disAbility Blog

Tube Feeding: How to NOT Feed the Bed at Night

Lorna — Fri, 10 Jun 2011 04:10:10 +0000

When Nick was fed overnight (for years & years), this is how I attached the tubing to his Mic-Key Low-Profile Gastrostomy Feeding Tube and diaper so that it didn’t disconnect or twist & kink. 99% of the time, we made it through the night without a beeping pump and we NEVER fed the bed We had [...]

A Unique Weighted Lap Pad

Lorna — Sat, 04 Dec 2010 09:20:48 +0000

Our son has plenty of sensory issues. One product that he absolutely loves is his weighted lap pad. The one that we have I discovered by accident. I had purchased Akton Pads for him to sit on. They’re sort of like gel, but they’re a solid material, so you never bottom out. Super heavy, and [...]

Stories from Best Buddies

Lorna — Tue, 12 Jan 2010 08:35:01 +0000

If you are reading this article through your email subscription, please visit our site to view the embedded video. If you’ve never heard of Best Buddies, now is a great time to discover just how wonderful this program is. Founded in 1989 by Anthony Kennedy Shriver, Best Buddies is a global volunteer movement that creates [...]

Only Change One Thing at a Time

Lorna — Thu, 17 Dec 2009 11:49:13 +0000

Many of you may know by now that we have a boy (Nick) with special needs. He’s our little sweetie, and these days, his good days far outweigh the bad days. But this wasn’t always the case. Figuring out what is bothering him can be nearly impossible at times because he is non verbal and [...]

Stress Busters

Lorna — Wed, 16 Dec 2009 11:56:58 +0000

These tips were contributed by Lindsey Petersen. Be sure to read her blog titled Raising 5 kids with Disabilities and Remaining Sane Blog. I think the title says it all! Thanks Lindsey! Thoughts on things I do to reduce stress and remain sane: Ø I buy each person in my family their own brand of [...]

Administering Medications Through a Feeding Tube

Lorna — Tue, 15 Dec 2009 07:09:22 +0000

Do you administer medications through a g-tube? Read all about it here. If you’re new at this, hopefully this blog will help you to feel more comfortable with the task. If you’re a veteran, maybe you’ll pick up something new. I also recommend that you read Prescription Medications: Avoid Mistakes and Get Organized. Administering Medications [...]

Need a Timer to Remember Medications, Time Behavior and More?

Lorna — Sun, 13 Dec 2009 11:30:57 +0000

Here’s a gift idea! I can think of uses other than what it was designed for… I was looking on Amazon for cool products to post here when I ran across the Itzbeen Baby Care Timer. It was created to help sleep deprived moms and dads remember when it’s time to feed or change the [...]

Prescription Medications: Avoid Mistakes and Get Organized

Lorna — Thu, 10 Dec 2009 13:46:28 +0000

According to Consumer Affairs, it’s estimated that 7,000 deaths occur every year because of incorrect prescriptions. And as stated in an article by Forbes.com, medication errors affect 1.5 million people every year. These are astounding statistics. And yes, I have caught a pharmacist making a very big mistake. Our son Nick was supposed to get [...]

How Do You Find Peace?

Lorna — Sat, 05 Dec 2009 10:09:05 +0000

What better time to write about finding inner-peace than during the Holidays? Here is my story. I hope that I can touch at least one person in a positive way with this post… I remember all too well the horrible feeling I had when it actually sunk in that our son Nick was severely disabled. [...]

Alleviate Pressure Sores and Skin Breakdown in Bed

Lorna — Thu, 03 Dec 2009 08:00:45 +0000

You may have read my blog about the wheelchair pad that we found for our son, Nick. It is made out of Akton polymer. When you first see it, you might think that it’s a gel pad. But it’s much better than gel because it is a solid material. If you’ve ever sat on a [...]