Especially Heather

This weeks motto:

Especially Heather — Tue, 15 Jul 2008 18:10:22 +0000

Natalie Grant - I will not be moved I have been a wayward child, I have acted out, I have questioned sovereignty, and had my share of doubts, And though sometimes, my prayers feel like the mountain of the sky, the hand that holds won’t let me go, and is the reason why I will stumble, I will fall down But I will not [...]

Empty Me

Especially Heather — Wed, 09 Jul 2008 13:08:22 +0000

Lately I have been doing alot of thinking…about why I am doing what I am doing and what it is doing to me on a deeper level. I have to admit it feels quite awesome when someone walks up to me at the grocery store or some other random place and says “I know [...]

Introducing Benson…

Especially Heather — Thu, 03 Jul 2008 16:37:55 +0000

Benson, My “End of Chemo” present

Be Still..

Especially Heather — Fri, 27 Jun 2008 10:59:40 +0000

(Edited to add: I have uploaded videos of Emma Graces Transplant and Autism Awareness on her page) The LORD will fight for you; you need only to be still. -Exodus 14:14 That is so hard, just to be still and trust. I was reading my devotional this morning and ran across this: God is neither shut up nor [...]

So good to be home!

Especially Heather — Fri, 20 Jun 2008 13:40:01 +0000

I am sorry that I haven’t updated, but I have been so exhausted! Emma is home now and is so happy to be reunited with her Little People! I, on the other hand, am so happy to be reunited with my bed! I start chemotherapy Monday evening, which will be my next to last [...]

Back on Milrinone…Updated

Especially Heather — Mon, 16 Jun 2008 12:46:03 +0000

Dr K just came in and said that the cardiologist that prescribed the Milrinone didnt know Emma, and was just going by her BNP numbers… Hers are always high because of her Coronary Artery Disease. He is going to cut the dose in half today and stop it in the morning. We should be discharged tomorrow [...]

Back in the hospital…

Especially Heather — Sun, 15 Jun 2008 20:53:17 +0000

Emma is back at ACH. She had a fever of 101 this morning and was complaining of a headache. I called her ped, and she said to bring her back to ACH. When we got here they did an ECHO, which was unchanged since the last one on her birthday (6/5) but her white blood [...]

Hope in the midst of…

Especially Heather — Thu, 12 Jun 2008 12:47:29 +0000

It is one thing to speak of hope when things look doubtful… when the future is uncertain… when circumstances are crowding in. It is something else to speak of hope when there is no doubt about the present (it is a disaster) when the future is certain (and definitely uninviting) when circumstances have crushed [...]

Pictures…

Especially Heather — Wed, 11 Jun 2008 11:42:13 +0000

Here are a few of Emma’s Birthday Party, I will be back to writing soon… I am really worn out from chemo and the past weeks experience.. but am working on a post :) Here are the pictures (Click to enlarge the small ones) Its soooo good to be home!! [...]

She is going home :)

Especially Heather — Thu, 05 Jun 2008 15:34:35 +0000

Her Echo was the same as yesterday without Milrinone, so it was obviously viral. We are busting out of this joint just in time for her 7th Birthday :) ! Thanks for your prayers!

She is up! :)

Especially Heather — Wed, 04 Jun 2008 19:47:14 +0000

The last few days Emma has not wanted to get out of bed, much less stand. She has been in pull ups (which is so not her) and has taken 6 hour naps (which again, so not her) only getting up to eat. We have had to bribe her to take wagon rides [...]

When I fall apart..

Especially Heather — Wed, 04 Jun 2008 14:31:49 +0000

I got up early this morning (5am) and went downstairs at the Ronald McDonald House. I went outside and just broke down. What a year life it has been. If you would have told me 8 years ago that I would have a child with autisim, a heart transplant and mitochondrial myopathy I [...]

Biopsy Results…

Especially Heather — Wed, 04 Jun 2008 01:06:01 +0000

The biopsy indicated that it wasn’t rejection (If you are familiar with heart transplant biopsies, it was a 0), so that leaves viral infection (which we wont get the results back for atleast two weeks, and even then it isn’t conclusive) or Coronary Artery Disease. The true test will be how she handles coming [...]

Sooner…

Especially Heather — Mon, 02 Jun 2008 14:04:10 +0000

They just told us that the first surgery is done, so they will be taking her in about 10 minutes. She is an anesthesia risk (putting her under is a risk) so please pray that she comes through with flying colors. Also pray for the doctor doing the procedure and for us, we are [...]

Heart Biopsy Update..

EspHeather2 — Mon, 02 Jun 2008 13:31:08 +0000

Heart Biopsy Update…… The surgery has been bumped up to 11am. we wont know results until tues evening. Thanks 4 your prayers.

Sunday Update #2

Especially Heather — Sun, 01 Jun 2008 18:45:35 +0000

We just spoke to the cardiologist. Her heart function has significantly improved since Friday and there is little fluid left around her heart and lungs. He said that this convinced him even more that it is acute rejection. She is still scheduled for heart cath and biopsy tomorrow to determine what type [...]

Sunday Morning Update…

Especially Heather — Sun, 01 Jun 2008 12:49:21 +0000

First, thank you all so much for your prayers. Emma is doing slightly better as of yesterday, she was taken off of oxygen so that is good :) Her Echocardiogram looked slightly better regarding her function, so the Milrinone is working. The fluid around her heart and lungs is decreased, but there is still alot there. [...]

It’s Heather..

Especially Heather — Sat, 31 May 2008 12:13:19 +0000

We recieved a call from Emma’s school yesterday around noon. Her teacher said that she was “sittiing at her desk, non engaged, and her lips were blue”. I called Mark, called my parents to watch the kids, and went to pick her and Mark up. When we arrived at All Childrens in St. Pete, they [...]

Prayers Please

Laura — Fri, 30 May 2008 15:50:32 +0000

This is Laura and I’m posting at the request of Mark and Heather. Emma has been admitted to All Children’s Hospital in St. Pete. I honestly don’t know much. I am hoping to talk to one of them again soon. But please keep them all in your prayers. As soon as someone can we [...]

All I can say…

Especially Heather — Thu, 29 May 2008 11:16:11 +0000

All I can say - David Crowder Lord I’m tired So tired from walking And Lord I’m so alone And Lord the dark Is creeping in Creeping up To swallow me I think I’ll stop Rest here a while And didn’t You see me cry’n? And didn’t You hear me call Your name? Wasn’t it You I gave my heart to? I wish You’d remember Where you sat it [...]