Drifting on a Sea of Disconsolation

noreply@blogger.com (Robyn S.) — Wed, 30 Nov 2011 19:02:00 +0000

Seriously, I'm out of control. It's kind of my favorite explanation for my life right now. "Get out of the way, everybody! Don't act like you weren't warned! I am not completely in control of my own actions at the moment! Steer clear and maybe nobody will get hurt but me!"

I was laid off almost a month ago, and I've had this awful cold ever since, clinging to me for dear life, making it impossible to complete the mountain of tasks that would move me closer to a sense of normalcy. Add to that my shaken confidence (which I'm told is unfair of me because the lay-off was due to a 'reduction in the force' and I wasn't the only one), and you have me stuck in a classic perfectionist loop, never quite moving forward because I can't figure out how to do all of it perfectly the first time. It's a recipe for disaster.

As long as I'm whining, actually, I should note that I'm about to start an arduous diet and Lyme treatment regiment that includes giving up gluten, dairy, alcohol, and sugar, only to replace them with a disgusting herb cocktail twice a day. Not the fun kind of cocktail. Refer back to the giving up alcohol bit.

So I'm moody, I'm a little depressed, but most of all, I've been moody and depressed just long enough that the novelty (if there ever was any) has really, REALLY worn off. I'm a little sick of myself, so I can only imagine how those around me feel. I just want to be able to wake up in the morning, feel normal, and actually get through a to-do list without turning on myself about a dozen times.

I'm sorry this blog isn't more cheery. It's one of those "weather the storm" type moments in my life, and I'm afraid my weathering has been reduced to the behavior of that one character in the horror movie who sees the big bad coming at them and becomes paralyzed, thus rendering him a danger to himself and the rest of the group. I'm really, really trying hard to stop being paralyzed. Seriously, am I moving yet?

...how about now?

Unrelated note: Some sort of prize should go to any commenter who manages to surpass me in the use of "Seriously" and "really, really." Paralyzed me sure sounds a lot like 14-year-old me.

Another somewhat related note: The title of this post could have been written by 14-year-old me too, but its melodramatic goofiness soothes my soul, so it stays. Nah nah.

On a dark and stormy night...

noreply@blogger.com (Robyn S.) — Fri, 09 Sep 2011 02:31:00 +0000

The east coast is NUTS tonight. Seriously, not to talk about the weather, but what's up with the weather?! Earthquake, hurricane, floods... if Godzilla rose out of the Potomac and started bashing monuments, I don't think I'd even bat an eyelash.

I swear I thought of this joke before I found this picture.

This is going to sound trivial in the face of natural disasters, but that's only because it is, so if you're someone who takes offense to people being anything less than super serious at all times, you are really on the wrong blog. Shoo. Away with you. We'll all wait.

Right, so I wore my new shoes to work today. Obviously I don't check the weather (my sister, the meteorology grad student, would truly be shocked). So when it came time to leave work, I didn't want to get my new shoes wet (calf-hair leopard-print flats-- noooot exactly rain boots). So, I took them off when I got far enough away from the important offices, and made a run for my car, barefoot. Apparently my running barefoot in the rain skills are way out of practice, because I fell HARD CORE, scraped both my knees and my elbows, got completely soaked in the couple inches of rain that were forming a river in the parking lot... it was very embarrassing for all involved (me). It was also rather painful. So, wah wah wah, I fell and got some boo boos, but it was kind of hilarious from a bird's eye view and I'm almost sorry from a comedic standpoint that nobody saw it. I mean, I scraped my knees, and I didn't even make someone else feel more graceful? Lame.

But that's not the point of this blog post! I feel the need to start a bit of a new chapter. I may redesign the blog, I may move it to wordpress, and I may even rename it. I'll keep y'all in the loop if I do decide to do all this, but I was reminded today by one of my favorite local bloggers how enriching blogging can be, and how much I miss it. I barely even write these days when it's not required for work, and I wonder if that's part of the funk I've been in off and on over the course of the summer.

I've found a new doctor (more on that later), am relatively settled in at my job, and am super happy with my awesome boyfriend, but I still feel like a lot is missing. Like, hobbies, for one thing. I've had so much going on that I feel like, just when I was starting to figure out what my hobbies were (it's always been a weird question for me), I abandoned the search. I've been less vigilant about editing my life, filling it with the things that bring me joy and push me forward, and leaving the margins to enjoy the moment and roll with the punches.

So I'm working on those things again. I reconnected with some old friends, am looking for a spiritual outlet that fits me, am considering finding an affordable yoga class in the area. Maybe most significantly (time will tell), I signed up for some Stratejoy "Joy Juice" journal prompts and have started, albeit rather feebly, to work through them and ask myself those hard questions again. Self examination, in my personal experience, is never a bad thing, and I'm hoping to make some discoveries that will enrich my life as well as the lives around me!

What changes are you making in your life recently?

What are the things you do that make you feel like the best possible you?

The Quickest Update I Can Muster

noreply@blogger.com (Robyn S.) — Tue, 24 May 2011 02:56:00 +0000

I seriously miss talking to other chronics lately. Unfortunately it's not always for great reasons-- I've been feeling extra whiny lately, and now that I'm a sick person in a well person's world (as opposed to being a sick person in my own, private, sick-person world), it's sometimes even harder to explain that I don't feel well. Or just plain inappropriate. If I miss a day of work, it's kind of frowned upon to explain to coworkers how heroic it is that I'm here today. Everyone who needs to know, knows, and I sort of need to get my act together in order to be as healthy as I can be!

So, brief recap of the last several months:

January
Graduated from college! SUPER happy! Began job hunt. Had a terrible interviews, had some good interviews.
February
Had a couple of great interviews and, voila, a job offer! More super happy. And gratitude like crazy because, really, I expected to be looking for much, much longer, and it's great work.
March
Began job, began apartment-hunting, met lots of crazy potential roommates and finally found completely sane apartment-mate about a mile away from boyfriend. All good things... but all kind of stressful things too!
April
March finally catches up with me, and I get sick a good bit. I end up in the hospital with colitis, I go off my antibiotics, and I start looking for a new doctor. My body is not so good with the difference between good stress and bad stress-- hey body, don't you know we're happy? Dumb.
May
More of that, and now I'm looking for a doctor like crazy. Still happy at the job, but also scared of losing the job. Determined to get a hold of this illness before it gets a hold of me. Reading The Happiness Project and am convinced that I too can get my life under control with some planning, introspection, and elbow grease.

