 in the </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/A4WRaublzlI/hypersensitivity-and-practice-of.html</link><author>noreply@blogger.com (Janis)</author><thr:total>2</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/A4WRaublzlI" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2012/01/hypersensitivity-and-practice-of.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-6862643084162420089</guid><pubDate>Mon, 19 Dec 2011 04:01:00 +0000</pubDate><atom:updated>2011-12-18T23:01:30.602-05:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">energy</category><category domain="http://www.blogger.com/atom/ns#">Trivedi</category><category domain="http://www.blogger.com/atom/ns#">detoxification</category><title>Live from Phoenix</title><atom:summary>I’m writing live from the new Trivedi center in Scottsdale Arizona.  The energy here is tremendous, infused with joy and truth.  It’s an amazing experience to feel so good and so consistently over the course of the day.  I hope someday to feel this way 24/7 without Mr. Trivedi’s assistance, for the energy he transmits from the Divine is present for all of us all of the time.
I found a beautiful </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/KZUg3MVnen8/live-from-phoenix.html</link><author>noreply@blogger.com (Janis)</author><thr:total>2</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/KZUg3MVnen8" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/12/live-from-phoenix.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-6336560268358917931</guid><pubDate>Thu, 08 Dec 2011 05:59:00 +0000</pubDate><atom:updated>2011-12-08T01:03:24.209-05:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><title>Back to Baseline</title><atom:summary>It took about two weeks to recover from the debacle with the house I tried to rent in Tucson.  In retrospect, I should not have stayed and slept on the porch.  I should have picked myself up and left the next morning.  If I had, I would have recovered in a day or two.
The first few days back in Desert Hot Springs were difficult.  We arrived on Thanksgiving Day, noted the cool and brisk wind as we</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/LZXl7E-AHNo/back-to-baseline.html</link><author>noreply@blogger.com (Janis)</author><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/LZXl7E-AHNo" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/12/back-to-baseline.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-1449258910106526577</guid><pubDate>Fri, 25 Nov 2011 06:38:00 +0000</pubDate><atom:updated>2011-11-25T01:38:09.420-05:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">TILT</category><category domain="http://www.blogger.com/atom/ns#">MCS</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">housing</category><category domain="http://www.blogger.com/atom/ns#">dust</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><title>Learning about contamination</title><atom:summary>40 days and 40 nights in the deserts of New Mexico, Arizona, and California.   But take off the zeros and you have the number of nights I suffered in Kristi’s house in the country SW of Tucson before I wised up and got myself to a safe place.  That place was the beautiful Gilbert Ray campground in Tucson  Mountain Park, populated by tall saguaro cacti, squat barrel cacti, teddy bear cacti (not </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/mGanRNUfsv8/learning-about-contamination.html</link><author>noreply@blogger.com (Janis)</author><thr:total>5</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/mGanRNUfsv8" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/11/learning-about-contamination.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-5784738117822218889</guid><pubDate>Wed, 16 Nov 2011 02:40:00 +0000</pubDate><atom:updated>2011-11-15T21:40:01.373-05:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">ME</category><category domain="http://www.blogger.com/atom/ns#">cardiac symptoms</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><category domain="http://www.blogger.com/atom/ns#">detoxification</category><title>Strong and vigorous, or weak and tremulous</title><atom:summary>Imagine feeling great when it’s cold outside.  To warm up you get in the baths or the sauna.  You sweat, you drink lots of water, you detox.  You come out feeling warm and less toxic, and the effect lasts for several hours.  If you’re lucky, the desert sun warms the chaise lounges by pool enough to lie outside in your bathing suit until 3 or 4 pm.  You make dinner with a floodlight if the weather</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/bzuZXSyXudU/strong-and-vigorous-or-weak-and.html</link><author>noreply@blogger.com (Janis)</author><thr:total>3</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/bzuZXSyXudU" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/11/strong-and-vigorous-or-weak-and.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-1111045299783127848</guid><pubDate>Thu, 10 Nov 2011 16:10:00 +0000</pubDate><atom:updated>2011-11-10T11:10:55.387-05:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">ME</category><category domain="http://www.blogger.com/atom/ns#">adrenal stress</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">detoxification</category><title>A reply to comments</title><atom:summary>I thought I’d take up the challenge of answering Karen J.  She wrote, in comments to my most recent blog, 
You "felt the lethargy and fatigue of" your "WORST CFS", so you took a swim, did some yoga, and were still tired?  Can you see what's wrong with the picture Janis? Seriously. Talk about stressing or overstressing your overstressed, overtaxed adrenals.
