Eric Peacock MyHealthTeams

Org creates social networks for specific chronic conditions an example is MyAutismTeam and now debuts MyBCTeam for women facing breast cancer
This is combination Facebook Pinterest and Yelp.

Overview of the community:

it starts with finding women just like you they must have same circumstance
1831 women are now in the site
The functionality looks like face books wall you can add a like or even a hug to people’s comments
Each person has a story ie Ida’s Story you can also see her treatment path thT she has pursued and see her team which are all the people on the site but also her providers in healthcare this is a yelp style listing of the medical professionals
Women also share lots of photos so a Pinterest board has been added
the Q&A section is very well used by the women.
You need to be logged in to be part of the site and there is ability to share more private messages
There is no advertising on the site
60 percent of women use real name and real photos

Alex Siedlecki Audex Health

Care verge platform
Ability for users to set goals such as walking or sleeping etc
There is ability to set up group goals and activities
personalization is critical as it makes it relevant to them
There are two tracking methods either self reporting or using a device
there are social elements integrated into the platform
Target user very broad but there is a
Heavy skew 40 to 50 year old women
The user can also go into a health information community where they can find the right information for them
A subscription based model and they work with providers such as insurance companies
Experts are active on the site to give information to the user
They can be nurses or personal trainers and subject matter expert

Sean Mehra HealthTap

This site Has 15k physicians and you can ask a question for free
You can discover doctors that are ranked by other physicians
Demo shown looking at user profile with women posting question about a rash doctors responded to her rapidly she then followed up with photo from her phone.

Users can search for local gps on the site as well as read current research papers

it’s avail on iPad on the web also iPhone and android
totally free service

Doctors have range incentives to participate such as new patients they want to be seen as thought leaders among their peers
validation from peers and patient is also key

15k doctors go through manual review process to be listed on the site
Doctors stay away from advice and prescription diagnosis to avoid legal issues

The business model – you can pay for a private conversation with a doctor ie online consult with gp of their choice

Diabetic Connect Community

Patients that connect socially tend to have better outcomes
Usage data shows that newly diagnosed with chronic condition want connect with the peers
The discussion forum is highly active
When you look at users you can see how engaged they are or how influential they are in the community
gamification elements such as badges are included in the community
Nice functionality to have range of health profiles make it easy to identify similar people in the site
Ability to track sugarsnetc online and people can see this information if you allow them to
All conversations are threaded not real time chats
Advertising is done on an opt in basis from marketing partners
There are alias based privacy models
The business model some display advertising, social walls that pharmas can use and newsletter
there are 700k users on the site currently

Panel Questions

People search on web to their specific needs but they recognize that comorbidity is an issue for many patients and many on then panel are looking at that area today

There is an issue with of gps not necessarily recommending these patient sites – the healthcare establishment need to make them part of the system
many of the key health services are starting to share these sites with patients.

Panel questions

Sean Mehra HealthTap

Sean Mehra HealthTap

Alex Siedlecki Audex Health

The post Online Patient Communities appeared first on Digital Democracy.

The program has six pilot programs in places as varied as Haiti and Kenya
In 2012 more than Half of healthcare providers at the sites look up critical information on these mobile device
Since the program was launched it has put these devices in the hands of 100 clinicians worldwide

Read more

Http://www.health villages.org

The post Health eVillages Bringing Tech to Clinicians in challenging environments appeared first on Digital Democracy.

Fred Trotter Cautious Patient Foundation

Developing for over ten years
Need to think carefully about dev strategy
Don’t separate business to dev strategy

Erick Von Schweber – Surveyor Health

Dev methodologies should be able to reflect how your run the business
You don’t want to have culture clash if dev doesnt mirror the business
Dev is about innovating T the science and technology level
the org Dev knowledge surveying technique

Michael Yuan – Ringful

Scientist by training then went into health clinical software development
So much in healthcare is research driven you always need the clinical studies and outcomes study which unique to working in this area

In healthcare high interaction with scientists and business Mgrs and developers

Sastry Nanduri HealthTap

Health tap is global you can get health information and private conversations with doctors
This is cross platform company
They utilize big data
Growing rapidly and looking for new developers

Q. Pros and Cons Transition from mobile app to native apps?

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- cloud based tools are important
- real time feedback and behavior change
-personalized medicine

Demos

Joseph Dustin Medidata Solution

The site is SaaS based clinical dev solutions that enhances efficiency of customer clinical trials
The platform is useful for both patients trying to find a trial as well as those running the trial
All information such as diaries are recorded electronically and he is notified via mobile device
The medical orgs or pharma can then look at all the studies in real time such as site performance and real time decisions can be made via viewing the data

Michael Sanchez NCI

Michael manages the web 2.0 resources
Research to reality site is an online community of practictioners 7000 to date
They also have webinars with speakers sharing successes and challenges
70 discussions active online right now
Obesity and tobacco generates many of the online discussions
They also have a mentoring program where they apply evidence based public health

Elizabeth Iorns science exchange

The site is a scientific services marketplace A way to outsource scientific experiments

The post Research 2.0 Panel appeared first on Digital Democracy.

Final comments from all the panel

- integration of all the data is important
-need to work out the data is incorporated into the workflow
-important for patients to use the tools
- the tools are great for the caregivers

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There were 30 million data points in graph shown
Individuals have about 50 data points each.

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the company applies machine learning Lookng at tweets and these are labelled sick or not sick
Look at what sort of impact does this sick person has as she moves throughout the city

You can report on your own health as well you can record your symptoms and location

Can use heat map and satellite views -app called germ radar it knows where the sick people are due to geotagged tweets

It can send alerts to people based on health germ alerts based on where theybare in the city

They are currently focusing on cold and flu health areas
there is also a feedback mechanism for users and there is a survey for users about how they currently feel

The post Big Data Adam Sadilek – Fount.in appeared first on Digital Democracy.

Other findings from the study:

Brands matter more at the end of the search re treatment
Digital video is exploding and it converts ie take action has abiilty from marketing perspective
Digital consumers consumer search mobile and video
The more informed patient more likely to convert

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