Which brings me to now, and brings me to maybe posting more or maybe starting a new blog. Something's got to give, and it's not just my health issues. I feel a need to sculpt my life a lot more purposefully now that I finally have that power back.

How do you enjoy your life more?

The One Where my Brain Betrays Me... Again

noreply@blogger.com (Robyn S.) — Sat, 11 Dec 2010 06:10:00 +0000

This is one of many reasons why giraffes ROCK.

I'm procrastinating right now. You see, I have some very important papers to write. The final two papers of my college career, in fact. And even though I was burnt out on English literature before this semester even started, I have to get through these two last papers. And then two last exams. And then I bother both colleges' registrar offices one last time to transfer my grades and BOOM. Diploma. Natch.

But I just can't make it happen. I keep staring at the page, hoping that something will come to me, and nothing does. Or, something does, but halfway through my thought I start to lose it again...

It doesn't help that stress makes my Lyme flare up, so I've been feeling like crap for the last two weeks. Which has made me miss work and fall behind in schoolwork. Which makes me more stressed. You see what I'm getting at here.

It also doesn't help that when my Lyme flares, mental symptoms like brain fog and forgetting words kick in. So I'm so close to an idea or a thesis statement but I Just. Can't. Get. The. Words. Out.

But it's more than that, really. That's a huge part of the puzzle, and it's not making things any easier, but a lot of this is psychological. You see, I failed not one, but two semesters in a row in 2008. And that's after leaving early in the Fall of 2007 and not finishing my coursework til March. So the end of the semester is a particularly stressful time for me, in large part because all of the signals tell my brain we're about to hear terrible news and disappoint our family and ourself and have to go live at home and be depressed and no one will love us because we can't succeed and that's unacceptable. The pathways of stress for this time of year are so well-carved in my brain that it takes most of the willpower I have (and it's not as much as I wish it were) just to keep from curling into a little ball and sleeping until January. A January in which I would have no diploma and be in debt, but would have been able to avoid the stress that my brain thinks will absolutely destroy me if I continue feeling it.

Cool stripe tights. Imma google them.
...Then I'll TOTALLY get shit done. Swearsies.

It's illogical, of course, but I'm really not sure why I keep getting mad at myself for that. People are illogical. And it's not always bad. Pure logic can have devastating consequences, and there are things that, if they could be explained better, might not be as magical or thrilling... Like love. Or the universe. Or God. Or beauty. But I do get bad when I'm illogical, because I know I can't trust my emotions all the time, and I want to be able to trust some line of reasoning all the time. I want an overarching law, something to hold everything else against in order to judge its verity or value. I want a constant. More on that later though. Not this post.

Anyway, these damaged neural pathways are making me do all kinds of crazy things. For instance, on Wednesday I had my last classes. At the very end of the last one, this happened:

Professor: ...and that about wraps it up. Hope you guys have had a good semester! See you at the final! Oh, and Robyn, would you stay after please?

Me [outwardly nodding]: Oh dear sweet baby Jesus I won't survive this day.

People begin to shuffle past me, getting in line to talk to the professor about the final. I do not get in line in case it's bad; if I'm failing, I certainly don't want these nincompoops to know about it. I wait for what couldn't have been more than ten minutes, but FEELS like an entire class period. I am in limbo, and there is no time.

Me [thinking]: Okay, you can't be failing. Most of the grades are the paper and the final. You've done well on the brief essays. You've attended most classes. Ohmigosh. MOST. What if she has a super secret attendance policy?? What if it's like, you miss 4 classes, you pass, you miss five, YA FIRED. Oh my gosh what if she chastises me. What if she tells me I'm not fit to be in school. "School is for sick people." Maybe that other professor bitch was right. Oh dear goodness gracious it is medically impossible that I will survive the next five minutes. Also? That could totally be my way out. Can't fail dead people, bitch. Owned.

Professor: Oh, right, Robyn! So we decided you would attend the final an hour late, right? Since you have another one that morning?

Me [dazed by the rapidness of the clouds lifting and blinded by the sunlight now pouring into my life]: Ye-YES. YES WE MOST CERTAINLY DID. GOOD DAY MA'AM. HAVE A LOVELY HOLIDAY!

Believe it or not, it actually felt much more dramatic than that at the time. Swear to whatever will convince you I'm not joshin' you.

And now I'm going to end with a cartoon from Hyperbole and a Half because she has perfectly illustrated my paranoia. The rest of the post is awesome too and I highly recommend it. I have a creepy and unhealthy love for this woman I've never met. I'd like to say that's unusual for me. I'd really like to say that.

OHMIGOSH JUST LOOKING AT THIS MAKES ME ANXIOUS!
Link to post- http://hyperboleandahalf.blogspot.com/2010/03/procrastinator.html

Oh, also? Come back later when I reveal the sorts of craziness I've been wreaking on my relationships. Because obviously it's better to destroy EVERYTHING and at least be thorough. Right? ...right?

First two images from weheartit.com. Last image from Hyperboleandahalf.blogspot.com.

Merry Christmas

noreply@blogger.com (Robyn S.) — Wed, 08 Dec 2010 23:15:00 +0000

It's a little early, but I got you guys a present:

He so loves his life right now.

And don't worry. I'm sure there will be many, MANY more pictures of me ~~torturing~~ dressing up my cats in cool, new outfits that they totally love. You're welcome, internet.

Phoning it in...

noreply@blogger.com (Robyn S.) — Fri, 03 Dec 2010 17:34:00 +0000

This doesn't count as a real post, y'all, but I have to leave for work and wanted to share this:

http://xkcd.com/828/

Enjoy!