I still don't know what you're running </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/EYuM2ozxCyI/reply-to-comments.html</link><author>noreply@blogger.com (Janis)</author><thr:total>2</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/EYuM2ozxCyI" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/11/reply-to-comments.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-8833726634637186639</guid><pubDate>Sat, 29 Oct 2011 16:50:00 +0000</pubDate><atom:updated>2011-10-29T12:50:57.963-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">MCS</category><category domain="http://www.blogger.com/atom/ns#">orthostatic intolerance</category><category domain="http://www.blogger.com/atom/ns#">fatigue</category><category domain="http://www.blogger.com/atom/ns#">environmental illness</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><title>What a Crazy Illness!</title><atom:summary>

Sunset my last night at City of Rocks, NM

My stuffed nose disappeared the last day at City of Rocks.  Four days in the desert to clear up and acclimate!  I felt so good in the morning that I took a hike up the camp road at sunrise.  
Surprise!  Just because I feel energetic and strong doesn’t mean I can do anything aerobic—at least not yet.  I was pretty wiped out by the time I reached the top</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/ZrXKj-VvOY0/what-crazy-illness.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://2.bp.blogspot.com/-c0C-BEI-S8w/TqwtRXAzIlI/AAAAAAAAAPg/gDPRnRCIJe4/s72-c/NM+AZ+008.JPG" height="72" width="72" /><thr:total>4</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/ZrXKj-VvOY0" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/what-crazy-illness.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-391841431654229740</guid><pubDate>Mon, 24 Oct 2011 21:21:00 +0000</pubDate><atom:updated>2011-10-24T17:21:00.262-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">Shoemaker</category><category domain="http://www.blogger.com/atom/ns#">MCS</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">VIP</category><category domain="http://www.blogger.com/atom/ns#">CMS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">biotoxin</category><title>VIP, a very important peptide in CFS</title><atom:summary>You probably don’t have enough VIP.  98% of people with CFS don’t.  The MCS crowd hasn’t yet been testing, but when you learn what this neuropeptide does, you’ll probably surmise that low levels play a big role in that syndrome as well.
I’ve been thinking of going to Dr. Rea for allergy testing and environmental evaluation since I’m only about 3 hours from Dallas.  When I read that VIP, </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/tskyAO2k2oc/vip-very-important-peptide-in-cfs.html</link><author>noreply@blogger.com (Janis)</author><thr:total>1</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/tskyAO2k2oc" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/vip-very-important-peptide-in-cfs.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-5147121871174795285</guid><pubDate>Fri, 21 Oct 2011 21:21:00 +0000</pubDate><atom:updated>2011-10-21T17:21:19.417-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">MCS</category><category domain="http://www.blogger.com/atom/ns#">allergies</category><category domain="http://www.blogger.com/atom/ns#">unmasking</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><title>Eye Candy</title><atom:summary>I wanted to take a thousand pictures over the last four days as I travelled from Dallas through Cache, Oklahoma, across the Texas panhandle, and through the mountains of New Mexico, but my camera was tucked away in my suitcase, which was buried in the tightly packed trunk.  So I have only pictures of the beautiful park in which I am currently spending my days:  a park in SW New Mexico known The </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/ICzPEz77mUo/eye-candy.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://3.bp.blogspot.com/-vTratXofxck/TqHhXsTXXwI/AAAAAAAAAPI/Gwr2HxmHLJU/s72-c/NM+City+of+Rocks+009.JPG" height="72" width="72" /><thr:total>2</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/ICzPEz77mUo" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/eye-candy.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-245335051877984814</guid><pubDate>Mon, 17 Oct 2011 11:05:00 +0000</pubDate><atom:updated>2011-10-17T07:05:39.885-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">MCS</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><category domain="http://www.blogger.com/atom/ns#">chemical sensitivity</category><title>Mold Hit</title><atom:summary>I was really stupid.  But my lax act was also due to the impact of mold on my brain.
