But You Dont Look Sick? support for those with invisible illness or chronic illness

Raising Money for Medical Musts, Bills, Surgery, Medication etc. Now you can help!

Christine — Thu, 09 Feb 2012 19:52:46 +0000

Know someone with sky-high healthcare bills? You might. Three million households spend 18% of their incomeson out-of-pocket medical expenses.It’s an awful burden, on top of a crisis or chronic illness. Now you can help with GiveForward.How it works GiveForward is like Kickstarter for medical bills. If you have a friend or relative undergoing expensive [...]

Pay no attention to the girl behind the smile -what I wish people knew about me.

Christine — Thu, 09 Feb 2012 05:10:19 +0000

Pay no attention to the girl behind the smile… It has been said by many people that I am a very good actress. “But You Don’t Look Sick” seemed to be all I heard. Is this a good thing? Sometimes it is an appropriate thing to say after a speaking engagement, or when I used [...]

Medically Necessary Diet? Don’t Freak Out!

Staff — Thu, 09 Feb 2012 00:01:48 +0000

A few months ago, I was in a local health food store and saw a sad but familiar sight: a woman with an utterly bewildered expression standing in the gluten-free aisle. I asked her if I could help her find something, and she said, “I don’t know! The doctor told me today that I have [...]

We have reached over 38,000 “likes” on our facebook fan page!

Christine — Fri, 27 Jan 2012 18:14:45 +0000

We are so excited to have over 38,000 “likes” on our facebook fan page! As much as we are excited to have formed this community of great people using technology to share information and support, it of course also makes me sad that we need that support. We as patients need to be empowered to [...]

Book Review: “The Sjogren’s Book, Fourth Edition”, edited by Daniel J. Wallace, M.D.

Christine — Mon, 23 Jan 2012 18:42:46 +0000

Sjogren’s syndrome is an autoimmune disease that, while not rare, is not widely known. Until tennis star Venus Williams revealed recently that she had been diagnosed with it, most of the general public had not heard of it. That is why this book, published in September, is so necessary. Sjogren’s occurs when the immune system [...]

January is National Blood Donor Month

Christine — Wed, 18 Jan 2012 20:59:58 +0000

January is the perfect time to honor the people who help others through the simple act of giving blood. If you can’t give blood due to medical reasons, you can use this time to encourage friends and family to donate, or even help at a local blood drive. Since 1970, January has been known as [...]

Support I’m a Spoonie! add a #spoonie twibbon to your avatar/ profile now! – OVER 10,000 people have – join us!

Christine — Wed, 18 Jan 2012 02:07:31 +0000

Do you have a profile picture, icon, or “avatar” that you use on facebook or twitter, etc. Support I’m a Spoonie! add a #spoonie twibbon to your avatar now! People have seen others on facebook and twitter with the spoon on their pics and it is SO easy to do! So many have asked me [...]

Bed, BACK, and Beyond: The Original Bed Buddy Back Wrap Product Review

Staff — Tue, 17 Jan 2012 20:31:12 +0000

Criticky Crack, there goes my back. Have you ever felt that type of pain? I have. I’m a California girl which means I’m automatically a warmth-loving, cold-hating, hot shower-praising girl. So, when I moved to the land of no sun Chicago I realized that warmth was a thing of the past. Then there was the [...]

36 Easy things that you can do to make the life of your chronically ill friend a bit better.

Christine — Sun, 08 Jan 2012 06:38:28 +0000

You do not need to spend a lot of money. You can be thoughtful in so many ways. The point is to do something, and do something today. I have listed below 36 easy ideas that anyone would appreciate. Sometimes it is hard for a patient to ask for help. Just do it! The hardest [...]

Product Review and Contest: Jet-Dry my mind is might be foggy,but my glasses don’t have to be!

Christine — Sun, 01 Jan 2012 20:12:40 +0000

Start the new year off on a cleaner note! 1 easy way to make your life cleaner and easier. Jet Dry is a product that is added to the dishwasher in a little compartment usually on the door. Sometimes a small sample comes with a new dishwasher and is recommended for use by that manufacture. After [...]