Notice me (notice me), Notice me! (notice me)

noreply@blogger.com (Robyn S.) — Wed, 27 Oct 2010 21:00:00 +0000

This song has been making me SO happy lately. What a cute little diddy. :)

And then there was a time that wasp stung me. IN THE FACE.

noreply@blogger.com (Robyn S.) — Tue, 26 Oct 2010 21:00:00 +0000

I drew these at work. Enjoy.

Minding my own business. Putting on makeup to cover the last
time she stung me, when she hid in my face towel . Bitch.

She rises majestically from her throne beneath my faucet.

Holy. Crap. She is the wasp version of one of those Jersey Shore bitches.
Also, you should be imagining the "Darth Vader" theme music during this slide.

Obviously, I do battle with her. NOT. My "fight or flight" responses are heavily weighted toward flight. See ya!

Done... I think?

noreply@blogger.com (Robyn S.) — Tue, 26 Oct 2010 05:13:00 +0000

Maybe if I made the margins wider? Or changed the font?
Is this color too garish?? Oh bother...

I *think* I'm done messing with the blog design for now, but I'll probably come back and play with it more later. If anyone knows a good system for learning HTML on one's own (like a particularly helpful website or book), I'd love to check that out. My limited computer skills mean I'm never quite happy with the way things turn out!

This weekend was great, btw. Didn't get sick, other than from too much funnel cake, saw some awesome friends and my fantastic little sister, and made it home in one piece to my friends, family, and the boy back up here. I'm still not thrilled about taking the bright yellow, goopy, anti-malaria medicine (it's Mepron, btw), but you know what? Things most definitely could be (and hi, have been) worse!

Also... NaNoWriMo starts next Monday! Woohoo! Who's ready to hit their head against a computer keyboard for 30 days? I AM, I AM! If you're a part of the insanity, you can find my page here and we can be the kind of crazy friends who attempt to write a novel in a month and cheer each other on at three in the morning. Which is the best kind, really.

Under Construction

noreply@blogger.com (Robyn S.) — Thu, 21 Oct 2010 16:51:00 +0000

It's that time again, kiddies. I want to start blogging more since NaNoWriMo is coming up, which is always ca-razy! And I started a bunch of new medicines, including anti-malaria drugs, so that should just be a rollercoaster of fun and happiness. Either way, this blog is a mess, and I intend to clean it up. But it may get worse before it gets better. Sorry! I'll let you know when it's totally done!

Thanks for putting up with me my loves,
Robyn

knock-knock "Hello? Oh crap. No freakin' way. NOT YOU AGAIN."

noreply@blogger.com (Robyn S.) — Wed, 13 Oct 2010 16:26:00 +0000

No news is good news, or so they say, and the last few months, I'm happy to report, have been chock full of good news! My classes are going swimmingly, I love everyone at my part-time job at Border's, and I've started dating someone whom I just love being around. My best friend is back from Canada and I get her all to myself tomorrow night, and I've even managed to reconnect with friends who make me proud to call myself their friend. Really, I can't emphasize this enough: in the general scheme of my life, this is a pretty good time to be me.

And yet... it's back. By "it," those of you with personal knowledge of the big scary monster under the bed known as "my disease" (or "your disease," that's kind of my point), will understand my trepidation at even the tiniest signs that I could be thrust back into last year's state of affairs.

Click for larger image. Dooo it, do it.

It started last night nearing the end of an ambitiously long day. I got up at 6:30 to finish homework for a 9 am class, was in class until 1:15, drove straight to work where I stood without sitting at a kiosk for four hours straight, had dinner break from 6-7, and then ran around as a floater between the different stores for the next 2 hours. I could feel it starting in my first class. My hands starting to gnarl up, my joints locking and pretending to inflame. No bueno. I ignored it through my second class and went to work, where my back and shoulders started to follow suit. Sometime around 4 pm the crazy part of my brain started to suggest that maybe all this standing had actually caused my bones to get mini-hairline-fractures, because that's what my calves were starting to feel like. By the time 7 pm floater time came around, I was gripping stock between the palms of my hands to avoid having to curl my fingers into anything resembling a grip.

Ok, that part was kind of funny. I looked really ridiculous. My coworker was obviously nicer than me, because I probably would have laughed at the spectacle. Well, maybe not, but I can laugh at myself anyway.

So now here I am, unable to hold my own body weight up with my arms, in pure awe that I finished this post, and seriously worried that this period of health I've been enjoying was a cosmic joke. Sorry to be such a downer today, guys, but some days are just depressing, ya know? And yeah, I'm calling my doctor today. Provided I can work the buttons on the damn phone. I'm kicking myself for scoffing at voice recognition technology. IT NEVER DIALS WHAT YOU TELL IT TO. But, on the upside, no painful button pushing... and hey, maybe the random Hispanic man I end up accidentally calling will help connect me to my doctor. Plus I'll make a new awesome friend. Silver lining! Kind of! Whatever, I need a win today, so it counts!

Image courtesy of Allie Brosh of Hyperbole and a Half fame.
Click that link for the rest of the article. She's AWESOME.

Speaking of needing wins, the new episode of "How I Met Your Mother" is hilarious. Check it out immediately. Robyn out.

Stop the world, I want to get off!

noreply@blogger.com (Robyn S.) — Mon, 16 Aug 2010 21:21:00 +0000

"The World Spins Madly On" by The Weepies, set to scenes from Across the Universe

My best friend pointed out in an email today that I've not been posting much. While I think she was probably referring to my other blog, I just don't have the patience for a fashion post today. In fact, I don't have the patience for much of anything lately, and that's kind of exactly the problem. My health problems, today at least, are of my own creation. My back and hips are killing me and I'm exhausted and a little nauseated. I have unidentified bruises and unfortunately identified scrapes, all because I let my drinking take on a "no brain cell left behind" kind of fervor this past Saturday. For the record, it was fun, and I'm not getting on anyone's back for the same behavior. Sometimes it's totally okay and even downright HEALTHY to let loose and just have a good time, but my knowledge of myself and all of the tiny but telling things I've been doing to myself the past couple of weeks let me know that something's not quite right. I'm off my diet, I'm unfocused, I'm completely aimless. The only productive activity I've been keeping up with really is running, and that's more because, emotionally, it satisfies my need to escape from myself right now.