Let me explain.
It rained.  I had a plastic tarp under my tent, separating it from the asphalt driveway.  After a rain, I normally take down the tent, hang the tarp on the line, and air out the bottom of the tent in the sun.  I say “I normally”, but truthfully, my role has been to remind David to do this. And </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/3xPFUDggUHg/mold-hit.html</link><author>noreply@blogger.com (Janis)</author><thr:total>1</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/3xPFUDggUHg" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/mold-hit.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-3036530672173896770</guid><pubDate>Tue, 11 Oct 2011 16:59:00 +0000</pubDate><atom:updated>2011-10-11T12:59:47.907-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">orthostatic intolerance</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><title>My next seven days camping alone in Oklahoma</title><atom:summary>During my next seven days camping alone in Oklahoma, my sinus drainage clears up, I stop and start cholestyramine, I question whether camping is doing me any good, and I long for a clean, dry house with plumbing and electric stove.
Once I adjusted to being alone, I had one glorious daywhere I woke with a clear nose and no more headache.  I dozed off for an extra hour, did the breakfast, water </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/CXqi9orbChw/my-next-seven-days-camping-alone-in.html</link><author>noreply@blogger.com (Janis)</author><thr:total>1</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/CXqi9orbChw" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/my-next-seven-days-camping-alone-in.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-8774419939878571650</guid><pubDate>Wed, 05 Oct 2011 00:56:00 +0000</pubDate><atom:updated>2011-10-04T20:56:38.660-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">sinusitis</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><title>My first three days alone</title><atom:summary>Day One (Saturday)I dropped David at the airport at 3 pm and soon felt a mix of emotions, turned off the radio, and tried to stay present as I drove through town looking for a place to pick up wifi.  The principle feeling was sadness, which I felt as heaviness in my heart.  I already miss David.  
I also felt some excitement.  Camping alone will be a huge challenge for me, as I’m not an </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/nHD_5whCL0g/my-first-three-days-alone.html</link><author>noreply@blogger.com (Janis)</author><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/nHD_5whCL0g" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/my-first-three-days-alone.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-3579702964931220362</guid><pubDate>Sun, 02 Oct 2011 15:59:00 +0000</pubDate><atom:updated>2011-10-02T11:59:47.693-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">MCS</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><category domain="http://www.blogger.com/atom/ns#">detoxification</category><title>Challenges and Disappointments during week one</title><atom:summary>Our first destination in Oklahoma was Osage Hills State Park.  It turned out to be a wonderful choice.  The park was clean, our site was spacious, and the air was good.  After drizzle and fog in St. Louis, we were ecstatic about the sunshine and clear skies.  We took an RV site with electric and set up our tent on a concrete pad.  That warm flat surface was delightful in the cool evenings, </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/RlHgp22NLp4/challenges-and-disappointments-during.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://3.bp.blogspot.com/-LKar7s1u4ZA/ToiD69JHB8I/AAAAAAAAAO8/tiupN50y8oU/s72-c/Osage+Hils3.JPG" height="72" width="72" /><thr:total>2</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/RlHgp22NLp4" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/10/challenges-and-disappointments-during.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-8028934640554492004</guid><pubDate>Sun, 25 Sep 2011 22:13:00 +0000</pubDate><atom:updated>2011-09-25T18:13:36.420-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">ME</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><title>Ready.  Set.  Go.</title><atom:summary>I’m on my trip!  What an adventure!
It took a whole lot longer to get out of Ohio than I wanted it to because I was too attached to doing various chores I’d had in mind before I realized I couldn’t tolerate the local environment.   I was also a bit wary of camping by myself, and for an extended period, having done nothing more than an overnight or weekend trip in the past.  But because I had </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/Ce285dv4hvc/ready-set-go.html</link><author>noreply@blogger.com (Janis)</author><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/Ce285dv4hvc" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/09/ready-set-go.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-2428332478658856539</guid><pubDate>Mon, 05 Sep 2011 00:02:00 +0000</pubDate><atom:updated>2011-09-04T20:02:41.524-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">variable symptoms</category><category domain="http://www.blogger.com/atom/ns#">immune system</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><title>Back at home, fading like an old flower</title><atom:summary>As soon as we got into humid Arkansas, everything shifted.  At first a tiny bit.  But soon I could feel my good state of health slipping away. 

We camped at huge Lake Ouachita, said to be the cleanest lake in Arkansas, and after setting up at an exquisite site on a narrow peninsula, we went for a dip.  An hour later we were both itching.  A hot shower before bedtime helped a little, but sleep </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/BC-t5dAdOeA/back-at-home-fading-like-old-flower.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://1.bp.blogspot.com/-6lccJwjh7D0/TmQDW3OmGjI/AAAAAAAAAOo/gr1NzmUg_6E/s72-c/AK+Lake+Ouachita+view.jpg" height="72" width="72" /><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/BC-t5dAdOeA" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/09/back-at-home-fading-like-old-flower.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-1444883268979614819</guid><pubDate>Wed, 17 Aug 2011 01:46:00 +0000</pubDate><atom:updated>2011-08-16T21:46:36.264-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">Trivedi</category><title>Something IS making a difference</title><atom:summary>
I can’t report that I’m miraculously ‘cured’ in the pristine air of a high desert wilderness area as some individuals on the Phoenix Rising forum have claimed.  But something is making a difference.
At the wedding on Saturday night, I danced for nearly two hours.  I rested often between songs, but sometimes did 2 or 3 songs in a row.  It was so much fun!  And I didn’t have the ‘pay the price’ </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/ftjF9yZ21Gw/something-is-making-difference.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://3.bp.blogspot.com/-4ZGQWZmGC-w/TksaMjQGw5I/AAAAAAAAAOg/R842plukhic/s72-c/Colorado+038.JPG" height="72" width="72" /><thr:total>1</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/ftjF9yZ21Gw" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/08/something-is-making-difference.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-4517148932644717208</guid><pubDate>Tue, 09 Aug 2011 16:41:00 +0000</pubDate><atom:updated>2011-08-11T13:51:45.551-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><title>Oxygen Adventures</title><atom:summary>

Lily pond at Anchorage Farm, Pine, Colorado

Do you have a shortage of oxygen?  Dr. Paul Cheney has argued that everyone with CFS has symptoms similar to high altitude sickness, because we have insufficient oxygen available for normal body functions.  Dr. Ritchie Shoemaker's treatment protocol for CIRS involves taking EPO, a medicine that increases the ability of the body to process oxygen.</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/VVytVdww1TY/oxygen-adventures.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://3.bp.blogspot.com/-YIIgExX78qM/TkFj6_r5jtI/AAAAAAAAAN8/BiVV1purxks/s72-c/Pine+CO+lilly+pond+garden+Anchorage+Inn.JPG" height="72" width="72" /><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/VVytVdww1TY" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/08/oxygen-adventures.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-7804275985148764645</guid><pubDate>Mon, 08 Aug 2011 03:54:00 +0000</pubDate><atom:updated>2011-08-09T13:20:33.607-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">camping</category><title>Looking for Paradise</title><atom:summary>Writing from Lawrence,  Kansas at 4 am.  We’re at a campsite on Lake Clinton, a peaceful, spacious meadow surrounded by trees and fields.  A wonderful soft breeze caresses my skin and seems to keep the mosquitoes far away, allowing me to sit at the picnic table and write while David sleeps in our tent.