THE PENDULUM EFFECT. Except this is just a picture of a pendulum.
But you get where I was going with this, right?

My best friend also pointed out that I may just be suffering from the pendulum effect. I was stuck inside my house for so long, almost two years really. I wasn't even able to go to my lame ass five-year reunion, which would have been fine if it were for the same reasons most of my friends skipped it-- they have a life, they're out of town, did I mention it was kind of lame? But what BUGGED me about it was that the reason I missed it was because I was sick. I was less than a mile away from the damn thing, under my covers, praying for my pain medication to kick in and let me sleep.

So her point was that now that I'm feeling better, it's completely natural to kick out in the opposite direction and try to do everything at once. I'm applying for jobs, applying for a loan, trying to be at every party and reconnect with every person that I lost during my two-to-three-year absence from life. And I'm being self-destructive while I'm at it. I'm running around like the proverbial headless chicken, and I think the reason I'm doing it is because I'm so fantastically afraid that any minute, my time will be up, and I'll be sick again. And I'll have to wait another two-to-three years to be fun again. To be 24 again. Or 21 again. Or, what would it be then, 27 again? The irony of the situation, of course, is that my current bedridden-ness-- the reason I slept til 2 and have spent my day wearing a path between the couch and the sofa-- is solely because of this kind of unhealthy behavior. Because I've been super responsible at times to no end at all, and so now I'm testing to see exactly how irresponsible I can be before my body completely gives up on me. And it's not healthy. And frankly, it's starting to screw with my head in a big way.

So, readers, please meet me where I am today. How do you move forward in a life where nothing is certain? How do you move beyond punishing your body for being such a douchelord for so long? Oh, and while I'm at it, how do you write a blog post where you don't use words like douchelord because your mom reads this blog? HI MOM.

Seriously, I've got to know. How do you get over the "tragedy" of your lost youth and just move forward with LIFE before that is lost too?

Failure at Facebook, but maybe not so much at life?

noreply@blogger.com (Robyn S.) — Thu, 29 Jul 2010 00:26:00 +0000

Image Source

Well, for the record, my no-Facebook pledge lasted maybe an hour before I got an email in my inbox and, you know, just HAD to go respond right away. Oh brother. I'll try again later when my will is more stalwart, but for now I think I've still dialed down some of the obsessiveness. Though leaving the house would surely help as well. I'm not housebound physically anymore, but since I currently work from home (freelance) and am fairly broke (um, results of the freelancing...), I don't have many reasons to leave the house during the day other than doctor's appointments and occasionally running/walking. I do still go out at night sometimes, but it's just not the same-- sunlight makes me happy! I'm just starting to feel like a vampire or something. Bleh.

Image Source

My doctor's appointment on Monday went just fine. Dr. M. put me back on antibiotics, but just doxycycline and not the other two, in order to mitigate the negative tummy reactions. I'm still on probiotics and she prescribed a bunch of different supplements that I now have to go about collecting. They're all from random online companies, too... one even from an Ebay store run by another doctor. I've kind of been putting it off, but I'm totally going to get on that tomorrow. By now, I've mostly learned my lesson about putting off my health for too long just because I feel fine now. Preventative action is the name of the game, people.

Image Source

In other news, I've actually been exercising lately. Strange, right? I've already got shin splints, but I'm determined to keep at it. I've been 3 separate times in the last week, which is pretty on target for me. I used to imagine the clothes I could wear if I were toned enough as an incentive to make myself work harder (yeah, I'm one of those girls sometimes. What of it?). I realize that's shallow or whatever, but if it works, it works.

It's not what I'm going on anymore though. I try to imagine myself the way I was before I got sick, one semester in particular when I really got into running at night (unsafe but exhilerating), took up yoga, played intramural softball, and started rock-climbing for fun. I felt strong. Solid. Invincible. Of course the next semester I became terribly ill, so there goes the whole invincible theory, but the point is that I've felt health and I'm trying so desperately to feel it again. This is really cheesy, but I like to listen to Fort Minor's "Remember the Name," while I run to remind myself that anything worth having is hard work-- it's not just me and how life is unfair blah blah blah ad nauseum, lol. Maybe it's silly, but the song makes me feel empowered and tends to send any leftover victim mentality issues right out the door. I'm not in control of everything, but I'm in control of some things, and it's dumb to whine about how hard they are. It doesn't make them any easier or get them done any more quickly.

Oh, one last tidbit before I go. I heard back from WFU that I actually only have one more English class to take, which means that the last class can be anything I choose. Woohoo! I think I'm going to take a journalism class by this awesome professor who guest-taught one of my classes last semester. She talked about social media and online journalism and how exciting the changing world we live in is. I dug it. So I emailed her and she's going to make room for me in the class. Hooray! She writes books about living simply, and her blog is here if you're curious.

Saving myself from... myself. I'm pretty fearsome you know.

noreply@blogger.com (Robyn S.) — Mon, 26 Jul 2010 04:13:00 +0000

Gah. I think I seriously need to go on a Facebook fast. That's actually WHY I'm posting tonight, just to warn you all. I've been in this crazy reconnect mode, which is good, but it's causing me to get semi-obsessive about Facebook, which isn't normal. I've been doing all this reading about dating in the digital age recently because it's just such a weird phenomenon, this brave new world of technology and how it's changing the most fundamental ways we relate to people. I bring it up because it occurred to me tonight that if I feel the need to connect with someone, I log on Facebook. Or I send an email, or I get on Twitter and just send out the equivalent of a mass text. You know what I don't do? PICK UP MY TELEPHONE AND ACTUALLY CALL SOMEONE WITH IT.

I mean, maybe I'll send a text message. Maybe. But a phone call, in this day and age, feels so... invasive. Isn't that weird? With a few mouse clicks I can see someone's online social history for the last year. If I want, I can read what my friends are saying to each other, and I can see all the events I'm missing. And yet straightforwardly calling someone and actually asking for their precious, non-digital time feels really presumptuous. Even with people I know really well! Seriously, kids, is it just me?

Anyway, I haven't really figured out this whole Facebook dilemma and, frankly, I should probably be putting all that cognitive energy into something revenue-producing, like my freelance work, or into that novel I like to pretend I'm writing. But instead I'm now making massive lists of new blog names, with my cousin's help, and trying to figure out how to take all of these driving-me-crazy thoughts and siphon them off into a place where I can get some feedback. So I'm going to take a massive chill pill and take the next, let's say, three whole days away from Facebook. And maybe I'll go get my damn cell phone fixed too so I can stop checking my text messages (it no longer makes a noise or anything when I get one, and I've missed a lot, so now I'm all paranoid).

In other, slightly more relevant news, I have a doctor's appointment tomorrow. Some of you have been sweet enough to ask me how my treatment's going, and hopefully I'll have some more answers as of tomorrow. I'm feeling great, to be honest, but just 2 weeks ago I got pitifully sick (back to the bed-ridden, writhing pain kind of thing) and had to take a break from the antibiotics. So I'm probably going to have to start taking those again, provided the Lyme didn't just decide to up and leave. Which would also be just fine by me. I need to stop being such a priss about some of the medical tests too. When I was miserable, I did ANYTHING they asked me to (weird science, anyone?). Now that I'm feeling better, I have more things on my to-do list than just my medical care (yay!) and sometimes when they want me to do some complicated test... I dunno I just put it off. Not responsible in the least, I know, but it's what I've been doing and I need to redouble my efforts. On a positive note, however, I've started exercising again, so that's good. I overdid it a little last week, but I went for a nice long run today and actually feel relaxed now instead of sore. Amazing. Borderline miraculous, to tell you the truth.

Oh, and there's this:

That's all I got for today. I answered everyone's comments in a massive comment on my last post, so if you're one of the sweet people who offered your kickass support, please check out my comment back! You've all been so unbelievably awesome on this journey. It's such a weird thing to have to explain-- you kind of have to experience it. And I appreciate so much that you take the time to share and commiserate and cheerlead and all the other awesome ways you guys have reached out to me. So thank you for sticking by me, even when good health calls me back to the land of the living and I miss the whole month of June. Oops. Please pray that I'm not jinxing myself and that I continue to get better! I know it's not all of your belief system, and that's cool, but I do pray for a lot of you and really care that your daily and long-term needs get met and that you find peace and happiness and, hopefully, healing.

Okay I'm done gushing. Gross.

First image found at http://www.kavehjamali.com/weblog_more_en.asp?theid=55
Second image: http://kyleriedel.net/shuffle/?p=351
Third image courtesy of me. You're welcome.

It's ALIIIVE!

noreply@blogger.com (Robyn S.) — Wed, 14 Jul 2010 06:31:00 +0000

So, it's 2:08 am and I'm still awake. Not really insomnia this time around... nope this is just good, old-fashioned, night-owl-ish-ness combined with a healthy dose of I-don't-give-a-damn.

Nessie over at lipstick, perfume, and too many pills gave me this sweet blog award, which I will try my darnedest to post on tomorrow. Thanks, Nessie! Truly the best part of this, though, was checking out all the other blogs that Nessie gifted the award too because, damn, this girl could be a blog curator if there were such a thing as a blog museum. I'm just having a blast going through these puppies. There's RA Guy, who draws comics, of which I am ALWAYS a fan (Hyperbole and a Half much?). Amanda over at All Flared Up is FUNNY in that awesome, irreverent sort of way, which can seem taboo sometimes when you're feeling as crappy as we sometimes do. And Helen from Pens and Needles is starting to feel like my long-lost friend the more I read her posts. So really, much fun to be had tonight on the interwebz.

But I think what I like best about reading blogs from other people with chronic illness-- and especially other young, single people with chronic illness-- is the fact that they make the same mistakes I do. And that sometimes you can't even really call them mistakes because it's not like we took a gamble. I *know* what happens when I drink, and I *know* what happens when I stay out too late, and I *know* what happens if I push myself too hard for too long. Yeah. I get it. The whole fragility thing. Womp womp womp.

But, sometimes, I just don't care. I'm sorry. Sometimes, if I'm not feeling my worst, and I have that anxious, "gotta get out of this house-," "my God I'm 24 years old and I never have any fun"- feeling... well, I'm going to get out of this house and have some fun. And sometimes it's a mistake. And sometimes it's the best thing I could have done for myself. Because whether or not I get better after all, I'm not waiting around for my life to start. It's happening. Right now. Right this very freakin' minute. And sometimes the threat of a crash just doesn't measure up to the threat of reaching 25 and thinking, what the hell did I DO last year?

So that's where I am right now. Please don't judge me if one day my posts are about how I can't get out of bed, and the next day I'm on my way to a series of events. Or sharing dumb stories about the stupid things people say in bars. Or taking overly ambitious road trips. Or even chaperoning a church youth camp in the middle of this heat wave (something I'm actually considering for next week, depending on how these stomach issues pan out). It doesn't always mean I'm feeling that much better (though sometimes it does and that's awesome); it just means I'm juuuust enough better to start living my life again.

Oh, blogging, why are you so difficult right now?

noreply@blogger.com (Robyn S.) — Thu, 08 Jul 2010 05:16:00 +0000

It's been over two months since I've posted, and you know the old adage: No news is good news. Unfortunately, this counts as news, so- you guessed it- I'm sick again. I don't really have any details. I haven't called the doctor yet and I don't know how long it will last, but I've been feeling bad for the last five days and it's been getting progressively worse each day. It could just be a stomach bug, but having been chronic for so long, I'm definitely a bit overly-anxious these days!