We are on our way to Colorado, to explore how I do in a dry environment at high elevation.  We’</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/JCGvi6qPVs4/looking-for-paradise.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://3.bp.blogspot.com/---zS2HheRvY/TkFqhjT_DiI/AAAAAAAAAOI/xcsTT3kTLLQ/s72-c/Bonny+Lake+Camp+at+sunrise.JPG" height="72" width="72" /><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/JCGvi6qPVs4" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/08/looking-for-paradise.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-8880782186035243463</guid><pubDate>Sat, 23 Jul 2011 23:44:00 +0000</pubDate><atom:updated>2011-07-23T19:48:13.596-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">orthostatic intolerance</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">ME</category><category domain="http://www.blogger.com/atom/ns#">CIRS</category><category domain="http://www.blogger.com/atom/ns#">Trivedi</category><title>Playing Penolope, inadvertently</title><atom:summary>In Homer’s Odyssey, Penelope stays home waiting while her husband Odysseus travels from one adventure to another.  Because there is no word from him for two decades, everyone assumes he is dead and she is pressured to remarry.  She agrees to do so when she finishes the weaving in which she is engaged every day. But each night she unravels all that she wove during the day.  
Penelope’s deception </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/7pSvJl0RWvg/playing-penolope-inadvertently.html</link><author>noreply@blogger.com (Janis)</author><thr:total>1</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/7pSvJl0RWvg" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/07/playing-penolope-inadvertently.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-2228066009722346317</guid><pubDate>Fri, 01 Jul 2011 00:58:00 +0000</pubDate><atom:updated>2011-06-30T21:06:54.062-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">infection</category><category domain="http://www.blogger.com/atom/ns#">coxsackie</category><category domain="http://www.blogger.com/atom/ns#">ME</category><category domain="http://www.blogger.com/atom/ns#">lyme</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">energy</category><category domain="http://www.blogger.com/atom/ns#">Trivedi</category><title>Wanderings in the Midwest</title><atom:summary>Three hours ago today I returned home from Chicago.  I left home last Thursday night, went to the retreat with Guruji Mahendra Trivedi, stayed for 3 days with friends, and drove home today.  This blog describes my excitement at how good I feel tonight!

Every retreat I've attended (there have been four total, and I've gone to every one of them) has raised my energy a great big notch.  I've </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/H5A8qljr4AI/wanderings-in-midwest.html</link><author>noreply@blogger.com (Janis)</author><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/H5A8qljr4AI" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/06/wanderings-in-midwest.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-1191647891168293657</guid><pubDate>Mon, 23 May 2011 00:46:00 +0000</pubDate><atom:updated>2011-05-22T20:46:51.152-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">toxins</category><category domain="http://www.blogger.com/atom/ns#">Shoemaker</category><category domain="http://www.blogger.com/atom/ns#">sauna</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">virus reactivation</category><category domain="http://www.blogger.com/atom/ns#">lyme</category><category domain="http://www.blogger.com/atom/ns#">immune dysfunction</category><category domain="http://www.blogger.com/atom/ns#">anti-virals</category><category domain="http://www.blogger.com/atom/ns#">biotoxin</category><category domain="http://www.blogger.com/atom/ns#">Trivedi</category><category domain="http://www.blogger.com/atom/ns#">detoxification</category><title>Assaulting CIRS and ME-CFS</title><atom:summary>Whew!  After months of testing, my doctor (Alan Vinitsky) has determined that I have quite a number of infections.  While this is no surprise in ME-CFS, I'd always been one of those patients who tested negative for just about everything.  Over 16 years of seeing doctors in various time zones and on various continents (mostly N America), the only things found were HHV-6, EBV, and Coxsackie B, all </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/mLBu1oa36Xo/assaulting-cirs-and-me-cfs.html</link><author>noreply@blogger.com (Janis)</author><thr:total>5</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/mLBu1oa36Xo" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/05/assaulting-cirs-and-me-cfs.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-1761906288702484376</guid><pubDate>Sat, 16 Apr 2011 22:27:00 +0000</pubDate><atom:updated>2011-04-16T18:44:15.122-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">Shoemaker</category><category domain="http://www.blogger.com/atom/ns#">mold</category><category domain="http://www.blogger.com/atom/ns#">inflammation</category><category domain="http://www.blogger.com/atom/ns#">adrenal stress</category><category domain="http://www.blogger.com/atom/ns#">immune system</category><category domain="http://www.blogger.com/atom/ns#">immune dysfunction</category><category domain="http://www.blogger.com/atom/ns#">neurotoxin</category><category domain="http://www.blogger.com/atom/ns#">biotoxin</category><title>Is ME/ CFS CIRS?</title><atom:summary>Acronyms Anonymous beware.  We have yet another acronym for the disease which David S. Bell called The  Disease of A Thousand Names (1991) in one of the first books published on this illness. Bell is a well known medical doctor in Lyndonville NY, the site of one of the first CFS epidemics in the 1980's.  