And honestly, I'm having some issues with the lines between blog life and real life. As I start to step back into the fold of... what? The rest of the world? Normal-paced living? Something like that. Anyway, I've been feeling better, starting to move faster and see more people on a normal basis, and I'm just really cautious about being that girl who over-shares. Because this blog is publicly attached to me, anyone can find me, and some of my more avid followers include my mom, my aunt and cousin in Ohio, and my little sisters. So when things happen that I want to blog about-- like my penchant for being approached by only engaged/married/divorced men in bars or the difficulty in differentiating between hangover-sick and beginning-of-crash-sick-- I generally decide against the risk. I'm not really sure what to do with that right now.

Basically, it's hard being single, young, and sick. Or should it be "BUT sick," in a way that kind of cancels out any dateability or friendability points gained by the first two factors? It's weird. I haven't worked in awhile, I'm not in school full-time, and I've been house-bound for the past couple years. Soooo my social circle has shrunk quite a bit. I love the people I know, but I worry about strangling them with my neediness, especially now that I've hit that 3-month post-relationship loneliness huddle.

So that's what's going on. I have lots of thoughts and no idea what the rules are for Internet-sharing. I'm trying not to let the Internet get in the way of all the things I need to start doing (part-time job, sign up for classes, start searching for a real career...), and I'm starting to have a little trouble staying sane through it all. Of course, my body went ahead and slowed things down for me, so thanks for that, body. Way to hold it down. Or something.

Anyway, how do you guys decide how much to share? I mean, really, if the point of doing this is getting to know people (thus showing my true self), being real, and you know, staying sane, how do you share what you want without cringing at the thought of your mom or distant friend or ex reading it?

Also, in unrelated news: I'm watching an E! Special on Justin Bieber and COMPLETELY developing Bieber fever. I just want to put him in my pocket for whenever I get sad. So cute! In a completely legal and appropriate way, thanks. :)

Weird Science

noreply@blogger.com (Robyn S.) — Tue, 04 May 2010 20:51:00 +0000

I was chatting with Annie of "It's Time to Get Over How Fragile You Are," and somehow it came up that I had tried a magnetic mattress pad for about a month while trying to find a treatment that would help me sleep and give me more energy. I know a lady who swears by her magnetic bed, and she let me borrow a mattress pad she had that was the same technology.

I'm glad it helped my friend, but for me, it was a total no-go. I could feel all the spots where the magnets were and it just felt really uncomfortable. After a month I decided I was actually sleeping worse (which I didn't know was possible...), so I gave this treatment the boot.

Anyway, it got me thinking about all the advice I've gotten from well-meaning and often times informed (and some not-so-informed) people over the years, and I've gotta know...

What's the WEIRDEST piece of advice you've been given regarding your illness? What's the weirdest treatment that you've actually tried??

What about ME?

noreply@blogger.com (Robyn S.) — Sat, 10 Apr 2010 07:04:00 +0000

This is the trailer for a new UK documentary about CFS entitled, "What about ME?" ME, of course, is a double entendre because it also refers to the UK name for the disease, Myalgic Encephalomyelitis (ME). As Alison noted over at Blog Wormwood, "sounds much scarier, doesn't it?"

I haven't been able to get the website (http://www.whataboutme.biz/) to work, but here is what Alison had to say about the making of this documentary:

On their list of people interviewed, I recognize Dr. Sarah Myhill, Dr. Charles Shepherd, and Anette Whittmore, founder of the Whittmore-Peterson Institute, which funded the groundbreaking XMRV study.

"People are suffering. But they are being told it’s all in the mind. Our aim is to investigate ME further, to put the plight of an ME sufferer in the public’s consciousness and to encourage further research and health policy reform. We hope to spread the word through this website which will have videos and podcasts on ME, short virals on the ME situation delivered multi-platform, a TV documentary aimed at a prime-time audience, a worldwide theatrical release and a docu-drama dramatizing an ME sufferer’s struggle, based on the novel “The State of Me,” by Nasim Marie Jafry."

I'd like to get my hands on that novel, and I really hope that this documentary gets made, because this story needs to be told. Here's the trailer... it's definitely worth a watch, even if you don't know anything about CFS/ME.

ME Promo from Double D Productions on Vimeo.

Owning My Story

noreply@blogger.com (Robyn S.) — Wed, 07 Apr 2010 05:18:00 +0000

After my diet change, I intended to write a post about what I could and couldn't eat. I was going to take pictures, make comparisons between my old stand-bys and my new fill-ins, joke about my wine and sugar addictions and my subsequent withdrawal symptoms... you know, the works.

One small problem: I don't really find it that interesting.

I think that I'm at that phase of my blog journey when I feel the need to define this blog and its purpose. "This is a health blog," I told myself. "This is where I blog about my health and all my screwy symptoms and my many doctors. This is where I find other patients who get it and we talk about how our lives have been changed by health."

But really, I didn't start this blog to talk about my health, or lack thereof. I started this blog to talk about everything that was affected by my health. MY LIFE!

I went to church this past Sunday for Easter and the pastor said a really great thing in prayer that stuck with me. He told us to thank God for our story, no matter how hard that may seem sometimes. And just like that, I was able to see my life a little more clearly. This isn't the end, and it's not the beginning, but it's part of the story, and that's okay. If God is the author of my story, then I know it will be beautiful. I just have to trust Him and live my life and own my story!

I've been slowly going through the diaries of Anais Nin, a French author who died in the 1970s, because I just love the way she uses words. She croons her life story to you. Anyway, she's training under a psychoanalyst in New York City named Dr. Otto Rank, and she's describing his patients' troubles:

The sick came endlessly, each one who was cured brought father, mother, sister, brother, friend. They multiplied in an alarming degree. Was this a new illness, born of our own times? No time for love, no time for friendship, no time for confidences.

Rank touches all things with the magic of meaning. Those who come to him are like the blind, the dumb, the deaf. When he discovers the "plot" of their life, they become interested. This interest saves them. This plot created by the unconscious slowly reveals itself to be more interesting than any detective story. Rank uncovers the links, webs, patterns. It is endlessly interesting, full of surprises.

Then, after Anais begins to see her own patients, she makes the following remarks:

Analysis accelerates growth, maturity, but changes come more slowly than insight. The patterns have deep roots and take time to change.

I avoid all clinical language because as a writer I believe language has power. I also take much trouble to describe each character, each motivation as unique, not to give the patients the feeling of being classified.

Science may heal, but it is the poetic illumination of life which makes my patients fall in love with life, which makes them recover their appetite for it.

This is what the blog is really about for me: falling back in love with my life. Accepting my story and starting to do a bit of the writing of it myself. Extracting the meaning from my days so that this time of my life will not have been in vain.

What about you? If your life story had a genre, what would it be and why? What would it take for you to fall back in love with your life?

All photos from WeHeartIt.

He is risen indeed

noreply@blogger.com (Robyn S.) — Sun, 04 Apr 2010 06:27:00 +0000

Happy Easter!

Oh how remiss!

noreply@blogger.com (Robyn S.) — Sun, 21 Mar 2010 15:33:00 +0000

I don't have time to post much, but I realized I hadn't posted in 10 whole days, so DON'T WORRY, INTERNETZ FRIENDS! I'm still alive, and I'll post later about the foods I can eat that replace my old comfort foods. I'm still following along with all of your blogs, and I have much love for you all!

My new hobby-- cartooning my way through my week.

TMI Thursdays... kind of.

noreply@blogger.com (Robyn S.) — Thu, 11 Mar 2010 06:53:00 +0000

My new favorite humor/life blogger, Lilu, started this blog trend called "TMI Thursdays." Now, to preface this post, this is not your average TMI Thursday post. So, Lilu, I adore you and read these posts voraciously, but you should probably not share this one with your readers, seeing as illness tends to make people way more uncomfortable than lewdness, drunkness, and STDs... put together.

Sad, but true?

Anyway, in mild concurrence with the spirit of the event, I must confide that I am slightly drunk. Yup. Had multiple glasses of a really classy wine with the moniker, "Cat Pee." I'm a *classy* gal, yessiree.

I do not drink that often since it sometimes interferes with my many, many meds. You guys probably understand this.

But, you (hopefully!) also may have read my post where I shared, among other things, my undying love for anything Italian. This love DEFINITELY extends to wine. And pasta. And really good pizza that you can only find in Italy. And clothes. Oh, and did I mention, WINE AND PASTA.

(Sigh).

Thanks for the many congratulations on my recent Lyme diagnosis. I too am thrilled to have an answer (though, as we know, in medical things, it may not be the only answer) and a clear (well, sort of) treatment path. But, here's the kicker:

Once again, there is no quick fix, no magic pill, no easy out. The goal here is to put the Lyme into remission, not cure it completely (since that's not possible). That means that many of the changes I have to make (on top of the MANY changes I've already made) have to be permanent. This isn't a "I'll do this to get better, then go back to my normal life" type of treatment.

Anyway, Lyme bacteria feed on sugars and carbs, much like myself. In order to get rid of these Lymie nuisances, I have to eliminate sugar and carbs from my diet. That means no pasta, no bread, no coffee (except decaf, sugar-free), no soda (same as coffee), no ORANGE JUICE (which I drink every morning) or fruit juice or sugary fruits of any kind, no cereal, and, most devastatingly, NO WINE WHATSOEVER.

*Sobs softly.*

The addition of antibiotics makes this new diet even MORE important since the antibiotics will target all bacteria, good AND bad, and I want to give the good kind more of a fighting chance than the bad, Lymey kind. Also, long-term antibiotics can lead to really gross side effects like thrush, where bad bacteria grow all up in your mouth and turn your tongue beige, then they go into your digestive track and cause all kinds of nasty business. Not cute.

(Oh yeah, that bacteria grossness? That's just the beginning of my TMI Thursday).

In addition to this grossness, I also have something called Babesia, a co-infection for Lyme disease. It's a parasite, ya'll. How gross is that? It's born in the tick, moves through the deer, my cat, and finally onto me, where it gestates and breeds and junk. SICK. So I'm going on treatment for that as well, and my new diet will help there as well.

Some of you that have chronic illnesses that severely limit your diets will probably think I'm being a big baby, and I totally am. But I've given up my lifestyle and my independence already. I've been lucky enough to not have to diet for weight reasons, and when I've eaten healthier the last couple years, it's definitely been fruit-intensive (now off-limits).

So I'm whiny. A bit whiny. But I'm going to try to make this my last whiny post. I'm already looking up great recipes on Lymenaide; I'm remembering my love for Lyme-ok'd foods like goat cheese, avocado, and tofu; and I'm currently having my last big hoo-rah. Yeah, you heard me right. I'm hoo-rah-ing. I don't start antibiotics til tomorrow, so today I had a sub, pasta, and a ton of wine. I also had a Starbucks latte and a regular cherry coke. Basically, I ate terribly today, because baby, this is my Fat Tuesday, and my Lent's going to last a long frikkin' time.

I'm still so grateful for my diagnosis. I'm 100% willing and ready to go every mile I can. Nothing is equal in worth to gaining back my life and my freedom.

But...

Gah, this wine is GOOD.

Lots of drunk-punch-love to you all,
Robyn

**What about your illness grosses you out the most? Feel free to share... we know how it is. :-/

There's no cure for stoopid.

noreply@blogger.com (Robyn S.) — Tue, 09 Mar 2010 06:48:00 +0000

My probable prognosis at tomorrow's doctor's appointment:

Damn. Well, at least we tried.

I was supposed to have a counseling appointment this morning, but woke up a) VERY late, and b) a dizzy disaster. I almost fell down the stairs before realizing that getting to my appointment in 20 minutes was so not going to happen. I called the secretary to let her know... and that's how that poor woman took the brunt of 3 weeks of my mistreatment at the hands of people who control my fate.

The conversation went something like this:

Secretary: Hello?

Me: Yes, hi, I'd like to postpone my appointment for today. I'm really not feeling well, and I'm not going to make it.

Secretary looks me up in computer.

S: Plus your appointment starts at 2, and you're not here.