Since Bell's publication, little has been done to define the etiology (cause), </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/IA9adrKosyc/is-me-cfs-cirs.html</link><author>noreply@blogger.com (Janis)</author><thr:total>3</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/IA9adrKosyc" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/04/is-me-cfs-cirs.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-7607840581927737390</guid><pubDate>Thu, 31 Mar 2011 18:58:00 +0000</pubDate><atom:updated>2011-04-01T11:34:17.294-04:00</atom:updated><title>Review of The State of Me, by Nasim Marie Jafry</title><atom:summary>I loved Jafry's The State of Me.  The author did an amazing job of turning the horrible experience of living with chronic, disabling ME into a story that is funny, entertaining, and tender.   (ME is the U.K. term for what the U.S. calls CFS or CFIDS, and which the patient populations has recently begun calling ME-CFS.)

The story takes place in Scotland, where our protagonist, Helen Fleet is </atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/hUY_myatiCQ/review-of-state-of-me-by-nasim-jafry.html</link><author>noreply@blogger.com (Janis)</author><thr:total>4</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/hUY_myatiCQ" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/03/review-of-state-of-me-by-nasim-jafry.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-8668775188482261953</guid><pubDate>Thu, 03 Mar 2011 02:46:00 +0000</pubDate><atom:updated>2011-03-14T20:15:04.222-04:00</atom:updated><category domain="http://www.blogger.com/atom/ns#">disability</category><category domain="http://www.blogger.com/atom/ns#">anti-virals</category><category domain="http://www.blogger.com/atom/ns#">CFS</category><category domain="http://www.blogger.com/atom/ns#">CDC</category><title>Review of Chronic Fatigue Syndrome: A Novel, by Caroline T. Anderson</title><atom:summary>Chronic Fatigue Syndrome: A Novel is a self-published work written with the intention of raising awareness about CFS.  This is a good thing, and I commend the journalist working under the name Caroline T. Anderson for her compassionate intentions.  I enjoyed parts of the book, but I also found (as in every other self-published book I've read), that it needed something to climb into the class of a</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/S354ktya07o/review-of-chronic-fatigue-syndrome.html</link><author>noreply@blogger.com (Janis)</author><thr:total>9</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/S354ktya07o" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/03/review-of-chronic-fatigue-syndrome.html</feedburner:origLink></item><item><guid isPermaLink="false">tag:blogger.com,1999:blog-5259260234139265601.post-6756080812268310472</guid><pubDate>Tue, 22 Feb 2011 03:54:00 +0000</pubDate><atom:updated>2011-02-21T22:54:02.068-05:00</atom:updated><title>End of vacation and more</title><atom:summary>

The last two days at Manuel Antonio, I finally got to see monkeys. They were coming to the wet bar by the pool in the late afternoon for bananas.  I managed to hang around long enough by resting up earlier.
  
We had 2 spider monkeys and 3 white-faced monkeys, all adorable.  The spider monkeys were within 2 feet of me as I stood by the railing next to the guy tempting them with pieces of banana</atom:summary><link>http://feedproxy.google.com/~r/blogspot/tphz/~3/75HX6E4HkI0/end-of-vacation-and-more.html</link><author>noreply@blogger.com (Janis)</author><media:thumbnail xmlns:media="http://search.yahoo.com/mrss/" url="http://3.bp.blogspot.com/-7xmUFg5iqBY/TWMzOYwanDI/AAAAAAAAAF0/gWmky6gwXBA/s72-c/DSC_6854.JPG" height="72" width="72" /><thr:total>0</thr:total><description>&lt;img src="http://feeds.feedburner.com/~r/blogspot/tphz/~4/75HX6E4HkI0" height="1" width="1"/&gt;</description><feedburner:origLink>http://cfsmethylation.blogspot.com/2011/02/end-of-vacation-and-more.html</feedburner:origLink></item></channel></rss>