Me: *Awkward silence.*

S: Well, there's going to be a late fee you know, because you should have called us 24 hours ago. And the counselor's booked for the next week, so I can't reschedule you til next Tuesday. And you really should have--

I now may or may not have interrupted her by bursting into tears like the well-medicated, composed adult that I am.

Me: Can I just say something? *sob* I can't control when I get sick. I don't know it beforehand. You are about the fifth person this week (please note that it's only Monday) who has been unsympathetic toward me, and I would just appreciate it if you could at least try to not act like you don't care. *blows nose.*

S: Oh my gosh, ma'am, I'm so sorry. I really didn't mean... I think you misunderstood... it's doctor's policy, you know, it's not in my control... I was preoccupied...

Unfortunately, by this point I was too focused on re-controlling my crazy to properly apologize for the outburst that truly belonged to a certain middle-aged man who hates sick people (again, an exaggeration... I'm trying to be entertaining here, people, sheesh).

So there you have it. I am now phone-bombing people with my emotions. But I learned a valuable lesson today-- the customer is *not* always right, but the customer who cries sure as hell is.

(Also, sorry to those of you who read my other blog too... yes, I reused this picture. I cried today, people. I'm exhausted!)

Wishing you all better luck than me with the rest of the world,
Robyn

Awards for everyone!

noreply@blogger.com (Robyn S.) — Thu, 04 Mar 2010 07:21:00 +0000

Thanks everyone for your showing your support after my last post. :) I told my mom that if we could all just get better already, I could lead a formerly-chronically-ill army against my #$%$-hole of a professor. Unfortunately, I continued to tell her, it was time for my afternoon nap. C'est la vie... d'chronic fatigue? (Ok, I don't really speak French).

Anyway, I've previously expressed my undying love for the Bloggess, no? The Bloggies stole yet another award from my favorite fellow anxieteur/cat lady (the first word's my own creation), so she went ahead and made her own award. A bunch of them actually. And she said we could take whatever we want. A grab bag of free awards!

I found the following particularly appropriate for the chronic illness community:

You should put it on your blog too. Because if we don't deserve this award, ain't no one who does.

(Ok, fine, there are probably lots of other people who do, including cancer survivors and those who have been through civil wars and national disasters and the like... but just for one, would you not argue with me, rational side of my brain?? Thanks. 'Preesh.)

Death warmed over.

noreply@blogger.com (Robyn S.) — Wed, 03 Mar 2010 04:55:00 +0000

Yup, that's pretty much how I feel too, kitty cats.

No class for this one tonight, just lots of rest... as in slept til 3, slugged around the house til dinnertime, then took a post-dinner nap, and is now about to go back to sleep again.

Blurgh.

I'm having trouble getting a deep breath lately, and I'm tempted to pop open the rescue inhaler I have from the allergist, but I just can't fathom starting yet another medication. I'm out of depression meds, so a trip to the pharmacy tomorrow is crucial to avoid yet more crying at episodes of "How I Met Your Mother." (I don't know, it happens... shutupleavemealone). I feel like I have the flu, but no temperature means that I just have the ol' chronic fatigue/Lyme disease crash happening, so that's fun. Blurgh again.

I'm a week late on a paper for one of my classes, which is why I even went to school last night feeling so bad. I had sent an email, but he hadn't read it because public school professors don't give a crap the way private school ones do, so in some ways, I actually missed Wake last night. I tried to explain to him my condition... I have CFS and Lyme disease and depression and sometimes I crash and I'm in the middle of a big ol' nasty crash. I told him how I'd barely gotten out of bed and how I'd been sleeping 12 hours. His answer, unsurprisingly, was basically "tough noogies."

He reminded me that other kids in the class had problems I didn't know about, as if I didn't realize other people have problems, thanks, and he pointed out that if I were late turning in something for a job, I would be fired. I pointed out that I wouldn't be able to hold down a job right now anyway, which is why I'm only taking two classes and living at home for goodness' sake. He suggested I quit school, which is also nothing new, and I politely replied that that was not really an option and informed him I had already been out of school for a year. I forgot to mention that I'm 23 damn years old and I would like to be finished with school, please, so that maybe once I'm better I can embark on my adult life. I then held back my tears until I got into the school bathroom, where I started a cry-laugh crazy person combo that lasted me most of the hour-long drive home.

Anyway, we finally came to the agreement that I would turn in the paper tomorrow (Wednesday), he would give me some points, and I would not be late again. While his complete lack of sympathy was disappointing (but, I mention again, decisively unsurprising), the truth is that all I need is a C in this class because the grade doesn't transfer to my Wake GPA anyway. Also, while most well people might not understand this, I'm giving myself points for showing up at all. It took all my deep breathing techniques to keep my anxiety at bay, and my old self absolutely would have just avoided this problem as long as possible, making it worse and worse. So even though I've messed up, again, I'm proud of myself for taking my big-girl pill and just facing the world head-on, even if it doesn't understand anything I'm going through.

And now I'm crying again. Damn you, depression, for turning me into a loser who cries. Now I'm laughing AND crying. Shit, I'm a real crazy face.

(Sorry for all the cursing, interwebs.)

Other Dumb Questions

Drifting on a Sea of Disconsolation

On a dark and stormy night...

The Quickest Update I Can Muster

The One Where my Brain Betrays Me... Again

Merry Christmas

Phoning it in...

Notice me (notice me), Notice me! (notice me)

And then there was a time that wasp stung me. IN THE FACE.

Done... I think?

Under Construction

*knock-knock* "Hello? Oh crap. No freakin' way. NOT YOU AGAIN."

Stop the world, I want to get off!

Failure at Facebook, but maybe not so much at life?

Saving myself from... myself. I'm pretty fearsome you know.

It's ALIIIVE!

Oh, blogging, why are you so difficult right now?

Weird Science

What about ME?

Owning My Story

He is risen indeed

Oh how remiss!

TMI Thursdays... kind of.

There's no cure for stoopid.

Awards for everyone!

Death warmed over.

knock-knock "Hello? Oh crap. No freakin' way. NOT YOU AGAIN."